Frontdoors Magazine November/December 2022

Page 64

OFFICE DOORS 5:45 A.M. >> PRECIOUS MORNINGS

My 5 year old is in Kindergarten, so I wake up and get myself ready before waking him. I make breakfast, pack lunches for both of us, and then drop him off at school because my husband goes to work much earlier. I love that I get the opportunity to walk him onto campus. He sees his friends on the playground and I see other moms. I leave when the bell rings and head either into the office or work remotely since we work a mixed schedule. 8 A.M. >> EXTERNAL + INTERNAL CONNECTION

I check emails and voicemails when I arrive at the office. Once a week, I meet with other ALS Association executives throughout the country. It’s good connecting with them because it can be a little lonely as the CEO, and it’s great to have a resource and network who understands what you are going through. I like to personally check in with staff — seeing them and getting caught up. Because we are a small staff of nine, it’s important we connect and find ways of working together. I have found that building in the time to talk and see each other really helps, instead of me being isolated in my office. 11:30 A.M. >> THE POWERFUL FORCE OF HOPE

Fundraising is a huge part of my job, whether I am making Photos courtesy of Ben Arnold

A Day With

TARYN NORLEY

an ask or a connection. The majority of our events, which make up 45 percent of our budget, take place at the end of the year. We have a weekly development team meeting preparing for our walks in Scottsdale on Nov. 19 at Salt River Fields and Tucson Speedway on Dec. 3. Once your spouse or parent has been diagnosed with ALS, you are very willing to give to this cause to get rid of it. You don’t want anybody else ever to have to go through what you’ve been through. Friends and families band together to create a community of hope. Our walk becomes the celebration of life and living. I’ll have patients say to me, “I made it. I made it to another walk.” The event becomes their milestone.

President & CEO of the ALS Association Arizona Chapter

1 P.M. >> FINDING STRENGTH IN NUMBERS

When I interviewed for this role 11 years ago, I was asked about my interests and priorities. I expressed my desire to start a children’s program. While children don’t typically get ALS, I’ve seen what happens when they connect with other children. ALS is a rare disease, and a child who is losing their

BY JULIE COLEMAN

62

|

FRONTDOORS MAGAZINE