CHAPTER
4
Enhancing the Data Reliability Validity, Confidentiality, Privacy, and Consent
This chapter addresses the core elements that pertain to the reliability of survey data, as well as the basic conditions of survey administration, such as confidentiality, informed consent, and privacy, particularly as these relate to work with youth. A fundamental aspect of survey preparation is to ensure the validity and reliability of the data. Accordingly, the first part of this chapter explains various techniques—including the use of biological tests—that can enhance the conditions related to reliability, seeking where possible to reduce bias and increase the accuracy of data collection instruments. This matter is especially delicate in the case of complex issues of youth risk behaviors, such as the measurement of substance abuse and/or risky sexual behaviors. The second part of the chapter discusses conditions necessary for the administration of youth surveys, such as the importance of being familiar with the relevant ethics committees and the kinds of approval required to conduct studies with youth. It also discusses essential aspects of confidentiality and privacy that should be considered during the design and administration of youth surveys. The chapter ends with a detailed description of the characteristics of parental consent and informed consent, and special cases such as studies with groups of youth in reformatories or without identifiable guardians.
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