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REPORT


PARKINSON’S SUPPORT GROUPS HELPING PEOPLE ACROSS WA

ONE-ON-ONE HOME VISITS TO PEOPLE WITH PARKINSON’S BY OUR PARKINSON’S NURSE SPECIALISTS

CALLS TO THE PARKINSON’S WA HELPLINE

PROFESSIONAL EDUCATION SESSIONS

PARKINSON’S NURSE SPECIALISTS

FOLLOWERS ON TWITTER & FACEBOOK

ATTENDEES AT HEALTH

CURRENT PATIENTS NEW REFERRALS TO THE PARKINSON’S NURSE SPECIALIST SERVICE

EDUCATIONAL SESSIONS DELIVERED BY OUR PARKINSON’S NURSE SPECIALISTS

MAJOR SUPPORTERS

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PARKINSON’S WA ANNUAL REPORT


When I was diagnosed, I didn’t know where to turn... then I found Parkinson’s WA. I couldn’t have wished for more help and understanding. - Parkinson’s WA Member

WHO WE ARE

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OUR VISION OUR MISSION WHAT WE DO BOARD OF MANAGEMENT PROFESSIONAL ADVISORY PANEL STAFF

01 01 01 02 02 03

REPORTS

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PARKINSON’S WA PRESIDENT PARKINSON’S NURSE SPECIALISTS RESEARCH COMMITTEE SUPPORT PROGRAMS FINANCES

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YEAR IN PICTURES

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RESEARCH IN ACTION

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SUPPORT SERVICES

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SEMINARS & EDUCATION REPORT SPONSORS & DONORS EDUCATIONAL RESOURCES

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PARKINSON’S WA ANNUAL REPORT

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WHO WE ARE

WHO WE ARE OUR VISION A nation without Parkinson’s

OUR MISSION To encourage, and where appropriate, develop and implement programs for the cure, treatment and care of people with Parkinson’s

WHAT WE DO

Parkinson’s WA provides a Parkinson’s Nurse Specialist service covering the metropolitan area, making home visits and assisting patients in the management of the condition. Where possible, regional areas are supported in person - others are supported by telephone. This free service is funded by the Department of Health Western Australia. The Parkinson’s nurse specialist service provides support and education to allied health professionals, with the aim of ensuring informed care. Parkinson’s WA provides regular therapeutic activities for people with Parkinson’s including singing, yoga and art therapy. Parkinson’s WA has 21 Parkinson’s support groups throughout WA, mostly led by volunteers. Parkinson’s WA run various seminars every year, tailored to suit people in all stages of their journey with Parkinson’s, and also hold specific seminars just for families of people with Parkinson’s. Parkinson’s WA provides a wide range of Parkinson’s - specific educational resources.

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PARKINSON’S WA ANNUAL REPORT


WHO WE ARE

BOARD OF MANAGEMENT PROFESSIONAL ADVISORY PANEL Dietician

Linley Boulden

President

Pharmaceutical Advisor

John McDonald

Oksana Burford

Vice President

Dr Natalie Gasson

Psychologist

Dr Natalie Gasson

Clinical Nurse/Coordinator Janice Guy

Consultant Neurologist

Secretary

Professor Frank Mastaglia

Dr Roseanne Thomas

Occupational Therapist

Treasurer

Geoff Pride

Paula McGinley

Consultant Neurosurgeon

Professor Chris Lind

Dentist

Marianne Pinto

Board Member Dr Don Bolto

Speech Pathologist

Caroline Silver

Senior Physiotherapist

Board Member (Until Nov. 2012) Ross Guyton

Board Member Peggy Habib

Tracey Ticehurst

Consultant Physician Dr Barry Vieira

Optometrist Liz Wason

PARKINSON’S WA ANNUAL REPORT

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WHO WE ARE

STAFF

Executive Officer

Office Manager

Senior Nurse Specialist

Events & Marketing

Nurse Specialist

Lucy Reader

Support Programs & Comms. Jodie Palmer

Admin: Client Services

Accountant

Nurse Specialist

Kym Auret

Jenny Taylor

Admin: Finance

Nurse Specialist Secretary

Nurse Specialist

Brenda Matthews

Lena Divito

Claudia Wells

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PARKINSON’S WA ANNUAL REPORT

Angela Sideris

Dawn Mathieson

Janet McLeod OAM

Jo Chadwick

Sandra Rule


REPORTS

REPORTS Parkinson’s WA President JOHN McDONALD This year has been one of steady progress for Parkinson’s WA, and this would not have been possible without the efforts of many including our dedicated staff, the Board and the army of energetic volunteers.

Parkinson’s Nurse Specialist Service: This WA Government supported program funds community based nursing, which provides important support for people with Parkinson’s and their family carers/partners. It also has a valuable educational role helping allied health professionals better understand the complexities of Parkinson’s. A fourth nurse, commenced at the beginning of the year and the service is now also fully funded by the Department of Health WA. This level of continued support is certainly welcomed by the Parkinson’s community.

The State government is seeking to optimise value they receive from funded Non Government Organisations such as ours and to this end are moving towards ‘outcome’-based service contracts. This will mean in future Parkinson’s WA will be required to participate in a contract tender process. Our staff have been closely involved with government health program managers to ensure the targeted “outcomes” eventually adopted are realistic. To expand our support for regional WA, and to cope with expanding demand in the extended metropolitan area the Board has now agreed to employ and fund a fifth nurse. This will be contingent on expanding our currently, crowded, office space and an application has been made to Lotterywest for assistance with this. Nurses have made most

welcome visits to Esperance, Narrogin and Northam during the year. This year has seen a significant increase in educational sessions to up skill allied health professionals in the “best practice” management of people with Parkinson’s. Two new educational sessions were introduced this year one to support people with the Parkinson’s Plus Conditions and another for Adult Children of People with Parkinson’s. These were both well attended. The small group counselling sessions for family carers/partners, which proved popular when introduced last year, were continued. Northern Territory In 2012 Parkinson’s WA expanded its services to the Northern Territory. A grant from Parkinson’s Australia facilitated a visit to Darwin PARKINSON’S WA ANNUAL REPORT

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REPORTS from one of our Parkinson’s Nurse Specialists, who spent several days seeing patients and upskilling allied health professionals.

allied health professional groups or assisting with office administration, the work they do is vital to the effectiveness of the organisation.

Grants, Trusts and Fundraising:

Congratulations to The 2012 Volunteer of the Year, Ross Guyton. Ross was a Board member and active Support Group member, and among other things has assisted significantly in the preparation of our Strategic and Business Plans.

Organisations and people from all sections of the community have again continued to give generously. A further grant of $50,000 was received from the McCusker Charitable Foundation, making a total of $150,000 over the last three years. There was a marked increase in third party fundraising through community activities such as City to Surf, the HBF Run for a Reason, Everest Trip and the Fremantle Fun Run. The $31,000 from these events raises awareness, particularly among younger people and Lucy Reader, our Events and Marketing officer is working through the various social media avenues to expand the support we get from this sector. Continued support also came from Support Group fundraising. The 2012 Parkinson’s Unity Walk fundraising was better than 2011, however attendance was disappointingly down; but planning is underway to reverse this in 2013. Volunteers Again I acknowledge the valuable contribution from Volunteers who contribute in various ways to Parkinson’s WA. Whether it is through Support Groups, as fundraisers, as members of the Board, as speakers to various

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PARKINSON’S WA ANNUAL REPORT

Special thanks again to former Board member, Peter Wilmott and the Space Sailer 27 section of the South of Perth Yacht Club, for once again arranging the popular Twilight Sailing. Thanks also to Board member, Peggy Habib, who once more coordinated the two Carer Short Breaks in Mandurah. Board of Management At the last AGM Dr Don Bolto, joined the Board. All other members continued from the previous year. My thanks to them all for their valuable input and support. Many thanks also to our Patron, Dr Janet Woollard , for her continued backing and support. Professional Support and Professional Advisory Panel We have been fortunate to continue to receive excellent pro-bono advice from Fundraising Consultant, Lee Saunders and lawyer Lee Rosetto of Minter Ellison Lawyers. Members of the Professional Advisory Panel when called

upon continued to give generously of their time and expertise. Many thanks to them all. During the year a Support Programs and Communications Coordinator position was created. In this role Jodie Palmer has greatly improved communications with Support Groups and their leaders, reinvigorated flagging groups and improved Parkinson’s WA’s public profile. Programs such as Singing, run by Brian Dawson and Yoga under Barbara Bowra’s direction have continued to attract enthusiastic support. Bunbury now has a Singing group, Yoga is to be expanded and a Tai Chi group is planned. Nationally, the health care scene continues to change, creating challenges for all. The introduction of Medicare Locals and the National Disability Insurance Scheme are just two examples and this all creates an additional workload for our organisation and staff. I am pleased to report the financial position of Parkinson’s WA remains sound, thanks particularly to the efforts of our Treasurer Geoff Pride and our Executive Officer, Brenda Matthews. Concluding, there are many caring, enthusiastic people involved with Parkinson’s WA’s activities. The administration staff, the Specialist Parkinson’s Nurses, our Executive Officer, the Board and the many volunteers and they all deserve a vote of thanks.


REPORTS

PARKINSON’S NURSE SPECIALIST SERVICE The year 2012/2013 has been an incredibly intense and busy yet rewarding time for the Parkinson’s WA Parkinson’s Nurse Specialist Service. Fourth Parkinson’s Nurse Specialist Sandra Rule joined the team on 2 July. Sandra has a background in continence and palliative care, and she quickly adapted to her new role.

STATISTICS 2012/13 Total Current Patients: 1649 Referrals: 591 Attendees at Education Sessions: 2161 Hospital Visits: 75 Visits to Aged Care Facilities: 250 Education Sessions: 106 Home Visits: 1008

In preparing for the role, Sandra spent several months shadowing the three nurses, as well as spending time at the Australian Neuromuscular Research Institute and Osborne Park Parkinson’s Clinic. We are grateful to our colleagues in these centres for their support. The subdividing of the existing catchment areas followed, and a gradual hand over resulted in Sandra working independently by October. Professional Development It is essential that we maintain up to date knowledge of Parkinson’s, and Parkinson’s WA is very supportive in the area of professional development. All four nurses attended the National Parkinson’s Conference in Brisbane, with Janet presenting on the role of the Parkinson’s Nurse Specialist. Parkinson’s WA subsequently presented a seminar on the outcomes/ themes of this conference. Jenny attended a two day Parkinson’s workshop in

Melbourne at the Lundbeck Institute. Jo, Jenny and Sandra attended Duodopa workshops in Sydney. Janet attended a meeting with the Australian College of Nursing Movement Disorders and Parkinson’s Nurses Facility in Canberra. This faculty is currently undergoing some structural changes with the amalgamation of the Royal College of Nursing and the Australian College of Nursing and it is hoped there will be ongoing input from WA. Regional Visits Jo travelled to Narrogin and Esperance where she carried out home visits and spoke at the Support Groups, aged care facilities and hospitals. Jenny continues to visit Northam on a regular basis. Student Placements We continue to facilitate placements for student nurses from both Edith Cowan and Notre Dame Universities. In addition to teaching students about the condition, these placements ensure an ongoing awareness and interest in Parkinson’s which will assist with improved hospitalisation stays for people with Parkinson’s in the future. PARKINSON’S WA ANNUAL REPORT

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REPORTS

RESEARCH COMMITTEE DR NATALIE GASSON It is with a heavy heart that I begin this report as one of our key committee members, Gordon Buckley, passed away this year. Gordon provided invaluable advice about the projects we were reviewing – even when he was unwell. Our deepest sympathies go to his family and friends. He will be greatly missed. Best Practice Manuals In addition to our popular nursing and physiotherapy manuals, the speech pathology & swallowing manual is nearing completion. I would like to thank the speech pathologists for all their hard work on this manual. I have also had several meetings with the Occupational Therapy Team who are going to be working on their manual for the series. There are two practice-based Occupational Therapists and one academic on the team. We are also hoping to get some interstate assistance and expand the input we have into the manual in accordance with Parkinson’s Australia guidelines. We will be collating feedback on the manual from practising Occupational Therapists. Supported Research Projects In addition to the projects we are currently supporting (listed on the right) there are also several potential projects in the planning stage including one exploring anxiety in Parkinson’s, and another investigating the outcomes

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PARKINSON’S WA ANNUAL REPORT

of deep brain stimulation. We will keep you updated about these in the Parkinson’s WA newsletter. Joining the Committee As I do every year, I would like to invite people to join our team. We meet (very informally) 2-4 times a year. Mostly you are asked to read and comment on the applications for assistance that researchers submit to us (either requesting some funding, or help with recruiting volunteers to participate in their research). You don’t need to have any special skills – just an interest in research relating to Parkinson’s. If we can help researchers then we are ultimately helping ourselves!

PROJECTS WE CURRENTLY SUPPORT: The impact of sleep fragmentation and hypoxia on executive function, memory and health-related quality of life in Parkinson’s. Loftus, Bucks, Kroczek, & Thomas (ParkC) Experiences of Engagement for Health Professionals and Partners in the diagnosis and management of Parkinson’s disease. Bolland, Bucks, & Guilfoyle (UWA) Changes in speech output following a visual biofeedback training program in people with Parkinson’s. Sullivan, Cartwright, & Hennessey (Curtin)


REPORTS

SUPPORT PROGRAMS JODIE PALMER Thank you to all of our Support Group Leaders, Teachers and Convenors, many of whom are Volunteers, who give so much to support people with Parkinson’s in WA.

Support Groups Our Support Groups would not exist, and participants would not be as well supported, without our fantastic group leaders. Three groups have new leaders, following the departure of Nerolie Lyle, Pam Van Omme and Merilyn Wilson. Our sincere thanks go to Marieta Simmons, Phillip Everett and Jean Jagst for volunteering to lead the Busselton, Young Onset 2005 and Darwin Groups respectively. We have established a new Support Group for people recently diagnosed with Parkinson’s, aged 55 and under, and have also reestablished the Rockingham Support Group. We are working closely with a Volunteer, Yen Lee, to develop a Service Directory for people with Parkinson’s in WA. We are collating feedback from some of our Support Group Members on our first draft of this document.

We look forward to seeing many leaders at the Support Group Leaders’ Workshop in December.

South of the River, which has already attracted some keen interest, and which will also be taken by Barbara.

Support Programs

Communication

With performances at the Independent Living Centre’s Open Day, at the Parkinson’s WA Unity Walk and at the Parkinson WA Annual General Meeting, it has been wonderful to see the bond between the Parkinsong, Perth members become even stronger. They have been led marvelously by their new teacher, Brian Dawson, who took over from Jackie Ewers, and whose passion for music is infectious.

In continuing to work to raise awareness of the condition and the profile of Parkinson’s WA throughout the WA community, we have identified the need to develop a detailed Promotions and Communications Plan, alongside the establishment of a database of Media and Community Contacts.

A successful grant from The Marian & E.H. Flack Trust has enabled a new Parkinsong class to be trialled in the Bunbury area. We are very fortunate that Brian also takes this class, travelling to Bunbury on a weekly basis. Our sincere appreciation also goes to Bunbury Support Group Leader Betty McCleary, who has supported this initiative in countless ways. Our Yoga class has continued to grow, due largely to the skill and enthusiasm of the teacher Barbara Bowra. This has led to the recent decision to start another Yoga class

Both of these are works in progress but will be crucial to building the networks for potential funding and to give us the capacity to roll out existing and new programs. Carers/Partners Short Breaks Our first Carers/Partners Short Break of the year in Mandurah was very well received by our Carers/Partners who attended and we are looking forward to the second one being held in November. We are very grateful to Peggy Habib for helping our Members feel so comfortable and for enabling them to get the most out of their Break. A big thank you to Carers WA for their financial support of the Carers/Partners Short Breaks. PARKINSON’S WA ANNUAL REPORT

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YEAR IN PICTURES

THE YEAR IN PIC

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PARKINSON’S WA ANNUAL REPORT


YEAR IN PICTURES

CTURES

PARKINSON’S WA ANNUAL REPORT

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RESEARCH IN ACTION

RESEARCH IN AC How neuromodulation of the posterior subthalamic area affects tremor and upper limb function in Parkinson’s. In late 2012 Parkinson’s WA awarded $20,000 as a part-scholarship to University of Western Australia PhD. Student Luqman Aziz. This money came directly from the Estate of Mr John Upton.

Student background Luqman Aziz completed his honours degree (First class) at the University of Western Australia in 2010. His honours work investigated the impact of deep brain stimulation to the posterior subthalamic area on the walking gait of patients with

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Parkinson’s and essential tremor. Following the novel findings of the study, he was awarded a PhD scholarship and is now studying the effects of deep brain stimulation on upper limb functions in Parkinsonian patients under the supervision of Asst/Prof Siobhan Reid and Prof Christopher Lind.

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intermediate nucleus have been reported to be highly effective in treating the Parkinsonian symptoms. However, some studies have reported negative cognitive and emotional side-effects in patients following stimulation particularly to these sites. This has led to an alternative deep brain stimulation site, the posterior subthalamic area, to be considered for deep brain stimulation by some researchers.

Research background

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PARKINSON’S WA ANNUAL REPORT

In the past, deep brain stimulation targeted at the subthalamic nucleus globus pallidus interna, and ventral

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RESEARCH IN ACTION

CTION To date, quantitative studies in assessing the outcomes of stimulation to the areas of and around the posterior subthalamic area has on upper limb motor function and tremor is lacking. In addition, there have been no published quantitative reports examining the acute outcomes of deep brain stimulation on the three primary symptoms of Parkinson’s: tremor, rigidity and bradykinesia.

Through three-dimensional motion analysis, muscular activity studies, and muscular tone analysis, this study seeks to postulate the role(s) of the posterior subthalamic area in neuro-motor modulation and upper limb functions, and thus contribute to the

PARKINSON’S WA AND RESEARCH Parkinson’s WA actively encourages and supports research into the causes, treatments, and consequences of Parkinson’s. To do this researchers investigate causes, symptoms, and treatment options. Alongside the biomedical researchers, allied health professionals investigate issues related to living with Parkinson’s. Together, all the information gathered is used to help people with Parkinson’s and their families adapt to life with Parkinson’s.

The study The aim of this research is to investigate how acute deep brain stimulation of the posterior subthalamic area can affect these three main motor symptoms in Parkinson’s. This research investigating the upper limb functions may have significant implications for improving the execution of various daily activities such as writing, dressing, drinking, as such significantly impacting patient’s quality of life.

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understanding of cortical pathways in the brain with the aim of improving treatment for individuals with Parkinson’s. This research is a collaborative programme between the School of Sports Science, Exercise & Health, and the School of Surgery at UWA and Sir Charles Gairdner Hospital.

- Dr Natalie Gasson, Chair Research Committee

1

Luqman Aziz

2

Prof. Christopher Lind

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Upper Limb Anatomy

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Participant fully marked for motion analysis

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Deep Brain Stimulation

A huge thank you to the family of Mr John Upton for their wonderful support of this research project. This is a fantastic example of the benefits and possibilities of leaving a bequest to Parkinson’s WA. PARKINSON’S WA ANNUAL REPORT

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FINANCES

FINANCES STATEMENT BY MEMBERS OF THE COMMITTEE The committee has determined that the Association is not a reporting entity and that this special purpose financial report should be prepared in accordance with the accounting policies outlined in Note 1 to the financial statements.

In the opinion of the Committee the financial report: 1. Presents fairly the financial position of Parkinson’s Western Australia Inc. Inc as at 30 June 2013 and its performance for the year ended on that date. 2. At the date of this statement, there are reasonable grounds to believe that Parkinson’s Western Australia Inc. Inc will be able to pay its debts as and when they fall due. This statement is made in accordance with a resolution of the Committee and is signed for and on behalf of the committee by:

JOHN MCDONALD GEOFFREY PRIDE PRESIDENT TREASURER

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FINANCES

STATEMENT OF FINANCIAL PERFORMANCE Statement of Financial Performance for the year ended 30 June 2013 Notes

2013 $

2012 $

606,820 25,675 136,048 141,758 18,805 85,909 21,263 24,928 54,742 3

434,150 50,334 316,826 141,468 17,047 58,789 24,535 23,825 54,381 4

1,115,945

1,121,359

19,667 21,487 1,362 7,587 5,088 10,908 16,957 7,051 1,586 953 5,515 113 30,144 7,943 35,591 9,968 6,667 13,810 20,600 10,517 271,464 22,356 1,441 581,956 15,184 18,096 4,978

17,098 21,891 3,040 4,725 4,182 8,139 11,976 5,291 848 1,298 10,280 118 26,608 35,869 11,032 34,434 9,359 1,333 14,311 9,892 9,303 235,142 20,114 1,297 462,024 8,313 19,701 -

Total Expenditure

1,148,989

987,618

Net surplus/ (deficit) from operations Opening Retained Surplus

- 33,044 1,133,527

133,741 999,786

Closing Retained Surplus

1,100,483

1,133,527

REVENUE Service Contract Payments Grants and Sponsorships Fundraising - Gifts Fundraising - Contributions Sale of Goods Fees and Charges (Services) Raffles Member Subscriptions Other Income Rounding Total Income EXPENDITURE Parkinson’s Australia Secretariat Accounting, Auditing & Bank Charges Board Expenses Computer Insurances Stationary Postage Photocopying Membership Levies Sundry Expenses Advertising and Promotion Assets and equipment <$300 Fundraising Expenses Fundraising Officer Member Support Consumables Member Support Services Merchandise for Sale Closing Inventory - Decrease Rent and Phone Research Employee Support Salaries and Wages Superannuation Volunteer Costs Parkinson’s Nurse Specialist Service Total Programme Costs Membership Software Upgrade Depreciation on Assets Loss on Disposal of Assets

The above statement of financial performance should be read in conjunction with the accompanying notes. A copy of these notes can be requested by calling Parkinson’s WA on (08) 9346 7373. PARKINSON’S WA ANNUAL REPORT

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FINANCES

STATEMENT OF FINANCIAL POSITION Statement of Financial Position at 30 June 2013 Notes

2013 $

2012 $

1,223,776 6,342 8,330

1,197,167 13,010 12,241

1,238,448

1,222,418

67,235

74,174

67,235

74,174

1,305,683

1,296,592

69,470 106,971

51,478 84,521

176,441

135,999

28,759

27,066

28,759

27,066

205,200

163,065

1,100,483

1,133,527

1,100,483

1,133,527

CURRENT ASSETS Cash and Cash Equivalents Inventory Prepayments

2 3

Total Current Assets NON-CURRENT ASSETS Property, Plant and Equipment

4

Total Non-Current Assets TOTAL ASSETS CURRENT LIABILITIES Trade and Other Payables Provisions

5 6

Total Current Liabilities NON-CURRENT LIABILITIES Provisions

7

Total Non-Current Liabilities TOTAL LIABILITIES NET ASSETS EQUITY Retained Surplus TOTAL EQUITY

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1,100,483

The above statement of financial position should be read in conjunction with the accompanying notes. A copy of these notes can be requested by calling Parkinson’s WA on (08) 9346 7373.

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PARKINSON’S WA ANNUAL REPORT


L-R Jessie Bryant, Janet McLeod, Pauline England, Maureen Rowles

I was totally overwhelmed and unprepared for the feeling, it is not an award for one person but for the position as a whole, and the team - I don’t work alone.

Our Senior Parkinson’s Nurse Specialist Janet McLeod was recognised in the Queen’s Birthday Honours List 2012, and awarded the prestigious ‘Order of Australia Medal’ in recognition of her service to nursing, particularly in the speciality of Parkinson’s. Jessie Bryant, Pauline England and Maureen Rowles, of Morley Parkinson’s Support Group were behind the nomination, beginning the paperwork back in 2010. Parkinson’s WA is extremely proud of Janet, and welcomes the recognition given to the Parkinson’s Nurse Specialist role.

Janet (centre) with husband Lindsay (left) and Parkinson’s WA President John McDonald (right) PARKINSON’S WA ANNUAL REPORT

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SUPPORT SERVICES

SUPPORT SERVICES SEMINARS & EDUCATION The Middle Years 28 July 2012

Janet McLeod, Parkinson’s Nurse Specialist, spoke on the Symptom Changes and End of Dose Failure. Jenny Bishop – OT, Independent Living Centre spoke on the Services available, small aids and equipment and referrals to Home Services and ACAT Assessment. This seminar was aimed at people diagnosed within 7-14 years.

Newly Diagnosed 1 September 2012

Dr Soumya Ghosh, Clinical Associate Professor ANRI, spoke on Parkinson’s and treatment options. Janet McLeod, spoke on coming to terms with the diagnosis of Parkinson’s. This seminar was aimed at people diagnosed within the past five years.

Parkinson’s Research 6 November 2012

Dr Roger Barker, Cambridge Centre for Brain Repair, UK spoke on the apomorphine challenge test for dopaminergic responsiveness in Parkinson’s and related disorders. This test is now routinely used

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PARKINSON’S WA ANNUAL REPORT

in clinical neurological practice. Currently he combines basic research investigating cell therapies to treat basal ganglia related disorders with his clinically based work on defining the natural history and heterogeneity of Parkinson’s.

Parkinson’s: The Digestive System 17 November 2012

Janet McLeod spoke about Parkinson’s and the Digestive System; and Denise Stapleton, Moss Street Clinic (Fremantle) Dietician spoke about the benefits of good nutrition.

Parkinson’s: Non-Motor Symptoms 26 February 2013

Janet McLeod spoke about Apathy, Depression, Pain and other non motor aspects of Parkinson’s

Newly Diagnosed 11 April 2013

Janet McLeod, spoke on coming to terms with the diagnosis of Parkinson’s. This seminar was aimed at people diagnosed within the past five years.

Parkinson’s Plus Conditions 13 May 2013

Janet McLeod, spoke on PSP (Progressive Supranuclear Palsy), MSA (Multiple System Atrophy) and CBD (Corticobasal Degeneration).

The ‘M’s of Parkinson’s 22 June 2013

Janet McLeod, spoke on the ‘M’s’ of Parkinson’s eg. Medications, Mobility, Micrographia and many more.

All seminars are filmed professionally and the DVDs can be hired, by parkinson’s WA members or allied health professionals, from the Parkinson’s WA library at the Niche. A special thank you to Paul and Ruth Smith from Aleph Moving Images for their DVD production.


SUPPORT SERVICES

SPONSORS & DONORS

Parkinson’s WA is able to provide services due to the generous support of individuals, businesses and community groups. A special thank you to all our donors for their care and support throughout the year. Parkinson’s WA is particularly grateful to the following businesses and groups:

7th Day Advent. Op Shop

Fremantle/Melville Support Group

Parkinson’s ACT

Active Ageing Network

Hamersley Nursing Home

Adinfern Estate

Geraldton Parkinson’s Group

Regents Garden Four Seasons Booragoon

Albany Parkinson’s Support Group Aleph Moving Images Banksia Park Estate Retirement Village Barbara Bowra - Park Yoga BHP Billiton: Matched Giving Program Brian Dawson - Parkinsong Brudenell Sugiarto Huang Orthodontists

Support

Helvetica Bar Home Chef

Rotary Club of Booragoon

Hospira

St Ives Care Pty Ltd

Independent Retirees Fremantle/Melville

The Bethanie Group

Inner Wheel Club of Wann-Gara (Inc.) Kingsley Parkinson’s Support Group

Calibre Global

Lesmurdie/Kalamunda Parkinson’s Support Group

Carers WA

LIons Club of Ballajura Inc

City of Joondalup: Workplace Giving

Lions Club of Claremont Nedlands

City of Melville Social Club

Lions Club of Leeuwin

Collie Support Group

Mandurah Parkinson’s Support Group

Constructive Media

Riverton Bridge Pharmacy

CRS Pty Ltd

Medtronic Australia

Deutsche Bank AG Australia & New Zealand

Metro Bar & Bistro Morley Parkinson’s Support Group

Elderbloom Community Care Centres

Novartis Pharmaceuticals Australia Pty Ltd

The Classroom Bar The Marian & EH Flack TrustFoundation The McCusker Charitable Foundation The RSL (WA) Retirement & Aged Care Association Inc Thomas Perrot Residents Committee Tuohy Aged Care United Community Booragoon Uniting Church Homes Wembley Supa IGA Western Suburbs Parkinson’s Support Group

Parkinson’s WA appreciates all donations - large or small. We thanks those who have so generously donated funds in memory of loved ones, those who have chosen to leave a bequest to Parkinson’s WA, and those who wish to remain anonymous.

PARKINSON’S WA ANNUAL REPORT

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SUPPORT SERVICES

EDUCATIONAL RESOURCES

The following lists educational resources produced and distributed by Parkinson’s WA, by publication date:

DL Brochures Young Onset Parkinson’s January 2011

What is a Parkinson’s Support Group? March 2011

Parkinson’s Disease and Communication May 2011

Parkinson’s Nurse Specialist Service: Information for Health Professionals May 2011

Parkinson’s: The Condition and Services April 2012

Parkinson’s and Driving September 2012

Parkinson’s Nurse Specialist Service October 2012

Parkinson’s and Hospitalisation Guidelines October 2012

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PARKINSON’S WA ANNUAL REPORT

C5 Booklets

Manuals

Medications Used in the Treatment of Parkinson’s

Guidelines for Nursing Practice in Caring for People with Parkinson’s

Medications to be used with caution for people with Parkinson’s

Guidelines for Physiotherapy Practice in Caring for People with Parkinson’s

April 2013

8th edition – May 2013

2007

2007

Medications to be given with caution to people with Parkinson’s (For Health Professionals)

Young Onset Parkinson’s: Services, Strategies and Strengths

Information for Carers and Partners: Living with Parkinson’s

Eat Well, Stay Well: a nutrition handbook for people with Parkinson’s

4th edition – July 2011

2nd edition – July 2012

2009

2005


SUPPORT SERVICES

A4 INFORMATION SHEETS

All A4 information sheets can be downloaded from our website:

www.parkinsonswa.org.au/information

1.1

Description, Incidence and Theories of Causation

1.2

Parkinson’s Symptoms

1.3

Diagnosis of Parkinson’s

1.4

Medication Options

1.5

Surgery for Parkinson’s

1.6

Parkinson’s Plus Condition

1.7

MPTP & Drug-Induced Parkinson’s

2.1

Communication and Parkinson’s

2.2

Swallowing and Parkinson’s

2.3

Nutrition and Parkinson’s

2.4

Oral Health and Parkinson’s

2.5

Relationships and Parkinson’s

2.6

Vision and Parkinson’s

2.7

Sleep and Parkinson’s

2.8

Mobility and Parkinson’s

2.9

Impulse Control Disorder and Parkinson’s

2.10 Dementia and Parkinson’s 2.12 Employment and Parkinson’s 2.13 Employees with Parkinson’s 2.15 Pain and Parkinson’s 3.1

Glossary of Terms Relating to Parkinson’s PARKINSON’S WA ANNUAL REPORT

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Annual Report 2012-13