Spectrum Life Magazine Fall 2018 Issue from Autism Empowerment

Page 18

LIFESPAN

“Sucking It Up” To Pass as Non-Autistic My Ticket to the Table By Judy Endow

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It is a lot of work to look non-autistic, and yet, looking non-autistic is the ticket to sit at many tables. It is not right, and yet, I choose to expend a great deal of energy inhibiting my autistic ways for the sake of sitting at some of society’s tables. Employment is one such table. Just like all other adults, I need to pay the monthly bills, buy groceries, have transportation, etc. This all poses quite the conundrum for me.

I am in my late 50’s. I have lived my life differently than the younger autistic activists and the autistic children of today. I spent some of my growing up years in an institution. Autism was not a diagnosis given out back then. Instead, I had several other labels. My institution employed behavior modification. I learned to “suck it up” to purchase my ticket to freedom – discharge from a state mental institution. If I had to do it again – yes, I would

I spent most of my life to trying to figure out the world around me – to fit myself into it in such a way as to feel more comfortable, raise my children, remain employed and have a few good friends. This all has come at a high personal cost. In many areas of life, I have to literally “suck it up” and be someone I am not just to have a ticket to participate.

choose to “suck it up” and be someone I wasn’t because the ticket I needed to buy was important enough to me to be able to purchase.

www.spectrumlife.org

As a young adult, I failed at my first attempt to get a college degree. For three years, I was successful at “sucking it up” and acting non-autistic enough (even though I hadn’t Continued on next page www.spectrumsmagazine.org

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