Oley Acquires Feeding Tube Awareness Foundation and Feeding Tube Awareness Week® (FTAW) Assets

The Oley Foundation is proud to announce the acquisition of the Feeding Tube Awareness Foundation and the FEEDING TUBE AWARENESS WEEK® trademark and other assets, strengthening its commitment to the tube feeding community. This strategic move integrates Feeding Tube Awareness’ impactful advocacy and education efforts with Oley’s extensive resources, broadening outreach and support. Oley invites clinicians, caregivers, and advocates to support this transition and help shape future initiatives. Details coming soon for the February 8-14, 2026 FTAW at oley.org/tube.

FTAW Recap: February 2 to February 8, 2025

Oley and our members celebrated FTAW from February 2 to 8, 2025 and we are proud of the educational opportunities provided. Special thanks to our FTAW Sponsor Real Food Blends ®

FTAW: Niagara Falls Illumination

We kicked off FTAW in a spectacular way as Niagara Falls illuminated in vibrant purple and blue, symbolizing strength and support for the feeding tube community. Whether witnessed in person or virtually, this stunning display helped raise awareness and spark important conversations. A heartfelt thank you to the Niagara Falls Illumination Board for making this incredible tribute possible and helping us shine a light on feeding tube awareness!

Virtual Kidz Klub Sponsored by Avanos Medical, Inc.

We invited kids ages 4–12, or teens in this developmental age range, who are on nutrition support or have close family connections to someone on nutrition support to join us for a special Valentine’s Day-themed story event! With the help of a parent or guardian, participants dove into an interactive adventure where they helped decide what happened next. It was a fun and engaging way to make new friends and share a memorable experience together. Special thanks to our sponsor, Avanos Medical, Inc., for making this event possible!

Explore Product Coverage and Access Assistance Support with Nutricia Navigator Sponsored by Real Food Blends ®

We explored Product Coverage and Access Assistance Support with Nutricia Navigator in an informative session presented by Stacey McSwine, Coverage and Payor Account Manager. Participants discovered the key features and benefits of Nutricia Navigator’s assistance program and learned valuable tips on how to make the most of this valuable resource. A special thanks to our sponsor, Real Food Blends®, for making this session possible!

Anticipatory Grief Discussion for Caregivers

We hosted a powerful discussion on anticipatory grief, ambiguous losses, and secondary losses, topics that are often not discussed but deeply affect parents of medically complex children. Led by Jennifer Siedman, mother to a medically complex son and Director of Community Engagement at Courageous Parents Network, the session provided valuable insights into these often-overlooked aspects of grief. Jennifer shared strategies and tools for reframing grief and finding balance, coping, and strength. It was a meaningful conversation that helped families understand that grief is a natural, common part of their journey, and they are not alone.

Consumer Conversations Video Sponsored by Nestlé Health Science

We recently shared an inspiring video featuring longterm enteral nutrition (EN) consumers as they opened up about their personal journeys navigating the challenges of home enteral nutrition (HEN). The video offered valuable insights into self-advocacy, building support systems, and finding ways to lead fulfilling lives despite complex medical needs. Through their stories, we explored how resilience and community support can truly transform the HEN experience. A special thank you to our sponsor, Nestlé Health Science, for making this video possible. It was an eye-opening and motivating session filled with powerful perspectives that shouldn’t be missed!

The full FTAW webinar series is now available at www.youtube.com/@TheOleyFoundation