2016 ADAO Asbestos Awareness and Prevention Conference Program

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2016 ADAO Asbestos Awareness and Prevention Conference Agenda FRIDAY, April 8, 2016 12:15 - 3:30 PM

Private Family Washington, D.C. Trolley Tour & Lunch (Invitation Only)

6:30 - 8:30 PM

Private Speaker, Honoree, and Sponsor Dinner (Invitation Only)

SATURDAY, April 9, 2016 : ADAO Conference Opening Remarks 8:00 - 8:30 AM

Registration and Continental Breakfast Linda Reinstein, ADAO President/CEO, Herman

8:30 - 8:40 AM

Hamilton, Executive Assistant Arthur L. Frank, MD, PhD, Professor of Public Health and Chair Emeritus of the Dept. of Environmental and Occupational Health at the Drexel University School of Public Health

8:40 - 8:45 AM

Celeste Monforton, DrPH, MPH, Professorial Lecturer, Dept. of Environmental & 8:45 - 8:50 AM

Washington University

Session I - Progress and Challenges from the Front-Line (Moderator: Celeste Monforton, DrPH, MPH) 8:50 - 9:00 AM

Bersin, Contribution"

ter of Clarence Borel, "Clarence Borel: His

9:00 - 9:10 AM

Arthur L. Frank, MD, PhD, "Asbestos Absurdities: Continuing Use"

9:10 - 9:25 AM

Linda Reinstein, ADAO President/CEO, "Asbestos: The Perfect Storm"

9:25 - 9:30 AM

Paolo Monico, Filmmaker, "The Mother"

9:30 - 9:40 AM

Q&A

Legacy, and

Session II - Medical Advancements: Diagnosing and Treating Mesothelioma and Other Asbestos-Related Diseases (Moderator: Arthur L. Frank, MD, PhD) 9:40 - 9:50 AM

Heather Von St James, Mesothelioma Patient ADAO Midwestern Regional Director, "Mesothelioma: Embracing Hope and Action"

9:50 - 10:05 AM

Christine Oliver, MD, MPH, MS, FACPM, President of Health Initiatives, Inc.; Associate Professor of Clinical Medicine at Harvard Medical School; Associate Physician in the of Medicine at Massachusetts General Hospital, "Disease Prevention: Advancements and Challenges in Outreach and Surveillance"

10:05 - 10:20 AM

Keith A.

MD, Ph.D, Associate Professor and Director of the Photodynamic in the of Radiation at the University of Pennsylvania, "Diagnosing and Treating Asbestos-Related Diseases "

10:20 - 10:35 AM

Flores, MD and Chairman, of Thoracic Mt. Sinai Health System, "Surgical: Advancements and Challenges in Treating Mesothelioma"

10:35 - 10:5

Brad Black, MD, Medical Director and CEO for the Center for Asbestos and Related Disease (CARD); Tanis Hernandez, LCSW, Administrative Director for CARD, "CARD's Journey: Lessons Learned"

10:50 - 11:15 AM

Paul Mavis Nye (UK; via Skype), Lou Williams (Australia; via Skype), Mesothelioma Patients, “Keytruda: The Force Awakens�

11:15 - 11:20 AM

Andrew C. Todd, Ph.D. Professor, CoDirector, World Trade Center Health Program Data Center at Mount Sinai, "Insulators Union Asbestos-Related Diseases Efforts"

11:20 - 11:30 AM

Q&A Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


11:30 - 12:00 PM

Keynote Speaker: Paul Brodeur, Journalist and Author of Expendable Americans and Outrageous Misconduct: The Asbestos Industry on Trial, "The Asbestos Tragedy: Exposing the Truth"

12:00 - 12:10 PM

Speakers Group Picture

12:00 - 1:15 PM

Lunch

Session III - Prevention: What Is It? Where Is It? What Do I Do? (Moderator: Brent Kynoch, President of Kynoch Environmental Management; ADAO Prevention Advisory Board Co-Chair) 1:15 - 1:25 PM

Ann Samuelson, ADAO Western Director; Mesothelioma Warrior, "Prevention Remains the Only Cure"

1:25 - 1:40 PM

Laubenthal, Training Supervisor & Technical Chief, The Environmental Institute, "Prevention: Understanding the Asbestos Hazard Emergency Response Act (AHERA)"

1:40 - 1:55 PM 1:55 - 2:10 PM 2:10 - 2:25 PM

Rich, Industrial Hygienist and Environmental Technician Specializing in -related Work, "Asbestos: Recognizing Risks and Preventing Exposures" Safety Trainer, Author, and Consultant on NPR, BNA, Safety + Health Magazine, and Mother Jones, "Preventing Asbestos at the Workplace" Christine Winter, ADAO Prevention Advisory Board Co-Chair, United Kingdom, "Prevention: Beyond an Asbestos Ban"

2:25 - 2:40 PM

Brad Parker, National Assistant Secretary of the Construction Forestry Energy Union (CFMEU), Australia, "Preventing Asbestos Exposure in the Workplace and Beyond"

2:40 - 2:55 PM

Q&A

2:55 - 3:20 PM

Break

Session IV - Advocacy: Global Ban Asbestos Action (Moderator: Barry Castleman, ScD, Author of Asbestos: Medical and Legal Aspects) 3:20 - 3:30 PM

Marilyn Amento, Mesothelioma Warrior; ADAO Eastern Regional Director, "Ambler: The Forgotten Town"

3:30 - 3:45 PM

Eric Jonckheere, Asbestos Belgium Victims Association (ABEVA), Belgium, "Belgium: “Impact of Asbestos on Workers and Families"

3:45- 4:00 PM

Fernanda Giannasi, Associação Brasileira dos Expostos ao Amianto (ABREA), Brazil, "Brazil: Safety, Management, and Policy"

4:00 - 4:15 PM

Carmine Tiano, Director of Health Services at Ontario Building Canada, "Canada: Safety, Management, and Policy"

4:15 - 4:30 PM

Mazzeo, PhD Candidate at University of Italy, "Asbestos Activism in the 21st Century"

4:30 - 4:45 PM

Earl Dotter, Photojournalist; Author of Badges: A Memorial Tribute to Asbestos Workers and The Quiet Sickness, "Badges: A Memorial Tribute to Asbestos Workers”

4:45 - 5:00 PM

Q&A

5:00 PM

Program Concludes

SATURDAY, APRIL 9, 2016: Awards and Recognition Dinner : 6:30 – 9:00 PM Performance by Jordan Zevon, ADAO Spokesperson and Musician Honoree

Amento Family, Alan Reinstein Award

Honoree

Christine Winter, Alan Reinstein Award

Presenter

Linda and Emily Reinstein Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Honoree

Dr. Phillip Landrigan, Dr. Irving Selikoff Lifetime Achievement Award

Presenter

Dr. Raja Flores

Honoree

Dr. Christine Oliver, Dr. Irving Selikoff Lifetime Achievement Award

Presenter

Dr. Arthur L. Frank

Honoree

Tribute of Hope Award

Presenter

Dr. Christine Oliver

Honoree

Earl Dotter, Tribute of Inspiration Award

Presenter

Dr. Celeste Monforton

Honoree

Asbestos Safety and Eradication Agency, Tribute of Unity Award

Presenter

Dr. Barry Castleman

Honoree

Clarence Borel, posthumously, Warren Zevon “Keep Me in Your Heart” Tribute Award

Presenter

Musician

Honoree

Paul Brodeur, Keynote Speaker

Presenter

Linda Reinstein

Honoree

Dr. Eudice Goldberg, Keynote Speaker

Presenter

Dr. Brad Black

2016 INDIVIDUAL DONORS RECOGNITION Honoree

Lisa Crandall, Diamond Donor

Honoree

Family, Emerald Donor

Honoree

Mesothelioma Heroes Foundation, Emerald Donor

Honoree Honoree Honoree

Michele Mikulic, Sapphire Donor

2016 SPONSORSHIP RECOGNITION Platinum Sponsor

Motley Rice LLC, Accepting: Anne Kearse

Platinum Sponsor

Delaware Insulation Asbestos Disease Trust, Accepting: Jim Moran

Platinum Sponsor

Simmons Hanly Conroy LLC, Accepting: Todd Adamitis

Gold Sponsor

Simon Greenstone Panatier Bartlett, P.C.

Silver Sponsor

Early, Lucarelli, Sweeney & Meisenkothen, Accepting: Annette Charlevois

SUNDAY, APRIL 10, 2016: Unity and Remembrance Brunch : 9:30 – 11:30 AM (Moderator: Ellen Costa, 2016 ADAO Conference Coordinator, Strategy Consultant at Wells Fargo) Opening Remarks

Linda Reinstein, ADAO CEO/President Keynote Speaker: Dr. Eudice Goldberg, Co-founder of the Canadian Mesothelioma Foundation (CMF), Pediatrician in the Division of Adolescent Medicine at the Hospital for Sick Children in Toronto, Canada Emily Bankhead, Mesothelioma Widow and 2014 Honoree, “My Healing Journey” Candle Lighting, Ellen Tunkelrott, ADAO Board Member

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


$'$2 &RQIHUHQFH %LRJUDSKLHV +RQRUHHV 6SHDNHUV DQG $'$2 /HDGHUVKLS Marilyn Amento (SLT Director, Eastern Region) has been involved with ADAO in various capacities since before the first Asbestos Awareness Conference in Washington, DC in 2005. Marilyn is the widow of Joe Amento, Jr. who died of mesothelioma at the age of 53, only 6 months after his first symptom. Joe was exposed to asbestos approximately 40 years prior while visiting his father at one of the several asbestos plants, and playing on asbestos scrap piles in the small borough of Ambler, a Philadelphia suburb. Marilyn has a Master’s Degree in Human Services Management from The Heller School of Brandeis University, and is the proud Mom of two college students, Joe and Julie. She channels her grief and anger with the asbestos industry by working with ADAO and educating the public about asbestos through her strong Facebook presence. The Asbestos Safety and Eradication Agency (ASEA) was established on 1 July 2013 in Australia to provide a national focus on asbestos issues which goes beyond workplace safety to encompass environmental and public health concerns. The agency aims to ensure asbestos issues receive the attention and focus needed to drive change across all levels of government. The agency has broad functions including: encouraging, coordinating, monitoring and reporting on the implementation of Australia’s National Strategic Plan on Asbestos Awareness and Management 2014-18 (NSP); liaising with Commonwealth, State, Territory and local and other governments, agencies or bodies about the implementation, review or amendment of NSP; as well as commissioning, monitoring and promoting research about asbestos safety. Emily Bankhead is the widow of Gordon Bankhead who died of mesothelioma at the age of 68, 21 months after he was diagnosed. Gordon was exposed to asbestos approximately 40 years earlier while helping his father who was a janitor and clean homes after the contractors finished, and working as a parts manager in the container shipping business in Oakland, California. Emily worked in the forklift industry for 30 years where she met Gordon. Gordon and Emily were married in 1993. They never had their own children. Gordon has 2 daughters Tammy and Debbie who have blessed them with 5 grandchildren the youngest he never met she was born a month and a half after Gordon passed. Bridget Bersin is one of 19 grandchildren of the late Clarence Borel. His trial against the manufacturers of asbestos products was the first test case applying the strict product liability law. More importantly, it revealed the danger and destruction of asbestos as lethal to humans. It is because of him that we now have safeguards and protection in the workplace and elsewhere. Bridget resides in Texas.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


$'$2 &RQIHUHQFH %LRJUDSKLHV +RQRUHHV 6SHDNHUV DQG $'$2 /HDGHUVKLS Brad Black, PhD, MD has been the Medical Director and CEO for the Center for Asbestos and Related Disease in Libby, Montana since 2000. He has been a physician in the Libby medical community since 1977 and became the Lincoln County Health Officer in 1984. Beginning in 1999, he worked closely with Dr. Alan Whitehouse, a Spokane, WA pulmonologist, for 9 years. Since 2000, Dr. Black has had the opportunity to care for thousands of patients and this longitudinal observation of progressive pleural fibrosis has led to a clear characterization of Libby amphibole asbestos disease. CARD continues to provide asbestos health screening and care to a population with significant Libby Amphibole exposure and related diseases. In 2008 he presented at the National Institute of Health/National Cancer Institute about the progressive pleural fibrosis and mesothelioma identified in those exposed to Libby amphibole asbestos. He was instrumental in initiating research on Libby amphibole asbestos health effects. His work has expanded into research leading to an association with pulmonologists and occupational medicine specialists from multiple academic centers around the U.S. In 2010, Dr. Black became an adjunct professor at Mount Sinai School of Medicine in New York City. He has collaborated on a number of professional journal publications, and most recently he participated in a National Institute of Environmental Health Sciences working group that developed a publication on the nonneoplastic, pleural endpoints. Clarence Borel’s landmark lawsuit in 1969 marked the turning point of future asbestos litigation when an amount of approximately $80,000 was awarded in favor of Borel. Traditionally, employees had to depend on worker’s compensation claims against their employers in cases of asbestos related injuries, but the decision in Borel’s case enabled workers who were injured by asbestos to file product liability lawsuits against their employers as well as the original manufacturers of the asbestos product. This decision thus “expanded the scope of liability from employers to suppliers and installers of asbestos building material. Consequently, Borel changed the face of asbestos litigation as legal battles against manufacturers on behalf of asbestos victims began to spread to other parts of the United States. Paul Brodeur was a staff writer at The New Yorker for nearly 40 years. During that time, he wrote the first major account of the health hazards associated with exposure to asbestos, as well as many other articles on the subject. This work won the National Magazine Award, a Sidney Hillman Foundation Award, and awards from the American Association of Trial Lawyers and the American Bar Association. Brodeur has also received recognition for writing pioneering articles about chemical depletion of the ozone layer, and the health hazards of exposure to microwave radiation and the electromagnetic fields given off by power lines. His short stories have appeared in many magazines, and he has published more than a dozen books, including several novels. Among them is The Stunt Man, which was made into a film starring Peter O’Toole. His most recent work is an historical novel titled, The Scout’s Account: In the Shadow of the Mayflower, which tells the story of 17th Century New England from the point of view of a Native American.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


$'$2 &RQIHUHQFH %LRJUDSKLHV +RQRUHHV 6SHDNHUV DQG $'$2 /HDGHUVKLS Jill Cagle is the surviving spouse of Meso Warrior Robbie Cagle, who lost his 6 year battle with Peritoneal Mesothelioma on 9-11-11 at the age of 46. She is a mother and now grandmother of 3. She is a Christian and her faith in God truly sustains her. She is the lead singer in the Band Backstreet and plays the Fiddle. She makes primitive crafts and candles and she loves to ride her Harley and feel the wind in her hair. She has been associated with ADAO since 2007 and has now started an annual Motorcycle Ride, "Ridin the Wind with Rob" which includes a 110 mile ride, dinner, silent auction, raffles and t-shirt sales to raise funds for awareness and ultimately a CURE of Mesothelioma. Jill and Rob marched on Capitol Hill in 2010 to help get Illinois to sign the National Asbestos Awareness Day Bill and also met with the DOD. She is committed to doing whatever it takes to get this killer 100 % banned. She is truly honored and proud to be a part of this organization. Barry Castleman, ScD is an Environmental Consultant trained in chemical and environmental engineering. He holds a Doctor of Science degree from the Johns Hopkins School of Public Health. He has been a consultant to numerous agencies of the US government and other governments, international bodies, and environmental groups dealing with a wide range of public health issues. He has testified as an expert in civil litigation in the US on the history of asbestos as a public health problem and the reasons for failure to properly control asbestos hazards. Dr. Castleman has spent the past 40 years working on asbestos as a public health problem. Keith A. Cengel, MD, PhD, is an Associate Professor and Director of the Photodynamic Therapy Program in the Department of Radiation Oncology at the University of Pennsylvania. He is a board certified radiation oncologist specializing in diagnosis and treatment of patients with malignant pleural mesothelioma. His clinical trial and translational research laboratory efforts are focused on improving outcomes for patients treated with ionizing radiation therapy or photodynamic therapy. Kim Cecchini has been a volunteer with ADAO since its inception in 2004, having lost her beloved stepfather, William Shields, to mesothelioma. As a passionate communications professional, she lends her expertise to help ADAO in its efforts to publicize important information about asbestos disease prevention and ban advocacy efforts. She currently serves as Visionary Integration Professionals' (VIP’s) Vice President of Marketing. Prior to that, she spent more than two decades providing strategic communications to highgrowth companies, and has helped to generate five successful acquisitions by Fortune 500 companies. Her vast industry experience encompasses federal contracting, emerging technology, healthcare, policy communications, and a variety of commercial and trade association verticals. Kim is a recognized industry writer, speaker, and thoughtful leader.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


$'$2 &RQIHUHQFH %LRJUDSKLHV +RQRUHHV 6SHDNHUV DQG $'$2 /HDGHUVKLS Ellen Costa has been a volunteer with ADAO since 2012 and is honored to be of service to this very special organization; its mission, founders and supporters. Professionally, she has been in the financial services industry for over 25 years and has served firms in marketing, communications, product management and strategic planning. Her current position at Wells Fargo Home Lending is as a strategy consultant in the financial reform regulatory environment. Inspired by Linda Reinstein’s commitment and passion in making change, influencing political policy and advocating for practical issues on a global level, lead her to involvement with the organization. The awareness, family support and leadership ADAO provides in creating the change needed in this world is truly powerful. Most importantly, she believes in Linda Reinstein and is truly privileged to serve the mission of ADAO. Earl Dotter, began photographing coal miners in 1969, then the most dangerous USA. After 30 years of documentation he created the exhibit and book, THE

QUIET SICKNESS: A Photographic Chronicle of Hazardous Work in America. He has been a Visiting Scholar at the Harvard School of Public Health

Alicia Patterson Foundation Fellowship to document commercial fishing. It had become rescue recovery effort at Ground Zero. For that exhibit work he received the APHA’s, Alice Hamilton Award. Currently Dotter is following hazardous jobs new immigrants perform in the USA. Raja Flores, MD, is the Chairman of Thoracic Surgery, Ames Professor of Cardiothoracic Surgery, at Mount Sinai Medical Center in New York City. Dr. Flores helped pioneer the use of intraoperative chemotherapy for mesothelioma. He led a multi-center trial designed to improve patient outcomes. In addition, he changed the surgical management of pleural mesothelioma cancer with a landmark study comparing extrapleural pneumonectomy and pleurectomy/decortication. With over 100 related publications to date, his energies and commitment to the plight of mesothelioma patients remains paramount. Arthur L. Frank, PhD, MD is a physician board certified in both internal medicine and occupational medicine and currently serves as Professor of Public Health and Chair of the Department of Environmental and Occupational Health at the Drexel University School of Public Health in Philadelphia. He is also a Professor of Medicine (Pulmonary) at the Drexel College of Medicine. He also holds a position at Drexel as Professor of Civil, Architectural and Environmental Engineering. A life-long academic, Dr. Frank has previously taught at Mount Sinai, the University of Kentucky and in the University of Texas System. He has served many governmental agencies in the US and has carried out research and has been a governmental advisor internationally. Trained in both occupational medicine and internal medicine, Dr. Frank has been interested in the health hazards of asbestos for more than 35 years. He

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


$'$2 &RQIHUHQFH %LRJUDSKLHV +RQRUHHV 6SHDNHUV DQG $'$2 /HDGHUVKLS has published a great deal of work on the hazards of asbestos, and clinically cared for asbestos effected patients. He has lectured internationally about the problems of asbestos, and worked in many settings looking at the diseases caused by this material. His research interests have been in the areas of occupational cancers and occupational lung diseases, as well as agricultural safety and health. For thirty-seven years he held a commission in the U S Public Health Service (active and inactive) and served on active duty both at the NIH and at NIOSH. Arthur is the ADAO Science Advisory Board Co-Chair. Fernanda Giannasi is a Civil and Safety Engineer and ex-Labor Inspector for the Ministry of Labor and Employment for 30 years, currently retired and acting as an expert advisor for the Labour Prosecutors (Federal Labour Public Ministry) as well the asbestos victims’ solicitors. She is the coordinator of the Virtual Citizen Ban Asbestos Network for Latin America, founder of the Brazilian Association of People Exposed to Asbestos (ABREA) and Fellow of the Collegium Ramazzini. She serves as an expert witness in judicial cases related to asbestos, nuclear and other toxic chemicals as Mercury, POP´s (Persistent Organic Pollutants). She also led thousands of workers who have filed lawsuits against the asbestos industry. In charge of a Federal Labor Inspector, she staunchly defended the public interest on workers’ safety and health and was pressured by the asbestos lobby and endured all kind of pressures, harassments including death threats, offensive campaigns and criminal charges by her detractors. Despite of these threats, she has been awarded in Brazil and internationally in Canada (Ray Sentes Award), USA by the American Public Health Association (APHA) and the International Society for Environmental Epidemiology (ISEE), and Japan by the Tajiri Muneaki Memorial Fund. She is internationally well known and highly respected for her proficient and perseverant campaigning to save lives from asbestos. Fernanda Giannasi is the personification of the fight against asbestos in Brazil. Not for nothing is she called ‘The Brockovich of Brazil’. Dr. Eudice Goldberg is the co-founder and vice president of the Canadian Mesothelioma Foundation (CMF). She and her sons developed a charitable foundation to help patients and families affected by mesothelioma in Canada. She did this initially to commemorate her partner, Arthur Konviser, who lost his battle against peritoneal the CMF. In addition to her work with the CMF, Dr. Goldberg has Division of Adolescent Medicine in the Department of Pediatrics at the Hospital for Sick Children and University of subspecialty at the Royal College of Physicians and Surgeons of Canada and is currently immediate past chair.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


$'$2 &RQIHUHQFH %LRJUDSKLHV +RQRUHHV 6SHDNHUV DQG $'$2 /HDGHUVKLS Herman Hamilton is the Executive Assistant with ADAO. After becoming familiar with the medical and legal aspects of Asbestos through his neighbor and longtime friend of 30 years, Dr. Barry Castleman, Herman joined ADAO in January of 2005 as the Veterans Representative. Presently, Herman assists Linda in the day-to-day operations of ADAO and amongst his many duties, he has been a liaison for other like-minded asbestos groups. He also works with Congressional staffers to set up meetings regarding ongoing legislation. His proudest accomplishment has been his work to defeat the Asbestos Trust Fund. The goal he would like to achieve the most is the passage of legislation for a total ban of Asbestos. Outside of ADAO, Herman has served on the Board of Directors of Legal Aid Bureau of Maryland for the past 13 years and counting. Tanis Hernandez, MSW, LCSW is the Administrative Director at the Center for Asbestos Related Disease in Libby Montana since 2002. She is a licensed clinical social worker who has extensive experience in assisting and counseling individuals, families and communities regarding chronic health and mental health issues. In 2000 the Libby community realized that a community-wide asbestos exposure had occurred resulting in a declaration of an environmental public health emergency in 2009. She has been one of the primary individuals involved in addressing the biological, psychological and social needs of the affected population. Today she is responsible for clinic oversight, program development, grant management, political advocacy, and coordination of behavioral research activities. Eric Jonckheere, is President of the Asbestos Belgium Victims Association (ABEVA), an asbestos victim group from Belgium. His father Pierre worked at the Belgian multinational Eternit. In the 60's it was a honor to be employed at the factory. Jacques Jonckheere, his brother, was hired in 1948 to create Eternit Congo in the Belgian colony. Both were dedicated to their work. Pierre lost his life due to mesothelioma in 1987 not knowing his wife Francoise and his five boys had also been heavily contaminated with asbestos. Eric’s mother in 2000 and two of his brothers (Pierre-Paul and StĂŠphane) lost also their lives in 2003 and 2010 at the age of 43. Francoise refused the financial settlement Eternit tried to offer. 40 000 â‚Ź would force her to remain quiet, but she had to speak out and denounce what a powerful lobby had done in Belgium and around the world. As an airline pilot, I try to pursue Francoise's quest for justice. Brent Kynoch is the Managing Director of the Environmental Information Association, headquartered just outside of Washington, DC in Chevy Chase, MD. He has been the Managing Director of the Association since 1996, but previously had served EIA in other volunteer roles on the Board of Directors as an officer, and ultimately as the President of EIA in 1988 and 1989. EIA has spent over 30 years at the forefront in providing its members with the information needed to remain knowledgeable, responsible and competitive in the environmental health and safety industry. When Mr. Kynoch changes his hat to his “paying job,â€? he is the President of Kynoch Environmental Management,

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


$'$2 &RQIHUHQFH %LRJUDSKLHV +RQRUHHV 6SHDNHUV DQG $'$2 /HDGHUVKLS Inc., (KEM) an environmental engineering and industrial hygiene firm also headquartered in Chevy Chase, MD. KEM provides innovative environmental solutions to general contractors, owners, property managers and the commercial real estate community to address concerns associated with asbestos, lead, indoor air quality, mold, PCBs, mercury, LEED compliance and environmental management systems. Mr. Kynoch began his career in the environmental business in 1984, when he founded his first company, AAS Environmental, which was sold in 1999. Mr. Kynoch is a graduate of Vanderbilt University, where he received a degree in mechanical engineering. He is called upon frequently as a speaker, as a writer and as an expert regarding environmental contaminants. He has testified before both the US House of Representatives and the US Senate regarding asbestos, and has written numerous articles on asbestos management and control. Doug Larkin is the Co-Founder of Asbestos Disease Awareness Organization (ADAO) – which works to help raise awareness about asbestos related diseases, while serving as a global community for asbestos victims and their families. Doug holds a B.A. in political science from Muskingum University, New Concord, Ohio. Doug is the Director of Communications for the Paralyzed Veterans of America (PVA), a congressionally chartered veteran service organization committed to helping all veterans secure rehabilitation, benefits, accessibility and a career. Previously, Doug was the President & CEO of Larkin Communications, a strategic communications and public affairs firm based in Washington, DC. He has worked on numerous successful legislative campaigns on behalf of large technology companies and national trade associations. In addition, he is considered an expert in corporate communications, brand identity, as well as message development and dissemination. Doug has also worked as the press secretary and the communication director for Congressman Kevin Brady (R-08-TX). Rep. Brady is the Republican Deputy Whip and a senior member of the House Ways & Means Committee. “Congress and the media respond to compelling stories. It’s through your stories and donations to ADAO, that enables us to advocate a strong message for present and future victims of asbestos related disease.� Doug has worked tirelessly behind the scenes garnering the attention of the media and advocating for the rights of asbestos victims and their families. Doug dedicates his service to William D. Shields, a family member who was exposed to asbestos, and died from Mesothelioma. Philip J. Landrigan, M.D., M.Sc., is a pediatrician and epidemiologist. He has been a member of the faculty of Mount Sinai School of Medicine since 1985 and served as Chair of the Department of Preventive Medicine since from 1995 to 2015. He was named Dean for Global Health in 2010. He served for 15 years as an Epidemic Intelligence Service Officer and medical epidemiologist at the Centers for Disease Control and Prevention (CDC) and the National Institute for Occupational Safety and Health (NIOSH). In 1987, Dr. Landrigan was elected a member of the National Academy of Medicine (formerly the Institutes of Medicine). He is the President of Collegium Ramazzini. He served as Editor-in-Chief of the American Journal of Industrial Medicine and Editor of Environmental Research. He has published more than 500 scientific papers and 5 books. Dr. Landrigan is known for his many decades of work in protecting children against environmental threats to health. His research combines the tools of epidemiology with biological markers derived from clinical and laboratory medicine.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


$'$2 &RQIHUHQFH %LRJUDSKLHV +RQRUHHV 6SHDNHUV DQG $'$2 /HDGHUVKLS Tom Laubenthal (US Training & Regulations) is the Training Supervisor & Technical Chief for The Environmental Institute in Marietta, GA. He has more than 31 years of industry service and is considered a nationally recognized expert within the asbestos and lead-based paint control industries. He has worked as a Technical Expert for the NIST/NVLAP PLM laboratory accreditation program since 1988; held a variety of leadership roles including as a past National President of the Environmental Information Association; served on a variety of national-level professional association committees; and recently managed the complete revision of the EPA’s 1985 document “Guidance for Controlling Asbestos-Containing Materials in Buildingsâ€? known as the “EPA Purple Book.â€? He has served on EPA and NVLAP regulatory review panels, has published extensively in print and emedia, and is regularly invited to speak at technical meetings on topics of asbestos detection and control. He received his B.S. in Geology from Georgia State University. Richard Lemen, PhD is a former Assistant Surgeon General of the United States and also served as the Acting Director and the Deputy Director of the National Institute for Occupational Safety and Health before his retirement. He has been a practicing epidemiologist for more than forty years, and has taught graduate level courses on environmental and occupational health issues, including asbestos, at the Rollins School of Public Health at Emory University. He has also testified on behalf of asbestos victims; Dr. Lemen is a worldrenowned author, speaker, and lecturer on this topic. Agata Mazzeo is a PhD Candidate in Anthropology at the University of Bologna, Italy. During her doctoral career she spent a period of study (ten months) at the Faculty of Public Health of the University of SĂŁo Paulo (Brazil). She studied at the University of Bari (Bachelor in Literature), University of Bologna (Master’s Degree in Cultural Anthropology and Ethnology), and University of Amsterdam (MSc in Medical Anthropology). Her PhD project is based on an in-depth ethnographic fieldwork concerning the anti-asbestos activism organized by subjects affected by the private and social suffering related to asbestos manufacturing in Osasco (SĂŁo Paulo). Agata’s current research interests are rooted on previous anthropological investigations of two Italian urban contexts contaminated by asbestos pollution, Bari (her hometown) and Casale Monferrato. Barbara Minty McQueen is the widow of American film star Steve McQueen, and is a former model and photographer. She is also the author of Steve McQueen: The Last Mile, which documents the three-and-a-half year relationship between the two and includes candid photographs from 1977 to 1980. McQueen has hosted several art exhibits of her work with shows in London, Tokyo, San Francisco, Nashville, Phoenix and Idaho, where she resides.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


$'$2 &RQIHUHQFH %LRJUDSKLHV +RQRUHHV 6SHDNHUV DQG $'$2 /HDGHUVKLS Celeste Monforton, DrPH, MPH is a professorial lecturer in the Department of Environmental and Occupational Health at the Milken Institute School of Public Health at George Washington University. Her research includes assessment of worker health and safety laws and policies, and their effectiveness in protecting workers from illnesses, disability and death. She has published articles on strategies used by economic interests, including the asbestos industry, to manipulate scientific evidence to create uncertainty about health risks in order to delay protective regulatory action and compensation. Prior to her academic appointment, Dr. Monforton was a federal employee at the U.S. Department of Labor’s Occupational Safety and Health Administration (OSHA, 1991-1995) and Mine Safety and Health Administration (MSHA, 1996-2001). Dr. Monforton served on the special panels appointed by the West Virginia Governor to investigate the January 2006 Sago coal mine disaster that took the lives of 12 workers, and the April 2010 disaster at Massey Energy's Upper Big Branch mine that killed 29 workers. Dr. Monforton is an active member of the American Public Health Association, and serves in a leadership position with the organization’s Occupational Health and Safety Section. Paolo Monico is an Italian-American filmmaker based in New York. He is a member of the Directors Guild of America and in the past 20 years, he has been a character animator, a cartoonist, a storyboard artist, an assistant production designer, an assistant director, a director and a father. He has directed a TV movie and more than 150 commercials for clients like Coca-Cola, MTV, Honda, Playstation, Procter & Gamble, Volkswagen, Vodafone and many others. Some of his ads have been featured on Shots Magazine or shortlisted at the Cannes Advertising Film Festival. In 2015, he wrote, directed and produced his first short film, THE MOTHER, starring Mary Testa, Boris McGiver, Michele Hicks and Sylvia Kauders. The film is a love-letter to his father who passed away in 2002 from mesothelioma. John Newquist (US Occupational Safety & Health) is an independent safety trainer, author, and consultant. He has been interviewed for his safety expertise and OSHA insight by NPR, BNA, Safety + Health Magazine, Mother Jones, and several more. He works with numerous companies to address their OSHA and safety compliance needs. He has a BS in Fire Protection and Safety Engineering from the Illinois Institute of Technology and a Masters of Science in Industrial Management from Northern Illinois University. He is a Certified Safety Professional. He has taught hundreds of safety seminars across the country including the National VPPPA, Construction Safety Conference, American Society of Safety Engineers, National Fire Protection Association, and numerous Building Trade Councils. He worked for OSHA from 1983-2012 and was also the Area Director of the Peoria Area Office. He currently teaches safety classes at the Construction Safety Council.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


$'$2 &RQIHUHQFH %LRJUDSKLHV +RQRUHHV 6SHDNHUV DQG $'$2 /HDGHUVKLS Mavis Nye of Whitestable, United Kingdom was diagnosed with mesothelioma in 2009. She turned her battle with mesothelioma into something positive, and decided to raise awareness and educate people about mesothelioma through speaking at many different conferences, in the British Parliament, as well through local and national newspapers, radio, and television. Additionally she has published two books, Meso Warrior, and Years as a Meso Warrior. She also offers a support network to other mesothelioma sufferers and their families, either by internet, telephone or personal visits, through the group UK Meso Warriors. She and her husband Ray both have a strong social media presence and both have blogs discussing life with mesothelioma, from the perspective of the sufferer and the caregiver. Mavis has extensively researched the incurable disease and knows of every medical trial and medication associated with mesothelioma and asbestos. She is currently on a new drug trial which is showing promising signs of buying extra time with her life. Her trial of MK3475 has brought her complete shrinkage through turning on her immune system and her stem cells have locked into the cancer cells and turned them off. Mavis received the British Citizen Award for Service to Healthcare at the House of Lords nominated by the Meso Warriors UK. Christine Oliver, MD, MPH, MS, FACPM is President of Occupational Health Initiatives, Inc. She is an Associate Clinical Professor of Medicine at Harvard Medical School and an Associate Physician in the Department of Medicine (Pulmonary and Critical Care Division) at the Massachusetts General Hospital in Boston. Board certified in internal medicine and in preventive (occupational) medicine, Dr. Oliver’s primary specialty is Occupational and Environmental Medicine, with an emphasis on occupational lung disease. She is the Co—Director of Occupational and Environmental Medicine at the Massachusetts General Hospital. There she evaluates and cares for patients with a variety of occupational and environmental diseases, including asbestos-related diseases, occupational asthma, and interstitial lung disease associated with exposure to beryllium and silica, and building-associated illness. Dr. Oliver is a Fellow of the Collegium Ramazzini and has done research and published in the area of occupational lung disease, with a focus on asbestos-related disease. She has lectured frequently on this topic. Dr. Oliver is responsible for medical surveillance of a group of public school custodians employed by the City of Boston and exposed to asbestos during the course of that work. She consults on medical-legal issues related to asbestos and other workplace exposures. She was an an active participant in the implementation of medical aspects of the 1991 Worker’s Compensation Reform Act signed into law in Massachusetts. Emily Reinstein is the daughter of ADAO Co-Founder, Linda Reinstein, and a recent International Relations graduate from the University of Southern California. Since the age of 10, Emily has worked with her mother and other volunteers to expand ADAO. After helping to build ADAO’s social media network through Facebook and other platforms, as well as co-founding the Emerging Leaders Program, she has seen the importance of international cooperation and the involvement of the younger generation as we move forward.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


$'$2 &RQIHUHQFH %LRJUDSKLHV +RQRUHHV 6SHDNHUV DQG $'$2 /HDGHUVKLS Brad Parker is currently the National Assistant Secretary of the Construction Forestry Mining Energy Union (CFMEU) – Construction & General Division – Australia. His responsibilities at the CFMEU include National Work Health & Safety as well as National Vocational Education & Training related matters. Brad’s other responsibilities include governance and compliance. He is also a member of the CFMEU National Executive. Brad is responsible for Asbestos related issues nationally and globally for the CFMEU and is a current member of the Asbestos Safety Eradication Agency – Building, Construction & Demolition Sectors Committee. Brad is also a current Director of the Australian Construction & Property Services Industry Skills Council (CPSISC), Director of Manufacturing Skills Australia (MSA) and an alternate Director of the Australian Construction Industry Redundancy Trust (ACIRT). Linda Reinstein is the President/CEO and Co-Founder of Asbestos Disease Awareness Organization (ADAO). Reinstein became an activist when her husband, Alan, was diagnosed with mesothelioma in 2003. She co-founded the Asbestos Disease Awareness Organization in 2004, and now serves as President and CEO. Reinstein has been a strong political voice for justice in every major asbestos-related issue. Reinstein, a highly sought-after international speaker, has frequently served as a Congressional witness and presented at the Department of Labor (OSHA), British House of Commons, United Nations Congress, American Public Health Association, and to other audiences around the world. Recognized as an expert with more than 35 years of nonprofit experience in building and sustaining grassroots organizations, Reinstein specializes in developing, implementing, and leveraging integrated social media campaigns. Recently, Reinstein was asked to create social media educational materials and facilitate a workshop in Asia. Focused on national and international occupational and environmental disease prevention, Reinstein’s proficiency in the powerful advocacy space of online media has greatly increased the effectiveness of ADAO’s core mission of education, advocacy, and community support actions. She has won many prestigious awards including the Global Impact Award (2013), from the Independent Asbestos Training Providers; Bruce Vento Hope Builder Award (2011), from the Mesothelioma Applied Research Foundation; the highest level of the Presidential Volunteer Service Award for her 4,000 hours of volunteerism during her lifetime (2010); and the Heart and Soul Award in from the Manhattan Beach Women in Business Association (2005). Laurie Rice was born and raised in Los Angeles where she received her B.A. in Art History from UCLA and a M.A. in special education from CSUN. She taught deaf and hard of hearing students for five years before attending Loyola Law School. A former Deputy District Attorney, Laurie has dedicated the last 22 years to various teaching positions, volunteering in the community and pro bono legal work.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


$'$2 &RQIHUHQFH %LRJUDSKLHV +RQRUHHV 6SHDNHUV DQG $'$2 /HDGHUVKLS Tony Rich has literally served “in the trenches� as an industrial hygienist and environmental technician in the consulting field for the past 20 years, specializing in asbestos-related work, including: inspection surveys, abatement monitoring/sample analyses, project management, regulatory compliance, and worker training. He has also received microscopy training from McCrone Research Institute for identification of bulk asbestos via polarized-light microscopy (PLM). Through the course of his occupation and personal endeavor, Tony has developed an extensive and compelling collection of asbestos-related photographs, product materials, artifacts, historical books, industry documents, film archives, and other related media which have been utilized in a multitude of applications for various organizations worldwide, including, but not limited to: product and material research, asbestos awareness education blogs, informational presentations, corporate and governmental training programs, regulatory guidance documents, science and trade publications, university textbooks, museum exhibits, and even as legal evidence. Ann Samuelson (SLT Coordinator, Western Region) is from Seaside, OR. Since her father, Stan Grimberg, lost his battle with mesothelioma 32 years ago, ADAO has given Ann an opportunity to volunteer, work with others, and make a difference. She has served as a County Commissioner and is a Director on the NW Regional Education Service District Board and a licensed Real Estate Broker in the state of Oregon. She holds steadfast in the hope that elected officials will listen and stop this man-made asbestos disaster. Ann advocates to ban asbestos in the USA and worldwide and to compensate asbestos victims, and is proud to be a part of the global growth ADAO has developed through social media, advocacy, and our partners around the world. The Collegium Ramazzini is an independent, international academy founded in 1982 by Irving J. Selikoff, Cesare Maltoni and other eminent scientists. It’s comprised of 180 internationally renowned experts in the fields of occupational and environmental health. The mission of the Collegium Ramazzini is to advance the study of occupational and environmental health issues and to be a bridge between the world of scientific discovery and the social and political centers which must act on the discoveries of science to protect public health. By holding conferences, symposia and training courses, publishing statements and research papers and publicizing its views, the Collegium Ramazzini seeks to translate to legislators, regulators and other decision makers the policy implications of scientific findings. Carmine Tiano has a MA from York University, a Diploma in Regulatory Law and is a graduate of McMaster University's Occupational Health program. He is currently employed with the Ontario Building Trades, which is an umbrella organization representing 13 international construction unions with 122 locals in Ontario covering 150,000 construction workers

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


$'$2 &RQIHUHQFH %LRJUDSKLHV +RQRUHHV 6SHDNHUV DQG $'$2 /HDGHUVKLS Ellen Tunkelrott, Member of the ADAO Board of Directors, is a Senior Contracts Administrator, MBA, CFCM for a small aerospace and defense company in Los Angeles. She resides in Redondo Beach, California. She became friends with Linda and Alan Reinstein through local community volunteer activity. Linda and Ellen collaboratively brainstormed the virtual non-profit site www.asbestosdiseaseawareness.org, and Ellen developed the original site based on the concepts and direction from those sessions. She has a B.A. in Psychology from California State University, Long Beach, and an MBA from Loyola Marymount University. She is a Certified Paralegal and is licensed by the County of Los Angeles as a Legal Document Assistant. Ellen is also a commissioned Notary Public for the State of California. She is self-taught in web design and development. In her spare time, Ellen is an avid photographer, gardener and is a magician member of the prestigious Academy of Magical Arts, located in the world-renowned Magic Castle in Hollywood, California. Heather Von St James In 2005, at the age of 36, and only three months after giving birth to a beautiful daughter Lily Rose, Heather Von St. James was diagnosed with malignant pleural mesothelioma. Upon learning of this lifealtering diagnosis, Heather, together with her husband Cameron, embarked upon a search to find the best mesothelioma treatment care available. Their search eventually led them to Dr. David Sugarbaker, a world renowned mesothelioma specialist. Dr. Sugarbaker recommended a relatively new surgical procedure called extrapleural pneumonectomy, a groundbreaking treatment option. Although there were some risks associated with the procedure, it also carried promise for the best possible outcome. Heather, with full support from her husband and family, agreed to have the surgery. Today, Heather Von St. James is a ten-year mesothelioma cancer survivor and continues to provide unending inspiration to mesothelioma victims around the globe. She carries out her mission to be a beacon of hope for those afflicted with mesothelioma by sharing her story of faith, love and courage both as a keynote speaker at conferences and through social media forums. Lou (Louise) Williams is a mother, grandmother, and wife living with mesothelioma. Lou lost her father aged 54, in 1985 to pleural mesothelioma. Ever since she has been a passionate and dedicated asbestos awareness advocate, working to raise support in her home country of Australia as well as around the globe. In 2001 she was diagnosed with peritoneal mesothelioma and bravely fought that with extensive surgery and chemotherapy. Unfortunately in 2009 she was then diagnosed with pleural mesothelioma, which required major extensive treatment yet again. Her strengths shine through with her giving of hope, love and support to victims and their care givers. In 2014, Lou was awarded ADAO’s Alan Reinstein Award which recognizes Lou’s commitment to education, advocacy and support to countless patients and families around the world. Lou has served on boards of anti-asbestos support organizations since 2003, and is the Australian Director of the Global Ban Asbestos Network (GBAN), Social Media Awareness Officer of the Asbestos Diseases Foundation of Australia (ADFA), and a volunteer for ADAO.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


$'$2 &RQIHUHQFH %LRJUDSKLHV +RQRUHHV 6SHDNHUV DQG $'$2 /HDGHUVKLS Christine Winter, has spent the last 15 years working within the asbestos sector, from UK Trade Associations, to independent asbestos auditing, 14 years with her own asbestos training company and 6 years as Chair, Communications Coordinator and Co-Founder of Independent Asbestos Training Providers. Christine is now involved in the inception of the Federation of Decontamination Equipment Manufacturers an organization representing manufacturers that supply dust suppressant safety equipment. Her skills lie in communication, representation, social media, relationship building, networking, sourcing and effectively communicating relevant asbestos information. She has been working with ADAO since 2007 and shares the vision and mission that “sharing makes us stronger & together change is possible.� She believes ADAO has come a long way, but believes we still have a long way to go, the only cure we have at present is prevention, education & safe removal from our built environment. She's honored to be part of the ADAO Prevention Asbestos Board and look forward to working with the asbestos community. Jordan Zevon ADAO's tremendous National Spokesperson is a teacher, singer, and songwriter. Jordan was executive producer for his father, Warren Zevon's, final album The Wind. He also co-produced Enjoy Every Sandwich: The Songs of Warren Zevon, which features an all-star cast of singers and musicians. Jordan recently released his own EP entitled Jordan Zevon which is available from CDBaby.com. Jordan's immeasurable commitment to asbestos victims and concerned citizens has provided a united voice that will continue to help ensure that their rights are fairly represented and protected, while raising public awareness about the dangers of asbestos exposure and often deadly asbestos related diseases. Paul Zygielbaum is a retired executive and entrepreneur, whose career spans the aerospace, electric utility, electronic communications and medical device industries. Paul holds master’s degrees in engineering and applied science from the California Institute of Technology and in business administration from Golden Gate University. Paul has published technical papers, articles and reviews in the fields of aerospace research, energy technology, and medicine. He has served in many community and professional volunteer capacities. Since his 2004 diagnosis with malignant peritoneal mesothelioma, Paul and his wife, Michelle, have become activists in grass-roots campaigns to ban asbestos, to protect the rights of asbestos-related disease victims and their families, and to improve medical treatment and seek cures. Paul and Michelle have three grown children and six grandchildren.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Thank you to our 2016 International Asbestos Awareness and Prevention Conference Speakers! Spreading Asbestos awareness around the globe… Marilyn Amento $'$2 (DVWHUQ 5HJLRQDO 'LUHFWRU Emily Bankhead 0HVRWKHOLRPD :LGRZ DQG +RQRUHH Bridget Bersin *UDQGGDXJKWHU RI &ODUHQFH %RUHO Brad Black &(2 DQG 0HGLFDO 'LUHFWRU DW &HQWHU IRU $VEHVWRV 5HODWHG 'LVHDVH Paul Brodeur Keynote Speaker ,QYHVWLJDWLYH -RXUQDOLVW DQG $XWKRU RI Expendable Americans DQG Outrageous Misconduct: The Asbestos Industry on Trial Jill Cagle 0HVRWKHOLRPD :LGRZ DQG 6LQJHU Barry Castleman 6F' $XWKRU RI Asbestos: Medical and Legal Aspects Keith A. Cengel $VVRFLDWH 3URIHVVRU DQG 'LUHFWRU RI WKH 3KRWRG\QDPLF 7KHUDS\ 3URJUDP LQ WKH 'HSW RI 5DGLDWLRQ 2QFRORJ\ DW WKH 8QLYHUVLW\ RI 3HQQV\OYDQLD Ellen Costa $'$2 &RQIHUHQFH &RRUGLQDWRU 6WUDWHJ\ &RQVXOWDQW DW :HOOV )DUJR Earl Dotter 3KRWRMRXUQDOLVW $XWKRU RI The Quiet Sickness DQG BADGES: A Memorial Tribute to Asbestos Workers Raja Flores &KDLUPDQ 'HSDUWPHQW RI 7KRUDFLF 6XUJHU\ 0W 6LQDL +HDOWK 6\VWHP Arthur Frank 3URIHVVRU RI 3XEOLF +HDOWK DQG &KDLU (PHULWXV RI WKH 'HSDUWPHQW RI (QYLURQPHQWDO DQG 2FFXSDWLRQDO +HDOWK DW 'UH[HO 8QLYHUVLW\ 6FKRRO RI 3XEOLF +HDOWK Fernanda Giannasi $VVRFLDomR %UDVLOHLUD GRV ([SRVWRV DR $PLDQWR $%5($ %UD]LO Eudice Goldberg 0' Keynote Speaker &R )RXQGHU RI WKH &DQDGLDQ 0HVRWKHOLRPD )RXQGDWLRQ &0) 3HGLDWULFLDQ LQ WKH 'LYLVLRQ RI $GROHVFHQW 0HGLFLQH DW WKH +RVSLWDO IRU 6LFN &KLOGUHQ LQ 7RURQWR &DQDGD Tanis Hernandez /&6: $GPLQLVWUDWLYH 'LUHFWRU DW &HQWHU IRU $VEHVWRV DQG 5HODWHG 'LVHDVH Eric Jonckheer $VEHVWRV %HOJLXP 9LFWLPV $VVRFLDWLRQ $%(9$ %HOJLXP Brent Kynoch 3UHVLGHQW RI .\QRFK (QYLURQPHQWDO 0DQDJHPHQW Tom Laubenthal 7UDLQLQJ 6XSHUYLVRU 7HFKQLFDO &KLHI IRU 7KH (QYLURQPHQWDO ,QVWLWXWH $VEHVWRV 'LVHDVH $ZDUHQHVV 2UJDQL]DWLRQ LV D UHJLVWHUHG F QRQSURILW RUJDQL]DWLRQ "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" ZZZ $VEHVWRV'LVHDVH$ZDUHQHVV RUJ


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ADAO Board of Directors Doug Larkin Ellen Tunkelrott Linda Reinstein Laurie Rice ADAO Leadership ADAO President/CEO: Linda Reinstein ADAO Communication Director: Kim Cecchini ADAO National Spokesperson/Honorary Celebrity Board Co-Chair: Jordan Zevon ADAO Celebrity Board Co-Chair: Barbara McQueen ADAO Executive Assistant: Herman Hamilton Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Science Advisory Board Co-Chairs Arthur Frank, MD, PhD Richard Lemen, PhD, MSPH

Science Advisory Board Members Brad Black, MD Barry Castleman, ScD Raja Flores, MD Michael Harbut, MD, MPH, FCCP Hedy Kindler, MD L. Christine Oliver, M.D.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Prevention Advisory Board Co-Chairs Brent Kynoch Christine Winter Prevention Advisory Board Members Claire Deacon Tom Laubenthal John Newquist Tony Rich Mark Winter

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


12th International Asbestos Awareness and Prevention Conference Committee Agenda & Sponsors

Linda Reinstein

Communications

Kimberly Cecchini

Conference Coordinator

Ellen Costa

Executive Assistant

Herman Hamilton

Family Tour

Marilyn Amento and Ann Samuelson

Family Tributes

Marilyn Amento and Domani Tripam

Interns

Cody Egan, Emily Reinstein, and Robin Tucker

Logistics

Herman Hamilton

National Spokesperson

Jordan Zevon

Photographer

Tony Rich

Prevention Advisory Board

Brent Kynoch and Christine Winter

Co-Chairs Regional Representatives

Marilyn Amento (Eastern Region), Ann Samuelson (Western Region), and Heather Von St James (Midwestern Region)

Science Advisory Board

Dr. Arthur Frank and Dr. Richard Lemen

Co-Chairs Social Media

Robin Tucker

Speaker Coordinator

Dr. Celeste Monforton

Sunday Brunch

Ellen Tunkelrott

Videographer

Sue Ann Taylor, Zeel TV

Volunteers

Bob and Laura Kuzmick, Cortney Segmen, Emily Reinstein, and Betty, Stacey, Megan, and Robin Tucker

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


ADAO National Spokesman Jordan Zevon Jordan Zevon, ADAO's National Spokesman, is a talented American singer, musician, and songwriter. After his father, Warren Zevon, died from Mesothelioma in 2003 Jordan was moved to work with the Asbestos Disease Awareness Organization (ADAO), and he has dedicated a tremendous amount of time and talent to help raise awareness about the dangers of asbestos. As a passionate advocate, Jordan has traveled to Washington DC countless times to join ADAO in meetings with Congress and key administration staff. He was instrumental in his leadership role of ADAO’s product testing that uncovered dangerous asbestos fibers in a children’s toy. He also regularly presents before the press and on behalf of ADAO to help educate the public about asbestos dangers and share his personal story. He has donated his wonderful musical talents at ADAO and non-ADAO events, and participated in public service announcements – beautifully advocating through his wonderful gift. He also performed at this year’s Miles for Meso event helping to raise crucial funds for ADAO’s education efforts. Jordan’s musical career is impressive. He was executive producer of his father's final album, The Wind and also co-produced Enjoy Every Sandwich: The Songs of Warren Zevon, which features an all-star cast of singers and musicians. Jordan released a self-titled EP and the full-length album, “Inside’s Out” featuring, “The Joke’s On Me” which he performed on The Late Show with David Letterman. Jordan's immeasurable commitment to asbestos victims, coupled with his musical gifts, has provided a united voice that will continue to raise public awareness about the dangers of asbestos exposure and asbestos-related diseases. Thank you Jordan for your years of dedicated support, inspirational story, and beautiful songs.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


ADAO Celebrity Board Co-Chair Barbara McQueen Barbara McQueen and Jordan Zevon lead the Asbestos Disease Awareness Organization’s (ADAO) national Celebrity Board efforts and have brought an even stronger voice to ADAO’s message through their work. Barbi is the widow of American film star, Steve McQueen, in addition to a former model and photographer. She is also the author of Steve McQueen: The Last Mile Revisited, which documents the three-and-a-half year relationship between the two and includes candid photographs from 1977 to 1980. Since its publication, ADAO has presented Barbi’s book to experts and organizations in more than 10 countries, helping spread awareness about asbestos and asbestos-related diseases. She has also hosted several art exhibits of her work with shows in London, Tokyo, San Francisco, Nashville, Phoenix and Idaho, where she resides. Since 2011, Barbi has been working with ADAO. It was an honor to recognize Steve McQueen with the 2012 Warren Zevon “Keep Me in Your Heart” Memorial Tribute, which Barbi accepted on behalf of her late husband, delivered a keynote speech, and led a book signing at the conference Tribute Dinner, “Steve McQueen: The King of Cool.” Barbi has been a strong supporter of ADAO and advocate on behalf of asbestos victims and their families, even traveling to Capitol Hill with ADAO to speak out against asbestos and in support of prevention and a ban. Special thanks to Barbi for her support over the years! Her voice truly makes a difference.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


2015 ADAO Summary of Accomplishments The Asbestos Disease Awareness Organization (ADAO) was founded by the Larkin and Reinstein families in 2004. ADAO is the largest independent organization dedicated to preventing asbestos-related diseases through education, advocacy, and community support. With more than 40,000 people in our network, ADAO remains on the front line to influence global policy, advocate for an asbestos ban, and promote research. As a top influencer in social media advocacy, we further strengthened our network of victims, physicians, researchers, public health practitioners, and labor union members by utilizing a variety of social media platforms, including Facebook, Twitter, LinkedIn, and YouTube. ADAO also increased our credibility in the field by maintaining our presence on Wikipedia and presenting at more than 12 conferences around the world. Every accomplishment is possible because of the generosity of volunteers, sponsors, and donors who fuel our work and further our cause. We are proud to present our 2015 accomplishments, and look forward to even greater success in 2016! 2015 Education Initiatives: In an effort to educate the public about the dangers of asbestos exposure, ADAO: • Distributed 12 monthly and 1 special edition eNewsletters with recent asbestos-related news and events to a global audience • Hosted ADAO’s 3-day 11th Annual International Asbestos Awareness Conference: “Where Knowledge and Action Unite,” which brought together nearly 40 expert speakers and over 100 patients, physicians, researchers, educators, and public health advocates from 9 countries to discuss updates on the prevention, detection, and treatment of asbestos-related disease and global advocacy for an asbestos ban • Held our 8th Congressional Staff Briefing: “Asbestos: Impact on Consumer Safety, Public Health, and Asbestos Victims’ Civil Rights” • Created the “Hear Asbestos. Think Prevention.” Campaign to raise asbestos awareness by featuring asbestos information and educational resources, and highlighting helpful organizations • Continually updated ADAO’s website highlighting asbestos-related news and events and housing extensive educational resources, including an Asbestos Video Library of conference videos and educational presentations • Established the first bi-monthly #ENDMeso online Twitter Chat about prevention, health, safety, and civil rights • Established a 7-person Prevention Advisory Board (PAB) to serve as expert resources for questions regarding asbestos prevention and abatement from individuals, politicians, publications, government websites, or other social non-profits 2015 Advocacy Initiatives: In order to advocate for an international ban on asbestos use and the mining and exportation of this known carcinogen, ADAO: • Ensured the passage of U.S. Senate’s 11th Annual Resolution, which designated April 1-7, 2015 as “National Asbestos Awareness Week” • Championed the 4th U.S. Surgeon General’s Asbestos Awareness Week warning statement • Served as a media resource and/or quoted in The Hill, the San Francisco Chronicle, and the Green Divas Podcast • Quoted as an expert resource in publications by The Center for Public Integrity, The Hill, and The Guardian • Published numerous Op-Eds in The Hill and Roll Call • Collaborated with health and safety influencers and leaders with guest blogs raise asbestos awareness and action 2015 Community Initiatives: In an effort to provide a community of support for those affected by asbestos, ADAO: • Coordinated Global Asbestos Awareness Week to raise public awareness about the prevalence of asbestos-related diseases and the dangers of asbestos exposure • Published and shared nearly 200 “Share Your Story” submissions from patients and families from 38 states and 8 nations who have been devastated by asbestos-related disease. We are still seeking asbestos victims’ stories from DE , KS, ME, MS, ND, OK, RI, SD, UT, VA, WY • Presented before the Ambler, PA Mayor, Borough Council and community members, “ASBESTOS: BE SAFE. BE SMART.” A 5-member panel of experts discussed how to prevent exposure and disease Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


2015 ADAO Summary of Accomplishments • • • • • •

Sponsored Earl Dotter’s travelling photographic exhibit, “Badges: A Memorial Tribute to Asbestos Workers,” at numerous educational and occupational health conferences Hosted more than 3 virtual candlelight vigils throughout the year via ADAO’s “Light a Candle” website. These vigils provide an opportunity for individuals to honor loved ones who have lost or are currently fighting a courageous battle with asbestos-related disease Utilized ADAO’s Facebook Page, Facebook Group pages, and Twitter presence to provide an interactive medium for those seeking a space to share, connect, or access information Continued the virtual running team for “Miles for Meso” Mesothelioma Awareness Day and was designated the beneficiary of the event. Created the Asbestos Disease Awareness Organization’s Impact from 2005 – 2015 infographic Published numerous video and blog interviews with mesothelioma patients and experts

2015 Speeches and Presentations ADAO was delighted to strengthen partnerships and spread awareness through presenting at numerous international conferences and events, including: • “Global Asbestos Challenges and Progress in the 21st Century,” World Congress, Karachi, Pakistan, January 31, 2015 • “Asbestos: The Human Cost of Inaction,” Professional Abatement Contractors of New York (PACNY), Verona, NY, February 26, 2015 • “Asbestos: Still Legal. Still Everywhere,” EWG Congressional Briefing, Washington, D.C., March 10, 2015 • Senators Barbara Boxer and Ed Markey’s Press Conference, Washington, DC, March 17, 2015 • “Where Knowledge and Action Unite,” ADAO 11th Annual International Asbestos Awareness Conference, Washington, D.C., April 18, 2015 • ‘Badges, A Memorial Tribute to Asbestos Workers”, American Federation of Labor and Congress of Industrial Organizations’, Washington, DC, April 27, 2015 • The Fight against Asbestos and Mesothelioma: The Human Cost of Inaction,” 5th International Symposium on LungSparing Therapies for Malignant Pleural Mesothelioma, Santa Monica, CA, May 2, 2015 • “Asbestos: Shattered Lives and Broken Dreams,” European Asbestos Forum, Amsterdam, Netherlands, May 27, 2015 • “The Human Cost of Inaction,” European Asbestos Forum, Amsterdam, Netherlands, May 27, 2015 • “OSH Perils Workers Face without an Asbestos Ban,” National Council for Occupational Safety and Health National Conference, Baltimore, MD, June 2 – 4, 2015 • Mesothelioma Action Day, London, England, July 3, 2015 • “Asbestos: Impact on Consumer Safety, Public Health, and Asbestos Victims’ Civil Rights”, 8th ADAO Congressional Staff Briefing, Washington, DC, July 2015 • Symposium & Exhibit Commemorating the 100th Anniversary of the birth of Dr. Irving J. Selikoff, Mt. Sinai, NYC, NY, October 2015 • “Leveraging Social Media for Success and Social Good”, Southland Technology Conference Long Beach, CA ,October 2015 • “Asbestos: The Human Cost of Inaction” Harvard T.H. Chan School of Public Health, Boston, MA, October 2015 • “Asbestos Public Health Campaigns and Disease Prevention Movements in the 21st Century”, 143rd American Public Health Association’s Annual Meeting and Exposition, Chicago, IL, November 2015 • “Global Burden of Asbestos”, Asbestos Safety and Eradication Agency (ASEA), Brisbane, AUS , November 2015 • “Research and Advocacy Initiatives to Curb The Health Impacts of Environmental Contaminants”, Unite for Sight, Yale, CT, December 2015 Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


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2016 Asbestos Awareness and Prevention Conference Award Winners: Asbestos Safety and Eradication Agency ZLOO EH SUHVHQWHG ZLWK WKH Tribute of Unity Award IRU WKHLU UHOHQWOHVV HIIRUWV WR SURWHFW SXEOLF KHDOWK EDQ DVEHVWRV DQG LQFUHDVH SXEOLF DZDUHQHVV DERXW WKH GDQJHU RI DVEHVWRV The Collegium Ramazzini ZLOO EH SUHVHQWHG ZLWK WKH Tribute of Hope Award IRU WKHLU VWHDGIDVW FRPPLWPHQW WR DZDUHQHVV SUHYHQWLRQ DQG SROLF\ WR HOLPLQDWH DVEHVWRV UHODWHG GLVHDVHV Earl Dotter ZLOO EH SUHVHQWHG ZLWK WKH Tribute of Inspiration Award IRU KLV XQZDYHULQJ FRPPLWPHQW WKURXJK SKRWRMRXUQDOLVP WR SURWHFW ZRUNHUV¡ KHDOWK DQG VDIHW\ DQG WR JLYH SDVW DQG SUHVHQW DVEHVWRV YLFWLPV D YRLFH Dr. Phillip Landrigan ZLOO EH SUHVHQWHG ZLWK WKH Dr. Irving Selikoff Lifetime Achievement Award LQ KRQRU RI KLV WLUHOHVV GHGLFDWLRQ WR LQFUHDVLQJ DZDUHQHVV DERXW DVEHVWRV WR HOLPLQDWH GLVHDVHV Dr. Christine Oliver ZLOO EH SUHVHQWHG ZLWK WKH Dr. Irving Selikoff Lifetime Achievement Award LQ KRQRU RI KHU WLUHOHVV GHGLFDWLRQ WR LQFUHDVLQJ DZDUHQHVV DERXW DVEHVWRV WR HOLPLQDWH GLVHDVHV Clarence Borel, ZLOO EH KRQRUHG SRVWKXPRXVO\ ZLWK WKH Warren Zevon “Keep me in Your Heartâ€? Tribute IRU EHLQJ D OHDGHU LQ HVWDEOLVKLQJ FRUSRUDWH UHVSRQVLELOLW\ IRU WKRVH ZKR VHOO DVEHVWRV SURGXFWV DQG SURWHFWLQJ WKH ULJKWV RI ZRUNHUV E\ FRPSHQVDWLQJ WKRVH ZKR ZHUH KDUPHG The Amento Family ZLOO EH UHFRJQL]HG ZLWK WKH Alan Reinstein Award IRU WKHLU FRPPLWPHQW WR HGXFDWLRQ DGYRFDF\ DQG VXSSRUW WR FRXQWOHVV SDWLHQWV DQG IDPLOLHV Christine Winter ZLOO EH UHFRJQL]HG ZLWK WKH Alan Reinstein Award IRU KHU FRPPLWPHQW WR HGXFDWLRQ DGYRFDF\ DQG VXSSRUW WR FRXQWOHVV SDWLHQWV DQG IDPLOLHV $VEHVWRV 'LVHDVH $ZDUHQHVV 2UJDQL]DWLRQ LV D UHJLVWHUHG F QRQSURILW RUJDQL]DWLRQ "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" ZZZ $VEHVWRV'LVHDVH$ZDUHQHVV RUJ


2016 ADAO Conference Keynote Speaker Paul Brodeur ADAO is honored that Paul Broedeur is the keynote speaker for our 2016 Asbestos Awareness and Prevention Conference. As a staff writer at The New Yorker for nearly 40 years, Brodeur wrote the first major account of the health hazards and injustice associated with exposure to asbestos. His work won the National Magazine Award, a Sidney Hillman Foundation Award, and awards from the American Association of Trial Lawyers and the American Bar Association. Brodeur has also received recognition for writing pioneering articles about chemical depletion of the ozone layer, and the health hazards of exposure to microwave radiation and the electromagnetic fields given off by power lines. His short stories have appeared in many magazines, and he has published more than a dozen books, including several novels. Among them is The Stunt Man, which was made into a film starring Peter O’Toole. He is the author of Outrageous Misconduct: The Asbestos Industry on Trial, based upon a four-part series of articles that first appeared in The New Yorker, which won the Association of Trial Lawyers of America Special Literary-Public Service Award. In Outrageous Misconduct, Brodeur wrote about Clarence Borel who died before receiving the first-ever asbestos disease compensation award for the fatal disease he contracted on the job. His lawyer presented the medical research published in 1965 by Dr. Irving Selikoff that incontrovertibly linked exposure to asbestos to the disease, after a latency period of 20 to 30 years. Borel’s attorney, Ward Stevenson, presented Brodeur’s discovery findings that employer Johns Manville knew of the occupational exposure hazards of asbestos in 1929. Because Brodeur showed that the company had enacted a cover up, never informing their employees of the hazards of asbestos, the trial judge deemed Johns Manville criminally liable. Brodeur shows how lawsuits, with the threat of large punitive judgments, are invaluable for gaining compensation for victims and protecting workers. He concludes that “instead of extending a helping hand to companies that behaved with gross negligence, we should remember the plight of hundreds of thousands of past victims of asbestos disease and consider the suffering and economic burden of hundreds of thousands of their fellow citizens who will develop asbestos disease in the years to come.” ADAO thanks Paul Brodeur for his lifetime commitment to social justice through his rigorous and fruitful investigative journalism. ADAO is proud to have such an accomplished and renowned individual to be our keynote speaker.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


2016 ADAO Conference Keynote Speaker Dr. Eudice Goldberg Dr. Eudice Goldberg will be the keynote speaker for ADAO’s Unity and Remembrance Brunch on Sunday, April 10 during ADAO’s 2016 Asbestos Awareness and Prevention Conference in Washington DC. is the Co-Founder of the Canadian Mesothelioma Foundation (CMF). She and her sons developed a charitable foundation to help Canada. She did this initially to commemorate her peritoneal mesothelioma in 2005. She presently chairs the Board of Directors of the CMF. In

Division. She also chaired the Exam Board in her subspecialty at the Royal College of Physicians and Surgeons of Canada and is currently immediate past chair. On founding the CMF, Dr. Goldberg says, “My children and I felt that it was important to have a charitable foundation in Canada to help others go through what we had been through by providing as much support and education as possible. We had felt very isolated and alone through our journey, and wanted to make it easier for others in our vast country to reach out and receive the support that would make it even slightly easier for them to cope with the diagnosis of mesothelioma.” Dr. Goldberg’s message to North Americans is that “…we all need to work together towards a common goal. Rather than operating in our individual silos, it is most effective for us to come together and see how we can support each other’s work to help ban asbestos once and for all and also do whatever we can to improve the prognosis for those affected by mesothelioma and other asbestos-related diseases.” We are thankful for the years of collaboration between the CMF and ADAO. ADAO is honored to have Dr. Goldberg share her story at our Unity and Remembrance Brunch and congratulates her on her tireless work to raise awareness and support for Canadians suffering from asbestos-related diseases. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Dr. Irving Selikoff Lifetime Achievement Award Dr. Phillip Landrigan Phillip J. Landrigan, M.D., M.Sc. will be recognized with the 2016 Dr. Irving Selikoff Lifetime Achievement Award in honor of his tireless dedication to increasing awareness about the hazards of asbestos and to eliminate its associated diseases through his unending support of the Asbestos Disease Awareness Organization (ADAO). Dr. Landrigan, a pediatrician and epidemiologist at Mount Sinai is Dean for Global Health. He has been a member of the faculty of Mount Sinai School of Medicine since 1985 and served as Chair of the Department of Preventive Medicine from 1990 to 2015. He served for 15 years as an Epidemic Intelligence Service Officer and medical epidemiologist at the Centers for Disease Control and Prevention (CDC) and the National Institute for Occupational Safety and Health (NIOSH). He has received the Meritorious Service Medal of the US Public Health Service and in 1987, was elected a member of the National Academy of Medicine (formerly the Institute of Medicine). He is the President of the Collegium Ramazzini. Dr. Landrigan first met Dr. Selikoff in the 1970s when he was a young epidemiologist at the CDC. After being working with Dr. Selikoff, Dr. Landrigan was selected as Dr. Selikoff’s successor as Director of the Environmental and Occupational Medicine program. When asked to describe Dr. Selikoff, Dr. Landrigan notes “he was an extraordinary man…he was extremely smart of course, but much more than that he was incredibly courageous…and a powerful advocate who believed it was his responsibility to take science from the laboratory to the halls of the Congress and to argue the importance of protecting workers against toxic chemicals like asbestos.” When asked about his professional responsibilities, Dr. Landrigan responded “I've always thought I had two professional responsibilities…the first is to do good science, and the second, just as it was for Dr. Selikoff, is to take scientific findings and look for the windows of opportunity where I can translate good science into effective action that protects people against toxic hazards and prevents disease.” Dr. Landrigran’s believes “it's very important that Congress do everything that’s right and proper to protect workers against asbestos. They have a duty and a responsibility to protect these people who are exposed to asbestos.” ADAO congratulates Dr. Landrigan on all of his important and powerful achievements and thanks him for the time and energy he puts into raising awareness about asbestos. ADAO recognizes Dr. Landrigan for continuing Dr. Selikoff’s important work and advocacy and believes he is highly deserving of receiving this prestigious award.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Dr. Irving Selikoff Lifetime Achievement Award Dr. Christine Oliver Christine Oliver, MD, MPH, MS, FACPM will be recognized with the 2016 Dr. Irving Selikoff Lifetime Achievement Award in honor of her tireless dedication to increasing awareness about asbestos, to eliminate diseases, and her unending support of the Asbestos Disease Awareness Organization (ADAO). Dr. Oliver is President of Occupational Health Initiatives, Inc. and an Associate Clinical Professor of Medicine at Harvard Medical School. She is also an Associate Physician and Co-Director of Occupational and Environmental Medicine in the Department of Medicine at Massachusetts General Hospital in Boston. Dr. Oliver is a Fellow of the Collegium Ramazzini and has published research is in the area of occupational lung disease including asbestos-related disease. She works tirelessly with labor to promote occupational health and safety. Her work began with the Oil, Chemical, and Atomic Workers (OCAW) in the 1970s and continus with labor organizations including the building and construction trades. As a dedicated physician, her a primary goal has always been to bring awareness to workers of the risks they face and to bring them the tools needed to protect themselves while promoting primary prevention in the workplace. As an unrelenting advocate for prevention. Dr. Oliver said, “in order to prevent asbestos-related disease, Americans need education about the health hazards of asbestos, where to find it, and how to recognize it. Once properly educated, Americans must be aware, vigilant, and unafraid of advocating for themselves and for others at risk for asbestos-related disease.” On receiving the Dr. Irving Selikoff Lifetime Achievement Award, Dr. Oliver says she is “surprised and deeply honored…because Dr. Selikoff was such a giant in the field of public health and occupational and environmental medicine. To receive an award bearing his name is humbling…Dr. Selikoff inspired me in a number of ways…including his personal attributes of strength of character, foresightedness, perseverance, and warmth. His work with labor unions and his respect for laborers inspired my own work with labor unions. Fearless in defense of his research and in his advocacy for asbestos victims, he has inspired me and countless others to speak out about industry malfeasance and the influence of corporate financing on the science of asbestos-related disease, to care for those with or at-risk for asbestos-related disease, and to testify on their behalf.” ADAO would like to congratulate and thank Dr. Christine Oliver for her hard work, dedication, and determination in making workplaces safer for thousands of workers. ADAO truly believes that Dr. Oliver has followed in Dr. Selikoff’s footsteps and are honored to present her with this prestigious award.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


“Keep Me in Your Heart” Memorial Tribute Award Clarence Borel Landmark asbestos litigation plaintiff Clarence Borel will be honored posthumously with the 2016 Warren Zevon “Keep Me in Your Heart” Memorial Tribute Award for changing asbestos victims’ litigation by providing precedent for thousands of products liability cases. For nearly thirty-three years, Clarence was a member of the International Association of Heat and Frost Insulators and Asbestos Workers Union, worked with asbestos. Diagnosed with asbestosis and then mesothelioma, Clarence sought legal remedy for his injuries. Thus began a long battle for justice, as his case, Borel v. Fibreboard Paper Products Corporation, was the first product liability case involving an asbestos manufacturer's duty to warn industrial insulation workers of dangers associated with the use of asbestos. Clarence passed away before his trial and his widow, Thelma, was substituted as plaintiff under the Texas wrongful death statutes. Clarence’s legal counsel, Ward Stephenson, argued that the companies had liability because they didn’t provide timely or adequate warnings of foreseeable dangers. In 1973 Borel’s verdict was upheld on appeal, the first case in the nation to recognize the manufacturer’s duty to warn of asbestos dangers. His case provided a basis for future personal injury claims by hundreds of thousands of asbestos victims. According to Paul Brodeur, author of Outrageous Misconduct: The Asbestos Industry on Trial (1985), the Borel decision "triggered the greatest avalanche of toxic-tort litigation in the history of American jurisprudence. Some twenty-five thousand lawsuits were brought over the next decade as word spread that asbestos manufacturers could be held strictly liable under the law." Clarence’s son Bracy, daughter-in-law, Mary Lynne, and his granddaughter Bridget believe the strength to pursue his case came from multiple sources including Clarence’s “faith in God” and “knowing that he was helping others coming behind him.” The Borel family members are proud to see that the importance of Clarence’s battle has been recognized and that people will be able to see what a wonderful man he was and not just another victim of this horrible disease. ADAO and all asbestos victims owe many thanks to Clarence Borel and the Borel family for their major contribution to truth, justice, and responsibility. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


2016 Tribute of Unity Award Asbestos Safety and Eradication Agency The Asbestos Safety and Eradication Agency (ASEA) will receive the 2016 Tribute of Unity Award for their relentless efforts to protect public health, ban asbestos, and increase public awareness about the danger of asbestos. ASEA was established in 2013 in Australia to provide a national focus on asbestos issues which goes beyond workplace safety to encompass environmental and public health concerns. The agency aims to ensure asbestos issues receive the attention and focus needed to drive change across all levels of government. The agency has broad functions including: encouraging, coordinating, monitoring and reporting on the implementation of Australia’s National Strategic Plan on Asbestos Awareness and Management 2014-18 (NSP); liaising with Commonwealth, State, Territory and local and other governments, agencies or bodies about the implementation, review or amendment of NSP; as well as commissioning, monitoring and promoting research about asbestos safety. Under the National Strategic Plan for Asbestos Management and Awareness, the Australian Government, in partnership with all states and territories, is taking a national approach to increasing asbestos awareness. Through coordinating the plan, the agency works with all stakeholders affected by asbestos and asbestos-related diseases to collaborate to reducing asbestos related disease in Australia. “Australia has one of the highest rates of asbestos-related disease and death,” ASEA CEO Peter Tighe said. “The risk of exposure to asbestos-related disease has not gone away with the end of asbestos mining and manufacturing – one third of homes in Australia today contain asbestos products and the renovation boom is contributing to new threats.” ASEA held their first international conference in 2014 where experts in many asbestos-related fields from health, legal, environmental and building, and disaster recovery gathered to discuss the latest developments and efforts to reduce and eradicate exposure to asbestos. “These efforts will set Australia up for the future in dealing with the enormous legacy issues regarding asbestos-containing materials in our domestic built environment,” stated Peter Tighe. ADAO strongly supports ASEA’s efforts and is proud to call them a partner in the effort create a world free of asbestos. We salute ASEA for their leadership, innovation, and commitment to protecting public health, and congratulate them on their Tribute of Unity Award! Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


2016 Tribute of Hope Award The Collegium Ramazzini The Collegium Ramazzini will be receiving the 2016 Tribute of Hope Award for their steadfast commitment to advancing and recognizing the study of occupational and environmental health medicine and for bridging the world of science with social and political action. ADAO applauds the Collegium Ramazzini for it’s continued efforts identifying and recommending solutions for occupational and environmental health problems and especially for issuing it’s 18th statement this year on the global health dimensions of asbestos and asbestos-related diseases while continually calling for a global ban on asbestos. Dr. Richard Lemen said, “As the Co-Chair of ADAO’s Science Advisory Board and as a long-time Fellow of the Collegium Ramazzini, I am especially honored to see this recognition of the Collegium for its long term efforts to stop this deadly epidemic caused by asbestos.” Founded in 1982 by Irving J. Selikoff, a world renowned pioneer asbestos researcher, the Collegium Ramazzini works towards recognizing the importance of occupational and environmental health in the world of public health. Through holding conferences, symposia, training courses, issuing statements and research papers, the Collegium Ramazzini publicizes its views and translates to legislators, regulators and other decision makers the policy implications of scientific findings. The Collegium Ramazzini’s Director, Dr. Phillip Landrigan, notes that “other countries throughout the world have been persuaded by the writings of the Collegium Ramazzini to stop the use of asbestos and every time a country stops using asbestos thousands of lives are saved for decades to come.” “The Collegium Ramazzini through its Fellows has long since been advocates for the banning of asbestos and for the fair treatment of those exposed in the past and collectively the Fellows deserve this recognition. They have produced documents that have earned the respect of the whole world and will no doubt continue to do what is good and right about the worldwide hazards of asbestos,” said Dr. Arthur Frank. The Asbestos Disease Awareness Organization (ADAO) is honored to have a strong relationship with Dr. Phil Landrigan, its President and all of the associated Fellows from the Collegium Ramazzini. Linda Reinstein, ADAO President & co-founder said, “the Collegium Ramazzini is one of our best allies in this fight to end asbestos exposure. It is through international cooperation that our knowledge and understanding of asbestos-related diseases will continue to grow, and I cannot thank the Collegium Ramazzini enough for their support of this cause. The Collegium Ramazzini truly deserves this Tribute of Hope Award for giving new life and hope to asbestos victims around the globe. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


2016 Tribute of Inspiration Award Earl Dotter Earl Dotter will be receiving the 2016 Tribute of Inspiration Award for his untiring efforts to protect workers’ safety and health in the workplace and his pursuit of truth and justice through photography. Earl Dotter began photographing coal miners in 1969, then the most dangerous job in America, after which he focused on other hazardous occupations in the USA. After 30 years documenting some of the most dangerous jobs in America, he created the exhibit and book, The Quiet Sickness: A Photographic Chronicle of Hazardous Work in America. He has been a Visiting Scholar at the Harvard School of Public Health since his appointment in 1999. After 9/11, he photographed the rescue recovery effort at Ground Zero, for which he received the APHA’s Alice Hamilton Award. Currently, Dotter is documenting the hazardous jobs of new immigrants in the U.S.. When asked about where he finds his strength, Earl Dotter noted that “my inspiration comes from my photography instructor, back in 1968, the year Martin Luther King and Bobby Kennedy were killed. He insisted any photograph I take must express my personal point of view. It was a powerful lesson then that still informs every picture I make today.” Earl’s latest work, BADGES: A Memorial Tribute to Asbestos Workers, began its tour at the 2015 ADAO conference in Washington, D.C. As Dotter explained, “The actual badges in the BADGES exhibit, first of all, put a human face on the vast scale industrial workers have been exposed to asbestos throughout the United States. Furthermore, the photographs the asbestos companies took of their workers manufacturing those products give viewers a stark glimpse of the disregard the industry had for the health and safety of its employees. The exhibit also highlights my heroes in this story: Irving Selikoff, Paul Brodeur, Ward Stephenson and Clarence Borel, and many others who would not back down in the face of immense industrial might to right this wrong.” “I am honored to receive the 2016 Tribute of Inspiration Award because it tells me that the BADGES exhibit/tour …is having a positive impact on today’s generation. Without visualizing the tragic stories of asbestos victims this new generation might otherwise overlook this ongoing occupational and environmental health tragedy, still unfolding today.” ADAO would like to congratulate and thank Earl Dotter for all of his successes that he has achieved while shedding light on the human cost of inaction. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


2016 Alan Reinstein Award The Amento Family Marilyn, Joe, and Julie Amento will be recognized with the 2016 Alan Reinstein Award for their commitment to asbestos and mesothelioma education, advocacy and community support.. Joe Amento, Jr., Marilyn’s husband and Joe and Julie’s father died of mesothelioma at the age of 53, only 6 months after his first symptom. Joe was exposed to asbestos as a youth while visiting his Dad at the asbestos plants, and playing on asbestos scrap piles in the small borough of Ambler, PA. Marilyn shared that Joe’s asbestos-caused death felt like it was “ripping the hearts and souls out of me and our then 8 and 10 yearold children.” In order to channel their grief and anger, the Amento family has worked with ADAO to educate the public about asbestos through multimedia and community meetings. “We believe that ADAO and our volunteers are in the best position to spread the word about the dangers of asbestos and get the attention of our government to help asbestos victims. We are determined to keep this deadly mineral from killing others” says Marilyn. Since 2005, the Amento family has been involved with ADAO’s asbestos advocacy efforts in various capacities. Marilyn serves as ADAO’s Eastern Regional coordinator, the Family Tribute co-chair, and has traveled to Washington D.C. multiple times to represent victims and their families at ADAO’s Senate staff briefings and meetings. The Amento family believes their greatest achievement was the ADAO sponsored “Asbestos: Be Safe. Be Smart.” program in August 2015 in Ambler, Pennsylvania. This groundbreaking event was effective in bringing members of the community together with the Mayor of Ambler, the Ambler Borough Council and the Ambler Borough Manager, encouraging productive dialog and informative panel discussions. Marilyn said, “Each of us knew Alan, having met him at the 2005 and 2006 Asbestos Awareness Conferences. He was such a kind and loving man. We feel very humbled to be honored with an award named after Alan.” Joe and Julie Amento agree “our strength and inspiration in our work with ADAO comes from our Dad. He was such a loving and gentle man who suffered in his suffering not because of his illness, but because he wanted to be there to support us, not the other way around.” Marilyn added “our inspiration also comes from the many patients who have fought and are fighting asbestos disease with courage and endurance.” Once again, ADAO would like congratulate the Amento family on receiving the Alan Reinstein Award and thank them for their continued service to the asbestos victims and the community at large. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


2016 Alan Reinstein Award Christine Winter Christine Winter, will be recognized with the 2016 Alan Reinstein Award for her commitment to education, advocacy, and support to countless patients and families. Christine has spent the last fifteen years working within the asbestos sector, from UK Trade Associations, to independent asbestos auditing. She spent fourteen years with her own asbestos training company and six years as Chair, Communications Coordinator, and Co-Founder of Independent Asbestos Training Providers. Since 2007, Christine has been partnering for prevention with ADAO endorsing the ADAO vision and mission that “sharing makes us stronger & together change is possible.” Christine is now involved in the inception of the Federation of Decontamination Equipment Manufacturers, an UK organization representing manufacturers that supply dust suppressant safety equipment. When asked how she feels about being honored with ADAO’s 2016 Alan Reinstein Award, Christine replied, “humbled, I am an ordinary person who just happens to work in the asbestos sector and have had the great privilege of meeting many extraordinary people.” She currently serves as the Co-Chair of ADAO’s Prevention Advisory Board, a seven-person board comprised of industrial hygienists, asbestos trainers, and abatement contractors. This Board serves as an expert resource for questions regarding asbestos prevention and abatement from individuals, politicians, publications, government websites, or other social non-profits. When discussing the source of her strength and inspiration, Christine notes that “first and foremost, I find my strength and inspiration from my husband. The injustice and cruel consequences of asbestos exposure drives me too. It’s our responsibility to arm our nations with the knowledge and tools to protect themselves and their families, at home and in the work place.” ADAO would like to congratulate Christine again on receiving ADAO’s 2016 Alan Reinstein Award and thank her for all of her contributions and efforts to support asbestos victims on a local and international scale. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


2005 – 2016 ADAO Honorees & Keynote Speakers 2016 ADAO Asbestos Awareness Conference Honorees – Washington, DC Clarence Borel, Warren Zevon "Keep me in Your Heart" Award Dr. Phillip Landrigan, Selikoff Lifetime Achievement Award Dr. Christine Oliver, Selikoff Lifetime Achievement Award Asbestos Safety and Eradication Agency, Tribute of Unity Award The Collegium Ramazzini, Tribute of Hope Award Earl Dotter, Tribute of Inspiration Award The Amento Family, The Alan Reinstein Award Christine Winter, The Alan Reinstein Award Paul Brodeur and Dr. Eudice Goldberg, Keynote Speakers 2015 ADAO Asbestos Awareness Conference Honorees – Washington, DC International Mesothelioma Interest Group (iMig), Tribute of Hope Award Troi Atkinson, Warren Zevon "Keep me in Your Heart" Award Congressman Bruce Vento, Warren Zevon "Keep me in Your Heart" Award (2014) Dr. Jorma Rantanen, Selikoff Lifetime Achievement Award American Public Health Association (APHA), Tribute of Unity Award The Brazilian Labour Public Ministry, Tribute of Inspiration Award Ellen Patton, The Alan Reinstein Award Dr. Jorma Rantanen and Sue Vento, Keynote Speakers 2014 ADAO Asbestos Awareness Conference Honorees – Washington, DC The Honorable Henry Waxman, U.S. House of Representatives, Tribute of Hope Award Congressman Bruce Vento, Warren Zevon "Keep me in Your Heart" Award Dr. David Egilman, Selikoff Lifetime Achievement Award Dr. Ken Takahashi Selikoff Lifetime Achievement Award National Association for the Defense of Asbestos Victims (Andeva), Tribute of Unity Award Bill Ravanesi Tribute of Inspiration Award Janelle Bedel, honored posthumously, The Alan Reinstein Award Heather Von St. James, The Alan Reinstein Award Lou Williams, The Alan Reinstein Award Rear Admiral Boris Lushniak, Acting U.S. Surgeon General, Keynote Speaker

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


2005 – 2016 ADAO Honorees & Keynote Speakers 2013 ADAO Asbestos Awareness Conference Honorees – Washington, DC The Honorable Lois Capps (D-CA), U.S. House of Representatives, Tribute of Hope Award Jordan Zevon, "Keep me in Your Heart" Award Dr. Celeste Monforton, Dr. Selikoff Lifetime Achievement Award International Association of Heat and Frost Insulators and Allied Workers, Tribute of Unity Award Karen Banton, Tribute of Inspiration Award Rob Cagle, Alan Reinstein Award Mavis Nye, Alan Reinstein Award Dr. Aubrey Miller, Keynote Speaker 2012 ADAO Asbestos Awareness Conference Honorees – Manhattan Beach, CA The Honorable Steve Cohen (D-TN), U.S. House of Representatives, Tribute of Hope Award Actor Steve McQueen, Warren Zevon "Keep me in Your Heart" Award Dr. Arthur Frank, Dr. Selikoff Lifetime Achievement Award Dr. Richard Lemen, Dr. Selikoff Lifetime Achievement Award Associazione Familiari Vittime Amianto (AFEVA), Tribute of Unity Award Joel Shufro, Tribute of Inspiration Award Debbie Brewer, Alan Reinstein Award Larry Davis, Alan Reinstein Award Matt Peacock, Keynote Speaker 2011 ADAO Asbestos Awareness Conference Honorees – Atlanta, GA The Honorable Max Baucus, United States Senator, Tribute of Hope Award Ron Cyrus, Warren Zevon "Keep me in Your Heart" Award Dr. Guadalupe Aguilar Madrid, Selikoff Lifetime Achievement Award Environmental Information Association, Tribute of Unity Award Sugio Furuya, Tribute of Inspiration Award Julie Gundlach, The Alan Reinstein Award Dr. Linda Rae Murray, Keynote Speaker

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


2005 – 2016 ADAO Honorees & Keynote Speakers 2010 ADAO Asbestos Awareness Conference Honorees Honorees – Chicago, IL The Honorable Richard Durbin, United States Senator, Tribute of Hope Award Army Archerd, Warren Zevon "Keep me in Your Heart" Tribute Memorial Award Dr. Hedy Kindler, Selikoff Lifetime Achievement Award Center of Asbestos Related Disease (CARD), Tribute of Unity Award Fernanda Ginnasi, Tribute of Inspiration Award June Briet, honored posthumously, The Alan Reinstein Memorial Award Jordan Barab, Keynote Speaker 2009 ADAO Asbestos Awareness Conference Honorees – Manhattan Beach, CA The Honorable Barbara Boxer, United States Senator, Tribute of Hope Dr. Stephen Levin, Selikoff Lifetime Achievement Award Peg Seminario, AFL/CIO, Tribute of Unity Award Pralhad Malvadkar and Raghunath Manwar, Tribute of Inspiration Award Dominick Marzicola, honored posthumously, The Alan Reinstein Memorial Award Andrew Schneider, Keynote Speaker 2008 ADAO Asbestos Awareness Conference Honorees Honorees – Detroit, MI Dr. Aubrey Miller, Tribute of Hope Barry Castleman, Selikoff Lifetime Achievement Award Canadian Auto Workers, Tribute of Unity Award John Thayer, Former US Capitol Tunnel Worker Supervisor and Asbestos Victim, Tribute of Inspiration Award John McNamara, honored posthumously, The Alan Reinstein Memorial Award Terry Lynch, Keynote Speaker

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


2005 – 2016 ADAO Honorees & Keynote Speakers 2007 ADAO Asbestos Awareness Conference Honorees – Philadelphia, PA The Honorable Patty Murray, United States Senator, Tribute of Hope Dr. Michael Harbut, Selikoff Lifetime Achievement Award, Patrick Martin, Member of Canadian Parliament, Tribute of Unity Award Paul Zygielbaum and Michelle Zygielbaum, Tribute of Inspiration Award Les Skramstad, honored posthumously, The Alan Reinstein Memorial Award Dr. Peter Orris, Keynote Speaker 2006 ADAO Asbestos Awareness Conference Day Honorees – New York City, NY The Honorable Harry Reid, United States Senator, Tribute of Hope Award Paul Brodeur, Selikoff Lifetime Achievement Award Dr. Yasunosuke Suzuki, Selikoff Lifetime Achievement Award James Fite, Tribute of Unity Award The Honorable Chuck Strahl, Member of Parliament, Canada, Tribute of Inspiration Paul Brodeur, Keynote Speaker 2005 ADAO Asbestos Awareness Conference Honorees – Washington, DC Gayla Benefield, Tribute of Hope Award Laurie Kazan-Allen, Tribute of Unity Award Jill Vaughn, Tribute of Inspiration Award

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


The Asbestos Disease Awareness Organization expresses our sincere gratitude to the past and current U.S. Surgeon Generals for issuing official asbestos awareness statements. U.S. Surgeon General Dr. Vivek H. Murthy (2015): “National Asbestos Awareness Week is..a good time to remind Americans about the health dangers of asbestos exposure… because of its use in so many products, asbestos is still of special concern.” Acting U.S. Surgeon General Dr. Boris Lushniak (2014), at 2014 ADAO International Asbestos Awareness Conference: “The asbestos issue is not a thing of the past. It continues to this day.” U.S. Surgeon General Dr. Regina Benjamin (2013): “Anyone who disturbs asbestos is at risk…Preventing the damage caused by asbestos is important to help keep Americans healthy and safe…The greater the exposure to asbestos, the greater the chance of developing harmful health effects.” Acting U.S. Surgeon Dr. Steven Galson (2009): “Asbestos can be dangerous if it is inhaled. Activity that disturbs asbestos causing these small fibers to float in air increases the chances of inhalation and the contraction of asbestos-related diseases.”


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EARLY LUCARELLI SWEENEY MEISENKOTHEN


CAUSES, NOT JUST CASES

Fighting against asbestos and advocating awareness in communities throughout the country


saluting 2016’s honorees and supporting

Asbestos Disease Awareness Organization’s continued efforts toward improved rights and protections for asbestos victims

www.motleyrice.com 1.800.923.4237 3333 K St. NW, Suite 450 | Washington, DC 20007 SC | RI | CT | NY | WV | DC | LA | MO Nathan D. Finch (DC, VA) and Anne McGinness Kearse (DC, SC, WV) are the attorneys responsible for this communication.






ADAO would like to extend special thanks to

Delaware Insulators Asbestos Trust Our 2016 Platinum Sponsor

By supporting and advancing our mission through its generous donation.



www.mconieagency.com

We specialise in industrial, occupational health, safety and environmental public relations. This year we have joined forces with ADAO to support the excellent work done to raise awareness of the dangers of asbestos by promoting “Hear Asbestos? Think Prevention!” around the world via our international network. Awareness can only be achieved through good communication and partnerships – we are thrilled to be joining the conversation with ADAO.

corporate communication media relations crisis communications public affairs social media reputation management internal communications


Thank you, Sarah McOnie and the McOnie Agency!

Your support of the 2015 Global Asbestos Awareness Week helped make it the best year of education and awareness yet! Hear Asbestos. Think Prevention.TM Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 路 Redondo Beach 路 California 路 90278 路 (310) 251-7477 www.AsbestosDiseaseAwareness.org


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Photographer Dave Friedman

Steve McQueen 1930-1980


RON CYRUS CYRUS

“ My dad was everything to me and most of all he was my best friend. His character, trustworthiness and dedication made him a wonderful role model. If only money could bring better health, he would be with us today. I support ADAO and their efforts to ban asbestos. We all must work together in this fight. ADAO has my continued support in making everyone aware of this deadly disease.” — Billy Ray Cyrus


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the Warren Zevon “Keep me in Your Heart � Memorial Tribute and the ADAO for their continued e f f ort s i n r a i s i n g p u b l ic awa r e n e s s on the dangers of asbestos e xposure

IN MEMORIAM


In Loving Memory of Alan Reinstein 1939 – 2006

Unforgettable Husband and Father Sweetly, we remember how you lived your life so deeply and without regrets. You loved us unconditionally. The broken shards of the past ten years soften amongst 25 years of bliss and have become a cherished mosaic of memories. Our love for you is forever etched across our hearts, and we feel your love.

Love,

Linda and Emily


Bill Shields 1943-2004

Husband, Father, Friend

You are never forgotten and you were an inspiration in founding ADAO – so that all victims may have a voice. Your spirit still soars on the wings of a seagull, and our memories will always keep you alive in our hearts, minds and souls forever. From your loving family and friends


Larry Davis 2012 The Alan Reinstein Award Honoree

Larry has boldly and tirelessly worked to ban asbestos and fund research for a cure. His Miles for Meso events have taken the fight against mesothelioma to the streets, and has made a difference to many lives in the United States and around the world.


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Love and Miss You In Memory of Clarence Borel

1912-1970 I still miss you each day. Your kindness, thoughtfulness and love of God will be with me always. I appreciated the advice you would have for me. You were a great example as a husband and father. You were respected and looked up to by every man we ever worked with. Miss you, Bracy



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The leaves have fallen from the trees And summer days are gone. Lingering twilight in the chilling breeze And the end of the robin's song. All of my life I searched for you Not knowing it until that day When you appeared out of the blue After almost a lifetime away. Somehow we knew that time would fly And yet we embraced our love. We had time to laugh and sometimes cry And we thanked our Father above. We now had hope for each new day And each other to comfort at night. You always had something tender to say And made everything seem all right. When sickness came and would not leave With courage I watched you fight. We prayed each day and tried to believe That somehow it would be all right. But time was slipping away... Faster each day, it seemed. With dignity and grace you continued to pray And at night, of Heaven, we dreamed. Heaven is where you are, its true, Above the storm clouds and rain, Where the sky is so eternally blue And there is no more sickness or pain. Time is passing still faster each day And at night I miss holding your hand, But I remember you taught me to pray And to believe in the Promised Land. The trees will be dressed in leaves so new And summer days will re-appear. Twilight will become the eternal blue And the robin will sing so clear. It is a great comfort to know that you Are not really so far away, And you will appear out of the blue, After almost a lifetime away. Š By Anonymous

Raymond F. Hoover diagnosed March 12, 2008 with malignant pleural mesothelioma due to asbestos exposure.



Don McNamara 1951

2012

He had a laugh you'll never forget...loved to joke & give people a


TODD HALL Lexington, KY 1967-2006

In Todd’s memory, his family initiated legislation for September 26th to be recognized as Mesothelioma Awareness Day annually in KY. KY SB62 passed in 2010.

Todd was most known for his loving and genuine personality. He was always willing to lend a hand to those in need, never expecting anything in return. Todd possessed an infectious smile and led an adventurous life. Mesothelioma ended his zest for life and adventures much too soon, leaving a void for those who loved him. He battled mesothelioma valiantly. Thanks to ADAO for the opportunity to promote the ban of asbestos in Todd’s memory. Nothing is as tragic as losing someone you love to a preventable disease. Todd’s Family & Friends






Gordon Bankhead 1943 – 2011

“Have I Told You Lately That I Love You” Remembering Seven Seventeen

Love, Emily


Stan “Swede” Grimberg Union Plumber Local 290/Oregon Mesothelioma Warrior

April 18, 1929 - June 6, 1982

“You are on my shoulder, encouraging me always to move forward, look ahead, work hard, and make the best of what I’m given. I will tell your story Dad, so that other tradesmen and women will not suffer, and their sons and daughters will not lose their parents to deadly asbestos. By volunteering with ADAO I honor you, your fighting spirit, and the injustice our family has endured.”

Love you, always and forever your daughter,

n n A



In loving memory of

Debbie Brewer Dedicated Mum and Mesothelioma Warrior 1959-2013

“Together we will fight, change is possible” Debbie Brewer was recognised worldwide for her loving support of those affected by Mesothelioma & other asbestos-related diseases, despite being diagnosed herself with Mesothelioma in 2006. “I get so much from helping other people, it gives me something to focus on & fight for” she told us. In 2012, Debbie proudly received the Alan Reinstein Award from ADAO in recognition of her services to international advocacy, campaigning, support and education. Her reputation for challenging convention is legendary. Debbie leaves three beloved children, Richard, Siobhan & Kieran, together with a large, extended family of worldwide Mesothelioma warriors.


In Loving Memory

JAN EGERTON 1960 - 2014

A true Mesothelioma Warrior who inspired, supported others and continued to raise awareness while fighting her own battle. Jan is sadly missed by her soul mate and much loved husband Gary. She was an adoring Mummy to Lexi and Bear, a beloved Sister and Auntie and a wonderful friend to many others around the world. An angel who is loved so much - spread your wings – and fly now that you are without pain.


Not a day goes by that we don t think of you You brought happiness to every life you touched. We shared our love of family & friends…….our passion for golf, fine wine and our great joy in spending time together…… we had so much more life to live. Our family s center…… forever loved & missed Love always Marli & Stewart, The Beer & Stewart families Together we can make a difference by supporting the Asbestos Awareness Disease Organization….. thanks for all you do to raise awareness and your dedication to the fight to ban asbestos use worldwide.


IN LOVING MEMORY JALAL (JJ) SEGMEN

MESOTHELIOMA WARRIOR 06/21/1955 – 08/31/2007

Your gentle face and patient smile With sadness we recall, You had a kindly word for each And died beloved by all. The voice is mute and stilled the heart That loved us well and true, Ah, bitter was the trial to part From one so good as you. You are not forgotten loved one Nor will you ever be, As long as life and memory last We will remember thee. We miss you now, our hearts are sore, As time goes by we miss you more. Your loving smile, your gentle face, No one can fill your empty place.



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There are so many things that I would like to say about this wonderful man but there is just not enough room. He was my Soul Mate: a very dedicated and loving husband, friend, father, son, brother and most recently a grandfather. He absolutely loved to fish, ride his Harley and play golf. Rob could tell a story like no one else I know. He was such a people person and never met a stranger. He had a smile and one of those personalities that just lit up a room. Loved lending a helping hand. In fact, the night before he was placed in hospice care, he was DJing for a benefit. The courage that he displayed through 6 years of mesothelioma and too many chemo treatments to count, was such an awesome example for others and a true testament to his life. Encouraging others till the end he affected and infected so many peopleĘźs lives. Rob was an advocate for fighting this disease and the total ban of asbestos. This disease took his life but it never ever took his spirit and passion for living. He never gave up. I believe he would want to say to those battling this nasty disease:

DonĘźt give up!! Live Every Day!! Love with your whole heart!! Keep fighting for a ban and a cure!! and as only he could say...

“ItĘźs All Good!!!" Rob, You will be missed more than words can describe. See you in heaven. Love, Jill




Winona Belle Esposito 05/19/24~~~06/30/09 Life was good for my Mom. We talk everyday, sometimes more than once. Mom had her children, grands, great grands and great great grands that would visit her in Spencer, MA. On February 21, 2007 my Mom was diagnosed with Mesothelioma caused from asbestos. We had never heard of Mesothelioma and we certainly learned with her first visit to her oncologist that chemotherapy would begin and there was no cure to this horrible disease. My mom was living in MA and I was in VT. It was a 3 hr drive one way and I was the one responsible for taking Mom to appointments. After awhile it was too much and I decided to move her to Vermont. This was a huge change for her after living her whole life in MA away from all her family. I did what was in the best interest of my Mother and her quality of life. I have a lot to be thankful for ~ my Mom showed me love, how to garden, to respect nature, to sew and to cook ~ all the things a loving Mother teaches her children. Sometimes we would go into the woods to look for “lady slippers” so Mom could transplant them into her beautiful shade gardens. I loved to listen to Momʼs stories of her childhood as well as learn about her heritage. My Mother was everything to me and not a day goes by I donʼt think of her in one way or another. Every time I hear a bird, as she would whistle with them, or see a frog of some sort I am reminded of my wonderful Mom. There is a hole in my heart and a void that will never be filled.


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Soulmate, father, brother, uncle, friend, artist, photographer, traveler, crossword solver, walking encyclopedia and Meso Warrior for nearly 7 years‌we hold you in our hearts forever, with love. Love,


Asbestos Disease Awareness Organization sends our sincere appreciation to the 800 participants who ran and walked in honor of the ADAO Virtual Mesothelioma Warriors Team and to the donors who generously gave to support our education, advocacy and community support efforts.


February 201

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The Dream Team!

Speakers: • • • • •

Linda Reinstein, ADAO President/CEO/Co-Founder (CA) Heather Von St. James, Mesothelioma Patient (MN) Julie Gundlach, Mesothelioma Patient (MO) Marilyn Amento, Mesothelioma Widow (PA) $QQDPDULH .HDUQV 0HVRWKHOLRPD 3DWLHQW 87

“Why would you ever pass a bill that doesn't ban asbestos?� Linda Reinstein, president of the Asbestos Disease Awareness Organization, told more than 50 Senate staff members representing 30 senatorial offices.


Asbestos Disease Awareness Organization sincerely thanks HEATHER VON ST. JAMES’

for generously supporting our education, advocacy, and community support efforts Alone we can do so little; together we can do so much. ~ Helen Keller



The Asbestos Disease Awareness Organization sincerely thanks

For keeping the flame of honor, remembrance, and hope burning in the hearts of Mesothelioma Warriors

Jill Vaughn Candle Lighting Tradition,

28 and January 4



The Asbestos Disease Awareness Organization thanks

Barbara Minty McQueen for her commitment to ADAO, support on the Hill, and generous donation of autographed copies of her beautiful photographic memoir Steve McQueen:

The Last Mile Revisited.

Visit www.barbaramintymcqueen.com to view photos of Barbara with her late husband Steve McQueen and order copies of her book.


The Asbestos Disease Awareness Organization Is the Proud Sponsor of Earl Dotter’s “BADGES: A Memorial Tribute to Asbestos Workers” Exhibit

Honoring the Legacies of Dr. Irving J. Selikoff & Clarence Borel Posters on Sale in Support of the Asbestos Disease Awareness Organization


Thank you to Tony Rich for ADAO’s graphic!

ADAO: Education, Advocacy, and Community Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477 www.AsbestosDiseaseAwareness.org


THE INTERNATIONAL ASSOCIATION OF HEAT AND FROST INSULATORS AND ALLIED WORKERS " % & '( $

! # # $

Dr. Phillip Landrigan Recipient of the Dr. Irving Selikoff Lifetime Achievement Award And to

Honor the memory of a union brother Clarence Borel, Local 22

JAMES P. McCOURT

GREGORY T. REVARD

General President

General Secretary-Treasurer

INTERNATIONAL VICE PRESIDENTS William Mahoney Kenneth Schneider Fred DeMartino Terry Lynch Doug Gamble Terry Larkin Mark Selby Vince Engel Patrick Barron

INTERNATIONAL REPRESENTATIVES Robert Hall

Tom Haun

John Conroy

Affiliated with the AFL-CIO, Building and Construction Trades Department, Metal Trades Department and Canadian Labour Congress


The Center for Asbestos Related Disease (CARD) pays tribute to the many unique and special lives lost to asbestos related diseases in Libby, Montana and around the world. CARD commends the work of ADAO and all dedicated global partners who tirelessly work towards banning asbestos and improving treatments and the lives of those still living with asbestos related diseases.


No other journalist in the world has done more to expose the dangers of exposure to asbestos and the criminal malfeasance of the asbestos industry than Paul Brodeur. In 1968, The New Yorker published his pioneering article, The Magic Mineral, about the cancer hazard and other health problems associated with occupational and environmental exposure to asbestos. During the next twenty years, he wrote articles for the magazine that resulted in a nationwide ban on the spraying of asbestos insulation on the steel girders of high-rise buildings, and that exposed the massive cover up of the asbestos hazard engineered for more than half a century by the manufacturers of asbestos insulation and other asbestos products. These articles were used as a road map by public interest attorneys and advocates dedicated to holding the asbestos industry accountable for the lives and families it had destroyed. Mr. Brodeur’s reporting has been invaluable for members of the Environmental Working Group in pursuing our own investigations into the asbestos industry. Our publication of secret internal company documents that detailed decades of the industry’s cover up could not have happened without his groundbreaking work. In addition to highlighting the asbestos problem, Paul Brodeur has written articles in The New Yorker warning of toxic substances in household products, the hazards of toxic chemicals in drinking water, the danger posed to life on earth by man-made chemicals that were destroying the ozone layer, and the cancer hazard of exposure to the electromagnetic fields given off by power lines, as well as to microwave radiation emitted by cell telephones. On behalf of the tens of thousands of asbestos victims and their families, EWG salutes Paul Brodeur for his courageous and relentless pursuit of the truth regarding the nationwide extent of the occupation and environmental hazards posed by exposure to asbestos. Kenneth A. Cook President Environmental Working Group (EWG) www.ewg.org


The Brazilian Asbestos Victims Association (ABREA) salutes the ADAO 12th Annual International Asbestos Awareness and Prevention Conference participants and congratulates the honourees for their outstanding contributions to an asbestos-free world and justice for the victims worldwide.

-Your friends and partners at ABREA



Asbestos Diseases Foundation of Australia is proud to be part of the 12th Annual International Asbestos Disease Awareness Organization Conference

Asbestos Diseases Foundation of Australia (ADFA) is a not-for profit organisation working to provide support to people living with asbestos related diseases, family members, carers and friends. ADFA is a community based group founded by Trade Unions, victims, families of victims, and concerned citizens to meet the needs of people affected by asbestos related disease and has a long history of being engaged in advocacy work within the Australian community. www.adfa.org.au


ENVIRONMENTAL INFORMATION ASSOCIATION The Association’s multi-disciplinary membership will collect, generate and disseminate information concerning environmental health hazards to occupants of buildings, industrial sites and other facility operations.

And we wish you the best of luck in your 2016 endeavors. We appreciate the partnership between our organizations, and look forward to working together to bring an end to the needless dangers of asbestos exposure.

The Environmental Information Association, with its beginnings as the National Asbestos Council, has spent over 30 years at the forefront in providing the environmental industry with the information needed to remain knowledgeable, responsible, and competitive in the environmental health and safety industry.

EIA is holding its 34th Annual Conference, March 25-29, 2017 at the Rosen Shingle Creek in Orlando, Florida! The EIA National Conference is the best source of technical information for Environmental Health and Safety Professionals, in the areas of Asbestos, Lead, IAQ, Mold and EMS/ESA. ENVIRONMENTAL INFORMATION ASSOCIATION 6935 Wisconsin Avenue, Suite 306 Chevy Chase, MD 20815 www.eia-usa.org Phone: 888-343-4342 Fax: 301-961-3094 Email: info@eia-usa.org


Save the Date Sept. 17, 2016 Fifties Theme Cash Prizes Raffles 50-50 D.J. All proceeds benefit the Asbestos Disease Awareness Organization (ADAO). ADAO is the largest independent 501(c)(3) nonprofit in the U.S. dedicated to preventing asbestos exposure, eliminating asbestos-related diseases, and protecting asbestos victims’ civil rights through education, advocacy, and community initiatives.



13TH INTERNATIONAL CONFERENCE OF THE INTERNATIONAL MESOTHELIOMA INTEREST GROUP


“Hear Asbestos. Think Prevention.”™ Global Asbestos Awareness Week (April 1-7) brings experts, activists, advocates, and asbestos victims together to raise awareness in efforts to prevent exposure and eliminate deadly asbestos-caused diseases.

Day ONE - April 1: Asbestos Awareness Week (April 1 - 7) Statement from the U.S. Surgeon General Day TWO - April 2: Women Who Roar, Meet the 2016 Global Asbestos Awareness Week Ambassadors, Heather, Lou, and Mavis Day THREE - April 3: Quincy Jones, Mesothelioma Patient and Comedian, Raises Awareness Day FOUR - April 4: World Health Organization and Elimination of Asbestos-Related Disease Day FIVE - April 5: Find out where asbestos might be lurking in your home, school, community, or workplace Day SIX - April 6: International Workers’ Memorial Day: Remember the Dead and Fight Like Hell for the Living Day SEVEN - April 7: Candle Light Vigil and 2016 Global Ban Asbestos Declaration


APRIL 1-7


e s a e s i D s o t s e y c b s a A c r o o v F d d A , e t i n n o i t U a c “ u d E t r , � o s s p e p n u e S r y a t i n Aw u m m o &C

The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318, Redondo Beach, California, 90278 (310) 251-7477 Registered 501(c) (3) nonprofit organization

www.AsbestosDiseaseAwareness.org



cooking is love Keeping Families Together

– A Recipe for Life – Start with a loaf of HOPE Add a dash of RESILIENCE Season with a pinch of ENDURANCE To live with the challenges of an asbestos-related disease Sprinkle liberally with DETERMINATION And a handful of SPIRIT Cover with COURAGE And always serve on a bed of FAITH Nestled in a platter of LOVE * Poem courtesy of the Center for Asbestos Related Disease

To receive a copy of our new cookbook, please contact info@asbestosdiseaseawareness.org


If you or a loved one have been affected by asbestos and asbestos-related diseases, please share your story. These stories provide hope and comfort to those in similar situations and can spread awareness of asbestos in order to save lives.



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