Take our advice...

Paul Sephton

PHA UK team member and former Clinical Nurse Specialist in PH

“Remember that the Clinical Nurse Specialists at your centre are there to help you, so never be afraid to contact them. Ask any question at all (there is no such thing as a silly question!) and use them as a sounding board or to seek reassurance if you need to. If you need to leave a message, someone will always contact you back. It’s important to understand that you’re not on your own, and there is a team of people around you for whatever you need.”

“The specialist teams are amazing… trust in them”

Julie

“Try not to assume the worst; there are so many ways that you can be helped”

Wendy Gin-Sing Pulmonary Hypertension Nurse Consultant, Hammersmith Hospital

“Learn about your type of pulmonary hypertension so that you can make informed decisions about treatments that might be offered to you, and what you can do to help yourself. The PHA UK have excellent resources and if you don’t understand something ask your PH team, especially the nurses.”

Judith “Diagnosis is not the end. Live your best life, embrace all that you hold dear. Push yourself, push your limits, make memories, make every day count”

“It is normal to feel overwhelmed, we all felt that way at the beginning!”

Andrea

“Read the resources from the PHA UK –much better than using a search engine!”

Jane

Kate “Be prepared to adjust your mentality around what you can and can’t do and be certain to take any prescribed medicines as directed – a weekly / daily pill box can be very helpful”

David