SPOTLIGHT

system could change to suit their needs and improve their care.

The survey is based on the themes emergent from the research and following the focus groups further themes were included.

Those themes are familiar to those of us working in this field; including issues like clear care pathways and care coordination, improved communication, education and support for carers. What has stood out as well though is support for people to live well, for rehabilitation or enablement services and for information and advice on a wide range issues.

The focus groups also raised the need for support though transitions of care; especially from children’s to adult services and also the impact of stigma and disability on social isolation and loneliness. These are all huge themes some of which reach way beyond the scope of this work but are a crucial part of people’s wellbeing.

The survey –which launches this –week seeks to more fully understand these themes and importantly what needs to happen if we are to really transform the future for people living with neurological controls.

Please share this with as many people with a SCI as you can, so that we can gain insight from as many people as possible. We will be sending the survey out by email, if you would like more information please contact us on info@sisonline.org.

AUDREY BIRT Associate Director The ALLIANCE REBECCA DUFF Chair of Neurological Alliance of Scotland

If you want hear more please email audrey.birt@alliance-Scotland.org.uk