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Contents Features Our work in Wales 08 The Thomas report 10 Running for office 13 Community online – Val Wintle
News
Regular
22 Campaigning success on early access to medicines
06 Letters 19 Advocacy updates
22 Yn galw pawb sy’n siarad Cymraeg! 22 Clinical research fellowship
13 The Welsh Neuromuscular Network vision
22 Consultation on mitochondrial disease regulations
14 Fundraising in beautiful Aber
23 Secure sharing of NHS medical records
16 Down to ‘The Wire’
23 Hard-working Yorkshire supporters
25 Best of the web 25 Hello from Target Research 27 News from the WFA 30 Events
23 Hospice and respite care in Scotland 28 #TeamOrange in the office 32 Bright orange silver linings
23 Modifier gene found in FSH muscular dystrophy
On the cover Bethan Jenkins AM