Maria Howard
ELIMINATING STIGMA
A recent survey by Insights West showed that 6 in 10 British Columbians would not know what to do if they encountered someone living with dementia who needed help. While awareness of Alzheimer’s disease and other dementias is growing, the stigma experienced by the individuals and families who are affected remains a reality. Negative attitudes held by friends, families, and professionals can discourage people from getting a diagnosis, seeking treatment and support, or disclosing their illness. In a separate survey, 61 per cent of Canadians polled thought they would experience discrimination if diagnosed. Stigma can affect well-being and the ability to manage changes brought about by dementia. When we reduce stigma, people living with dementia can live better. The Alzheimer Society of B.C. is committed to building a world where people affected by dementia are supported, welcomed, and included— a dementia-friendly province. We need to change the conversation about dementia. An important part
18
TABLE OF CONTENTS
The Alzheimer Society of B.C. is committed to building a world where people affected by dementia are supported, welcomed, and included—a dementia-friendly province. is ensuring people affected by the disease play an integral part. We’ve spoken to people living with dementia from across the country who’ve shared their challenges and triumphs. Now, they’re sharing their stories with the world to increase understanding of what the dementia journey is really like and what actions we can all take to end the stigma associated with it.
We can all play a role in eliminating stigma and empowering people affected by dementia. Start a conversation with the people in your life; help them better understand dementia. Talk to people affected by dementia and let them know they’re still part of a community. Mario says, “Focus on my abilities. Dementia can be a long journey; please be patient with me. We can live positively after diagnosis. People with dementia have a voice. Become informed; it’s the best way to reduce stigma.”
Says Mario Gregorio, diagnosed with Alzheimer’s disease and vascular dementia at age 58, “When people tell me I do not look like I have Alzheimer’s disease, I don’t know how to respond because they do not see my struggles.” Since his diagnosis 10 years ago, Mario has become an avid photographer, a passionate volunteer for organizations like Tourism Canada, and an advocate. Dementia doesn’t stop people from being active members of the community. They’re still the same family member, friend, or colleague they were before the diagnosis . . . human beings who want and need our friendship. The Society of Notaries Public of British Columbia
Photo credit: Flora Gordon
J
anuary is Alzheimer’s Awareness Month. People across Canada are standing up and saying, “I live with dementia. Let me help you understand.”
Photo credit: Flora Gordon
Empowering People Affected by Dementia
Mario Gregorio, dementia advocate and member of the Alzheimer Society of B.C.’s advisory group for people living with dementia Volume 27 Number 4 Winter 2018
