An online Directory for Chronic Pain -Mia James
Following the link I know few people will find a flip book of links interesting, but when you suffer from a chronic pain disorder, ease of finding information is essential. It helps to know that there is just one place to find accurate, up-to-date and effective information, advice and support. Searching the web can be a daunting task and when you suffer from a disorder that has ever changing symptoms, it can be confusing and quite difficult to narrow it down to a small search box in a search engine. I remember my frustration as I started to gather information about my new state of health. I was in pain and I hated it. I had no clue what to search for, where to look or who to turn to. Doctors didn’t know and few friends offered insight. At the time Fibro was a catch all category for pain that doctors couldn’t explain. Now they realize it is very real and very much a disorder all its own. As I received more information I wanted to share it with those who needed it. God had given me a voice thru my website Circleofbelievers.com so why not post the information there… hence the birth of the Wellness Issues.
Of course things grow and evolve and we had to find a way to compile those Wellness Issues into a comprehensive flip book. When Mia and I started putting this flip book together, we wanted to give you all the information you needed to cope with and live with a CPD to the best and healthiest of your ability. We also wanted to make things easy to find! Each section is color coded so you can see it quickly on the thumbnails below. You can flip through or just go straight to what you are looking for. We hope that this little flip book will lead you to the information you need. We pray that you will be blessed and that God will give you comfort in the days to follow. Be blessed.
-Rose
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How to navigate this flip book: Each section is color coded as seen on the table of contents. As you approach each section their will be a section introduction and then the page of links. The links are divided into four categories: Connect, Follow, Like and Watch.
Connect: This will be links to articles, columns or fact sites related to the topic.
Follow: This is obviously a list of people to follow on twitter. These people are considered “Authorities” or “highly knowledgeable” in the topic area. Like: This will be again, a considered “authority” or “highly knowledgeable” persons fan page, or a fan page of an institution, professional or support page.
Watch: This will be videos from YouTube or a trusted site related to the topic.
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NOTICE:
We are not a medical Website, nor do we claim to be a medical website, have medical experience, or represent a medical website, facility or professional.
All, some, a portion of or many of the links and information provided on this website may or may not have been evaluated by a medical, mental or legal professional. Links provided are at the discretion of the site coordinator. If you have any questions about the sites listed or linked in this site, please contact the coordinator or host for the site in questions. If you have questions about how links were chosen for this site, please contact the circleofbelievers.com site coordinator using the contact us button. Any information, opinions or statements of interest, should be discussed with your doctor, specialist, nutritionist or insurance company before making changes to your life style, diet, medications or insurance plans. NONE of the information provided in this flipbook were taken from cirlceofbelievers.com “Wellness Issues”. In our effort to bring you updated, up to the minute information, the wellness issues and links provided will no longer be available for view on our site. The validity, relevance and age of the information linked is at the discretion of the linked source. Studio6Network nor it’s affiliates are responsible for the age and accuracy of the websites linked in this flip book.
Table of contents General Information 5-7 Diet and Exercise 8-9 Medication and Supplements 10-11 Mood and Mental Health 12-13 Scriptural and Web Support 14-15 Publisher From The Desk Publishing Rose.studio6@yahoo.com
Editor Rosanna Christopher
Contributing Editor Mia James
Pictures Image Search
Contributing Writers Rosanna Christopher Mia James
A Matter of Health: A Directory ®. May 2012. Published by From the Desk Publishing; Wallaceville Road Chickamauga, GA. Direct all publication and editorial inquiries to rose.studio6@yahoo.com. All the information herein has been checked for accuracy. No responsibility is accepted for deletions, omissions, errors and/or inaccuracies. Publisher reserves the right to place any ad on first come first serve basis. No materials contained herein may be reproduced without the exclusive written permission of the publisher. © Copyright 2012 by From the desk Publishing. Published in the U.S.A.
Account Executives Rosanna Christopher Mia James
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There are many types of Chronic Pain Disorders (CPD). Some of them involve the muscles, others the bones and joints. Many of them involve the entire body or a major system in the body. COB Wellness issues focused on four different types of disorders: Fibromyalgia, Polymyalgia, Rheumatoid Arthritis and Chrons. In the Basic Info section you will find frequently asked questions and information on what these disorders are and how they are diagnosed. Remember links are live. Just click on links to be taken to the site.
General Information
Basic Information
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How do I explain how I feel to my doctor without having him think I am crazy? Write it down! Writing down how you are feeling now will not only help you see how you have progressed, worsened or if new symptoms are developing, but your doctor will be able to better track, treat and predict on coming changes based on the list of symptoms you continue to give him.
How do I know if changes in how I feel are a result of my CPD (Chronic Pain Disorder)? Don't take for granted that you have access to just as much vital information as your doctor does. The web is your best weapon. Be sure that you are gathering your symptom information from a trusted site. When you do web searches, try not to gather symptoms, diagnosis and prognosis information from blog sites (like this one), but rather from medical organizations, CPD organizations and health professionals. Check their list of symptoms and compare them to yours. Make sure you check multiple sites for consistency.
Personal sites or blog sites are great for coping support. If you want professional information, you visit a medical or professional site. There are many mornings however when I know I personally wake up and say, " I can't do this anymore". That is when I know I can go to a blog site and read about people who are just like me. Blog sites range in content. There is actually a blog site listed above for Chrons that details her finding on Chrons in everyday English!! Tho she is not a medical professional, her interpretations are similar to many interpretations of other patients with Chrons because she herself has it. This site is dedicated to patients mainly who have fibromyalgia but my approach is different. My coping mechanism is in my faith and that is how I choose to build this site. Blog sites reassure us that we are not alone. They identify with us from a real and more personal stand point not just a professional one. I really think that I have a CPD; my family doctor doesn't seem to agree. He sent me to a neurologist who agreed with him. Neither one however can tell me what is wrong! I am not imagining this. Where do I go from here?
General Information
So I do a web search and I find a lot of personal sites....like this one. How is this beneficial to me?
Don't give up. I know and others reading this know that this is not all in your head (which is probably why he sent you to a neurologist because most CPD's are neo-neurotic). If you really want a firm prognosis, write down your symptoms, take it back to your family doctor and insist that he run a series of tests. If he hasn't he will need to at least send you for x-rays of the areas in question a MRI and a test for MS if it is in your family pool. Then INSIST, don’t ask, but insist that he send you to see a RHUMETOLOGIST! They are the ones who can track down the pain in most cases. Because it is so hard to diagnose, keep an open mind into possibly finding a new physician. Not all family physicians can properly diagnose symptoms of certain chronic pain disorders.
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Click and Find Doctor/Specialist
Pain Management
Good Doctor List
Book of Doctors
Psychologist/therapist
Network Therapy Be sure to select “Pain management in the advanced criteria.
General Information What is it?
How is it Diagnosed
What research is being done?
Fibromyalgia
National Fibromyalgia Association (NFA)
Fibromyalgia Center WebMDÂŽ
National Fibromyalgia Research Association (NFRA)
Polymyalgia
Rheumatology.org
Mayo Clinic
EMed.tv
Rheumatoid Arthritis
Arthritis.org
Mayo Clinic
Arthritis Today
Chrons Disease
Chrons and Colitis Foundation of America
Web MD
EMed.tv
General Information
Disorder
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Diet and Exercise
Diet and Exercise As sufferers of chronic pain, the last thing we want to do is move! But, believe it or not the more you move the easier it gets to get through the rigorous sometimes energy draining pain. There is also the matter of what you put into your body. The links provided will help you get moving and get eating your way to a more bearable life with chronic pain.
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HealthMad.com-Article Vita Science-Research Food Consumer –Diet Fibromyalgia Diet- Diet
@forksoverknives @glutenfibrofree
APP Search: Healthy living from Exercise.com APP Search: Daily Diet from Exercise.com
Diet and Exercise
APP Search: Exercise tips from Exercise.com
Gaiam Beginning Pilates (Watch full 10 minutes on Hulu.com) Gaiam P.M Yoga (Watch full video on Hulu.com) Gaiam A.m. Chi: (Watch full video on Hulu.com)
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Many people benefit from pain medications, but when your body is used to building up a tolerance for certain meds, or you hate feeling like a drug addict when you get your scripts from you pain management doctor, supplements may be the way to go. Check the links and see what you want to talk to your doctor about.
Medications and supplements
Medications and Supplements
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Practical Pain Management- Prescription Medications Practical Pain Management- Dietary Supplements About.com- List of approved drugs
Everyday Health Chronic Pain
Medications and supplements
The American Academy of Pain Management
Pain Management North- Description of different Pain medications, their uses and how it works Channel
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You can expect to be down in the dumps about your pain levels, but depression is a serious issue for us. Hopefully and prayerfully, the following page will provide some insight, comfort and support to what is going on in your head…because CPD is not just in your body.
Mood and Mental Health
Depression
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Bio Psychiatry- Research Spine Health-Coping and Preventive
@drdianes5119 @CIRPD
Chronic Pain Journal
Mood and Mental Health
Chronic Pain Syndrome Network
Pain and Depression- Channel Spine Health; Dr. Andrew Block- Video
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Whether it be the unprecedented word of God, or your favorite place on the world wide web, everyone needs to know they are not alone. Hopefully, the next page will help you know you are one of many.
Scriptural and Web Support
Scriptural and Web Support
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Diane Dew- Scripture Family.com- coping Pain Connection
Christin Miserandino @bydls American Academy of Pain Management
The American Chronic Pain Association
Fibro Support-Chronic Pain support
Scriptural and Web Support
National Fibromyalgia and Chronic Pain Association
American Pain Foundation
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