PAGE 10, Thursday, January 12, 2017
THE TRIBUNE
‘For most of our son’s illness we were so sure he would be healed’ eATribune A1MAIN
S I came When Kevin and Valarie Seymour read through the door from last week about the battles of baby Roger work last week, Aidan M Carron against a little UNE242.CO T R I B me myE wife O N handed known life-threatening disease, it W SValarie N The Tribune and directed me to the front page article brought back memories of their son. entitled “From a Picture of This is a father’s moving account of Health to Death’s Door for losing their ‘promised child’. Baby Aidanâ€?. 50) Islands The article told the story therapy and falling platelet (Family at looked the$1. piece in over PRICE – $1 17 of Elizabeth and Robert 20 4, counts. Every story mir10 years, but, with minor Y AR NU JA Y, WEDNESDA iedsour own, but for three edits and updates I reproDupuch Carron and their ifrored s s a l er infant son, Aidan, Cwho duce it here: Tradexceptions: developed HaemophagoFirst, our son had LCH “My son, Kyle Ethan Ĺš cytic Lymphohistiocytosis and not HLH (although the ADER Seymour, my fourth TRwas IE IF CLASS childDSafter (HLH) and almost died. effects were the same); three daughS SINESmentioned E BUarticle SEThe Second, our son’s disease ters, and although I love that “like many Baha- progressed slowly and more my girls (including my latmiansâ€? the Carrons had insidiously so by the time est daughter, bringing the never heard of HLH. As he was diagnosed, much total to four), I have to adit so happens, my wife damage had been done; mit that I had been waiting DO WELLS ARson By RIC and I were among the few And third, our son lost for my for a rlong time. rte po Re ff Sta ne Tribu .net Bahamians who had in- his fight with this disease. medianame I’d had his picked tribune rwells@ timate knowledge of this Kyle died on Novem- out 20 CA years before en- he was nm iro env L A LO disease. will be the ber 26, 2002, at 19 months born. I was for when said heready talist has tractor atto stop anyshowed Our son Kyle developed old after three months at he firstfinally d up. It san ove rem to ng tempti a related strain of Histio- Miami Children’s Hospi- was to aid vain and chauvinistic, y ntr cou s thi from from ero - somecheIs believe cytosis called Langerhans tal (MCH) and Children’s I know, but Florida bea called on governhe as n, sio Cell Histiocytosis (LCH). Hospital in Chicago. Sever- thing in mostconmen demn wants ment officials to reports As I read, my heart went al years after Kyle’s death, that chance tos rec pass on his ational new intern eived that the US has out to the Carrons as they I wrote the following on a name. ngbri dy stu approval to theirfor 19 d to us related their experiences memorial message board to ian san Kyle was with ing Baham beaches. For mostE SIX with doctors at a loss for a help me sort out the loss I months. of that PAG SEE diagnosis, PICC lines, bi- was feeling. I hadn’t opsies, chemo-
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KEVIN and Valarie Seymour have learned that good health is to be cherished. Right, Kyle Ethan Seymour at about 14 months, just before his hospitalisation. time my wife and I made two weeks to see my wife plans for him, loved him and son. Every second visit, my wife would fly and cared for him. We ran from plane to We had noticed a chronic home, while I remained. plane to make our conscalp rash (which we took Our son went through bi- nections and arrived for ringworm) and Kyle was opsies and tests and chem- in Chicago shortly afotherapy. never a big ter midnight. We went He got an straight to the hospital eater. But ‘Kyle’s skin was implant to where my wife was in inwe weren’t allow easier tensive care with our now worried. He peppered with adminislearned to dark spots from his intubated son. tration of walk, sit up He was still alive, but blood that no longer drugs ... and his liver and kidneys had and climb. Then, at 15 clotted due to lack of meanwhile failed. He was bleeding his liver from everywhere. His months, he platelets. His bones his skin skin was peppered with developed were brittle from the and grew worse. jaundice, dark spots from his blood In No- that no longer clotted due lost weight chemotherapy - so and stopped much so that his arm vember, to lack of platelets. His 2002, af- bones were brittle from walking. had been broken. We ter three the chemotherapy - so We took and a half much so that his arm had him to sev- didn’t even know.’ months, we been broken. We didn’t eral doctors without getting a diagno- brought Kyle home for even know. sis, before one prescribed three days (the first time The doctors had induced a blood profile (a MAC since he was admitted and a coma to relieve his pain. 25, I think) and saw that the last time in his life). I He had had a cardiac arhis blood chemistry was flew back to Miami after rest earlier that day but all over the place. His pae- the short stay to continue had been revived. When diatrician still had no idea his treatment and the doc- I arrived in ICU, my wife what was wrong, but he rec- tors gave me the news. Our had already instructed the ommended we fly him to son was not responding to nurses to clean him up treatment and his liver was so I would be spared the MCH. We flew there immedi- deteriorating. They want- sight. She had used all of ately - concerned, but con- ed to transfer him to Chil- her considerable emotionfident and congratulating dren’s Hospital in Chi- al strength to do that and ourselves that we had the cago - an institution that I could see that she had HOW The foresight, diligence and re- specialised in liver trans- withdrawn and resigned Tribune sources to make this short plants. For the first time, herself to losing him. Still reported the the likelihood that our ... I could not let him go. trip to heal our son. case of Aidan After 10 days and a bat- son might die was raised. Not yet. Roger Carron tery of tests at MCH, the We had been praying for last week. Later that morning the doctor gave us the news. his healing throughout his hospital called to tell me Our son had LCH, a rare hospitalisation. my son had had another We flew Kyle to Chi- cardiac episode and asked blood disease, similar to leukaemia in that there is cago on an air ambulance me to come down. My wife an uncontrolled growth and arrived on a cold, grey stayed away. of histiocytes (a type of November afternoon and There, in the ICU, I said support, white blood cell used in checked into Children’s goodbye to my son and aulife on is he ht), ns (rig atio cin vac y, tine bod rou r tiny the auto-immune system), Hospital. As before, we thorised the hospital not week or so later afte disease ravishes his ng with health but a at monitors, clinging to life as a deadly uish - pages two and three Carron (left) bounci A mother’s ang except the cells are not planned for the healing to revive him if his heart CHEEKY Aidan Roger od and platelet transfusions and heartbe er Eileen Carron. blo oth rigged up to IV drips, r Elizabeth Dupuch Carron and grandm of our son. malignant. stopped watched by his mothe We met PAYOUTS BEGIN again and yle’s histiocytes with doctor ‘I asked the Attending left to wait. FOR OVERDUE were growing un- after doc- Physician if my son At SALARY OF controllably and tor before was going to die. 2.20pm, RS HE were attacking healthy one levelled PPLY TEAC S Kyle Ethan ndent and SU him to be indepe the regcells in his skin and then with us ... She looked at me, RICARDO WELL r of By d hea as ive Seymour ect obj porte GIL Re ff VIR s Sta NA ern ne gov RIS bu t By KH son not unkindly, but his liver. My son was being our ulatory body tha profes- Tri lls@ tribunemedia.net porter died. For al rwe leg Deputy Chief Re the country’s a.net attacked by his own body. was not re- with a professional kvirgil @tribunemedi most of his cial offi sionals. ion cat edu try I’m AN sponding to “T he only thing ed that Nevertheless, the doctors tional Na firm illness we con e o int Fre day f ter sel E yes my TH detachment and ing to ratify treatment s to ratify The the Department of Educa at MCH assured us that Movement expect for the were so sure is heaven,� he told que now che ed� s cur ate “se because his answered ‘yes’.’ tion has three candid those the prognosis was good. Tribune last year. n next he would be ent re- payments for 67 of 2017 general electio damaged “Being Bar presid e was told rs contracted Though rare, MCH staff che bun ndtea Tri e epe ply Th ind sup ek, healed. be we res me to uca qui Ed of try liver limwhen by the Minis yesterday. d saw three or four cases per and objective and pai el n ent lev Everybee h hig not a e to to hav g o going n wh Accordin ited the chemo dosages, thing we learned about I decide that I am f to run tio months, explaining that year and could treat it with is hoped for mysel party insider, it ce pla s or , out sirun pay Pre on but he could not be con- LCH suggested that it chemotherapy. ination, additional 71 that Bar Associati out� and accept a nom I will an Johnson, re being “worked ngs dent Elsworth We made more plans sidered for a liver trans- was not normally fatal. rone of the first thi n, no, I we later this week. Mi and ld nfie He the for Darren ON or Li- for my wife to remain do is resign. Until l be ofplant until his disease was We searched for reasons, ELSWORTH JOHNS thing.� Education Direct iam Emmanuel wil for the haven’t accepted any at the ds, speaking on the with our son, with me San l ed one add under control. I asked the meaning or a purpose for n ficially confirmed Abaco the source said. nso Joh ed Mr ort rep t Mr firs rth e , No I’m pay disput Yamacraw, Last September s that time: “If I decide that cies t week, rotating in from time-toAttending Physician if my this loss. As other parents las uen e stit bun e con ort Tri L Fre e rep CA Th the by for and MI Johnson denied ina- going to run son was going to die. She who have gone through SEE PAGE SEVENtime to give her a break respectively. was seeking a nom erhe E FIV com E to PAG es SEE M, und The party hop tion from the FN need for looked at me, not unkind- this know, we could find diand come home. We can of e slat l l critica plete its ful weeks, scoring the checked our son into the ly, but with a professional none. dates in the coming paediatric ward with the detachment and answered It has been five years other sick children. I re- “yes�. since our loss. We now have Returning home, I another son, Ethan Kevin membered feeling sorry for the other patients on made plans to return in Seymour, born August, the ward, most of whom two weeks while my wife 2004. Ethan looks just like had cancer or some oth- remained in Chicago at his namesake, Kyle Ethan, er deadly disease, and our son’s side. One week and we watch for every thinking how glad I was later, my wife called for rash, every cough, every that our son wasn’t so af- me to return right away. It fever. When Ethan was 19 was Monday afternoon. I months old, I couldn’t stop flicted. ing Newspaper ad Le pulled our then four-year- crying ...� For three and a half ds’ an Isl ma Nassau & Baha months we fell into a rou- old daughter out of school As it so happens, Ethan tine. I would fly over every and rushed to the airport. was diagnosed with an AuL! ADS SEL 351 PHOTO / 502-2 328-0002 NG AT STARTI
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tism Spectrum Disorder. He is language delayed and has other challenges that sometimes make him a handful. Nevertheless, we are thankful for him and the fact that he is generally in good health. We learned in 2002 that good health is to be cherished and, over the years, we also learned that the passage of time soothes (but doesn’t actually heal) the worst of losses. In reading that article about little Aidan, I felt connected to the Carrons – so much so that I was genuinely able to feel joy and relief that Aidan won his fight against this disease. I thank God for His deliverance and healing through what I know was an ordeal for both Aidan and his parents. • Do you have a medical story to tell? Email your tale to ishare@tribunemedia.net