MS Walk 2018

M

ore than 200 people are expected to raise more than $55,000 at Walk MS: Kauai on March 31 at Kapa’a Beach Park. Walk MS is an opportunity for people to come together with friends, loved ones and co-workers to fundraise, connect and advocate for people affected by MS. Each dollar raised is one step closer to the National Multiple Sclerosis Society’s goal – a world free of MS. Since its inception in 1988, Walk MS has cumulatively raised more than $1 billion.

“Walk MS is all about community – people coming together to raise money and show support for loved ones, colleagues and friends,” said Cyndi Zagieboylo, President and CEO of the National MS Society. “Funds raised have a direct impact in this community, for example – our MS Navigator program. MS Navigators are highly-skilled, compassionate professionals available to connect each person affected by MS to the resources and information they need to live their best lives.”

Multiple sclerosis attacks the brain and spinal cord, and it is the most common neurological disease leading to disability in young adults. The National MS Society is a gathering place for people with MS, their family and loved ones, healthcare providers, volunteers, donors,

fundraisers, advocates, community leaders and all those that seek a world free of MS. Sanofi Genzyme is the premier national sponsor of Walk MS. Biogen, Genentech and Novartis are national sponsors of Walk MS.

About Multiple Sclerosis

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are leading to better understanding and moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. MS affects more than 2.3 million worldwide.

For more information about multiple sclerosis and the National MS Society go to nationalMSsociety.org or call 800344-4867.

Call 855-372-1331 to register or visit walkMS.org to learn more.

TIRE WAREHOUSE KAUAI Passenger • Commercial • Off-Road Tires • Rims • Retreads

Complimentary boat tour for Kauai Residents with ID in 2017

Proudly Support the fight to cure Multiple Sclerosis!

Good

throug

h 12/3

1/16

Serving Kauai 43 Years THE TIRE DISCOUNT CENTER

for info, call or visit

.

WHEN: Walk begins at 4 p.m , 1 3 h rc Ma WHERE: ach Park Kapa’a Be MS? ing Why Walkelps fuel groundbreakanging h h Walk MS h and provide life-c MS researc those affected by MS mmuservices to ating a supportive cod ones through creds, families and love nity of frien ise and connect. who fund ra : ipate REGISTERalk near you, to partic, call w rg a .o S d n M To fi er, visit walk ingor to volunte331 or email fundrais -1 2 7 855-3 mss.org. support@n

Mon, Tues, Thurs, Fri 8am-5pm Wed & Sat 8am-1pm 3028 Aukele St, Lihue (Industrial Park II) www.tirewarehousekauai.com nationalmssociety.org

ISLAND WIDE ROAD SERVICE

245-6754

2 0 1 8 WA L K M S

• SHOCK ABSORBERS • BRAKES • FRONT END PARTS • WHEEL ALIGNMENT • MUFFLERS • SPLIT RIM • SAFETY CHECKS

Wednesday, March 28, 2018 • 1

I am walking. Are you?

rupts the flow of information between the brain and the body, stopping people from moving. It also LIHUE — Corina Scoggins is walk- serves as a fundraiser to help with ing at the annual Walk and Roll MS programs and services to enhance the lives of those with MS as well as — Sunset Stroll, March 31 starting at 4 p.m. at the Kapaa Beach Park. meet the constant changing needs of those who live with MS on Kauai “The walk title was modified for and their families. this year,� said Cynthia Edralin, anDuring the MS Walk held last other walker. “Last year, someone said we needed to take into account year, more than $47,485 was raised during the MS campaign which those people who can no longer launched earlier in the year at the walk, but instead are confined to Kalaheo Steak and Ribs. This was wheelchairs. This changed the MS more than any other county in the Walk to ‘MS Walk and Roll.’ I can state, and the generosity of the still walk, but not very far, so I’m community helps people living with walking just a short distance.�

MS move closer to a world free of Scoggins is walking, too, after MS. This includes the development moving here from Texas. of effective treatments and a wide “I am enthusiastically walking in range of client programs to improve the MS Walk and Roll,� she said. “I’m fortunate that I am able to walk the lives of the 800 individuals in — some people with Multiple Sclero- Hawaii who live with MS. Scoggins, who lives in Kalaheo, is sis cannot. I am fortunate that my mobility hasn’t been limited by MS.� one of those people, having moved to Kauai because of MS. The MS Walk and Roll — Sunset “We moved from Austin, Texas, a Stroll is designed to raise awarewonderful city,� Scoggins said. “The ness about the disease that interDennis Fujimoto THE GARDEN ISLAND

temperatures are very hot there for about four months of the year, and I felt like a prisoner trapped inside air conditioned spaces — car, office, house, and even to another air conditioned place to meet up with friends, or to a movie with my husband. I used to love summer and all of its activities, but MS in Texas changed that. I used dread the coming of spring knowing that summer followed.�

Scoggins moved here in April of 2017, and the summer was amazing. “This past summer, I was able to be as active as I wanted,� she said. “I didn’t dread walking out the front door into the heat — the hottest days on Kauai were like a cool summer day in Austin. I had several days when I got overheated from cleaning and had to take a long nap to recover. But I did not have any fatigue episodes that kept me in bed, or on the couch for two, or three days — something that happened during summers in Austin.�

Walking Scoggins said not all people with MS, suffer in heat. “For myself, heat worsens MS symptoms,� she said. “That meant that I have experienced extreme fatigue more often, sometimes just after being in a hot car while waiting for the AC to kick in. The hot temperatures on Kauai were in the upper 80s — a lot better than the 95 to 100plus degrees in Texas.�

She said the fatigue suffered by people living with MS is not the same as being sleepy, or tired. “Imagine having a large heavy down comforter soaked in water draped around your shoulders and walking around with it,� she said. “But before that, getting out of bed takes all your energy. Then, you put

Continued from page 2

the water-soaked comforter on and drag it with you to the couch where you have to lie down from the strain of that short walk. That’s one way to imagine MS fatigue.�

More than a million people in the United States lives with MS, and a new diagnosis is made every hour of SEE WALKING, PAGE 3

the day. “I have been living with MS since at least 1998,� Scoggins said. “That was when I noticed the symptoms that later became identified as relapsing-remittance MS. Fatigue and fatigue management were the biggest impact on my life.

Cognitive changes caused me to retire early from my career as an equity analyst on the investment team of a large public pension fund. I was able to continue working for some years with modifications and the support of my managers, but I took a lot of sick time due to my fatigue episodes.

Beyond the impact on my career, my activities were limited because of managing fatigue by making daily choices to budget my energy and reduce the possibility of a fatigue flare up. My life became smaller because maintaining good health through very healthy eating and using most of my energy to budget for work and regular exer-

cise meant I couldn’t do much else.�

Scoggins did not get diagnosed with MS until her family moved to Texas in 1998. “I didn’t go to the doctor for the MS symptoms,� she said. “I needed to get established with a new doctor after moving. The doctor I went to asked if there was anything that he should know about in addition to my basic health background information.

Prior to the visit, I had some odd sensations that would come and go on the top of one of my feet — feelings of heat, but my right foot was not any warmer than my left one. I also had sensations in my right leg — tingling and the feeling that my leg had fallen asleep. As it turned out, the doctor’s former wife had MS and he was familiar with what those symptoms could mean. Following a back x-ray showed no problems, he scheduled an MRI which showed lesions typical of MS.�

Following her move to Kauai, Scoggins got to meet a support group here. “Going to the support group was

like walking into a happy hour of friends from work, or your neighbors,� she said. “Being connected to someone else living with MS reduces the isolation that can come with living with a chronic disease.

You already have something significant in common even though you may not know them that well. Immediately, I can talk, text, or email with someone who knows what it means when I say that I haven’t been able to do what I enjoy, or need to do because of fatigue.

These people know that I’m not lazy, or suffering from lack of sleep. They know that it’s a real bummer to have your plans — even if it’s just to work in the garden — interrupted by MS symptoms. I feel so blessed to have become connected to them so soon after moving here. Just like the residents of Kauai, the MS support group has shown me incredible kindness. When they say ‘Aloha,’ I feel it in my heart.�

Everyone is invited to join Scoggins and everyone else for an afternoon of fun, fellowship, and to help raise funds for the fight against MS.

ALDEN ALAYVILLA / CONTRIBUTED PHOTO

Mayor Bernard Carvalho Jr. presents the MS proclamation to Laurie Hokama, Mary Kay Hertog, Cindy Edralin, Corina Scoggins and Edna Bronzino announcing the MS Walk and Roll-Sunset Stroll, March 31 at 4 p.m. at the Kapaa Beach Park.

We Proudly Support the Walk

to End Multiple Sclerosis

GARY’S SERVICE, INC. CONNECT WITH OTHERS

 � �  �

Â?   Â

Bring in this coupon to

save $150 on your next  � � � �

Husqvarna Tractor or  ­ € € Zero-Turn Purchase!

‚

2 0 1 8 WA L K M S

Kauai Talk Story Group 1st Wednesdays of each month, 5:30 p.m-7:00 p.m. This group travels to different parts of the island.

Mary Kay Hertog and Laurie Nakama, Co-Facilitators.

Kauai Caregivers Talk Story Group This group meets based on participant availability and communicates regularly via email thread . For more info about this group, please call 800-344-4867.

Coupon Expires: April 30th, 2018 � ƒ „ … † Some restrictions apply.

2 • Wednesday, March 28, 2018

The National MS Society’s self-help, otherwise known as Talk Story Meetings, are groups for individuals with MS, their families, friends, and other care partners. Members gather regularly for the purpose of sharing common experiences and concerns, providing and receiving emotional support, and obtaining information.

nationalmssociety.org

nationalmssociety.org

electrical system

inspection • free battery test • alternator test • starter test

with oil & filter Change! exp: 4/30/18

4469 Kolopa St., Lihue (behind Home Depot)

Ph: 245-2221 • Fax: 246-9182 www.garysserviceinc.com License No. RD1908 2 0 1 8 WA L K M S

Wednesday, March 28, 2018 • 3

I am walking. Are you?

rupts the flow of information between the brain and the body, stopping people from moving. It also LIHUE — Corina Scoggins is walk- serves as a fundraiser to help with ing at the annual Walk and Roll MS programs and services to enhance the lives of those with MS as well as — Sunset Stroll, March 31 starting at 4 p.m. at the Kapaa Beach Park. meet the constant changing needs of those who live with MS on Kauai “The walk title was modified for and their families. this year,� said Cynthia Edralin, anDuring the MS Walk held last other walker. “Last year, someone said we needed to take into account year, more than $47,485 was raised during the MS campaign which those people who can no longer launched earlier in the year at the walk, but instead are confined to Kalaheo Steak and Ribs. This was wheelchairs. This changed the MS more than any other county in the Walk to ‘MS Walk and Roll.’ I can state, and the generosity of the still walk, but not very far, so I’m community helps people living with walking just a short distance.�

MS move closer to a world free of Scoggins is walking, too, after MS. This includes the development moving here from Texas. of effective treatments and a wide “I am enthusiastically walking in range of client programs to improve the MS Walk and Roll,� she said. “I’m fortunate that I am able to walk the lives of the 800 individuals in — some people with Multiple Sclero- Hawaii who live with MS. Scoggins, who lives in Kalaheo, is sis cannot. I am fortunate that my mobility hasn’t been limited by MS.� one of those people, having moved to Kauai because of MS. The MS Walk and Roll — Sunset “We moved from Austin, Texas, a Stroll is designed to raise awarewonderful city,� Scoggins said. “The ness about the disease that interDennis Fujimoto THE GARDEN ISLAND

temperatures are very hot there for about four months of the year, and I felt like a prisoner trapped inside air conditioned spaces — car, office, house, and even to another air conditioned place to meet up with friends, or to a movie with my husband. I used to love summer and all of its activities, but MS in Texas changed that. I used dread the coming of spring knowing that summer followed.�

Scoggins moved here in April of 2017, and the summer was amazing. “This past summer, I was able to be as active as I wanted,� she said. “I didn’t dread walking out the front door into the heat — the hottest days on Kauai were like a cool summer day in Austin. I had several days when I got overheated from cleaning and had to take a long nap to recover. But I did not have any fatigue episodes that kept me in bed, or on the couch for two, or three days — something that happened during summers in Austin.�

Walking Scoggins said not all people with MS, suffer in heat. “For myself, heat worsens MS symptoms,� she said. “That meant that I have experienced extreme fatigue more often, sometimes just after being in a hot car while waiting for the AC to kick in. The hot temperatures on Kauai were in the upper 80s — a lot better than the 95 to 100plus degrees in Texas.�

She said the fatigue suffered by people living with MS is not the same as being sleepy, or tired. “Imagine having a large heavy down comforter soaked in water draped around your shoulders and walking around with it,� she said. “But before that, getting out of bed takes all your energy. Then, you put

Continued from page 2

the water-soaked comforter on and drag it with you to the couch where you have to lie down from the strain of that short walk. That’s one way to imagine MS fatigue.�

More than a million people in the United States lives with MS, and a new diagnosis is made every hour of SEE WALKING, PAGE 3

the day. “I have been living with MS since at least 1998,� Scoggins said. “That was when I noticed the symptoms that later became identified as relapsing-remittance MS. Fatigue and fatigue management were the biggest impact on my life.

Cognitive changes caused me to retire early from my career as an equity analyst on the investment team of a large public pension fund. I was able to continue working for some years with modifications and the support of my managers, but I took a lot of sick time due to my fatigue episodes.

Beyond the impact on my career, my activities were limited because of managing fatigue by making daily choices to budget my energy and reduce the possibility of a fatigue flare up. My life became smaller because maintaining good health through very healthy eating and using most of my energy to budget for work and regular exer-

cise meant I couldn’t do much else.�

Scoggins did not get diagnosed with MS until her family moved to Texas in 1998. “I didn’t go to the doctor for the MS symptoms,� she said. “I needed to get established with a new doctor after moving. The doctor I went to asked if there was anything that he should know about in addition to my basic health background information.

Prior to the visit, I had some odd sensations that would come and go on the top of one of my feet — feelings of heat, but my right foot was not any warmer than my left one. I also had sensations in my right leg — tingling and the feeling that my leg had fallen asleep. As it turned out, the doctor’s former wife had MS and he was familiar with what those symptoms could mean. Following a back x-ray showed no problems, he scheduled an MRI which showed lesions typical of MS.�

Following her move to Kauai, Scoggins got to meet a support group here. “Going to the support group was

like walking into a happy hour of friends from work, or your neighbors,� she said. “Being connected to someone else living with MS reduces the isolation that can come with living with a chronic disease.

You already have something significant in common even though you may not know them that well. Immediately, I can talk, text, or email with someone who knows what it means when I say that I haven’t been able to do what I enjoy, or need to do because of fatigue.

These people know that I’m not lazy, or suffering from lack of sleep. They know that it’s a real bummer to have your plans — even if it’s just to work in the garden — interrupted by MS symptoms. I feel so blessed to have become connected to them so soon after moving here. Just like the residents of Kauai, the MS support group has shown me incredible kindness. When they say ‘Aloha,’ I feel it in my heart.�

Everyone is invited to join Scoggins and everyone else for an afternoon of fun, fellowship, and to help raise funds for the fight against MS.

ALDEN ALAYVILLA / CONTRIBUTED PHOTO

Mayor Bernard Carvalho Jr. presents the MS proclamation to Laurie Hokama, Mary Kay Hertog, Cindy Edralin, Corina Scoggins and Edna Bronzino announcing the MS Walk and Roll-Sunset Stroll, March 31 at 4 p.m. at the Kapaa Beach Park.

We Proudly Support the Walk

to End Multiple Sclerosis

GARY’S SERVICE, INC. CONNECT WITH OTHERS

 � �  �

Â?   Â

Bring in this coupon to

save $150 on your next  � � � �

Husqvarna Tractor or  ­ € € Zero-Turn Purchase!

‚

2 0 1 8 WA L K M S

Kauai Talk Story Group 1st Wednesdays of each month, 5:30 p.m-7:00 p.m. This group travels to different parts of the island.

Mary Kay Hertog and Laurie Nakama, Co-Facilitators.

Kauai Caregivers Talk Story Group This group meets based on participant availability and communicates regularly via email thread . For more info about this group, please call 800-344-4867.

Coupon Expires: April 30th, 2018 � ƒ „ … † Some restrictions apply.

2 • Wednesday, March 28, 2018

The National MS Society’s self-help, otherwise known as Talk Story Meetings, are groups for individuals with MS, their families, friends, and other care partners. Members gather regularly for the purpose of sharing common experiences and concerns, providing and receiving emotional support, and obtaining information.

nationalmssociety.org

nationalmssociety.org

electrical system

inspection • free battery test • alternator test • starter test

with oil & filter Change! exp: 4/30/18

4469 Kolopa St., Lihue (behind Home Depot)

Ph: 245-2221 • Fax: 246-9182 www.garysserviceinc.com License No. RD1908 2 0 1 8 WA L K M S

Wednesday, March 28, 2018 • 3

M

ore than 200 people are expected to raise more than $55,000 at Walk MS: Kauai on March 31 at Kapa’a Beach Park. Walk MS is an opportunity for people to come together with friends, loved ones and co-workers to fundraise, connect and advocate for people affected by MS. Each dollar raised is one step closer to the National Multiple Sclerosis Society’s goal – a world free of MS. Since its inception in 1988, Walk MS has cumulatively raised more than $1 billion.

“Walk MS is all about community – people coming together to raise money and show support for loved ones, colleagues and friends,” said Cyndi Zagieboylo, President and CEO of the National MS Society. “Funds raised have a direct impact in this community, for example – our MS Navigator program. MS Navigators are highly-skilled, compassionate professionals available to connect each person affected by MS to the resources and information they need to live their best lives.”

Multiple sclerosis attacks the brain and spinal cord, and it is the most common neurological disease leading to disability in young adults. The National MS Society is a gathering place for people with MS, their family and loved ones, healthcare providers, volunteers, donors,

fundraisers, advocates, community leaders and all those that seek a world free of MS. Sanofi Genzyme is the premier national sponsor of Walk MS. Biogen, Genentech and Novartis are national sponsors of Walk MS.

About Multiple Sclerosis

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are leading to better understanding and moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. MS affects more than 2.3 million worldwide.

For more information about multiple sclerosis and the National MS Society go to nationalMSsociety.org or call 800344-4867.

Call 855-372-1331 to register or visit walkMS.org to learn more.

TIRE WAREHOUSE KAUAI Passenger • Commercial • Off-Road Tires • Rims • Retreads

Complimentary boat tour for Kauai Residents with ID in 2017

Proudly Support the fight to cure Multiple Sclerosis!

Good

throug

h 12/3

1/16

Serving Kauai 43 Years THE TIRE DISCOUNT CENTER

for info, call or visit

.

WHEN: Walk begins at 4 p.m , 1 3 h rc Ma WHERE: ach Park Kapa’a Be MS? ing Why Walkelps fuel groundbreakanging h h Walk MS h and provide life-c MS researc those affected by MS mmuservices to ating a supportive cod ones through creds, families and love nity of frien ise and connect. who fund ra : ipate REGISTERalk near you, to partic, call w rg a .o S d n M To fi er, visit walk ingor to volunte331 or email fundrais -1 2 7 855-3 mss.org. support@n

Mon, Tues, Thurs, Fri 8am-5pm Wed & Sat 8am-1pm 3028 Aukele St, Lihue (Industrial Park II) www.tirewarehousekauai.com nationalmssociety.org

ISLAND WIDE ROAD SERVICE

245-6754

2 0 1 8 WA L K M S

• SHOCK ABSORBERS • BRAKES • FRONT END PARTS • WHEEL ALIGNMENT • MUFFLERS • SPLIT RIM • SAFETY CHECKS

Wednesday, March 28, 2018 • 1