DISEASE NATIONAL COALITION (DDNC) 2025 RECAP

Vincent Rosche | Oley Community Engagement Coordinator

I would like to express my sincere gratitude for the opportunity to not only attend on behalf of the Oley Foundation but also serve as one of the patient speakers at DDNC 2025. The work this organization is doing to raise awareness within

the House and Senate regarding acts and bills related to nutrition is commendable and vitally important.

There are several acts that significantly impact the Enteral and Parenteral Nutrition (EN and PN) communities, particularly the

Safe Step Act. As a consumer, I have personally experienced the challenges of step therapy which forced me to trial less effective and cheaper medications after years of successfully managing my condition with a medication that worked well for me.

Additionally, the Medical Nutrition Act is a crucial piece of legislation for the EN and PN communities, as it would ensure coverage for medically necessary foods and vitamins required for managing digestive and metabolic disorders. If we lose support for these bills, it could have a detrimental effect on our community, potentially diminishing the quality of life for many individuals.

With the new administration placing a strong emphasis on health and wellness, I am hopeful that these bills will pass, allowing us to make a meaningful difference in the lives of those affected by these conditions.

Once again, thanks to DDNC for hosting this event. I look forward to participating again as part of the coalition of organizations supporting patients with digestive diseases.