Disabled Living Newsletter
has been healthcare the 1950’s. en Awards.
Care Home Newsletter
May 2018 March 2018
FUNDING FOR EQUIPMENT Information on grants for individuals and organisations
TOILET TRAINING CHILDREN WITH DISABILITIES Advice from a Children's Specialist Nurse
DONKEYS TO INNOVATORS Timeline exhibition launch & looking to the future
WHY BEN ANDREWS INSPIRES US The importance of an active lifestyle for disabled people
KIDZ TO ADULTZ SOUTH Companies and organisations last 2 stands available
Charity number: 224742
Welcome to our May newsletter The Disabled Living monthly e-newsletter provides an opportunity for our team to disseminate a wide variety of information which we hope you will find useful. This includes information about Disabled Living’s service developments, new equipment, funding sources, hot topics, training and events, and much more. We distribute our newsletter to over 70,000 people and we welcome your contribution. Each edition will highlight the lesser known organisations and charities which will fund
equipment, holidays etc for both adults and children. Did you know there are many hundreds of occupational charitable trusts who will provide grants for equipment? Take a look at page 6. As litigation is on the increase, health and social care professionals may find themselves ‘in the dock’. At the request of our professional colleagues we have developed a workshop to highlight a number of scenarios which you may find yourself in and how you can protect yourself through reporting and recording – page 7 will give you an overview. There is a link to a film made by young people with disabilities on page 11. In the film, our budding filmmakers interviewed older people about their experiences of growing up with a disability and go on to discuss their ambitions for the future. The young people definitely put their own take on script writing and production! This film is the final film of a series of four about past and present services of Disabled Living. Are you good with a needle and thread or sewing machine and want to make your television debut? If so go to page 17 to find out more! We have some very interesting service developments we want to share with you, which we will launch over the coming months. We will be sending you an email later this month to ask how you prefer us to contact you in the future. Look out for the email! Debra Evans, Chief Executive
Explore our key features New companies, new equipment – new entries on the Supplier Directory...........................5 Looking to fund the purchase of equipment – grants for individuals.....................................6 New Workshop for Health & Social Care professionals ‘In the Dock’ – What to expect if you are called to give evidence.............................................................................................7 Grants for Organisations.......................................................................................................9 From Donkeys to Innovators Exhibition launch....................................................................10 A film like no other – young people with disabilities interviewing older.................................11 people with disabilities Free CPD seminars at Kidz to Adultz South.........................................................................13 Toilet training children with disabilities..................................................................................14 BBC's The Great British Sewing Bee....................................................................................17 Active lifestyles for disabled people......................................................................................18
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Disabled Living's Services
Watch Our Donkeys to Innovators Film
Disabled Living is a charity which provides impartial information and advice about products, equipment (assistive technology) and services for disabled children, adults, older people, carers and the professionals who support them. We have a range of services which you can access via our helpline, through the website or at our Kidz to Adultz Exhibitions. Equipz The team comprise occupational therapists, trusted assessors, moving and handling specialists, physiotherapists, nurses, continence specialists who together with knowledgeable information co-ordinators offer practical solutions to what may seem like unmanageable problems. The staff, respond to enquiries throughout the UK, primarily via our helpline and website, with some people opting to make an appointment to visit the Disabled Living Centre based in Manchester for a free equipment assessment. Helpline: 0161 607 8200 Bladder and Bowel UK The team provide information and advice for children, young people and adults with Bladder and Bowel problems. We provide a confidential helpline managed by a team of specialist nurses and knowledgeable information staff. In addition, the website offers a wide range of downloadable free resources. Helpline: 0161 607 8219 Kidz to Adultz Exhibitions Disabled Living organise the largest FREE UK exhibitions totally dedicated to disabled children, young adults, their families, carers and the professionals who support them. With over 100 exhibitors at each event, offering a ’One Stop Shop’ for equipment products and services to enhance the quality of life. We deliver 5 events throughout the UK in: Farnborough, Bristol, Coventry, Manchester and Edinburgh. Training Disabled Living provides a comprehensive training programme for professionals and carers. Most of our courses are accredited by Open Awards and others provide CPD opportunities. Our training courses can be ‘tailor made’ to suit your organisations requirements and can be delivered throughout the UK for more detailed information on the courses we provide please visit the Disabled Living website.
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www.disabledliving.co.uk
0161 607 8200
Disabled Living Supplier Directory
The Directory provides information about companies and organisations that provide equipment, products and services to support disabled children, adults and older people. Access to the Supplier Directory is via the Disabled Living website.
This month we welcome...
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Grants for Individuals Disabled Living has access via the Directory of Social Change to over 1,500 charities who provide grants to children and adults. The grants may range from £10 food vouchers to larger contributions including grants for domestic items such as washing machines, wheelchairs and housing adaptations. Via the Equipz helpline we may be able to assist you or your clients to access funds which may be available from: General Charities Illness and Disability Charities
Charities by Beneficiary
Livery Companies, Orders and Membership Organisations
Occupational Charities
Armed Forces Charities
Eligibility Children (aged 18 and under) who have disabilities or are sick or disadvantaged. Applicants must be permanently resident in the UK. Types of Grant Grants of between £100 and £6,000 can be made to both individuals and organisations for medical, basic care, mobility or sensory play. This can include monitoring equipment, feeding tubes or hoists, or specially adapted car seat for example. Click for more information.
Eligibility People with motor neurone disease, living in England, Wales and Northern Ireland. Types of Grant The charity offers a range of grants including those of mobility aids: adaptations to buildings: holidays and advice and counselling. Potential applicants are advised to visit the charity’s website and read through the MND support Grant Guidance and Process Information. Click for more information.
Eligibility Children (aged 18 and under) who have disabilities or are sick or disadvantaged. Applicants must be permanently resident in the UK. Types of Grant Grants of between £100 and £6,000 can be made to both individuals and organisations for medical, basic care, mobility or sensory play. This can include monitoring equipment, feeding tubes or hoists, or specially adapted car seat for example. Click for more information.
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In the Dock with an Expert Witness NEW COURSE!
Recording keeping Your responsibilities
Reporting
Civil negligence
Expert witnesses and solicitors
Improve your practice
Come to this workshop and find out what it feels like when asked to be in court! There are different scenarios which could end up with someone being summonsed as a witness. Whether it is a coroner's court or a civil negligence case this workshop will help you to understand what will be required and how to improve your practice so that a court appearance will be less intimidating. Using real life scenarios, expert witnesses and solicitors will lead you through the process and highlight areas you can improve and share good practice in. On this interactive day you will work on a project which culminates in you appearing in the dock in front of a Judge and Jury. Find out how to protect yourself in your reporting and recording at work, what your responsibilities are and how to be confident in your work and not be afraid of being taken to court. Please visit our website to book your place and for more information. If you require more information please email: training@disabledliving.co.uk.
Date: Tuesday 2nd October Venue: Redbank House, St Chads Street, Cheetham, Manchester, M8 8QA Price: Cost: ÂŁ35 + VAT (includes light lunch and refreshments) 7
Training dates for your diary Moving and Handling 5 Day Date: Wednesday 12th, 19th, 26th September and Thursday 4th & 11th October Venue: Disabled Living, Burrows House, 10 Priestley Road, Worsley M28 2LY Price: £650 + vat (includes light lunch and refreshments, Open Awards registration and extensive handouts). The trainers and assessors course will give you knowledge and confidence to perform your role as a manual handling trainer and assessor. More information and dates can be found here.
Trusted Assessor Refresher Date: Thursday 21st June and Thursday 6th September, and Tuesday 2nd October Venue: Disabled Living, Burrows House, 10 Priestley Road, Worsley M28 2LY Price: £95 + VAT (includes lunch and refreshments) During this refresher you will: review Framework Document, explore and review the boundaries to your practice, and reflect on Risk Assessments within the environment. This is a practical session covering all equipment taught to refresh or identify issues when completing assessments. Book online here.
Moving & Handling Children Date: Tuesday 9th October Venue: Burrows House, 10 Priestly Road, Worsley, Manchester, M28 2LY Price: £95 + VAT (includes lunch and refreshments) This training is to enable you to work with children more effectively to maximise their skills and independence. View more information here.
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Grants for Organisations Disabled Living has knowledge of a wide range of charities who provide grants to organisations. Each month we will highlight new funding opportunities.
Arts Council England’s Catalyst Small Grants Scheme Funding is available to help arts and culture organisations build their fundraising capacity so they can attract more private giving to the sector. Arts Council England's new £3 million Catalyst Small Grants scheme is now open to applications. The scheme provides one-off grants of between £10,000 and £30,000 to not-for-profits arts and culture organisations, museums, and libraries to build fundraising capacity to enable them to attract more private giving to arts and culture. Read more.
Changemaker – Santander - £200,000 for UK social enterprises Changemaker is a fund to help social enterprises, small charities and community groups to deliver projects in the UK that create innovative solutions to improve communities. Santander has £200,000 to support projects that help disadvantaged people to have confidence in the future by building skills and knowledge or innovative ideas that help communities prosper. Read more.
Ford Britain Trust Ford Britain Trust is committed to supporting the communities they work and live in. That’s why they have created the Ford Britain Trust in April 1975 to help fund the education and advancement of their neighbours. Ford Britain Trust pay special attention to projects focusing on education, environment, children, the disabled, youth activities and projects that provide clear benefits to the local communities close to their UK locations, which includes Manchester. Read more.
People's Postcode Trust Funding is available to help arts and culture organisations build their fundraising capacity so they can attract more private giving to the sector. Arts Council England's new £3 million Catalyst Small Grants scheme is now open to applications. The scheme provides one-off grants of between £10,000 and £30,000 to not-for-profits arts and culture organisations, museums, and libraries to build fundraising capacity to enable them to attract more private giving to arts and culture. Read more.
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Donkeys to Innovators: 120 Years of Disabled Living
The Lord Mayor of Manchester and the Ceremonial Mayor of the City of Salford raised a toast to Disabled Living in officially opening our exhibition. The exhibition comprises a timeline highlighting our heritage, together with the opportunity to view some of our archived materials. It celebrates 120 years of independence and innovation by our charity. Ana Osborne from the Heritage Lottery Fund and Kui Man Gerry Yeung OBE DL, President of Disabled Living, also gave a speech. We encouraged people to write their ideas for the future on our Innovation Tree. It was great to see many guests adding their ideas on the leaves. Throughout the year, we’ve made a series of short films primarily about the services we have provided. Another film was produced by young people with disabilities and additional needs. They interviewed older people and discussed their aspirations for the future. Cherylee Houston (Izzy Armstrong from Coronation Street) worked with the young people during their filming adventure. We also interviewed a number of people who shared their memories of our charity. These oral history interviews are available to listen to via SoundCloud. We’ve had staff members, community curators, designers, printers, oral history experts, film makers, archivist, Heather Roberts, and creative cultural consultant, Claire Turner involved in the project. And we’ve also had members of the 10
public, social media tweeters, and new volunteers that have been amazed by the facts we’ve discovered. Through our marketing, events, and word of mouth, we’ve really generated a lot of engagement with our history. Debra Evans, Chief Executive of Disabled Living said: I’ve enjoyed meeting new people and hearing their stories. It’s amazing to see how one story leads onto another story. There’s so many fascinating facts I’ve come across throughout this project. Thank you to everybody who has made From Donkeys to Innovators a huge success.
Watch our Donkeys To Innovators Film
Watch Our Donkeys to Innovators Film
SEPTEMBER 2017
Please click here to subscribe to our YouTube channel.
Public viewing dates for Exhibition Our next public viewing date to visit our Exhibition is on Thursday 24th May 6.00pm until 8.30pm.
For future viewing dates please contact Redbank House on 0161 214 5959. We look forward to seeing you.
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Kidz to Adultz South - Free CPD Seminars Seminar Room 1
Seminar Room 2
10.30am Motability Awareness and How the Dealer Can Help Christopher Edwards, Motability Ambassador Ford Motor Company Stand No: CZ7
10.30am Education and Healthcare Plans - Update and Imminent National Changes and What This Means for You Laxmi Patel Partner and Head of Education Team Solicitor – SEN Legal Expert, Boyes Turner LLP Stand No: D14
11.30am Managing Continence in Schools Davina Richardson Children’s Specialist Nurse RGN / RSCN BSc (Hons) Bladder and Bowel UK – Disabled Living Stand No: B2 1.00pm Your Guide to Flying with a Disability Graham Race Service Lead, QEF Accessible Aviation – Tryb4uFly. Stand No: V25 2.00pm Single Handed Care: Friend or Foe? Jo-anne Webb Senior Lecturer in Occupational Therapy, School of Health Sciences University of Salford Stand No: G28 3.00pm Early Intervention Sheila McNeill Paediatric Neurodevelopmental Physiotherapist VIDA from Leckey Stand No: B0
11.30am Paediatric Postural Seating Assessment Tips Joanne McConnell OT & Category Sales Manager – Mobility, Etac R82. Stand No: D0 1.00pm Challenging Behaviour and Supporting the Family in the Home Karen Talty ABA Consultant, BeyondAutism Schools. Stand No: V14 2.00pm How to Use the Law to Improve Equipment Provision for Disabled Children Carrick Brown Senior Manager – Care Services Department Newlife the Charity for Disabled Children Stand No: V42 3.00pm Understanding and Managing Sleep and Our New Sleep Publications Laura MacDonald Sleep Practitioner Cerebra Stand No: V22
COMPANIES & ORGANISATIONS LAST 2 STANDS AVAILABLE! CLICK HERE.
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Raising Awareness of Toilet Training Children with Disabilities
Toilet training is an area of normal child development that causes anxiety for many families. However, when a child has a disability it is an even bigger hurdle for parents and carers, although the children, particularly those with learning or sensory disabilities are not usually concerned.
Don't miss out on...
Often families are advised that they should not worry about toilet training until the child appears to be ready for this stage of learning. However, there is no clear definition of what is meant by ‘being ready’. There are some signs that are quoted, such as knowing when their nappy needs changing, asking to wear normal pants, or asking for the toilet. Children do not often reach this stage by themselves and many will not understand that they should be doing something different from what they have been doing since they were born. For many, signs of readiness for toilet training are not present until the children have actually started a toilet training programme. What we suggest At Bladder and Bowel UK, we suggest that toilet training should be started early for most children, including those with disabilities. 14
To toilet train a child needs to learn a set of skills including communicating the need to go, managing their clothes and learning to sit on the toilet or potty. With appropriate support children can start to learn these skills from their second year. Toilet training does not necessarily get easier as children get older – it might get more difficult if they don’t see why they need to change something that is working well for them. If toilet training is delayed, for whatever reason, children should be offered assessment to ensure that their bladder and bowel are healthy. Children with disabilities are more prone to constipation, which may in turn cause bladder problems. Without assessment these problems may be missed. Further support is available For children who need assistance with using the toilet or who need to be changed, there are disabled toilets in the community, which have
more space, privacy and are quieter than public toilets. Most of these are part of the National Key Scheme and can be accessed independently by people with disabilities who have a RADAR key. Keys can be purchased from Disability Rights UK. There are also toilets with adult-sized hoists and changing beds. These are known as Changing Places. To see a full list of these, visit their website. Speak to your child’s health care professional if you are concerned about your child’s toilet training or would like support. There is also information about toilet training on the Bladder and Bowel UK website available here. You may also contact our confidential helpline at email: bladderandboweluk@disabledliving.co.uk or on telephone number 0161 607 8219.
Davina Richardson, Children's Specialist Nurse
World Bedwetting Day
Tuesday 29th May 2018 is the fourth year for World Bedwetting Day Bedwetting is now a recognised medical condition from aged 5 years. Studies have identified that left untreated bedwetting can have a serious detrimental effect on the child’s self-esteem, emotional well-being and day time functioning, including school and social performance. Also, the impact on the child and their family is often underestimated and trivialised. View our resources online for more information here.
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Product Demonstrations at the Disabled Living Centre Everybody is welcome to attend our FREE Wednesday afternoon demonstration days 2.00pm - 3.00pm. Attending our product demonstrations will help you improve your equipment knowledge and boost your CPD. Places are limited. Please advise if you are interested in attending. 9th May - Yorkshire Care Yorkshire Care will demonstrate a range of their products including: rise and recline chairs. 23rd May - Clairmont PLC Clairmont PLC will demonstrate a range of dementia friendly equipment including: clocks, tableware, and daily living aids. 30th May - Murrays Aktiv UK Murrays UK will demonstrate the safety sleeping system. 6th June - Medipage/Easylink Medipage/Easylink will demonstrate telecare equipment including: Fit watches – which reads blood pressure as well as all the other functions of a fit watch, epilepsy products, and sensory products.
Home Delivery Service & Free Radar Key Bladder and Bowel UK is a service of Disabled Living and provides support for adults, children and young people with bladder and bowel problems. We are working in partnership with Bullen Healthcare to offer people a home delivery service for stoma, urology and wound care appliances. Bullen Healthcare can also provide medication prescriptions for customers using their home care delivery service. The Bullen Healthcare team take care of everything including dealing with the GP and keeping you informed throughout. Available free with every order: Wet wipes Dry wipes Scentees Sealaway disposable bags Bed pads Hand sanitiser 16
Available on request or with your first order: Radar key Mattress protector Mirror
Free phone: 0800 0315411 Email: bbuk@bullens.com
Visit Disabled Living's Online Shop
Visit: www.disabledliving.co.uk/online-shop/ or call: 0330 053 5930.
We are delighted to be working in partnership with Complete Care Shop to provide you with a comprehensive online shopping facility for equipment and products to make life easier. Complete Care Shop has over 250,000 in stock items at competitive prices offering you choice from a wide range of manufacturers including mobility aids, daily living products, continence supplies together with telecare and telehealth equipment. In addition, Complete Care Shop has a reputation for excellent customer service which made the decision to enter into this partnership an easy decision to make! The main advantage of purchasing via the Disabled Living website, is the opportunity for you or your clients to speak to Occupational Therapists or Continence Specialists for free impartial help and advice, ensuring unnecessary purchases are not made.
Importance of an Active Lifestyle for Disabled People
Ben has created a whole new project which involves his series of videos, ‘Breaking Barriers’. These look at topics such as, transport as a barrier to an active lifestyle for disabled people and supporting disabled people with exercise. We thought this would be a worthwhile opportunity to talk to Ben about his story and what it means to help disabled adapt a more active lifestyle. Can you tell us about Empower’s story? I started working on Empower when I was 17years-old. I gained my Level 2 Gym Instructor qualification and started supporting family members with visual impairments at the local gym. I often thought that, there’s got to be more people in this position with a disability who could benefit from increasing their fitness but might need some support to do so. So I started volunteering around Salford, delivering health lifestyle sessions for people with a range of disabilities; wheelchair users, people with learning disabilities, deaf people and people with hearing impairments and got a real feel, and buzz, for adapting sessions to meet people’s needs. I also assessed what was available for disabled people to keep active and found there to be a real lack of opportunities. 18
I tried to put a report together at about 19-yearsold to state a case for a disability specific gym instructor. I’d never written a report. It had no rationale, no evidence base, and I wasn’t really sure what to do with it so unsurprisingly it didn’t go anywhere. But I knew what I wanted to do and why, so I didn’t give up on it. Knowing I’d need more knowledge and experience to make this work I approached Salford University and explained my plans and was granted access onto an Exercise and Health Sciences degree. What does working for Empower Health mean to you? Even though I’ve only been contracted to deliver it over the last 2 years, it’s been a massive part of my life for coming up to 9 years now. So it means a lot to be able to do something I’ve wanted to do for so long and worked so hard towards.
This is something I’m passionate about; I couldn’t imagine doing anything that doesn’t support disabled people to lead healthier lifestyles in some way so I’m very grateful for the opportunity. What inspired you to get into this area of work? I suppose first off growing up around disability has given me a bit of a different mindset and perspective on what disability is and the barrier society presents. It’s something that families have always overcome and I’d hope to support others to do so. Secondly, I don’t think its right that anybody should be at any worse odds health wise based on something they have no control over. Disabled people face massive health inequalities and in many cases it’s not down to the actual disability but due to the barriers disabled people face when trying to manage their health. For example, there is no physiological reason that people who are blind should be overweight or obese, but they are at increased risk of being, due to the lack of opportunities they have to maintain a healthy weight through activity. Finally, and from my point of view the most important, I hope to change perceptions from both nondisabled people and disabled people. From my experience, both in many cases don’t acknowledge that disabled people can keep active and lead healthy lifestyles. It feels like there’s an expectation that disabled people cannot be healthy or active, so there’s no planning in place for them to do so. I’d hope that by creating a platform to showcase disabled people keeping active and exposing both groups to this, that over time, this perception will change and it’ll no longer be an afterthought. What does working for Empower Health mean to you? Even though I’ve only been contracted to deliver it over the last 2 years, it’s been a massive part of my life for coming up to 9 years now. So it means a lot to be able to do something I’ve wanted to do for so long and worked so hard towards. This is something I’m passionate about; I couldn’t imagine doing anything that doesn’t support disabled people to lead healthier lifestyles in some way so I’m very grateful for the opportunity. What advice do you have for people with disabilities that want to get more active? I’d say look for local opportunities, not always disability specific, mainstream integrated groups, activities and venues. Services have a duty to make reasonable adjustments to accommodate your needs and it’s important that you exercise this to support a healthy lifestyles. There are loads of barriers, which will affect this which I’m happy to talk about and give my tips and experience on overcoming these. I’m actually doing a series on Breaking Barriers to an Active Lifestyle on my Actsion YouTube channel for anyone who would like to learn more. 19
Get in touch with us
For more information please visit: www.disabledliving.co.uk
Disabled Living Head Office - Disabled Living, Burrows House, 10 Priestley Road, Wardley Industrial Estate, Worsley, Manchester M28 2LY Tel: 0161 607 8200 Email: info@disabledliving.co.uk Website: www.disabledliving.co.uk
Redbank House Redbank House, 4 St Chads Street, Cheetham, Manchester M8 8QA Tel: 0161 214 5959 Email: info@redbankhouse.com Website: www.redbankhouse.com