2010-2011 annual report
helping people with disabilities achieve independence! ILC Annual Report 2010-11.indd 1
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table of contents A Message from the President and Executive Director....................................................3 Programs At A Glance: Attendant Services...................................................4 Our Success Stories: James & Donna........................................................5 Programs At A Glance: Community Support Services...............................6 Our Success Stories: Jennifer & Justin.......................................................7 Summary of Revenues and Expenditures.............................................................8 Milestone Staff & Volunteers..........................................9 Special Thanks to All ILCWR Supporters........................................... 10 Board of Directors & Staff Listing............................... 11
vision:
Together, Freedom Through Access and Choice
mission:
To support persons with disabilities by: ■ Facilitating individual growth towards greater independence ■ Creating opportunities to make informed choices ■ Assisting in the removal of barriers to full participation in the community ■ Improving the capacity of caregivers to assist and support them ■ Helping to increase the community’s acceptance and integration of them
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a message from the president and executive director The Annual Report gives us an opportunity to pause and look back over the year, reflect on our successes, and share our accomplishments with the community we serve. In this report you will find not only the descriptions of our programs but real stories of the lives they impact. With our consumers at the heart of everything we do, we are excited to put them front and centre within these pages to paint a living portrait of our activities over the 2010-2011 year. And what an exciting and productive year it has been! Last September, Taposhi Batabyal assumed her new role as President of the Board of Directors, skilfully guiding the Board through an eventful inaugural term focussing on enhancing our governance structure and raising the profile of the organization in the community. In March, ILCWR successfully negotiated and signed a multi-year funding agreement with our major partner and supporter, the WaterlooWellington Local Health Integration Network. This was accompanied by a thorough examination of expenditures within all of our programs and services, to ensure that we are being as fiscally efficient as possible. 2010 also saw the establishment of the organization’s first Employee Relations Councils—four groups of attendant staff members who will bring their unique and important perspectives to twice-yearly meetings with members of the Leadership Team, and create an easy line of communication amongst our increasingly large staff. We were very proud of ACCESS 2010, our hugely successful trade show exhibiting the best in accessible equipment and services for people with disabilities. All proceeds from that show went directly into supporting the delivery of our Community Support Services, including the vital Access Fund, to which our consumers can turn for financial support when they need to purchase equipment that supports their independence. We’re already looking forward to ACCESS 2012 which will take place on September 21 – 22, 2012 at the Kitchener Memorial Auditorium. Finally, we are pleased to announce that ILCWR successfully completed its accreditation process with IL Canada, meaning that we are succeeding in providing the innovative community services associated with being an Independent Living Centre. Through this process our Centre was recognized for our commitment to IL principles and values. We look forward to honouring this accreditation, and continuing all of the wonderful programs that you will read about in the pages to come.
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Taposhi Bayabyal president
Bil Smith executive director
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Programs at a Glance: attendant services ILCWR’s Attendant Services programs are one of the ways that we carry out our mission of helping people with disabilities to facilitate their own growth towards greater independence, and improve the capacity of their caregivers to support them. For the twenty-ninth consecutive year, we are continuing to provide assistance with activities of daily living for consumers of our attendant services, both in their homes throughout the region and at our three Assisted Living projects. These services have improved the lives of countless individuals – to find out how, read the stories of James and Donna, two consumers whose life stories are our tales of success.
outreach “Thanks again for this great service. It has definitely made a difference in our whole family’s lives.”
This year, the Independent Living Centre of Waterloo Region supported 198 individuals with disabilities through our Outreach program. Every day, ILCWR attendants are helping consumers lead independent lives at home, work and school by assisting with personal care, meal preparation, homemaking and all the small day to day tasks that make a big difference. All of these services are directed by the consumer, since no one is more aware of a person’s wants and needs than the person themselves. We make sure that they’re the ones who call the shots — it’s what independent living is all about.
assisted living “The staff here were wonderful about getting me in and settled and making me comfortable. I love it here.”
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ILCWR’s Assisted Living programs offer 24 hour attendant services to respond to ongoing needs and urgent requests. Each Assisted Living project offers twelve to thirteen accessible units where individuals live independently in their own home, while having access to assistance around the clock. The Mooregate, Shamrock and Kiwanis projects, located in Kitchener, Waterloo and Cambridge respectively, operate on the same principles of excellent care and self-direction as the Outreach program, and provided wonderful homes for 35 consumers of our services this past year.
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outreach: james’ story James describes everyday life as running a marathon. On some days, you run the whole race without stopping, and other days, you hit a wall. “My attendant,” he said, “is the person who is able to accept the wall—and make sure I’m at the starting line again the next morning.” Since 1999, James has received support at home through ILCWR’s Outreach program. Though he only requires service once per week, these visits have a profound impact on his life. “I think ILC has a program of attendant care that allows attendants to assist in living life to the fullest, rather than just dealing with its problems,” James said thoughtfully. And living life to the fullest is something he does very well. Born with cerebral palsy in the mid-1940’s, James grew up to earn a university degree in Psychology, and went on to lead a very eventful professional life. Though he retired in 1994, James is heavily involved in several community groups including ILCWR Board of Directors, two book clubs and the Ontario Federation for Cerebral Palsy’s Medical and Housing Committee. When asked how he handles such a full schedule of activities, James cited his attendant as a major influence. “She empowers me. I probably would not have the energy to be there if I didn’t have attendant care.” The relationship that James and his ILCWR attendant share is one of the best parts of the service he receives. She has visited him in each of the three homes he has lived in throughout the past decade, has adapted to the changes that come with aging with a disability, and even attended his wedding in 2002. “I tend to call her the daughter I never had,” he said. “We have a very good relationship.” Clearly, James’ Outreach services extend beyond the personal care, housekeeping and shopping assistance that he receives each week. “My attendant care worker,” he continued, “is someone who understands my journey, and who understands me.”
has a program “ofILCattendant care
that allows attendants to assist in living life to the fullest, rather than just dealing with its problems.
”
assisted living: donna’s story Donna had only a moment to chat when she was interviewed by phone at her apartment. “I find that I’m just so busy all the time!” she said. And she’s absolutely right. Though she has been diagnosed with chronic progressive multiple sclerosis, Donna hasn’t let it hold her back. These days, she’s as active as ever. Donna has clearly mastered the art of living independently with a disability, which is due mostly to her character, but also to a 5-year relationship with ILCWR. She began receiving our attendant services at home in 2006, but as her MS progressed over the following two years, she found that she needed more comprehensive support. “I didn’t want to move into a nursing home,” Donna said. And being in her mid-60’s, she shouldn’t have to. Relocating to a retirement community is often the only option for people with MS or similar conditions, regardless of their age. But ILCWR has an alternative—the Assisted Living program, which offers people like Donna their own accessible apartments in one of three Assisted Living projects. Now, Donna serves on the Board of Directors for her Co-Op Housing Community, participates in ILCWR’s annual Balcony Gardening program each spring, and attends AquaFit classes at the YMCA twice a week, which is as much a social outlet as a physical one. She also spends time with her two grown children, who enjoy their visits to Donna’s new home, and keep in touch weekly by phone. When asked about her experience in the Assisted Living environment, Donna was full of positivity. “ILC is such a fantastic program. I get better vibes, better help, and I like the fact that there’s constant care. If I need anything, it’s just a phone call away!”
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ILC is such a “ fantastic program.
”
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Programs at a Glance: community support services ILCWR’s Community Support Services are instrumental in helping us to achieve our goals of facilitating greater independence, removing barriers and promoting integration, and creating opportunities to make informed choices for people with disabilities. Our spectrum of services has been well-used throughout the year by consumers with any disability, and include‌
information & referral
ILCWR uses a comprehensive database of community resources to provide informational assistance in person, by phone or e-mail to answer any questions from community members with disabilities or their families.
peer resource
This program offers a support network of people and organizations that can help individuals with disabilities to navigate services in the community or pursue personal goals like employment or education.
individual advocacy
One-on-one meetings that empower people with disabilities to become advocates for themselves when it comes to accessibility, housing, financial assistance, transportation and human rights.
food for thought
Twice-monthly workshops on healthy eating and food preparation which provided a fun social and educational opportunity for people with disabilities to learn about cooking and nutrition.
tournament of hope
Our annual golf tournament which raises funds to purchase assistive devices for people with disabilities—now in its 14th year!
public awareness & education
Presentations for kids and adults designed to break down attitudinal barriers by educating the public on disability issues and the importance of accessibility. Through the Beyond Barriers program and our Kids on the Block puppet shows, ILCWR removes obstacles to the full community participation of people with disabilities, one show at a time.
direct funding
Gives people with disabilities added independence by enabling them to become employers of their own attendants. A great way for consumers of our services to develop management and organizational skills and live a truly independent lifestyle!
youth in transition
A weekly get-together of young adults with disabilities which provides an opportunity to socialize with their peers, participate in fun and educational activities and develop valuable life skills to prepare for the transition into independent adulthood.
access fund
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A donor-funded program which provides applicants with financial assistance to purchase necessary equipment and assistive devices.
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food for thought: jennifer’s story Jennifer wasn’t intending to be flattering when she said it. She was only saying what came to mind when asked about the Independent Living Centre of Waterloo Region’s Food For Thought program, which ran throughout the 2010-2011 year. “Food For Thought made me a better cook,” she said, matter-of-factly. Jennifer, 35, found out about the Food for Thought program after becoming an Attendant Services consumer with ILCWR in 2009. Diagnosed with osteoporosis at age 13, she recently moved out on her own, but continues to visit her parents at home—with recipes in hand. While Jennifer is unable to eat the foods she learned to prepare through the Food for Thought program, she has a great time cooking the meals for her parents to enjoy. She is particularly fond of making desserts, and especially likes the challenges brought on by more complicated dishes. For example, not only does Jennifer know what a flan is, she has also learned exactly how to bake one. Food for Thought has both cultivated Jennifer’s culinary skills, and introduced a new and thoroughly enjoyable activity into her life. Plus, it gives her a valued opportunity to take care of her parents, who have always taken care of her and her two older siblings. Food for Thought touched the lives of many during its two-year run, and Jennifer’s story is just the beginning. We would like to express our sincere thanks to the Ministry of Health Promotion and Sport, as well as our chef, Wolfgang Stutz for bringing culinary independence into lives like Jennifer’s!
For Thought “ Food made me a better cook. ”
youth in transition: justin’s story You can’t miss the enthusiasm in Justin’s voice when he talks about the Independent Living Centre of Waterloo Region’s Youth in Transition program. “I’m loving it. I’m loving it completely. Youth Group is the most important activity I do outside home. I will probably be involved with the program until I can’t do it anymore!” Justin, 23, has been involved with Youth Group since he was a participant at age 17. “Yours was the only program that would take me in,” he said. “I was either too highfunctioning or too low-functioning for any others. But at Youth in Transition, everyone is welcome. We accept everybody for who they are.” Justin has nine cognitive disabilities including asbergers, tourettes and bi-polar disorder, but you would never know from talking to him. He is an avid conversationalist, and a mentor and attendant with the Youth Group program—a position he attained through the facilitator’s invitation. Justin talks about the positive effect that Youth in Transition has had on the way he socializes, and also on building confidence which he uses to succeed in his work. Justin, who has been working in food services since 2007, now works on his own during almost every shift, and has mastered every task in the store. “I’m the only person there who knows how to do everything,” he stated proudly. And learning to take on that kind of responsibility is one of the most important elements of adulthood. The Youth in Transition program has been helping young people with disabilities to navigate the path from adolescence to adulthood for over five years. Justin is just one of many participants who has thoroughly enjoyed the program, both as a social outlet and as a place of learning. “It’s a wonderful program. We’re like a big happy family. We all work together like we’re one, and it’s teamwork to the end.”
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Youth Group is “the most important
activity I do outside home. I will probably be involved with the program until I can‘t do it anymore.
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summary of revenues and expenditures Year Ended March 31, 2011
SOURCE OF FUNDS Centre for Independent Living Toronto 1% Independent Living Canada 1%
United Way of KW 1% Fees for Service 4% Donations, Interest, Miscellaneous & Grants 2%
Waterloo-Wellington Local Health Integration Network 91%
REVENUES Waterloo-Wellington Local Health Integration Network $5,611,400 Independent Living Canada 61,378 Centre for Independent Living Toronto (C.I.L.T.) 76,027 United Way of Kitchener-Waterloo 41,300 Fees for Service 274,247 Donations, Interest, Miscellaneous & Other Grants 111,337 _________ TOTAL REVENUES $6,175,689 EXPENDITURES Outreach $3,019,750 Supportive Housing 2,112,191 Community Support Services 282,238 Administration 718,585 Capital Expenditures 19,762 Depreciation* 32,848 _________ TOTAL EXENDITURES $6,185,374 DEFICIT $-9,685 * Depreciation is a non-cash expenditure used to depreciate capital assets on the balance sheet.
USE OF FUNDS Community Support Services 5%
Administration 12%
Supportive Housing 34%
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Depreciation 1%
STATISTICS PROGRAM Community Support Services (Information and Referral, Peer Support, Individual Advocacy) Public Awareness & Education Kids on the Block Beyond Barriers Youth In Transition
Outreach 49%
Attendant Services Outreach Supportive Housing
SERVICE LEVELS 492 contacts
71 shows, 2763 participants 45 shows, 1282 participants 2 x 12 week sessions, 19 participants
198 consumers 118,090 hours 35 consumers 12,697 days
Thank you for your continued support in helping “ those of us that are able to live on our own, manage our own care. It has been an unbelievable blessing to me, and I am truly grateful and thankful.
�
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milestone staff 5 Years Joyce Nieuwesteeg Margaret Marsh Eileen Krampien Anita Boehnke Amanda Shyhinskyj Lauris Nairn Laura Courchesne Joanne Naisby Lavi Lesenciuc Vanessa Henrichs Sarah Holman
10 Years Tina Cole Debra Gomez-Ortiz Socorro Merino Dane Knechtel Natalia Roberts Sandy McDonald Ronald Kolody Rocio Rodriguez Helia Frias Elaine Harron Lori Lilly Lydia Odhiambo
Gene Weber Sandra Gagnon Andrena Lockley-Brown Joan Kroetch
20 Years RuthAnn Wassing Carole Best Lorraine Ottman
15 Years Ed Patterson Ursula Erl Michelle Delsaut James Downham Leanne Schade Jill Anderson
25 Years Darlene O’Brien
Keena Dorion Patti Duke Eltag Elkhalifa Sharron Garrah Justin Gautreau Kathleen Harris Michael Harris Maria Hernandez James Hunsberger
Joshua Kortleve Ashleigh Latimer Joan Mazzanti Gwen McAlister Laurie Modderman Greg Moore Sue Morgan Veronica Nelson Lori Price
care from the attendants of ILC. You and your staff made such a difference; I really appreciate it!
”
volunteers Jessica Barlow Taposhi Batabyal Deb Bergey Judy Bruyn Diego Cantu Ana Cantu Fran Chartrand Diane Chan Elysia Cloet
I was truly blessed “ to have received wonderful
Liz Reuss Alan Slater Innez Snider Peter Snow Carmen Sutherland Elizabeth Templin Gwen Thrower Janet Valentine Angelika Werner
“ I love the Independent Living Centre. I don’t know what I’d do without you.9” ILC Annual Report 2010-11.indd 9
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special thanks to all ilcwr supporters
Tim Allan Patricia A. Allan Fran Allard Janet Allemang Gary & Karen Angst Bonnie Ashley Shirley Baker John & Sandra Balheim Taposhi Batabyal Aden & Joanne Bauman Bell Employee Giving Program Deb Bergey Millicent & Scott Bissett Andrea Boehm Dianne Boston-Nyp Susan Braun Elizabeth Brown Judy Bruyn Ron & Loretta Burke Marion Byron Colleen Cameron Mary E. Cameron Rudy Cerant Michael Collins Shirley Dueck Sandy Duench
Patti Duke Judy Ebenhoeh David Eby Don & Betty Eby Eltag Elkhalifa John Enns Irvin Faruzel Emily J. Finney Joe Fleischman Gary H. Attack Financial Planning Inc John Gazzola Frances Girodat Gordon Linkletter Family Fund Mary Karen Gosselink Angelo Graham Carol Haire Earl & Betty Hebner Estate of Clarence Francis Hehn Ruth Helwig Murray & Norma Herz Ron & Nicole Hohl Linda Huber James Hunsberger Maureen Inch Fred Kinsie
Eileen Krampien Ladies of Redeemer Church John Lord Helen MacGillivray Don & Erie Matthews Tom McGinnis Mennonite Savings & Credit Union Roy & Elsa Millington John & Pat Millo Jadranka Mocevic Greg Moore Sue Morgan Lewis & Idella Nafziger Nashfield Business Park Peter & Anke Naus Optimist Club of Twin Cities Waterloo Region Winfred & Phyllis Oswald François ParÊ David & Wilma Reist Anne Rose & Emil Rektor Research In Motion Elizabeth Reuss Pauline Roth Paula Saunders Patricia Schreiter
Carol Shantz Walter W. Sidler Karoline Sine Bill & Gail Skelly Smart Choice Sales & Leasing Kathleen Smith Clare Snider Katherine Soule-Blaser St. Jacobs Printery Floris Stabler Roy & Bea Steckley Paul & Barbara Stumpf Rod & Ruth Swartz Elizabeth Templin Tom & Barbara Tweedie Janet Valentine Christine Wahl Wallenstein Feed Charitable Foundation Waterloo & Halton Region Elks and Royal Purple Lodge Jim & Brenda Weber Cheryl Wiandtl Joan Williams Stephen Woodworth Derek Wright
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2010-2011 board of directors The operations of the Independent Living Centre of Waterloo Region are guided by its Board of Directors, a group of ILCWR consumers and community members who determine the philosophical direction of the organization and monitor its effectiveness using a policy governance model. Taposhi Batabyal, President Greg Moore, Vice President Deb Bergey Judy Bruyn Patti Duke Eltag Elkhalifa James Hunsberger Sue Morgan Alan Slater Elizabeth Templin Janet Valentine
ILC, I have a better idea of “whereThrough to go and who to ask for help. ”
head office staff Executive Director Bil Smith Human Resources and Finance Director Angela Korn Employee Health Coordinator Christina Churchill Human Resources Coordinator Doug Boucher Finance Coordinator Tracy Spencer Administrative Assistant Joyce Nieuwesteeg Executive Assistant and Community Relations Coordinator Andrew Posen Reception and Information & Referral Jim Ducharme Community Support Services Director Paula Saunders Public Awareness and Education Coordinator Andrena Lockley-Brown Peer Resource and Advocacy Coordinator Dan Lajoie Direct Funding Coordinator Lorene Collingwood Peer Nutrition Coordinator Wolfgang Stutz Attendant Services Director Outreach and In-Home Respite Supervisor Outreach Supervisor Outreach Supervisor Mooregate Supervisor Shamrock Supervisor Kiwanis Supervisor Program Support Program Support
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Daryl Nancekivell Cindy Guy James Downham Karen Mahovlich Allan Russell Sandy Stauffer RuthAnn Wassing Heather Marsh Leanne Schade
again to everyone at ILC “ forThanks always doing so much for
their employees. You go the extra mile to make us feel appreciated.
”
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127 Victoria Street South, Suite 201 Kitchener, Ontario N2G 2B4 Phone: 519-571-6788 TTY: 519-571-7590 Fax: 519-571-6388 Website: www.ilcwr.org E-mail: info@ilcwr.org Charitable #10750 5356 RR0001 This report can be made available in alternate formats, please contact the ILCWR office.
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