It takes a community to turn Type One into Type None
Welcome to the JDRF TypeOneNation Summit November 14, 2015 | EDO Building, Nike Campus, Beaverton, OR
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premier national sponsors
Table of Contents Welcome Letter . . . . . . . . . . . . 3 Keynote Address . . . . . . . . . . . 6 Core Programs Sessions & Speakers . . . . . . . . . . . . . . . . . . 7 Core Sessions Descriptions . 8 Exhibit Floor Maps . . . . . . . . 16
exhibitors
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with those im p ac and t s ted by T1D” “
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Dr. Jessica Castle
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Dr. Sev Yigit
Hello and welcome to JDRF’s
TypeOneNation Summit Oregon/SW Washington 2015
Today is a big day! We are honored to be involved as Co-Chairs of the Summit and to have a hand in creating this program as a day of inspiration and education for everyone affected by T1D. As members of the Board of Directors of JDRF, Oregon/SW Washington Chapter we are glad to help the Oregon/SW Washington Chapter provide such a meaningful experience. Those affected by T1D know the frustration and danger of this disease. The new technological advances and information available to help manage diabetes is making a definite difference in the lives of so many. The Mission of JDRF to turn type one into type none is getting closer every day to reality. Today, we are providing speakers and exhibitors who have a wealth of knowledge and wisdom to share about living well with T1D now. You also have the opportunity to connect with others at this event who are living with T1D or those who have someone dear to them that lives with T1D. When you return home, be a part of JDRF’s Mission to cure, better treat and prevent T1D. Every day, JDRF Staff and Volunteers all over the world actively work to achieve this Mission. If you are not already involved, please consider being a volunteer, advocate and donor. The Chapter has many ways to be involved. JDRF was founded by Volunteers and they are the catalyst and provide motivation and volunteer time that helps our Chapter be so successful.
Thank you for being here today!
Jessica Castle, M.D. Co-Chair, TypeOne Nation Summit
Sevket Yigit, M.D. Co-Chair, TypeOne Nation Summit
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keynote address Lorraine Stiehl—9:30 AM Air Max 360 JDRF International Board of Directors Lorraine Stiehl and her husband, Chris, have been involved with JDRF for nearly 30 years. Lorraine served as executive director of both the Detroit and Los Angeles chapters, and national field manager for the western U.S. In this role, she helped to create 17 new chapters in 14 states. In 1992, Lorraine was named JDRF National Staff Member of the Year. In 2001, Lorraine concluded her 14 year professional career with JDRF and became an active volunteer. She served as national co-chair for the Promise to Remember Me campaign and the national volunteer chair for grassroots advocacy. Lorraine was named 2010 JDRF National Volunteer of the Year.
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Lorraine Stiehl
Notes
As a member of the JDRF International Board of Directors, Lorraine has chaired the Advocacy Committee and has served on the Executive, Research and Development Committees. Lorraine recently left the Diabetes Center at the University of California, San Francisco after 13 years, though she continues to support Type 1 Diabetes TrialNet. Besides consulting through her family’s firm, StiehlWorks, she plays an active role in numerous organizations including Diabetes Hands Foundation/Tu Diabetes, the diaTribe Foundation, the Diabetes Empowerment Foundation, Students With Diabetes, California Institute for Regenerative Medicine and the Sanford Consortium for Regenerative Medicine. Lorraine is convinced that Chris has survived 55 years of T1D because of JDRF and the vital role the organization plays in both directing and funding T1D research.
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get this done”
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Radhika Purushothaman, MD, MPH
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te “de
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” oney for a cure
Judy Summers, MS
Lilly Diabetes + JDRF Inspiring New Journeys Together 08/2015 ©Lilly USA, LLC 2015. All rights reserved.
Notes
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Since 1923, families managing type 1 diabetes have inspired us to create and support programs that bring out the very best in our community. It’s part of our mission that goes beyond insulin and healthcare—we want to help families managing type 1 diabetes live life to the fullest. No matter where the patient is on their diabetes journey—child or adult, college years or golden years— Lilly Diabetes is there, for big and little moments along the way, with resources and programs. In proud collaboration with JDRF, we can continue to support, inspire, and pave the way for those to come. Find your inspiration at
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active, dream e v i BIG” “l
LillyDiabetes.com
type Chris Dudley
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Core Programs—Sessions & Speakers 9:00 am
Check-In & Time with Exhibitors
9:30 am
Opening Session—Lorraine Stiehl, JDRF International Board of Directors—Location: Air Max 360
10:00-10:50 am
Diabetes and the Workplace
Review rights of employees with diabetes and responsibilities of employers, tips for managing diabetes in the workplace, and practical application of FMLA, FSA’s and life insurance as they relate to diabetes.
Evan Los, MD Air Zoom Mystify
10:00-10:50 am
Psychology of Type 1 diabetes (child, teen and caregiver burn out) Sev Yigit, MD— Dir. Pediatric Endocrinology, Legacy Randall Children’s Hospital
The team will review the role of psychosocial factors causing diabetes burnout in children/teenagers as well as caregivers. Dr. Yigit will also highlight effective interventions targeting diabetes burnout and emphasize how diabetes teams that include psychologists can enhance diabetes care.
Kelsy Newton, MA Tara Sharifan, MA Air Zoom Moire
10:50-11:00 am
11-11:50 am
Break time with Exhibitors (parents can check on children in kids area) Sweet Connections: The Realities of Relationships with Diabetes
How does diabetes affect our connections with others? Or rather, how doesn’t it?! Counselor, coach, and PWD since 1997 Heather Nielsen explores some of the issues that we face when in relationships—personal, professional, sexual, social, casual and committed.
Heather Nielsen, MA, LPC Air Zoom Mystify
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Keeping Kids with Diabetes Safe at School Alison Bruun— Manager, ADA
Taylor Simon, MS, RD— Associate Manager, ADA
The ADA will cover tools and strategies to help ensure that families, health care providers, school nurses, administrators, teachers and other school staff are all committed to ensuring that students with diabetes can have a positive learning experience in a safe environment with the same educational opportunities as students without diabetes.
Air Zoom Moire
12:00 pm
Lunch & Time with Exhibitors
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Tara Sharifan, MA
Core Programs—Sessions & Speakers 1:00-1:50 pm
Transition to Adult Care for Teens with type 1 diabetes Radhika Purushothaman, MD, MPH Julieann Finke, CDE
This topic will focus on the challenges faced by the teenager, their family and the provider during the course of transferring care from a pediatric to an adult care setting. Dr. Radhika and Julieann will discuss current practices and barriers encountered during this process: diabetes knowledge, psychological aspects and smooth transition to an adult practice.
Air Zoom Mystify
1:00-1:50 pm
Controlling your diabetes while “living actively and dreaming BIG” Youth—sports,
This topic will focus on controlling your diabetes while “living actively and dreaming BIG.” The presentation is targeted for caregivers of people with type one diabetes, specifically youth with T1D. This is an informative session with time for Q’s and A’s.
exercise and T1D. Chris Dudley— Chris Dudley Foundation Air Zoom Moire
1:50-2:00 pm
2-2:50 pm
Break time with Exhibitors (parents can check on children in kids area) Type 1 Diabetes & Exercise— Fundamentals & Strategies for Optimal Performance Don Kain, MA, RD, LD, CDE Becky Furuta—Team
Physical activity can be a bit of a double edged sword for someone with type 1 diabetes. Activities that might be very healthy for someone without type 1 diabetes have the potential to wreak havoc on the blood sugar of someone with type 1 diabetes. This presentation will outline a variety of important fundamentals and strategies aimed at maintaining a healthy blood sugar while enjoying physical activity.
NovoNordisk Pro Cycling Air Zoom Mystify
2:00-2:50 pm
T1D Research and Technology in the Modern Age
Learn about what is new and upcoming in JDRF research and technology.
Andrew Ahmann, MD— Director, Harold Schnitzer Diabetes Health Center at OHSU Air Zoom Moire
2:50-3:00 pm
3:00-4:00 pm
Break time with Exhibitors (parents can check on children in kids area) Thriving with T1D Panel Anna Martin Laura Glover Gregory Smith Pratt Rather
Thriving with T1D is an opportunity to hear from fellow T1Ds, their stories and their perspectives on different topics. Chris Dudley will be moderating this panel that is opening to Qs & As.
Air Max 360
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Notes
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I’m the
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Gina Yazzolino
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o ing it n” r b “
Taylor Simon, MS, RD
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Kelsy Newton, MS
Notes
quick, which word jumps out at you? For nearly a century, we have been committed to defeating diabetes. As a leader in research, education, and unique partnerships, we never lose sight of the fact that every day patients like Cameron dream about a future free from their disease. And that’s why we believe that together we can achieve this goal in our lifetime. For more about us visit novonordisk-us.com.
Š 2013 Novo Nordisk Printed in the U.S.A. 0113-00013041-1 March 2013
CAMeroN HUbbArd Cameron has type 1 diabetes
“Portland’s Most Anticipated Event of the Year”
January 27th, 2016
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Oregon Convention Center
Save the Date
Tell Your Story
And Strengthen Our Voice
Visit advocacy.jdrf.org or text ‘voice’ to 53731 (JDRF1).
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JDRF Advocacy unites the dedicated, driven, and diverse type 1 diabetes (T1D) community in action. Sign up to receive our advocacy action alerts. Help secure legislative support for continued government funding of T1D research and influence regulatory and health policy that benefits the T1D community.
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Your Legacy Can Change The World
Millions of people around the globe need a cure for type 1 diabetes (T1D). By including a gift to JDRF in your will, trust or retirement account, you can create a lasting legacy—one that helps ensure research will continue until a cure is found.
Karis Tsolomitis
Notes
For more information, please contact: Alan Berkowitz at plannedgiving@jdrf.org or call 877-533-4483. JDRF.org/plannedgiving
#JDRFOneWalk
Join us at walk.jdrf.org
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