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Global Learning Conference 2017
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GENERAL INFORMATION
General Information
Junior Zebras Grand Ballroom Platinum Thursday, September 7, 2017
Badges
The Ehlers-Danlos Society Store
For access to conference sessions and events, we ask that you wear your badge at all times. Please pick up your badge at the registration desk in the Grand Salon. Your cooperation is appreciated.
The Ehlers-Danlos store is open for business! Located next to the registration desk, please stop by at store hours to purchase new Society branded merchandise to help keep our mission alive. Hours are Thursday, 5 – 6:30 pm; Friday, 10:45 – 11:15 am and 1:00 – 2:15 pm; and Saturday, 10:45 – 11:15 am and 1:00 – 2:15 pm.
2:00 – 3:00 pm
Keynote/Icebreaker activity
Victoria Graham
3:15 – 4:00 pm
Q&A with a geneticist
Dr. Howard Levy
4:15 – 5:00 pm
Coping Strategies for EDS Kids
Dr. Antonio Bulbenna
5:00 – 6:00 pm
Welcome Reception
Junior Zebras Program
6:00 – 7:00 pm
Supervised free time (in Bronze 1)
The Ehlers-Danlos Society requires children under age 13 to be signed in and out by a parent or legal guardian each time the children leave or enter the Junior Zebra program. Sign-in sheets will be available at the registration desk. The Society and its staff and volunteers will assume no liability for Junior Zebra participants.
Friday, September 8, 2017 8:30 – 8:45 am
Morning Welcome
Volunteers
8:45 – 10:30 am
Creative writing workshop
Brianna Greenspan
10:45 – 11:15 am
Break with parents (Grand Salon)
11:15 am – 12 noon
How to Talk with Your Doctor
12:15 – 1:00 pm
Nutrition and EDS
1:00 – 2:15 pm
Lunch with parents (Grand Ballroom Silver/Gold)
2:15 – 5:00 pm
Songwriting workshop
Barby HalsteadWorrell Dr. Heidi Collins
Christina Bloom
Saturday, September 9, 2017
Meal Information Please note that breakfast will be on your own. Bally’s has breakfast options available. The Ehlers-Danlos Society is pleased to provide a welcome reception on Thursday, and lunch on Friday and Saturday.
8:30 – 8:45 am
Morning Welcome
Volunteers
Tax Deductible?
8:45 – 9:45 am
Discussion Group: What Do You Want to Talk About?
Barby Halstead-Worrell
10:00 – 10:45 am
Creating a Plan for Managing hEDS in Children and Adolescents (parents invited)
Dr. Leslie Russek
10:45 – 11:15 am
Break with parents (Grand Salon)
11:15 – 12 noon
Spreading Awareness about EDS
12:15 – 1:00 pm
Making an Awareness Video
1:00 – 2:15 pm
Lunch with parents (Grand Ballroom Silver/Gold)
2:15 – 3:00 pm
Junior Zebras Wrap-Up
Did you know medical conferences may be tax deductible? According to the Internal Revenue Service’s website at http://www. irs.gov/publications/p502/ar02.html, “you can include in medical expenses amounts paid for admission and transportation to a medical conference if the medical conference concerns the chronic illness of yourself, your spouse, or your dependent. The costs of the medical conference must be primarily for and necessary to the medical care of you, your spouse, or your dependent. The majority of the time spent at the conference must be spent attending sessions on medical information.”
Jessica Adelman
Lara Bloom
Relaxation Lounge This space is set aside to rest and to house our Memorial Corner, where you will find a beautiful album filled with pictures of those no longer with us.
Post-Conference Evaluation Your opinion is important to us and helps us improve future conferences and services for our EDS community. Please save your comments, suggestions for improvement and testimonials until the conference concludes. We’ll email you after the conference to give you a chance to provide your assessments. We hope you enjoy the event and look forward to receiving your important feedback. Thank you!
Presentations and Handouts Electronic materials are accessible through the web app at https://app. eventdrive.com/2017conference and during (where possible) and after the conference on The Ehlers-Danlos Society’s web site at https://www. ehlers-danlos.com/2017-eds-globalconference/. The presentations and materials remain the intellectual property of the presenters, and all rights are reserved to them. The Society does not control and is not responsible for the content of presentations.