UEAHSCP's 'together' magazine - Winter 2020/21

Page 4

together | p. 4

Rheumatology research group launched The Rheumatology research group is a collaborative initiative of clinicians specialising in rheumatology to develop new opportunities to initiate regional centred research. Placing local needs at the centre of the group’s focus areas, researchers aim to improve the standard of care for service users in our region. Over 30 years, the Norfolk Arthritis Register (NOAR) observational study into the cause and outcome of inflammatory polyarthritis has accumulated a wealth of data and research into arthritis and related conditions. Using the model of NOAR, the research group will expand the recruitment of participants, to allow for comparison of outcome of patients living with musculoskeletal disease across our region, to achieve improvements in care, engagement in research, and shared learning. Throughout the pandemic, NOAR has been providing insight into the impact of social isolation in inflammatory diseases and those who are immunosuppressed. This collaboration will enable practice innovation studies as well as building upon timely research around the impact of COVID-19. In support of the group’s overall vision for ambitious research, leading clinicians and academics from seven UEAHSCP partner organisations have identified several key focus areas centred on regional challenges, including: Use of biologics; Improvement in the speed and accuracy of diagnosis; A review of patient quality of life measures, including anxiety, depression, and fatigue; Research and care in this area for health inequalities and ethnic minorities; contrast between rural, costal, and urban communities; Impact of COVID-19 on care and patient experience; Inflammatory rheumatic disease. NOAR researchers have also carried out pilot work investigating cognitive decline and causes of frailty in ageing groups, applying new imaging methods to examine muscle changes in patients with chronic inflammation. The strength of the collaboration will enable this work to expand across the region and to address new research challenges.


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