era discusses trial participation

WE WON’T REST UNTIL

MND IS TREATABLE AND ULTIMATELY CURABLE

“There’s a lot to feel positive about. I’m confident in the commitment and dedication of the MND clinical and research community. Awareness and a determination to find a cure has definitely increased, helped by coverage in the media of events like the Rob Burrow Leeds Marathon and of high-profile individuals.

“The £50 million government bid is promising, as is the newly-founded UK MND Research Institute. This demonstrates vital collaboration by experts to find solutions, further developing and standardising MND research and clinical care for our patients.

“The MND community has also made a big impact. Quite simply we couldn’t do research without funding, so the money raised by supporters and other funders helps us involve more patients in trials and increase our research portfolio. It’s heartening to see how everyone is working together to get the cure we all long for.”

Trial participation

Am I eligible to take part in a clinical trial?

There are specific criteria to meet before being considered for involvement in each trial. Your neurologist or the trial site lead will be able to discuss your eligibility in more depth. Before taking part in a trial, you will need to undergo a screening assessment to determine suitability.

What should I expect if I take part in a clinical trial?

Participants will take either the active drug or the placebo, a dummy drug. Trial therapies may be administered orally, via IV or lumbar puncture depending on the trial. Patients will be monitored throughout the trial. It’s often possible for this to be carried out locally.

Once a trial ends, some have open label extensions meaning patients can continue to access the drug, but this doesn’t happen in all cases.

Can I take part in a clinical trial near me?

The first step is to speak to your neurologist. Our Research Information team also has details of trials open for recruitment. You can contact individual trial sites for more information on how to take part.

Find out more on our website: www.mndassociation.org/treatment-trials