Children’s Cancer Association Community Investment Report Fiscal Year 2013 For children diagnosed with serious illness and their families, every moment is precious. At CCA, our goal is to transform as many of those moments as possible — with joy.
FOUNDER’S LETTER: What Joy Looks Like When the Children’s Cancer Association began eighteen years ago, we didn’t have an office — we had a kitchen table. We also had a powerful mission: deliver joy to kids and teens facing serious illness, like no one else had. This last year, our grassroots organization amplified JoyRx across the national stage. In collaboration with powerful brands like Converse, cornerstone/The FADER, Sol Republic, Pandora, and Atlantic Records, we’ve teamed up with artists like the Flaming Lips and the Lumineers. These amazing bands shared exclusive song presecriptions with our MyMusicRx members. On any given day, sick kids can go to MyMusicRx.org to explore, play, listen, and transform a moment with music medicine. We’ve continued to fuel JoyRx through our investment in a powerful combination of innovation, strategic collaborations, and focused growth. It’s an approach that has resulted in some pretty amazing accomplishments in 2013: • Expanded program service interactions 12% to children and families in 32 states • Ensured every program and service remained FREE to children, families, and hospital partners • Inspired 18.3% revenue growth to fuel mission impact CCA has been a labor of love for nearly two decades. I encourage you to share any suggestions, comments, or ideas — I want to hear them all. Know that we are singlemindely dedicated to providing kids with the most powerful joy experience in the world. Please feel free to email me at REllis@JoyRx.org, give me a call at (503) 244-3141, or find me on Facebook/Regina Ellis.
• Earned third consecutive 4-star Charity Navigator rating, ranking CCA among top 10% of nonprofits in the nation for excellence in financial stewardship, transparency, and accountability • Delivered JoyRx message digitally over 30M times via social, online, and print media I am pleased to present our fiscal year report on our mission impact and philanthropic support. When I look at the extraordinary kids featured in these stories, I think — this is what joy looks like. And I’m reminded of why we gathered around my kitchen table in the first place. Please enjoy this glimpse into the power of JoyRx — we couldn’t have gotten this far without you. In joy,
Regina Ellis Founder and CEO, Children’s Cancer Association
IMPACT AND FINANCIAL RESULTS: FISCAL YEAR 2013 May 1, 2012 - April 30, 2013 CCA’s Mission: When seriously ill children, teens, and their
6% Management 14% Fundraising 80% Programs FY13 expenses allocated to programs far exceeded the BBB Charity Accountability Standard requirements that a charity spend at least 65% of its total expenses on program activities.
families need more than medicine, CCA’s innovative programs create joy one moment at a time. CCA provided free service and program interactions
Audited Information:
more than 417,000 times to
Management $193,722 – 6% (5.98%)
children, teens, families, and supporters in 32 states in FY13.
Fundraising $439,812 – 14% (13.59%)
And, individual program service interactions
Program $2,601,740 – 80% (80.41%)
increased by 44%.
Year Ended April 30
2012
2013
Total Revenue
$3,037,985
$3,593,551
Total Expenses
$2,816,997
$3,253,274
Ending Net Assets
$2,485,368
$2,843,645
CCA is a trusted organization that has been recognized for 18 years as an excellent steward of financial resources. We understand how important it is to be good stewards of your financial support. We are excited to share our endorsements that prove our track record of accountability. A copy of our latest financial statement is available at JoyRx.org. CCA has met all 20 Standards of Charity Accountability and was the first NW division nonprofit to be recognized as an Accredited Charity. CCA received the highest rating, four stars, three years in a row from Charity Navigator. Only 10% of evaluated charities have earned this distinction.
CCA’S EXTRAORDINARY LEADERS CCA is grateful to the community leaders who comprise our Boards and champion our programs, giving generously of their time and talent to make good things possible for the children, teens, and families we serve. BOARD OF DIRECTORS ANDY LYTLE Board Chair, 2011-2013 Division Vice President Majestic Fine Wines
CLIFF ELLIS Co-Founder Children’s Cancer Association
DARA WILK Management Consulting The Wilk Group
MARK FITKIN Executive Managing Director CBRE Global Strategic Accounts
GREG WOLFE Senior Director, Power Marketing & Origination NextEra Energy Resources
PAUL GULICK Board Chair Emeritus, 2008-2010 Co-Founder, In-Focus Founder, Clarity Visual Systems/ retired
MIKE GOLUB COO, Portland Timbers
CLARE HAMILL Founding Board Chair, 1996-2005 Vice President, Nike Growth Initiatives, Nike, Inc.
KURT HIGGINS Founder, President & CEO FileString
REGINA ELLIS CEO/Founder Children’s Cancer Association PAULA BARRAN Partner, Barran Liebman LLP
TIM COOPER Senior Vice President Beecher Carlson ANDREA CORRADINI Senior Merchandising Director Emerging Markets Running, Nike, Inc. KATHERINE DURHAM Vice President, Marketing & Communications, The Standard
GRANT HAMMERSLEY CEO, Opus Events Agency
SCOTT HIX President & COO, SOL REPUBLIC MACIE HOUSE Director, Pacific Crest Securities JEFF PAUSTIAN Managing Director, Investments JGP Wealth Management Group of Wachovia Securities TOM PENN Television Analyst, ESPN BOB PROFFITT President/COO, Alpha Broadcasting SONJA STEVES SVP of Human Resources Legacy Health System LISA THOMPSON President Icebreaker Nature Clothing
JUNKI YOSHIDA Chairman & CEO Yoshida Group
FOUNDATION OF CCA BOARD TIM PHILLIPS Foundation Chair CEO, Phillips & Company PAUL GULICK Co-Founder, In-Focus, Founder, Clarity Visual Systems/ retired
CS SHEFFIELD, Chair, 2012-2013 Senior Therapeutic Specialty Consultant, Pfizer Oncology JIM BRAUN Co-Chair, 2013-2014 Senior Manager, Procurement, Hillsboro Technical Operations Genentech SUZIE MOLL Co-Chair, 2012-2013 Employee Benefit Specialist Premier Northwest Insurance ERIN BALDWIN Controller, LAIKA, Inc. ALLISON CLARKE President, Allison Clarke Consulting ROSEMARY COLLIVER Head of Legal & Business Affairs LAIKA, Inc. AARON COOPER Innovation Design Director, Nike, Inc. ED DOMINION National Accounts Manager VA Processor & Ag D & W Fine Pack DOUG EVERETT Investment Advisor Beech Creek Financial Group
CLARE HAMILL Vice President, Nike Growth Initiatives, Nike, Inc.
BRAD FISCH VP, Business Development VanderHouwen & Assoc., Inc.
REGINA ELLIS CEO/Founder Children’s Cancer Association
LISA FOGG Community Leader
AMBASSADOR BOARD
JACKI GALLO, JD LLM Family Office Consultant The Gallo Group, LLC
KRISTIN DUVAL, Chair, 2012-2013 Regional Sales Manager PacificSource Health Plans
ROB GLOECKNER Vice President of Sales A-Turf/ECORE
TODD HALL Commercial Manager, GE Healthcare COREY HANSON Fox News 12 Director, KPTV 12 LISA HYNES Manager, Provider Contracting Health Net Health Plan of Oregon TORY JEDRYKOWSKI Senior Sales Executive, Regence BlueCross BlueShield of Oregon ADAM KELLY Attorney, Columbia Sportswear JENN KLOTZ Management Associate Genentech Inc. AMY MAXWELL Owner/Manager Patrick Lamb Productions KRISTIN MINTO Surgical Territory Manager Straumann JENIFER NELLES National Accounts Consultant Standard Insurance Company ERIK OLIIVERSON Senior Manager Ernst & Young LISA SCHOLIN Principal, Bluefly PR SABRINA SNOW Vice President Washington Trust Bank KARIS STOUDAMIRE-PHILLIPS Supervisor, Wellness & Community Relations, MODA Health LAURA CALDERA TAYLOR Shareholder Bullivant Houser Bailey, PC
Board and Ambassador Board Members gathered outside CCA’s new waterfront Pearl District headquarters in the historic Albers Mill Building. MAEGAN VIDAL Public Relations Specialist Randall Children’s Hospital at Legacy Emanuel
ANDY COHN President & Publisher, The FADER
LIANA HUTH SVP, Partnerships at Fuse
GEOFF COTTRILL CMO, Converse
MYMUSICRX CHAMPIONS
ALEX DOBSON Media, Wieden+Kennedy
JED LEWIS Director of Brand Communications Converse
CLARE HAMILL Champions Chair, Vice President, Nike Growth Initiatives, Nike, Inc.
ANDREA FAIRCHILD VP, Brand Marketing, Gatorade
CHRISTOPHER ATLAS DefJam Records
CHRIS FUNK The Decemberists / Black Prairie
DAN CHERRY VP Consumer Planning, Diageo
CAMILLE HACKNEY SVP of Brand Partnerships Atlantic Records
JON COHEN Co-CEO, cornerstone/The FADER
SCOTT HIX President & COO, SOL REPUBLIC
STANLEY LUMAX Brand Director, Nike Basketball, East Territory SEANN MCKEEL You Who HEIDI O’NEILL VP, Women’s Fitness, Nike ROB STONE Co-CEO, cornerstone/The FADER KARINA WILSHER President, Anomaly
Sounds of Joy Jenny comes across as a quiet, shy little girl. And then she starts to sing. From Justin Bieber to One Direction to a rousing rendition of “Old MacDonald,” Jenny rocks them all on vocals, ukulele and piano. (Her sisters usually back her up on drums.) All this joyful noise was made possible by CCA’s MusicRx Specialsts, who started working with Jenny two years ago when she was diagnosed with leukemia. According to her mother, Ana, these musical moments have made a huge difference in Jenny’s life,
MusicRx® Jenny is one of the 2,382 Oregon and Southwest Washington children who have requested bedside music medicine visits last year. Trained MusicRx Specialists bring state-of-the-art mobile carts loaded with instruments and interactive technology to lend, providing tailored music experiences in every unit of the children’s hospitals we serve. Total in-hospital service interactions counted 11,320. In additon, volunteer musicians filled hospital hallways and lobbies with 152 hours of soothing, acoustic music. The scientifically proven benefits of music medicine help pediatric patients manage pain, boost immunity, create calm, ease tension, and decrease emotional stress. CCA is a music
“Before MusicRx, she would just lie in the hospital bed feeling bored and unhappy. But now when the music specialist comes in, she brightens right up. It makes her feel calmer and gives her something to look forward to.” Besides making music, Jenny loves animals and says she wants to be a “pet doctor” when she grows up. She even credits MusicRx with giving her a jumpstart on her career. “Thanks to ‘Old MacDonald,’ I already know how to talk to the animals!” she laughed.
You don’t know you’re beautiful That’s what makes you beautiful — One Direction
medicine pioneer using music to heal.
CCA’s Generous Friends and Donors Donations from this compassionate group of individuals, foundations, corporations, and community events are catalysts for joy for thousands of families with seriously ill children and teens. $100,000+ (LIFETIME)
$100,000+
INDIVIDUAL Anonymous Donors Paul & Tasca Gulick Gifts from Global Giving Clare L. Hamill Andy & Mary Lytle Arlene Malcom Frederic & Cynthia Martin Jeff & Malia Owens Tim & Kristen Phillips Greg & Dorsey Rueck Junki & Linda Yoshida
INDIVIDUAL Clare L. Hamill
FOUNDATION Juan Young Trust Marie Lamfrom Charitable Foundation Maybelle Clark Macdonald Fund Meyer Memorial Trust M.J. Murdock Charitable Trust Spirit Mountain Community Fund Vancouver Rotary Foundation CORPORATE Anomaly Columbia Distributing Entercom golightlyfilms, inc. Google Health Net, Inc. Herman Miller Nike, Inc. Papa Murphy’s PacificSource Health Plans Portland Trail Blazers The Standard Insurance Company
FOUNDATION Meyer Memorial Trust EVENTS Children’s Pro-Am – Grant Hammersley Hero Gala MINI Cooper Car Raffle Valentine’s Day for CCA $75,000+
EVENT Four Days Fore Kids – Gay Davis Get Inspired Luncheon $20,000+
INDIVIDUAL Don M. Antonucci David Brown & Andrea Corradini Gaylord & Judi Davis Andy & Mary Lytle Jeff & Malia Owens Junki & Linda Yoshida FOUNDATION The Eranda Foundation Spirit Mountain Community Fund The Standard CORPORATE Elmer’s Genentech Nike, Inc. Papa Murphy’s Portland Trail Blazers
EVENT Dawn to Dusk – Bridge City Paddling JoyRide – Paradise Harley Davidson Portland Marathon Wine and Wishes $10,000+
INDIVIDUAL Sandy Bodecker Fred & Marion Buckman Channing Frye George Simons & Carmen Gales Paul & Tasca Gulick Thomas & Julie Hamlin Scott & Connie Hix Steve & Dianne Jenkins Bud & Selma Pierce Greg & Dorsey Rueck CS & Angela Sheffield Joe & Diane Thompson FOUNDATION Acme Bader Community Fund of the Oregon Community Foundation Agnew Family Foundation Community Health Charities of Oregon Daniels Family Foundation Genentech Foundation Newman’s Own Foundation The Reser Family Foundation The Anne and Eli Shapira Foundation Juan Young Trust CORPORATE Amato Design Anonymous Bank of America Columbia Distributing Dick Hannah Dealerships Greenberry Industrial LLC Hennebery Eddy Architects
McKinstry Momentous Insurance Brokerage, Inc. Nike Facilities Orangewall Studios Pietro’s Restaurant Group, Inc. R&H Construction The Campbell Group, LLC The Standard Employee Giving Campaign
EVENT Block Shot Campaign – Genentech and Portland Trail Blazers Cabinet of Wonders Valentine’s Day Concert Channing Frye Kickball Tournament Holiday Ale Music as Medicine Team Jesuit – Portland Marathon TVA Architects You Who Family Concerts – Chris Funk & Seann McKeel $5,000+ INDIVIDUAL Anonymous Donors Brian Alder Antony Beck Gene & Marsha Brockmeyer Kyle Bunch Dan A. Burris Jeremy Coburn Ed Colligan Aaron & Megan Cooper Ty Dupuis Brad & Katherine Durham Regina Ellis Bill & Linda Hammersley Del J. & Sandra L. Hayes David Heinsch Joaquin Hidalgo Brad Johnson Parker & Sharon Johnstone Tom & Kathy Kilroy Jeff & Lisa Longtain Dick & Jana Lytle JP & Sharon Meng Michael & Suzanne Moll Amy Montagne Catherine O’Brien
Jeff & Molly Paustian Laurie Pimentel David & Camillia Quisenberry Manfred & Jerilyn Schosnig Matthew & Michele Shelley Molly F. Smith Dotty & Scott Sonnemaker Scott & Judy South Steven Stanich Rick & Carol Terrell Jon & Amy Thomsen Truist Dennis Van Oossanen Gregory J. Vislocky Dan G. Wieden Roger Wyett
FOUNDATION Dimmer Family Foundation Hampton Family Foundation of the Oregon Community Foundation Hedinger Family Foundation Joseph E. Weston Public Foundation National Christian Foundation Nordstrom Rick and Carol Terrell Charitable Fund of the Oregon Community Foundation United States Gypsum Foundation CORPORATE Atlas Motors Bank of the West Beecher Carlson Insurance Agency ClubSport Oregon Comcast Corporation Daimler Trucks North America Davis Wright Tremaine LLP Encore Senior Living Centers Fidelity Charitable Gift Fund GE Healthcare Give With Liberty Health Net, Inc. Intel Corporation Opus Events Agency PacificSource Health Plans Paradise Harley-Davidson Providence Health Plan SOL REPUBLIC Southern-Odom Spirits West Brokerage, LLC
The Rueck Company Valvoline Instant Oil Change Zupan’s Markets
EVENTS ClubSport Spring and Halloween Carnivals Green Jacket Golf Tournament Guild Mortgage Team Fundraiser – Molly Smith & Meghan Harvey Luke’s Lego-cy St. Paddy’s Day for CCA – Paddy’s Bar and Grill $1,000+
INDIVIDUAL Anonymous Donors Sam & Jenny Agnew Douglas Ainslie Charles R. & Leticia M. Annett Clara Arntson AT&T United Way Employee Giving Campaign Greg Bakken Kristin & Michael Baldwin Greg Bean Janey Belozer Brian D. & Shirley M. Bevens Brad & Mel Bissell Steven H. & Kristen E. Blake Mitzi Boardman Kevin W. Boie Matthew Bolte Kevin Bower Tim & Mary Boyle Thomas J & Whitney A. Braden Michael & Deena Bragg Jim and Marlene Braun Harry & Bev Bresnahan David L. & Jennifer P. Brown Patrick Bryan Eric S. Bryant Frederick W. Buckman JR David Burkhardt Doug Butler George & Megan Byrtek Andy Caine Jim Carlson Frank Castrina Michael Choate Craig & Katherine Christenson Allison Clarke
Jarod Cogswell Denise Coletti Rosemary Colliver Eric & Jean Compton Tim & Tammy Cooper Rob Coppedge Colleen Crane Sara Crate Carrie Darras Roberta H Davis Gordon D. Day Shaun P. & Molly M. Day Lance Dayton Doug DeAngelis Phillip Charles DeGroat Dirk & Laura Dellinger Anna R. Demouchet Elizabeth Dennis Gary & Karen DeStefano Fergal Donoher Angela Dowling Brad Dozler John O. Dunkin Mike & Cheryl Durbin Brian & Kristin DuVal Caver Ealy Randy Eggen Jeffrey M. Elliott Cliff Ellis Doug Everett
Wade Faircloth Richard Farr Ann Ferguson Doug Fieldhouse Shannon Fife Bradley & Kristin Fisch Doug Fish Doug Fisher Lisa Fisher Steve & Lisa Fogg Ryan J. Foote Jim Ford Ian Freeman Melvin Fuentes Jennifer Fuller Adriana F. Gallardo Matthew A. Gerig Shannon & Jeff Gianola Daniel F. Gietzen Brad Gleeson Rob Gloeckner Lauren Goldstein Network for Good Susan E. Gore Monica Grajeda Athena Gray Shawn R. Hagel Dawn Hamilton
Sapphire’s family has been served by CCA’s Chemo Pal Mentor Program, MusicRx, and Link. She was named one of CCA’s 2013 Community Heroes.
Music is My Meds When Aidan first heard the knock on his hospital room door, he thought it was the nurse delivering pain meds. Turns out, it was CCA’s MyMusicRx Team visiting — with a way to make Aidan feel better with music. MyMusicRx.org lets Aidan play and download free music games, explore digital instruments, record original music, and watch exclusive video greetings from popular musicians.
“I can’t do a lot physically right now because of my rare autoimmune disease, so I spend hours on MyMusicRx. It really brightens my day.” Which is music to our ears.
MyMusicRx.org Aidan is a member in the MyMusicRx community, the only digital music experience of its kind, which celebrated a 209% increase in membership in the past year. The most connected and relevant music medicine experience available today for sick kids and teens, MyMusicRx.org delivers the healing power of music across the country and in Canada. MyMusicRx is invited to music festivals across the nation like SXSW, CMJ, Coachella, Bonnaroo, and MusicFestNW, where artists share their love of music with MyMusicRx.
CCA’s Generous Friends and Donors (continued) Lindsey Hammond James Hankel Bruce Hanna Ellen Harada Robert E. & Susan K. Harold Joey & Emily Harrington Meghan Harvey Lauren Hastings-Garcia Jennifer W. Hayter Adam Helfant Reid Hellbusch Andy & Sheila Heltborg Kurt & Carla Higgins David H. Hilton, Jr. Dennis Hoff Marnie Holas Travis Hollman Christian Honl Michael Horwitz Brian Hough Macie House Michael & Jodi Hughes Joshua Husbands IBM Employee Charitable Contribution Campaign Jen Ingraffea Alan & Heidi Jackson Garth Jackson Brent & Mary Jacobs James Jeddeloh Tory R Jedrykowski Scott Jenkins Ty & Reina Jenkins Heather Johnson Michael Johnson Pat Kearney Karee Kenney Kristin Kinnie Alan Kinsel Jenn Klotz Terry & Susan Kruger Kathlyn Kruse Andrea Laidlaw Kris Lange Virginia M. Larner Daniel & Andrea L. Lauer David & Grace Lee Skip & Ann Marie Lei
Kathy LeVee Thomas W. Little V. Phillip Loduca Joshua Logan Shelly Lucas Kelly Lucey Steven & Trese Lytle Colin MacLean & Sheila Hamilton Cory Mahaffey Deane Manning Mark Marroni Jayme & Kelly Martin Lisa R. Matar William R. Mattecheck Kim McClaskey Patricia L. McCole Larry K McCormick Patrick & Julie McCreery Joe McDonald Ralph W. McDonald Judy McMullen Matthew & Ashley McMullen Csaba Mera Jeff A. Merlino Ron D. Merryman Pamela Messerly Bill R. Meyer Jr James D. Miller Mark Miner Glen Mitzel Marco Moor Jamie Morgan John Morgan Drs. Roger Muller & Harpreet Dhillon Kellen H. Muraoka Jamie Myers Jonathan F. Myers Teresa Neal Jenifer Nelles Greg and Terry Ness Mark New Tim Nielsen Brick R. Obye Mike O’Connor Michael O’Gara Ian & Kirsten Olsen Mildred C. Olson Ed & Patricia O’Mara
Patrick & Heidi O’Neill Paul Ortner Melissa Owens Pené Owens Leslie Palmer & Gary Kneski Tami & Mike Pardee Jeri R. Parrott James & Sadie Paustian Jack & Zan Peat Kevin Pham Paul Phillips Shirlie Plummer-Joseph Jill Pomeroy Dave & Sue Porter Tony & Jackie Postlethwaite Bob & Lynn Proffitt Mitch Rask Greg Rasmussen Ronald Reijmers Molly Renauer Daniel Restrepo James E. & Marcelyn J. Robison David & Ruth Rocker Robert Roley Marla Ross Amy Sawatzky David H. Schaeffer & Keith R. Bevan Terry Schallich Annie K. Schmidt Steve Schneider Gerald A. Scott Jeff Sessions Jeremy & Eileen Shattuck Mike Sherwood Barbara Simon-Evrenosoglu Peter Simpson Andy Sisavic Ennis Skillern Raejeanne M. Skillern Matt Smith Cathy Sparks Gretchen Stangier Cindy Stockton Jesse Stolz Jason Strobbe Robert A. Stuart Rebecca Sullivan David & Martha Swanson
Laurie Sykes Dianne Tanac Dean Taylor & Laura Caldera Taylor Kirk & Mary Taylor Nick & Riccanne Tharp Greg & Cholee Thompson Lisa Thompson & Phil Hamilton Connie & Tom Thomsen Cliff & Stephanie Thorne Liam & Felicia Thornton Christian & Louise Thudium Jonathan & Lindsay Todd Niall & Shelby Travers Sean and Michelle Vali Johannes van den IJssel Eric Vander Houwen Rolien Vanhooff David Shane Verschueren Lynda L. Walker Tesha L. Walsh Patrick Welberg Gidget & Darren Welborn Matthew Wetzel James Whistler Kenneth E. Wiedemann Jack G. Wilborn Andrew & Dara Wilk Kristen Wilk Ardine & Curtis Williams
Estevan’s family has been served through Link and Hope for the Holidays. He was named one of CCA’s 2013 Community Heroes.
CCA Founders’ Society These friends have generously included CCA in their financial planning through bequests, charitable trusts, insurance policies or retirement plans. They have a lasting legacy that will impact thousands of lives of seriously ill children and their families when they need more than medicine. Marsha Brockmeyer Gaylord & Judi Davis Cliff Ellis Regina Ellis Jacqueline Gallo Clare L. Hamill Zachary & Kristin Krahmer
Andy Lytle Suzanne Moll Janice Phillips Tim & Kristen Phillips David Schaeffer Larry & Elizabeth Volchok Rene Zingarelli
CCA’s Generous Friends and Donors (continued) Linda Williams Adam Wilson Mike & Sharon Wise John Wood Dean & Kerrie Woolworth Katy Wright Kar-yee Wu Tim Wybenga Ryan & Julie Zook
FOUNDATION B.P. Lester and Regina John Foundation Bank of America Foundation Cannon Family Foundation Carquest Foundation Deacon Charitable Foundation Douglas and Gloria Rumberger Foundation
Enterprise Holdings Foundation Equity Group Foundation Flying Dutchman Foundation Harold & Arlene Schnitzer CARE Foundation The Jackson Family Foundation Jay Allan Edwards Family Fund at the Rancho Santa Fe Foundation JP Morgan Chase Foundation Maybelle Clark Macdonald Fund Million Dollar Round Table Foundation Morgan Stanley Foundation Nathan Family Charitable Fund of the Oregon Community Foundation The Samuel S. Johnson Foundation Susan and Seymour Levine Charitable Lead Annuity Trust Von Arx Family Foundation
CORPORATE A Swank Affair Abbott Laboratories ACME Construction Supply ACME Scenic + Display AKT Group LLP Amy Vining Photography Angelo Investment Company Aspiring Enterprises Inc. Bittner Dentistry for Kids Black Rock Coffee Bar BridgePort Brewing Cambia Health Solutions Cedar Mountain Advisors CenturyLink City of Cascade Locks Community Health Charities Danna Brothers, LTD DaVita DVA & Associates EcoPro Realty EFI Recycling Energy Events LLC Flying Pie Pizza Fulton Provision Co. Gentech Dentist Great Harvest Bread Co. Guild Mortgage Company Hamilton Events J & M Homes, LLC JGP Wealth Management Group of Wells Fargo Advisors John Davidson John Hancock Financial Services Kadel’s Auto Body Kaiser Foundation Health Plan of the Northwest Community Giving Campaign Knowledge Learning Corporation KPTV Fox 12 Leupold & Stevens, INC LifeWise Health Plan of Oregon Mark Aalto MINI Cooper of Portland MODA Health Companies OnPoint Community Credit Union Oregon Golf Club Papa’s Pizza Peregrine Sports, LLC (Portland Timbers) Perkins & Company PGE Portland Bolt & Manufacturing
Portland Police Special Contributions Committee Premier Northwest Insurance Pro Caliber Motorsports Promotion Motorsports Sharing Spree Skanska USA Building Inc. Smart Wireless Southern Oregon Elmer’s, LLC Spanky’s Family Consignment Stoel Rives, LLP Stuart D. Babicky Sunset Lanes Sysco Portland Target Corporation The Active Network, Inc. The Regence Employee Giving Campaign The Regence Group Walgreens Washington Trust Bank Wells Fargo Community Support Campaign Wieden + Kennedy
EVENT 10K Rum Run-Energy Events 40K for CCA – Pete Simpson Amy Vining Photography Angela Coe Rainy Day Walk/Run Backen Co-op Golf Tournament Bridge City Guild Central Catholic High School Powder Puff Game Champagne Ball Daimler Trucks North America Holy Cross Elementary JC Penney Holiday Auction Lavender Girls Liberty Tax Mr. Evergreen Mt. St. Helen’s Motorcycle Club Oak Elementary – Albany School District Promotion Motorsports Sharing Spree Southridge High School – Cram the Cage Stand Together – Portland Timbers Steve Blake Basketball Camp Sunset Hog Chapter Vancouver Marathon
A Real-life Fairy Tale Joy has a way of turning up in the most unexpected places. For Amanda, it was at the Molalla Buckaroo Rodeo. He was a country boy named Ethan, and it was love at first sight. When the staggering cost of Amanda’s Cystic Fibrosis treatments cut into their wedding plans, her social worker asked CCA, “Would you buy Amanda’s wedding dress?” The answer, of course, was yes.
“It made my wedding day perfect. I love that dress!” In fact, she loves it so much, she plans to wear it fly fishing on the Metolius River with Ethan for their one-year anniversary.
“CCA brings joy back into the lives of people who are going through a really hard time.” — Amanda, 20 years old
Link Amanda is one of 815 Pacific Northwest family members CCA’s Link program brought the joy of essential resources, special memories, and tailored support to last year. In FY13, Link’s community network of 385 volunteers invested 1,155 in-kind hours, providing 1,360 service interactions to children, teens, and families.
A Beautiful Friendship Lexi’s world is full of appointments and procedures to treat her leukemia. But it’s also full of bubbles and ponies, baby dolls and princess dresses. Most importantly, it’s filled with joy. That’s thanks in part to Lexi’s Chemo Pal Mentor, Collette, who’s made it her mission to bring comfort and laughter to this fairy sprite of a girl. Besides bringing bags of toys, Collette brings special insight to their friendship — two years ago, she battled breast cancer. “My support system throughout the process was unbelievable,” she explained. “But I knew others aren’t always so lucky. So this is how I chose to give back.”
Lexi’s mom, Amanda, says, “The best part of having a Chemo Pal in our lives is the happiness it brings Lexi. On tough days, we can always count on Collette to be there with a hug and a smile.” After all, that’s what friends are for.
Chemo Pal® Mentor Program Lexi is one of 255 Pacific Northwest children and teens that CCA’s Chemo Pal Mentor Program brought the joy of friendship to last year. Trained Chemo Pal Mentors devoted 7,436 hours forging and strengthening friendships and family bonds, bringing diversion, fun, and activities to kids during their treatment. In 2013, Oregon Mentors awarded CCA’s Chemo Pal Mentor Program with their most prestigious award for mentoring excellence, recognizing the program for exceeding standards of excellence and quality.
Alexandra Ellis Caring CabinTM More than 40 family members like Ryland’s visit CCA’s luxurious Caring Cabin hideaway in a typical month. This free adventure helps restore the energy and hope kids need to battle their illness over the long haul. CCA understands that play can sometimes be the thing that’s needed most. The health benefits of nature are scientifically proven to decrease anxiety, stress, and depression, and have been noted to boost the immune system to fight cancer. For pediatric patients, the Caring Cabin, nestled in 24 acres of surrounding woods with plentiful wildlife and a serene lake, provides an essential health connection with nature and healing.
Adventure of a Lifetime Ryland spent more than 130 nights in the hospital while he underwent chemotherapy the first time. His mom, Jenn, camped out beside his bed, while his dad, Cam, stayed home to care for their other two sons. “We did our best to keep the family together, but it was a grueling routine,” said Cam. “The boys really missed seeing their brother.” Ryland relapsed in the fall of 2012, sending his family again into a state of separation and anxiety. What the Lamperts desperately needed was a way to reconnect — and that’s exactly what the Caring Cabin gave them. The family spent four days at this woodland retreat playing games, eating S’mores, and fishing on the pond for hours on end.
“The Caring Cabin allowed our family to temporarily leave behind all the stuff that comes with fighting cancer day in and day out,” said Jenn. “We didn’t even realize how much we needed it until we got here.” “I didn’t catch anything, but I don’t care — it was so much fun!” — Ryland, six years old
Community Events Spotlight Supporters of CCA come together in so many creative ways to raise funds and awareness that allow CCA to prescribe JoyRx to seriously ill children, teens, and their families when they need more than medicine. Every year, nearly 100 events fuel our programs. Here are a few highlights.
Above left, Valentine’s Day for CCA’s Valentine-A-Thon featured Daria, Mitch and Ted from 105.1 The BUZZ and the FOX 12 team including Wayne Garcia, Mark Nelson, Shauna Parsons and others not pictured. Also in the photo, CCA Founder and CEO, Regina Ellis, CCA VP of Development, Dave Schaeffer, and CCA Director of Special Events, Jenny O’Bryan. Above right, Gay Davis, shown here with Cassie, walked seven rounds of golf in the annual Four Days FORE Kids at Pumpkin Ridge. Opposite page, near left, Grant Hammersley and Opus Events Agency hosted the Children’s Pro-Am, Grant, center, shown here with Regina Ellis, and CCA Board Chair, Andy Lytle. Top photo showcases the ribbon cutting for the Dawn to Dusk Paddle, sponsored by the Bridge City Paddling Club, Jeremy Shattuck, President, far left, helping Cody cut the ribbon. Second photo from the left, Genentech and the Portland Trail Blazers hosted the fourth annual Block Out Cancer Program. Shown here are Blazers’ Meyers Leonard, Former Blazer, Jerome Kersey, CCA Ambassador Board Member Jenn Klotz with Genentech, CCA’s Dave Schaeffer, and numerous CCA-served kids. Center far right, JoyRide founders Mike and Cheryl Durbin, shown here with CCA Co-founder, Cliff Ellis, and Pam Lum. Bottom right showcases the amazing musical line-up for CCA’s first ever MyMusicRx Cabinet of Wonders benefit concert, brought to CCA by Chris Funk and Seann McKeel.
Tribute Gifts
Selena Cintron Jordan E. Labbe
We celebrate our compassionate friends who pay tribute to someone special and prescribe joy to children and teens with a serious or life-threatening illness in their honor.
Alivia Clay Carol G. Clay Craig Reger
Lauranne Ackleson Anonymous Billi S. Avila Mary Jane Munger Rachel Nunez Carole A. Wahlers
Andrew Bauska Selena Cintron
Boey Byers Galin McMahon
Chelsea Beyer Colynn M Wright Nelson & Sara M. Storm
Caleb Butler Nicole K Miller
Zack Alejo Kimberly Alejo
Angela Coe Jennifer Cavanagh City of Cascade Locks Mike Coulston Bill Jacobson Lloyd Cooper Oliver Maroney
Ronald Billion Gretchen Stangier
Grant Butts Kendall B. Truini Andrew White
Melinda Cottam Joan Corcoran Patty Evans Rae Ann Proost Mary L. Sidlauskas
Paolo Emilio Alvarez de Castro Aspiring Enterprises Inc
Eve Black Leslie A Black
The Buzz Tanya Miller
Del & Evelyn Conkright Suzan Conkright
Cirith Anderson Sebree David & Betty Sebree
Kristen Blake Christie Haynes
Packey Caldwell Julie Chu
Pat Dallmann Douglas Dallmann
Sierra Archer Marcia L. Dennis
Steven Blake Cindy Blake
Haney Cannon Beth Berry Cole
Antoinette Arenz Robert H. & Judith F. Fisher
Salvador Boada Marie Boada
Kaitlin Rayne Cardin Jason Lancaster
Zachary Davidson Michael & Veronica Foley Kaiser Foundation Health Plan of the Northwest Community Giving Campaign
Avonte Armstead Dianne Tanac
Sarah Bridges John & Pat Rickman
Judy Arndt Gretchen Stangier
McKenna Briggs Anonymous Debra Beaty Judy Briggs JR English Terry Perin Kathryn Trenda Lisa Woltersdorf
Jack Carey Maggie Taber Von Arx Family Foundation
Laura Dellinger Norman L. Lee Neill M. McAuliffe
Brenda Chambers Cathy Culver
Casey Demello Elizabeth Chao
Susan & Charles Chambers Megan Moran
Jessica Dey Dalene Agost Marika Akers Anonymous Amy Baker Lucia Botez Jennifer Charlton Mary Egsieker Nikki Elkins Happy Valley Elementary School Kimberlee Hegdahl Ellie & Evan Johnston Warren P. & Tracy L. Kelly Richard T. Larson Suzanne Lukovich Jami L. Martin Kelly Callahan McDonald Barbara Joyce Meek
Riley Arriola Janet L. Baskins Brandon Aufranc Jessica L. Barnes Donna Cooke Traci L. Egan Crys Johnson Bonnie Kidd Barnes D. Rogers Doris L. Simmons Steve Balough & Robin Carle Gretchen Stangier Lacie Baumer Ambreen Shahabuddin Bruce Baur Gretchen Stangier
Gene Brockmeyer Gayle Kimsey Roger & Joyce Neu David & Susan Romppanen Janet K. Sutton & John E. Taylor Deborah L. Thomas Robert & Connie Whitman Alejandra Winkler Savannah Corradini Brown Anonymous Maureen Harkin Hanane Salhi
James Ron Chastain Gail C. McDonald Ron Chastain Brian Bates Colleen Henson Kylie Sue Chin Debra K. Chin The Standard Employee Giving Campaign Marianne Chin Michael W. Chin
Hoa-Rosa Thi Nguyen Mary & Wayne Normand Lisa Olson Jennifer Pribyl Rebecca Reddick Judy Reeder Jenifer Schoen Monica Scorte Rushweb Solutions Jody Tackett Jim & Molly Wilson Michel L. Wolf Liz Wood Connie DiStefano Robert H. Barge & the Employees of Allstate Christopher M. Collins Julia Waschow Alyssa Divers Kristin Sancken Bette Doehler Gerry & Vonne Goudreau Gage Dole David R. & Maya S. Barba Kymberli Contreras Michelle McGinley DeeDee Dolp Kim & Chris Koenig Barbara Donily Fred Elledge Danielle Elgort Gayle Elgort Alexandra Ellis Anonymous Nan L. Collie Cliff Ellis ReginaEllis Carol J. Evans & Lark L .Wiesner Wayne Lennon & Colleen Lafferty Linda M. Vogt Adrianne Wesol Alexandra Ellis & Billie Zingarelli RenĂŠ Zingarelli Arianne Emery Sandy Chapin Renee England
Ralph Erlandson Rae Ann Proost
Aiden & Owen Hawk Jennifer R. Megli
Brent Kepfer Anne Bertucio
Anne Lightfoot Smith Susan Lopez
Jesse Fay Dana A. & Cynthia E. Rego
Kate Hug & Greg Hand Julie Hug
Graham Kinzel-Grubbs Dennis & Maureen Kinzel-Grubbs
Keith Lyons Rebecca R. Mitchell
Yesenia Anabel Fernandez Angela Quintero
Chelsea Hicks Denise Townsend
Lauren Knox Stephen C. Still
Andy Lytle Zan Peat
Anne Fink Kathleen D. Keller
Mary Carol Hogan Paul & Jennifer Hogan
Dr. Paul Krejci Eileen Harney
Alena Marek Joan Corcoran
Pat Flowers Vonne Goudreau
Paul & Jennifer Hogan Brad & Mel Bissell Michael & Kathryn Hogan
David Kroon Frances Kroon
James & Carol Marshall Clifford P. Thorne Sharon Thorne
Ally Fogarty Therese R. Fogarty Megan Fogarty Therese R. Fogarty Laura Folsom Carol L. Brown Kimberly Ann Fox Rochelle L. Czech Robinette Fitzsimmons Henry Friedler Virginia M. Oshel Chris Funk John Oliver Irmagard Garvin Jessica & Iris Krug Zoe Glasgow Anonymous Leah Goforth Mary Barkhouse Marian Gordon Daniel Baldauff Gamma Chi Sorority Christine Grimm Jeanne Hartley Riley Grosse Laura Duncan Growing with Pride Preschool Kelly M. Toye Growing With Pride Too Kelly M. Toye
Kristine Hoogs Gretchen Stangier Parker House Lori A Schallich Kathryn Scribner Thomas Jackson Mary Jo Jackson Luke Jensen Katherine Gomes Lisa A. Storaci Emma Johnson Justin E. Grass Rick Johnson Gerry & Vonne Goudreau Jenna Jones BJ Gibbons Richard Joseph & Edna David Shirlie Plummer-Joseph Max Kahn Kathy & Chip Roeder Daniel “Danny� J Keagbine Maude Irwin Alice Keller Kathleen D Keller
Mary Lago Charles Keller Francoise Lang Christine Igarta Madeline Lauer Beaverton High School Associated Students Andrea Corradini & David Brown Helen & Bob Floyd James Gregory David Jacobs Jessie King Nancy Lepler Levi C Maaia Julie Proctor Bill & Charlotte Rice Felicia S. Rosenthal Beth Thornhill Nancy Winn Zachary Learned Christina Kokich Diana Lynne Waren Denise LeBrun Darlene Coyne James E Delicio Julie Desloge Greg Edwards Nicole Fisher Kenny Hermann Allison LeBrun Marcia Kaye Lyerly
Heather Kelly Lorrie K. Hegar Suzanne Montalbano Michael B. Peterson Jim & Molly Wilson
Edwin Leung Vivian Leung
Jessica Kempner Sakre K. Edson
Mary Lou & Doug Lewis Kathleen D. Keller
Rose Leveen Cathy G. Lehmann
Kerri Mistovich Amy Montagne Margaret Montagne Troy Moody Lee C. Nusich Jacquelyn D Morfitt Audrey Dreibelbis Cody Myers Brenda M. Myers Kit Nienstaedt Lisa Nienstaedt
Maggie May Elizabeth Kwasnik
Reuben Nippoldt Bill Nippoldt
Katelyn, Riley, & Gina McCammon Dianne McCammon
Graham & Taylor Olsen Aesthetic Dentistry of Lake Oswego Jan L. Barber Delta Billeter James Billeter Joshua Billeter & Jennifer Yocom William Boone Rachel & John Borah Frank & Jerry Bridwell Jerry & Shelley Brown Kim & Matt Carpenter Traci & Matt Daskalos Shaun P. & Molly M. Day Enterprise Fleet Management Melissa Hartfield Adam C. Havens Barbara Hildebrandt Keith & Karen Hurdstrom Lee Koehn Michelle McGinley Christine Nelson Susanne Nelson Marilyn R. Nycum Kenneth R. Poorman Sean & Darcy Reardon David S. Reinhart Rodda Paint Garrin W. & Cortney C. Royer Dixon & Judy Shaver Travis D. & Deborah L. Smith Dina L. Snook Elena M. Stapleton Brittany Tiffany Dana Ribner Kerrie Z. Woolworth Larry & Sandy Olson Mildred C. Olson
Tyler McCormick Kelly A. Herb Randy McLeod Gretchen Stangier Liam McNassar Matthew Wetzel Zayana Mendez Sara B. Gray Micropump Employees Jennifer H. Hammill Drew Mildenhall Lori J .Rowlett Laurie N Miller Thomas & Christy Miller Marguerite Monroe Nicholas Cerri Matt Damkroger Devin Fashana Maki N. Katsumoto Marjorie M. Lane Keith Gordon Metz-Porozni Jim Price Glen Seaman Patty & Rob Thompson Hank, Park, & Mike Montagne Shannon Davis Jen Ingraffea Joseph Melczer III
Pria Orth Brad & Cathy Lamb
Jeffrey Owens Mark Marroni Caroline Palmer Anonymous Mike & Kristen Beauchamp Shannon M. Devereux Kristin Watkins & Paul Garrahan Jesse & Meysha Lovrien
Connor Y. Eagan Eileen C. Eagan Mike Eagan Emily Merrill Dennis & Sheila Roley Robert Roley William Rovensky Jr. Carolyn Goldman
Natalie & Niall Squires Scott Squires
Alyson Thompson Tom P. Satterlee
Ava Wheeler Anonymous
Judy Stamberg Saul Nachshen
Jennifer Thompson Anonymous
Chad Whyard Gerry & Vonne Goudreau
Anita Stark Lance Gannett
Molly Thompson Tammy A. Jantzen Sheryl R. Slack
Weston James Wiant James B. Wiant
John Stark C. Stark
Jeff Paustian Jonathan F. Myers
Janusz Rozycki Cory & Corinne Kinnaman
Zach Pennell David Kuhnhausen
Frank Russo Heather Russo
Madison Perry Charles & Geraldine Dillin Michelle Hansen Janet L. Perry Duane & Bonnie Wentlandt
David Schatz Joseph Leeson-Schatz
Rob Stone Jonathan Neman Cory Robbins
Danette Schneider Schneider Family Trust
Bill Takasumi Myra Takasumi Blackmun
Layne Price Mark T. & Anne E. Price
Monte Scott Anonymous Rubert Fixott David Golder Jason Herring NAIFA Oregon
Reed Talus Becky & Stacy Talus
Quinceaneras Bejamin J. Boedigheimer Astraea Quisenberry Anonymous Bank of America Foundation Kendra Biller Lisa Bogen Julia Brayshaw The Lane Werner Family Foundation Larry Lewis David Petersen David Quisenberry Jennifer Rogers Sarah Ryan & Douglas Larson Donna Schuurman Damon Smith Kaeley Stephens James Thompson Dallas G. Thomsen Nicole Tonelli Julie Ramstad Anders T. Ramstad
Mr. & Mrs. Richard Scott Gretchen Stangier Heidi Shepard Give With Liberty Tricia Harvey Matthew Shelley Jacob R. Derrah Pat Smith Gretchen Stangier
Keli Stevens Gretchen Stangier
Kurt, Nicole, & Wyatt Tannler Gregory J. Vislocky Mekel Tarbet Lolita E. Carl Seth B. Isenberg John & Marilynne Keyser Patti A. Tarbet Niswanger The Regence Employee Giving Campaign Theodora & Mike Schrier Timshel L .Tarbet Timshel L. Tarbet The Cambia Employee Giving Campaign
Shaye Thompson Davis Wright Tremaine LLP Graham Thudium Greenberry Industrial LLC Christian & Louise Thudium Jay & Julie Welch Olivia Trueb Thomas J. Miller Cohen Walker Kelsea M. Cagle Colleen & Paul Walker Betty & John Walker David S. Walker Carolyn Walters Holly R. Oakley Ian Wellar Gretchen Stangier Mr. & Mrs. Russell A Wendt Gretchen Stangier Becky West Cindy A. Meyer
Sabrina Snow Mary Olszewski
Angelina Taylor Anonymous Brad & Kathi Berens
Ella Westervelt Jeff & Tracy Borlaug Karen E. Gross Hotze Mulder
Sharon Sousa Scott R. Benedetti
Dennis Taylor Donna R. Massey
The Whelan Kids Ione A. Darras
Darcie & Zach Wiens Amanda Broyles Greg Dufour Tryna & Wyatt Hermanson Hannah Wiley Susan Ibarra Alex Wilkison Diana L. Bradley Nick Wilson Bernard F. & Shirley M Croucher Stephanie Wilson David & Karen Spooner Victoria, Justin, & Hudson Withers Gregory J. Vislocky Holly Woolard Stacy Sidline Doris Wood Julia M Trovarelli Larissa Zakovics Robert Maloney, Jr. Leslie Zolbe Matthew & Kathleen Zolbe Tyler Zorbas Jerrie L. Hogan Kerrie Zurovsky Deborah L. Weisshaar
Alastair Reynolds Audrey C. Gates Chase & Zachary Rivers Bradley Rivers Madeline Robbins Chris & Lena Eagan Chris & Carolyn Eagan
All photographs in this Report were made possible through the generosity of talented local photographers. Feature photographs of Lexi, Jenny, Aidan, Ryland, and Regina Ellis are courtesy of Charles Gullung Photography. Silhouette images of 2013 CCA Community Heroes, Sapphire and Estevan, and their families, were taken by Michael Schoenholtz Photography. Impact and Finacials page photo is courtesy of golightlyfilms, Inc. Cabinet of Wonders photo taken by Jason Quigley. All other photographs were taken by CCA. Thanks to Willow Bacon for her beautiful way with words and children, to CCA Ambassador Board Member, Aaron Cooper, for his creative brilliance and for introducing Charles Gullung to CCA, and to HUB for CCA’s brand development.
GET INVOLVED. BE INSPIRED. Our 1,000+ strong volunteer corps, has the power to change the lives of those in need. But very often, our volunteers find it’s actually their lives that are changed by the extraordinary spirit of the courageous kids and families CCA serves.
“Volunteers do not necessarily have more time than others; we have found they simply have more heart.” Volunteers of all ages help to power every aspect of our organization from directly supporting seriously ill children to creating new program innovations, and spreading joy throughout the community. They are our heart and soul, fueling CCA’s innovative programs that deliver JoyRx. Become a mentor to a child or teen going through treatment in Oregon or SW Washington....Provide your musical talent....Share your favorite song and prescribe joy to kids across the nation....Organize a group to help with landscaping or maintenance at the Caring Cabin.... Gather your school mates, family, and/or friends to create a fundraiser or deliver hope to a family during the holidays....Lend a hand to support our many events... Individuals, families, and corporate or school groups can learn more about volunteer opportunities at volunteer@JoyRx.org.
JoyRx Without the selfless dedication of our community volunteers, the important work of CCA would not be possible. FY13 volunteers donated 12,256 hours of time to CCA, that’s an in-kind value of $271,348. To see a list of our 1,093 amazing volunteers, and to learn how to get involved, please visit our website, JoyRx.org.
The Children’s Cancer Association is an equal opportunity employer. We use a similar approach for volunteers, therefore, people of every race, religion, sex or national origin are encouraged to apply to volunteer.
Children’s Cancer Association believes: We believe kids deserve long, wonderful lives. Or, at the very least, short, wonderful lives. We believe cancer sucks. We’ve had it, or loved someone who did. We prescribe moments of joy for kids who are in the fight against all serious illness. We create lasting memories for the loved ones who stand beside them. We believe joy grows exponentially when it’s used collectively. We are surrounded by a league of extraordinary heroes who perform amazing feats of compassion, generosity, and love every day. We believe in the healing power of music. We are music-as-medicine pioneers and champions. We believe in purple. We know joy comes in all colors, shapes, and sizes – just like the kids who need our help. We love to laugh. We are not afraid to cry. We spend every dollar wisely. We give hugs freely. We believe in today. We respect our history as a grassroots organization. We embrace our destiny as a global source of JoyRx. We believe these things matter. 1200 NW Naito Parkway, Suite 140, Portland, OR 97209 | (503) 244-3141 | Office@JoyRx.org | JoyRx.org