Melanoma Patient Network Europe
MPNE2019 Melanoma. Back at the Edge. 22nd- 24th March 2019, Brussels
MPNE2019, 22nd- 24th March 2019, Brussels
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Location NH Hotel Bloom Rue Royale/ Koningsstraat 250 1210 Brussels, Belgium https://www.nh-hotels.com/hotel/nh-brussels-bloom
Organizer MPNEsupport Fjällbo Selknä 152 75597 Uppsala Sweden
Planning meeting ECAB (internal)
Responsible Bettina Ryll Gilly Spurrier Violeta Astratinei
MPNEhubs- invitation only
Thursday, 21st March 14.00- 18.00, Hotel Bloom
Thursday, 21st March 19.30 MPNE hubs working dinner, Hotel Bloom Friday, 22nd March 8.00- 12.00 MPNEhubs, Hotel Bloom
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Dear MPNE2019 participant, Welcome to Brussels for MPNE2019, the 6th edition of our annual conference for European Melanoma patients and advocates! Melanoma remains a serious diagnosis but thanks to the developments of the last years, there is now hope for patients. So this weekend, we are Back at the Edge in Melanoma to look into the latest Melanoma developments.
MPNE's Edge 2019 will touch â—? â—?
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access- the best possible therapies are only effective if patients can actually access them. So access to new therapies remains an important topic. research- what are the area where we most desperately need more research? Expect resistance to therapies to be a topic. We we will also look at clinical research in a slightly broader perspective, namely through the eyes of those who evaluate it- good to know what to expect but also: do we agree? Do we disagree? perspective- what Melanoma patients want is survival in the best quality of life possible, so it's never just about one therapy- it is about the right therapy in the right order, switching at the right point and always with a long-term perspective in mind. As well as what to do to ensure other stakeholders take the patients' perspective into account.
However, MPNE2019 is more than learning about Melanoma- it is also about how to stay at the edge between conferences as community: how do we access information, analyse Melanoma issues and make sure that we learn and educate effectively? Make sure you as participant are on slack in #mpne19_all for all additional information. Please consult the commented online version for the latest program update and further reading material We wish you a productive weekend! Bettina, Gilly and Violeta MPNE2019 scientific committee
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Program MPNE2019 Version 18th March
Friday, 22nd March Arrival and registration Note that workshop program run in parallel sessions. Lists with your workshop choices will be available at the registration desk and on slack. Out of courtesy to faculty and to avoid organisational mayhem, please attend the workshop you registered for! Block 1 13.0014.00
1.1 QuickStart to MPNE2019 for first-time participants Welcome to the conference and MPNE Melanoma in a nutshell Bettina Ryll, MPNE
Know your stage! Violeta Astratinei and Gilly Spurrier, MPNE
MPNE 2019- what to expect from this weekend Fredrik Ă–stman and Bettina Ryll, MPNE
1.2 Beauty is in the eye of the beholder Anatomy of the Eye Guilherme Neri Peris, Champalimaud Foundation and Martina Rooijakkers, Stichting Melanoom and MPNE
14.0015.00
Welcome Coffee Meet your colleagues, time to brainstorm and hang your posters!
Workshops Block 2 15.0015.50
2.1 Patient Journeys with Andrew Evans and Jo Gumbs- UVEAL MELANOMA 2.2 Imaging explained with Luc Vautmans, Melanoompunt.be 2.3 Infographics with Berit Eberhardt, IKCC and Gilly Spurrier, MPNE-
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focus on adjuvant therapies 2.4 How to read a Scientific Publication with Bettina Ryll, MPNE
Workshops Block 3 16.0016.50
3.1 Predicting progression- thinking beyond SLNB with Ian James and Arjan van Manen and Jvalini Dwarkasing, SkylineDx 3.2 Why do Melanoma patients REALLY join clinical trials? with Adriana Andric, HALMED, Croatia, and Violeta Astratinei,MPNE 3.3 Prognostication in Uveal Melanoma with Pieter van der Velden, LUMC, and Dick Plomp, MPNE 3.4 Pseudoscience with Gilly Spurrier, MPNE 3.5 MPNErare 2019- preparatory session
Workshop Block 4 17.0017.50
4.1 Statistics for beginners with Corneel Coens, EORTC, and Lucy Davis, MPNE 4.2 Patient journeys with Andrew Evans and Sanne WiingreenCUTANEOUS MELANOMA 4.3 Skin apps with Ciprian Salceanu, CML, and Ian James, MPNE 4.4 Acral Melanoma with Jane Henderson, Podiatrist FootAngels 4.5 Facing up to Melanoma with Kay Curtin and Luc Vautmans 4.6 The clinical trial you want. How to find and choose a clinical trial with Bettina Ryll
Workshop Block 5 18.0018.50
5.1 Updates in Metastatic Uveal Melanoma with Jean-Francois Baurain, Cliniques Universitaires Saint-Luc, Belgium 5.2 Statistics - the tricky concepts with Corneel Coens, EORTC, and Violeta Astratinei 5.3 JOURNAL CLUB- Cooperative targeting of melanoma heterogeneity with an AXL antibody-drug conjugate and BRAF/MEK inhibitors with Julia Boshuizen, NKI, Netherlands, and Bettina Ryll 5.4 Infographics with Berit Eberhardt, IKCC, and Gilly Spurrier 5.5 Access to adjuvant therapies- ADVOCATES ONLY
19.15
Advocacy speed dating with Kacie King and Welcome Reception
20.00
Dinner
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Saturday, 23rd March 8.009.00
Breakfast 6- Thinking about resistance
9.0010.30
Targeted therapies in Melanoma, primary versus acquired resistance, reversibility Bettina Ryll, MPNE Tumour heterogeneity as driver of resistance to targeted therapy Julia Boshuizen, NKI Amsterdam, Netherlands Discussion- overcoming resistance to targeted therapy Resistance to immune therapy: an overview John Haanen, NKI, Amsterdam, Netherlands Discussion- interplay between targeted and immune therapies
10.3011.00
Coffee 7- Latest concepts in Immune therapy
11.0012.30
Cancer vaccines Steinar Aamdal, University of Oslo, Norway Bi-directional antibodies Jean-Francois Baurain, Cliniques Universitaires Saint-Luc, Brussels Increasing your chances- Neo-epitope specific TCR (T-cell receptor) gene therapy John Haanen, NKI Amsterdam, Netherlands Discussion
12.4513.45
Lunch
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8- Access to innovative therapies in Melanoma 14.0016.00
The drug development cycle in a nutshell Roald Nystad, Eupati Ambassador, Norway Accessing clinical trials abroad- a recent experience Erik Näsman, MPNE, Sweden Access schemes for clinical trials abroad- the Nordic experience Steinar Aamdal, University of Oslo, Norway Mind the gap- Early Access Programs for innovative therapies Holly Lumgair, Clinigen, UK Access, safety and benefit: the value of HTA. Developments in Europe and future view Alric Rßther, IQWiG, Germany Discussion
16.0016.30
Coffee 9- HANDS-ON SESSION : MELANOMA ESSENTIALSThe relevant Melanoma studies
16.3018.00
Read the essential Melanoma studies in a group, annotate them and publish them for our community. Group allocation, material and tools provided but please bring your laptop/ tablet.
19.00
Poster competition and Reception Do not forget to vote!
20.00
Conference Dinner
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Sunday, 24th March Advocacy Day for patients and patient advocates only
8.009.00
Breakfast • •
please make sure you check out before we start collect your posters
10 Advocacy- Access to adjuvant Melanoma therapies in Europe 9.0010.30
Introduction- overview of approved adjuvant treatments for Melanoma speaker tbc Experiences Netherlands Koen van Elst, Stichting Melanoom, Netherlands Ireland Kay Curtin, Melanoma Support Ireland Denmark Sanne Wiingreen, Danish Melanoma Patient Association France Gilly Spurrier, Mélanome France Norway Tone Skajaa Rye, Føflekkkreftforeningen, Norway Discussion
10.3011.00
Coffee
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11- Advocacy: Network update 11.0012.30
Melanoma Kahoot!! Test your Melanoma knowledge THE Melanoma advocacy project The winner of the MPNE poster competition! Network update ● Skin cancer apps in comparison Ciprian Salceanu, Romania and Ian James, UK ● Patient Pathways Andrew Evans and colleagues ● MPNE resources and update Bettina Ryll
12.3012.45
Conference summary and closure Bettina Ryll, MPNE
13.00
Lunch and Departure
And before you leave Your feed-back is extremely valuable to us- it is your suggestions that ensure that we continuously improve! Thank you for taking the time to share your ideas with us! Travel costs will be reimbursed up to the maximum amount of €320 for economy/ 2nd class travel after full attendance of the conference and against complete travel receipts. Please note that the reimbursement is now fully electronic - you will receive an online form with detailed instructions. No attendance, no receipt = no reimbursement.
Safe travel and see you again soon! MPNE2019, 22nd- 24th March 2019, Brussels
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Faculty MPNE2019 Adriana Andric, HALMED, Croatia Alric Ruther, IQWiG, Germany Andrew Evans, MPNEocular, Netherlands Arjan van Manen, SkylineDx, Netherlands Bettina Ryll, MPNE, Sweden Berit Eberhardt, International Kidney Cancer Coalition, Germany Ciprian Salceanu, Romanian CML Patient Group, Romania Corneel Coens, EORTC, Belgium Dick Plomp, Stichting Melanoom, Netherlands Erik Näsman, MPNE, Sweden Fredrik Östman, MPNE and Melanomföreningen, Sweden Gilliosa Spurrier, MPNE and Mélanome France, France Guilherme Neri Peris, Champalimaud Foundation, Portugal Holly Lumgair, Clinigen, UK Ian James, MPNE, UK Iain Galloway, MPNEocular, UK Kay Curtin, Melanoma Support Ireland, Ireland Koen van Elst, Stichting Melanoom, Netherlands Lucy Davis, MPNE, UK Martina Rooijakkers, Stichting Melanoom, Netherlands Pieter van der Velden, LUMC, Netherlands Jane Henderson, Melanomafocus, UK Jean-Francois Baurain, Cliniques Universitaires Saint-Luc, Belgium Jo Gumbs, OcuMel, UK John Haanen, NKI, Amsterdam, Netherlands Julia Boshuizen, NKI Amsterdam, Netherlands Luc Vautmans, Melanoompunt.BE, Belgium Rob White, MPNE, UK Roald Nystad, EUPATI ambassador, Norway Sanne Wiingreen, Danish Melanoma Patient Association, Denmark Steinar Aamdal, University of Oslo, Norway Tamara Rimmer, OcuMel, UK Tone Skajaa Rye, Føflekkreftforeningen, Norway Violeta Astratinei, MPNE, Melanom Romania and Stichting Melanoom, Netherlands Advocacy Speed Dating Kacie King, Melanoompunt.be, Belgium Posters Kari Anne Fervang, Føflekkreftforeningen, Norway
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Good to know Currency in Belgium EURO Cash machines can be found in the arrival area at the airport. Dresscode Business casual but Dick and Roald invite you to bring a jacket for the Dinner on Saturday Weather an umbrella might be a good idea Closest Airport Brussels International Airport Zaventem Transfers You are responsible for organizing your own transfer. Queues for taxis at Zaventem airport tend to be long and traffic in Brussels horrific. We therefore recommend the direct train to Brussels. The train station is located in the airport, out of the arrival gate across to the right, take the lift or the escalator down to the bottom level. Train tickets can be purchased at the ticket vending machines, all international cards accepted, or at the ticket counter. Alternatively, get the SNCB app and purchase online before to skip the queues! How to get to the hotel http://www.melanomapatientnetworkeu.org/time-line-and-logistics-mpne2019.html Incidentals The conference budget covers conference participation, accommodation for 2 nights and meals during that time; please note that you will be responsible for all other extra costs. Contact during the conference Bettina Ryll +46-722297272 Gilliosa Spurrier +33-676318349 Violeta Astratinei +31-646699527
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We thank for their support
Pierre Fabre (awaiting Logo)
Idera (awaiting Logo)
Amgen (pending) Roche (pending) MSD (pending)
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