More Life Magazine: The 2025 MBC Issue

PERSONAL

REFLECTIONS &

CREATIVE HEALING

ACTIVITIES

EXPERT ADVICE FOR LEGACY PLANNING & FAMILY SUPPORT

Glimmer

Grim

in the

The Metastatic Breast Cancer Issue

RESOURCES FOR WELLNESS, ADVOCACY, COMMUNITY & MORE

v o l u m e : 2 0 2 5 FA L L

volume: 2025 WINTER

A curated guide for hope and healing after breast cancer

Contents contributors

Guest Editor: Deltra James Publisher: Jasmine Dionne Souers Layout and Design: Kulur Group Cover Photo: Jen Rozenbaum

4 The Power of the Pen by Patricia Rossi 7 Letter Writing Activity Ink and Intimacy:

2/

10/

Glimmer in the Grim by Deltra James

Unapologetically Living My Legacy by Michelle Anderson-Benjamin, MHA

12

In the Balance: Holding Grief, Grit, and Grace with Stage IV Cancer

By Thomasina Kirby Butler

16 Invisible Pink by Sheila Pettiford Bell 18 One-word Meditation 23 Resource Directory

22/

Editor’s Playlist: Hyped and Hopeful

14/ When Cancer Comes Home: Supporting Parents with Metastatic Breast Cancer

By Carissa Hodgson, LCSW, OSW-C

Presented by:

Disclaimer: More Life Magazine is not meant to treat, diagnose, or be a substitute for medical advice. Please seek the advice of your physician or other qualified health provider regarding your health. Acceptance of advertisements is at the sole discretion of The Missing Pink Breast Cancer Alliance. The Missing Pink Breast Cancer Alliance does not guarantee, warrant or endorse any product, program or service advertised.

Letter from the editor

loud despite prognosis, and picking up a pen not just as an outlet but as a weapon to wield peace.

This issue is a love letter to

guest editor, I knew I wanted each page in this MBC edition of More Life Magazine to feel like a soft place to land — but also a spark. A place where we don’t just name the hard stuff, but also find power in our own voices, bodies, and stories.

Inside these pages, you’ll meet people who are walking the metastatic breast cancer path in all its complexity: the uncertainty and the deep, tender joy. You’ll find essays

in pink campaigns, who’ve longed to be seen as we are — thrivers, writers, parents, advocates, soft and strong all at once.

I hope something here reminds you that you are not alone.

That it’s okay to pause. To rest. To rise again when you’re ready.

You deserve to live unapologetically. To grieve and to grow.

To take up space and speak your experiences. This issue is for you.

and activities about parenting

With deep care and solidarity,

through treatment, living out

— Deltra James

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When I was invited to serve as

those of us who’ve felt invisible

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Dear Reader,

By Deltra James

I

remember being a child, lying awake in a dark room, watching moonlight pour in through the window and stretch across the

floorboards. It didn’t light the whole room, just a sliver — but it was enough to remind me that there is always light. Years later, I’d wake in that same kind of darkness, not from childhood restlessness but from scanxiety, pain, or grief. Living with metastatic breast cancer feels like that: a room mostly dark, but with glimmers always peeking through. And when they do, you hold them close.

But there’s the grim, too.

The grim is realizing that time is shrinking. It’s watching dreams shift from far-off someday plans to tightly-held, present-tense intentions. It’s losing friends but gaining comrades in the cancer community. It’s falling into the hush of shock again and again

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— then slowly remembering how to use your voice.

The grim is discovering your treatment isn’t working anymore.

And even though your heart sinks, you still ask the next question. Still hope the next line of therapy is your miracle drug.

The grim is being too nauseous to eat, laying curled on the couch while your body aches — and the glimmer is a friend who shows up anyway, quietly dropping off dinner for your family. Because even when you can’t nourish yourself, your people still need to be fed. Expressions of

Coexisting with the Glimmers and the Grim Want to learn how to live between them? Here’s what’s helped me:

•

love such as this are glistening moments, wrapping us in light.

The grim is seeing your reflection — scalp exposed, body unfamiliar —

Don’t force meaning onto pain. Let it speak for itself. Let it be witnessed, not fixed.

•

and the glimmer is watching your child play in the wigs you collected,

Say yes to help. Even when you feel guilty. Especially when you feel guilty.

trying on each one like a costume of joy. She isn’t afraid of the hair that’s missing. She sees magic in the possibilities. It reminded me to be

•

doesn’t make the joy any less valid.

more childlike. It didn’t fix the grief. It didn’t need to. It was simply a moment of light.

Honor what’s real. Feel what you feel. The hard stuff

•

Notice the ordinary glimmers. A warm blanket. A text

These aren’t silver linings. I’m not here to hand out platitudes. You

that says “thinking of you.” An opportunity to share

won’t catch me toting toxic positivity like some pink-clad parade float.

your story. These are sacred.

No — this isn’t about pretending it’s all okay. This is about noticing the warmth when it shows up, even if it only touches the edge of your day.

•

Consult a therapist. Especially one trained in oncology.

Because if you don’t make time to feel the glimmers, you risk freezing

You deserve support from someone who understands

over.

the terrain.

It’s the little things that keep me here:

•

shower? Laughed? That counts.

The way the sun streaks across the kitchen floor as my hands hug a cup of tea.

•

•

•

same road.

we’re all doing it. Those of us with MBC just carry a deeper awareness hands with grief and joy. Everyone is learning how to live inside that

Lean into community. We need others who truly get it — other patients, fellow survivors, people walking the

Living in between is an art form — and whether we speak of it or not, of how finite our time may be. But the truth is, everyone is holding

Make room for both. You can cry and laugh within the same breath. You can grieve and live at the same time.

the green side of the ground.

The glimmer doesn’t erase the grim. It simply holds it with tenderness.

Live as boldly as you can. This doesn’t mean being loud — it means being you, unmuted and alive.

The weight of my cat’s body on my lap.

Touching the grass and thanking it for letting me walk one more day on

Celebrate the smallest of wins. Got out of bed? Took a

•

Rest when you need to. Rise when you can. That, too, is its own rhythm of survival.

tension — where laughter and tears often show up side by side.

I think of glimmers like flashlights. Not because they banish the dark, but because they give us something to focus on. A beam of light we can walk toward, reminding us to keep going even in the darkest parts of this human experience.

Get Linked to Resources Full Resource Directory .................................21 Body Image, Intimacy and Sexual Health.....22 Mental Health..................................................25 Support Groups and Online Communities..26 Wigs and Hair Coverings................................26 Metastatic Breast Cancer ..............................28

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the

Power

of the

By Patricia Rossi

Pen

It’s a Thursday evening...

clank of chairs being pulled into place.

I always arrive early. Rush

porting someone they love through breast cancer.

I look around and see the bravest, most beautiful group of women I know—women in treatment, in recovery, or sup-

hour is beginning to wane, but I still take the back roads.

They gather, nibble on sweets, and exchange stories—some

Depending on the season, I

advice, some laughter, some heartbreak, all wrapped in for-

drive past tree-lined streets, manicured lawns, and blooming

titude. Then I say, “Shall we begin?”

gardens. At other times, I’m awe-struck by vibrant bursts of

And within moments, we begin to write.

fall foliage. On the chilliest evenings, I embrace the serenity of winter as I pass old colonial homes blanketed in snow.

I’ve been facilitating writing workshops for years—decades,

The scenery shifts, but my destination remains the same: a

really. Not just about illness, but about life.

local community center.

We write about the smell of coffee in the morning, the feel of grass under bare feet, a memory from childhood.

Funded by taxpayers, the center is equipped with a pool,

Sometimes the stories are funny. Sometimes they’re deep

tennis courts, and basketball courts. Sometimes the place is

and reflective.

alive with teens and adults playing, laughing, running. Other

Often, someone writes for twenty minutes and chooses not

times, it’s quiet—a lone person sitting on a bench. But I’m

to read a word aloud.

not there to play sports or swim laps.

That’s okay.

I’m there for something else.

You see, the goal isn’t to write something “good.”

Something far more impactful.

The goal is to write something true.

Dare I say… life-changing.

To let the pen lead you somewhere unexpected.

Upon arrival, I grab my tote bag—packed with supplies for the night—and head toward the community room. Our room. Our meeting place on the third Thursday of every month.

It’s a simple space, with outdated wood paneling and bulletin boards pinned with community announcements. But the decor doesn’t matter.

What matters are the women who walk through the door.

One by one, they arrive. Some come together; others linger in the doorway, hesitant. I greet them: “Please, join us.”

We form a circle. I pass out writing pads and pens.

The room fills with warmth, laughter, and the occasional

To rediscover the sound of your own voice.

In this space, the pen is far more than a writing instrument—it’s a therapeutic tool.

Writing allows us to process, to express, to remember who we are—especially in the midst of crisis or personal upheaval. It gives us permission to slow down, take a breath, and reconnect with ourselves.

These workshops are intentionally stress-free and nonjudgmental. With a pen in hand, we quiet the mind, open the heart, and support each other in ways that go beyond words.

And time and time again, I am overwhelmed by the transformation.

One woman once told me, “This is the first time in months I’ve felt like I’m more than just a patient.” Another said she hadn’t written since high school but now keeps a journal by her bed.

And most of what’s written?

It isn’t even about cancer.

It’s about the rest of life that still hums beneath the surface: Music. Friendship. Laughter. Longing. Hope.

We use prompts like: “Write about a place where you feel safe.” Or, “Describe a time you surprised yourself.” These invitations open doors—back to memory, to imagination, to identity.

And that’s the point.

When cancer disrupts your story, writing helps you remember: You are still the author.

Even when life takes you on a journey you never asked for, you still get to choose how you show up on the page.

So if I can leave you with one thing: Write.

Just write.

Get a pretty journal, or one of those black-and-white marble notebooks from grade school.

Open it.

Take a deep breath.

Exhale.

The blank page isn’t something to fear—it’s a space waiting just for you.

Start small.

A word.

A sentence.

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Start today.

Get Linked to Resources Full Resource Directory .................................21 Holistic Health and Integrative Therapy........24 Support Groups and Online Communities..26 Metastatic Breast Cancer ..............................28

&

Ink Intimacy

Because some things deserve to be said, even if they’re never sent.

This is a sacred space to say what’s been sitting inside you—without judgment, without rules.

You don’t have to be poetic. You don’t have to be profound. You only have to be honest.

Choose one (or more) of the letters below. You can write in the space provided, or tear out this page and keep it close. These letters don’t have to be sent to matter.

Letter to My Future Self Dear Me, I know you’re tired. I hope you’re proud.

I want you to remember...

(Write what you want your future self to hold onto—whether it’s a small truth, a moment of joy, or a reminder to rest.)

Letter to My My Body Dear Body, I haven’t always known how to love you.

But today I want to say...

(Write with tenderness or truth—even if it’s complicated.)

Letter to Someone I Love Dear (insert name),, There are things I haven’t said out loud, but they’re true.

I love you for...

I hope you remember...

If I never said it clearly...

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(This can be a note of love, release, peace, or remembrance. You decide.)

Letter to God Dear God, I’m here. You’re here.

And between us, I want to say...

(Let this be a conversation—raw, reverent, real. God can handle every word.)

Get Linked to Resources Full Resource Directory .................................21 Body Image, Intimacy and Sexual Health.......22 Holistic Health and Integrative Therapy........24 Metastatic Breast Cancer ..............................28

However you chose to write today—whether in fragments or full pages, with fire or with trembling hands—know this: your words matter. Even the ones no one else sees. Especially those. These letters are not about closure. They are about presence. About truth. About honoring what’s still stirring inside you. Keep them. Revisit them. Or let them go. But above all, let them remind you: you’re still here.

Unapologetically Living My Legacy

By Michelle Anderson-Benjamin, MHA

W

e often pour into

Every day I wake up, I remind myself: My exis-

others without

tence is intentional. My purpose still matters. I was

hesitation, rarely pausing

created for a reason. And as long as I’m breathing,

to pour into ourselves.

it is not my time—so I choose to LIVE.

Many of us live exhausted lives—pleasing people, saving the world, and putting everyone else first.

We burn out trying to hold everything together, and then feel crushed when no one shows up to hold us. We take pride in being the dependable one, so much so that we dim our own light to make others more comfortable.

In a world where it’s easy to offer excuses for why you can’t, challenge yourself to find all the reasons why you can. Life doesn’t happen to us—it shapes us. Every experience, good or bad, plays a role in discovering our greatness.

I often reflect on what I’ve accomplished since my diagnosis, and I smile—because I genuinely love this version of myself. To witness the woman I’m becoming... the masterpiece my ancestors dreamed

So what happens when, after years of that, you’re suddenly facing your own mor-

about… the Queen my father always told me I was… the light in my children’s eyes when they see their mother standing in front of

tality?

I was 36 when I was first diagnosed with Stage I breast cancer—“curable,” they said.

But two years later, at 38, I was

“And as long as I’m breathing, it is not my time—so I choose to LIVE.”

diagnosed Stage IV. Just like that,

started to race through my head, along with the fear of leaving behind the people I love.

The truth is, death is universal. It’s a part of all our lives, yet so many still avoid talking about it. Even

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saying the word can make people flinch. “We don’t discuss that,” they’ll say. And then it’s brushed under the rug.

But when you live with an illness that puts a target on your back—something that reminds you daily that you’re living on borrowed time—you come to realize something deeper: We’re all living on borrowed time.

And cancer doesn’t have to be my cause of death.

That’s a legacy.

I’m finally living my life my way,

Cancer may have taken a lot from

changed. The goal changed.

treatment just to keep me here. Thoughts of death

being herself.

and on my terms.

my story changed. The language

Now it was about quality of life—finding the right

crowds, touching souls, simply by

me—but the woman it shaped? She loves herself deeply, scars and all. Her confidence is at an alltime high. She knows she’s one of the sexiest bald women alive. And unless she says it out loud, no one would ever guess her diagnosis is terminal— because she radiates strength and joy, and takes pride in looking half her age.

She is the true definition of unapologetically living her legacy.

She refuses to let cancer be the end of her story.

She is me.

I am Michelle Anderson-Benjamin—The Fearless Warrior.

The sexy, bald superhero with a pink cape.

And my legacy is NOW.

4

Tips for Discovering Your Legacy

Ask a friend to sit with you and do end of life planning for both of you, a diagnosis or none, we all need to have end of life plans in place. They

1.

Let your cup overflow before pouring into others.

are a gift to ourselves, allowing peace of mind and

2.

Never be afraid of your dreams—live them out loud.

freedom to live; they are also a gift to our loved

3.

The only one who can stop you… is YOU.

4.

Remind yourself daily of your superpowers.

Your legacy isn’t just what you leave behind — it’s what you live out loud, right now. Here are a few ways to start shaping it intentionally:

Write a “living letter” to someone you love. It can be short and simple — a few sentences they’ll

ones, guiding them as they care for us when we can no longer care for ourselves.

Your legacy is not later.

It’s not someday.

It’s now.

treasure forever.

Record a voice memo or video diary sharing your story in your own words. No script needed — just you, speaking your truth.

Consider hosting a living funeral or invite loved ones to write letters for you to cherish, so you can hear what you mean to them while you’re here.

Create a joy list. Write down 10 things that make you feel most like you. Then go do one this week.

Design your “legacy mantra.” Choose a phrase or affirmation that defines how you want to be remembered — and start living by it now.

Build a memory box or digital folder. Add poems, photos, quotes, recipes, voice notes — whatever feels like you.

Get Linked to Resources Full Resource Directory .................................21 Estate and Legacy Planning ..........................23 Metastatic Breast Cancer ..............................28

IN THE BALANCE:

Holding Grief, Grit, and Grace with Stage IV Cancer

By Thomasina Kirby Butler

THE DAY EVERYTHING CHANGED Metastatic breast cancer isn’t just a diagnosis — it’s a life-altering shift. A balancing act between fear and hope, grief and grit.

Living with it means constantly walking the thin line between despair and determination. It has its glitter — the strength, love, and light that shines through the cracks — and its grimm: the pain, uncertainty, and truths most people never talk about.

This is my story.

On February 18, 2005 — my birthday — I was diagnosed with stage IV metastatic breast cancer. It had already spread to my spine. That day, celebration turned into devastation.

I was 47 years old, working full-time as a Certified Nursing Technician — a career I had spent over 30 years building. I had two daughters, ages 31 and 15, and two

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grandsons, ages 7 and 5.

The fear was paralyzing.

Will I die soon? Would I see my youngest graduate? Would I watch my grandsons grow up?

I continued working through treatment. I scheduled chemo on my days off, trying to preserve my sick leave so I could keep supporting my family. It was exhausting — physically and emotionally. I was terrified of losing my income, my independence, and my life.

FACING FEAR WITH GRIT

Everyone’s cancer is different, but we share a common truth: we are not alone.

Back then, reliable information on metastatic breast cancer — especially for African American women — was hard to find.

I stumbled across an article that claimed most Black women with

STILL LIVING, STILL HOPEFUL

metastatic breast cancer died within five years. I believed it. I felt

Metastatic breast cancer is complex. It doesn’t come with easy

doomed.

answers or guaranteed timelines.

Even once the cancer was under control, I lived in fear of its

It comes with both grim and glitter — and you learn to hold

return. And it did return — twice.

them both.

But now, I don’t worry as much. I know it can come back, but

Yes, there is pain.

I’ve learned to take it one day at a time.

But there is also power.

If it comes again, I have an amazing doctor who will treat it with everything available. Even in the darkest moments, something kept me going.

Yes, there is uncertainty.

But there is also community.

Yes, there is fear.

But there is also fierce love.

My doctor was kind, patient, and informative. He took time to explain things and never made me feel rushed or dismissed.

I continue to live with this disease.

But more importantly, I continue to live fully, intentionally, and

My family was my heartbeat. My daughters and grandsons gave

with a story worth sharing.

me a reason to fight. They didn’t just need me — I needed them.

FINDING STRENGTH IN COMMUNITY Then I found Living Beyond Breast Cancer (LBBC), a nonprofit based in Philadelphia. LBBC gave me more than information — they gave me representation. I saw women who looked like me.

I heard stories of survival, hope, and purpose. I learned that I could live beyond the diagnosis.

Get Linked to Resources Full Resource Directory .................................21

That five-year statistic? It didn’t have to apply to me.

Advocacy Trainings.........................................22

I have two sayings I tell myself to cope:

Financial Assistance........................................24

“It is what it is, until it ain’t.”

Mental Health..................................................25

“It can always be worse.”

Support Groups and Online Communities..26 Caregivers and Co-survivors..........................27

I started to realize that I was more than a patient.

I was a thriver.

A provider.

A mother.

A grandmother.

A woman with a voice — and a future.

That shift led me to become an advocate in the metastatic community.

Helping others helps me, because I remember how scared I was when I was first diagnosed.

Metastatic Breast Cancer ..............................28 Parents.............................................................28

When Cancer Comes Home: Supporting Parents with Metastatic Breast Cancer

W

hen a parent is diagnosed with metastatic cancer, the impact is felt far beyond the physical body. It moves through

the household like an invisible thread—tightening routines, reshaping roles, and altering emotional landscapes in subtle and profound ways.

For parents of young children, the challenges multiply: How do you hold space for a serious diagnosis while still packing school lunches, reading bedtime stories, and helping little ones navigate their big feelings?

At Bright Spot Network, we are dedicated to supporting parents who are raising young children while living with cancer. While our programming supports all parents with cancer, we have a deep understanding of the unique pressures faced by those with advanced or metastatic diagnoses.

By Carissa Hodgson, LCSW, OSW-C, Director of Programs and Community

Cancer Enters Every Room

Outreach at Bright Spot Network

It’s tempting to focus solely on the medical aspects of a metastatic diagnosis: treatment protocols, clinical trials, scans, and side effects. But life doesn’t stop just because cancer begins. For parents, there’s no “pause” button. Children still need help getting dressed, reminders to brush their teeth, and emotional reassurance when they sense something is different.

And they do sense it.

Even young children, who may not understand the word “cancer,” are incredibly perceptive. They pick up on whispered conversations, sudden changes in routine, and the emotional energy of the household. When parents try to protect their children by shielding them from what’s going on, kids often fill in the blanks themselves—and this can create more fear than truth.

That’s why open, developmentally appropriate communication is one of the pillars of our work. Through tailored downloadable guides, videos, children’s books, webinars, parent panels, and support groups, we guide parents on how to talk to their children about cancer in honest, loving, and age-sensitive ways.

We believe that information, when shared with care, is a tool for

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connection.

The Weight Behind the Door One of the most overlooked challenges of living with metastatic cancer as a parent is the invisible labor it demands. Many of the parents we work with are mothers—and often primary caregivers—carrying the dual burden of managing their illness while maintaining a sense of normalcy for their children. This emotional labor is exhausting, and frequently unacknowledged.

We often hear from parents that they feel isolated in traditional

corded webinar about how to support your children through the

cancer spaces, where conversations center on survivorship or re-

experience.

mission—experiences that don’t match their reality. Bright Spot Network aims to create a more inclusive narrative, one that honors the ongoing, often uncertain path of living with metastatic disease.

You’re Not the Only House on This Street At Bright Spot Network, we create safe, welcoming spaces to be seen by other parents who truly get it. There’s just nothing like being with another parent who sees you without judgment—because they are living this too.

Our weekly Virtual Support Group for Parents with Stage IV Cancer provides meaningful connections where parents can speak freely about the complexities they face. Groups are facilitated by mental health professionals, but parents lead the way—sharing empathy, solidarity, and practical advice. These are not just spac-

A Light in the Window Living with metastatic breast cancer while raising young children is an experience that defies easy answers. It’s layered with love and loss, strength and sorrow, everyday joy and existential fear.

At Bright Spot Network, we don’t offer platitudes—we offer presence. We walk alongside families through the unthinkable, honoring their resilience while helping them hold space for grief, laughter, connection, and hope.

If you’re parenting with cancer, or caring for someone who is, we hope you’ll explore our resources, join a group, or simply reach out. You don’t have to navigate this alone.

Learn more at brightspotnetwork.org

es to vent; they are spaces to witness and be witnessed.

Whether it’s managing grief and anticipatory loss, navigating co-parenting during treatment, or simply needing a place to not feel alone, these groups are a lifeline.

Supporting the Whole Household We know that partners, co-parents, and children all need support. That’s why we offer programs for everyone in the family, including a twice-monthly Virtual Support Group for Partners and a monthly Bright Circle/Club group for children.

Our resources are family-centered and kid-approved. We incorporate lived experience and clinical expertise into all of our programs and materials—often hearing from parents that what we offer is exactly what they were looking for, even if they didn’t know they needed it.

Our free Bright Reads book program includes children’s books that center around a mom with metastatic cancer. Reading together offers countless benefits—educating kids about cancer and treatment, helping them cope with big feelings, and validating their experiences through stories and images of families like their own. That connection between parent and child while reading is invaluable, reinforcing security, love, and attachment.

Many moms with metastatic breast cancer are parenting from the couch. Our free Bright Box provides all the supplies you’ll need to engage in art activities with your child—even while lying down.

We also offer a dedicated page on our website with resources for parents living with advanced or chronic cancer, including a re-

Get Linked to Resources Full Resource Directory .................................21 Support Groups and Online Communities...26 Metastatic Breast Cancer ..............................28 Parents ............................................................28

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by Sheila Pettiford Bell

I

live with metastatic breast cancer. Many peo-

you have cancer.” For a time, I chose invisibil-

ple don’t fully understand the term “meta-

ity too—just to figure things out. But now, I

static,” so I often pair it with “stage 4 breast cancer.” If that gets a blank stare, I follow with: “The stage of breast cancer that kills people.”

choose to live out loud.

I speak up. I share about breast cancer on social media, I’ve joined support groups, and I’ve be-

I live with a cancer that could kill me—but

come a patient advocate. Breast cancer has ex-

so could a truck. I’ve been living with it for 11

panded my territory in unexpected ways, which

years. My journey began with early-stage breast

has been a blessing. But the truth is, what I face

cancer in 2014. Survivorship has been both a

each day is still invisible to most people. And

blessing and a curse. I don’t look, act, or usually

that’s a curse.

feel like someone dying of cancer. Sometimes, I even forget I have MBC. Others forget too— making this part of who I am invisible.

People forget I have cancer. One of my biggest frustrations is how the media reports someone has “lost their battle with breast cancer.”

My story mirrors many others who’ve faced a

Rarely do they say “died from metastatic breast

cancer diagnosis: the shock, the fear, the anger,

cancer.”

the questions, the frantic search for answers, and the desperate need to be healed. But I never asked, “Why me?” I needed something to push me into living on purpose with purpose. Breast cancer became that push. So instead, I asked, “Why not me?”

In a strange way, cancer became a gift. It galvanized me into becoming my truest self—an educator. I became a teacher after my early-stage diagnosis and taught for a decade before retiring due to my metastatic diagnosis. Retiring on disability, stamped terminal, gave me a lot of time to think about dying.

In the beginning, no one really knew what I was facing—not even me. My daughter, a healthcare professional herself, was on bed rest and pregnant when I was diagnosed. I kept the invasion in my body a secret from her.

MBC was a mystery to me—undetectable to my eyes but exposed by expensive machines. I threw myself into research, determined to understand what this disease really meant. When I realized MBC had no cure, I wanted to disappear. I honestly thought my only child would soon be planning my funeral.

I spiraled inward. I was depressed. No cure. No hope. No reason to get out of bed. But eventually, I found hope through acceptance. I accepted the uncertainty of my life. I chose to make good

If they named MBC more often, maybe the “Early Detection Saves Lives” pink parade would pause for a beat.

(Of course, it wouldn’t. And maybe it shouldn’t.)

I used to live with family, but now I live alone— by choice. My daughter and granddaughters are nearby and I often wonder: Am I doing enough to leave them memories? Are they cancer-fatigued? Do they need to forget I’m living with a disease that kills? Are my friends tired of my cancer posts?

Lately, I’ve posted less. After 11 years, I’ve sometimes wondered if it’s better to let my diagnosis stay invisible.

I live with a disease that was once whispered about—a disease underfunded, understudied, and often left out of the narrative. But that’s changing. We’re finally talking more about breast cancer that spreads beyond the breast.

Research into metastasis is gaining traction.

New treatments are emerging. People with MBC are living longer—and living well. No cure now doesn’t mean no hope forever.

Not long ago, people with MBC were treated as though their expiration date had already been stamped—while all the bell ringing was reserved for early-stage patients.

choices. I chose life.

I refuse to be invisible.

I live with MBC, and you wouldn’t know unless

I live proudly—and loudly—with MBC.

I told you. Many of us don’t tell. We don’t want the puzzled looks, the pity, or the well-meaning but ignorant remarks like, “You don’t look like

Get Linked to Resources Full Resource Directory .........................21 Clinical Trials and Research...................25 Mental Health.........................................25 Metastatic Breast Cancer ......................28 Parents....................................................28

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ONE WORD MEDITATION

Rise

We all fall. We all take flight.

There is nothing you cannot get up from.

Picture yourself soaring — above the situation, above the grief, above the pain — into the place of strength you already know.

Take a moment to sit in stillness, breathing in one word: rise.

You’ve done this before.

You will do it again.

Editor’s Playlist Hyped and Hopeful Music is powerful. Whether our shoulders are shaking with joy or from the release of tears, it has a way of putting words to our emotions — playing softly in the background or rising loud enough to carry us through.

Whether you’re bracing for scan results, clearing your mind, or celebrating something hard-won, here’s a mix of my favorite songs that remind me: every little thing is gonna be alright.

Press play. Turn it up.

Let your soul fill with faith and fire.

Gold - Beckah Shae You Gotta Be - Des’ree Put Your Records On - Corinne Bailey Rae Break My Soul - Beyonce Shake It Off - Taylor Swift Wait for It - Hamilton New Attitude - Patti Labelle Tunnel - Third Day Firework - Katy Perry I’m Still Standing - Elton John Trust in You - Lauren Daigle Happy - Pharrell Pocketful of Sunshine - Natasha Bedingfield Ooh, Child - Five Stairsteps

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It’s My Life - Bon Jovi

Resource Directory From financial assistance and opportunities to advocate for others to family and legacy planning, this collection of resources will help you navigate all aspects of life after a breast cancer diagnosis.

Services are available nationally unless indicated by a *.

Resources by Need and Interest Advocacy Trainings American Association for Cancer Research Mission is to prevent and cure cancer through: research, education, communication, collaboration, science policy advocacy, and funding for cancer research.

HQ: Philadelphia, PA PH: 215-440-9300 Web: aacr.org Breast Cancer Action Mission is to achieve health justice for all people at risk of and living with breast cancer by focusing on systemic interventions, which includes policies, institutions, and practices, and by centering people with the furthest relationships to power.

HQ: San Francisco, CA PH: 415-243-9301 Web: bcaction.org Escape to Thrive, Bag It Escape to THRIVE supports advocates to continue their work effectively – all with the ultimate goal of improving cancer patient education and outreach.

HQ: Tucson , AZ PH: 520-575-9602 Web: bagitcancer.org Living Beyond Breast Cancer Mission is to connect people with trusted breast cancer information and a community of support.

HQ: Bala Cynwyd, PA PH: 855-807 6386 Web: lbbc.org

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National Breast Cancer Coalition NBCC combines the power of advocacy, education, policy, and research to unite around one goal: ending breast cancer.

HQ: Washington, D.C. PH: 800-622-2838 Web: stopbreastcancer.org Rare Patient Voice Rare Patient Voice, LLC connects patients and family caregivers of rare and non-rare diseases with opportunities to share their opinions with companies and researchers by participating in all types of research studies.

HQ: Townson, MD PH: 443-986-1949 Web: rarepatientvoice.com Society for Integrative Oncology SIO is the premier multi-disciplinary professional organization for integrative oncology.

HQ: Pepper Pike, OH Web: integrativeonc.org

Social Health Network A community for patients, caregivers & healthcare professionals with the goal of bringing empathy & humanity to healthcare.

HQ: Philadelphia, PA PH: 484-985-9715 Web: wegohealth.com Tigerlily Foundation Mission is to educate, advocate for, empower, and support young women (15-45), before, during and after cancer.

HQ: Stone Ridge, VA PH: 1-888-580-6253 Web: tigerlilyfoundation.org When We Trial Course Learn to dispel myths and educate on the Black community on clinical trials.

Web: hayley-s-school-fd9b.thinkific.com/courses/your-first-course Young Survival Coalition Young Survival Coalition is an international organization focusing on women ages 40 and under who are diagnosed with breast cancer.

HQ: New York, NY PH: 877-972-1011 Web: youngsurvival.org

Blogs Cure For patients with cancer, survivors and their caregivers, CURE® Media Group’s flagship magazine and online resource curetoday.com provide access to leading resources and information that serve as a guide to every stage of the cancer experience.

Web: curetoday.com For the Breast of Us Mission is to empower women of color affected by breast cancer to make the rest of their lives the best of their lives through education, advocacy and community.

Web: breastofus.com Living Beyond Breast Cancer Mission is to connect people with trusted breast cancer information and a community of support.

Web: lbbc.org The Peak, The Breasties Mission is to help you reach your peaks and navigate your valleys through elevated cancer resources, impactful stories, and support.

Web: thepeak.thebreasties.org

XRAY, FORCE Provides reliable information on the latest cancer research.

Web: facingourrisk.org

Body Image, Intimacy and Sexual Health Scientific Network on Female Sexual Health and Center HQ: Madison, WI PH: 952-683-9044 Web: cancersexnetwork.org

Bra, Prosthesis, Clothing and Swimwear Suppliers Amoena PH: 888-900-8998 Web: amoena.com AnaOno PH: 866-879-1744 Web: anaono.com Busted Tank PH: 860-248-0010 Web: bustedtank.com Cherry Blossom Intimates HQ: Glenarden, MD PH: 310-580-0059 Web: cherryblossomintimates.com *In the Pink Local HQ: Jacksonville Beach, FL PH: 904-372-0029 Web: jaxinthepink.com Jodee PH: 1-800-821-2767 Web: jodee.com Knitted Knockers Web: knittedknockers.org Nikola Jane Web: nicolajane.com *Second to Nature HQ: Roanoke, VA PH: 336-274-2003 Web: secondtonatureva.com TLC, American Cancer Society PH: 1-800-850-9445 Web: tlcdirect.org

Breast Surgery Support Alliance in Reconstruction Surgery Mission is to be a resource and a support system for the women who have had mastectomies as a result of breast cancer or BRCA+ genetic mutations, educating them on reconstruction options, and ultimately assisting them with the cost of reconstructive surgery.

HQ: Dallas, TX PH: 866- 376-6153 Web: airsfoundation.org My Hope Chest My Hope Chest is the only national 501(c)(3) social service organization focused on providing reconstructive surgery for uninsured and underinsured breast cancer survivors.

HQ: Tampa, FL PH: 727-642-4243 Web: myhopechest.org Not Putting On a Shirt Mission is to advocate for satisfactory aesthetic outcomes – as agreed upon by the mastectomy patient and surgeon(s) – for those who choose to go flat.

HQ: Pittsburgh, PA PH: 412-407-5997 Web: notputtingonashirt.org United Breast Cancer Foundation Mission is to make a positive difference in the lives of those affected by breast cancer.

HQ: Huntington, NY PH: 877-822-4287 Web: ubcf.org

Chemo Comfort HQ: New York, NY PH: 212-675-3744 Web:chemocomfort.org Dear Jack Foundation HQ: Littleton, CO PH: 303-579-7287 Web: dearjackfoundation.org Do Cancer HQ: Rancho Santa Fe, CA Web: docancer.org Fighting Pretty HQ: Portland, OR Web: fightingpretty.org *Painted Pink HQ: Atlanta, GA Web: paintedpink.org Pinked Perspective HQ: Arnold, MD Web: pinkedperspective.com Stronghold Ministry HQ: Dallas, TX PH: 214-221-7007 Web: mystronghold.org Tenaciously Teal HQ: Oklahoma City, OK PH: 405-753-4496 Web: tteal.org

Care Packages

*United in Pink Local HQ: Macon, GA PH: 478-254-5247 Web: unitedinpink.org

2Live2Cure HQ: Hood River, OR Web: 2live2cure.org

Clinical Trials and Research

*Bella Luve’ Goes Pink, Inc. Local HQ: Atlanta, GA PH: 678-824-5883 Web: BellaLuve.org Beloved Foundation HQ: Redlands, CA PH: 909-792-3191 Web: belovedfoundation.com Boxes of Hope HQ: Mill Hall, PA PH: 570-502-2524 Web: boh4bc.org Chemocessories HQ: Manhattan Beach, CA Web: chemocessories.org

Breast Cancer Trials.org BreastCancerTrials.org (BCT) is a non-profit service that encourages individuals affected by breast cancer to consider clinical trials as a routine option for care.

HQ: San Francisco, CA PH: 888-282-7099 Web: breastcancertrials.org Count Me In Count Me In is a nonprofit research initiative that enables patients to accelerate cancer research by sharing their samples, their clinical information, and their voices.

PH: 651-403-5315 Web: joincountmein.org

National Cancer Institute NCI leads, conducts, and supports cancer research across the nation to advance scientific knowledge and help all people live longer, healthier lives.

PH: 1-800-4-CANCER Web:cancer.gov When We Trial, TOUCH, The Black Breast Cancer Alliance A movement to advance breast cancer science for Black women.

HQ: Annapolis, MD PH: 443-758-1924.

Web: whenwetrial.org

Estate and Legacy Planning American Cancer Society HQ: Atlanta, GA PH: 1-800-227-2345 Web: cancer.org *Atlanta Legal Aid Society, Inc. Local: Fulton, Dekalb, Cobb, Gwinnett, and Clayton counties HQ: Atlanta, GA Web: atlantalegalaid.org Cancer Legal Resource Center HQ: Los Angeles, CA PH: 866-THE-CLRC (843-2572) Web: thedrlc.org Cancer Linc HQ: Richmond, VA PH: 804-562-0371 Web: cancerlinc.org *City Bar Justice Center Local HQ: New York, NY PH: 212-626-7383 Web: citybarjusticecenter.org Judges And Lawyers Breast Cancer Alert (JALBCA) Web: jalbca.org Magnolia Purpose in Planning HQ: Nutley, NJ Web: magnoliapurposeinplanning.com Triage Cancer HQ: Chicago, IL PH: 424-258-4628 Web: triagecancer.org

Financial Assistance African American Breast Cancer Alliance HQ: Minneapolis, MN PH: 612-462-6813 Web: aabcainc.org/programs Allyson Whitney Foundation HQ: Fort Myers, FL Web: allysonwhitney.org/grants *Angels of Hope Local: Michigan HQ: Shelby Township, MI Web: angelsofhope.org Cancer Care HQ: New York, NY PH: 800‑813‑HOPE (4673) Web: cancercare.org Cancer Financial Assistance Coalition HQ: Bethesda, MD Web: cancerfac.org

PAN Foundation HQ: Washington, D.C. PH: 866-316-7263 Web: panfoundation.org Remember Betty HQ: Tukwila, WA Web: rememberbetty.com Sisters Network Inc HQ: Houston, TX PH: 866-781-1808 Web: sistersnetworkinc.org Susan G. Komen HQ: Dallas, TX PH: 877-465-6636 Web: komen.org

Donna Foundation HQ: Atlantic Beach, FL PH: 1-877-236-6626 Web: thedonnafoundation.org

The Pink Fund HQ: Southfield, MI Web: pinkfund.org

Expect Miracles Foundation HQ: Boston, MA PH: 617-938-3484 Web: expectmiraclesfoundation.org Good Days HQ: Frisco, TX PH: 972-608-7141 Web: mygooddays.org

FALL 2025 ISSUE

*One Catalyst Foundation Local: NJ, NY, PA, CT HQ: New Jersey PH: 609-759-0401 Web: onecatalyst.org

Do Cancer HQ: Rancho Santa Fe, CA Web: docancer.org

*Ellie Fund Local: Massachusetts HQ: Needham, MA PH: 781-449-0100 Web: elliefund.org

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Needy Meds HQ: Gloucester, MA PH: 800-503-6897 Web: needymeds.org

Infinite Strength HQ: Madison, CT PH: 203-812-0549 Web: infinitestrength.org Keep A Breast HQ: Yucca Valley, CA Web: keep-a-breast.org Living Beyond Breast Cancer HQ: Bala Cynwyd, PA PH: 855-807-6386 Web: lbbc.org

Unite for Her HQ: West Chester, PA PH: 610-883-1177 Web: uniteforher.org Wish Upon a Wedding HQ: Chicago, IL Web: wishuponawedding.org

Holistic Health and Integrative Therapy *Ballet Austin Local Austin, TX PH: 512-501-8704 Web: balletaustin.org Do Cancer HQ: Rancho Santa Fe, CA Web: docancer.org Healing Works Foundation Web: healingworksfoundation.org Roots & Wings HQ: Wilmette, IL Web: rootswingsfoundation.org

Society for Integrative Oncology HQ: Pepper Pike, OH Web: integrativeonc.org *Still Rise Farms Local HQ: Berks County, PA Web: stillrisefarms.com *Team Survivor Austin Local HQ: Austin, TX PH: 512-630-0498 Web: teamsurvivoraustin.org Yoga 4 Cancer HQ: Fresno, CA Web: yoga4cancer.com

Insurance Medicare Federal health insurance program that provides coverage to people age 65 and older and to people of any age who have been getting Social Security Disability Insurance (SSDI) benefits for at least two years.

PH: 1-800-MEDICARE (1-800-633-4227) Web: medicare.gov Medicaid Medicaid provides free or low-cost health insurance coverage to eligible low-income adults age 64 and under and those with disabilities.

PH: 877-267-2323 Web: medicaid.gov Health Insurance Marketplace A service that helps people shop for and enroll in health insurance. The federal government operates the Health Insurance Marketplace®, available at HealthCare.gov, for most states.

Some states run their own Marketplaces.

PH: 1-800-318-2596 Web: healthcare.gov.

Cancer & Health Insurance, Triage Cancer Legal and practical materials and resources to help you understand and compare your options, what to do when you lose your insurance at work, and appeal denials of coverage.

PH: 424-258-4628 Web: triagecancer.org

Meal Services and Nutrition Education American Cancer Society HQ: Atlanta, GA PH: 1-800-227-2345 Web: cancer.org

Cancer Nutrition Consortium HQ: Boston, MA PH: 844-262-4636 Web: cancernutrition.org *Celebrate Life Cancer Ministry HQ: Hawthorne, CA PH: 424-258-5433 (LIFE) Web: celebratelifecm.org Cook For Your Life HQ: Seattle, WA Web: Cookforyourlife.org Feeding America HQ: Chicago, IL PH: 1-800-771-2303 Web: feedingamerica.org *God’s Love We Deliver Local HQ: New York, NY PH: 212-294-8100 Web: glwd.org Lasagna Love Web: lasagnalove.org *Magnolia Meals at Home Local: NH, NY, NJ, CT, MA Web: magnoliamealsathome.com Meals on Wheels America HQ: Arlington, VA PH: 1-888-998-6325 Web: mealsonwheelsamerica.org Meal Train HQ: Burlington, VT Web: Mealtrain.com Mom’s Meals HQ: Ankeny, IA PH: 1-877-508-6667 Web: momsmeals.com National Breast Cancer Foundation HQ: Dallas, TX PH: 972-248-9200 Web: nationalbreastcancer.org *Painted Pink HQ: Atlanta, GA Web: paintedpink.org *Pink Ribbon Good Local: Dayton, Cincinnati and Columbus,OH, St. Louis, MO, San Francisco, CA and Buffalo, NY HQ: Dayton, OH PH: 877-269-5367 Web: pinkribbongood.org Surviving Breast Cancer Org HQ: Boston, MA Web: survivingbreastcancer.org

*TurningPoint Breast Cancer Rehabilitation Local HQ: Atlanta, GA PH: 770-360-9271 Web: myturningpoint.org

Dear Cancer, I’m Beautiful Check your favorite streaming service.

Unite for Her HQ: West Chester, PA PH: 610-883-1177 Web: uniteforher.org

Our MBC Life ourmbclife.org

Why Hunger HQ: New York, New York PH: 212-629-8850 Web: networks.whyhunger.org

Mental Health 4th Angel HQ: Cleveland, OH PH: 866-520-3197 Web: 4thangel.ccf.org Living Beyond Breast Cancer HQ: Bala Cynwyd, PA PH: 855-807-6386 Web: lbbc.org Young Survival Coalition HQ: New York, NY PH: 877-972-1011 Web: youngsurvival.org

Non-Toxic Living My Style Matters HQ: Atlanta, GA PH: 804-400-6082 Web: mystylematters.org *Painted Pink HQ: Atlanta, GA Web: paintedpink.org Think Dirty App Web: thinkdirtyapp.com EWG’s Healthy Living App Web: ewg.org

Podcasts

Living Our Breast Lives Check your favorite streaming service.

Surviving Breast Cancer survivingbreastcancer.org The “Don’t Call it a Journey” Podcast Check your favorite streaming service.

The Burn Podcast, Wildfire Community wildfirecommunity.org Too Young For this Shit tyftspodcast.com

Retreats, Camps and Getaways for Self Care Casting for Recovery HQ: Bozeman, MT PH: 406-624-6583 Web: castingforrecovery.org Fight through Flights HQ: Washington, D.C. Web: fightthroughflights.org First Descents HQ: Denver, CO PH: 303-945-2490 Web: firstdescents.org Image Reborn HQ: Salt Lake City, UT Web: imagerebornfoundation.org Inheritance of Hope HQ: Atlanta, GA PH: 914.213.8435 Web: inheritanceofhope.org Little Pink Houses of Hope HQ: Burlington, NC PH: 336-213-4733 Web: littlepink.org

Aya Cancer: Unfiltered, Elephants and Tea elephantsandtea.com

Mary’s Place by the Sea HQ: Ocean Grove, NJ PH: 732-455-5344 Web: marysplacebythesea.org

Baddie 2 Baddie Breast Cancer Podcast, For the Breast of Us Check your favorite streaming service.

Send it Foundation HQ: Truckee, CA Web: senditfoundation.org

Center for Disease Control and Prevention cdc.gov

Camp Breastie, The Breasties HQ: Metuchen, NJ Web: thebreasties.org

Wellness Retreats, Young Survival Coalition HQ: New York, NY PH: 877-972-1011 Web: youngsurvival.org

Support Apps Check your smart phone’s app store for availability.

BC Navi App bcnavi.com Cancer Community App, The Breasties thebreasties.org CaringBridge caringbridge.org Healthline Media: Bezzy Breast Cancer bezzybc.com Living With Cancer thisislivingwithcancer.com

Support Groups and Online Communities Bright Spot Network Bright Spot Network provides young cancer survivors who are parents of small children with a safe space for individual and familial healing, recovery, and reconnection.

HQ: Almeda, CA Web: brightspotnetwork.org For the Breast of Us HQ: Atlanta, GA Web: breastofus.com Living Beyond Breast Cancer HQ: Bala Cynwyd, PA PH: 855-807-6386 Web: lbbc.org

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Project Life HQ: Central Point, OR Web: Projectlifembc.com Share Cancer Support HQ: New York, NY PH: 844-ASK-SHARE (844-275-7427) Web: sharecancersupport.org The Breasties HQ: Metuchen, NJ Web: thebreasties.org Triple Negative Breast Cancer Foundation HQ: Norwood, NJ PH: 646-942-0242 Web: tnbcfoundation.org

Young Survival Coalition HQ: New York, NY PH: 877-972-1011 Web: youngsurvival.org

Style/Esteem Shop Web: styleesteemshop.com

Transportation

*The Gathering Place Local: Ohio HQ: Beachwood, OH PH: 216-595-9546 Web: touchedbycancer.org

American Cancer Society HQ: Atlanta, GA PH: 1-800-227-2345 Web: cancer.org

TurbanPlus HQ: Garden Grove, CA PH: 714-530-9590 Web: turbanplus.com

Cancer Care HQ: New York, NY PH: 800‑813‑HOPE (4673) Web: cancercare.org

Verma Foundation HQ: Lakeway, TX PH: 512-582-0171 Web: vermafoundation.org

Pink Ribbon Good Local: Dayton, Cincinnati and Columbus,OH, St. Louis, MO, San Francisco, CA and Buffalo, NY HQ: Dayton, OH PH: 877-269-5367 Web: pinkribbongood.org

Wigs and Wishes HQ: Sewell, NJ PH: 856-582-6600 Web: wigsandwishes.org

Wigs and Hair Coverings 4women.com HQ: Charlotte, NC PH: 941-362-0250 Web: 4women.com Coils to Locs HQ: Dorchester, MA Web: coilstolocsstore.com Ebeauty Community Inc HQ: Buckeye, AZ PH: 612-963-0701 Web: ebeauty.com Headcovers Unlimited HQ: League City, TX PH: 1-800-264-4287 Web: headcovers.com *In the Pink Local HQ: Jacksonville Beach, FL PH: 904-372-0029 Web: jaxinthepink.com Sharsheret PH: 866-474-2774 HQ: Teaneck, NJ Web: sharsheret.org

Work and Career American Cancer Society Mission is to improve the lives of people with cancer and their families through advocacy, research, and patient support, to ensure everyone has an opportunity to prevent, detect, treat, and survive cancer.

HQ: Atlanta, GA PH: 1-800-227-2345 Web: cancer.org Cancer and Careers Empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events.

HQ: New York, NY PH: 646-929-8032 Web: cancerandcareers.org *City Bar Justice Center The City Bar Justice Center increases access to justice for New Yorkers struggling with poverty and systemic socioeconomic barriers by leveraging the volunteered time and expertise of the New York City legal community.

Local HQ: New York, NY PH: 212-626-7383 Web: Citybarjusticecenter.org Triage Cancer Triage Cancer is a national, nonprofit organization that provides free education on the legal and practical issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources.

HQ: Chicago, IL PH: 424-258-4628 Web: Triagecancer.org

U.S. Department of Labor The Department of Labor (DOL) fosters and promotes the welfare of the job seekers, wage earners, and retirees of the United States by improving their working conditions, advancing their opportunities for profitable employment, protecting their retirement and health care benefits, helping employers find workers, strengthening free collective bargaining, and tracking changes in employment, prices, and other national economic measurements.

HQ: Washington, D.C. PH: 1-866-4-USA-DOL (1-866-487-2365) Web: dol.gov U.S. Equal Employment Opportunity Commission The U.S. Equal Employment Opportunity Commission (EEOC) is responsible for enforcing federal laws that make it illegal to discriminate against a job applicant or an employee because of the person’s race, color, religion, sex (including pregnancy and related conditions, gender identity, and sexual orientation), national origin, age (40 or older), disability or genetic information HQ: Washington D.C. PH: 1-800-669-4000 Web: eeoc.gov

Resources for Specific Demographics Black and African Americans 2for2Boobs Web: 2for2boobs.org African American Breast Cancer Alliance HQ: Minneapolis, MN PH: 612462-6813 Web: aabcainc.org Black Doctor.Org HQ: Chicago, IL Web: blackdoctor.org Black Health Matters HQ: Ringwood, NJ PH: 973-333-9541 Web: blackhealthmatters.com Black Women’s Health Imperative HQ: Washington, D.C. PH: 888-834-8451 Web: bwhi.org Carrie’s Touch HQ: Sacramento, CA PH: 916-307-2419 Web: carriestouch.org Center for African American Health HQ: Denver, CO PH: 303-355-3423 Web: caahealth.org My Sister My Friend HQ: Long Beach, CA PH: 855-778-1600 Web: mysistermyfriendbcs.net My Style Matters HQ: Atlanta, GA PH:804-400-6082 Web: mystylematters.org Sisters Network, Inc HQ: Houston, TX PH: 866-781-1808 Web: sistersnetworkinc.org

Women’s Cancer Resource Center HQ: Berkeley, CA PH: 510-601-4040 Web: wcrc.org

Caregivers and CoSurvivors American Cancer Society HQ: Atlanta, GA PH: 1-800-227-2345 Web: cancer.org Cancer Care HQ: New York, NY PH: 800‑813‑HOPE (4673) Web: cancercare.org Triage Cancer HQ: Chicago, IL PH: 424-258-4628 Web: triagecancer.org Young Survival Coalition HQ: New York, NY PH: 877-972-1011 Web: youngsurvival.org

Inflammatory Breast Cancer The IBC Network HQ: Sealy, TX PH: 832-481-3552 Web: theibcnetwork.org Inflammatory Breast Cancer Research Foundation HQ: Broadway, VA PH: 1-877-786-7422 Web: ibcresearch.org

LGBTQ+ Community

Thelma D. Jones Breast Cancer Fund HQ: Washington D.C. PH: 202-251-1639 Web: tdjbreastcancerfund.org

Escape HQ: Lansing, MI Web: escapeayac.org

TOUCH, The Black Breast Cancer Alliance HQ: Annapolis, MD PH: 443-758-1924 Web: touchbbca.org

The Fenway Institute HQ: Boston, MA PH: 617-927-6400 Web: fenwayhealth.org LGBTQ+ Health Service Providers, CDC PH: 800-232-4636 Web: cdc.gov/lgbthealth/health-services

National LGBT Cancer Network HQ: Providence, RI PH: 212-675-2633 Web: cancer-network.org Transgender Cancer Patient Project Web: transcancerzine.com

Lobular Breast Cancer The Lobular Breast Cancer Alliance PH: 800-977-4121 Web: lobularbreastcancer.org

Male Breast Cancer Cancer Dudes Web: cancerdudes.org HIS Breast Cancer Awareness HQ: Margate City, NJ Web: hisbreastcancer.org Livestrong HQ: Austin, TX PH: 855-220-7777 Web: livestrong.org Male Breast Cancer Global Alliance HQ: East Hanover, NJ Male Breast Cancer Global Alliance HQ: East Hanover, NJ PH: 866-540-8722 Web: mbcglobalalliance.org Male Care HQ: New York, NY PH: 212-673-4920 Web: malecare.org Reel Recovery HQ: Needham, MA PH: 800-699-4490 Web: reelrecovery.org

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Metastatic Breast Cancer Infinite Strength HQ: Madison, CT PH: 203-812-0549 Web: infinitestrength.org Metastatic Breast Cancer Alliance HQ: New York, NY Web: mbcalliance.org Metastatic Breast Cancer Network (MBCN) HQ: New York, NY PH: 888-500-0370 Web: mbcn.org

METAvivor HQ: Annapolis, MD Web: metavivor.org *Pink Ribbon Good Local: Dayton, Cincinnati and Columbus,OH, St. Louis, MO, San Francisco, CA and Buffalo, NY HQ: Dayton, OH PH: 877-269-5367 Web: pinkribbongood.org Project Life HQ: Central Point, OR Web: projectlifembc.com Roots & Wings HQ: Wilmette, IL PH: 973-453-6668 Web: rootswingsfoundation.org Twisted Pink HQ: Louisville, KY PH: 502-890-2662 Web: twistedpink.org

Parents *A Small Miracle Foundation Mission is to reduce barriers to beating cancer by providing quality child care.

Local HQ: Richardson, TX PH: 469-426-7727 Web: childcareforcancerpatients.org Bright Spot Network Bright Spot Network provides young cancer survivors who are parents of small children with a safe space for individual and familial healing, recovery, and reconnection.

HQ: Almeda, CA Web: brightspotnetwork.org Camp Kesem Supports children through and beyond their parent’s cancer with free, fun-filled creative programs and a lasting community.

HQ: Covina, CA PH: 253-736-3821 Web: kesem.org Camp Mak-A-Dream Mission is to empower survivors and their families to live with and beyond cancer through life-changing Montana experiences where they strengthen life skills, gain resilience, and develop lasting relationships.

HQ: Missoula, Montana PH: 406-549-5987 Web: campdream.org

Cancer Support Community CSC uplifts and strengthens people impacted by cancer by providing support, fostering compassionate communities, and breaking down barriers to care.

HQ: Washington, D.C. PH: 888-793-9355 Web: cancersupportcommunity.org CancerCare CancerCare is the leading national organization providing free, professional support services and information to help people manage the emotional, practical and financial challenges of cancer.

HQ: New York, NY PH: 800-813-HOPE (4673) Web: cancercare.org Eagle Mount Eagle Mount Bozeman is committed to provide quality adaptive recreation and sport opportunities for people with disabilities and young people impacted by cancer, and to provide support for families of participants, so that “they shall mount up with wings as eagles.”

HQ: Bozeman, MT PH: 406-586-1781 Web: eaglemount.org Help With Hope Help with Hope’s goal is to support every child whose parent has been affected by cancer with compassion and understanding.

HQ: San Marino, CA PH: 310-596-6168 Web: helpwithhope.org *Inova Life with Cancer Inova Life with Cancer, a program of Inova Schar Cancer, is Northern Virginia’s leading non-profit organization providing education and psychosocial support to all individuals impacted by cancer through evidence-based holistic care at no cost, no matter where treatment is received.

Local: Northern VA HQ: Fairfax, VA PH: 703-206-5433 (LIFE) Web: lifewithcancer.org Living Beyond Breast Cancer Mission is to connect people with trusted breast cancer information and a community of support.

HQ: Bala Cynwyd, PA PH: 855-807-6386 Web: lbbc.org

*Mommies in Need Mommies In Need is a first of its kind nonprofit organization that supports families by providing safe, loving childcare from expert staff so family members can get the medical care they need.

Local HQ: Dallas, TX PH: 214-442-1614 Web: mommiesinneed.org

Well Beings Studio Well Beings Studio engages the arts to support emotional well-being and open conversation with children, teens, and families.

HQ: Fullerton, CA PH: 714-264-4612 Web: wellbeings.studio

Living Beyond Breast Cancer Mission is to connect people with trusted breast cancer information and a community of support.

HQ: Bala Cynwyd, PA PH: 855-807-6386 Web: lbbc.org Red Door Community Mission is to create a welcoming community of free cancer support, to bring knowledge, hope and empowerment to anyone and everyone impacted by cancer and their families.

HQ: New York, NY PH: 212-647-9700 Web: reddoorcommunity.org

Triple Negative Breast Cancer

Stupid Cancer Mission is to help empower everyone affected by adolescent and young adult (AYA) cancer by ending isolation and building community.

HQ: New York, NY PH: 212-619-1040 Web: stupidcancer.org

Tigerlily Foundation HQ: Stone Ridge, VA PH: 888-580-6253 Web: tigerlilyfoundation.org Triple Negative Breast Cancer Foundation HQ: Norwood, NJ PH: 646-942-0242 Web: tnbcfoundation.org

The Cassie Hines Shoes Cancer Foundation Mission is to guide young adults with cancer, to social support programs and services that can help them manage their mental healing as well as their physical battle.

HQ: Washington Twp, MI PH: 586-322-0991 Web: cassiehinesshoescancer.org

Young Breast Cancer Community (Under 45) Cactus Cancer Society Mission is to provide a safe space where young adults (ages 18-45) facing cancer can connect, cope, and thrive with one another in an online community through creativity and expression.

HQ: Oakland, CA PH: 636-795-3617 Web: cactuscancer.org Dear Jack Foundation The Dear Jack Foundation provides impactful programs benefiting adolescents and young adults (AYA) diagnosed with cancer and their families to improve their quality of life from treatment to survivorship HQ: Littleton, CO Web: dearjackfoundation.org Elephants and Tea Elephants and Tea is a magazine for and by adolescent and young adult (AYA) cancer patients, survivors and caregivers telling their stories.

HQ: Avon Lake, OH Web: elephantsandtea.com

The Ruth Cheatham Foundation TRCF bridges the educational opportunity gap and provides the gateway to economic opportunity and a higher quality of life for young cancer survivors.

HQ: Dallas, TX PH: 972-897-3371 Web: ruthcheathamfoundation.org Ulman Foundation Mission is to change lives by creating a community of support for young adults, and their loved ones, impacted by cancer.

HQ: Baltimore, MD PH: 888-393-3863 Web: ulmanfoundation.org *Walk with Sally Walk With Sally supports children impacted by cancer by providing care-centered one-to-one fellowships and additional programs and services to uplift the family unit and lessen the burden of cancer.

Local HQ: El Segundo, CA PH: 310-322-3900 Web: walkwithsally.org *Walking Miracles Family Foundation Mission is to assist pediatric, adolescent and young adult cancer survivors to thrive throughout and beyond the cancer experience.

Local HQ: Hurricane, WV Web: walkingmiracles.org

Wildfire Community The only magazine and writing community for the ones “too young” for breast cancer.

Web: wildfirecommunity.org Worth the Wait Mission is to ease the burden for young adult cancer survivors pursuing parenthood by providing financial support for fertility treatments, adoption and surrogacy.

HQ: Westerville, OH Web: worththewaitcharity.com Young Adult Survivors United YASU helps young adult cancer survivors and caregivers/co-survivors cope and thrive by providing emotional, social, and financial support; the comprehensive care model that enhances their quality of life.

HQ: Gibsonia, PA PH: 412-715-9700 Web: yasurvivors.org Young Survival Coalition Young Survival Coalition (YSC) strengthens the community, addresses the unique needs, amplifies the voice and improves the quality of life of young adults affected by breast cancer, locally, nationally and internationally.

HQ: New York, NY PH: 877-972-1011 Web: youngsurvival.org

Additional Resources Bag It Provides a take-everywhere binder filled with reliable cancer information, coping tips and more, designed to organize information, appointments, and records.

HQ: Tucson, AZ PH: 520-575-9602 Web: bagitcancer.org Cancer.net Provides comprehensive information for people with cancer, families, and caregivers, from the American Society of Clinical Oncology (ASCO), the voice of the world’s oncology professionals HQ: Alexandria, VA PH: 888-651-3038 Web: cancer.net

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Pet Assistant & Wellness Program (PAW), CancerCare Assists people undergoing cancer treatment with the challenges of keeping their cat or dog at home.

HQ: New York, NY PH: 800-813-HOPE (4673) Web: cancercare.org/paw

Notes

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Notes

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