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OCTOBER 2017
A Tale of Two Sisters
SISTERS SHARE STORIES OF SURVIVAL AND PREVENTION
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OCTOBER WRITERS
Chloe Emory / Dawn Rodriguez Lynn Wettach / Matt Chipperfield Samantha Epstein / Sarah R. Brodsky
A TALE OF TWO SISTERS: SISTERS SHARE STORIES OF SURVIVAL AND PREVENTION
One in every eight women is diagnosed with breast cancer. Advances in science have helped improve treatment of breast cancer and survival rates are increasing, but more women are now making decisions to help avoid a diagnosis in the first place.
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OCTOBER PHOTOGRAPHERS Chloe Emory / Cris Jon Penelope T Boutique
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4 Shifting Gears: Local Cycling
10 Pink Sisters and Friends: Advocacy
6 The Beaches Art Fest Returns as
12 Does Fashion Have an Age Limit? 14 You Don’t Know Until You Go: Fall
Enthusiast is Making a Difference, One Mile at a Time
Program Provides Hope and Support to Breast Cancer Patients
Two-Day Event
8 A Tale of Two Sisters: Sisters Share Stories of Survival and Prevention
is the Best Time for Camping and Fishing for Flood Tide Redfish
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SHIFTING GEARS
LOCAL CYCLING ENTHUSIAST IS MAKING A DIFFERENCE, ONE MILE AT A TIME The PGA Tour Cycle to the Shore is a two-day cycling and fundraising event The experience is daunting. Burning hosted by the National Multiple Sclerosis sensations radiate through every limb in Society. The ride attracts nearly 100,000 the body. There are times when muscles participants (at a national level) through feel they may give out. Energy rapidly more than 80 rides. Many cyclists look burns. Thirst sets in. The Florida humidity forward to this event every year, eager to is nearly impossible to penetrate. The lungs raise money and awareness for MS through begin to work overtime: breathing the salty their passion of riding. air in and out at a pace the mind cannot comprehend. Bike pedals rotate, spreading Bruce Reid, a retired Beaches resident, is tension throughout the white, glistening one of these cyclists. He has been involved sand. Giving up seems inevitable, but with Bike MS for many years. October 2017 there is too much on the line — raising will be the 17th Bike MS event Reid has awareness, finding a cure, saving lives. Stay ridden in. He has completed Bike MS events on course. Complete the race. This is the in all 50 states, a total of 81, 150-mile rides experience and thought process of many for the MS Society. As a seasoned cyclist, Bike MS participants. Reid is always ready to strap on his helmet, not just for the physical benefits of the Writer / Samantha Epstein
ride but also for the emotional benefits of supporting such a meaningful cause. “I really want to see MS cured in my lifetime,” Reid says. “The Ride for MS is a means to accomplish this goal. As a cyclist, the race is an extreme challenge, but really it pales in comparison to the daily struggles of a MS patient.” Bruce leads the riding group the Big Bananas, a 30-person team well-known for their fundraising success. Each member typically brings in at least $1,000. To-date, the Big Bananas have raised $650,000. Reid is no novice when it comes to fitness, cycling and races. He began participating in marathons and triathlons. Cycling was
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introduced to him as a way to alleviate the pain associated with high-impact physical activity.
more than 2.3 million people worldwide. Symptoms range from numbness and tingling to blindness and paralysis.
Not long after, Bruce realized cycling was more than an activity that brought him joy and maintained his physical fitness — the sport became a way to make a difference in the lives of countless people battling MS, an illness that is unpredictable and often disabling. With MS, the flow of information within the brain becomes disrupted, making it difficult for the brain and body to work together. Most patients with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men diagnosed. Although there are many uncertainties associated with MS, advances in research and treatment are leading to a better understanding of the causes, risk factors and symptoms associated with the illness.
“When I meet someone with MS who is participating in Bike MS, I stop and think, ‘Wow, what a hero,’” Reid says. “It’s very inspiring to ride side-by-side with individuals who are able to exercise such courage when facing adversity. Seeing their smiling faces at the finish line makes every mile worth it.”
The funding that results from events like Bike MS makes such research possible. MS affects
One of the many aspects of Bike MS that Reid really enjoys is that the event accommodates all fitness levels. Participants do not have to be accomplished cyclists to join the ride. There are route options between 36 to 160 miles, making it possible for beginners to partake in the event. Bike MS: PGA Tour Cycle to the Shore will have more than 1,500 cyclists pedaling through the sand. The event is expected to raise more than $1.5 million. Held on October 14-15, the ride will kick-off on day one from
two locations: TPC Sawgrass and Marine Land. The ride will conclude in Daytona Beach on day two. For those new to cycling, Reid offers a word of advice. “Make sure you enjoy the ride and the process,” he says. “You don’t have to buy a $10,000 bike to be a good cyclist, just have the heart for it and keep at it.” For additional information on Multiple Sclerosis and Bike MS: PGA TOUR Cycle to the Shore, visit nationalMSsociety.org or bikeMS.org.
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The Beaches Art Fest Returns as Two-Day Event Writer / Lynn Wettach
The 4th Annual Beaches Art Fest returns as a two-day fine art extravaganza. The event is being held October 14-15 on Pablo Ave (Beach Blvd & A1A), Jacksonville Beach and will benefit the Beaches Museum & History Park. Lynn Wettach, Show Director, is well known for bringing artisans together who are recognized nationally/regionally for their talents. The show is a professionally juried art and fine craft event where each exhibitor is carefully selected with only the best work being accepted in each category. This year there are nearly 100 outstanding artisans and master craftsmen who will be exhibiting their carefully created works. The person or artist you meet in the booth is the visionary behind the work. Each is available throughout the show to discuss their work, share their stories and answer questions. It’s a perfect opportunity to explore a wonderful palette of diverse artwork. “The success of the first three years of The Beaches Art Fest shows how much the community wants this type of event at the Beach,”
says Chris Hoffman, Executive Director of the Beaches Museum & History Park. “This is going to be a wonderful experience for the artists and the visitors.” Attendees can expect to find that something special to please everyone (and every pocketbook). From exquisite jewelry to funky and functional pottery, abstract sculpture to glistening glass, handwoven fashions to stunning photography, extraordinary paintings to wonderful woodcarvings. “I am pleased to say, we have a treasure trove of top quality, original, affordable and imaginative creations from a wide variety of exceptional artists,” Wettach says. “This is going to be a fantastic show.” The Beaches Art Fest is presented by the Beaches Museum & History Park and Driftwood, Jacksonville Beach and produced by Holiday Art Shows, St. Augustine. The fest will begin Saturday, October 14, from 10 a.m. to 5 p.m., and Sunday, October 15, 10 a.m. to 4 p.m. on Pablo Ave (Beach Blvd & A1A), Jacksonville Beach. Admission is free. For more information, visit TheBeachesArtFest.com.
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MAGAZINE OCTOBER 2017 OCTOBER 2017
MAGAZINE
A Tale of Two Sisters
S OF SURVIVAL AND SISTERS SHARE STORIE
PREVENTION
SHIFTING GEARS
LOCAL CYCLING ENTHUSIAST
IS MAKING A DIFFERENCE, ONE
MILE AT A TIME
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A Tale of Two Sisters
SISTERS SHARE STORIES OF SURVIVAL AND PREVENTION Writer / Sarah R. Brodsky . Photographer / Cris Jon
Given her age and complexity of her cancer, doctors recommended Jennie undergo genetic testing to look for BRCA 1 and But why would someone willingly choose to BRCA 2 – gene mutations linked to about 20 percent of all breast cancers. remove their breasts or ovaries? that she carried a genetic mutation and had a double mastectomy.
One in every eight women is diagnosed with breast cancer. Advances in science have helped improve treatment of breast cancer and survival rates are increasing, but more women are now making decisions to For Mollie – who made her decision three help avoid a diagnosis in the first place. years before the celebrity’s announcement – the rationale was simple: love for her sister, Mollie Case is one of them. Case, an event Jennie, and a future without cancer. planner who lives in Ponte Vedra, is what’s known as a “previvor.” At her yearly gynecologic check-up in 2010, Jennie, then 37, was a bit perplexed when The term previvor was first coined by the doctor kept poking at one part of her Sue Friedman, a breast cancer survivor chest during the breast exam. who founded a support group known as FORCE, to label those currently “She kept asking me, ‘What is this?’ Her unaffected by cancer but still carrying a fingers hit something. But I didn’t feel high hereditary risk. anything. It wasn’t a pea or round. I thought it was muscle,” says Jennie, a second grade Perhaps the most famous previvor is teacher at Palencia Elementary School. Angelina Jolie. The advocate actress – whose mother Marcheline Bertrand died of She had cancer in each breast. And she ovarian cancer – spurred a national debate didn’t have just one type of cancer. She had over women’s health decisions when she three, including triple negative, one of the announced in a New York Times column most challenging cancers to treat.
Jennie tested positive. She learned the trait came through her father’s side of the family. “My paternal grandmother had breast cancer. She was one of eight siblings and every one of them died from some type of cancer,” Jennie says. Mollie, 33 at the time of her older sister’s diagnosis, admits that while she’s the worrier in the family, when it came to genetic testing, she wasn’t really focused on it. “I was more worried about Jennie having cancer. It wasn’t about me,” she says. That is until the day she was traveling for work and got a call from the genetics counselor on the way to the airport.
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“She asked if I was ok to talk and I just knew I had the BRCA gene,” she says. Eventually, Mollie met with Dr. Sarah McLaughlin, the breast surgeon at Mayo Clinic who operated on her sister. “I remember Dr. McLaughlin told me that BRCA doesn’t mean I will get breast cancer – it just means I have an increased risk,” Mollie says. “She went through my options, including do nothing other than increase surveillance with mammograms and MRIs. But I knew my decision. If I had a chance to prevent it, there was no question.”
Mayo Clinic and Baptist Medical Center. about it,” Mollie says. “I had friends who couldn’t fathom it. ‘You’re doing what? Why They also share their experiences with others. can’t you just monitor yourself?’” “Other breast cancer survivors were so helpful to me when I was diagnosed. I’m Though Mollie never second-guessed her now helping others and just paying it decision, she admits to experiencing a bit forward,” says Jennie, noting that she’s of guilt watching her sister suffer through always happy to talk to people going treatments. But Jennie is glad she took through breast cancer. initiative. “Mollie saw all I went through – the good, the bad and the ugly,” Jennie says. “Knowing she is a worrier, getting a doublemastectomy was the best choice for her. I’m happy she had the procedure.”
Mollie underwent a double mastectomy and Mollie often counsels other women who are contemplating proactive surgery. “I tell them reconstruction in November 2010 as her to tune out the noise and make your own sister tackled chemotherapy and radiation. decision. Do what’s best for you,” she says. Though she was open about her decision, Today, both sisters are passionate advocates many didn’t understand it. for breast health and active volunteers. They support local walks and runs, as well the “People didn’t realize prophylactic surgery Pink Ribbon Golf Classic, which raises funds was an option before Angelina Jolie. I had for local breast cancer research and care at this done before her but nobody talked
Jennie says she’s had so many people reach out to her that she and Mollie compiled a list of things to pass on to others of what to do before and after someone has a mastectomy. Because of the type of cancer she had, Jennie remains diligent about ongoing follow-up and is optimistic about a future cure for cancer. “It’s a rough road, but there is a light at the end of the tunnel,” Jennie says. Whatever the future DNA holds, the sisters are certain about two things: everyone’s choice is personal and neither of them would have made it without the love and support of their family, friends and each other.
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Advocacy Program Provides Hope and Support to Breast Cancer Patients Writer / Chloe Emory
Pink Sisters and Friends Advocacy is a nonprofit mentoring program for breast cancer patients. It is a team of 26 women who have survived breast cancer and are now helping those who are fighting it. The women have truly become sisters and friends throughout the process. The advocacy program was formed to give hope, love, support and nurturing to all breast cancer patients in need. Laura Bergmann is the chairwoman behind Pink Sisters and Friends, and like the rest of the Pink Sister’s team, she is a breast cancer survivor. “When I was diagnosed in my 50s, I didn’t think, ‘why me’ or ‘oh my gosh I can’t believe it,’ because after watching a younger sister, an aunt and a grandmother go through it, I felt that it wasn’t a matter
of if, it was a matter of when for me,” Bergmann says.
the patient’s point of view, it would greatly help in the healing process.
Bergmann battled breast cancer with “excellent care” from Mayo Clinic in Jacksonville. Through Bergmann’s journey with breast cancer, she met other women who were fighting the same battle.
“We’re on the practical side, we’re on the emotional side, we’re doing the physical informational side, but we are not giving, at any time, medical advice,” Bergmann says. The founding five agreed and built, from the ground up, what would become The Pink Sisters and Friends Advocacy. And from there, a new journey began.
“We sort of became friends, and then we became good friends, because we were helping each other,” she says. “There were five of us that were the original founders of our group Pink Sisters and Friends.” While observing the way these women banded together and helped each other along the way, Mayo Clinic and the PA who gave Bergmann her diagnosis, asked the group if they would start this advocacy program. They felt that if they had a group that could connect with and see things from
“We did classes, read books and did tests before being assigned a patient,” Bergmann says. “You go through a whole process at Mayo before you’re allowed the privilege of doing any volunteer work over there.” They wound up with more than 30 women on the team in the beginning. Pink Sisters and Friends matches patients to advocates, and by doing so, the team members are
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able to give an abundance of emotional and informational support to each patient. They have been through this themselves, so they’re not just there to help — they understand. “One of the things we felt was so critical in doing this the right way was to match the patients to the advocate as closely as we possibly could,” Bergmann says. “Believe me, that makes a tremendous difference because it’s not just, ‘you have cancer, I have cancer.’ It’s step-by-step.” When matching a patient with an advocate, they try to choose someone who had the same diagnosis and protocol, someone who could give the patient insight into what they were going to experience. They don’t limit one patient to one advocate either. For Pink Sisters, getting well isn’t just being breast cancer free. It’s being emotionally well, too. “You’ve got to have the great medical side, but giving them that emotional, physical and informational support is huge in helping them get well,” Bergmann says. Although their program started with Mayo Clinic Jacksonville, they have since expanded their horizons. They never wanted to limit the amount of people they could help. They have patients in all parts of the country. They even have patients from outside the country. It’s not just one person fighting, either. It is families, friends and the Pink Sisters fighting along right beside them. Strong relationships have developed from this program, and that’s one of the many reasons Bergmann considers her breast cancer a blessing.
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“Suddenly I have all these incredibly friends that are just the most precious, giving, loving, kind people you’d ever want to meet,” Bergman says. “It’s just another way, I think, to give patients hope.” PonteVedraMag.com / OCTOBER 2017 / PONTE VEDRA MAGAZINE / 11
DOES FASHION HAVE AN AGE LIMIT? Writer / Dawn Rodriguez Photos Provided by Penelope T Boutique
When my close friend told me that she was starting a new lifestyle magazine highlighting the awesome North Florida beaches area where I’ve lived my whole life, I was thrilled. She’d done the research, it was her lifelong dream, and she felt it was a prime opportunity. I knew that she would hit it out of the park. What I didn’t anticipate was the second part of the conversation. She told me that through research, she’d learned that our communities were very interested in fashion. Then she asked me if I’d be interested in writing a fashion column.
I’ll admit that I’m borderline obsessed with clothes, shoes and accessories. I’m keenly aware of the “rules” that put women in a fashion box based on a number. There are still those that feel there are fashion-by-age rules that shouldn’t be broken: No mini-skirts after age 35 No sleeveless tops after 50 “Should you really wear distressed jeans after 40?” I came into my own, fashion-wise, when I was well past my 20’s. But since that time, with constant references to “40 being the new 30”, “this is not your Mother’s blazer/ skirt/pantsuit” etc., I’ve often wondered: can the rules be broken?
I talked to friends of different ages about what “dressing your age” means to them. As I did, some different themes came to the forefront:
TRENDY VS. CURRENT More than 20 years ago, when I was getting more and more interested in style and fashion, I asked the owner of one of my favorite local boutiques to recommend a good fashion magazine that would allow me to stay on top of current trends. Before the advent of the internet and fashion shows on every cable network, it was the main way that I could stay up to date. Now, you can’t get out of the way of advice as to what you should or shouldn’t be wearing.
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“As you get older, it’s hard to incorporate every new trend,” said a 30-something friend. To me, the benefit of age relative to fashion is a cultivated over years of understanding what looks good on you, a style that expresses confidence.
QUALITY VS. QUANTITY Several years ago, I read an article in a respected fashion magazine that featured a well-known national news personality on its cover. She said that once you get to a certain age, it becomes more difficult to do “cheap and cute.” I thought that was an interesting observation. My 40-something friend says she’s more likely to rely on quality basics — a good pair of black heels, a nice pair of flat boots, a well cut skirt — as the basis of her wardrobe, and then add a current fashion statement piece. That doesn’t mean that you can’t dress well on a budget, but if you focus on buying quality basics and incorporate small doses of what’s currently trending, that’s a recipe for dressing success.
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AGE APPROPRIATE VS. BODY APPROPRIATE I know women in their late 30s, 40s and 50s that look great in short skirts because they have great legs. Your bodytype is as important an indicator of what you can wear than that number on your driver’s license. If you are confident wearing something, and you can pull it off body-wise, wear it. I’ve always tried to choose one aspect of my outfit to stand out, allowing other pieces to be supporting characters: a short skirt might be paired with a top that’s more covered. It’s all about the balance. So, are there hard and fast rules of fashion? Maybe, maybe not. But you should know your rules, which are your best features and how you go about highlighting those. Bottom line: fashion should be fun. It shouldn’t have an expiration date.
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YOU DON’T KNOW UNTIL YOU GO FALL IS THE BEST TIME FOR CAMPING AND FISHING FOR FLOOD TIDE REDFISH Writer / Matt Chipperfield
READER BEWARE: you are now entering the great outdoors. It’s time to put down the phone, turn off the television and unplug from your daily life. That awesome selfie can wait — Mother Nature is calling you. As your dedicated “recreation specialist” I intend to leave you salty, sweaty, bloody and muddy. Every month I will outline the best way you can accomplish this. As a professional fishing guide and lifetime waterman, I’ve gained a unique understanding of the opportunities available to outdoorsmen and sportsmen in North Florida. We are fortunate to have sandy
beaches, sprawling spartina marshes, large coastal forests, freshwater rivers, springs, lakes and vast areas of natural habitat. October is an exciting month here on the First Coast, and it has absolutely nothing to do with pumpkin spice. No longer do you have to contend with 100-degree temperatures and blankets of humidity. The air temperature is dropping and our local ecosystems are thriving. So, why not kick off the beginning of fall with a camping trip? Anyone who has spent a sweaty night in a stagnant tent knows the frustration that accompanies summer heat and sleeping outdoors. So, many Floridians
prefer to camp in the fall and early winter when the conditions are more moderate. Not only is the temperature prime but the campgrounds are generally less crowded. One of the more popular camping destinations in North Florida is Ginnie Springs. The property contains roughly 200 acres of woodland nestled against the Santa Fe River. The main attraction is a series of seven pristine, crystal clear springs that line the river. You can walk to your spring of choice or you can grab a raft and float down the lazy river until you reach your destination. Unfortunately, most summer campers are there for three reasons: float down the river, swim in the springs and
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drink alcohol. The resulting party atmosphere can be avoided by going in the early fall when the park is relatively empty and quiet. There are sun decks and gazebos at every spring. Excellent bathrooms and a fully stocked country store keep you comfortable during your stay. October’s ideal conditions also influence our local fish population. For inshore anglers October means one thing: Flood Tide Redfish. During summer and early fall the moon’s strong pull on the ocean creates exaggerated tides during new and full moons. As flood tides peak, they inundate grass flats within the intracoastal waterway. This is significant because these flats are packed with small grass crabs, fiddlers and insects that are left stranded in the flood water. Hungry redfish slide their way through mere inches of water to get to these flats and prey on these small crustaceans. Most anglers utilize fly fishing methods to target these belly crawling fish, but soft plastic lures and spin tackle can also be used. The shallow depth and firm bottom of these tidal flats allows fisherman to leave their craft and wade through the water after their catch. North Guana Outpost on Mickler Road can provide you with fly casting lessons, flood tide flies, soft plastic lures and local guides to get you started. So, until next month, remember: you don’t know until you go. See what’s out there!
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