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Society for the Care of Persons with Mental Handicap

ANNUAL REPORT 2011


- Our Mission To care for, develop and enhance the quality of life, with love and understanding from a dedicated staff, people with intellectual disability of all races and creeds entrusted to us, by providing with trust in Divine Providence and in co-operation with the parents, the community and the State the necessary spiritual, nursing, therapy and stimulation services in as an efficient and economic manner as possible.

Bank Details: First National Bank Account No.: 5468 0928 009 Account Name: LITTLE EDEN Society Account Type: Cheque Branch: Karaglen Branch Code: 25-24-42

LITTLE EDEN Annual Report 2011


Table of contents

Tribute to late Founder

1

Report from the Chairman

3

Report from the Chief Executive Officer

5

Report from the Treasurer

6

Finance

7

From humble beginnings in 1967

8

To a brighter today

10

On the home front

12

A day in the life of our children

13

A day in the life of a member of staff

18

A day in the life of a volunteer

20

Environment

22

Fundraising

23

Projects

24

Marketing and communication

25

Human Resources and Governance

29

The dawn of a new era

32

LITTLE EDEN Annual Report 2011


Dedicated to Domitilla Rota Hyams Founder of LITTLE EDEN Society 1918 - 2011 What we have done for ourselves alone dies with us; what we have done for others and the world, remains and is immortal. Albert Pike

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LITTLE EDEN Annual Report 2011


Tribute to Domitilla Rota Hyams “These children, with a far-away look, have souls more beautiful than the sun. They are angels. They are like lightning conductors on whom we should gaze with veneration. God could have created them normal, but they are as they are. There must be a reason for it which we cannot fathom. So we accept their creation as God's design and accept them as a sign of His predilection.” - Domitilla Rota Hyams Domitilla's life was a masterpiece of unqualified love, faith and service: to her own family and to the families of others, her neighbours and to the less fortunate and vulnerable. She lived her life faithfully and fearlessly serving others. She also created a sense of purpose and hope for countless individuals. She was honoured and recognised far and wide for her humility and selfless work, which she accepted with gentle modesty. She recognised the light that shines in the souls of these precious children with intellectual disability. She respected their purity and goodness of spirit and inspired others to recognise these qualities. Domitilla's legacy will live on in the hearts of her family and friends but also more importantly in LITTLE EDEN where she was a mother to literally hundreds of children with profound intellectual disabilities.

It was never about building 'a successful LITTLE EDEN Society' but simply about “caring for these angels”. Domitilla was 49 years old

LITTLE EDEN Annual Report 2011

when she started caring for a child with intellectual disability. This grew into what is now LITTLE EDEN Society - one step at a time. The journey has been varied and in the beginning very difficult. Hardships were always overcome by prayer. I don't know how many times I heard her say with her beautiful smile: “With Mary and Jesus it's OK”. (Extract from Harvesters of Jesus 20110305) The great lesson is that the sacred is in the ordinary; that it is to be found in one's daily life, in one's neighbors, friends, and family, in one's backyard. - Abraham Maslow

Tributes from friends, family and public: “She was a shining example of how people can live their lives selflessly to the greater good. God bless her soul.” “What incredible work she has done throughout her life; she really was a Mother Teresa.” “She was an amazing lady and I know she will be deeply missed. Her love, faith, and attitude have been a huge influence on me.” “We will always hold Mrs Hyams in the highest esteem, for the wonderful work she achieved, and the example she set will be remembered forever. Her strength and faith in the Lord was always most admirable.”

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Report from the Chairman I take immense pleasure in presenting the LITTLE EDEN Society's 43rd annual report for the year ending 31 March 2011, a year which again attested to being most successful and at the same time will be remembered as a poignant year in its history. 2011 began on a very sad note when on 18 January, our beloved founder of LITTLE EDEN, Domitilla Rota Hyams, passed away leaving behind a remarkable legacy of compassion and love for children and adults with intellectual disabilities who she always called her special angels. Domitilla strove and laboured selflessly in the face of numerous challenges to bring joy into their lives. Her endurance and unwavering devotion, strength and faith in her work and in the Lord has touched the lives of so many individuals and is truly an inspiration to all of us. Although her passing marks an end of an era, we know that her spirit will live on in our hearts and minds. Domitilla often said that we are the hands and feet of Jesus and now, as much as always, we need to ensure that we uphold and sustain this legacy that Domitilla pioneered. Domitilla's goal and vision was very simple - to ensure that children and adults with intellectual disability always have a place where they can live in dignity, peace and love. If we heed the Society's values of: Respect, Sanctity of Life, Love and Care, then our purpose and calling should result in the attainment of these goals. Of major impact on the future sustainability of LITTLE EDEN Society, since the previous report, is the establishment and registration of the LITTLE EDEN Foundation. The Board of Governors of the LITTLE EDEN Society, after due deliberation and consideration, deemed it prudent to reduce risk and establish an independent entity, viz the LITTLE EDEN Foundation, whose prime purpose is to secure and manage the land and buildings, and investments of LITTLE EDEN Society. At the 2010 Annual General Meeting held on 10 July 2010 the Foundation was unanimously ratified by the members of the LITTLE EDEN Society. The LITTLE EDEN Foundation was established on 21 July 2010 and registered with SARS on 29 October 2010 as a Public Benefit Organisation (PBO number

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Mr Maurizio Galimberti 930 034 635). The LITTLE EDEN Foundation operates under its own Constitution, is subject to the applicable statutory financial audits and controls, and is managed by a Board of Management made up of members independent of the Board of Governors of LITTLE EDEN Society. Rotary International, through the Edenvale Rotary Club, awarded the Paul Harris Fellow to our Manager: Facilities, Mr Peter Rohrbeck. He is the second person to receive this honour as a member of LITTLE EDEN. This award is given for dedication and ongoing commitment and in appreciation of tangible and significant assistance given for the furtherance of better understanding and friendly relations among peoples of the world and for his dedication and ongoing commitment to LITTLE EDEN. It is the highest recognition that Rotary International can give to an individual. Our compliments go out to Peter Rohrbeck for this wonderful recognition. During April 2010, our resident Chaplain, The Most Rev Archbishop Emeritus George Daniel, moved into the newly built chaplain's house named Michael Welsh House. It was completely furnished with excellent second-hand donated items. This residence adjoins the Holy Family Chapel at Elvira Rota Village. The turning of the first sod for the long-term volunteer accommodation took place in May 2010. Again the LITTLE EDEN project team kept an ever-watchful eye on the ongoing development which was completed smoothly and timeously. The official opening of this accommodation, Caroline Tindall House, took place on 20 January 2011 and the three Sisters of Bethany who had been with LITTLE EDEN since the previous January, moved in. A very special word of sincere appreciation and gratitude must go out to all the donors and individuals both local and from Europe who paid for this specific project.

LITTLE EDEN Annual Report 2011


“I would like to thank LITTLE EDEN from the bottom of my heart for being so wonderful to my brother, he is always healthy and happy when I see him” - Paul Passmore

We acknowledge the support of the Department of Health and the National Lottery Distribution Trust Fund (NLDTF). My deep appreciation and gratitude goes out to the numerous donors and benefactors. These include all individuals, the Society Ambassadors, honorary service providers, volunteers, unsung individuals, the community and corporates. These wonderful people help with the gift of their time, donations in kind, financial assistance and in other ways. Without their continued support, LITTLE EDEN would face an insurmountable sustainability challenge. They have shown such exemplary and extraordinary patience, enthusiastic commitment and devotion to the residents of LITTLE EDEN.

ing devotion and diligence in maintaining and living up to the LITTLE EDEN Mission Statement and Values. I am able to report that the financial affairs of the Society are in a sound position, the details of which will be discussed in greater detail by our Treasurer, Rev Doug Boake. Acknowledgement goes to Mr Peter Mannix and his team. Their zealous and meticulous methodology and approach together with the regular financial and management meetings is apparent in the results. I strongly believe that if we continue to infuse and nurture the same beliefs that Domitilla harvested, LITTLE EDEN will continue to grow and thrive for many years to come. I pray that God will continue to guide and bless us and enable us to continue our work of caring for all His little angels in our custody.

There have been numerous highpoints during the year, whilst for the residents of both Homes their favourite event is the annual Christmas concerts, with the daily routines having to be slightly adjusted long before the event so as to enable rehearsals for these concerts. The residents give their all and really enjoy these concerts and this year was certainly no exception. A big thank you and a very special word of appreciation must go out to all the individuals involved in making this the success it always is your dedication and perseverance is truly something to admire.

Finally I wish to thank my colleagues on the Board of Governors for their continued support and input during the year and look forward to their ongoing support.

Other special occasions arranged for the residents include spring day, sport days, birthday parties, outings, helicopter flips, Father Christmas visits and of course the Christmas parties. Our residents really enjoy celebrating these events, and I thank all those involved in making these possible.

MAURIZIO GALIMBERTI Chairman

The annual fête, held in March, was well organised and controlled and a great success with splendid community participation. This event again proved to be a good public relations and fund raising exercise for LITTLE EDEN. Congratulations and thanks to all who made this the success that it was. I wish to make special mention of the steadfast and resolute leadership of our CEO, Mrs Lucy Slaviero, together with the assistance of her Management Team from each department. A particular word of thanks must also go out to all the care-givers, house-mothers, professional nurses, therapists, and office personnel for their staunch and unwaver-

LITTLE EDEN Annual Report 2011

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Report from the Chief Executive Officer In May 1965 Domitilla wrote in her diary: We must build these projects on solid foundations. Speak to Jesus our Father, Jesus our Doctor ‌ to return often to talk to Him ‌ it must not be a parochial project, but once established, it must take wings and fly to far-off places and take root wherever duty calls. Mrs Lucy Slaviero If we are to be true to Domitilla's vision that she had from the start of LITTLE EDEN we must not concentrate on going bigger and better, getting more, doing more. No. We need to take time to reflect, time to ponder on the yearnings that she felt, the spiritual guidance that she received through her prayer-filled life. We must continue the ultimate goal of what the little paradise will mean to the children who enter through the doors. These angels who do no sin, who are complete souls made in the image of God our Father. The concrete, physical, economical and day-to-day operational duties that are performed are vital for the continuing excellence and transparent management of which the LITTLE EDEN Society can be justifiably proud. To be cited as a benchmark in the South African mental health care context is an outstanding achievement. To be able to voluntarily offer guidance and hands-on training and experience to new centres or low-resource centres is a blessing for LITTLE EDEN. But this is not only what Domitilla had in mind. She could see the difference that these angels could make in the lives of ordinary people. She could see that the parents needed help, yes; but more importantly she realised that they and their families needed to be touched so as to experience the spiritual gift of these precious souls. She wanted people to be able to visit LITTLE EDEN, to see the children and to be touched by their innocence and holiness so that these visitors would look in awe and wonder at the beauty of God and then go and share the miracle with their children, family, friends and colleagues. And so the message of Jesus would spread its wings and fly - fly to far-off places and take root in the hearts and lives of people everywhere. The message that God our Creator is in our midst and pleading for each one of us to live His word; to offer compassion, understanding and love to those most in need; to

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strengthen the bonds of love and charity amongst us. The message that we are the harvesters of Jesus; that we are responsible for these angels that God has given us to care for and finally that He may welcome them into His kingdom. The message took wings and flew to India. The Sisters of the Imitation of Christ have made an enormous commitment to LITTLE EDEN, having signed a contract in September 2009 for a trial period of one year, with it being renewed each year on the anniversary date provided that neither party cancel it. Three nuns arrived at the end of January 2010 and have already made a positive impact on the lives of the residents at Elvira Rota Village. They are embracing the ethos and ethics of LITTLE EDEN and in their own gentle way are continuing to positively influence the residents and staff around them. They are the working hands of Jesus and they see Jesus in others. This is part of the living legacy that Domitilla has given us to nurture and grow. Domitilla had a clear and pure concept of Jesus as God the Father - ever-present, guiding, advising, comforting, and humble; and Jesus as Doctor healer, tender, gentle, compassionate, and nonjudgemental. Her daily task of turning to her Lord in prayer is the very essence of who Domitilla was. Her total trust and faith in God and His son Jesus together with His mother Mary is what elevated her soul in utmost glory. Her best day on earth - her most glorious day on earth - was the day she left her earthly remains and triumphantly entered into the heavenly presence of her Maker.

LUCY SLAVIERO Chief Executive Officer

LITTLE EDEN Annual Report 2011


Report from the Treasurer The LITTLE EDEN Society reached an important milestone in 2011 as it was decided, in line with prudent business practice to donate the land and buildings, long-term investments and cash in the bank, surplus to the immediate needs of the Society, to the LITTLE EDEN Foundation to protect these assets. The Society will concern itself with the running of the Homes in Edenvale and Bapsfontein. LITTLE EDEN Foundation is a separate legal entity with an independent Board of Management. The sole object of the Foundation is to carry on one or more public benefit activities which are of a philanthropic and benevolent nature, having regard to the needs, interests and well-being of the general public and in particular LITTLE EDEN Society for the Care of Persons with Mental Handicap or any organisations founded or sponsored by LITTLE EDEN which are approved public benefit organisations. The 2011 annual financial statements reflect these once-off donations of R53 118 840 to the LITTLE EDEN Foundation. This has contributed to the total comprehensive deficit of R40 221 932 for the year. However after allowing for these donations the actual surplus for 2011 was R12 896 908 compared to the surplus for 2010 of R11 757 462.

Rev Doug Boake The financial position at year end reflects total current asset resources (inclusive of cash) of R7 006 508 which equates to four months running expenses of the Homes. This cash reserve is available as a backstop in the event of late payment of the subsidies and decrease in fundraising. The financial position of the Society is on a sound footing having regard to the very uncertain times in which the Society operates, and having to rely on payment of subsidies and the generous support of the general public and corporates.

This year two donations totalling R7 401 296 were received from the National Lottery Distribution Trust Fund in respect of applications submitted to the Fund in previous years. Gross revenue for 2011 of R30 914 319 (2010: R30 707 548) shows an increase of 1% from the previous year. Total direct fundraising costs and operating costs for 2011 were R24 156 015 (2010: R22 406 025) which shows an increase of 8% from the previous year.

DOUG BOAKE Chartered Accountant (S. A.)

“This is a contract very close to the hearts of Supercare and we admire and respect the work you do.� - Heather Dietrich (Supercare Regional Manager)

LITTLE EDEN Annual Report 2011

6


Finance Income and expenses for the year ended 31 March 2011

INCOME

%

EXPENSES

%

Bequests

1%

Direct Farm Costs

0%

Collections from the Public

24%

Direct Fundraising Expenses

6%

Department of Health

30%

Food

6%

Farm Income

0%

Maintenance

3%

Fees & Disability Pensions

9%

Municipal Services

5%

Investments

4%

Other Administrative Expenses

4%

Other Home Expenses

3%

National Lottery Distribution Trust Fund

22%

Second-hand Shops

7%

Outsourced & Professional Care Services

56%

Donations in Kind

3%

Personnel - Admin

10%

7%

3% 1%

Professional & Security Services

1%

Purchases of Movable Assets

2%

Second-hand Shops

4%

24% 1%

2% 4% 0% 6% 6%

10% 3%

22%

5% 4% 3% 4% 30%

9% 0%

56%

Bequests

Direct Farm Costs

Collections from the Public

Direct Fundraising Expenses

Department of Health

Food

Farm Income

Maintenance

Fees & Disability Pensions

Municipal Services

Investments

Other Administrative Expenses

National Lottery Distribution Trust Fund

Other Home Expenses

Second-hand Shops

Outsourced & Professional Care Services

Donations in Kind

Personnel - Admin Professional & Security Services Purchases of Movable Assets Second-hand Shops

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LITTLE EDEN Annual Report 2011


From humble beginnings in 1967 With the help of a group of friends, advice from experts in the field of intellectual disability, and a R10 donation, LITTLE EDEN opened its doors to the first three little girls in May 1967. Initially the organisation operated out of temporary premises in the Edenvale Methodist Sunday School, and could only provide day-care. By the second year, there were 23 children and a nursing sister supervisor, and LITTLE EDEN had taken occupation of an old house awaiting demolition in Kempton Park. The need for permanent, residential care was born. By 1971 there were 18 children in full-time care, with a further 30 attending during the day. This meant an 80km collection route - embracing Kempton Park, Modderfontein, Germiston and Boksburg - run by Domitilla and a group of volunteers.

Nursing sisters and children

Aerial view - Edenvale Home

Still the numbers kept growing - 100 children and 50 staff in 1973 - and LITTLE EDEN moved into three houses in Edenvale. The Society was finally able to build the present permanent Home in Edenglen on land donated by the Edenvale municipality at the corner of Harris Avenue and Wagenaar Road and the doors opened in October 1976.

Aerial view - Elvira Rota Village

Staff numbers stood at 100 and the first child of colour was admitted in defiance of the law at the time. Domitilla had a vision of a “village for these children of any age and with any disability … in the middle of a large garden where they can enjoy the wonders of Creation … a 'heaven' of love and caring.” This vision became reality with the purchase of a 42-hectare farm in Bapsfontein. Twenty of the older and more capable residents began life at the newly opened Elvira Rota Village in 1992.

Our Lady of the Angels chapel - Edenvale

1993: Our Lady of the Angels Chapel is officially opened at the Edenvale Home. 2004: Work began on the creation of a wetlands area at Elvira Rota Village. The official opening took place in February 2005.

Beginning of wetlands area

LITTLE EDEN Annual Report 2011

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“It was a pleasure to spend time at LITTLE EDEN and see the wonderful work you are doing there.” - Enver Samuel (Random Acts of Kindness)

2006: The official opening of the labyrinth at Elvira Rota Village - a place of tranquility and meditation for the children, staff and visitors. A Little Paradise cover 2007: LITTLE EDEN celebrates its 40th anniversary and the launch of the book Il Piccolo Paradiso (A Little Paradise) published in English. Nicky's Nook is opened at Elvira Rota Village. 2008: Colin's Cottage is officially opened. Domitilla Rota Hyams is awarded with the Bene Merenti Papal Medal.

The Most Reverend Archbishop Buti Tlhagale presented Domitilla with the Bene Merenti Medal

2010: The Holy Family Chapel is officially dedicated at Elvira Rota Village. The Sisters of the Imitation of Christ from India arrive at the Village. 2011: Domitilla Rota Hyams, founder of LITTLE EDEN, passes away in January. The Caroline Tindall House (long-term volunteer accommodation) is officially opened. Domitilla planted this tiny seed of peace and hope and nurtured it carefully. Like the olive tree in our logo, LITTLE EDEN grew into a small but tough seedling, able to bend with the wind and withstand the storms of life.

Holy Family Chapel - Elvira Rota Village

It started with three little girls in day care. Since 1967 more than 900 children have passed through our doors … and the waiting list is long.

Registry with children's names in reception

“What a joy it was to attend the Christmas Concert at Elvira Rota Village. We, once again, had to stop and be so grateful for everything that we are and that we are privileged to be touched by the beautiful souls in your village. May you all be Blessed for the wonderful work you do in adding so much quality to the lives of those around you.” - Marion Vlaming

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LITTLE EDEN Annual Report 2011


To a brighter today... Over the years, LITTLE EDEN has developed strong roots in the community. For over 44 years LITTLE EDEN has been and continues to be an oasis of love that serves the needs of children and adults with profound intellectual disability. Our children may never be able to walk, run, dress themselves or become productive members of society but at LITTLE EDEN we believe that each one is a whole and complete person, created by God with a mind, a body, a spirit and a soul, however disabled, and our mission is to help them to be all that they can be. The uniqueness of LITTLE EDEN lies in its core values of Respect, Sanctity of Life and Love and Care. Each child is treated with dignity and respect for who they are and what level of development they have reached.

Bobby, our oldest resident

We provide supporting programmes and therapies that make their lives as meaningful as possible. You can read more about the immense efforts and achievements of our children on pages 16 and 17. The Society is a Home to 300 children and adults. Our residents range in age from 2 years to 61 years. Statistically, the average age of our residents is 23 years, but the level of mental functioning is that of a one-year-old and younger. The mammoth daily task of caring for our special angels is ongoing: Laundry duty at Elvira Rota Village • Two thousand five hundred nappies are washed as well as three tons of laundry; • Three hundred sets of teeth are brushed twice a day; • Five meals are prepared and served to three hundred children; and • Two hundred and fifteen residents receive medication daily. This paints just a miniature picture of the work carried out at LITTLE EDEN on a daily basis. Even though our special people are mostly unable to vocalise their needs, the staff quickly learn how to interpret their body language and other means of communication and allow them the freedom to be where they feel most comfortable and content. Five residents were moved from the Edenvale Home to Elvira Rota Village. This was done in order to encourage them to develop further in order to reach their full potential. Three other children were moved from Elvira Rota Village to the Edenvale Home.

LITTLE EDEN Annual Report 2011

Five meals are served daily

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Dorothy lived at Elvira Rota Village for many years. She is getting on in age and recently became ill. She was moved to the Edenvale Home to receive the required medical intervention. During her time there, she indicated to us that she wanted to stay, as she found it peaceful and comforting to be with the younger children. Dorothy is happier than ever and it is clear from her behaviour and her beautiful smile that she is content.

Dorothy

Sadly, over the past year, we lost several residents. Dealing with the loss of a resident is, although not unexpected, never easy. Stephina Makhubela died on 16 April 2010 at the age of 29. Stephina was admitted to LITTLE EDEN in 1981 in contravention of the then legislation where black residents were not to be cared for in the same facility as white residents. Staff and residents are assisted through the grieving process by conducting a memorial service for every angel who passes away. The loss of a child gives another the opportunity to be welcomed into our family and this year twelve new residents were admitted. We have received much positive feedback and appreciation from donors, friends and visitors over the past year. That is the true test of the work that is carried out daily at LITTLE EDEN. It is more than just buildings housing people with special needs. It is a warm, loving Home with real people who deserve the love and affection of a special, albeit different, kind of family.

Love ...

“I remember vividly the winter's night I left my Mandy with your parents at the house in Edenvale all those years ago. I was miserable at what I was about to do. I felt I was virtually abandoning my little daughter. Domitilla understood, comforting me and convincing me that leaving Mandy in their care was the right thing to do. I am so glad I listened to her. Like many others, I will never forget her.� - Dave and Anne Beattie

and Care

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LITTLE EDEN Annual Report 2011


On the Home Front We have two beautiful Homes: one in Edenvale with 180 children and adults and the other on a farm in Bapsfontein called Elvira Rota Village with 120 residents.

Gender Comparison - Elvira Rota Village 120 100 80

The Edenvale Home caters for the residents at the level of frail care. The Home is equipped to provide a full Therapy and Care and Stimulation Programme which is ongoing. Here the children are grouped in their different sections, according to their general health and abilities. Of the 300 residents we care for, 230 were abandoned or come from indigent families that are unable to support them. Some are HIV positive or have AIDS. Caring for the terminally ill or dying is part of the work that we do at LITTLE EDEN.

69

60

51

40 20 0 Male

Female

Racial Differentiation - Elvira Rota Village 120 100

Gender Comparison - Edenvale Home 120

80 60

101

60 53

40

100 79

80

20

60

7

0

40

Black

White

Coloured

0 Indian

20 0 Male

Female

Racial Differentiation - Edenvale Home 120

116

100 80 58

60 40 20

5

1

0 Black

White

Coloured

Indian

At Elvira Rota Village we care for 120 residents. They are more involved in the activities of daily living and several get a turn to help in the laundry, kitchen or on the farm. Once a week they receive “pay” for their participation in the form of a packet of crisps, a chocolate and cold drink. They are proud of their responsibilities and take it seriously. This gives them a sense of self-worth and belonging.

LITTLE EDEN Annual Report 2011

The programme is moulded to the residents’ various abilities. It includes laundry duty, kitchen duty, farm duty, contract work (such as filling soap containers) and processing farm produce for those who are physically able to, and want to assist. Both Homes accommodate a group of boys and girls, men and women, with dual diagnosis (mental illness with intellectual disability). They have different needs and are cared for in their special sections where they can participate in the care and stimulation programme and yet still feel safe, secure and content. LITTLE EDEN offers its residents a combination of therapies: physio-, occupational-, music- and hydrotherapy, painting, puzzle building, art, and animal therapy. At the Village assisted horse-riding, sports and gardening and general enjoyment of the environment through our wetlands, sensory garden and labyrinth are ongoing.

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A day in the life of our children Our labour of love carries on. Over the past year the same routines, treatments, therapies, loving care and other tasks were repeated on a daily basis in order to ensure the children went to bed feeling content, warm, loved and fed. In many instances, progress is not immediately apparent and it can take years to teach a child a simple skill, such as holding a cup. To us, progress and success sometimes come in the form of a beautiful smile or in seeing a child cling to life when there is no hope humanly speaking - we believe that loving care can make this difference.

Physiotherapy Stretching exercises, floor exercises and a neuro-developmental programme to develop muscles mean that some children can eventually learn to sit, crawl, stand, walk or to hold a cup or spoon. Our physiotherapist also shows great ingenuity in modifying wheelchairs and prams so that bodies can be cradled in the right position. This “wheelchair” therapy helps align bodies, adding to the children's comfort.

A word from the Physiotherapist: Lenore Stringer “When I started working at LITTLE EDEN in January 1989, it was for two hours a day, twice a week. I thought it would keep me occupied while my two young children attended playgroup. Little did I realise then that the children of LITTLE EDEN would creep into my heart and that I would still be working with them 22 years later! There are so many memories - hours of therapy, teaching the likes of Simon, Jack and Wayne to walk, in spite of enormous handicaps. Then someone like Morné who, after years and years of trying, suddenly got up by himself! In my first few months I was so fearful of residents choking on sputum or food or both, that I initiated the Chest Therapy Programme and subsequently have trained many staff to cope with physiotherapy skills far beyond their education. Today our residents are well taken care of in this field. I think this is my proudest achievement. One of my fondest memories is of Sonto who came to us at age 18 months, anxious, afraid and curled up in a little ball. She spat out most of her food due to a severe tongue-thrust. Her hands were clenched in fists due to hypertonia. It took two years of stimulation, physical exercises and patience but then she had confidence in herself, could feed herself with assistance and she could even push her special self-propelling wheelchair for short distances and round in circles. Also she delighted in blowing kisses off her open hand. All the nurturing and therapy had paid off and her little face would beam with achievement.

Lenore with Shaun

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So it goes at LITTLE EDEN - precious small triumphs alternating with endless frustrations but always a smiling child to bring me back tomorrow!”

LITTLE EDEN Annual Report 2011


“Love, Peace, and Happiness go to the kids and our fellow mothers, sisters and brothers who are working tirelessly day and night.We give thanks to God and all the workers for their good work.� - Methodist Church Women's Missionary Society

Hydrotherapy Apart from being an enjoyable activity for most, hydrotherapy is an ideal way of treating people with physical disabilities. The warm water relaxes spastic muscles and, without gravity, weaker muscles can be exercised more easily, leading to improved strength and body movement.

Hydrotherapy

Music therapy Singing, beating a drum, plucking the strings of a guitar or listening to a tune on the piano for their enjoyment, warms the hearts of the children. Singing also strengthens muscles needed for swallowing, and drumming enhances rhythm and balance. Music therapy involves the therapist working with the 'musical child' - that part of the child that is not disabled. It allows our children to express themselves in the different ways that they are able to. Music

Stimulation Our day rooms are bright and colourful places, filled with mobiles and toys aimed at stimulating children. Those who are able to do so, have fun building towers of blocks or pedalling a tricycle. For others, fun may come from seeing themselves in a mirror or watching a mobile turn above their heads or by 'dancing' with the teachers, therapists and volunteers in their wheelchairs.

Pet therapy

Care and stimulation

To receive uncomplicated and total acceptance from a warm and furry creature brings great joy to any child and especially to the youngsters at LITTLE EDEN. We are fortunate to have the team from Paws for People bring their friendly and specially trained dogs to visit our children on a regular basis. Even those who are unable to reach out and touch, enjoy the presence of the animals. At the Village, animals are very much part of the environment and the residents love interacting with them.

Massage

Reflexology in session

Besides attention from the reflexologist, care workers massage residents' hands and feet regularly to improve circulation and to interact with the children - the sense of touch is important.

Spiritual care Daily prayers are said with the children and attending Holy Mass is an important part of the routine at LITTLE EDEN. Although the children may not understand everything about the service, they are quiet when they are in the Chapel - they love to pray and enjoy the singing.

LITTLE EDEN Annual Report 2011

Residents in the Chapel at Elvira Rota Village

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A day in the life of our children (cont.) The Chapel at Elvira Rota Village is used for weekly Mass with Archbishop Emeritus George Daniel and the Chapel in Edenvale services the Edenvale residents and staff as well as members of the community who want to join in every first Friday of the month.

Concerts

Thapelo loves dancing

Many months of hard work and practice culminate each year in the Christmas concerts performed by the children at both Homes. Those who are able to, sing and dance; others beat drums or shake bells and tambourines from their wheelchairs, telling the age-old story of Christmas through song. Huge smiles and great excitement bear witness to the children's enjoyment of this annual event. The deafening applause is always proof of just how much the audience enjoys it too!

Events, outings and other fun activities

Soccer World Cup fever

2010 brought with it the long anticipated Soccer World Cup which naturally caused the children and staff great excitement in the Homes. The children and staff even watched a few of the games together. Daniela had knitted herself a bright yellow jersey especially for this special period! Some special days and activities were once again planned during the past year for the pure enjoyment and participation of the children such as sports days, cookie baking days, special birthday celebrations, concerts, Easter Egg Hunts and the zoo situated at the neighbouring farm in Bapsfontein. The children were also taken on a few outings. One of these outings included the children visiting the Brenthurst Gardens by invitation from Nicky and Strilli Oppenheimer. The children so enjoyed this wonderful environment!

Attending the Pro-Life Mass

A group of residents and staff joined members of the public at the Johannesburg Cathedral on 26 March 2011 for a Pro-Life Mass. As one of the LITTLE EDEN values is Sanctity of Life, it seemed fitting to represent the Society on the day. The Sisters of the Imitation of Christ who have been with us since January 2010, started a vegetable garden with the help of some of the residents at Elvira Rota Village. It was great (and nutritious) fun for everyone!

Elvira Rota Village residents making a vegetable garden with the S.I.C. Sisters

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LITTLE EDEN Annual Report 2011


Case Study: Music Therapy Written by Karen de Kock, Music Therapist at Elvira Rota Village

Siza with her sponsors, Otto and Alexandra van den Bosch from Holland

Siza (front right) and a fellow resident with Karen de Kock during a music therapy session

I got to know Siza, aged 17, as part of a Vocal Ensemble Group which I started in 2006. At the time, I asked that residents who had limited or no speech, be referred to this group.

By prolonging the vowel sounds into a musical phrase, her body started relaxing and she started to breathe more evenly with the music.

My aim was to help encourage residents with speech impediments due to Cerebral Palsy, towards more frequent use of their vocal chords which I anticipated would enhance their ability to communicate. I noticed that Siza was by far the one that “laboured” the most in making sounds. Her sounds were soft, often inaudible and she seemed to “gulp” for air between her sounds. As a result of her “laboured” breathing, her body tensed up which resulted in her sounds having the same quality. I decided to do individual Music Therapy sessions with her in addition to the Group session that she was attending. What I found was that her eagerness to produce sound created an enormous amount of tension in her body. She was not pulling the breath through her body and made short gulping sounds. My first aim was to encourage a deeper, more regular breathing pattern. This was established through the repetition of musical phrases consisting of only vowel sounds. I chose vowel sounds because they are easier to produce than consonants as the airflow is not interrupted as in the case of consonants.

LITTLE EDEN Annual Report 2011

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As our sessions progressed, her breathing became more regular and free. This resulted in her body becoming more relaxed which produced more audible, stronger sounds. More frequent jaw movement from singing resulted in an improvement in her chewing action during meal times. Apart from the physiological improvements, more important is the emotional effect of being able to make sounds more audibly and flowingly. She is more confident and very proud of her abilities and achievements. Due to continued, weekly music therapy sessions, Siza speaks more clearly; her posture in her wheelchair has improved due to the strengthening of her abdominal muscles and diaphragm. She is able to sing long phrases without taking an “escape” breath. Her enthusiasm and commitment in learning new songs are an inspiration to everyone. She now has a repertoire of over 30 songs in different genres, languages and moods which she can draw from. Siza's singing inspires everyone and is a great example of celebrating her abilities. Her singing allows her to “bring out” all the sounds that are inside of her and to create movement in a body that is wheelchair bound.

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Case Study: Physiotherapy

Recently, one of a group of Rotarians from Sweden had this to say while on a visit to the Edenvale Home: “I have seen values displayed in companies and organisations, but this is the first place I have seen the values lived.”

Grant

Thobane

The story of Grant, a 40-year old LITTLE EDEN resident, is an inspiring example of a personal achievement by one of our older residents, as well as a testimony to the work that the Society carries out daily.

Thobane, born in October 2000, suffered a severe lack of oxygen at birth and was diagnosed with profound intellectual disability as a result thereof. Doctors discovered soon after birth that he was epileptic and also hyperactive. At the age of 7 years, Thobane was admitted to LITTLE EDEN.

Grant was diagnosed with Anoxia (a severe lack of oxygen) at birth. His loving mother made the decision to admit him to LITTLE EDEN at the age of 6 years, as he required intensive care and stimulation which the Society was able to provide. Grant has always been a friendly young man who easily smiles and is quite shy. For most of his life, he was able to walk and do other physical activities independently Grant loved kicking a ball! When Grant was 23 years old, he was moved to Elvira Rota Village, where he enjoyed life on the farm. Unfortunately, approximately five years ago, Grant had a cerebral vascular accident or stroke, which prevented him from walking. As a result he had to start using a wheelchair. Grant sometimes suffers from swollen feet (lymph oedema) due to his general condition. Earlier this year, Grant was started on a specialised physiotherapy programme twice a week, which is aimed at improving his strength and circulation in the body - especially his lower limbs. The therapy sessions include active exercises with a physio ball, passive and active mobilisation on the floor - from sitting up and transferring between parallel bars to standing bearing his own weight and walking with assistance. It has been noted that Grant is becoming physically stronger and enjoys the exercises. He is trying very hard to walk independently again!

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On admission, he was unable to talk, could only walk for a short distance without falling over and had a limited understanding of words spoken to him. He required assistance to get fed, dressed and bathed. Due to his condition, he had serious balance and coordination problems and therefore had to wear a helmet to protect himself from injuries. Since May 2009, Thobane has been attending focused and intensive weekly physiotherapy sessions. His sessions include, amongst many others, balance exercises with a physio ball. The physiotherapy sessions have helped to improve Thobane's balance and coordination significantly. Whereas before this little boy spent all his time on the floor, moving about by crawling, his walking is now improving steadily. A combination of the various therapies offered at LITTLE EDEN continues to have a positive impact on Thobane's general well-being. He is much less hyperactive than before and his most recent achievement is that he can now feed himself and drink his tea without assistance. Thobane so enjoys “morning ring time” where he gets to dance and clap to music and play a tambourine. One of his other favourite activities is taking a walk down to the park.

LITTLE EDEN Annual Report 2011


A day in the life of a member of staff

Housemother Brenda Mogano in Green Wing

Housemother Maria Lichaba in Nicky's Nook

Edenvale Home

Elvira Rota Village

“I have been at LITTLE EDEN for 13 years now. When I started, I was a care worker and I worked in different wings. It was difficult at first, as I have never worked with children with disabilities before. It was difficult emotionally to leave work at work and go home to my family and not think about what I had seen at work. As time went by, I adjusted. In 2004 I was promoted to Housemother of Green Wing. My day begins at 06:30 and ends at 18:30. There are various activities throughout the day that the children and I do together. Things do not always go as planned in Green Wing as I have a very active group of children, but I enjoy every single moment! I find it challenging at first when a new child is brought to my section, as I need to study and get to understand the child; most importantly where feeding is involved. My favourite residents are Gontse and Owami. They are still very young; I feel they require my special attention. Pule is the 'naughtiest' - I run around after him the whole day! I become very sad when a child has to move to the Village because I get attached to them as if they are my very own children. Most recently, little Xolane moved to the Village and I have grown so fond of him. He used to be my little helper in the morning. However, I know that he will thrive at the Village, as he has developed so well. Luckily, we still see the children at special events between the Homes and it is lovely to see how much they have grown each time.”

“I have been working at LITTLE EDEN for 11 years. I started as a cleaner. Later I was promoted to care worker and now I am a Housemother for Nicky's Nook. I enjoy my work here as it is spiritually fulfilling. Most of the children I care for have never seen their parents before and for others it has been a long time since the last visit. I therefore play the role of a mother or a parent to these special people. Just like a mother I also sometimes get upset when they do not want to listen to me or if they are being stubborn. However, because I know and understand each and every one of them, I know what the best way to deal with each individual is. Nicky's Nook is a wing for older residents, the youngest is Matlatsi who is 21 years old and the oldest is Bobby who is 61 years old. My day starts at 06:30 and ends at 18:30. It's a long day filled with many activities and is very rewarding. Prior to being the Housemother in Nicky's Nook, I looked after the residents in Pino's Place with dual diagnosis. This is where I met my favourite resident, Leslie. He is the “naughtiest” and most stubborn young man, but his friendly hugs and kisses makes it all worthwhile. The children make me laugh almost every day - they are so special! Sergio used to help out in the kitchen almost daily. However, due to his old age, he is no longer allowed to work in the kitchen. He occasionally walks up to me and asks me to watch out for Sister Sandra and to make sure that she does not see him go into the kitchen because there is work to be done there! I love them with my whole heart and enjoy coming back to them every day.”

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A day in the life of a member of staff (cont.) Our little people (and some not so little) bathe me in pure happiness. They are so trusting that I will attend to their every need, what an honour for me to be held in such high regard.

Sr Gill Wratten Professional Nursing Sister “Having been raised surrounded by people with intellectual disability and having qualified as a Registered Professional Nursing Sister, I can honestly look at my career and place of work and say with total confidence that I am so blessed to have found my work to mean far more than any usual definition of the word “work”. My work means self-fulfilment and learning more about myself - what an honour. Our special children educate me in their own way. Two mornings per week I know will be filled with the unknown for me! My shift at LITTLE EDEN starts at 06:45 when I receive the report from the night sister. I always check my diary for the planned events of the day but believe me, plenty of unplanned events come my way! We are, after all, one big family, with all of our special children needing dayto-day care: be it medication which I've prepared or a trip in the ambulance to the local hospital. Sometimes all that is needed is a smile and boy, does my smile get reciprocated tenfold! That alone is enough to confirm for me as to why I am so happy at LITTLE EDEN.

Not only does LITTLE EDEN receive support from the community, they also provide people with the opportunity to experience the special gifts that our children have to offer. It gives a sense of self-worth to a few young persons who have special needs themselves, when they help us every week by pushing our children in wheelchairs to their different therapies. LITTLE EDEN is a well-rounded environment and I am very proud to be part of it.”

Supercare Services Group (Pty) Ltd provides the Society with sub-contracted services for the majority of the day-to-day operational functions at both Homes and the two second-hand shops. Special thanks and appreciation to Mrs Heather Dietrich and all their staff for their commitment and support. There is a total of 253 members of staff (LITTLE EDEN and Supercare). Ongoing staff training forms an essential part of the work at LITTLE EDEN. The dedication of our staff is an essential component of the success of the Society. Visitors often comment on the commitment of the staff, as they experience first hand what goes into the care of our youngsters.

Staff Ratio: Gender & Race 300

Going from Wing to Wing, I am able to pick up from staff and sometimes children, any intervention needed. Staff also report to me throughout my shift and I respond accordingly, for example a child who needs to be assisted during an epileptic fit, where I give medication to cause the fit to cease. Yes, my work is very diverse. Another important component of my work is speaking on the telephone to bereaved families. Somehow I find the right words and I just know that God allows those words to flow from me in a way which is soothing to the families.

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250

227

215

200 150 100 50

37

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1

0 Male

Female

Black

White

Indian

LITTLE EDEN Annual Report 2011


A day in the life of a volunteer A total of nine volunteers from different European countries offered their services to LITTLE EDEN over the past year. It is always humbling to see people taking time off and travelling at their own expense, to give back to the less fortunate. All our volunteers, both local and foreign, join the LITTLE EDEN family and assist with the daily activities of the Homes and add value to the programme. “It was my first time working with persons who had mental and physical disabilities; I did not know what to expect. However, during my five weeks here, I have learnt so much. The joy and general sense of humour that they have is fantastic. And the love that they show for one another is like nothing I have ever known. I have found the time here incredibly rewarding. Being able to share in the love that LITTLE EDEN inspires was an incredible experience. Hopefully I will be able to come back some day and experience it again.” - Patrick Cagney, August 2010.

Kerri du Preez - Local Volunteer “When my 14-year-old daughter, Rachel, passed away in May 2008, my world came crashing down. She had suffered brain damage at birth and was left spastic quadriplegic, epileptic and unable to speak or feed herself, but Rachel was a joyful little soul whom I loved with all my heart. I thought I'd never get over the pain of losing her. Upon hearing an appeal for volunteers at LITTLE EDEN on Radio 702, I felt the Lord calling me to sign up. I was a little apprehensive, and afraid that spending time with children similar to Rachel would make me miss her even more. I need not have worried at all, for my life has been enriched and filled with so much love and joy by the precious children and wonderful staff at LITTLE EDEN. Kerri and Sindi I volunteer on Thursday mornings and I am privileged to laugh, dance and sing with the most wonderful group of children. Each child has a distinct personality and I have grown to love every single one of them. When I arrive each Thursday I am greeted with squeals of delight and lots of hugs and kisses. Aden shows me his new shoes, Xolani chatters away, and Gift giggles and giggles. Sindi and Shaun love to learn new songs (with actions), and I'm always amazed at how hard they try and how well they manage with their limited physical capabilities. Ahmed is Barney the Dinosaur's greatest fan, and has a wonderful sense of humour. Tshepo is a determined little chap who likes to dance and help with the other children. Since I started volunteering last year, both Pule and Bo have learned to walk ... they still fall down sometimes, but get back up and keep on going. The staff jokingly refer to Sindi as my “daughter” because of the close bond we share, and I decided to sponsor her under the “Adopt an Angel” programme, which is a lovely way of contributing towards the costs of caring for the children. For me, volunteering at LITTLE EDEN is not a chore, duty or act of social responsibility. It is great fun, rewarding and a complete pleasure, and I would like to thank everyone - children and staff alike - for healing my broken heart.”

LITTLE EDEN Annual Report 2011

Suzie with Keketso

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A day in the life of a volunteer (cont.) Dr Wim Briedé “I am a qualified paediatrician and have been volunteering my services pro-bono to LITTLE EDEN since 1982 - it has been 29 years to date. I have continued to offer my services because I love what I do in helping the needy and vulnerable. I find it personally fulfilling; it is God's work. Dr Briedé attending to a resident

The best part of being a volunteer at LITTLE EDEN is knowing that I help the children feel and get better when they are not well. There have been many times where I knew that a child would soon pass away. It is never easy, but I get satisfaction out of knowing that I was able to contribute to their care while they were still alive. I thoroughly enjoy what I do and will continue to offer my service to LITTLE EDEN for as long as I am able to.” We are truly blessed to have so many people willing to give of themselves because they believe in our children as much as we do.

German volunteers Lisa and Judith say “Happy Birthday” to Paulos

“In addition to the residents of the Home, the management of LITTLE EDEN is very diligent in ensuring that the staff are well taken care of by offering them in-service education workshops and inhouse career training which allows them to give of their best to the residents. I have no hesitation in recommending that you seriously consider granting them the much needed funds which will help them continue in their wonderful work.” - Beverley Frieslich

“LITTLE EDEN Society continues to rise up as a morning star upon families who had lost hope for their loved ones, serving to off load the care and upbringing of these children in a home setting with little or no facilities at all. You are a fertile soil where the abandoned and orphaned are nurtured, loved and brought up in safe homes 24/7 by well groomed, dedicated staff and good managerial team. Long live Mrs Domitilla Hyams’ dream, long live!!!”

Former volunteer, Adeleine from Holland, greets a resident on a recent trip to LITTLE EDEN

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- Sr Sophy Khutoane (ERV)

LITTLE EDEN Annual Report 2011


Environment

Sr Ann Wigley, in thanking Management for the gift she received, wrote: I thank you and I thank you still more for the privilege and honour of working at LITTLE EDEN over the years. It has brought me a real gift of faith, hope and love to work alongside the faith, hope and love I experience in you, in the staff and in the residents.

An analysis done on the total paper collected by the LITTLE EDEN recycling initiative since December 1995 shows that 1 127 tons has been collected to date. This is equivalent to saving 19 161 trees. Furthermore, the following beneficial environmental impacts have also been affected by this recycling initiative: • A saving of 3 381 cubic meters of landfill • A saving of 3 268 Gigajoules of energy • A reduction of 1 127 tons of coal-based emissions of carbon dioxide into the atmosphere • A reduction of 2 029 tons of electricity-based emissions of carbon dioxide into the atmosphere • A reduction of 11.27 tons of sulphur dioxide into the atmosphere

where they can watch the birds and insects that are attracted by the wetlands area. A few residents took it upon themselves to feed the birds daily and it gives them great joy. The children also walk, or are pushed in their wheelchairs, through the sensory garden and the labyrinth where they can pause and sit by the waterfall for a while. The labyrinth and waterfall have proved their effectiveness in aiding relaxation. They also have a calming effect and are especially beneficial to the children with dual diagnosis.

LITTLE EDEN is mindful of the impact of our operations on the environment. We have systems in place at both Homes to encourage the community to participate in the appreciation of, and respect for, the environment. The Society does not use disposable nappies, which is harmful to the environment, but washes 2 500 nappies every day! All detergents used at LITTLE EDEN are environmentally friendly.

Ahmed throws some paper in the recycle bin after LITTLE EDEN had reached the 1000 ton mark

A glass recycling initiative is also ongoing at the Edenvale Home and LITTLE EDEN continues to make the general public more aware thereof and to encourage the community to recycle. We were approached by a tertiary institution that visited our wetlands and has shown interest in undertaking a research project on our system of water recycling. In the immediate community and surrounding areas, a couple of individuals have also visited our wetlands and are looking to follow our example.

Residents walking the labyrinth

A new, additional septic tank which was sponsored by students from Wits University is now operational. This was a necessity due to the increase in number of residents and staff over the past couple of years. The environment continues to form an essential part of the ongoing therapy programme at Elvira Rota Village. The residents walk down to the wetlands

LITTLE EDEN Annual Report 2011

Children and staff by the waterfall

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Fundraising

LITTLE EDEN staff and children with Lynette Saltzman, founder of Dis-Chem Foundation and John Robbie of Talk Radio 702 Despite the austere fundraising climate of 2010, in South Africa and internationally, LITTLE EDEN was able to source the necessary funds for its operational expenses. The quest for funds is an ongoing process so that LITTLE EDEN meets the specific needs of our residents. We are deeply indebted to our existing benefactors and friends for their sustained support and generosity without which we would not have been able to meet the critical expenses that were incurred throughout the year in the care of our special people. The National Lottery Distribution Trust Fund (NLDTF), awarded two grants in respect of applications submitted to the Fund in previous years. The FirstRand Foundation Momentum Fund generously contributed towards the ongoing costs of the Care and Stimulation Therapy Programme which enabled us to continue with the intensive therapies that our special children need. A substantial contribution from the BoE Charitable Foundation facilitated the purchase of a new Volkswagen Transporter that provided essential transport for LITTLE EDEN's residents at both Homes. A handsome donation from The Anglo American Chairman's Fund gave the first tranche of a three-year grant towards the Care and Stimulation Therapy Programme. This strengthened our capacity to further develop the Therapy Programme.

demonstrated additional support when it provided LITTLE EDEN with invaluable broad media coverage over an extended period. In recognition of the staff’s dedication and commitment to their work, Dis-Chem Foundation treated all staff members to a show at Monte Casino. ABSA made a Small Grant award that was used to refurbish 27 cushions for the special Madiba Wheelchairs in need of repair. On 20 January 2011 the Caroline Tindall House (Long Term Volunteers Accommodation) was officially opened at Elvira Rota Village. This was made possible through the generous contributions of both international and local donors. The project was supported by amongst many others: SemArcH (Pty) Ltd (Architects); Semane Consulting Engineers (Pty) Ltd; Walker Maré Quantity Surveyors; a bequest from the late Caroline Tindall; Anonymous (Netherlands); Corobrik (Pty) Ltd; Cornelia-Stichting (Netherlands); EON Consulting (Pty) Ltd. We acknowledge with special thanks Alexandra van den Bosch who sourced various funders from Holland. Southern Sun Hotel Interests (Pty) Ltd donated funds towards furnishings. Another source of our major funding came from direct mail appeals as well as the two second-hand shops in Edenvale and Primrose. The annual fête was, as always, a successful fundraising and friendraising exercise.

A generous donation awarded by The Dis-Chem Foundation contributed towards the general running costs of the Home and also subsidised a Christmas party for our special children. Dis-Chem Foundation

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LITTLE EDEN Annual Report 2011


Projects

“I was humbled to witness women from all walks of life give of themselves so freely to such an enormous task. Caring for and loving a child is a blessed privilege, and I would like to take this opportunity to say thank you, siya bonga, baie dankie for the extraordinary service. Your work is special and it takes a HUGE heart to do it!” - Peggy-Sue Khumalo (Former Miss South Africa)

The official opening of the Caroline Tindall House On Thursday 20 January, a group of LITTLE EDEN children, staff and friends of the Society gathered together to celebrate the official opening of the longterm volunteer accommodation, known as the Caroline Tindall House, at Elvira Rota Village in Bapsfontein. This building and what it represents, was yet another dream of the Society's beloved Founder, Domitilla Rota Hyams, who passed away two days prior to the event. The realisation of this project marks the fulfilment and completion of the many dreams which Domitilla had for LITTLE EDEN. In January 2010 three Sisters of the Imitation of Christ, an order of Catholic nuns from India, arrived to commence their service at LITTLE EDEN; Sr Magie, Sr Tessa and Sr Therese. These women have joined the team of dedicated staff in being the hands of Jesus in caring for the residents. They have embraced the values of the Society, namely: Respect, Sanctity of Life, Love and Care and it is visible in the contentment of the residents.

The Caroline Tindall House, now home to these three Sisters will, in the future, accommodate additional nuns who wish to serve God at LITTLE EDEN. The plaque was unveiled by Karen Tindall and Suzie Tindall - family of the late Caroline Tindall, a most gracious lady, after whom the building was named. Rev Mother General of the Sisters of the Imitation of Christ (who visited from India), together with Danny Hyams, cut the ribbon and declared the building officially opened before it was blessed by Archbishop Emeritus George Daniel.

Summary of Completed Projects Elvira Rota Village • Correction of acoustics in the Holy Family Chapel. • Carpentry work was completed in the Michael Welsh House. • Development of policy and procedure with regard to the Wall of Remembrance. • Installation and construction of a new septic tank. • Repairs to paving to the wetlands due to heavy rains. • Cleaning of the maturation ponds. • Monitoring borehole water quality. • Completion of the long term volunteer accommodation. • A flower box has been built and flowers planted in front of the Chapel. • The first ashes in the Wall of Remembrance were placed and blessed after Holy Mass on Thursday 24 February 2011. • The fountain in the shape of a heart, showing the Value of Love and Care was built at the Garden of Remembrance. • Re-surfacing of the road in front of the Chapel. • Planning of alterations to staff accommodation.

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Edenvale Home

Rev Mother General, Sr Benjamin S.I.C., and Danny Hyams officially opened the Caroline Tindall House

LITTLE EDEN Annual Report 2011

• Chapel paving replaced. • Replacement of the Toyota Venture with the VW Crew Transporter. • A TV connection was set up at both Homes for staff and residents to watch the Soccer opening ceremony and some of the games. • Repair of boundary brick wall. • General security of both Homes upgraded.

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Marketing and communication Targeted Lifestyle Communications (TLC) have continued their support of the Society through the distribution of posters promoting LITTLE EDEN, across the country. The distribution channels included shopping centres, gyms and airports. Our special relationship with the Bedfordview and Edenvale News continues. Their support throughout the year was invaluable. LITTLE EDEN featured in a television insert as part of Dis-Chem's Random Acts of Kindness initiative. This came as a result of Dis-Chem's donation to LITTLE EDEN in December 2010. Popular radio host, John Robbie from Talk Radio 702, interviewed CEO Lucy Slaviero and subsequently visited the Home. He also featured in the television insert, endorsing the work that we do. This exposure has been of great value to us. Between October and December 2010 LITTLE EDEN was the beneficiary of a cause-related marketing campaign with Cherubs baby product manufacturer.

Adopt an Angel advertisement The media remains a powerful tool in promoting our worthy cause and we continue to use every available opportunity to inform more people about the work that we undertake through the various mediums. The ongoing pro-bono services rendered by Newsclip Media Monitoring to LITTLE EDEN have enabled us to monitor the effectiveness of our marketing and public relations efforts throughout the year.

Our website was completely revamped in 2010 with great results. More individuals have started to use our online donation facility which has been functional for a number of years. Our Facebook page has grown in leaps and bounds and regular updates are made. Regular e-communication was deployed to our friends and benefactors, containing news of happenings in and around the Homes.

Radio Heads, The Radio Specialists, a part of the African Media Entertainment (AME) company, has continued their support of LITTLE EDEN as a corporate social investment client. A successful radio campaign was launched again this year incorporating our growing Adopt an Angel initiative. A full page advert on LITTLE EDEN was sponsored by Caxton and was placed in all suburban newspapers on an ongoing basis. The response to these adverts was overwhelming.

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Cherub advert

LITTLE EDEN Annual Report 2011


Visitors

Some special visits during the year included: Alexandra van den Bosch and family This most gracious lady is a friend of the Society's who lives in the Netherlands. She and her family have been involved with LITTLE EDEN since 1997. She raises funds in Holland towards the care of our children. Alexandra and her husband Otto sponsor Siza - their 'adopted angel'. They visited her in December 2010 and were delighted to see the longterm volunteer accommodation that was near completion at that stage. Her daughter, Adeleine, volunteered at LITTLE EDEN more than 10 years ago.

Alexandra (left) with her daughter, Adeleine (right) and some of the residents at the Village

Students from the University of Johannesburg A group of 120 accounting students arrived at the Edenvale Home with toys and baked goodies for the children. They were shown around the Home and then spent some quality time interacting with the residents.

Students from the University of Johannesburg

Africlowns from Holland The friendly clowns from Holland have a standing annual visit scheduled in South Africa. Their mission is to bring a smile to the faces of children from disadvantaged backgrounds as well as children with special needs such as our youngsters. Some of the children remember them from previous visits. Huge smiles and laughter was heard in the different wings as the Clowns moved from section to section. Southern African Catholic Bishops' Conference Members of the Southern African Catholic Bishops' Conference (SACBC) visited us in March this year to hand over a donation on behalf of the Conference, in memory of the late Domitilla, Founder of the Society. The group spent some time with Domitilla's family, the LITTLE EDEN residents, as well as the S.I.C. Sisters at Elvira Rota Village. During their visit, they had the privilege of joining in with the staff and residents singing “Happy Birthday� to Paulos, who turned 13 on the day. The visitors from SACBC were: Rev Father Vincent Brennan SMA - Secretary General, His Grace Archbishop William Slattery and Rev Sister Hermenegild - Associate Secretary General.

Africlowns

Mr Danny Hyams (second from left) and Mrs Lucy Slaviero (far right) with the visitors from SACBC

LITTLE EDEN Annual Report 2011

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Events

Special Birthday Celebrations

Knitting Club

Sports Day

Christmas Party

Christmas Concerts

De Novo - A party was sponsored by De Novo for the children in Green Wing. Eli the elephant joined the celebrations and added to the excitement of the day. LITTLE EDEN is grateful to everyone who sponsors events for our children throughout the year. Each party is special and greatly appreciated!

De Novo

Mamba Charity Drive - this annual Charity Drive took place on 3 December 2010. Mamba Strike Force has been involved with LITTLE EDEN for more than fourteen years, raising funds through local schools, businesses and individuals. The Drive greatly benefits our two second-hand shops, as a significant portion of funds raised, come through the shops. In addition to all the goods donated, Mamba also handed over a generous cheque to LITTLE EDEN at the FĂŞte in March. Sharks Supporters - this group of individuals has been raising funds in aid of LITTLE EDEN through their golf days for more than eight years.

Mamba cheque handover

Royal Johannesburg and Kensington Golf Club - LITTLE EDEN has been a beneficiary of this Golf Club for many years and continues to receive their support. In October 2010, we received another kind gift from the Club as a result of the annual Golf Day in support of the Society. Nedbank Golf Day - LITTLE EDEN was invited to share the story of the Society amongst Nedbank employees and clients during their annual golf day which took place on 10 October 2010. Paprint Golf Society - has been supporting LITTLE EDEN by hosting a golf day in aid of the Society for more than 20 years.

Sharks Supporters Club

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LITTLE EDEN Annual Report 2011


“- it was a great privilege being introduced to a little bit of heaven on this earth! On preparing myself to attend the meeting - I wasn't sure whether to include an abundance of tissues or in fact, wasn't sure what to expect! The outcome was nothing short of a most humbling experience - like coming face-to-face with Domitilla when meeting every one of these special children and members of staff - you are a most remarkable group of people, with so much to teach the world!” - Corinne Harrison (Umoja Foundation)

Simba the Lion - On 27 August 2010 Simba came to meet our residents. His helpers painted the faces of the children - much to their delight! They handed out some eats and spent some fun time with the children. Celebration of special birthdays - on 2 September 2010 a group of residents at Elvira Rota Village walked down to the wetlands area where they celebrated a group of residents' special birthdays. Some of our precious people turned 18, 21, 30, 50 and 60 in a certain time period. Karen, our music therapist was there with her guitar. Everyone sang beautifully, wishing the birthday boys and girls well. They each received a hand-made card from their friends and they could each choose a special song to sing!

Simba the Lion meets little Pule

Fête 2011 - Mad Hatters Fiesta! Our most recent Fête was a big success and a fun-filled day for all present. Visitors had great fun dressing up in their fun hats and spot prizes were awarded to those with the most outrageous and funny hats.

This report is not only a tribute to Domitilla and what she accomplished in her lifetime. It is also a tribute to the many generous individuals and corporates who have come forward throughout the past 44 years with offers of help and support - whether that support was financial, gifts in kind, or voluntary offers of time and skills. Young and old had fun sporting their unique hats!

Spring Day was a lot of fun for Joseph

LITTLE EDEN Annual Report 2011

Everyone had fun showing off their hats supporting the Mad Hatters Fiesta theme for 2011

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Human Resources and Governance Sr Mairin, Provincial of the Missionary Sisters of the Holy Rosary, said that it is a privilege for them to be involved in the work. They see it as part of their mission and calling. Sr Mairin spoke of the enculturation involved in bringing foreign Sisters to South Africa. Mother General of the Sisters of the Imitation of Christ, and a councillor visited LITTLE EDEN from 16 to 23 January 2011.

Fundraiser A full-time fundraiser was employed in May 2010.

Training

Sr Magie, Sr Therese and Sr Tessa with some residents

Sisters of the Imitation of Christ (SIC) Sr Magie, Sr Tessa and Sr Therese moved to Barbara's Bungalow at Elvira Rota Village on 15 May 2010. On this same day Archbishop George Daniel moved into the Chaplain's Residence, known as the Michael Welsh House, as the permanent Chaplain. The Sisters have been given responsibility for various sections of the running of the Home and Programme. The following functions have been assigned to the Sisters: • Sr Magie • Sr Tessa

- Elvira Rota Village Coordinator; - Activities Coordinator (Louis' Lodge & Nicky's Nook); • Sr Therese - Activities Coordinator (Pino's Place & Colin's Cottage).

Various staff benefitted from a number of courses and workshops offered throughout the year: two staff attended a two-day conference on Mental Health and HIV Aids presented by the SA Federation for Mental Health; the Fundraiser and the Public Relations Officer attended a presentation - The Stockholm Accords - the blue print for the Public Relations & Communication Management profession in the future as well as a two-day Social Investing Workshop held at GIBS; the SA Institute of Fundraising ran a workshop, Face-to-Face Fundraising, in September; in October, a GIBS Forum evening event, Social Media & the Context for Corporates was attended by the Public Relations Officer.

Discretionary Grant LITTLE EDEN was offered a discretionary grant of R30 000, from the Health & Welfare SETA, for specific training, which was completed by 31 March 2011. Training on Word Level I, Word Level II and Excel Level I was undertaken in order to upgrade computer skills in the Offices.

Management works closely with the SIC Nuns in order to ensure that there is full cooperation between the Staff of both LITTLE EDEN and Supercare and the Nuns. Special attention has been paid to the language and cultural differences between them. Regular and intensive English lessons were given by the Holy Rosary Sisters.

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LITTLE EDEN Annual Report 2011


NPO Salary Survey LITTLE EDEN participated, for the third year running, in the NPO salary survey run by Averile Ryder Reward Specialists. This survey covers International & Southern African Region Organisations with offices or operations in South Africa, South African Independent NGO's and State Funded Organisations. The report was made available in October 2010 reflecting results as at 31 July 2010. The findings of this report are used as guidelines for salaries and salary increases in the NPO sector.

Employment Equity Committee The constitution of the Employment Equity Committee and the Employment Equity Plan were signed off and put in place. LITTLE EDEN submitted a Skills development plan in June 2010 in order to access funding from the Health and Welfare SETA for Staff Training. Connold & Associates, on behalf of LITTLE EDEN, submitted the biennial reports, EEA2 and EEA4, to the Department of Labour for the period 2008-2010. The Employment Equity Committee members and a representative from Connold and Associates continue to meet three times a year. Diversity & Leadership: In May 2010, Management met with two partners from the Centre for Conscious Leadership in order to develop a Diversity & Leadership Programme at LITTLE EDEN. This programme would meet one of the recommendations of the Qualitative Analysis undertaken by Management for Employment Equity. After discussion it was decided to present a Personal Mastery and Diversity Process workshop which was attended by 18 people including Management, the SIC sisters, Supercare Site managers and Supervisors.

Ethos team training workshops

Ethos Teams November Ethos Training Workshops: This was again undertaken by Sr Ann Wigley and Sr Cecilia Mkhonto. It involved two days at each Home to which LITTLE EDEN and Supercare staff were invited. Staff expressed their appreciation. Heritage Day: The Bambanani Ethos Team organised a Heritage Day concert involving Elvira Rota Village residents, the Ethos Team and Staff. This was enjoyed by all, including some staff and residents from Edenvale.

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Caring for the Carers The original idea for the Caring for the Carers is that the staff is allowed time within their working hours to care for themselves. The sessions are intended to make the staff feel relaxed and refreshed. Thanks to Lenore Stringer, Vanneau Kongolo and Karen de Kock for their input. The sessions also have great physical benefits for staff as they can improve their personal well-being. Staff Functions LITTLE EDEN and Supercare staff and volunteers enjoyed the annual functions, at which Lucy Slaviero expressed gratitude on behalf of the Board of Governors and Management, and at which a branded gift of a beanie and scarf were handed out as well as a goodie bag of eats. From feedback received from staff, this was much appreciated. The Peech Hotel continues to offer a monthly overnight stay at their hotel for a staff member and partner. This is well received by both LITTLE EDEN & Supercare Staff who can obtain a chance to stay over by putting their name into a draw.

LITTLE EDEN Annual Report 2011

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Human Resources and Governance (cont.) Long Service Awards These awards, presented to staff who qualified, included Sr Bromfield for ten years, as well as a number of staff with five years, of dedicated commitment and service to LITTLE EDEN.

Shops

Edenvale Home Staff Function

Donors continue to support this initiative in which Supercare assists LITTLE EDEN by overseeing the Shops Operation. Suitable donated items of clothing, linen etc. are set aside for some 230 of our 300 residents. Other items, such as furniture, have been used to furnish the latest developments at Elvira Rota Village. The Edenvale Shop closed for a period of ten days in February 2011 for renovations. The Shop and back room were painted out and vinyl tiles replaced the previous flooring. The Shop now looks bright and welcoming. Customers arrived in their droves on opening day!

BEE Score Card

The second-hand shop in Edenvale was revamped

Empowerdex has issued LITTLE EDEN the current CSO beneficiary analysis certificate, which, as of 10 March 2011, stands at 60,67% black beneficiary base.

Compliments LITTLE EDEN congratulates Peter Rohrbeck on being awarded, by Rotary, the Paul Harris Fellow in appreciation of tangible and significant assistance given for the furtherance of better understanding and friendly relations among peoples of the world.

“LITTLE EDEN Society is a sustainable service provider, and fits in with our overall criteria for supporting Corporate Social Investment (CSI) initiatives. We are touched by the perseverance of this organisation which continues to care for its residents though only half of its financial need is subsidised by the state each month, leaving them with a R750 000 deficit to reconcile in order to sustain themselves every month.� - Chris Dickinson. (Corobrik)

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LITTLE EDEN Annual Report 2011


The dawn of a new era On 15 April 1967 Domitilla wrote in her diary: “Jesus bless my work ... Let us make these angels smile and provide them with a place where they will be comfortable. We must have the best place to build a monument. A monument to God, a monument of love for these flowers, delicate flowers, where our love and care will make them happy. I pray that this will happen. I see this very beautiful and modern building with every convenience and comfort and these children living serenely! This will be the best act of love to those who follow in our footsteps ... Let us be helpful to our neighbour, to those who suffer and we will work for our sanctification. Every little humble act will be great in the eyes of God. Let us abandon our footprint of tears and where we pass let us sow seeds of goodwill, smiles and charity. Jesus my all, bless me! ... Every morning LITTLE EDEN is in the chalice and the sacred Blood of Jesus will give it life and strength and it will flourish like a garden in spring.” It is up to us to continue ... but as we listen to the echo of Domitilla’s words, let us also listen to our hearts and follow our goals that we have set for this - the dawn of a new era.

LITTLE EDEN Annual Report 2011

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Society for the Care of Persons with Mental Handicap

Cnr Harris Ave & Wagenaar Rd, Edenglen, Edenvale, Gauteng P O Box 121, Edenvale 1610, RSA Tel: +27 11 609 7246 Fax: +27 11 452 4560 E-mail: info@littleeden.org.za www.littleeden.org.za 001-827 NPO PBO 930/0000/03


Annual Report