2022 HIGHLIGHTS AT A GLANCE

A new, home-based rehabilitation program is part of a research effort funded by gifts from the Cortney Gives BAK Foundation, Reuben Phoenix Schostak Fund and the Pediatric Heart Network (PHN) that aims to equitably improve frailty and exercise capacity among our patients with Fontan circulation. The program also drives expansion of an outpatient informatics platform for clinical exercise programs, research collaboration and patient engagement.

Among many 2022 accomplishments, the unique U-M Congenital Heart Center Psychosocial and Educational Program (M-COPE) launched a virtual group and mobile app-based resiliency skills training program for young people with heart disease and secured support for a novel adult congenital heart disease (ACHD) focused psychology fellowship training program as well as funding for new research studies. One NIH-funded study is aimed at meeting the communication and decision-making needs of young people with advanced heart disease and another PHN-funded study is examining the impact of social determinates of health on access to mental health care and outcomes in patients with single ventricle heart disease.

U-M revolutionized the surgical treatment of hypoplastic left heart syndrome (HLHS) and continues to care for one of the largest groups of patients with complex single ventricle anatomy and to lead in the innovation and growth of single ventricle care. Recent accomplishments include:

• our new advanced training fellowship for single ventricle care — a first of its kind.

• coordinated multidisciplinary care for children and adolescents with single ventricle heart disease.

• numerous emerging studies looking to understand hybrid care and outcomes for individuals with high-risk comorbidities and complex single ventricle anatomy.

U-M is leading the first randomized trial to compare outcomes in catheter-based stents and surgical shunts for children with insufficient blood flow between their heart and lungs. U-M investigators are collaborating with a team from the PHN and two national registries to lead the NIH-funded COMPASS trial.

U-M led a national collaboration across several congenital heart centers to launch a new faculty exchange program providing junior career faculty with career development, mentoring and networking opportunities at programs around the country. U-M recently hosted a visiting faculty member interested in learning more about single ventricle care.

THE NUMBERS

14 CLINIC LOCATIONS

5 CONGENITAL CARDIAC SURGEONS

11 PEDIATRIC CARDIAC ANESTHESIOLOGISTS

26 ADVANCED PRACTICE PROVIDERS

4 PSYCHOLOGISTS/ NEUROPSYCHOLOGISTS

5 SOCIAL WORKERS