Foundation Report 2013

2013

SUMMER

Foundation Report 2013

Getting inspired in A New York Minute Motorized parallel bars purchased for rehabilitation at Providence Care Against a backdrop of Broadway tunes, yellow cabs and a beautifully lit skyline, the New York Minute-themed 14th Annual Founders’ Dinner was a smashing success.

Held March 23 at Ban Righ Hall, the audience for the sold-out event came in support of the purchase of motorized parallel bars to be used in rehabilitative therapy at Providence Care. A successful silent auction and a few “surprise” challenges from some of our guests made the event particularly successful.

Guest speaker Todd Nicholson, former captain of Team Canada’s multi-medal-winning sledge hockey team shared his inspiring story.

Because spring was a busy time for the farm community in West Carleton where grew up, the highschool prom was held in the winter. It was coming

INSIDE Executive Director’s Message

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New treatments through research

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Cheque it Out

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Cheque it Out

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Sharing Josh’s story at Kids for Kids

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Founders’ Dinner

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Ontario’s Junior Citizen of the Year

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Todd recalled what happened when his parents came to visit him in hospital. “My father said, ‘there’s not much we can do about what happened, the only thing we can do is we can go after and achieve the things you still want to do,’” Todd said. “For my mom, she came out and said ‘never give up on your dreams.’”

It was by surrounding himself with positive people just like his parents that Todd says the day Guest speaker Todd Nicholson shows his gold medal of his accident changed from from the Torino games at the Founders’ Dinner. being of the worst days of his life to one of the best. “I’ve always home from this event on Dec. 18, 1987 surrounded myself with people that Todd’s life was forever changed. who knew when and how to push me.

His car hit a snowbank on the road, And those people who I surrounded went out of control and into a tree. myself with never stopped letting me believe what I was capable of doing.”

Paralyzed from the waist down, the 18-year-old’s childhood dream of playing hockey in the National Hockey League would never be realized. But, he later discovered, they would be surpassed by so much more.

It led to a 24-year career travelling the world, representing Canada in paralympic sports, including being a

Continued on page 7

Message from the UHKF Executive Director

Putting donors at the centre of what we do This month I attended a workshop about Patient and Family Centered Care. It was inspiring to hear of the ways that our hospitals have redesigned care processes so that patients and their families feel informed, involved, and respected.

How do we determine the right balance between getting your receipts out quickly and keeping our staffing levels low? What standards should we set for keeping you informed about the gifts we’ve received and the impact they’ve had on care? How can we better The impact of this new Denise Cumming involve in you decisions approach is already being about how and when we seen, with tangible improveask for your financial support? What ments in patient satisfaction and changes do we need to make to ensure health outcomes. that you feel highly-regarded by each We’ve been talking in our foundation and every person who works on our office about how to apply these same behalf, whether staff or volunteers? principles in our service to donors.

In the coming months, we’ll be inviting some of our most faithful donors to consider joining our new Donor Advisory Council. Our goal is to have a dozen committed supporters step forward and participate in this important new role.

If you’re a committed supporter of UHKF, but feel there’s room for improvement in our services, we’d love to have you step forward and volunteer.

For more information on our Donor Advisory Council program, please email us at foundation@uhkf.ca.

Yes, I/we want to support our hospitals

Cut out this form and mail to: University Hospitals Kingston Foundation · Suite 4· 55 Rideau Street · Kingston · Ontario · K7K 2Z8

I want to make a donation □ A one-time gift of $ □ A monthly gift of $

(make cheque payable to UHKF) (you may change or cancel at any time – receipts for monthly donations will be issued on a yearly consolidated basis)

Method of Payment □ Pre-Authorized debit: I have enclosed a blank cheque marked "VOID". Please withdraw above amount on the Signature: □ Please charge my □ Visa □ MasterCard I authorize UHKF to charge my credit card on the Card#: Signature of Card Holder:

day of each month for the amount above.

Exp.Date: / □ Personal □ Business Name of Card Holder:

□ I have included Kingston hospitals in my estate plans and would like to be a member of the Evergreen Society.

Make your gift a Tribute in honour of someone who has touched your life and we will notify the individual of your tribute.

day of each month.

I would like to see my donation:

□ Shared where needed most to benefit the hospitals or □ (please specify) I can be reached via email at this address:

Name of Honouree: Contact Information Reason for Gift:

We recognize donors by name in our publications: □ I do not wish my name to be published

Tax receipts will be issued for all qualifying gifts of $20 or over, or upon request.

Charitable registration #820218147RR0001. We do not sell or rent our mailing lists.

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Focusing on patient-oriented research

Research discoveries help put patients first At 87 years of age, Anne Schutta was extremely short of breath and says she was “tired all the time”. Her aortic valve was severely calcified and needed to be replaced, but the risks of open heart surgery were considerable.

The conventional procedure for such a diagnosis would be to connect the patient to a heart-lung machine and open up the chest to take the old valve out and put a new one in, says Cardiac Surgeon Dr. Darrin Payne. Risks associated with this type of procedure increase for older patients who may have other factors such as low body weight.

“In some cases, you just have to say the risk is so high, it is just something we cannot do,” Dr. Payne says. Fortnately for Anne Schutta, that’s where the groundbreaking Transcatheter Aortic Valve Implantation (TAVI) procedure comes in.

It involves using a catheter that goes to the heart through an incision near the groin. The new valve is then implanted through the catheter.

The TAVI procedure has been performed at KGH for the past few months for certain patients, with a plan to increase the number of patients who may benefit from the procedure in the longer-term. “It’s a growing technology in the Kingston and surrounding area,” notes Interventional Cardiologist Dr. Paul Malik.

Interventional Cardiologist Dr. Paul Malik (left) and Cardiac Surgeon Dr. Darrin Payne (right) with grateful patient Anne Schutta whose life was forever changed thanks to new treatments.

For patients like Anne Schutta, having access to such high-tech care in Kingston is life-changing. Four days after her procedure, she was discharged home.

In fact, she says, “it’s given me my life back.”

Those were the words she chose when she spoke to about 120 donors at a special Bell luncheon in May, that was focused on demonstrating the difference that is being made for patients through medical research.

“The foundation provided a lot of the

seed money that allowed us to do TAVI here,” Dr. Stephen Archer, Dean of Medicine, said at the luncheon.

At present, funds are being raised to support creation of a patient-oriented Clinical Investigation Unit - a major priority at KGH. It will involve research explicitly aimed at improving outcomes for patients, noted Dr. Roger Deeley, Vice President of Health Sciences Research at KGH. Contact UHKF for more information.

Did you know?

We have satellite offices in our benefiting organizations.

You can visit any of our staff at the following locations: Nancy Druick on Sydenham 2 (just inside the Sydenham St. entrance) at Hotel Dieu Hospital Bill Durnford & Suzanne Beek in Nickle 2 at Kingston General Hospital Margaret Miller - Empire 2 Room 3-263 at Kingston General Hospital Michelle Hauser - Room 1-2057 at Providence Manor

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“Cheque” it out!

Organizers, staff members at the Child Development Centre at Hotel Dieu Hospital and some of the wonderful families who participated in the Annual Run/Walk for the CDC celebrated the $27,720 raised at this year’s event. The funds will make a difference in the lives of some very special children in our community! Photos from the March 24 event are available on the UHKF Facebook page and a video from the cheque presentation May 13 is available on the UHKF YouTube channel. Thank you to everyone involved!

On February 15, staff at the Neonatal Intensive Care Unit at KGH welcomed some special guests from the Sandra Schmirler Foundation, (SSF) which raises money for NICUs across the country to help create “future champions.” While here, members of the SSF Board donated $57,000 to UHKF for the purchase of a video laryngoscope.

Providence Care Volunteers kicked off Volunteer Week in style. In addition to the wonderful in-person value they add to our hospitals, they are also significant fundraisers and volunteers from Providence Care’s Mental Health Services and St. Mary’s of the Lake sites presented UHKF with $50,000.

Pioneer Energy’s Give What You Can campaign took place in April, supporting Children’s Hospitals across Ontario (including right here in Kingston!) We’re proud that Adam from Kingston was one of the children featured in this wonderful campaign!

Noel Bateman and Revell Ford want to raise $10,000 for UHKF through carsforcancer.ca.

Visit their website to find out more information.

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“Cheque” it out!

On April 10, UHKF and KGH joined together with the Canadian Cancer Society to launch the 2013 Relay For Life in Kingston. This is a signature event for the Canadian Cancer Society in support of CCS-run programs and research, and will also provide funds for the purchase of equipment for the Cancer Centre of Southeastern Ontario at KGH. What is Relay all about? Why does it happen at night? You may want to watch the launch on the UHKF YouTube channel.

Holy Cross students Mitch Patterson and Marilyn Doherty presented a cheque for $7,900 to Lori Faggiani from UHKF, proceeds from The Memorial Basketball Tournament that took place on January 17. Mitch and Marilyn were key organizers for this year’s event, which was a fundraiser for the Cancer Centre of Southeastern Ontario at Kingston General Hospital. The event featured a doubleheader of Junior and Senior boys’ basketball between the Regi Panthers and the Holy Cross Crusaders.

The Union of Canadian Correctional Officers - UCCO-SACC-CSN recently made a $3,200 donation to the Children’s Cancer Fund at Kingston General Hospital. Pictured (l-r) are Kingston Penitentiary Local President Mike Deslauriers, parent representative Audrey Jones, Regional Treatment Centre Local President Robert McMullen, Regional Health & Safety Representative Bernie Jones, Dr. Mariana Silva from the Pediatric Oncology Program and UCCO-SACC-CSN Regional Vice President Rob Finucan (with one of several stuffed dogs also donated to the pediatric oncology program).

UHKF Executive Director Denise Cumming accepted about 300 knit caps from Michel Mailhot and Lise Belanger from Trenton. The caps were made as part of the Boomer’s Legacy Cap project, designed as a way to honour a fallen soldier and to honour his memory by making a difference for the children of Afghanistan. More than 300,000 caps were knit and sent overseas, but when Canada’s mission to Afghanistan changed, a shipment of hats was halted in Trenton. That’s when the Catholic Women’s League, Chapel Our Lady of Peace in Trenton got involved, in order to ensure the caps that were made with love were donated for the benefit of others. As a member of the CWL, Lise arranged to have these hats brought to KGH - to be given to children at the hospital and to people fighting cancer.

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Kids for Kids - Josh’s story

Hockey and health care is a winning combo Seven-year-old Josh Heurter of Gananoque didn’t play in the Kids for Kids tournament this year because he was called up to the Big League.

On March 28, the centreman took a face-off at centre ice as part of the Future Sens hockey program and he couldn’t have been happier. Josh proudly sports number 19, after his favourite player - Jason Spezza.

Like many boys his age, Josh has a dream of someday being in the starting lineup of his favourite team. And if the tenacity he’s shown in his first seven years has anything to do with it, we may well see Josh’s name on the Sens video scoreboard in the future.

Josh is one of the many children who have benefitted from the funds raised over the years at the Kids for Kids tournament in support of pediatric care and neonatal intensive care at Kingston General Hospital. Born with sacral agenesis, a rare and little-known condition, Josh has had 14 surgeries so far, and is scheduled to have another this spring.

This congenital condition means that his sacrum was partially formed. Less than 24 hours after he was born at KGH, Josh underwent his first surgery under the care of pediatric surgeon Dr. Sarah Jones. It may have been her prophetic words to Josh’s mother that set the wheels in motion for his love of hockey. “I can still remember the day Dr. Jones told me he would be healthy and able to play hockey. He was one day old then,” Tina recalls. Josh would go on to have four surgeries in his first 11 months.

He’s also received care at both Sick Kids in Toronto (where a catheter was inserted via his belly button channel

Kids for Kids chair Garry McColman and Josh ham it up before the official opening ceremonies at Kids for Kids, which resulted in a $25,000 donation to pediatrics.

two years ago) and at the Children’s Hospital of Eastern Ontario, but most of his medical care has happened close to home, here in Kingston.

While he manages a daily care routine with the help of his parents with a smile and has scored a handful of goals for his hockey team, Josh still receives a significant amount of medical care coming to Kingston every few months and Sick Kids twice a year.

When he’s at KGH, Josh looks forward to talking hockey with Mike from Child Life Services, who even has autographed hockey cards from the young superstar. In fact, Josh’s mom says, all of the staff they have met at KGH have been wonderful and they

are particularly grateful fro the care provided by Dr. Andrea Moore.

During his last stay, Josh got to play sheriff in the pediatrics ward and was presented with a special badge and a job of helping to buzz people in and out of the locked unit.

The Heurter family understands the importance of donations like that provided by the Kids for Kids tournament in support of children’s services in our local hospitals. They have seen, first hand, the incredible improvement made to the pediatric department at KGH through redevelopment.

“The new unit is nice because all of the rooms are private,” Tina says. That makes a big difference for children and their families. Whether a child is fasting because of surgery or they simply need peace and quiet for a rest, private rooms can make a big difference.

Josh, who dreams of playing in the National Hockey League for the Ottawa Senators, provides some sage advice for this friends in the pediatrics department when he gives them one of his own autographed hockey cards, advising they take good care of them, because they will be very valuable one day.

Get social with UHKF at your fundraising event.

Relive the event with pictures on Follow along with live tweets on Watch videos from events on Network with us

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You can do a lot of good In A New York Minute From Page 1 key member of Team Canada’s sledge hockey team in five Olympic games, winning bronze, silver and gold medals.

“I took all of those dreams I had as a kid and I changed them. There is nothing I cannot do. Everything is possible. We just have to do it a little bit different,” he says. For him, that meant changing activities that he used to do with his whole body and doing it with his arms instead.

He can still do things like triathlon, skydive, scuba dive and much more – just differently.

Special thanks to members of the Providence Care Founders’ Dinner Organizing

To hear the incredible saga of how he Committee (l-r) - Michelle Duchesne, Dale Fox, Denise Clifford, Chris Murphy, Joy was almost sidelined before the games Beazley and Rachael Koven. in Torino (where he has a hilarious story about carrying the Canadian Let us know! flag during opening ceremonies) watch the video of Todd’s presentation at http:// Please let us know the best way to bit.ly/11OI6EK. Photos from the event keep in touch with you. are also available on the UHKF Facebook • Would you prefer to receive appeals from UHKF at a page. certain time of year?

Thank you to the amazing volunteer • Would you prefer receiving UHKF information via email? organizing committee for putting together Give us a call at (613) 549-5452 or email such a wonderful signature event in foundation@UHKF.ca and let us know! support of Providence Care.

Members Wanted!

The Women’s Giving Circle is about to fund its first local research projects.

Find out how you can make a difference!

Call Lori Faggiani at (613) 549-5452 ext 5918

Join us on July 12, 2013 at Loyalist Golf and Country Club for the UHKF Invitational Golf Tournament presented

by Generation Next.

Individual registration is $200 or team registration for $800.

Call 613.549.5452 ext 5916 or email events@UHKF.ca to register.

Funds raised will go to mental health across all three hospitals.

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McKenna Modler - Ontario Junior Citizen of the Year

McKenna’s Dream continues to inspire On March 8, McKenna Modler and her family took part in a special ceremony at Queen’s Park where she was presented with one of 12 Ontario Junior Citizen of the Year Awards by Lt.-Gov. David C. Onley.

Created by the Ontario Community Newspaper Association, the awards are designed to recognize the incredible achievements of young people involved in community service.

McKenna was nominated jointly

by McKenna’s Dream chair Jo-Anne Neilson and UHKF for her selfless efforts in helping raise funds to support families with children fighting cancer in our region.

To date, McKenna’s Dream has raised more than $130,000 for the Children’s Cancer Fund at Kingston General Hospital (KGH).

While fighting brain cancer, she has taught many people about hope, inspiration and generosity. Our future is much brighter in southeastern Ontario because of young citizens like McKenna.

McKenna has received more than 70 chemotherapy and other treatments at KGH and Sick Kids in Toronto.

While receiving treatment one day at KGH, she decided she wanted to do something to help relieve the pain of other families as they dealt with the stresses that come when a child has cancer. She shared her “dream” with her parents in late 2011, sparking an incredible chain of events that resulted in the McKenna’s Dream event and continuing efforts today.

McKenna has inspired her friends and classmates. She’s touched many with presentations and speaking opportunities and has handled many media interviews with grace. Perhaps most of all, McKenna’s impact is best measured in the way the eyes of other children who are fighting cancer light up when she walks in the room.

McKenna’s gentle, kind spirit has McKenna Modler of Lansdowne receives her Ontario Junior Citizen of the Year Award from given much hope and inspiration The Hon. David C. Onley in March. to families fighting cancer.

In receiving the Outstanding Youth in Philanthropy Award has been not only overwhelming, but from the Association of Fundraising humbling. I hope that in receiving this Professionals, McKenna said, “although award, young people such as myself can my cancer journey has been a struggle, see that sometimes the desire to help I have encountered many wonderful others can turn into a dream sometimes people along the way. The inspiration all of its own.” and support for McKenna’s Dream

Foundation Report is published by the University Hospitals Kingston Foundation – the fundraising arm of Hotel Dieu Hospital, Kingston General Hospital and Providence Care. For copies or permission to re-print contact us.

Foundation - Winter 8 University Hospitals Kingston Foundation,Report Copyright 2013. All2012 rights reserved.

For more information on the Foundation or to make a donation, please contact us.

Our Local Number: 613-549-5452 • Toll-Free in Southeastern Ontario: 1-866-549-5452 55 Rideau Street, Suite 4 • Kingston, ON K7K 2Z8

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