Dandenong Journal Star - 17th April 2017

Page 1

17 April 2017

8

A Star News Group Publication

Carpet of crochet poppies for the fallen

SPORT

Rangers flying after strong start to season

Pedro battles on By Casey Neill Pedro Kalimnakis is one in 93.6 million - that’s four times the population of Australia. The Noble Park toddler was born blind, autistic and with a possible intellectual disability. He could start to lose his hearing from his third birthday, in six months. These are all symptoms of Norrie disease. Pedro is one of 400 people in the world with the genetic condition. Only 20 per cent of sufferers have the same severity. “He used to scream for hours upon hours,” mum Radmila Kalimnakis said of Pedro as a newborn. He wasn’t meeting his milestones but doctors dismissed their concerns. When he was eight weeks old Radmila and husband Peter took Pedro to the emergency room and soon found themselves at the Royal Children’s Hospital. Glaucoma had been causing pressure in Pedro’s eyes - that’s why he’d been crying out in pain. Both his retinas were detached and he had no light perception or vision. “He used to sleep all day long. He didn’t know night or day,” Radmila said. A blood test later confirmed Norrie disease. “That was the worst, worst case scenario. That was the worst possible disease he could have,” she said. Radmila was devastated to learn that she carried the disease, which is in the X chromosome. “I had no idea,” she said. Women have two X chromosomes, so Radmila’s body overlooked the faulty X and used the healthy one. Men have one X and one Y chromosome, so Pedro’s body couldn’t ignore the faulty gene. Against the odds he started walking in January and with intensive applied behaviour analysis (ABA) therapy at not-for-profit Abacus Learning Centre in Hastings, his vocabulary is growing. “He’s gone from being completely non-verbal to now being able to request items,” Radmila said. “I was overjoyed.” He’s mastering new tasks, like placing a block in a box, responding to the question ’what is your name?’ and transitioning between activities. Pedro’s autism makes him a fussy eater, so Radmila and Peter constantly struggle to boost

The swing is Pedro's favourite activity. 167072

Pedro on the new deck. 167072 his weight and keep him off a feeding tube. He was diagnosed as failure to thrive from an early age. He’s now learning to use a cane to increase his mobility. “We adore him,” Radmila said. “We’ll do whatever we can to make his life better.” That included reaching out to the Rotary clubs of Springvale and Noble Park.

Large steps created a dangerous entry from their home into their back yard. “We couldn’t afford to fix it,” Radmila said. “Pedro was getting more and more independent.” So the Rotarians paid for the materials to build a deck. “He can come outside and play here and we

SANDOWN NOW OPEN

don’t have to worry about him,” Radmila said. “They’ve been incredibly supportive.” Pedro will soon start in the Monash Special Developmental School (SDS) early education program. Radmila and Peter introduce him to different environments and experiences and celebrate every step forward.

SANDOWN VILLAGE, 831-837 PRINCES HWY, SPRINGVALE Phone: 8581 7510 12345726-16-17

Curtains Swags & Tails Holland Blinds Venetians Roman Blinds Vertical Blinds

25% Off

Stock Curtain Honey Comb Blinds Blind and Screen Fabrics Panel Glides Shutters Pelmets Motorised Outdoor Blinds & much more

217 PRINCES HWY, DANDENONG | sharonscurtains@bigpond.com | Ph: 9794 9205

Unbelievable. Sprinter Van from $42,990 Drive Away^.

• • Co • A APTIVE ESP 9i • C osswind Assi •

INTEGRITY HONESTY PRICE

12337583-LN04-17

12327237-ACM42-16

1126426-MB13-14

SERVICE QUALITY ADVICE

Belvedere Aged Care 41-43 Fintonia Rd Noble Park VIC 3174

Mercedes-Benz Berwick 518 Princes Hwy, Berwick. Ph: 03 8794 0900

LMCT578

^Drive Away price for standard specification new Sprinter Van 310 short wheel base manual, purchased and delivered between 1 January and 31 March 2017, unless extended. +Bluetooth is a registered trademark of Bluetooth SIG. Check the compatibility of your device at www.mercedes-benz-mobile.com

(03) 9574 1355 info@belvedere.com.au belvedere.com.au


Turn static files into dynamic content formats.

Create a flipbook
Issuu converts static files into: digital portfolios, online yearbooks, online catalogs, digital photo albums and more. Sign up and create your flipbook.
Dandenong Journal Star - 17th April 2017 by Star News Group - Issuu