Patient and Family Engagement

BC Renal Patient & Family Engagement Advisory Committee is established

Featured Accomplishment

In 2021, the Patient & Family Engagement Framework Working Group evolved into an ongoing committee to continue its vital role. The Patient & Family Engagement Advisory Committee provides guidance for the implementation of the framework and development of policies and resources to support authentic and meaningful engagement across BC Renal committees and key activities. The ultimate goal is to shift the culture and enable true person- and family-centred care at a provincial level. Members include:

• five patient partners; • regional health authority representatives; and • representatives from the Kidney Foundation - BC & Yukon

Branch and BC Renal.

Who are patient partners?

A patient partner is a patient, or family member/caregiver of a patient, who:

• has lived experience with (or is at risk of) kidney disease • is interested in making a difference in kidney care • is open to sharing their experience and working with health care professionals and other partners.

 Participants in the BC Renal Patient Partners Connect session of BC Kidney Week 2021

73

Patients & family members in the network

25

Engagement opportunities

25

Active patient partners*

“This project has given kidney patients and their families a way to be heard. It has also given them a way to gain knowledge and to provide the tools that they may use to advocate for themselves.

I am grateful that our work in conjunction with other committees will provide a safe and better place for all patients past, present and future to feel empowered.”

- Randy Spensley, patient partner, co-chair, BC Renal Patient & Family Engagement Advisory Committee

Advancing Insights

Opportunities for patient and family involvement and education in the kidney community

Other Key Initiatives

Launch of Advancing Insights - A newsletter designed by BC Renal patient partners to keep our network of patients and family members updated on engagement and educational opportunities in the kidney community.

Development of Partnership Matters videos - BC Renal committee chairs and patient partners share their stories as members of the Palliative Care Committee and ADPKD Advisory Committee. The short videos illustrate their partnerships as well as the evolution and impact of patient and family engagement in BC Renal.

Web info & resources:

BCRenal.ca  About  Accountability Patient and Family Engagement