About This Booklet

This family booklet is taken from an interview done with Blyth Lord and Mom Crystal. Blyth is the Executive Director of Courageous Parents Network – a non-profit organization that orients and empowers parents and others caring for children with serious illness, by providing resources and tools that reflect the experience and perspective of other families and clinicians.

Crystal is courageous mom to Sydney, age 13 at the time of this interview. Crystal's video conversation is featured in the family library on CourageousParentsNetwork.org. This booklet is another way for you to take in what Crystal shared about her and Sydney's journey, with links to related resources on CourageousParentsNetwork.org.