CAMPAIGNING
OUR CAMPAIGNING WORK PARLIAMENTARY GROUP Earlier this year, the All-Party Parliamentary Group on Brain Tumours (APPGBT) launched its first-ever Inquiry backed by Brain Tumour Research as its Secretariat. Parliamentarians and Brain Tumour Research were really keen to better understand the true cost of brain tumours in the UK for patients and their families. In our continuing quest to increase the national investment into brain tumour research, we recognised the importance of launching this Inquiry as it will support the business case for research investment in achieving parity with other cancers such as breast and leukaemia.
The Inquiry was discussed at the APPGBT on 27th February. Members agreed on the Terms of Reference and the timeline for the Inquiry, which ran throughout the spring and summer, with the report being launched in late 2018. The Inquiry Panel Members include Derek Thomas MP (Conservative, St Ives), Right Honourable Alistair Carmichael MP (Liberal Democrat, Orkney and Shetland), Sarah Jones MP (Labour, Croydon Central), Dr Helen Bulbeck (Director of Services, brainstrust), Clare Normand (Head of Strategy, The Brain Tumour Charity) and Sue Farrington Smith MBE (Chief Executive, Brain Tumour Research).
The Brain Tumour Research web forum
An online forum for brain tumour patients and community members hosted on the Brain Tumour Research website was officially launched on 6th March at our Speaker’s House reception event. The forum received over 200 submissions, detailing numerous financial impacts including early retirement, loss of driving licences and direct non-medical costs, such as hospital parking and support costs. These responses helped the Inquiry Panel identify key impacts and themes experienced across the brain tumour community.
Campaign with us
Help us FUND THE FIGHT. Together we will find a cure 28 Autumn 2018 www.braintumourresearch.org
Influencing the Government and larger cancer charities to invest more in brain tumour research
