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Programs

Winter 2012

CONNECTION

Spring family outings

Spend some quality time together and meet other families affected by MS.

Women’s Conference Join other women living with multiple sclerosis for the sixth annual Women’s Conference.

Plus Couples social Independence Workshop and Expo 20s and 30s social outing and much, much more

JOIN THE MOVEMENT®


MOVING IS WHO WE ARE Programs Connection is being redesigned to meet the needs of people living with MS in the new Upper Midwest Chapter territory.

Programs Connection Programs Connection is a free publication of the National MS Society 200 12th Ave. S. Minneapolis, MN 55415-1255 800-582-5296 proconnect@MSsociety.org Editors Steve Korngable Maggie Flanagan MS Navigators Sarah Danen Jill Parkinson Heather Svenson

Maggie Flanagan, Marketing Project Manager

Steve Korngable, Director of Programs

Your next edition of Programs Connection will look different — we’re revamping the publication to reach more than 17,000 people living with multiple sclerosis in the new chapter area. This includes chapter members in Iowa, Minnesota, North Dakota and South Dakota, as well as several counties in western Wisconsin and one county in Nebraska. The updated Programs Connection will be a simplified, easy-to-use directory of programs, clubs and groups listed by location. It will also include programs and services you can take part in no matter where you live. We welcome your thoughts on how to make the most of Programs Connection and what’s most important to you. If you have questions or ideas, please feel free to email us at proconnect@MSsociety.org.

Sponsorship of Society programs or events does not connote the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.

Chapter President Holly Anderson

Promising treatments for MS

Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at nationalMSsociety.org or 800-582-5296 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.


Table of contents Programs by topic

Programs by location

Join the Movement®

Alexandria

Rally at the capitol

4 5 11, 12 20

Managing MS

Connect locally Independence Workshop and Expo Finding the right MS treatment for you

Fargo

Money matters

Majestic Shores Resort

Planning made easy

9 5 6 7 11, 12 17 19 27 32

Research Research symposium Face time with your local neurologist

Family outing

13 22

15 26 11

Faribault Connect locally

20, 21

Hutchinson Connect locally

19, 21

Maple Lake 7

New Prague Connect locally

Recreation, socializing and connecting

19

Duluth

Research symposium 13 Independence Workshop and Expo 15 Connect locally 19 Face time with your local neurologist 22 Finding the right MS treatment for you 24, 26 A treatment option 25 Exercise groups 32 Midwest Teleconference series 34

Couples social 20s and 30s social outing Majestic Shores Resort Family outing Women’s Conference Connect locally Clubs and groups Exercise groups

19

Carlton

Care partners Couples social Family outing Connect locally

Connect locally

19

Twin Cities metro Couples social 20s and 30s social outing Planning made easy Family outing Women’s Conference Connect locally Face time with your local neurologist Finding the right MS treatment for you

5 6 9 12 17 19 22 24

St. Cloud A treatment option

25

Willmar Research symposium

13

JOIN THE MOVEMENT®


Celebrate MS Awareness Week at the State Capitol Connections you make and the stories you tell can bring us closer to a world free of MS.

March 15 n St. Paul Looking for a way to show your dedication to the MS movement during MS Awareness Week, March 12 to 18? Head down to the Rally at the State Capitol with your brightest orange gear and your loudest, proudest voice!

Details n Thursday, n State

March 15, 11–11:45 a.m.

Capitol Rotunda

You’re welcome to stay after the rally to network with activists, tour the capitol and listen to sessions on the house or senate floors.

Join us. Please RSVP to Jenna at 612-335-7981 or jenna.washnieski@nmss.org by Friday, March 9, if you plan to attend. If you RSVP, you’ll get a free gift at the rally!

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National Multiple Sclerosis Society


Couples social Join other couples affected by MS for a night of food, music and entertainment.

Feb. 14 n Vadnais Heights People with MS and their spouses or partners are invited to enjoy a night out at Jimmy’s Conference and Catering with other couples who understand life with MS. Start your evening with drinks and dinner, accompanied by live music. Afterward, you’ll be treated to Jason’s Comedy Night, a comedy variety show hosted by local radio personality, producer and promoter Jason Jones. Take advantage of the opportunity to connect with your partner and with other couples affected by MS. Food, music and laughter: What’s not to like? We hope to see you there!

Details n Tuesday,

Feb. 14

n Check-in

Join us!

n Jimmy’s

For more information or to register, visit the chapter calendar at MSsociety.org or call 612-335-7900 or 800-582-5296 (option 1). Space is limited! The registration deadline is Feb. 10.

and cocktail hour: 5:30–6:30 p.m. Dinner and music: 6:30–7:30 p.m. Comedy show: 7:30–9 p.m. Conference and Catering 3565 Labore Road Vadnais Heights, MN 55110

n The

cost to attend is $20 per couple, including tax and gratuities (a $70+ value). Scholarships are available upon request. Attendees must purchase their own beverages.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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20s and 30s social outing Connect with other young adults affected by MS.

March 10 n Lakeville Enjoy bowling or billiards while socializing with other people in their 20s and 30s who understand an MS diagnosis. Friends and family also are invited. Join the Movement®, meet new friends and have fun!

Details n Saturday,

March 10, 5:30–8:30 p.m.

n Brunswick

Zone XL 11129 162nd St. W. Lakeville, MN 55044

n There

is no cost to attend this program. Food and non-alcoholic beverages will be provided.

Please RSVP to Jill at 612-335-7938 or jill.parkinson@nmss.org by March 5. Sponsored by

Other 20s and 30s events Watch for email updates and check Facebook for details on future happy hours. Join the 20s and 30s Facebook group at facebook.com/groups/20sand30s.

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National Multiple Sclerosis Society


Majestic Shores Resort A summer getaway on the lake.

May 13-17 n Maple Lake Aug. 19-23 n Maple Lake Majestic Shores Resort is a five-day vacation for adults with multiple sclerosis held at Camp Courage on the shores of beautiful Cedar Lake near Maple Lake, Minn. Meet new friends and reconnect with old ones while enjoying outdoor leisure activities like canoeing, fishing or music by the lake, as well as indoor activities like crafts, educational workshops and more. The program activities are plentiful, varied and fun. Guests may also just spend time relaxing and socializing. It’s your vacation — spend it how you want to! The facility is complete with an indoor pool, farm, health center, gymnasium and recreation area. It’s fully accessible and each cabin features a comfortable lounge and sleeping area.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Majestic Shores Resort If you didn’t already receive an application in the mail, please return this interest form to receive one. Applications for the May and August session are due by March 16. Please print ID# (from mailing panel) _______ Name_____________________ Address____________________ City_______________________ State_____ ZIP______________ Home phone _____-_____-_____ Work phone _____-_____-_____ Email_____________________ I want to attend Majestic Shores Resort. q I can only attend May 13 to 17.

Majestic Shores Resort, Maple Lake Assistance Home health aides are available in the morning and evening to support trained volunteers with personal care needs in the cabins, but trained volunteer assistance is limited. Guests who need one-on-one personal care assistance must bring a personal care attendant. Nurses are available to provide onsite medical care and a doctor will be on call.

Program fee The fee is $200 per person. Fee adjustments are available upon request. Upon acceptance, you’ll receive a billing invoice. Don’t send a check with your interest form.

Applications Professional staff and volunteers review the applications to determine if the chapter can meet the medical and safety needs of guests. In some cases, personal cares needs are beyond what we can safely provide at Majestic Shores Resort.

Please mail interest forms to:

q I can only attend Aug. 19 to 23.

National MS Society 200 12th Ave. S. Minneapolis, MN 55415

q Both dates work for me.

Questions For more information, contact Jeannie at 612-335-7939 or jeannie.zank@nmss.org. We’ll make every effort to accommodate the date of your choice, but we can’t guarantee space will be available. For example, if you prefer going to Majestic Shores Resort in May, but it’s already full, you’ll have your choice of being added to a waiting list or possibly attending Majestic Shores Resort in August.

interest form

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Planning made easy Take control of your future.

March 10 n Roseville Planning is important for everyone, especially for people living with a chronic disease like multiple sclerosis. You can and should plan for your future, and get your estate in order no matter your income, asset level, age or family makeup. With the right estate plan in place, you can better meet personal goals and take greater control of your financial future.

In this workshop specifically designed for people with MS, you’ll learn: n

how to manage and protect your assets;

n

the value of powers of attorney and health care directives;

n

why you should have a will and the nuts and bolts of probate;

n

the advantages of setting up a special needs or pooled trust; and

n

how to navigate the medical assistance maze.

All attendees will receive a complimentary copy of “Adapting: Financial Planning for a Life with MS,” and are eligible for door prizes.

Featured presenters

Cathryn Reher

Laurie Hanson

Cathryn Reher and Laurie Hanson, of Long, Reher & Hanson, P.A., are law attorneys who work with people with disabilities to address estate planning and long-term care needs. Both are members of the Elder Law Section of the Minnesota State Bar Association; the National Academy of Elder Law Attorneys; and the Special Needs Alliance, a national invitation-only professional association of attorneys committed to helping individuals with disabilities, their families and the professionals who represent them (see specialneedsalliance.com). Hanson is a member of the National MS Society, Upper Midwest Chapter Board of Trustees and serves on the chapter’s Advocacy and Government Relations Committee.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Planning made easy Space is limited. Registration form must be received by March 6. Register online at MSsociety.org. Please print ID# (from mailing panel) _______ Name_____________________ Address____________________ City_______________________ State_____ ZIP______________ Home phone _____-_____-_____ Work phone _____-_____-_____ Email_____________________ _____ # of people attending Complete names and addresses of others attending: Name_____________________ Address____________________ City_______________________ State_____ ZIP______________ Name_____________________ Address____________________ City_______________________ State_____ ZIP______________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.

MNM0CLEW20120310ROS

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Saturday, March 10

9:30 a.m. – 2:30 p.m.

8:45–9:30 a.m. Check-in (coffee, juice and rolls/muffins) 9:30 a.m. Workshop Noon Lunch 2:30 p.m. Workshop ends

Location Roseville Radisson 2540 N. Cleveland Ave. Roseville, MN 55113 651-636-4567

Program fee There is no fee for this program.

Register Online or by phone For more information or to register, visit MSsociety.org or call 612-335-7900 or 800-582-5296 (option 1). By mail Mail registration form to: National MS Society 200 12th Ave. S. Minneapolis, MN 55415


Family outing An afternoon of fun and education for the whole family.

April 28 n Fargo, ND Bring the family to the Children’s Museum at Yunker Farm for a day of education and fun! Spend quality time together and meet other families who are affected by MS. Plus, enjoy a catered lunch and a prize drawing. Named one of the top 25 children’s museums in the country by Child magazine, the Children’s Museum at Yunker Farm boasts more than 50 exhibits, including a children’s railroad, a carousel and a brand new miniature golf course. The family outing is for families with a parent, guardian or child who has MS. This includes two-parent families, single-parent families and domestic-partner families.

Details n Saturday,

April 28, 10 a.m. – 2 p.m.

n Children’s

Museum at Yunker Farm, 1201 28th Ave. N., Fargo, ND 58102

n There

is no fee for this program.

Special accommodations

Register online or by phone! To register, visit the chapter calendar at MSsociety.org or call 612-335-7900 or 800-582-5296 (option 1). Space is limited. Registrations must be received by April 23.

If you need special accommodations, please call 612-335-7954 to make arrangements. Requests must be received by the registration deadline date.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Family outing Make a splash at the Water Park of America!

April 21 n Bloomington Families with a parent, guardian or child who has MS are invited to enjoy a late breakfast followed by aquatic adventures at America’s biggest indoor water park. The event will begin with fun activities and brunch provided by Split Rock Grille. After brunch, families can enjoy full access to the Water Park of America. From a surf simulator, to a wave pool, to the country’s longest indoor raft ride, the Water Park of America has an array of activities to appeal to the young and young-at-heart! Don’t feel like getting wet? Take a “dry pass” and spend time in the arcade or hang out poolside.

Details n Saturday,

April 21

n Check-in:

Register online or by phone For more information or to register, visit the chapter calendar at MSsociety.org or call 612-335-7900 or 800-582-5296 (option 1). Space is limited. The deadline to register is April 13.

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10–10:15 a.m. Brunch: 10:15–11:15 a.m. Waterpark: 11:15 a.m. – 4 p.m. n Water

Park of America 1700 American Blvd. E. Bloomington, MN 55425

n The

cost to attend is $5 per person, up to six per family. Fee adjustments are available upon request — call Bethany at 612-335-7954.

National Multiple Sclerosis Society


MS research symposium Everything you need to know about the latest MS research and clinical trials.

March 24 n Willmar Learn about the latest, nationally recognized multiple sclerosis research projects and therapies, and have your questions answered by local MS experts Dr. Merlin V. Nelson and Janell Mitteness, R.N., M.S.N., C.N.P. In addition, learn about clinical trials in which people with MS can participate and what to expect from the experience. Plus, visit exhibitor tables to learn more about drug therapy options available to people with relapsing forms of MS.

Featured speakers Dr. Merlin V. Nelson is a neurologist at Affiliated Community Medical Centers-Willmar. Janell Mitteness, R.N., M.S.N., C.N.P. is a registered nurse at ACMC — Willmar’s Department of Neurology.

Dr. Merlin V. Nelson

Janell Mitteness, R.N., M.S.N., C.N.P.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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MS research symposium Space is limited. The registration form must be received by March 20. Register online at MSsociety.org. Please print ID# (from mailing panel) _______ Name_____________________ Address____________________ City_______________________ State_____ ZIP______________ Home phone _____-_____-_____ Work phone _____-_____-_____ Email_____________________ _____ # of people attending Complete names and addresses of others attending: Name_____________________ Address____________________ City_______________________ State_____ ZIP______________ Name_____________________ Address____________________ City_______________________ State_____ ZIP______________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.

MNM0CREW20120324WIL

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Saturday, March 24

9–11:30 a.m.

9–9:30 a.m. Check-in and breakfast 9:30–10:30 a.m. MS research highlights 10:30–10:45 a.m. Break 10:45–11:15 a.m. MS research highlights 11:15–11:30 a.m. Q&A session

Location Holiday Inn Willmar Conference Center Hotel 2100 E. Highway 12 Willmar, MN 56201 320-235-6060

Program fee There is no fee for this program.

Register Online or by phone For more information or to register, visit MSsociety.org or call 612-335-7900 or 800-582-5296 (option 1). By mail Mail registration form to: National MS Society 200 12th Ave. S. Minneapolis, MN 55415


Independence Workshop and Expo Living your best with MS.

April 21 n Duluth Attend the Independence Workshop and Expo to hear local experts discuss fall prevention, the latest assistive technologies and mobility options, and available resources to help you maximize your independence and stay active in your home and community. Plus, visit a variety of exhibitor tables to learn more about community agencies, local vendors, clinics, MS clubs and groups, National MS Society resources, drug therapy options for MS and much more. All attendees will be eligible for door prizes!

Featured speaker Dr. Mark Christopherson is a graduate of the University of Minnesota Duluth Medical School and has treated people with MS at Mayo Clinic for more than 25 years. He was inducted into Mark Christopherson, Mayo Fellow’s Association M.D. Teacher of the Year Hall of Fame in 2011. His father lived with progressive MS and Dr. Christopherson was diagnosed with MS in 1984. In 2011, he received the honor of being named one of the Best Doctors in America by Minneapolis/St. Paul Business Journal.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Independence Workshop and Expo Space is limited. Registration form must be received by April 16. Register online at MSsociety.org. Please print ID# (from mailing panel) _______ Name_____________________ Address____________________ City_______________________ State_____ ZIP______________ Home phone _____-_____-_____ Work phone _____-_____-_____ Email_____________________ _____ # of people attending Complete names and addresses of others attending: Name_____________________ Address____________________ City_______________________ State_____ ZIP______________ Name_____________________ Address____________________ City_______________________ State_____ ZIP______________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.

MNM0CEDW20120421DUL

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Saturday, April 21 9–10 a.m. 10–11:30 a.m. 11:30 a.m. – 12:15 p.m. 12:15–1 p.m.

9 a.m. – 1 p.m. Registration, expo, coffee, juice Program Lunch and expo Program

Location Duluth Radisson Harborview 505 W. Superior St. Duluth, MN 55802 218-727-8981

Program fee There is no fee for this program.

Register Online or by phone For more information or to register, visit MSsociety.org or call 612-335-7900 or 800-582-5296 (option 1). By mail Mail registration form to: National MS Society 200 12th Ave. S Minneapolis, MN 55415


Women’s Conference Join other women living with MS for inspiration, socializing and fun.

April 28 n Vadnais Heights Take the day off from family, work and everyday life to join other women living with multiple sclerosis for the sixth annual Women’s Conference. Together, discuss the art of balancing work and family and ways to better manage the challenges of living with MS. Dr. Yelena Usmanova, neurologist at the Minneapolis Clinic of Neurology, will discuss women’s issues and provide the latest in MS research. Kerry Grunhofer of Clear Body & Home will introduce ways to create energy, comfort and pride in your home. Lastly, Susan Anacker of New Song Life Coaching will talk about “re-visioning your life.” Plus, enjoy a fashion show and tips from Christopher & Banks®. Learn accessorizing tips, what’s new for spring and summer and how to keep a fresh, updated look on a budget.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Women’s Conference Space is limited. Registration form must be received by April 20. Register online at MSsociety.org. Please print ID# (from mailing panel) _______ Name_____________________ Address____________________ City_______________________ State_____ ZIP______________ Home phone _____-_____-_____ Work phone _____-_____-_____ Email_____________________

Saturday, April 28 9–9:30 a.m. 9:30–9:40 a.m. 9:40–10:40 a.m. 10:40–10:55 a.m. 11 a.m. – noon Noon–12:30 p.m. 12:30–1:30 p.m. 1:30–1:45 p.m. 1:45–2:30 p.m. 2:30–2:50 p.m. 2:50–3 p.m.

Check-in and continental breakfast Welcome Women’s issues, Dr. Yelena Usmanova Break Revisioning your life, Susan Anacker Lunch Dessert, fashion ideas, Christopher & Banks® Break Simplify, organize and balance, Kerry Grunhoefer Connect with conference participants Wrap-up and door prizes

_____ # of people attending

Location

Complete names and addresses of others attending: Name_____________________ Address____________________ City_______________________ State_____ ZIP______________

Jimmy’s Conference and Catering 3565 Labore Road (off County Road E) Vadnais Heights, MN 55110 651-482-1233

Name_____________________ Address____________________ City_______________________ State_____ ZIP______________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.

MNM0CEDW20120428VAD

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9 a.m. – 3 p.m.

Program fee There is no fee for this program.

Register Online or by phone For more information or to register, visit MSsociety.org or call 612-335-7900 or 800-582-5296 (option 1). By mail Mail registration form to: National MS Society 200 12th Ave. S Minneapolis, MN 55415


Connect locally Connect with people in your community and learn about MS-related research, symptom management, ways to cope with MS and more. Hold that thought: Cognition and MS Carlton n Feb. 27, 3 p.m. Bethesda Lutheran Church, 204 Fifth St., Carlton, MN 55718

New Prague n March 28, 6:30 p.m. Queen of Peace Hospital, 301 Second St. NE, New Prague, MN 56071 Attend this informational program to learn more about cognitive issues and MS, how fatigue or depression can affect MS-related cognitive difficulties, and effective strategies for managing cognitive changes.

To RSVP for the Carlton program, contact Karen at 218-213-3105 or bkc3laine@yahoo.com. To RSVP for the New Prague program, contact Adele at 952-688-8068 or amb_zoom@yahoo.com.

Understanding and treating progressive MS Eden Prairie n Feb. 21, 7 p.m. Wooddale Church, 6630 Shady Oak Road, Room 207(enter through door #4), Eden Prairie, MN 55344

Hutchinson n March 12, 6:45 p.m. Christ the King Lutheran Church, 1040 S. Grade Road SW, Hutchinson, MN 55350

Alexandria n April 9, 5 p.m. St. Mary’s office building, 420 Irving St., Alexandria, MN 56308 Disease progression is one of the most frustrating and elusive aspects of MS. What causes MS to get worse? Who is likely to have a more progressive course and why? What can be done to stop the progression of MS? Hear from scientists and clinicians who are working on finding answers to these and other questions

about progressive MS. To RSVP for the Eden Prairie program, contact Rick at 612-791-6473 or rjleaf@gmail.com. To RSVP for Hutchinson program, contact Ann at 320-894-7896 or annlha@yahoo.com. To RSVP for the Alexandria program, contact Deb at 320-761-5131 or debkittym@gmail.com.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Connect locally Complementary and alternative medicine Faribault n March 20, 6 p.m. Buckham Memorial Library, 11 Division St. E., Faribault, MN 55021 Watch a DVD presentation with Allen Bowling, neurologist and medical director of Multiple Sclerosis Service

at the Colorado Neurological Institute, to discuss complementary and alternative MS treatment options such as: diet supplements, physical medicine, exercise, acupuncture and relaxation techniques. To RSVP, contact Kurt at 507-210-1853 or kurt.klett@gmail.com.

Live Fully, Live Well Burnsville n April 3, 6:30 p.m. Fairview Education Center, 152 Cobblestone Lane, Burnsville, MN 55337 Live Fully, Live Well takes a look at an array of topics affecting the whole family living with MS in order to strengthen relationships, increase understanding and promote improved health and

quality of life. People with MS and their care partners are invited to attend. To RSVP, contact Mike at 952-898-2857 or hvnly57@yahoo.com or Sue at 952-432-9515.

MS and the African-American community: Reasons for hope Minneapolis n April 14, 10:30 a.m. Sumner Library, 611 Van White Memorial Blvd., Minneapolis, MN 55411 Join us for a series of facilitated discussions about living with MS as an African-American person. Share unique experiences related to receiving an MS diagnosis, electing a treatment course and more. Also, learn about the importance of clinical trial participation, genetic studies and research 20

being conducted on the clinical course of MS among African-American people. To RSVP, contact Linda at 612-290-9515 or mitnlin@comcast.net or Pam at 612-664-0182.

National Multiple Sclerosis Society


Connect locally Fatigue: Take control Faribault n April 17, 6 p.m. Buckham Memorial Library, 11 Division St. E., Faribault, MN 55021 Fatigue is one of the most common symptoms of MS and can significantly interfere with a person’s ability to function at home and at work.

how to adopt personal, proactive energy choices. To RSVP, contact Kurt at 507-210-1853 or kurt.klett@gmail.com.

Join the Faribault MS group to learn more about MS-related fatigue and medical management, and

Primary-progressive MS: Perspectives on moving forward New Prague n April 25 and May 30, 6:30 p.m. Queen of Peace Hospital, 301 Second St. NE, New Prague, MN 56071 Primary-progressive MS (PPMS) affects approximately 10 percent of the MS population. It’s characterized by a steady decline in function without relapse. Meet experts on the subject — four individuals living with PPMS. Each has different backgrounds and stories, and brings a unique perspective to living with the disease. To RSVP, contact Adele at 952-688-8068 or amb_zoom@yahoo.com.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Face time with your local neurologist Get answers straight from the source. Neurologists from local MS clinics host these informal, question-and-answer style sessions about living with MS and research. MS Treatment and Research Center at the Minneapolis Clinic of Neurology Join Dr. Gary Birnbaum and Jane Iverson, MS-certified nurse Monthly at 6 p.m. Information for this monthly program was not available at the time this publication was printed. Please call 763-302-8282, ext. 4283, for details about upcoming programs.

Dr. Gary Birnbaum

University of Minnesota MS Center Join Dr. Adam Carpenter Every other month at 6 p.m. Fairview Maple Grove Clinic, 14500 99th Ave., #500, Maple Grove, MN 55369 Topics: March 27 Vitamin D and MS Please note programs will now be held on Tuesday evenings.

Dr. Adam Carpenter

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For more information, contact the University of Minnesota MS Center at 612-626-2675.

National Multiple Sclerosis Society


Face time with your local neurologist The Schapiro Center for MS at the Minneapolis Clinic of Neurology Join Dr. Jonathan Calkwood Every other Wednesday at 1 p.m. Regency Hospital, 4101 Golden Valley Road, Golden Valley, MN 55422

Dr. Jonathan Calkwood

Topics: Feb. 8

Our family is changing — Living with MS, with Tom Ellis, M.A., L.M.F.T.

Feb. 22

Legislative updates with Dan Johnson, vice president of mission advancement and public policy at the National MS Society, Upper Midwest Chapter

March 14 National MS Society services with Society staff Heather Svenson, L.S.W., M.S.S.M.C., Scott Ahlgren and Jeannie Zank, C.T.R.S.

March 28 Helping Paws — See the benefits of helping dogs!

April 11 Therapeutic recreation — More than just games with Dawn Paxton, C.T.R.S. and Casey Graham, C.T.R.S. April 25 Sexual health with Jackie Higgins, F.N.P. (Join us at 12:30 p.m. for lunch sponsored by Bayer HealthCare) For more information, contact the Schapiro Center for MS at 763-302-4199.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Finding the right MS treatment for you

Details about this program are provided for your information. This program is not produced by the National MS Society.

Feb. 9 n Bloomington

®

Learning about multiple sclerosis is essential to managing its symptoms. Join us as a medical MS expert presents the science behind MS, current therapies to treat MS and insight into managing the disease.

Details n Registration: MS Active Source is a registered trademark of Biogen Idec. This program is sponsored by Biogen Idec and Elan Pharmaceuticals, Inc. ©2009 Biogen Idec. All rights reserved

n Program:

6–6:30 p.m.

6:30–8:30 p.m.

Minneapolis Airport Marriott 2020 American Blvd. E. Bloomington, MN 55425

Featured speaker Gary Wayne Beaver, D.O., neurologist and medical director at the University of Minnesota MS Center in Minneapolis, MN

Join us! To register for this free program, call 866-955-9999 or register online at MSActivesource.com. Dr. Gary Beaver

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National Multiple Sclerosis Society


A treatment option for MS Meet specialists and learn about an MS treatment option.

Details about this program are provided for your information. This program is not produced by the National MS Society.

April 26 n St. Cloud n Program:

6–7 p.m.

Holiday Inn 75 S. 37th Ave. St. Cloud, MN 56301

You’re invited to a Novartis MS event to: n hear

featured speaker Val Stickel Diehl, R.N., M.S., M.S.C.N. discuss information about MS and a prescription treatment option;

n learn

about Novartis and comprehensive support services for people living with MS; and

n connect

with other people in your community living with MS.

To RSVP, please call 800-973-0362.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Finding the right MS treatment for you

Details about this program are provided for your information. This program is not produced by the National MS Society.

March 12 n Duluth

®

Learning about multiple sclerosis is essential to managing its symptoms. Join us as a medical MS expert presents the science behind MS, current therapies to treat MS and insight into managing the disease.

Details n Registration: MS Active Source is a registered trademark of Biogen Idec. This program is sponsored by Biogen Idec and Elan Pharmaceuticals, Inc. ©2009 Biogen Idec. All rights reserved

n Program:

5:30–6 p.m.

6–8 p.m.

Radisson Hotel Duluth Harborview 505 W. Superior St. Duluth, MN 55802

Featured speaker Gary Wayne Beaver, D.O., neurologist and medical director at the University of Minnesota MS Center in Minneapolis, MN

Join us! To register for this free program, call 866-955-9999 or register online at MSActivesource.com. Dr. Gary Beaver

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National Multiple Sclerosis Society


Featured group

St. Paul Care to Share

Clubs and groups Join an MS club or group to

Since 1981, we’ve been a resource for MS-related education and information. More importantly, perhaps, we provide a venue for friendships to develop, personal experiences and challenges to be shared, and where humor and laughter are encouraged. We also enjoy volunteering as a group for Society programs and events, such as cheering at bike and walk events. ­ Beth Jensen, Mary Lynn McGinley and — Jeanne Hane, group leaders

connect with other people affected by MS, enjoy lively discussions, learn valuable information and ways to cope with challenges, have fun and be inspired. Read about groups and clubs that are moving forward together, and find a club or group in your community that’s right for you. Have an idea for a new group? Contact Jeff at 612-335-7951 or jeff.fisher@nmss.org.

CLUBS

Duluth

Mahtomedi

Book clubs

Fourth Tuesday of the month 11 a.m., Barnes & Noble Betsy, 218-724-9075

Fourth Tuesday of the month 6:30 p.m., Betty’s Pies Judy, 651-488-4454

Maple Grove

Minneapolis

Fourth Monday of the month 10 a.m., Barnes & Noble Mary, 763-420-4562

Third Wednesday of the month 7 p.m., Kingsley Commons Pat, 612-521-4654

Apple Valley First Friday of the month 10 a.m., Barnes & Noble Cindy, 952-891-5249

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Roseville

New Brighton/St. Anthony

St. Louis Park Care Partners

First Tuesday of the month 10 a.m., Barnes & Noble Har Mar Darr, 612-874-9019 or Lisa, lhayesburt@comcast.net

Fourth Tuesday of the month 6 p.m., Christ the King Lutheran Church, New Brighton

Third Wednesday of the month 6:30 p.m., St. Louis Park City Hall

GROUPS

Women Care Partners

CogniFitness Minneapolis

Third Saturday of the month Noon, Dorothy Ann Bakery & Café, Woodbury

First Tuesday of the month 2 p.m., Aster Café

For couples

Live FIT (MS Fitness discussion groups) Duluth Third Saturday of the month 3 p.m., Lutheran Church of Christ the King

Minneapolis Third Saturday of the month 10 a.m., chapter office

Nutrition club KC Nutrition Club Fourth Saturday of the month 1:30 p.m., Kingsley Commons, Minneapolis

Social gatherings Arrowhead region Meeting monthly at regional restaurant Mary, 218-827-8327

Burnsville/Apple Valley Third Thursday of the month Noon, Perkins Restaurant, Apple Valley

Forest Lake area Fourth Thursday of the month 6:30 p.m., restaurant varies Susan, 651-464-1043

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For artists, crafters and writers with MS MS Art & Crafts Interest Group

Stillwater Couples Second Saturday of the month Noon, Courage St. Croix, Stillwater

First Saturday of the month 11 a.m., D’Amico & Sons Café, Roseville

For GLBT

For care partners

Third Thursday of the month 6:30 p.m., Walker Library, Minneapolis

Bemidji Care Partners Third Saturday of the month 10 a.m., North Country Regional Hospital

Men’s Care Partner Breakfast Third Saturday of the month 10 a.m., Pippin’s Restaurant, Roseville

Perham Care Partners Last Tuesday of the month 1 p.m., Calvary Lutheran Church

GLAMS Twin Cities (for GLBT living with MS)

St. Paul GLBT: Gay, Lesbian, Bisexual, Transgender Living with Chronic Illnesses and Disability First Tuesday of the month 6 p.m., Metropolitan Center for Independent Living, St. Paul

For men Men’s Group Third Thursdays of the month 11 a.m., Courage St. Croix, Stillwater

National Multiple Sclerosis Society


Metro Area It’s Just Breakfast (with the guys)

For people recently to five years diagnosed

First Saturday of the month 10 a.m., Famous Dave’s, Calhoun Square Second Wednesday of the month 10 a.m., Restaurant varies Rick, 612-791-6473 or rleaf@msnet.org

South Metro Recently to Five Years Diagnosed

For moms with young children

Maplewood Women’s Peer Support Group

Moms with Young Children First Monday of the month 6:30 p.m., Patrick’s Bakery & Café, Edina

For people of color Metro MS Group for People of Color Second Saturday of the month 10:30 a.m., Sumner Library, Minneapolis

For people mildly affected by MS Southwest Metro MS Group for Mildly Affected Third Saturday of the month 10 a.m., United Methodist Church, Eden Prairie

For professionals Let’s Lunch: Professionals Living with MS Third Saturday of the month 11 a.m., Chatterbox Pub, St. Paul

Last Wednesday of the month 6:30 p.m., Split Rock Grille, Bloomington

For women

Belview Third Thursday of the month 7:30 p.m., Redwood Area Hospital No meetings Nov.–Feb.

Bemidji Third Saturday of the month 10 a.m., North Country Regional Hospital

Bloomington

Second Thursday of the month 1 p.m., Gustavus Adolphus Lutheran Church

First Thursday of the month 7 p.m., Nativity of Mary Church (south door entrance) No meetings January or July

General groups

Buffalo

Aitkin

Third Monday of the month Noon, United Methodist Church

First Wednesday of the month 7 p.m., Hope Drop-In Center

Albert Lea Second Monday of the month 1:30 p.m., Dec. – Feb. and 7 p.m., March – Nov., Grace Lutheran Church

Alexandria Second Monday of the month 5 p.m., St. Mary’s Office Building No meetings Dec. – March

Austin First Monday of the month 6:30 p.m., Grace Lutheran Church

Burnsville/Apple Valley First Tuesday of the month 6:30 p.m., Fairview Ridges Education Center, Burnsville

Cambridge Third Thursday of the month 7 p.m., Cambridge Medical Center

Canby Second Thursday every other month, April – Dec., 4 p.m., Sanford Canby Medical Center

Carlton/Cloquet Fourth Monday of the month 3 p.m., Bethesda Lutheran Church in Carlton

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Chaska

Grand Rapids

Minneapolis

Third Tuesday of the month 12:30 p.m., Chaska Library

Second Thursday of the month 12:30 p.m., St. Joseph Church

Last Saturday of the month 10 a.m., Kingsley Commons

Coon Rapids North Suburban

Hibbing

New Prague

Last Thursday of the month 1 p.m., Open Door Church

Last Wednesday of the month 6:30 p.m., Queen of Peace Hospital No meetings Dec. – Feb.

Second Wednesday of the month 6:30 p.m., Coon Rapids City Center

Duluth First Tuesday of the month 11:30 a.m. (bring a bag lunch) Bethany Baptist Church

Eden Prairie Third Tuesday of the month 7 p.m., Wooddale Church

Excelsior/Minnetonka Second and fourth Saturdays of the month 10 a.m., Knewtson Health Group Building, Excelsior

Fergus Falls Second Wednesday of the month 11:30 a.m., United Church of Christ

Faribault Third Tuesday of the month 6 p.m., Buckham Memorial Library

Forest Lake area Second Thursday of the month 6:30 p.m., The Meadows for Assisted Living

Hutchinson Second Monday of the month 6:45 p.m., Christ the King Lutheran Church

Inver Grove Heights/ West St. Paul

New Richmond Second Thursday of the month 6 p.m., First Lutheran Church

New Ulm

First Monday of the month 5:30 p.m., Emma Krumbee’s Restaurant, IGH No meetings Dec. – Feb.

Third Tuesday of the month 7 p.m., Oak Hills Living Center No meetings Dec. – Feb.

Lake Elmo

Third Saturday of the month 10:30 a.m., Oakdale Library

Second Wednesday of the month Noon, Christ Lutheran Church

Little Falls/Pierz First Wednesday of the month 1 p.m., Bethel Lutheran Church, Little Falls

Luverne Third Thursday of the month 7:30 p.m., Rock County Family Services

Mankato Second Thursday of the month 7 p.m., ISJ Physical Medicine, Madison East Center

Maple Grove

Oakdale

Perham Last Tuesday of the month 1 p.m., Calvary Lutheran Church

Princeton Third Saturday of the month 10 a.m., Fairview Northland Regional Hospital

Rochester Third Wednesday of the month 7 p.m., Meadow Lake Senior Living

Roseville Second Thursday of the month 6:45 p.m., Roseville City Hall

Second Saturday of the month 10 a.m., St. Joseph the Worker Church 30

National Multiple Sclerosis Society


Staples

Superior

Second Thursday of the month 3:30 p.m., Lakewood Care Center No meetings June – Aug.

Second Tuesday of the month 6 p.m., Superior Public Library

St. Cloud

Third Tuesday of the month 7 p.m., Waseca Medical Center

Second Wednesday of the month 7 p.m., St. Cloud Public Library

St. Paul Care to Share Second Wednesday of the month 7 p.m., Macalester Plymouth Church Mary Lynn, 651-644-1429

Stillwater Third Wednesday of the month 6 p.m., Courage Center

Waseca

Wayzata/Plymouth First Thursday of the month 1 p.m., restaurant varies, Richie, 763-670-9114

Willmar First Tuesday of the month 7 p.m., Bethesda Nursing Home No meetings Jan. – Mar.

Windom/Cottonwood County Third Wednesday of the month 7 p.m., ALC Lutheran Church

Woodbury A.M. Second Thursday of the month 9:30 a.m., King of Kings Lutheran Church

Woodbury P.M. Fourth Tuesday of the month 7 p.m., St. Ambrose of Woodbury

Additional resources Clubs and groups For more information about clubs and groups, visit MSsociety.org. Click “Programs and Services” and then “Clubs and Groups.” If you’d like more information or are interested in starting a club or group in your area, contact Jeff at 612-335-7951 or jeff.fisher@nmss.org.

Do you know a company that could support the chapter? Do you know of a company that could sponsor the chapter’s clubs and groups? If so, let us know! Contact Teri at 612-335-7925 or teri.cannon@nmss.org.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Exercise Studies show exercise not only improves your overall health and well-being, but also can help manage many MS symptoms. Move forward by finding an exercise program in your community. Featured group

Elk River Water Exercise Group The Elk River YMCA is hosting a new water exercise program designed for people with MS. Class meets Tuesdays and Thursdays at 11 a.m. For more information, contact Kyle at 763-230-2824.

WATER EXERCISE Albert Lea

Eden Prairie

Mankato

Family YMCA Bill Vilarreal, 507-373-8228 T/W/R, 1–1:45 p.m.

Community Center Beth Witt, 952-949-8447 M/W, 10:30–11:30 a.m.

Mankato Family YMCA Joy Leafblad, 507-345-9813 W, 5–6 p.m.

Alexandria

Elk River

Marshall

Lakes Area Recreation held at Arrowwood Resort Pool Kelly Wencl, 320-762-2868 M-F, 9–10 a.m.

Family YMCA Kylie Erickson, 763-230-2824 T/R, 11 a.m.

Marshall Area YMCA Cindy Rosa, 507-532-9622 M, 4:30–6 p.m.

Burnsville

Grand Rapids

New Hope

Itasca County Family YMCA Sue Beer, 218-327-1161 M/W/F, 9:30–10:25 a.m.

Northwest YMCA Kylie Sundberg, 763-535-4800 T/R, 11 a.m.–noon

Inver Grove Heights

Osakis

The Grove Amy Crary, 651-554-3420 Shallow water T/R, 10 a.m. Deep water M/W, 7:15 p.m. Call for more options.

Club Galeon Tony Van Acker, 320-859-6280 T/R, 11 a.m.

Minnesota Valley YMCA Sarah Sparks, 952-435-9022 T/R, 9–9:45 a.m.

Detroit Lakes Detroit Lakes Community & Cultural Center Leslie Johnson, 218-844-4221 T/R, 9–10 a.m. 32

National Multiple Sclerosis Society


Perham

Woodbury

St. Paul

Community Center Marie Hanson, 218-346-7222 T/R, 8:30-9:30 a.m. W, 11–11:45 a.m.

Southeast Area YMCA Lisa Kovac, 651-739-6589 T, 11:15 a.m.–noon.

Fairview MS Achievement Center Casey Graham, 612-672-2815 T, 9-10 a.m.

St. Cloud Family YMCA Celeste Waltz, 320-253-2664 M/W/F, 9:30–10:30 a.m.

St. Paul Jewish Community Center Stacey Roberts, 651-255-4762 T/R, 9:50–10:35 a.m.

Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 T/R, 10–11 a.m.

Virginia Mesabi Family YMCA Chelsea Spreeman, 218-749-8020 T/R, 1–2 p.m.

Waconia Safari Island Sara Foley, 952-442-0695 M/W/F, 8:30 a.m.

Willmar Kandiyohi County Area YMCA Christy Marthaller, 320-222-9622 Shallow water M-F, 8:30–9:30 a.m. Deep water M/W/F, 9:30–10:30 a.m. Shallow/deep combo M/W, 5:30–6:30 p.m.

TAI CHI Mankato V.I.N.E. Summit Center, Karen Christy, 507-345-5262 T, 3:30–4:30 p.m.

Burnsville Diamondhead Education Center Linda Ebeling, 651-686-0335 W, 11 a.m.–noon

YOGA Bemidji Dionne’s OM Yoga Studio Dionne Daly, 218-766-9262 T, 8-9 a.m.; S, 9:30–10:30 a.m.

Eden Prairie Eden Prairie Community Center Beth Witt, 952-949-8447 F, 10:30–11:15 a.m.

Mankato V.I.N.E. Summit Center Karen Christy, 507-345-5262 T/R, 9 a.m.

Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 W, 10 a.m.; R, 6:30–7:30 p.m.

GROUP EXERCISE Duluth Duluth Clinic, Fitness & Therapy Center Kelly Fugere, 218-786-5400 Low impact M/W, 10–11 a.m. Muscular strength and range of motion M/W, 10 a.m.

North Oaks Village Center Megan Frost, 651-766-0080 M/W, 10:30–11:15 a.m. M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday

Minneapolis Kingsley Commons Mary Salisbury, 651-690-1850 T/F, 10:30 a.m. Uptown YWCA Lisa First, 612-822-3504 T/F, Noon

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Midwest Teleconference Series Get information about MS-related issues from the comfort of your own home.

Second Monday of every month, 7–8 p.m. CT (6–7 p.m. MT) Join the conversation about MS-related issues and empower yourself with education from the comfort of your own home for FREE. Each one-hour phone call features an MS specialist who provides up-to-date information about a specific topic in a teleconference format. Upcoming teleconference topics: n Monday, Feb. 13: What about progressive multiple sclerosis? n Monday,

March 12: Research: Where are we now and where are we going?

n Monday,

April 9: Maximizing your physical therapy for optimum benefit

The 2011-2012 Midwest Teleconference Series is brought to you through a collaboration of Society chapters serving Illinois, Indiana, Iowa, Kansas, Michigan, Minnesota, Missouri, Nebraska, North and South Dakota and Wisconsin. There is no charge for these calls but registration is required. Participation is limited, so act fast!

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Register today Learn more about upcoming topics in the Midwest Teleconference Series and register online at http://tinyurl.com/3uutq36 or call 612-335-7900 or 800-582-5296 (option 1).

National Multiple Sclerosis Society


Didn’t find what you’re looking for? Use this directory to find the programs, services and resources that are right for you. Advocacy Jenna, 612-335-7981 Camps Majestic Shores Resort Jeannie, 612-335-7939 Youth Camp Bethany, 612-335-7954 Care partner programs Bethany, 612-335-7954 Chore services Kari, 612-335-7900 Clubs and groups Jeff, 612-335-7951 Corporate sponsorship Teri, 612-335-7925 Lindsay, 612-335-7976 Client education programs Steve, 612-335-7974

Calling from outside the Twin Cities area? Dial 800-582-5296.

Emergency assistance Heather, Jill and Sarah, 612-335-7900 Equipment programs Equipment loan MSClassifieds Scott, 612-335-7900 Exercise programs Jeannie, 612-335-7939 Family programs Bethany, 612-335-7954 Giving to the National MS Society Shannon, 612-335-7928 Chris, 612-335-7965 Housing developments Steve, 612-335-7974 Independent living grants Grants are available for care partner relief, aids for daily living, adaptive equipment and home modification. Scott, 612-335-7900

Information and Referral Center MS Navigators Heather, Jill and Sarah, 612-335-7900 Inservices for organizations Steve, 612-335-7974 Lending Library Jill, 612-335-7900 Mentor Program Connie, 612-335-7964 Professional education Megan, 612-335-7955 Volunteer opportunities Josh (programs), 612-335-7984 Will (events), 612-335-7992 Walk MS, Bike MS, Run MS and motorsport events Ann, 612-335-7975 Youth and teen programs Bethany, 612-335-7954

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

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Join Walk MS, no matter where you are More than 15,000 people across the Upper Midwest Chapter area will rally together during the month of May for Walk MS. Can’t make it? Good news. Walk MS is for anyone who is passionate about creating a world free of MS — no matter where you are.

Register for Walk MS: Anywhere Walk. Get started today with our easy online fundraising tools. You’ll be eligible for all the same great prizes and can even start a team. Walk MS is the rallying point of the MS movement. Put your passion into action — presence not required. Register now. myMSwalk.org 800-582-5296

Tracey, diagnosed in 2005.

Investing now is a promising way to ensure a secure financial future. Why not invest in a future free from MS at the same time? Through a charitable gift annuity with the National MS Society, you can make a gift that pays you a fixed amount each year for life and offers great tax benefits. Join the Movement®

Invest in your future. Invest in ours.

Make a charitable gift annuity to the Society today. For more information, contact Chris at 612-335-7965 or chris.neher@nmss.org.

Programs Connection, winter 2012  

Programs Connection, winter 2012