CONTENTS HAEMOPHILIA FOUNDATION AUSTRALIA
Haemophilia Foundation Australia
3 From the President
23 Pregnancy and childbirth
4 Message from Sharon
24 Von Willebrand disease
5 HFA Awards
26 Living with Type 1 VWD -
Street address: 7 Dene Avenue Malvern East, Victoria, Australia 3145
28 Mild haemophilia
Postal address: PO Box 1208, Darling, Victoria, Australia 3145
6 Bleeding Disorders
Awareness Month 2023
Susie’s story
10 World AIDS Day
29 Rare bleeding disorders
12 2023 Australian Conference
31 Identifying bleeds
13 Conference reflections
32 Pain
15 Hopes for the future -
33 Getting older
Reflections from a parent
17 New haemophilia therapies 19 Women and girls with bleeding disorders
20 The challenges of living
Registered No.: A0012245M ABN: 89 443 537 189
Tel: +61 3 9885 7800 Freecall: 1800 807 173 Fax: +61 3 9885 1800 hfaust@haemophilia.org.au www.haemophilia.org.au Editor: Suzanne O’Callaghan
35 Making career choices
Read National Haemophilia online https://www.haemophilia.org.au/ nationalhaemophilia:
36 Factored In -
Youth at the conference
39 PROBE Australia study
with VWD - Shauna’s story
ISSN: 0818-4933 (Print)
ISSN: 2981-9148 (Online)
New haemophilia booklet The new HFA Haemophilia booklet is now available. The 2023 edition has been revised completely to cover new treatments.
National Haemophilia 224, December 2023
It is a great introductory resource about haemophilia that is very useful for new families and educating others new to haemophilia.
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It covers: • what causes haemophilia • diagrams showing genetic inheritance and how bleeding occurs in haemophilia
• diagnosis • treatment (including new treatments) • carrying the gene alteration • family planning and pregnancy • tips on living well.
Accessing Haemophilia 2023 • download it from the HFA website - https://tinyurl.com/HFA-haemophilia • ask HFA to post you a free print copy - hfaust@haemophilia.org.au Thank you to all of the community members and health professional experts who contributed to and reviewed this booklet.
