Impact Report 2025 Making every day matter.
A message from our Chief Executive 2025 was a pivotal year for the MND Association. So much has been achieved by so many people working together, with a constant focus on making a difference for people affected by Motor Neurone Disease. I hope you feel proud of being a part of that as you read through, and that this report reflects all we have achieved together.
Our work brings together innovation and expertise to drive faster progress towards answers for MND. Our five year investment in the Longitude Prize on ALS / MND will speed up research using artificial intelligence, while our support of the very best MND researchers means we have the brightest minds seeking the answers we all want.
Our values are our driving force:
Early in the year, we shared our ambitious five year Association strategy. Our community, the people we’re here for, need change now and hope for the future. We must deliver that by focussing on our three key goals — investing in tomorrow’s treatments, my support my way and influencing high quality care.
Of course there’s always more to do. And, thanks to so much work alongside our community in 2025, we now have the building blocks to do that. We developed our new bold brand, we set out our five year research and innovation strategy, and we reshaped our support fund programme around what people affected by MND told us they need. We invested more money than ever before in research and continued to grow our network of MND Association Research Nurses.
We’re one strong team.
How we do that matters too. Our new Association values are our driving force — we’re thinking big, being determined, and working as one strong team to make every day count. As a result, we’re asking ourselves tough questions and acting quickly on the challenges you’re giving us, as every day matters to people with MND. The continuation of our Prescribe Life campaign around access to the life-changing drug tofersen was a great example of that — alongside people affected by SOD1 MND, we took the fight to the heart of Westminster, and worked with local decision-makers where we knew they had to deliver the change needed.
We make every day count.
Now we’re in a position to not just embrace opportunities but create them, while attracting new partners and collaborators too, to widen our reach and make even more positive impact to ensure every day matters. Thank you for playing your part as we strive together for a world free from MND.
We think big.
Tanya Curry Chief Executive
We are determined.
What is Motor Neurone Disease? MND is the short term for Motor Neurone Disease. It affects the nerves in the brain and spinal cord that tell the muscles what to do.
MND moves fast. It takes away time, it takes away independence and currently there is no cure.
6 ⅓ 5,000 Every day six people in the UK are told they have MND.
Within months, it affects how you talk, move, eat and, ultimately, breathe.
One-third of people die within a year of diagnosis.
Today, more than 5,000 adults in the UK have MND.
What we do For more than 45 years, we’ve been here for people affected by motor neurone disease (MND). We fund ground-breaking research. We campaign for better care. We’re here for everyone who needs us. Because with MND, every day matters. In 2025 we launched our strategy for the next five years.
and a future driven by research and innovation.
It’s built around three impact goals interlinked under our purpose that everyone with MND has choice and control today,
We’re working tirelessly towards these goals and in this impact report we share some of the ways we made a difference in 2025.
Our impact goals
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Tomorrow’s treatment
My support, my way
We will continue to lead the global research effort towards effective treatments. Our goal is to turn understanding into breakthroughs — and breakthroughs into treatments.
We will give everyone with MND choice and control over their lives — providing them and their loved ones with information and support when, how and where they need it.
Influence high quality care
We will push for consistently high quality, coordinated, personalised care for everyone with MND.
Our impact in numbers
£10.8m
1,150
We invested £10.8 million into MND research, bringing our total research portfolio to a record £35 million.
We brought together over 1,150 MND delegates from 42 countries at our International Symposium.
14,735 We answered 14,735 calls and emails to MND Connect.
£4.8m
1,248
We unlocked £4.8 million in unclaimed benefits for people with MND.
Our 336 Association Visitors supported 1,248 people with MND.
3,543
22
We helped 3,543 families with grants totalling more than £4 million.
Through our EnCouRage event, we engaged with 22 early career researchers, supporting the next generation of MND research talent.
6 dedicated research nurses in post, helping more people with MND to access clinical trials.
196
100
people joined us at memory-making family days.
We spoke to over 100 parliamentarians about issues affecting people with MND.
159
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support groups provided vital connection for people affected by MND.
MND care centres and networks delivered co-ordinated, multidisciplinary care for people living with MND.
3 councils agreed to fast-track home adaptations for people with MND.
Impact goal:
Tomorrow’s treatment In 2025, we invested more money than ever in world-leading science, and in supporting the best MND researchers searching for a cure.
22 Our annual EnCouRage event brought 22 early career MND researchers together with people living with MND.
1,150 More than 1,150 delegates and 250 speakers attended our International Symposium on ALS/MND.
Research nurses get to work With MND, every moment matters, but many families spend hours searching and applying for clinical trials of potential treatments. We set up the Research Nurse Network to take this strain and help more people with MND access trials. We began building the network in 2025 and, by the end of the year, six research nurses were in post and actively supporting people with MND in their region to get involved in studies. This number is expected to treble in 2026. Andy Hamilton was the first to join the Research Nurse Network in July. Based at the MND Care and Research Centre in Newcastle upon Tyne, he supports more than 170 people with MND in the region. Like the other nurses in our growing network, Andy provides people with information about research, identifies trials they are eligible for, explains what’s involved and provides ongoing support if they choose to take part. Dougie Walsh, who was diagnosed with MND in 2023, is taking part in research with Andy’s support. Dougie said: “He is always there to answer my questions and helps me feel relaxed while taking part in the trials. I don’t think I’d have been able to do it without his help and support.”
Creating spaces to drive new ideas Discovery moves faster when researchers work together and share ideas. We run the annual International Symposium on ALS/ MND to spark global collaborations.
In 2025, more than nine in 10 attendees said they had made new research connections at the event. Caitlin Henna from Umeå University, Sweden, said: “It’s a fantastic opportunity to meet other people in the field and to discuss collaborative research. We can see things that might inform the research we’re doing and we can spread our ideas and talk about our own research.” The Symposium is the largest conference dedicated to MND in the world. This year more than 1,150 delegates and 250 speakers attended from over 40 countries. On a smaller scale, but equally important, our annual EnCouRage event brought 22 early career MND researchers together with people living with MND. PhD student, Emma Dyke, said: “Being able to connect with people affected by MND has been really impactful, and it’s going to fuel my research.” Anna Barrow said: “Attending EnCouRage and having the opportunity to share our journey with early career researchers is truly special. Hearing about their research projects and understanding their ‘why’ is incredibly inspiring. It’s amazing to see so many young researchers speak so passionately about their work, with the shared goal of one day finding a cure, developing effective treatments, or creating solutions that help people living with MND manage their care and make life a little easier.”
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Applying AI to the quest for a cure In June, we announced our role as the principal funder of a five-year £7.5 million global challenge to fast-track drug discovery for MND using artificial intelligence (AI). The Longitude Prize, offered by Challenge Works, invites researchers to work in international partnerships, using AI to accelerate finding new treatments for MND. The teams will explore, in greater depth than ever before, a vast library of combined data from decades of previous MND research. They’ll be looking for new patterns in the data that could point to genes, proteins or molecules with a key role in MND. In later stages of the Prize, they’ll test in the lab whether modifying these targets with new medicines could prevent or reverse the disease. Applications closed in December with 20 teams awarded £100,000 to take their work to the next phase of the challenge in 2026.
Genes linked to cognitive symptoms MND Association research fellow Ross Byrne, from Trinity College Dublin, has found more than 30 genes that are linked to the way people’s thinking and behaviour can change when they have MND. These are some of the first clues that might explain why some people with MND experience cognitive changes while others don’t. Ross also found that it might be possible to develop a blood test to predict these changes. This information could help to plan
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a person’s care and support them more effectively. It also improves our understanding of cognitive symptoms in MND, which could lead to better treatments. Ross completes his Junior Fellowship in 2026. We’ve awarded him a Senior Fellowship so he can take this work forward.
The MND Register — a vital resource In June, research revealed that women are often being diagnosed later than men and the location of their initial symptoms tend to differ. These crucial findings were revealed in data collected by the MND Register, which we fund. Before the MND Register was set up in 2015, there was no single source of data in the UK about how many people have MND. But it is so much more than a tally, it also collects anonymised information from MND clinic records. Researchers are using this to identify possible causes and risk factors of MND, as well as to spot gaps or inequity in care across the UK. Ellen Wang, who is one of over 11,000 people with MND who have shared their information with the MND Register, said: “I hope researchers can use data to better focus their study and identify any factors that may be linked to the development of MND. I am proud to be involved in this. The MND Register also means everyone with MND who wants to can be involved in research efforts to improve lives for people with MND.” In 2025 we renewed our commitment to fund the MND Register for the next five years.
£7.5
m
We announced our role as the principal funder of a five-year £7.5 million global challenge to fast-track drug discovery for MND using AI.
Rob’s research legacy
In November, we awarded the first Rob Burrow Professorship to leading neurologist and geneticist Johnathan Cooper-Knock. The appointment provides a £1.5 million injection to his work, which could lead to new treatments being in development within three years.
Johnathan Cooper-Knock said: “I’m honoured to be awarded the Rob Burrow Professorship. I met Rob’s parents as part of the appointment, and I was grateful to be able to thank them for what they’re doing to raise awareness and funds for MND research. My work now is to honour their support by getting effective therapies to patients as fast as possible. This is a truly exciting moment in the fight against MND with lots of new treatments in the pipeline.
However, there is a gap in our knowledge. For the majority of patients, we simply don’t know why the disease starts, even though we know genetics plays a part. I’m hoping to fill this gap by taking a new approach. We look at genetics through the lens of the cells that are affected within the brain and spine. This is revealing the hidden gene faults which can then become new drug targets to slow down or treat MND. And in three years’ time I hope we’ll have at least one treatment in a clinical trial and several more in development.”
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Impact goal:
My support, my way In 2025, we increased our financial support, launched new partnerships and extended our reach into communities.
£4.8
m
Through our partnership with Citizens Advice we unlocked £4.8 million in unclaimed benefits for people living with MND in 2025.
5,252 MND Connect calls answered in 2025.
3,500 Over 3,500 families were awarded grants totalling more than £4 million.
Conversations that matter
Grants making a real impact
Our MND Connect advisers can be one of the first people someone speaks to after being told they have MND. It’s a conversation that matters. A chance for the person’s fears and feelings to be heard without the worry of upsetting a loved one. An opportunity to help them take the next small step with the right support around them. Every contact is important, and we answered more enquiries than ever before in 2025 — over 14,700 — with more than 80% of people saying it improved their confidence.
Living with MND is costly, so our financial support services are vital. In 2025, we awarded more grants than ever before — over £4 million to more than 3,500 families, helping with the costs of MND equipment, adaptations and more.
We also create spaces for people to continue the conversation with others affected by MND, because we know peer support reduces isolation and helps people to cope. Our online forum is an active community of 3,800 members sharing the day-to-day realities of MND — there were over 12,000 posts to the forum in 2025. And our 159 support groups across England, Wales and Northern Ireland give people a sense of belonging and a place to relax with others who understand. Martin, from Newcastle, said: “The support groups have been brilliant. I was saying how my hands get really cold and someone who I was talking to showed me his heated gloves and sent me the link to get some. It’s those little exchanges, that peer support, that really helps… it’s just people sharing experiences, giving each other advice and sometimes having a laugh.”
Patrick Darling, a keen musician, was diagnosed at the age of 30. He’s used our Wellbeing Support Fund to keep up with his interests even though he can no longer play his instruments. Patrick said: “It really makes the world of difference to your quality of life. I’ve bought a few fun things, like software for my music making so I can still follow my dream, even though I can’t go out and earn a living like I used to. I think it keeps me mentally strong because I’m creating. It’s my purpose. Music is my life.” More than 2,200 people received a grant through our Cost of Living Support Fund, which was named ‘Impactful Grant of the Year’ by the Association of Charitable Organisations. The fund helps with the costs of day-to-day essentials and has provided vital financial relief to thousands of people affected by MND since we launched it in 2023. Diana Keys, who is living with MND, said: “This grant has been a major help with winter heating, as during the colder months my symptoms worsen.”
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Expert advice on CHC
Supporting young people
In April, we joined forces with Continuing Healthcare (CHC) experts Beacon after hearing that people with MND were struggling to get expert advice about NHS care funding. CHC funding can make a big difference to a person’s care and ease some of the strain on their finances. People with MND may be eligible but accessing it can be complicated, confusing and intimidating.
Having a loved one with MND can be tough for children and young people. We offer age appropriate resources for youngsters aged from four to 25 to help explain what’s happening and prepare for what’s to come. Our grants and activities help families make memories and enjoy the time they have together.
Previously, we’d signpost people to Beacon’s well-established free service if they needed advice on CHC. But we discovered that very few people actually got in touch — only 26 in nine months.
In 2025, 196 people joined us at our family events: a day at London Zoo and a pantomime in Northern Ireland. One family told us the panto was the last chance for three generations of their family to spend quality time together, smiling and laughing — their grandfather died from MND not long afterwards.
Our pilot project aimed to reduce the barriers to getting CHC advice by taking the onus off the individual. Instead of signposting to Beacon, we asked people if they would like us to pass on their details through a direct referral. A Beacon adviser would then contact the person directly, already briefed on their situation.
We provided nearly £101,000 in grants to more than 400 young people, for requests ranging from laptops to driving lessons and day trips. And, through our partnership with Barnardo’s, we funded counselling for 76 families when a young person needed to talk to someone about having a loved one with MND and coping with their death.
In the first nine months of the pilot, 62 people with MND received advice from Beacon. This means more people are better supported to navigate the CHC process, making it more likely they can secure funding if they’re entitled to it.
One young person who accessed counselling said: “I just find myself getting so frustrated with other people that it’s not happened to them and they live their normal lives. The techniques have been so helpful to help me try and not be so angry about this.”
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400 We provided nearly £101,000 in grants to more than 400 young people, for requests ranging from laptops to driving lessons and day trips.
Diana’s story
“My name is Diana Keys and I’m 64 years old. I have an Association Visitor called Emma, and she’s just the best. She’s really good at being pragmatic, and I can explore things with her before taking them to my family. She’ll take the worry away and make phone calls for me, because I struggle with my voice.
She’s also helped me apply for grants from the Association. For example, I had a grant for a washand-dry toilet because I was really conscious about being able to maintain my personal hygiene. The grants have also helped with some other aspects of life, like paying for a pedicure every six weeks.
I can’t reach my toes anymore so it’s a nice way to maintain some dignity and ensure I don’t let myself go because you do lose yourself with MND. The MND Association has funded an alert alarm linked to the council. If I press the alarm button, the council can talk to me, and they’ve got contact numbers they can phone in an emergency. It’s a security for my children not to worry.”
Impact goal:
Influence high quality care Thank you to everyone who shaped our work, shared their story or joined us in raising awareness of MND and campaigning in 2025.
Unlock the door As MND progresses, most people need major changes made to their home, such as a ramp or a wet room. Funding is available from local councils to adapt homes through the Disabled Facilities Grant (DFG). But we kept hearing the system was failing people. We commissioned research to understand the extent of the problem and found that it took a year, on average, for adaptations to be put in place. This is unacceptable. A third of people with MND die within a year of diagnosis. People with MND were finding themselves trapped in unsafe and unsuitable homes. In many cases, people died before the adaptations were made. So, in November, we launched Unlock the Door, a campaign calling on every council to commit to completing all approved large adaptations within four and a half months.
We mobilised nearly 2,000 supporters to write to their local councillors demanding action and spoke face-toface with national policy-makers at party conferences. In December, Forest of Dean District Council became the first to back a motion to fast track financial support for people with MND. This was followed by East Riding Council and Dudley Council early in 2026. We will continue to push for every local authority to do the same, so that everyone with MND can have a safe and accessible home no matter where they live.
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Fighting for treatment For the 2% of people with MND whose disease is caused by a change to their SOD1 gene, a new treatment called tofersen can significantly slow or even pause progression of their symptoms. It’s the first time anyone with MND has had this promise. In 2024, our Prescribe Life campaign persuaded the National Institute of Health and Care Excellence (NICE) to change the way it assesses tofersen, giving it a greater chance of being available on the NHS. While tofersen is being assessed, the company behind the drug is providing it for free. However, in early 2025, we became aware of around
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20 people with SOD1 MND who were still missing out. Their local NHS trusts said they didn’t have the resources to give the monthly lumbar punctures needed to administer the drug. We immediately pivoted our Prescribe Life campaign to urge the Government to intervene. We rallied our campaign network and took to Westminster with Ellis Millard and Seckin McGuirk, two of the people being denied access to tofersen. Seckin spoke to journalists next to a symbolic melting ice sculpture of herself, before her and Ellis delivered our petition signed by more than 21,000 people to the Department of Health and Social Care.
20 In 2025, 20 people with SOD1 MND were missing out on Tofersen so we pivoted our Prescribe Life campaign to urge the government to intervene
2,600 We’re raising standards of care for people with MND through education of health and social care professionals. We provided over 2,600 training opportunities in 2025.
We followed this up with sustained lobbying of national and local decision-makers — including recording a personal plea from Seckin to Health Secretary Wes Streeting, which was viewed almost a million times. Local and national media coverage, including in The Times and Daily Express, spread awareness even further. Together, we achieved change. Following us raising awareness of the issue, more NHS trusts managed to get people in their areas access to tofersen, and right now almost everyone with SOD1 MND either has access to tofersen or their local NHS is actively working to make it happen. And the campaign continues. We won’t stop until everyone who could benefit from tofersen can access it, including anyone diagnosed over the coming months.
Help to navigate care With a diagnosis of MND, everything changes. You’re set on a path involving many different professionals and your symptoms can change quickly. What you need one month may be different the next. It can be confusing and exhausting trying to navigate the system.
In the past, community co-ordinators were always based in MND care centres and networks. But this meant people who were too far away or too disabled to travel to a centre could miss out on support. So, in 2025, we stepped outside NHS structures and into community settings where we needed to, for instance, by partnering with hospices to become more accessible. The first co-ordinators recruited under the new scheme have already joined us, with another 13 planned for 2026/27. Prospect Hospice in Swindon is now hosting an MND Association-funded community co-ordinator. Carolyn Bell, Director of Patient Services, said: “It is difficult to imagine people living and dying with MND without access to this highly specialised service. This role ensures that people with MND and their families continue to receive expert, co-ordinated, person-centred care from diagnosis onwards. The co-ordinator attends neurological clinics, providing a consistent and knowledgeable point of contact every step of the way for patients, their families and those close to them.”
Our community co-ordinators support people with MND by taking that complexity away. They expertly oversee joined-up care that meets the person’s changing needs, and work to close gaps in local provision. This year we significantly increased our funding for these roles, to support many more people with MND across England, Wales and Northern Ireland.
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The importance of awareness Awareness of MND is growing, but there is still a long way to go before the profile of MND means people get to live their lives surrounded by greater public understanding. Each year on 21 June, we mark Global MND Awareness Day. This year we asked people to tell us what they wish everyone knew about MND. Scores of people shared the hidden realities of the disease on our socials and a few joined us at a parliamentary drop-in where nearly 30 MPs and Peers heard what they can do to help. Beyond Awareness Day, in Westminster and at the Senedd and Stormont, we met more elected representatives than ever before, lobbying for the changes needed in issues that affect people with MND. We had our biggest party conference season, meeting over 100 parliamentarians across England, Wales and Northern Ireland.
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And we continued to support the running of the All-Party Parliamentary Group (APPG) on MND that meets in parliament throughout the year to discuss issues important to the MND community.
Social care reform Early in 2026, the Government committed to fast tracking social care assessments for people with MND. This is a huge win for our community and should mean an end to the current situation where many people with MND have to wait far too long to access social care, at a time when every day counts. We worked with the Casey Commission — looking into adult social care reform — including by arranging for Commission members to meet people affected by MND. These personal testimonies made the difference. Thank you to everyone who has shared their story or joined our campaigns. Together we can achieve positive change.
100 We had our biggest party conference season, meeting over 100 parliamentarians across England, Wales and Northern Ireland.
Zoe’s story
Zoe Nixon, 48, lives in London. She was diagnosed in 2022. Zoe has been an active campaigner with the MND Association since her diagnosis. She has attended the APPG and is particularly driven to influence change in social care reform, simplifying and widening access to MND clinical trials, and prioritisation of MND research by the government. She spoke to the Casey Commission about the state of social care.
Zoe said: “Talking about my experiences isn’t easy, but I feel a responsibility to speak out if it can drive change. Living with MND exposes every crack in our system that simply isn’t joined up. I understand that services are under pressure, but when you’re facing MND, you don’t just need support — you need the right support, at the right time.
Instead, you find yourself forced to become an expert in your own condition just to fight for basic care. Every step is a battle. It shouldn’t be this hard. Hearing the government finally commit to action felt like, at last, someone is listening. But promises aren’t enough. We have to see this through. I’ll do whatever I can to make that happen, because real change here would transform countless lives.”
Powering vital work Thank you for donating and inspiring others to do the same. Together, we raised £46 million in 2025. Every day we support people affected by MND, campaign for better care, and fund ground breaking research that brings hope for the future. None of this would be possible without the incredible generosity of supporters who want to make a difference. Individuals, communities, organisations and partners raise vital funds through events, challenges, gifts in celebration and remembrance, regular donations, and countless other acts of kindness. Behind every pound raised are hundreds of stories of determination, compassion and community spirit. Thank you for every mile run, every cake sold, every collection bucket shaken, every partnership forged and every donation made. Your support makes every element of support we deliver possible. Together we make sure no-one faces MND alone.
Kevin’s epic challenge In December, Sir Kevin Sinfield CBE took part in his sixth 7 in 7 challenge in memory of his friend and rugby teammate, our late patron Rob Burrow. Once again, the challenge saw Kevin and the team run seven ultra marathons in seven days across seven regions of the UK and Ireland. 20
Kevin said: “I want people with MND to know that we’ll be there fighting with them. We know MND doesn’t have any boundaries which is why we visit different places to show this community how much love and support there is for them.” Kevin became a patron of the MND Association in 2021 and to date his challenges have raised more than £7 million for our work. This has so far helped fund the creation of our Research Nurse Network, enabled us to provide more grants to families affected by MND and supported a number of MND research programmes, including EXPERT-ALS. EXPERTS-ALS is testing potential new treatments in people with MND, helping to identify the most promising drugs to move into largescale trials. It is run by the UK MND Research Institute and is so far working with more than 70 people with MND across nine UK centres.
£3.7
m
Our 84 branches and groups are run by incredible volunteers across England, Wales and Northern Ireland. Together, they raised £3.7 million in 2025.
An ‘Omazing’ contribution
Daily Telegraph Christmas Appeal
If you picked up the phone or went online to enter the Omaze Million Pound House Draw for a stunning beachfront home in Sussex this summer, you helped raise £4.1 million to make a difference for people affected by MND.
When we were chosen as one of the charities for The Daily Telegraph’s Christmas Charity Appeal, our community rallied to make the Appeal a success.
In July, people with MND, volunteers and employees came together at the beautiful property to celebrate the incredible success of our six-week partnership with Omaze. The funds raised by the draw, which is advertised widely on national TV, are helping us develop our Research Nurse Network so that more people with MND can access potential treatments through clinical trials.
£4.1m
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Volunteers and people with MND — including the paper’s own puzzle editor, Chris Lancaster — shared their stories in the paper in the weeks leading up to Christmas. And members of our team took part in the Telegraph’s annual charity phone-in, while others represented the charity at the newspaper’s carol service. Thanks to donations from generous readers, the MND Association received £198,000.
£4.1
m
raised by everyone who entered the Omaze Million Pound House Draw.
£198
k
raised by The Daily Telegraph’s Christmas Charity Appeal.
Alan’s story
Alan Robinson lives in Harrogate and is Fundraising Group Leader for the Yorkshire Dales branch. Alan said: “My sons and I used to watch Leeds Rhinos at Headingley, when Kevin Sinfield and Rob Burrow were players. I cried when I saw Rob talking about his MND diagnosis on the news — I wanted to do something.
I joined my local branch as the fundraising lead in 2024. I wasn’t too daunted because when I ran pubs I used to organise quite a few charity events. I’ve sat in a bath of beans and things like that! Every event is a chance to raise money and to raise awareness of MND and the charity. I really enjoy meeting people and it’s nice when they want to talk about their experiences.
So many people stop and tell me they had a family member who died from the disease, or they know someone who’s been diagnosed. 2025 was my first full year of volunteering and our branch raised around £30,000 in total. One of my highlights was fundraising at Ripon Races. William Hill had sponsored a day in memory of jockey Steve Jobar, who died from MND. We were invited to have a stall, a tombola and collecting buckets at the race day. We raised £3,000 and the atmosphere was fantastic. I’m keen to continue fundraising for as long as I’m able to. It gets you out and about, meeting people, and giving back. People are so generous and it really gives a nice warm feeling that you’re doing something to help local people with MND and work for a cure.”
Thank you Thank you to our Royal Patron HRH The Princess Royal, our patrons and ambassadors, trusts, partners and supporters. By supporting the MND Association, you are making a difference every day for people affected by MND. Thank you.
Philanthropy and Trusts In 2025, trusts and philanthropists donated £6.09 million. Every donation received is valued.
Corporate We are grateful to the businesses and organisations which chose to partner with us in 2025, contributing £6.04 million.
Gifts in Wills are an extraordinary act of kindness that support the full breadth of our work. Without these thoughtful gifts, a quarter of the work we do simply couldn’t happen.
— Alan Davidson Foundation — BNA Charitable Incorporated Organisation — Bruce Wake Charitable Trust — Clive and Sarah Burley — Deborah Davis — George Harding — John’s Charity CIO — Judith Porter — Loveday Charitable Trust — Michael Cornish Charitable Trust — My Name’5 Doddie Foundation — Sam Perkins’ charity Stand Against MND — The Basil Samuel Charitable Trust
— The Betty Messenger Charitable Foundation — The Constance Travis Charitable Trust — The Culverwell Foundation — The Darby Rimmer MND Foundation — The Freshfield Foundation — The Liz and Terry Bramall Foundation — The Revere Charitable Trust — The Talbot Trust — The William Brake Foundation — Venetia Findlay
— Cedar Capital and The Belfry — Colosseum Dental — evoke — Hayes Davidson — Inconnection — Mediterranean Shipping Company (MSC)
— Northern Trains — Omaze — Overbury — Stonegate Group — The Anderson Group — The Daily Telegraph — Toyota UK — Well Pharmacy
Thank you to every supporter who has chosen to include the MND Association in their Will, and to those who have ensured their loved one’s legacy gift reached us.
We would be delighted to discuss how you can help us take the next step in the fight against MND, this year and beyond. Continue the conversation by contacting fundraising@mndassociation.org
© MND Association, 2026 Motor Neurone Disease Association Francis Crick House 6 Summerhouse Road Moulton Park Northampton NN3 6BJ Tel: 01604 250505 Email: enquiries@mndassociation.org Website: mndassociation.org Registered Charity no. 294354
Every day we support people affected by Motor Neurone Disease. Because with MND, every day matters.