Research News Research content by Dr. Sarah Tecklenborg, Senior Research & Policy Coordinator, CFI
Public and Patient Involvement (PPI) in Research
Your Voice Matters
Cystic Fibrosis Ireland invites people with cystic fibrosis to have an active say in the research and initiatives which impact them. CFI will be recruiting a panel of PPI contributors to support the work of the research team and research groups around Ireland. The panel is open to people living with CF aged 12 and over and the family members of people with cystic fibrosis. PPI contributors will be reimbursed for their time where possible. What is PPI? Public and Patient Involvement (PPI) in CF research is research which is carried out ‘with’ or ‘by’ members of the CF community rather than ‘to’, ‘about’ or ‘for’ them. PPI activities recognise that the lived-experiences of people with CF and their families can contribute additional, valuable expertise and bring novel insights to research. The inclusion of people living with CF in the design of research allows researchers the opportunity to gain different perspectives and identify questions which matter the most to the CF community. This improves the quality and relevance of the work ensuring it will have the greatest impact on those living with the disease.
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Spectrum / Autumn 2021
