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Healthcare professionals & Us: add your voice and make a change Since the launch of the & Us voices network at our Annual Conference in April 2015, we have been making strong progress in our children and young people’s participation and engagement at the RCPCH.
The & Us network is expanding its reach to ensure it is truly representative of our service users with different health and healthcare experiences, as well as encouraging those from a range of socio economic and ethnic/cultural backgrounds to get involved. In addition, to harness the enthusiasm of members with an interest in patient and public engagement, we have developed a new Children and Young People’s Engagement Collaborative. This will be in the form of an online portal bringing together engagement leads and professionals from health, as well as those working in social care, education,
government, voluntary sector and professional bodies to: •
provide mutual support and partnership learning
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share best practice (through a quality improvement (QI) site)
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collaborate on consultation responses
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work together for quality improvement
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encourage & Us membership
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help channel extensive and inclusive CYP, parent and carer engagement.
Interested in getting involved? To find out more or to register your interest in the new Collaborative, please visit www.rcpch.ac.uk/and_us and complete our short online application form. For any specific questions and for more information, please contact the Participation and Advocacy Team: and_us@rcpch.ac.uk HANA NAJSROVA CYP Participation and Advocacy Coordinator
Facing the Future: long-term conditions In 2015, the RCPCH published the revised Facing the Future: Standards for Acute General Paediatric Services and the new Facing the Future: Together for Child Health standards.
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making outpatient and GP contacts more valuable and effective for the ICYP
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providing high-quality and responsive networks of care (across health, education, social care)
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improving the transition from children’s to adult services.
This new project, the third in the Facing the Future series, focuses on infants, children and young people (ICYP) with long-term conditions (with one in seven 11 to 15 year olds now having a long-term condition), including their transition from children’s to adult services. Together with four other Colleges, the RCPCH is developing key standards to improve the health outcomes and quality of life for ICYP with long-term conditions by:
As part of the evidence-gathering stage of the project, we would like to hear about new ways of working and innovative service models that have made a difference to patient outcomes.
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empowering ICYP and their parents/ carers to manage their long-term conditions
Please share your examples with us by contributing to our call for evidence: www.rcpch.ac.uk/longtermconditions (closes 19 February). DR DAVID SHORTLAND Clinical Lead ISOBEL HOWE Head of Health Policy