Brain Tumour Magazine: World Edition 2022/2023

Page 95

Brain Tumour Support Group and Awareness Foundation India celebrates Brain Tumour Awareness Week 2021 Dr Nitin Garg, MBBS, M.S., M.CH (Neurosurgery), Bansal Hospital, Bhopal, India

The International Brain Tumour Awareness Week (IBTAW) is the time of year when various activities are conducted to raise awareness about this medical condition. In 2021, there was active participation and involvement with COVID-19 under control. The second half of this awareness week fell during “Diwali”, an important festival in India. Hence, we conducted most of our activities in the first half of the week to ensure appropriate participation.

a barrier, there was instant connection amongst participants, on listening to her message. Everyone was very pleased with the energy levels and the positivity in the air. This meeting was also attended by other medical specialists and paramedical staff. The entire meeting was telecast live on “Facebook Live”.

Brain tumour awareness-raising on the radio

At last – a physical meeting for brain tumour patients and caregivers

messages and performances through videos. Ms Komal Syed from the Brain Tumour Foundation of Pakistan also participated in this meeting and sent her video message. With language not being

The local Bhopal FM radio channel conducted interviews of patients, caregivers and counsellors and telecast these talks daily for two hours from 31st October to 3rd November 2021. Brain tumour patients and caregivers highlighted the importance of being part of a support group and how it helped them during the critical moments on their brain tumour journeys. ➤

This was the first physical meeting in over 18 months since the start of the COVID-19 outbreak, although throughout the COVID pandemic virtual meetings continued. This was well attended by brain tumour patients and caregivers. They were very enthusiastic in their participation. The participants were well acquainted with each other through the virtual online patient support group meetings which were held every month. They were very happy and pleased to meet each other face-to-face. At our physical meeting, there were talks, dance performances and songs sung during our two hour programme. Those who could not attend shared their

Khusboo Lohan, Neuro-Rehabilitation Psychologist, BTSG Awareness Foundation

Divya Kispotta, Medical Social Worker, BTSG Awareness Foundation

Dr Nitin Garg

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Brain Tumour Magazine: World Edition 2022/2023 by The International Brain Tumour Alliance (IBTA) - Issuu