Page 1

Programs

June — July 2009 • Vol. 8 No. 4

CONNECTION

On the Move Luncheon Move closer to a world free of MS.

Moving Forward with MS Move forward with family, friends, health care providers and others affected by MS.

Plus MS and Depression Living with MS and much, much more

JOIN THE MOVEMENT


MOVING IS WHO WE ARE “Each person in the MS movement has the power to make a difference.”

Volunteer Warren John and Jenna Washnieski, public education coordinator, at the 2008 Minnesota State Fair.

How often do you find yourself talking to people about multiple sclerosis or your involvement with the MS Society? Maybe it’s once a day or once a week. You may not even realize you’re making a significant impact in the MS movement — but you are.

Just think, if everyone reading this newsletter talked to two people each week, we would reach about 80,000 people each month, and more than one million people each year with information about MS and the MS Society! Each person involved in the MS movement has the power to make a difference. By simply talking to people about your experience with MS, wearing your Walk MS T-shirt or sharing research news with family and friends, you raise awareness in a big way. (See Page 5 to learn how you can get rewarded for these simple things.) One of the biggest ways we raise awareness is through our presence at the Minnesota State Fair, which provides an opportunity to educate tens of thousands of people about the MS movement. This summer, the MS Society booth features a new, exciting theme each day of the fair, including Walk MS day, Activist day Stay tuned and Volunteer day. Visit MSsociety.org to learn We are committed to raising about activities happening at awareness. With your help, the booth each day, and be the MS movement will gain sure to visit the Education momentum and grow stronger Building at the fair. than ever before. Sponsorship of society programs or events does not connote that the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.

Programs Connection Programs Connection is a free publication of the National MS Society, Minnesota Chapter 200 12th Ave. S. Minneapolis, MN 55415-1255 1-800-582-5296 proconnect@MSsociety.org Editors Timothy Holtz Emily Wilson MS Navigators Sarah Danen Jill Parkinson Heather Svenson Vice President of Programs Linda Munson Chapter President Maureen Reeder To obtain an audio tape of Programs Connection, call Timothy Holtz at the Minnesota Chapter.

Promising treatments for MS

Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend that people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at www.nationalMSsociety.org or 1-800-582-5296 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.


Table of Contents Programs by topic

Personal connections

Care partners

Clubs and groups What’s online?

Moving Forward with MS On the Move Luncheon

9 6

Clubs and groups Exercise

22 20

Inspiration On the Move Luncheon

6

Join the movement Movement Ambassadors What’s online?

5 19 15 6

Managing MS symptoms Beat the heat Connect Locally Face Time with Your Local Neurologist Living with MS Moving Forward with MS MS and Depression MS and Fatigue

16 15 17 7 9 13 11

Money Matters Connect Locally

15

Newly diagnosed Clubs and groups Moving Forward with MS

19

Young adults Movement Ambassadors Moving Forward with MS On the Move Luncheon What’s online?

22 9

5 9 6 19

Programs by location Bemidji Living with MS

Living with advanced MS Connect Locally On the Move Luncheon

Technology What’s online?

Healthy living

22 19

7

Duluth Face Time with Your Local Neurologist

17

Brainerd MS and Fatigue

11

Perham Connect Locally

15

Rochester Living with MS

7

Twin Cities – Metro programs Connect Locally Face Time with Your Local Neurologist Moving Forward with MS MS and Depression On the Move Luncheon

15 17 9 13 6

JOIN THE MOVEMENT


On the Move “Please come and enjoy an afternoon with people who all have something in common.”

– Pat Budnik, diagnosed in 2000

Last year when Pat Budnik was asked to attend the On the Move Luncheon, she didn’t know what to expect.

“I was fortunate to sit with the most interesting people, including many outstanding volunteers,” she said.

“I thought it would be an ordinary luncheon with a Pat Budnik silent auction and speaker,” Pat said. “But since the Minnesota Chapter never does anything just ordinary — it was much nicer than I had imagined.” Pat learned about the luncheon from Katy Hunchis Holden while both women were participating in a photo shoot for the “Why Women?” educational campaign about gender differences in MS. Katy, who serves on the luncheon’s planning committee, encouraged Pat to check it out. The On the Move luncheon not only has an inspirational speaker and auctions, but excellent networking opportunities as well. Attendees have the opportunity to rub elbows with other people with MS, volunteers, local neurologists, top donors, chapter staff and even local celebrities. This was one of the things Pat enjoyed most about the event.

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Pat enjoyed herself so much she decided to join Katy and the luncheon’s planning committee. The committee works all year to promote the event, seek auction items and recruit table sponsors. “I’m always looking for a challenge. I have a lot of ideas and I like to see what I can do to accomplish them.” Pat encourages others people to attend. “If you are able to come, please do! You won’t be sorry! It’s a very nice afternoon with people who all have something in common.”

Get involved Learn more about the On the Move Luncheon on Page 6.

National Multiple Sclerosis Society, Minnesota Chapter


Movement Ambassadors Join the movement.

“When my mom was diagnosed with MS, I didn’t know anything about the disease. As a Movement Ambassador I raise awareness and inspire others to join the movement. Together, we can make a difference and end this disease.” – Erin Chipman, Movement Ambassador Do you often find yourself talking about your involvement with the MS Society? Are you interested in sharing your story about being affected by multiple sclerosis? If so, you should become a Movement Ambassador! Movement Ambassadors are people who are passionate about engaging others in the MS Society. You don’t need to have MS, just a desire to bring an end to the disease. For more information, visit www.MSsociety.org and click on “Movement Ambassador” on the right-hand side of the home page, or contact Jenna at 612-335-7981.

Three easy steps to becoming a Movement Ambassador 1. Get out there and engage people. Your job as a Movement Ambassador is to get people excited to end MS. There are countless ways to engage others in the movement. It’s as simple as talking to someone about your involvement with the MS Society. 2. Log on and stay connected. Receive updates via e-mail and the Web. Each month you receive an e-mail with chapter news, ambassador profiles, simple ways to join the movement and ambassador-only opportunities. Plus, you have access to an exclusive Web site for Movement Ambassadors with updates, trainings, stories, networking opportunities, downloads and other tools. 3. Tell us what you’re up to. We want to know what you’re doing to engage people in the movement to end MS. Each month, complete an easy survey to tell us what you’ve done. We track your activities and volunteer time and offer contests, incentives and other rewards for your efforts.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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On the Move Luncheon Luncheon and auction to benefit the National MS Society, Minnesota Chapter. Aug. 13 n Minneapolis Featuring Minnesota’s own Kevin Kling, a playwright and storyteller. Join us for On the Move, an annual benefit luncheon featuring an inspirational speaker, live and silent auctions and networking opportunities. This year’s keynote speaker is Minnesota’s own Kevin Kling, a playwright and storyteller whose commentaries can be heard on National Public Radio’s “All Things Considered.” Born with a congenital birth defect in his left arm, Kling’s right arm was rendered immobile in a motorcycle accident six years ago. Kling’s super-sized determination and candid sense of humor shine through despite the daily challenges of life with physical disabilities.

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Agenda n 10:30

to 11:30 a.m. Registration, networking and silent auction

n 11:30

a.m. to 1 p.m. Luncheon, presentation and live auction

n Book

sales and signing immediately following the luncheon

Location The Depot 225 Third Ave. S. Minneapolis, MN 55401 612-375-1300

Reserve your seat Reservations are required. To learn more, visit MSsociety.org or contact Rachel Hughes at 612-335-7965 or rhughes@MSsociety.org.

National Multiple Sclerosis Society, Minnesota Chapter


Living with MS Learn strategies to enhance your life. June 27 n Rochester July 11 n Bemidji Whether you just received a diagnosis of multiple sclerosis or have been living with the disease for a long time — this program provides information and tips to help you maintain your quality of life in the years ahead. Learn about strategies to deal with injection site management and skin breakdown. Participants also gain an overview of current MS treatment strategies, symptom management and potential future treatments.

Additional resources Living with MS www.MSsociety.org (click on Living with MS).

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Living with MS

Various times, dates and locations

Space is limited. Registration form must be received five business days before program date.

8:30 a.m. 9 a.m. 10 a.m.

Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________

Check-in begins with continental breakfast Injection site management and skin care — Missy Rosin, MS-certified nurse MS treatment and management update — Dr. Gary Beaver

Location Rochester n Saturday, June 27 Ramada Hotel and Conference Center 1517 16th Ave. Rochester, MN 55901 507-289-8866

Please check location: q Rochester MNM0CEDW20090627ROC q Bemidji MNM0CEDW20090711BEM

Bemidji n Saturday, July 11 Holiday Inn Express 2422 Ridgeway Ave. N.W. Bemidji, MN 56601 218-751-2487 www.hiexpress.com

_____ # of people attending

Program fee

Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date. 8

9–11 a.m.

There is no fee for this program.

Register Online or by phone Visit www.MSsociety.org or call 612-335-7970. By mail Mail registration form to the National MS Society. National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415

Questions For more information, contact Timothy Holtz at 612-335-7930 or tholtz@MSsociety.org.

Made possible with a restricted educational grant from


Moving Forward with MS Move forward together with family, friends, health care providers and others affected by MS.

Aug. 1 n Minneapolis

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Learn about MS from an expert neurologist

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Team up with your health care providers

“I move forward by challenging myself and others through exercising and recruiting 50 people for my Walk MS team ‘Martini Sippers to End MS.’”

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Navigate the medication maze

­— Jennifer Dietzler, diagnosed in 2005

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Consider clinical trials

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Understand how to talk about MS with your friends and family

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Gain information about resources available to you

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Learn how to cope with the anxiety MS may bring to your life

If you or someone close to you has multiple sclerosis, you probably have a lot of questions and concerns. You may also feel overwhelmed and unsure of what questions to ask. This program gives you the information and support you need to live comfortably and confidently with this change in your life and make medical decisions about all aspects of your health.

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Connect with other people whose lives are affected by MS

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Achieve optimal wellness

ADDITIONAL RESOURCES

Information for people newly diagnosed with MS www.MSsociety.org (click on Living with MS) South Metro Newly Diagnosed Self Help Group Meets the last Wednesday of the month at 6:30 p.m. at Jo Jo’s Rise & Wine, 12501 Nicollet Ave., Burnsville. For more information, contact Jennifer at 952-412-1291.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Moving Forward with MS Space is limited. Registration form must be received by July 24. Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.

Saturday, Aug. 1 8:30 a.m. 9–10:30 a.m. 10:45 a.m.–noon Noon–1 p.m. 1–2:30 p.m. 2:45–3:45 p.m. 4–4:30 p.m.

9 a.m. – 4:30 p.m.

Check-in begins with continental breakfast My life, my MS, my decisions — Timothy Holtz Understanding MS in your life — Sara Heinzen Networking lunch Learning about MS — Dr. Jonathan Calkwood Connecting with others discussion groups Conquering the anxiety and fear of MS — Sara Heinzen

Location Minnesota Chapter Office 200 12th Ave. S. Minneapolis, MN 55405 612-335-7900 www.MSsociety.org

Program fee There is no fee for this program.

Register Online or by phone Visit www.MSsociety.org or call 612-335-7970. By mail Mail registration form to the National MS Society, Minnesota Chapter at 200 12th Ave. S., Minneapolis, MN 55415

DVD or video A DVD or video of the program is available in the chapter’s Lending Library. Visit www.MSsociety.org and click on Library or call 612-335-7938.

Questions For more information, contact Timothy Holtz at 612-335-7930 or tholtz@MSsociety.org. Made possible with a restricted educational grant from

MNM0CNDW20090801MPL

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MS and Fatigue Take control of MS-related fatigue.

Aug. 6 n Brainerd Fatigue is the number one symptom reported by people living with multiple sclerosis. But it’s also considered an “invisible” symptom, which means family members, friends and co-workers of people with MS don’t always understand how fatigue affects day-to-day living. This can be frustrating to people with the disease. Several different kinds of fatigue occur in MS. For example, people who have bladder dysfunction, producing nighttime awakenings or nocturnal muscle spasms, may experience fatigue as a result of sleep deprivation. People who are depressed may also suffer fatigue. And anyone who needs to expend considerable effort to complete daily tasks may suffer from fatigue as well.

ADDITIONAL RESOURCES Living with MS www.MSsociety.org (click on Living with MS). “Fatigue: What You Should Know” Contact the chapter for a free copy. In addition to these sources of fatigue, there is another type of fatigue — referred to as lassitude — that is unique to people with MS. Researchers are beginning to outline the characteristics of this “MS fatigue” that make it different from fatigue experienced by people without MS. Join Dr. Marden to learn strategies to take control of MS-related fatigue.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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MS and Fatigue Space is limited. Registration form must be received by July 31. Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________

Thursday, Aug. 6

6–8 p.m.

5:30 p.m. Check-in begins 6–7 p.m. Dinner 7–8 p.m. MS and Fatigue — Dr. Marden

Location The Lodge Brainerd 6967 Lake Forest Road Brainerd, MN 56401 218-822-5634 www.lodgehotelsbrainerd.com

Program fee There is no fee for this program.

Register Online or by phone Visit www.MSsociety.org or call 612-335-7970. By mail Mail registration form to the National MS Society, Minnesota Chapter at 200 12th Ave. S., Minneapolis, MN 55415

Questions For more information, contact Timothy Holtz at 612-335-7930 or tholtz@MSsociety.org.

Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.

Made possible with a restricted educational grant from MNM0CEDW20090806BRA

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MS and Depression Manage MS-related depression.

Illustration by Bill Stanton

Aug. 13 n Bloomington Depression can affect people in different ways — ranging from feeling down for a few hours on a bad day to severe clinical depression lasting several months. Depression, in its various forms, is common during the course of multiple sclerosis. In fact, studies suggest that clinical depression, the severest form of depression, is more frequent in people with MS than the general population or people with other chronic, disabling conditions. Depression is not something to be ashamed of or hidden, nor does it indicate weak character. Also, depression is not something a person can control or prevent. In its most severe forms, depression

appears to be a chemical imbalance that can occur at any time, even when life is going well. Join Dr. Usmanova from the Minneapolis Clinic of Neurology to learn strategies to take control of MS-related depression.

ADDITIONAL RESOURCES Living with MS www.MSsociety.org (click on Living with MS)

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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MS and Depression Space is limited. Registration form must be received by Aug. 6. Register online at www.MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________

Thursday, Aug. 13

6–8 p.m.

5:30 p.m. Check-in begins 6–7 p.m. Dinner 7–8 p.m. MS and Depression — Dr. Usmanova

Location Minneapolis Marriott Airport 2020 American Blvd. E. Bloomington, MN 55425 952-854-7441 www.marriott.com

Program fee There is no fee for this program.

Register Online or by phone Visit www.MSsociety.org or call 612-335-7970. By mail Mail registration form to the National MS Society, Minnesota Chapter at 200 12th Ave. S., Minneapolis, MN 55415

Questions For more information, contact Timothy Holtz at 612-335-7930 or tholtz@MSsociety.org.

Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.

Made possible with a restricted educational grant from MNM0CEDW20090813BLO

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Connect Locally Connect with people in your community and learn about MS-related research, symptom management and ways to cope with MS. Estate and Financial Planning and Medical Assistance Perham n June 30, 1 p.m. Calvary Lutheran Church 619 Third Ave. S.W. Perham, MN 56573 Planning for your future is important no matter your income, asset level, age or family make-up. If you or a loved one is living with multiple sclerosis or other chronic disease, join the Perham self-help groups for people with MS and care partners to learn about the value of a health care directive and power of attorney, ways to protect your assets and avoid probate, current medical assistance guidelines and estate tax levels

This program features Susan E. Johnson-Drenth — an attorney with Vogel Law Firm whose areas of practice include estate planning, probate, probate litigation, elder law, guardianships and trust law, including special needs trusts for people with disabilities. For information and to R.S.V.P., contact Colleen at 218-758-2502 or Mary at 218-346-4423.

Hold that Thought: Cognition and MS Eden Prairie n July 21, 7 p.m. Wooddale Church 6630 Shady Oak Road, Rm. 207 Eden Prairie, MN 55344 People with MS often have problems remembering things, finding the right words, concentrating on a task or following a conversation. An estimated 50 to 65 percent of people living with MS experience some cognitive problem or problems.

This DVD presentation provides information about cognitive symptoms associated with MS, how cognitive changes are evaluated and treatment and strategies for managing cognitive changes. Time for discussion will follow the presentation. For information and to R.S.V.P., contact Rick at 612-791-6473 or Louann at 612-874-9989.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Beat the heat Tips to stay cool this summer.

Other tips to beat the heat n

Drink plenty of fluids.

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Avoid caffeine as this acts as a diuretic.

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Use fans, air conditioning or hand-held spray bottles. Air-conditioners can be tax-deductible.

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Exercise in a cool environment.

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If you exercise outside, pick the cooler times of the day, usually early morning or evening.

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To decrease the heating effects of exercise, try “pre-cooling” in a cool bath. The water temperature should be lukewarm to start. Continue adding cooler water over a period of 20 to 30 minutes.

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A simple damp towel can be helpful if you do not have a cooling neck wrap.

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Wear wide brimmed hats and light-colored, loose clothing.

Tips to stay cool this summer. Many people with multiple sclerosis experience a temporary worsening of symptoms when the weather is very hot or humid or they run a fever, sunbathe, get overheated from exercise, or take very hot showers or baths. This tends to be especially challenging during the summer. But there are many way to combat the effects of heat in MS, including a variety of aids for daily living especially designed for this purpose. For instance, cooling vests are simple and lightweight and help keep your core temperature to a manageable level. Foot coolers and cooling caps, neck wraps and bra pads are also available to help you beat the heat. The Minnesota Chapter’s Aids for Daily Living Grant can help you purchase these items.

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ADDITIONAL RESOURCES Learn about Aids for Daily Living Contact Scott Ahlgren at 612-335-7967 or sahlgren@MSsociety.org.

National Multiple Sclerosis Society, Minnesota Chapter


Face Time with Your Local Neurologist Get answers straight from the source. Neurologists from local MS clinics host these informal, question-and-answer style sessions about living with MS and research. MS Treatment and Research Center at the Minneapolis Clinic of Neurology Join Dr. Gary Birnbaum and Jane Iverson, R.N. Monthly at 6 p.m. Perpich Center for Arts Education, Glass Box Conference Room 6105 Hwy. 55, Golden Valley, MN 55422, 763-591-4700 Topics: July 8

Managing cognition, mood and depression

Aug. 12 Jump start your exercise program

Please R.S.V.P. at 763-302-8282, ext. 4823. Dr. Gary Birnbaum

St. Mary’s Duluth Clinic MS Center Every other Wednesday at 6 p.m. Radisson Hotel Duluth Harborview 505 W. Superior St., Duluth, MN 55802, 218-727-8981

Dr. Gary Beaver

Topics: June 17

What’s new in MS? An update from the Consortium of MS Centers

July 8

Benefits of the MS Society

July 15

MS and complementary therapies

Aug. 12 Health care directives and disability issues

For more information, contact St. Mary’s Duluth Clinic MS Center at 218-786-8270.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Face Time with Your Local Neurologist The Schapiro Center for MS at the Minneapolis Clinic of Neurology Join Dr. Jonathan Calkwood Every Wednesday from 1 to 2:30 p.m. Regency Hospital, 4101 Golden Valley Road, Golden Valley, MN 55422, 763-588-2750

Dr. Jonathan Calkwood

Topics:

June 17

What is a clinical research trial?

June 24 What is the MS Achievement Center?

July 1

No session

July 8

The Immune System in MS (Questcor serves lunch at 12:30 p.m.)

July 15

The use of MRI in diagnosis and management of MS

July 22

Driving issues in MS

July 29

By invitation only — group appointment

Aug. 5

Sexual health

Aug. 12 Genetics and hereditary aspects in MS

For more information, contact the Schapiro Center for MS at 763-302-4199.

University of Minnesota MS Center Join Dr. Gareth Parry and Denice Wax, MS-certified nurse Every other month at 6 p.m. Kingsley Commons, 4550 Humboldt Ave. N. Minneapolis, MN 55412 Topics:

July 13

Injections and skin care

For more information, contact the University of Minnesota MS Center at 612-626-2675. Dr. Gareth Parry

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National Multiple Sclerosis Society, Minnesota Chapter


What’s online? Learn about social networking tools available to people with MS Facebook With more than 175 million members, Facebook.com is the largest social-networking Web site and one of the fastest-growing Internet sites in the world. Users can join networks organized by city, workplace, school and region to connect with other people. To join the free site, visit www.facebook.com. The National MS Society, Minnesota Chapter recently launched a Facebook page. To become a “fan,” search for National MS Society, Minnesota Chapter. As a fan, you get the inside scoop about chapter activities and a chance to network with people committed to the MS movement.

Twitter Twitter is a free service that allows people to stay in touch through the exchange of quick, frequent answers to one simple question: What are you doing? These updates, referred to as “tweets,” are messages up to 140 characters in length that are displayed on the user’s profile page and delivered to that person’s followers — users who subscribe to his or her Twitter account. Learn more at www.twitter.com. To join the National MS Society Twitter group, visit www.twitter.com/mssociety.

YouTube YouTube is a video-sharing Web site where users can upload, view and share video clips. Visit youtube.com/nationalmssociety and view research updates provided by international and national researchers, clips about special events and stories about people with MS. You can also visit the Minnesota Chapter site at youtube.com/MinnesotaMS, where you’ll find local stories of people living with MS, training on everything from public speaking to starting a Walk MS team, MS Annual Convention clips, photo slideshows and much more.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Exercise Studies show exercise not only improves your overall health and well-being, but can also help to manage many MS symptoms. Read about people with MS who are moving forward through exercise and find an exercise program in your community. Featured group

Kingsley Commons Yoga The Kingsley Commons Yoga class is led by volunteer instructors from the River Bend Yoga Studio in St. Paul. The class covers seated Yoga and gentle stretching poses and meets every Friday at 10 a.m.

What is your exercise group doing to move forward with MS? If you want to be the next featured group, e-mail your stories and photos to Emily at ewilson@MSsociety.org.

WATER EXERCISE Albert Lea

Andover

Coon Rapids

Family YMCA Bill Vilarreal, 507-373-8228 T/W/R, 1-1:45 p.m.

YMCA Delores Smith, 763-230-6546 R, 11 a.m.-noon

Alexandria

Burnsville

Emma B. Howe Northtown YMCA Lisa Whitcomb, 763-717-1837 T/R, 11 a.m.-noon

Lakes Area Recreation held at Arrowwood Resort Pool Kelly Wencl, 320-762-2868 M/W 4:30-5:30 p.m. T/R 9-10 a.m.

Minnesota Valley, YMCA Nanette Denk, 952-435-9022 T/R, 9-9:45 a.m.

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Detroit Lakes Detroit Lakes Community & Cultural Center Kim Bettcher, 218-844-4221 W/F, 8:30 a.m.

National Multiple Sclerosis Society, Minnesota Chapter


Duluth

Perham

Eden Prairie

Duluth Clinic, Fitness & Therapy Center Kelly Fugere, 218-786-5400 Low impact M/W, 10-11 a.m., Water exercise F, 10-11 a.m.

Community Center Marie Hanson, 218-346-7222 T/R, 8:30-9:30 a.m., W, 11-11:45 a.m.

Eden Prairie Community Center Beth Witt, 952-949-8447 F, 10:30-11:15 a.m.

Eden Prairie

St. Cloud Family YMCA Will Hurst, 320-253-2664 M/W/F, 9:30-10:30 a.m.

Kingsley Commons Jeannie Zank 612-335-7939 F, 10:30 a.m.

Community Center Beth Witt, 952-949-8447 M/W, 10:30-11:30 a.m.

Golden Valley Courage Center Kaari Hilgert, 763-520-0385 T/R, 1-2 p.m.

Grand Rapids Itasca County Family YMCA Sue Beer, 218-327-1161 T, 9:30-10:30 a.m.

Inver Grove Heights The Grove Amy Crary, 651-554-3420 Shallow water T/R 10 a.m. Deep water M/W 7:15 p.m. Call for more options

Mankato Mankato Family YMCA Joy Leafblad, 507-345-9813 W, 5-6 p.m.

Staples Staples Community Center Kevin Grondahl, 218-894-2553 M/W/F, 9-10a.m.

Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 T/R, 10-11 a.m.

Virginia Mesabi Family YMCA Becky Zubich, 218-749-8020 T/R, 1-2 p.m.

Waconia Safari Island Sara Foley, 952-442-0695 M/W/F, 8:30 a.m.

Woodbury

Marshall

Southeast Area YMCA Lisa Kovac 651-739-6589 M/W 12:15-1 p.m.

Marshall Area YMCA Cindy Rosa 507-532-9622 M, 4:30-6 p.m.

YOGA

New Hope

Bemidji

Northwest YMCA Erin Thune, 763-592-5515 T/R, 11 a.m.-noon

Minneapolis

Uptown YWCA Lisa First 612-822-3504 F, Noon

New Hope Northwest YMCA Amy Bakken, 763-592-5570 W, 11:25 a.m.-12:25 p.m.

Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 W, 10 a.m., R, 6:30-7:30 p.m.

GROUP EXERCISE Shoreview Harbor Suites Megan Frost, 651-766-0080 M/W, 10:30-11:30 a.m. M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday

Dionne’s OM Yoga Studio Dionne Daly, 218-766-9262 S, 10-11:30 a.m.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Featured group

Clubs and Groups

Cambridge “Our group offers an enjoyable way for people with MS and their families to gain support and share ideas for living well with MS. Group members range from recently diagnosed to decades of living with MS. We address MS-related concerns, but also spend time enjoying life and having a good time together.”

Join an MS club or group to connect with other people affected by MS, enjoy lively discussions, learn valuable information and ways to cope with challenges, have fun and be inspired. Read about groups and clubs that are moving forward together and find a club or group in your community that’s right for you.

­— Bob Overturf, group leader

BOOK CLUBS

Duluth

Mahtomedi

Apple Valley

Fourth Tuesday of the month 11 a.m. Barnes & Noble Betsy 218-724-9075

Fourth Tuesday of the month 6:30 p.m., Betty’s Pies Donna 651-762-4084

Maple Grove

Third Wednesday of the month 7 p.m. Kingsley Commons Pat 612-521-4654

First Friday of the month 10 a.m. Barnes & Noble Cindy 952-891-5249

Fourth Monday of the month 10 a.m. Barnes & Noble Mary 763-420-4562 22

Minneapolis

National Multiple Sclerosis Society, Minnesota Chapter


Rochester Fourth Tuesday of the month 7 p.m. Barnes & Noble Apache Mall Larry 507-281-2447

Roseville First Tuesday of the month 10 a.m. Barnes & Noble Har Mar Carol 763-571-2290

Fitness clubs Minneapolis Third Saturday of the month 10 a.m. Chapter Office

Rochester

For artists, crafters and writers with MS MS Art Support Group Third Saturday of the month 11 a.m. Contact Donna for location at 651-762-4084 or birchwild@aol.com

For care partners Bemidji Care Partners Third Saturday of the month 10 a.m. North Country Regional Hospital

Men’s Care Partner Breakfast

New group

Third Saturday of the month 10 a.m. Different restaurant each month Contact Dan for location at 651-779-9435 or dbr@danielrude.com

St. Paul

Perham Care Partners

Fourth Saturday of the month 10 a.m. Rochester Athletic Club

SELF-HELP GROUPS

Third Wednesday of the month 6:45 p.m. Fairview MS Achievement Center

Last Tuesday of the month 1 p.m. Calvary Lutheran Church

Thief River Falls

Third Tuesday of the month 6:30 p.m. St. Louis Park City Hall

Third Saturday of the month 4 p.m. Riverside Terrace

St. Louis Park Care Partners

For couples Stillwater Couples

For GLBT St. Paul GLBT: Gay, Lesbian, Bisexual, Transgender Living with Chronic Illnesses and Disability First Tuesday of the month 6 p.m. Goodwill/Easter Seals and third Thursday at 2:30 p.m. MCIL, St. Paul

For men Metro Area It’s Just Breakfast (with the guys) Various Saturdays of the month 10 a.m. Different restaurant each month Contact Rick for location at 612-791-6473 or rleaf@msnet.org

For newly diagnosed South Metro for Newly Diagnosed Last Wednesday of the month 6:30 p.m. Jo Jo’s Rise & Wine

For people of color Metro MS group for people of color Second Saturday of the month 10 a.m. Wayman AME Church in Minneapolis

Second Saturday of the month Noon Courage Center

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

23


For people mildly affected by MS Southwest Metro MS group for mildly affected

Apple Valley

Burnsville/Apple Valley

First Thursday of the month 9:30 a.m. Christ Church

First Tuesday of the month 6:30 p.m. Fairview Education Center in Burnsville

Third Saturday of the month 10 a.m. United Methodist Church in Eden Prairie

Arrowhead region

For professionals

Austin

Let’s Lunch: professionals living with MS

First Monday of the month 6:30 p.m. Grace Lutheran Church

Third Saturday of the month 11 a.m. Chatterbox Pub in St. Paul

For women Maplewood Peer Emotional Support Women’s Group Third Thursday of the month 6:30 p.m. Gustavus Adolphus Lutheran Church

General self-help groups Aitkin First Wednesday of the month, 7 p.m., and third Monday of the month, 1 p.m. Hope Drop-In Center

Albert Lea Second Monday of the month 7 p.m. Grace Lutheran Church

Alexandria Second Monday of the month 5 p.m. St. Mary’s Office Building 24

Second Friday of the month 1 p.m. Babbitt Municipal Building

Belview Third Thursday of the month 7:30 p.m. Parkview Home No meetings Nov.–Feb.

Bemidji Third Saturday of the month 10 a.m. North Country Regional Hospital

Benson Fourth Tuesday of the month 7 p.m. Westwood Manor Apartments

Bloomington First Wednesday of the month 7 p.m. Nativity of Mary Church No meetings July–Aug.

Brainerd MS Breakfast at the Mill Third Monday of the month 9:30 a.m. Sawmill Inn

Cambridge Third Thursday of the month 7 p.m. Cambridge Medical Center

Canby Second Thursday every other Month, April-Dec. 4 p.m. Sanford Canby Medical Center

Chaska Third Tuesday of the month 12:30 p.m. Chaska Library

Coon Rapids North Suburban Second Wednesday of the month 7 p.m. Coon Rapids City Center

Detroit Lakes Second Monday of the month 6 p.m. Lincoln Park Assisted Living

Duluth First Tuesday of the month 11:30 a.m. (bring a bag lunch) Bethany Baptist Church

Eden Prairie Third Tuesday of the month 7 p.m. Wooddale Church

National Multiple Sclerosis Society, Minnesota Chapter


Excelsior/Minnetonka

Lake Elmo

Oakdale

Second and fourth Saturdays of the month, 10 a.m. Dunn Bros. in Excelsior

Third Wednesday of the month Noon Christ Lutheran Church

First Saturday of the month 10:30 a.m. Oakdale Library

Fergus Falls

Litchfield

Park Rapids

Second Wednesday of the month 11:30 a.m. United Church of Christ

Fourth Tuesday of the month 3 p.m. Meeker County Memorial Hospital

Third Wednesday of the month 6:30 p.m. St. Joseph’s Area Health Services

Luverne

Perham

Third Thursday of the month 7:30 p.m. Rock County Family Services

Last Tuesday of the month 1 p.m. Calvary Lutheran Church

Mankato

Pierz/Little Falls

Second Thursday of the month 7 p.m. ISJ Physical Medicine, Madison East Center

First Wednesday of the month 1 p.m. Bethel Lutheran Church

Maple Grove Second Saturday of the month 10 a.m. St. Joseph the Worker Church

Third Saturday of the month 10 a.m. Fairview Northland Regional Hospital

Maple Lake/Annandale

Rochester

Third Monday of the month Noon Maple Manor East in Maple Lake

Second Wednesday of the month 7 p.m. Meadow Lake Senior Living

Minneapolis

Second Wednesday of the month 6:45 p.m. Roseville City Hall

Forest Lake Area Second Thursday of the month 6:30 p.m. The Meadows for Assisted Living

Gaylord First Sunday of the month 7 p.m. Lakeview Home

Grand Rapids Second Thursday of the month 12:30 p.m. Grand Rapids Public Library

Hibbing Last Thursday of the month 1 p.m. Open Door Church

Hutchinson Second Monday of the month 6:45 p.m. Christ the King Lutheran Church

Inver Grove Heights/West St. Paul First Monday of the month 7:30 p.m. Good Shepherd Lutheran Church

Last Saturday of the month 10 a.m. Kingsley Commons

New Ulm Third Tuesday of the month 7 p.m. Oak Hills Living Center

Princeton

Roseville

St. Anthony/New Brighton Fourth Tuesday of the month 6 p.m. Christ the King Lutheran Church in New Brighton

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

25


Staples

Waseca

Woodbury A.M.

Second Thursday of the month 4 p.m. Lakewood Care Center

Third Tuesday of the month 7 p.m. Waseca Medical Center

Second Thursday of the month 9:30 a.m. King of Kings Lutheran Church

St. Cloud

Wayzata-Suburban West Hennepin

Woodbury P.M.

Second Wednesday of the month 7 p.m. St. Cloud Public Library

St. Paul Care to Share Second Wednesday of the month 7 p.m. Macalester Plymouth Church Contact Mary Lynn at 651-644-1429 to verify location

Stillwater Third Wednesday of the month 6 p.m. Courage Center

Superior

First Thursday of the month 1 p.m. Original Pancake House, Wayzata

Fourth Tuesday of the month 7 p.m. St. Ambrose of Woodbury

Willmar First Tuesday of the month 7 p.m. Bethesda Pleasant View Nursing Home

Windom/Cottonwood County Third Tuesday of the month 7 p.m. ALC Lutheran Church

Second Tuesday of the month 6 p.m. Superior Public Library

Additional resources

26

Book clubs

Self-help groups

For more information about book clubs, visit www.MSsociety.org. Click on Client Programs, Clubs and Groups and then Book Clubs. If you would like to start a book club in your area, contact Jeannie Zank at 612-335-7939 or jzank@MSsociety.org.

For more information about self-help groups, visit www.MSsociety.org. Click on Client Programs, Clubs and Groups and then Self-help Groups. If you would like more information about a group or would like to start one in your area, contact Jeff Fisher at 612-335-7951 or jfisher@MSsociety.org.

National Multiple Sclerosis Society, Minnesota Chapter


Didn’t find what you’re looking for? Use this all-in-one directory to find the programs, services and resources that are right for you. Advocacy Kari, 612-335-7968 Camps and getaways Getaways Timothy, 612-335-7930 MS Camp Jeannie, 612-335-7939 Youth Camp Rachel Ring, 612-335-7937 Care partner programs Jeff, 612-335-7951 Chore services Kari, 612-335-7968 Clubs and groups Book clubs Jeannie, 612-335-7939 Self-help groups Jeff, 612-335-7951 Education programs Timothy, 612-335-7930

Emergency assistance Heather, Jill or Sarah, 612-335-7900 Equipment programs Equipment Loan Equipment Exchange Scott, 612-335-7967 Exercise programs Jeannie, 612-335-7939 Rachel Ring, 612-335-7937 Family programs Timothy, 612-335-7930 Giving to the MS Society Shannon, 612-335-7928 Rachel Hughes, 612-335-7965 Housing Steve, 612-335-7974 Independent Living Grants Grants are available for care partner relief, aids for daily living, adaptive equipment and home modification. Scott, 612-335-7967

Information and Referral Center MS Navigators can connect you to resources. Heather, Jill and Sarah, 612-335-7900 Inservices for companies Steve, 612-335-7974 Lending Library Heather, 612-335-7947 Jill, 612-335-7938 Mentor Program Connie, 612-335-7964 Professional education Steve, 612-335-7974 Volunteer opportunities Timothy (Programs), 612-335-7930 Will (Events), 612-335-7992 Walk MS, Bike MS and motorsport events Cortney, 612-335-7971 Youth and teen programs Rachel, 612-335-7937

Calling from Greater Minnesota? Call 1-800-582-5296. phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

27


Do you have what it takes to make the team? The Minnesota Chapter wants

To be a team member you must:

you to join the new MS Fitness

n

Have MS

Team. It’s the perfect opportunity

n

Commit to some form of physical exercise at least 30 minutes a day, five days a week

n

Volunteer for the MS Society at least 25 hours a year

n

Raise $250 for the chapter

to exercise, connect with others and show your commitment to the MS movement.

Plus, you’ll receive a certificate of completion and T-shirt to wear at chapter programs and events! For more information or to sign up, contact Tim Holtz at 612-335-7930 or tholtz@MSsociety.org.

I got my life back… Thanks to my self-help group I found a support network. My bequest to the National MS Society is like a gift to my family. And it helps the MS community move forward. Contact the society and ask how you can help others with MS through your will or trust.

I WANT TO HELP THOSE WITH MS. Carole, diagnosed in 2005

Join the movement in a powerful way. Contact Shannon at 612-335-7928 or swolkerstorfer@MSsociety.org.

Programs Connection, June/July 2009  

Programs Connection, June/July 2009

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