Thrive November/December 2018 by DFWChild

thrive DALL AS-FORT WORTH

VOL. 10 ISSUE NO. 6

NOVEMBER/ DECEMBER 2018

A RESOURCE FOR FAMILIES LIVING WITH LEARNING DIFFERENCES AND SPECIAL NEEDS

HOW TO HANDLE TOUGH BEHAVIOR

5 LAWS YOU NEED TO KNOW NOW

MEET MOM NEXT DOOR

ELENA DAVIS & SON LUKE

MUST-HAVE SPECIAL NEEDS RESOURCES

THE NEXT STEP IS YOUR CHILD READY TO LEAVE HOME?

PUBLISHED BY

DFW

Pediatric Nursing and Therapy

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pages

VOL. 10 NO. 6

features

departments

14 WHAT’S NEXT?

When a child grows up, parents must

decide whether independent living is a pipe dream or a possibility. words Kelly Wooley

18 IN THE KNOW

5 Laws every parent of children with special needs should know

words Alexandra Allred

TAKE NOTE

5 The Heat of the Moment 6 All-Ability Jobs 6 Zip It! 6 The Value of Normal

REAL MOMS

9 Mom Next Door: Elena Davis 12 Mommy Diary: Kim Martinelli

KID CULTURE

column

21 5 Things To Do in November & December

26 WINNING MOMENTS Tales of local moms celebrating their

family’s seemingly small wins

DIRECTORY

22 Directory of Special Needs Resources

compiled by Lisa Salinas

COVER PHOTOGRAPHY Nick Prendergast

staff box Publisher/ Editor-in-Chief Joylyn Niebes

Creative Director Lauren Niebes

Editorial

MANAGING EDITOR Carrie Steingruber ASSOCIATE EDITOR Alexis Manrodt

ASSISTANT EDITOR Lisa Salinas CALENDAR EDITOR Elizabeth Smith

Art

GRAPHIC DESIGNER Susan Horn ART ASSISTANT Bailey Sampson

Advertising

PR/Marketing

ACCOUNT EXECUTIVES Alison Davis, Kristen Gramling, Maggie Marston, Nancy McDaniel, Sandi Tijerina

MARKETING ASSISTANT Corey Tate

ASSOCIATE PUBLISHER Diana Whitworth Nelson

ADVERTISING COORDINATOR Alexa Wilder

AUDIENCE DEVELOPMENT DIRECTOR Candace Emerson

Administrative

BUSINESS MANAGER Leah Wagner OFFICE MANAGER + DISTRIBUTION Robbie Scott

DFWThrive is published six times a year by Lauren Publications, Inc. Address: 4275 Kellway Circle, Ste. 146, Addison, TX, 75001. Phone: 972/447-9188. Fax: 972/447-0633. Online: dfwchild.com/Thrive. DFWThrive is distributed free of charge, one copy per reader. Only DFWThrive authorized distributors may deliver or pick up the magazines. We reserve the right to edit, reject or comment editorially on all material contributed. We cannot be responsible for the return of any unsolicited material. DFWThrive is ©2018 by Lauren Publications, Inc. All rights reserved. Reproduction in whole or part without express written permission prohibited.

november/december 2018

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Helping families sleep soundly At the Pediatric Sleep Institute, we understand that a sleep or neurological disorder of a child affects the entire family. Our team of board-certified specialists provide a comprehensive evaluation of Neurology and Sleep and Wake Disorders in children ages newborn to 18 years of age. For those requiring an over-night sleep study, we offer five child-friendly rooms equipped with a second bed for a caregiver to spend the night. Talk with your physician about a referral to the Pediatric Sleep Institute. We look forward to helping your family sleep soundly.

A Department of Texas Health Center for Diagnostics & Surgery

6020 West Parker Road Suite 325 Plano, Texas 75093 P (972) 403-2878 F (972) 419-8190 pediatricsleepinstitute.com

At the Pediatric Sleep Institute, children with special needs such as developmental delays/intellectual disability, and neurodevelopmental disabilities are tested in a warm and caring atmosphere. Medical conditions which may require a sleep study include:

ADHD Asthma Cardiac disease Depression/Anxiety Diabetes Down syndrome GERD Hypertension Hypertrophy of tonsils Obesity Pulmonary artery hypertension Seizure disorder Sickle cell anemia

Texas Health Center for Diagnostics & Surgery is a licensed physician-owned hospital as defined by Federal Law. The hospital is affiliated with, but not controlled by Texas Health Resources or its subsidiaries. Some of the physicians on the medical staff own a financial interest in the facility. Physicians on the medical staff who provide services operate as independent medical service providers.

NEWS

take note

ETC.

child is less like to clamor for your attention. LIMIT CHOICES

The Heat of the Moment How to act when your child is acting out WORDS ASHLEY HAYS

E’VE ALL BEEN THERE.

You’re out running errands with your child, and you need to stop at Target. This wasn’t on the schedule, but you’ll just run in and out, right? Cue the dramatic public meltdown. To our chagrin, grandma’s foolproof tips don’t always work for kids with special needs, so we went to the experts (and two seasoned moms) to seek out some in-the-moment resources for dealing with your child’s tough behavior.

PLAY DETECTIVE

Robyn Needham, an Argyle mother of four (two with special needs) reiterates how important it is to figure out the source of the behavior before acting on it. “You have to differentiate whether the negative response is stemming from overstimulation, a skill deficit or simply wanting your time or touch,” she says.

For children with anxiety, SPD or autism, less is more. Narrowing their choices removes the pressure of decision-making. “Try to provide win-win choices to your child in order for them to feel a sense of control,” suggests Kugler. Asking whether she want to wear her blue shirt or red shirt gives your child thechance to make an independent decision without being overwhelmed by possibilities. Know Your ABCs Limiting choices may also Analyze your child’s behavior help your child communicate by reciting your ABCs: ANTECEDENT: What happened their needs. Fort Worth mom Corey Nunez uses yes-or-no immediately before the behavquestions with her 5-year-old son ior? Identify the trigger. BEHAVIOR: What was your AJ, who has childhood apraxia child’s reaction? Study your of speech. “I can’t ask him openchild’s response. ended questions like ‘What do CONSEQUENCE: Was there a you want me to pack you for reinforcing outcome? Gauge lunch tomorrow?’” she explains. whether your reaction diffused “Instead, I ask, ‘Did you like what or fueled the issue. Kugler says I made you today?’ or ‘Do you it’s important to keep your want cheese crackers again?’” emotions at bay and limit your words and eye contact—strategically ignoring undesired behavior can be as effective as positive reinforcement. Learn more at the Proactive Behavior Support Strategies workshop on Jan. 17, 2019, at the Early Childhood School in Frisco.

This may require detective work if your child has difficulty verbalizing the source of his distress. “It’s frustrating to know what you want but not be able to tell an adult,” says Madison Jones, a speech-language pathologist intern for Dallas Independent School District. “We have to switch the focus from the acting out, to allowing the amount of time it takes for them to communicate what’s bothering them.” Colleen Kugler, a Frisco ISD in-home/ parent trainer, adds that when identifying the source of a behavior, look at the amount of sleep, nutrition and exercise your child is getting, as well as the amount of attention. “Everyone needs a certain amount of attention throughout their day,” she stresses. “Whether it’s negative or positive, your child is going to get that attention from you no matter what.” Kugler suggests ensuring your child receives positive attention daily. That way when you have to take a phone call your

REDIRECT

Avoid environments that are stressful for your children, when possible, Needham says. “If it’s unavoidable, then try redirecting their focus elsewhere.” She suggests giving them a book to read or preparing a snack together. Visuals can be effective too. Mandy Jenkins, transition coordinator for the White Settlement ISD, suggests creating a keychain with pictures to redirect inappropriate behavior. “Instead of repeating ‘Sit still, please,’ you can show them a picture of what they should be doing at that moment, such as reading quietly to themselves,” she says. She and Kugler both recommend the “First this, then that” approach, which tells the child what is expected of them in order to receive what comes after. “In order to be effective, the ‘then that’ part of the equation needs to be an item or activity your child most desires,” Kugler says. Be careful not to confuse reinforcement with bribery: Bribery says “If this, then that” and tells your child that the reward doesn’t have to come after the directive. Be firm and clear about what you expect from your child, and what she can expect from you in return— after her part is completed. november/december 2018

thrive

take note

Zip It!

The Value of Normal

What makes us valuable? Is it our

Carrigan, who struggles with loneli-

normalness, our abilities or simply

ness and depression, sets out across

that we are loved? Those are the questions that Annemarie Normie normiefilm.com

the country to interview people of all abilities—including former Thrive

Carrigan, a recent gradu-

Mom Next Door Katie Anderson—

ate of Highland Park High

and learns that everyone’s journey is

School who has Down syn-

meaningful no matter their abilities

drome, poses in NORMIE. The not-for-profit documentary,

or limitations. Neale and crew are accepting donations from $25 to help

directed by Southern Methodist

fund final edits; visit normiefilm.com

University alum Kurt Neale, is set

to contribute and view the trailer.

for release in February. In the film,

(Pro tip: Have tissues close at hand.)

Finding kids’ shoes that are easy to put on can be a stumbling block—especially when you can’t try them on before you buy. However, Nordstrom at NorthPark Center and Kids Foot Locker at Stonebriar Centre now carry kicks from BILLY FOOTWEAR. Thanks to a wraparound zipper, the top of each BILLY shoe flips completely open so your child can step right in. The laced hightops and lowtops can then be tied with just the right snugness, and all styles come with removable, cushioned footbed inserts. Choose from seasonal colors like gray, denim and forest green or a black-and-white floral print. Have a big kid to outfit? Adult sizes are available online from Zappos and Amazon. BILLY Footwear, from $45 Nordstrom 8687 N. Central Expressway, Dallas, 214/231-3900 Kids Foot Locker 2601 Preston Road, Frisco, 469/362-8294 billyfootwear.com

ALL-ABILITY JOBS

at Sylvan Thirty is hiring people of all abilities to bus tables, serve food and run the DJ booth—a nod to the restaurant’s namesake, a musical savant who has Down syndrome and is the cousin of manager Lou Olerio. The sandwich and smoothie shop with roots in Rhode Island features brews from Oak Cliff Coffee Roasters as well as eats like the Bee Nana, a peanut butter, banana and honey sandwich. If this sounds like a fun gig for your loved one, click “Work With Us” on the website to submit a cover letter and résumé. Same goes for H U G S G R E E N H O U S E , the newest project from McKinney sandwich shop Hugs Cafe. Managers Bill Crump and David Shelton are hiring part-time teammates age 18 and older to grow fall and spring flowers; responsibilities include planting, labeling and watering. If your loved one wants to cultivate a green thumb, pick up an application from Hugs Cafe, and find flowers for your own garden at the greenhouse on weekends through Nov. 11. —Jessica Myers Shayna’s Place 1868 Sylvan Ave., Dallas; shaynasplace.com Hugs Greenhouse 3054 County Road 205, McKinney, 972/670-2062; hugscafe.org/greenhouse

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PHOTOS COURTESY NORMIE; HUGS CAFE; BILLY SHOES

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november/december 2018

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Which sensory-friendly theaters are near me? We have an answer for that.

Get your most-trusted special needs resource delivered to your inbox. Sign up at dfwchild.com.

LOCAL

real moms

STORIES

Mom Next Door

but they never dreamed Down tiple children,” says Davis. “It takes patience syndrome would be in picture. and time to figure it out, but it is what it is. Once the initial shock subsided, Life in general is a balance. We’re all out there Davis, now 44, sprang into action, dealing with different challenges, just doing researching resources and the best we can as mothers.” DID YOU AND PETER ALWAYS assimilating herself WANT TO HAVE A FAMILY? We into Dallas’ Down always wanted children, but we syndrome comhad to agree on the number. munity. “Having any child is We both come from families Before long, WORDS NICOLE JORDAN of four. I wanted four and 6-year-old Lily life-altering. Our lives PHOTOGRAPHY NICK PRENDERGAST he wanted two, so we agreed and 4-year-old did a complete 180, on three. Liam came but I feel blessed to WHAT WENT along, and IGHT YEARS AGO, Elena Davis THROUGH YOUR MIND the Lakewood mom found be a mother.” welcomed her first child, Luke, WHEN YOU FIRST HEARD herself busier—and more fulwho has Down syndrome, and life THE WORDS “DOWN filled—than ever. changed forever. SYNDROME”AFTER LUKE WAS These days, Davis, an SMU law Since meeting at Southern BORN? I felt shocked, confused and school alumna who briefly worked as a Methodist University, Davis and her husband lobbyist in Austin, balances caring for her crew alone. It was the fear of the unknown because Peter, an internist and sports medicine physiI had no idea what Down syndrome actually with caring for herself through her favorite cian, had carefully planned their future togethmeant. The not knowing is scary. But as we pastime: teaching dance fitness. er. They imagined someday having a family, got to know him and love him, we realized this “It’s a balancing act for any parent with mul-

Elena Davis

ABOVE / Even as Elena Davis teaches fitness through the power of dance, her favorite balancing act is raising her kids: Liam, 4, Lily, 6, and Luke, 8, who has Down syndrome. november/december 2018

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ELENA DAVIS

is not that big of a deal. As the years have gone by, we’ve had some challenges that are unique to Down syndrome. But for the most part, Luke is pretty much like any other little boy. His diagnosis put us on this amazing journey. He’s really opened my eyes up to what’s truly important in this world. I call him my little light. HOW HAS HIS HEALTH BEEN?

Thankfully, he’s been relatively healthy. We were fortunate that he didn’t need any surgeries when he was first born. We never had to have heart surgery. The only surgery he’s really had is removing his tonsils and adenoids. DID HAVING A FIRSTBORN WITH SPECIAL NEEDS MAKE YOU RECONSIDER HAVING MORE CHILDREN? It

made me a little nervous throughout my other two pregnancies. Having a child with Down syndrome kind of opened my eyes to how many things can happen while you’re pregnant. The miracle of life really is a miracle. Everything has to go just so. We knew we wanted more children, but it made us a little more nervous. You’re always thinking about things that could happen.

I met someone who actually had a son with Down syndrome on the same day Luke was born, at the same hospital and through our same doctor. Our doctor put us in touch and to know another family that was going through the exact same thing as us was very comforting. That was when I realized it was all going to be OK. HAVE YOU STAYED IN TOUCH? Yes. We’re really good friends actually and our boys love each other. The boys actually went to preschool together at The Rise School. We attend the same church and get together as often as we can. HOW ELSE HAVE YOU BUILT A SUPPORT SYSTEM? We got hooked into

the Down Syndrome Guild of Dallas, which is a wonderful organization with tons of resources. Through them I’ve met other friends.

HOW ARE YOU DIFFERENT AS A PERSON SINCE HAVING LUKE? Having

any child is life-altering. Our lives did a complete 180, but I feel blessed to be a mother. Luke is a pretty amazing little guy. november/december 2018

HOW DO YOU FIND BALANCE IN YOUR OWN LIFE? My mommy therapy

is dancing. I grew up dancing and now I teach cardio dance classes at the Park Cities YMCA and with a group called Dallas Dance Fitness, which was actually started by another mother who has a child with Down syndrome. It’s my outlet. I can go in there feeling stressed about something, but I walk out with such joy. I get a dancer’s high. And taking that time for yourself makes you a better mother… It definitely does. I think every mother needs a little time to herself. I know you want to pour yourself into your children because they’re your life, but you need to take care of yourself; otherwise, you’re not going to be the best mom you can be.

“HE’S REALLY OPENED MY EYES UP TO WHAT’S TRULY IMPORTANT IN THIS WORLD. I CALL HIM MY LITTLE LIGHT.”

WAS THERE A TURNING POINT WHEN YOU CAME TO PEACE WITH THE DIAGNOSIS?

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We have extra things like therapies, but overall he enjoys the same things as any other 8-year-old boy. My other two children just love and adore him. They don’t see the difference. The lessons they learn from Luke are going to carry on into adulthood. They’ve already learned so much acceptance and compassion. We’re all different. That’s what makes this world beautiful.

AND HOW DO YOU ALL LIKE TO SPEND TIME AS A FAMILY?

We’re pretty outdoorsy. We’ll bike down to White Rock Lake. We love the Dallas Arboretum. My kids love the Dallas Zoo, of course. All three children love music and dancing and singing. If we’re not outdoors we’re inside having a dance party. ANY YEARLY VACATION DESTINATIONS? We try to go to a different beach

every June. We always go to Southern California in early August. We usually take a ski trip in the winter. We’re heading to Deer Valley in January. There’s an adaptive ski school that we want Luke to be a part of. IF YOU COULD GO BACK EIGHT YEARS, WHAT WOULD YOU SAY TO YOURSELF? I would tell myself to not be

scared because the future is going to be wonderful. It may not be the journey we were planning, but it’s an amazing journey nonetheless. We’ve learned so much from Luke in his short eight years of life. WHAT’S THE BIGGEST THING HE’S TAUGHT YOU? What true love is like. He

is love. He accepts everybody with love and compassion. He looks at the world through rose-colored glasses—and I think that’s a beautiful way to live.

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Friday, Dec. 7th at 7:30 pm

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For tickets call

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This organization is funded in part by the City of Richardson through the City of Richardson Cultural Arts Commission.

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DIARY

A Tuesday in the Life of Kim Martinelli

Kim Martinelli is a speech therapist. She and her husband of 15 years, Brent, an attorney, live in the Lake Highlands area of Dallas together with their sons, Thomas, 10, and Gage, 8. Her older son, Thomas, is diagnosed with Zellweger Spectrum Disorder, a “rare genetic autosomal recessive disorder.”

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:15AM The alarm goes off. I get up after snoozing only once – woohoo! Get up and head out to meet friends for an early morning run, aka my “free therapy.” It’s the best way to start the day. 6:30AM Back home. Take a shower and pack lunches before the boys get up. 6:55AM Wake up the boys. After a few attempts, I get them up, and help pick their clothes because they’re too tired to pick their own. Thomas tells me he doesn’t like his alarm clock and needs a new one. This one beeps so loud, it wakes him up when he’s sleeping so well. Ha! 7:05AM Take breakfast orders: eggs for Thomas, cereal for Gage. Turn on SportsCenter and the boys give me a rundown of the football stats while I finish. 7:15AM The boys eat and I get dressed for the day. 7:25AM Remind the boys to brush their teeth, pack their backpacks and put on shoes. Help with final touches of hair gel, make sure they take their meds and confirm that they actually did brush their teeth. Thomas feeds Simon, our 13-year-old German Shorthaired Pointer. 7:38AM Brent takes the boys to school on his way to work downtown. Hugs and kisses for all. 7:40AM Fix scrambled eggs and toast for my breakfast. I take five whole minutes to sit, eat and gear up for the day. 8AM I head to work. On the drive, I

catch up on my favorite podcast, Up and Vanished. 8:30AM Arrive. I work for a private speech and language therapy clinic that serves students at Dallas area private schools. I travel between two schools four days a week, but today I’m at one school. My first speech therapy appointment is with my favorite 4-yearold client, teaching him to say ‘K’ and ‘G’ sounds. The rest of the morning is spent working with pre-kindergarten and elementary school students on their speech and language skills. 11AM Break time. Drive downtown to drop off Thomas’ broken hearing aid for repair. Enjoy my sandwich and baked Cheetos, and call my mom to spend a few minutes catching up while I drive back to work. 12PM Back to the school. I see my last five students for appointments and pack up for the day. 2:45PM I wrap up work and head to the boys’ school. Thomas and Gage usually walk home from school, but some days I like to surprise them with a free ride. While waiting in the carpool line, I return a few emails and calls. 3:05PM The boys spot my car and run across the playground to me. They are both so happy to be spared from the three-block walk home. We head home for a healthy snack and homework time. Thomas works on his math facts while Gage sets his 15-minute timer and reads one of his Dog Man books. 4:45PM The three of us head over to Thomas’ swim practice. While Thomas practices his strokes, Gage and I get a little hang out time. He tells me all about the new season of Fortnite and gives me the play-by-play of today’s recess football game. 5:45PM Back home. I get started on dinner—it’s taco Tuesday, which is everyone’s favorite. My boys tell me absolutely no soft tacos, only crunchy shells, so it’s super messy. Taco nights usually call for a sweep and mop afterward. I make ground beef for the boys and ground turkey for myself, so that I can use it in taco salads for lunch during the week. Brent walks in right before we sit down to eat. 6:30PM The boys and I head outside to play football. I play quarterback for each boy, so that they can take turns with one on defense and one trying to catch. Our neighbor, Gage’s BFF, comes out to join and the game becomes a competitive two-on-two showdown. 7:30PM The boys bathe while I make a snack plate for their “second dinner.”

Photo courtesy of Debra O’Brien

rm: M O M M Y

All About Kim

What she’s reading The Nightingale by Kristin Hannah Favorite indulgence Crème brulee with fresh strawberries Favorite movie

We are a pediatric OT/ST clinic specializing in: • Sensory processing disorder • Developmental delays • Austim • Dyspraxia • Dysgraphia/handwriting • Fine/gross motor skills

Rocky IV First celebrity crush Kirk Cameron Restaurant she frequents with the family Sal’s Pizza Favorite scent Chanel Chance Best purchase ever Barefoot Dreams Cardigan Favorite podcasts Reply All and Up and Vanished Favorite app Waze Dream vacation Italy Ongoing project The annual Trekking for Thomas Kid’s Fun Run

Diaries are penned by moms (and dads) in the Dallas-Fort Worth area. The authors volunteer to share a day of their choosing and are not paid or endorsed by Thrive. Send your diary to editorial@dfwchild.com. All submissions are subject to editing and may be cut for space.

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I roll up slices of turkey with cubes of cheddar cheese, and some almonds, sliced apples and a handful of Goldfish. They are only 8 and 10, but boy can they eat! Thank goodness for Costco. 8PM Tuck Gage into bed with a book and prayers, then head to Thomas’ room for the same routine. Bedtime is when the boys relax and want to tell me all the details of the day. It may be a stall tactic for them to avoid going to sleep, but I love our evening conversations. 8:30PM Time for me to relax. Just kidding! I do a load of laundry, make tomorrow’s to-do list, pack my workbag and prep for upcoming appointments. 9PM I curl up on the couch with a glass of wine and my comfy robe to indulge in a little bit of my guilty pleasure, Real Housewives. After an episode, Brent joins me on the couch. We catch up on the day and watch an episode of Ozark. 10:30PM Settle into bed and read my latest book club pick, The Nightingale. I love to read, and usually finish two to three books a week. 11:30PM Light’s out!

ST. TIMOTHY

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PHOTO COURTESY OF THE UNDERWOOD FAMILY

â&#x20AC;&#x153;

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What’s Next? WHEN A CHILD GROWS UP, PARENTS MUST DECIDE WHETHER INDEPENDENT LIVING IS A PIPE DREAM OR A POSSIBILITY.

“I

W O R D S K E L LY W O O L E Y

ASSUMED RILEY WOULD LIVE WITH US FOREVER,” says mom Davila Niesen. Since her son was a baby, Niesen and her husband Robert knew that something was “off.” “For a long time, we just kept being told that he had global development delays,” Niesen explains. Finally, when Riley was 8 years old (the earliest age allowed at the time), he had testing done through Plano Independent School District. His vocabulary was very limited, which made testing all the more difficult. Results revealed an extremely low IQ and a likely diagnosis of autism. “We heard the words but as parents, we had no idea what they really meant,” recalls Niesen. “The results gave us some answers but Riley’s future was still very unclear.” The future often looks nebulous for children like Riley. For parents, just the thought of planning for their kid’s transition to adulthood can inspire a panic attack. Will they be able to live independently? Where will they live once we’re gone? Who will take care of them? So many questions and often so OPPOSITE: Austin Underfew answers—or, as in the Niesens’ wood loves to cook, says case, only one answer that seems his mother, Jan. Because he doesn’t read, he and his fam- possible: Caring for their child at ily use photos and Facetime home for the rest of their lives. But almost 15 years after Riley’s for everything from grocery shopping to setting the oven. diagnosis, his future looks much Here, he is pictured making different than his mom originally meatballs for the first time. envisioned. He will soon move into

Daymark Living, a new residential community in Waxahachie for adults with special needs. Such a community is not an option for every family, and deciding a child’s future, and preparing them for it, is not easy. But when it comes to that ever-pressing question—What’s next?—parents should feel reassured that there are so many more living and employment options available to adults with special needs than existed when Niesen first started thinking about her son’s future. LIVING THE DREAM

Riley attended the special education program through Plano Independent School District until, as Niesen puts it, “middle school happened.” During his first year, he acted out to get attention and had trouble with friends, among other problems. To the Niesens, it was obvious he wasn’t going to be successful in a typical middle school situation. They moved him to the Notre Dame School of Dallas, a school for children of all ages with intellectual disabilities. During Riley’s last two years at Notre Dame, the Niesens began to see him gain more independence, even as they gained more confidence in his abilities. He could be dropped off somewhere, like the bowling alley, and they could trust him not to wander off. Slowly but surely, he learned to use Uber. The Niesens began to change their perspective on what the future might hold for their son. At the same time, they heard about John Poston and his brainchild, Daymark Living. The idea for the residential community was inspired by Poston’s 23-year-old son, Michael, who has Down syndrome. As Poston and his november/december 2018

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Eastern New Mexico University in Roswell. There were two requirements for attending the program: being able to wake up to your own alarm and being able to do your own laundry— two tasks that are not always easy for people with intellectual and developmental disabilities (IDD), but Austin had been taught to do both. He graduated with a special certification as a prep chef and within two weeks of being home from school told his mom he wanted his own apartment. “He was done with us,” Underwood laughs. “He had a taste of his own independence and he wanted more.”

ABOVE: Riley Niesen receives his first paycheck from SPARK! Dallas.

rolled at Daymark. He’ll be the community’s fourth resident once Daymark gets its permit from the city. Meanwhile, his parents have recently moved from Plano to Waxahachie to be closer to their son’s new home. “This transition wasn’t a gradual process for us,” Niesen explains. “We probably weren’t thinking enough about it. It’s literally like we jumped immediately to Daymark as soon as we heard about it. We just had a level of trust in what the vision was for Daymark. We couldn’t have even dreamt that something like this could be available for Riley.” GETTING A HEAD START

On the other hand, there’s Jan Underwood. For the Fort Worth mom of three, independence wasn’t a dream or a question. It was an assumption she made for her middle child, Austin, when he was born, and that’s about when she began purposefully helping him attain the skills he would need for independent living. She acknowledges that she knew it wasn’t going to be easy— Austin has Down syndrome and attention deficit hyperactivity disorder (ADHD). But talk to Underwood for longer than five minutes and you’ll see she has this positive,

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determined quality about her. “Austin would just have to work much harder to gain that independence that would come so much easier to his neurotypical older sister and younger brother,” Underwood says. “But we have always treated Austin as a boy first and foremost and his disability as secondary.” She put him in Mother’s Day Out and church preschools along with his brother and sister. “Some of it was selfish,” Underwood admits. “I had two other children, a husband who traveled five days a week and I owned my own business. We had a busy life.” She explains that she also wanted to ensure that Austin went to school with the people who would be his future employers. He attended Ridglea Hills Elementary School, Como Montessori and Monnig Middle School in Fort Worth, switching between regular and special education classes and focusing mostly on learning the social skills needed to function in everyday life. Austin clearly shared his mother’s goal of independence: After graduating from Aledo High School at age 19, he immediately wanted to go away to college. He enrolled in the Special Services Occupational Training Program at

READY … OR NOT?

For many families, whether to let their child live independently or even in a residential community feels like an impossible decision to make. How can parents know if they are making the right choice for their child? Jessica Bowers, owner of Waypoint Behavioral Health Solutions, can relate. Bowers has a master’s degree in special education and is a boardcertified behavior analyst. She and her staff work with local children with autism, ADHD and other developmental and behavioral disorders to gain those independent living skills that come so naturally to typically developing children. She also has an 18-year-old son, Ryan, who has autism and lives at home. When Ryan was 14, the Bowers family thought there was no way Ryan would ever be able to live independently or in a residential facility, so they purchased a house with a garage apartment. The arrangement would let him get as close to living on his own as they thought possible. He has a calendar on his door for every day that breaks down all the tasks he needs to do, from chores like laundry and changing sheets to basic responsibilities like brushing teeth—as Bowers puts it, “things that most people don’t need reminders for.”

PHOTO COURTESY OF THE NIESEN FAMILY. OPPOSITE: DAYMARK LIVING

wife began thinking about Michael’s future, they dreamt big on paper—and now Daymark is opening its gates. “Once we open, there will be no place like Daymark in the country, possibly the world,” Poston excitedly explains. “It’s a purposebuilt community that offers a solution for adults with IDD (Intellectual Developmental Disorder) that’s in between living at home and living completely independently.” As teens transition into adulthood, they need a place to make mistakes safely. Poston explains that Daymark is that place and the staff is their safety net. The community has already received applications from families in New York, Florida and California as well as families like the Niesens here in North Texas. After visiting the community, it’s easy to see why they are getting so many inquiries. On the outside, Daymark looks like any other planned residential community. The decor is peaceful and modern, and spaces are filled with one-of-a-kind art created by people who have a special connection to the Poston family and their vision for Daymark. The streets are lined with two-, three- and four-bedroom residences. Amenities include a resort-style pool, restaurant and game room. Because residents will have a varied level of skill deficits, Daymark has classrooms where community members will learn how to manage their time, how to take care of their personal finances and other skills they need in order to live more independently. In an industrial-size kitchen, residents can learn to cook (and even work in the on-site restaurant). The coaches on staff will also conduct inhome training, helping residents with laundry, cleaning and other necessary daily living skills. The Niesens had the opportunity to meet with Poston and his staff early on when Daymark was still an idea on paper. After seeing the blueprints and hearing Poston’s vision, they were sold. By Riley’s last year at Notre Dame, he was already en-

“ROBERT AND I ALWAYS ASSUMED WE WOULD BE PLANNING FOR THE RETIREMENT OF THREE PEOPLE, NOT JUST TWO.”

Still, their perspective has become slightly more optimistic. Ryan is now driving, which was a huge deal for him, Bowers explains. They also are working on building some basic cooking skills. Bowers constantly juggles the dueling perspectives of mother and therapist. As a mom, she knows it’s easy to underestimate children and just want to protect them. “We want to protect our kids,” Bowers explains. “We tend to take the ‘I’ll do it myself ’ attitude even if we’re not the most qualified person to [take care of them].” But as a therapist, Bowers knows the importance of continuing to push children, within their limits, to work toward becoming more independent. And when the question of living in or outside the home arises, it’s important to seek the opinions of those who spend the most time with the child— their teachers, therapists and physicians, for example. Bowers admits that while much of the decision will be based on knowledge, there’s also a certain level of educated guesswork. “It takes great faith to launch a child into adulthood,” Bowers acknowledges. “Assess their skills early and often and remember that progress happens over months and years, not always days and weeks.” At Daymark, the application process includes a consultation, an assessment of the skills they require and even a financial consultation to assess the affordability of living there. “We meet extensively with any family that expresses an interest in Daymark,” explains Rosie Reichenstein, sales and marketing specialist at Daymark. “[We] take an individualized approach to each family that visits our facility. Each potential resident has their own unique story and path and we want to make sure that we’re the right fit for them.” THE SHAPE OF INDEPENDENCE

While Austin functions as a typical adult in many ways, he’s not able to read or drive, two skills that come in handy for independent living. But he’s learned to adapt.

Underwood explains that her son is very “savvy.” He recognizes brands, logos and colors and uses those clues to identify things. This skill allows him to order from a menu, shop for groceries, navigate places on foot and choose what to watch on television. He often gets confused, but it’s those instances that make Austin, Austin. Underwood laughs as she tells the story of this past Mother’s Day: “He gave me the most beautiful Mother’s Day card, but it was captioned, ‘I love being your Daughter.’” Austin, now 40, works at Campisi’s Restaurant in Fort Worth, where he has been a host for five years. He lives within walking distance, though he has also learned to use Uber. And he co-owns Austin’s Underdawgs, a hot dog food truck, with his mom. The venture is not just a business for the Underwood family. It’s a way to offer other adults like Austin the opportunity to meaningfully contribute to society. Having a job may be all the independence that some parents feel they can hope for. Maybe their child isn’t yet ready to live in a facility like Daymark or on their own, like Austin. There are other options that provide some independence, whether it’s a day facility that offers vocational training, like My Possibilities in Plano, or companies that provide meaningful employment for individuals with disabilities. According to data from the Institute on Disability at the University of New Hampshire, Texas is in the middle of the pack, but above the national average, when it comes to the percentage of adults with disabilities who have jobs—and, encouragingly, that percentage continues to rise. (See “All-Ability Jobs” on page 6 for two local ventures that are hiring.) While a job can help offset the costs of living and care, families still have to consider the financial implications of their child’s future living situation—especially after the parents are gone. Whether the child lives at home, on their own

or in a residential community, each option can place a financial burden on the entire family. “For us, it actually dictated the size of our family,” explains Bowers. “We had to consider what life would look like when my husband and I passed. Ryan has three brothers who will be around when we aren’t.” Many families approach the financial planning aspect as they would to save money for college tuition. Some invest in a special needs trust, a type of account that allows parents (and others) to set aside money for a child with special needs without jeopardizing their future government benefits. Niesen explains, “Robert and I always assumed we would be planning for the retirement of

three people, not just two.” Though they have made their first transitional decision for Riley, they are uncertain about what the long-term future will hold—financially and otherwise. “I can picture him living successfully at Daymark, but right now, I can’t picture him living alone,” says Niesen. In the same breath, she acknowledges that five years ago, she couldn’t imagine him living at a place like Daymark and can’t imagine what the next seven to 10 years will bring. Daymark could be a temporary stop or Riley’s permanent residence. But for right now, a huge weight has been lifted off the family’s shoulders.

Home Away DAYMARK LIVING

The residential community (pictured at left) with classes and social activities for adults with intellectual and developmental disabilities (IDD) opens this fall. Waxahachie, 972/646-2162; daymarkliving.com 29 ACRES

Founded by a group of families wanting quality programming and safe housing for their young adults with autism, the residential community plans to open in 2019. Cross Roads, 214/550-8831; 29acres.org CORNERSTONE RANCH

The Christian group home on 42 acres (alpacas and chickens included) has residential and day programs for adults with intellectual and physical disabilities. McKinney, 469/424-1887; cornerstone-ranch.com MY POSSIBILITIES

The organization with a full-day, year-round educational program for individuals with IDD is in the planning stages of opening a housing development in Garland with 300 homes, a third of which will be available for My Possibilities clients. Plano, 469/241-9100; mypossibilities.org REACH RESOURCE CENTERS ON INDEPENDENT LIVING

With facilities in Dallas, Denton, Fort Worth and Plano, REACH helps individuals with disabilities gain independence. Multiple locations; reachcils.org TEXAS DEPARTMENT OF HEALTH AND HUMAN SERVICES

Parents can call for more information on state-supported living centers, group homes and Section 8 (government-subsidized) housing options for their adult children with disabilities. 888/337-6377; hhs. texas.gov/services/disability november/december 2018

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Special Planning 5 laws and programs every parent should know WORDS ALEXANDRA ALLRED

CREATING A FINANCIAL PLAN for your child’s care is imperative—so is understanding the do’s and don’ts under the law. What is meant to be a generous or long-term plan could actually disqualify your loved one from government programs, some of which you may not know you qualify for in the first place. That’s why we spoke to disabilities experts to distill some of major laws and programs you need to know to care for your child now and in the future.

SOCIAL SECURITY ACT TITLE XVI: SUPPLEMENTAL SECURITY INCOME

This federal program offers cash to cover your child’s basic needs, before and after turning 18. To qualify for Supplemental Security Income (SSI), your family must have a limited income, and your child must have limited assets. That means a child or young adult named as a beneficiary of a life insurance policy or left an inheritance could be disqualified from these benefits and services. For more information, visit ssa.gov/ssi. One way to set aside money for your child without making them ineligible for SSI: a special needs trust, also known as a supplemental needs trust. It is designed to hold money for a beneficiary with disabilities and distribute the funds to help them maintain a safe and

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secure lifestyle—without disqualifying them for state or federal aid. If the trust is properly constructed by a trained professional, your child’s assets should be protected against bankruptcy, creditors, seizures and other legal proceedings. Then the money can be used for things that government benefit programs don’t cover, like recreation or a new pair of glasses.

ACHIEVING A BETTER LIFE EXPERIENCE (ABLE) ACT OF 2014

Since this law passed in 2014, Texas, like other states, has set up its own ABLE program, which is heralded as a “friendlier” savings option for families who do not have millions to invest in their children’s futures. ABLE accounts allow families to put money away for a beneficiary and allow it

to grow on a tax-deferred basis. Families can invest up to $100,000 in the account without compromising their child’s government aid, says Dennis Borel, executive director of the Coalition of Texans with Disabilities. “It is very broad and flexible, which allows someone to have a savings account for additional medical help, for example,” he explains. Learn more and enroll at texasable.org.

SOCIAL SECURITY ACT TITLE XIX AND XXI AND V: MEDICAID, CHIP AND CSHCN

Registering your child for state and federal health care aid programs is extremely important, both for your child’s well-being and for your financial security. But understanding how they all work with or against each other is crucial. Here, financial planners can be invaluable. “Even though it seems daunting to tackle your own finances—much less the finances of your child for the rest of their lifetime—it doesn’t have to be ominous,” says Kelly Sauder with Wealth Wave in Plano. “It just takes planning.” Here are the differences between the three programs, in a nutshell; to learn more, visit yourtexasbenefits.hhsc.texas.gov.

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Medicaid provides health care to people with disabilities—including children—depending on the family’s income. State Children’s Health Insurance Program (CHIP) provides low-cost medical and health coverage to families that earn too much income to qualify for Medicaid, but not enough to pay for private health insurance. Children with Special Health Care Needs (CSHCN) is designed for children with a medical condition that has physical symptoms (in other words, not a developmental delay or a behavioral disorder) and requires specialized health services. CSHCN is the “payer of last resort,” so first, you have to apply for CHIP and Medicaid to see if you qualify.

TEXAS MEDICAID WAIVER PROGRAMS

Darlene Hollingsworth still remembers how overwhelmed she felt when she first learned of her son’s diagnosis of Down syndrome. Through trial and error, she founded the Clubhouse for Special Needs in Bedford to help others. “I still have families who come here and their kid is 22 years old but they’ve never heard of a waiver,” she says. So, what is a waiver? Texas Medicaid waivers allow you to use Medicaid to fund your child’s long-term health care needs, which can include personal care, nursing care, respite care, even car and home modifications (installing ramps, for example)—even if you wouldn’t normally qualify. For children or adults with complicated medical issues, especially those without health insurance, these waivers can be life-changing. One of the first things parents must do after a child receives a diagnosis, Hollingsworth says, is add the child’s name to every program’s “interest list” as soon as possible. While you can always say no thank you to the services provided once your child makes it to the top of a list, it’s crucial to get on the lists early, as the wait can be more

than 15 years—meaning you can’t get services right away if suddenly your child needs them. The waiver programs are under the jurisdiction of the Health and Human Services Commission (HHSC) and the Department of State Health Services (DSHS). When your child’s name reaches the top of a list, the HHSC or the DSHS will review your child’s information to determine whether they meet the requirements for that particular waiver. Meanwhile you can leave your child’s name on other interest lists, though you can’t take advantage of another waiver program—if your child reaches the top of another interest list, you’ll have to choose between the two programs. Hollingsworth recommends that you enroll your child in the seven programs listed below (as well as CHIP, CSHCN, ABLE and SSI) as soon as you have a diagnosis. “These waivers can mean everything to a family!” she says. There are seven waiver programs in Texas and, for Hollingsworth, they’re too valuable to be kept secret. “I can’t tell you how often a family will come in and I’ll ask, ‘Are you HSC or Class?’ and they have no idea what I’m talking about,” she reveals. While every program has a slightly different focus, generally they all provide supports like therapy, respite care, employment, medical aids and more. Since the wait may be long and your child’s needs may change over time, experts recommend putting your child on the list for all seven, then leaving it up to the state to determine if they’re eligible when the time comes. Here is a very quick overview:

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Community Living Assistance and Support Services (CLASS): For children and adults with a related condition—that is, a nonintellectual disability like cerebral palsy, spina bifida and autism— who live on their own or with family. There are over 200 related conditions listed. Deaf-Blind with Multiple Disabilities (DBMD): For children and adults who are deaf-blind and have another disability. Home and Community-Based

•

Services (HCS): For children and adults with an intellectual disability (ID) or a related condition who live with family, independently or in a small group home. STAR Kids Medically Dependent Children Program (MDCP): For medically fragile children 20 years and younger who qualify to be in a nursing facility. STAR+PLUS Home and Community-Based Services (HCBS): Home-based managed care for adults 21 and older as an alternative to a nursing facility. Texas Home Living (TxHmL): For children and adults with an intellectual or developmental disability (ID) or a related condition living independently or with family. Youth Empowerment Services (YES): For children ages 3–18 years (up to one month before their 19th birthday) with a mental, emotional or behavioral health condition who are at risk of placement in psychiatric inpatient care or state custody care.

CHILD SUPPORT FOR ADULT CHILDREN

Sadly, due to the high divorce rate among families living with disabilities, child support is an important part of some parents’ ability to pay for their kids’ care. Under Texas law, once a child reaches the age of 18, child support typically ends; however, an important exception has been made in the Texas Family Code (Tex. Family Code Ann. §154.001) that says child support may continue into adulthood for a child who can’t support themselves. A needsbased assessment can be made to determine the appropriate amount for maintaining your child’s quality of life. It is important that you begin the proper paperwork before your child turns 18 or graduates from high school. Contact the Special Needs Alliance (specialneedsalliance.org) to find a North Texas–based lawyer who can help—our experts highly recommended that you get legal representation as a judge may require extra provisions.

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kid culture

P L AY

things to do in

november & december

WORDS ELIZABETH SMITH

Panther Island Ice

Lone Star Camp for Limb Different Athletes

The coolest hangout place this winter is on the ice—real ice—at the city’s one and only outdoor skating rink reopening Nov. 16–Jan. 14 at the Coyote Drive-In movie complex. Panther Island Ice welcomes wheelchair skaters as well, so lace up your own skates and get onto the rink with your littles for some slipping and sliding. Accessible parking available. $12 admission includes skate rental and access to the concession stand. Free for spectators. 223 NE Fourth St., Fort Worth, 682/7047711; pantherislandice.com

Register ASAP for your child’s spot at these sports workshops designed specifically for limb-different youth ages 4–17 by NubAbility Athletics. The Illinois-based nonprofit’s first event in Texas focuses on football, baseball, softball, cheering and tumbling on Nov. 17 in Mesquite and Nov. 18 in Carrollton. $150 for a limb-different camper and one parent; discounts for siblings and additional guardians. Scholarship applications required (and camp registration encouraged) by Nov. 1. Mesquite and Carrollton, 618/357-0237; nubability.org

Photos courtesy of NubAbility Athletics/Rick Takagi Photography; Trinity River Vision Authority; Feld Entertainment; Dallas Children's Theater; My Possibilities

Sesame Street Live! Let's Party! A few days before New Year’s, party with the kids like it’s 2019 when puppet friends from the Sesame Street gang—Elmo, Cookie Monster, Abby and Oscar—perform at ALLEN EVENT CENTER Dec. 28–30. General admission tickets from $35. Go online to claim wheelchair accessible and companion seats, and for an additional $30, snag tickets for preshow experiences that include character meet and greets, an on-stage tour of the neighborhood and a chance to help decorate for the party you’ll see on stage. Allen, 800/745-3000; alleneventcenter.com For more events tailored to you, check the SpecialNeeds Friendly option on our online calendar at dfwchild.com/ calendar.

Inaugural HIPster Relay

The Hugely Important People (lovingly called HIPsters) of My Possibilities have more than their brand-new college campus to celebrate—they’ve also got a brand-new fun day coming up on Saturday, Nov. 3. Join them for the first-ever HIPster Relay, an all-inclusive evening of prizes, DJ-spun music and team relay races open to walkers, runners and those who use wheelchairs onsite at the Campus for Higher Learning. Fundraising encouraged. Plano, 469/241-9100; mypossibilities.org/event/hipsterrelay

Sensory and ASL Holiday Shows

On stage at Dallas Children’s Theater, witness the slightly spooky A Ghost Tale for Mr. Dickens on Nov. 25 and sweet holiday story of The Snowy Day on Dec. 16 during DCT’s American Sign Language performances for the deaf or hard of hearing. Reserve your tickets online for the best seats closest to the interpreter. Tickets from $15. For your kids with sensory issues, come for the Ghost Tale on Nov. 17 with brighter house lights and lower sound. Tickets are only $5. Dallas, 214/740-0051; dct.org/sensory

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directory including autism, cerebral palsy, spina bifida and more. Availability of services is evaluated on a case-bycase basis. Calab, Inc. Multiple locations, calabinc.com. Provides quality individualized child care that encourages independence in individuals with disabilities. Clubhouse for Special Needs, The Bedford, 817/285-0885; theclubhouse.org. After-school programs, school holiday programs, summer programs and all-day programs for teens and young adults (ages 13–22) with special needs.

EMMA’S HOUSE / page 22

WE KNOW SHOPPING FOR RESOURCES PROBABLY ISN’T AT THE TOP OF YOUR DAY-OFF TO-DO LIST, so we’ve packed this handy directory with as many local support groups, recreational activities and respite programs in Dallas-Fort Worth as we could find. If you know of something we missed or have an idea for a new listing, send your recommendations to editorial@dfwchild.com. ADD & ADHD

Attention Deficit Disorders Association (ADDA) Southern Region Mesquite, 972/467-9299; adda-sr.org. Designed to be a resource network to support individuals with ADHD and/or related conditions and to advocate for community resources. Support group meets from 7-8pm every other month during the school year (the second Tuesday of the month in February, April, September and November) at the Mesquite ISD Professional Development Center. Email opal.harris@att.net for more information. Children and Adults with Attention Deficit Hyperactivity Disorder (CHADD) ntxchadd.com. Works to educate and empower others with information about ADD/ADHD by providing parents with tools and information to help their child reach their full potential. Farmers Branch support group meets the third Wednesday of each month from 6–7:30pm in the Farmers Branch Library Conference Room. Call 469/767-6866 for more information. Tarrant County support group meets the fourth Monday of each month from 7–9pm at the Avant-Garde Counseling and Coaching Center. Call 817/707-6264 for more information.

ASPERGER’S & AUTISM AUsome Moms Flower Mound; 22 t h r i v e

ausomemoms.org. A nonprofit that provides support, social opportunities and education to Dallas-Fort Worth families with children on the autism spectrum. Families for Effective Autism Treatment (FEAT-NT) Richland Hills, 817/919-2228; featnt.org. Provides resources, support, education and advocacy for families in the autism community. Our Children’s Circle McKinney. Support group of parents, educators and community leaders that strives to provide resources for parents of children with autism spectrum disorders. Find information on Facebook.

CHILD CARE Achievement Center of Texas Garland, 972/414-7700; achievementcenteroftexas.org. Nonprofit day care and day habilitation center for children and adults with disabilities or other special needs. Also offers arts exploration, educational assistance and community inclusion. Brighter Day Academy Dallas, 214/265-8585. Fully inclusive day care for nonaggressive children with special needs, infant to age 12. Medications and breathing treatments can be given on-site if necessary. Children accepted case by case. BrightStar Care Multiple locations, 866/618-7827; brightstarcare.com. Offers in-home care for high-functioning children with special needs,

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Easter Seals North Texas Child Development Center Carrollton, 972/394-8900; easterseals.com/ northtexas. Provides a preschool program for children with autism ages 6 weeks–6 years and typically developing children to learn alongside one another. Emma’s House Irving, 972/8391502; emmashouse.net. Provides functional, vocational and life skills to promote independence and selfsufficiency for teens and young adults with disabilities. Afterschool and summer programming is also available. KinderFrogs School at TCU Fort Worth, 817/257-6828; kinderfrogs.tcu. edu. Early childhood program (ages 18 months–6 years) designed to accommodate children with Down syndrome and other developmental delays. The Kristine Project Plano, 469/2124254. A private child care, preschool and respite service on the east side of Plano with 35 years of experience serving children with special and medical needs. Full-time, drop-in or respite care available. For more information, email colleeneggert@yahoo. com or their Facebook page. Mary’s House Dalworthington Gardens, 817/459-4494; maryshouseinc. org. Provides before- and afterschool care (Monday–Friday), day habilitation, activities and therapeutic options for teens ages 13 and older and adults with disabilities. Mom’s Best Friend Carrollton, 972/446-0500; momsbestfriend.com. The nanny agency and babysitter service provides referrals for in-home care for children of all ages with special needs throughout the Dallas-Fort Worth area.

CYSTIC FIBROSIS

Blue Caboose Children’s Fund Dallas, 228/341-0403; bluecaboose4cf. org. Provides back-to-school assistance, a Christmas toy drive and a community parent network for the families of children with cystic fibrosis. The adults-only support group meets on the second Monday of each

SUPPORT

month (location varies; see Facebook page for details or email kiri@bluecaboose4cf.org).

DEVELOPMENTAL DISABILITIES

Dallas FASD Support Group Richardson. Support group for parents of children and adults with fetal alcohol spectrum disorder. Meets the fourth Monday of every month (except December) from 7–8:30pm in the Activities Center at First Baptist Richardson; email dallasfasd@gmail.com for more information.

DOWN SYNDROME

Down Syndrome Partnership of North Texas Fort Worth, 682/3163121; dspnt.org. Provides information, social and educational activities and events, and support for new parents, families and caregivers of those with Down syndrome.

DYSLEXIA

International Dyslexia Association – Dallas Branch Dallas, 972/2339107; dal.dyslexiaida.org. The Dallas branch provides information and resources concerning learning differences to parents, educators, professionals and anyone who wants to be more informed about dyslexia. The group meets from 7–8:30pm on the second Monday of each month (except July). Discussion topics change monthly; check the website for the meeting topic and location.

EQUESTRIAN THERAPY

Blue Sky Therapeutic Riding & Respite Krugerville, 469/450-9594; blueskytexas.org. Provides a safe, happy and healthy therapeutic community that works to empower and propel citizens with special needs to their fullest potential through therapeutic horseback riding and respite, vocational and entrepreneurial opportunities. Born 2 Be Therapeutic Equestrian Center Sanger, 940/595-8200; born2betec.org. Dedicated to safe and affordable horseback riding and carriage driving for children with disabilities through small-group or private lessons. Riders have the opportunity to participate in the Texas Special Olympics and in exhibitions, including the Chisholm Challenge for Special Riders Horse Show held in Fort Worth each January. Equest Dallas, 972/412-1099; equest. org. Strengthens and rehabilitates children and adults with physical, cognitive, sensory, emotional and learning disabilities through equinefacilitated programs and therapies. Programs are taught by credentialed professionals and assisted by over 400 trained volunteers.

PHOTOS COURTESY OF EMMA’S HOUSE

JOIN

Grace Lake Ministries, Inc. Anna, 972/837-4621; gracelakeministries.org. God-centered therapeutic riding program with the goal of developing wholeness in the lives of the people served. Riders include anyone in need of hope and healing, including children and adults with disabilities or social challenges. ManeGait Therapeutic Horsemanship McKinney, 469/742-9611; manegait.org. Provides a fun, enriching and supportive environment for riders to reach their potential. Offers group, semiprivate or private lessons taught by certified riding instructors with the assistance of volunteer aides. As much as possible, riders participate in pre-mounted and postmounted horse care. New Hope Equine Assisted Therapy Argyle, 817/729-5315; newhopeequine. com. Provides therapeutic horseback riding services for people with a wide variety of disabilities. Program is designed to bring hope, healing and happiness to riders through encouraging the horse and human connection. Riding Unlimited Ponder, 940/479-2016; ridingunlimited.org. Provides small-group and individual lessons for ages 4 to adult. Students can participate in therapeutic horsemanship classes, hippotherapy, exhibition and drill teams, Special Olympics equestrian events, and shows like the Chisholm Challenge for Special Riders Horse Show. Stable Strides Farm Therapeutic Riding Flower Mound, 940/595-3600; stablestridesfarm.org. Children and adults ages 2 and older with physical or cognitive disabilities learn to become effective, competitive riders. Students are encouraged to ride independently as soon and as safely as possible. Riders participate in the Special Olympics and other competitions and shows. Unbridled Horse Therapy Flower Mound, 817/319-7778; unbridledhorsetherapy.com. Aims to effectively intercede and encourage unrealized potential for those with special needs and disabilities through the connection between horse and rider and the use of physical, speech and behavioral therapy. Email shelly@unbridledhorsetherapy.com for more information. Victory Therapy Center Roanoke, 682/831-1323; victorytherapy.org. Cares for the physical, mental and emotional needs of children, adults, veterans, first responders and their families through the healing power of horses.

MENTAL ILLNESS

Mental Health America of Greater Dallas Dallas, 214/871-2420; mhadallas.org. Works to stop the stigma around mental illness and build awareness of mental health issues while providing resources from providers in the community. Offers multiple support groups at varying times.

Organic Cedar Raised Garden Beds for Children

OBSESSIVE-COMPULSIVE

OCD and Anxiety Support Group DFW Bedford, ocdsupportgroupdfw. wordpress.com. Support group for families and friends of individuals with OCD and other anxiety disorders. Meets on the second and fourth Thursday of each month (except on holidays) from 6:30–8pm at Texas Health Harris Methodist Hospital Hurst-Euless-Bedford. OCD Support Group Richardson, 214/906-1692. Professionally-led support group serving the Dallas/Richardson/Plano area for parents of children with OCD, adults with OCD, family members/friends of people with OCD and teens with OCD. Meetings are held the second Monday of each month (except December) from 7:45–9pm at the Methodist Richardson Medical Center – Bush/Renner Campus, second floor, Education Room B. Email ocdparenthelp@yahoo.com for more information.

RECREATION

Angel League Baseball Program Rockwall, 972/722-6001; angelleague.org. Baseball program for boys and girls with physical or mental disabilities ages 4–15 and adult league for individuals with mental disabilities ages 16–60. Seasons last nine weeks and start in March and September. Aqua-Fit Swim & Fitness Family Wellness Center Plano, 972/578-7946; aquafitplano.com. Offers swimming lessons for adults and children with special needs on Saturday and Monday.

ACEing Autism Dallas Richardson, 214/901-9010; aceingautism.org/locations/dallas-tx. Nonprofit organization that provides a weekly program to teach children (5–18 years) and young adults (19–30 years) on the autism spectrum the game of tennis while improving their gross motor skills, hand-eye coordination and social skills. Sessions are held in the fall (midSeptember–mid-November), spring (February–early April) and summer (June–mid July).

Sizes vary from 4’ x 4’ and larger

512-565-4860 spectrumgardenstx.com

november/december 2018

thrive