DIPEx Charity 2011 Annual Review

Annual Report 2011

The DIPEx Charity FC3

01 Chairman’s Message 02 Who are we 03 Highlights 04 Ann McPherson 05 Our future 06 Website Development 08 Health Experiences Research Group 09 The Oxford Health Experiences Institute 10 Fundraising 13 Collaboration with other organisations 15 Financial Statements to March 2011 16 Statement of financial activities 17 Balance sheet 18 Notes to the financial statements 21 Conditions covered by our websites 22 The DIPEx Charity

The DIPEx Charity FC1

Chairman’s message I am delighted to present the DIPEx annual report for the year ending March 2011.

This year is our 10th anniversary, celebrated in March at the Museum of London.

The past year has been one of considerable achievement but also one of great sadness. In May 2011, Dr. Ann McPherson, co-founder of the charity, died after living for the last years of her life, bravely and fully, with pancreatic cancer.

Ann was a remarkable ambassador for our work and campaigned tirelessly for recognition of the vital importance of people’s personal health experiences in the planning of future healthcare. As a GP for some 40 years, Ann was a visionary and was also keenly aware of how other people’s stories can provide great support to those facing significant health challenges. She is very much missed by her colleagues and her memory remains an inspiration to continued expansion of our activities and influence.

Much has been accomplished in this regard since our last report. We have added a further 9 conditions to our websites – Healthtalkonline and Youthhealthtalk – whose visitor numbers have almost doubled. We have created two new social networks where visitors can post their own experiences and engage in dialogue with others. In conjunction with the Health Experiences Research Group (University of Oxford), we are now recognised by NICE (National Institute for Health and Clinical Excellence) as a vital part of their care quality standards. Our international network continues to expand and now includes Israel and Canada.

In March, we celebrated the 10th anniversary of DIPEx with much-appreciated support from our patron, Hugh Grant, and long-term supporter, Jenni Murray.

The event was attended by some 300 people, including Secretary of State for Health, Andrew Lansley. We remain conscious of the wonderful support we receive from many people, notably our indefatigable patron, Jon Snow, who are willing to commit their time and energy to helping us place health experiences at the heart of 21st-century healthcare. Thank you.

Lord Stone of Blackheath

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Who we are Our two award-winning websites – Healthtalkonline and Youthhealthtalk – provide immediate access to video and audio clips of people’s personal experiences of over 70 health conditions, ranging from illness (cancer, heart disease, mental health) to non-illness related subjects (menopause, pregnancy, bereavement).

Who uses our websites

What we do The personal experiences published on our websites are based on detailed research undertaken by the Health Experiences Research Group at the University of Oxford.

Carefully selected samples of usually 40–50 people for each health condition are interviewed to obtain the widest range possible of individual experiences. People are typically interviewed in their own homes and, in the case of serious illness, the interviews cover subjects ranging from initial diagnosis through to symptoms, treatments and side effects. Interviews can last several hours and each is subsequently carefully analysed. Based upon this analysis 250–300 video/audio clips are published for a particular health condition, which highlight the key topics emerging from the breadth of interviews undertaken. In total, our websites contain the health experiences of over 2,500 people, illustrated with some 15,000 interview clips.

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In 2006, the distinct needs of young people were recognised with the launch of Youthhealthtalk, focusing on the experiences of 15–25 year olds. To date, we have completed young people’s research covering major topics such as depression, sexual health, weight problems and drugs & alcohol, in addition to teenage cancer, diabetes, long-term health conditions and epilepsy.

Over the past year, traffic to both sites has increased by almost 100 per cent with visitors totalling over 100,000 monthly. In addition, videos from our websites are being used increasingly in training programmes for health professionals and in schools and colleges.

Our primary aim is to help those – both young and old, from whatever ethnic background – who are dealing with challenges to their health. For new patients with no prior knowledge of a recently diagnosed condition, Healthtalkonline and Youthhealthtalk provide a lifeline to other people’s lived experiences. Going online to watch and listen to real people discuss their own health journeys can provide precious insights and help to alleviate fears. With knowledge comes power: well-informed patients are likely to be less anxious and more fully prepared for consultations with health professionals, while those who understand their treatment options and share in the decision-making process may feel more positive mentally and fare better physically. Not only patients benefit from published experiences: carers, friends and family members gain greater insight into the challenges they themselves face.

Highlights Highlights of the past year The charity has made significant progress over the past year. Highlights include: • Publication of new modules on the menopause, pancreatic cancer, young people and weight issues, psychosis, drugs & alcohol among young people, autism and clinical trials. This brings the total number of published conditions to sixty-five • Continued increase in the number of visitors to our websites which now number over 120,000 monthly.

A new visitor comes to our websites every 24 seconds • Publication of the first research module on ’Shared Decision Making’, funded by the Department of Health • Renewal of our certification under the Department of Health’s Information Standard • Creation of two new websites – MyHealthtalk and MyYouthhealthtalk – where growing communities of people provide feedback on their own health experiences and exchange these with others in similar circumstances • Significant increase in our presence on social networking sites, including Twitter and Facebook, reinforced by our monthly e-newsletter • Successful relaunch of Youthhealthtalk with a completely new design concept

Goals for the year ahead • Creation of the Youthhealthtalk Board, comprising volunteers who will guide our plans for greater engagement with young people, particularly the disadvantaged. The Board is supported by a full-time Youth Engagement Officer • Finalisation of the legal structure for DIPEx International with nine founding member organisations from across the world • Collaboration with the Royal College of GPs on the creation of e-learning materials (around experiences of autism)

We continue to have much work to do to achieve our charitable goals.

Over the next year, we plan: • To continue to increase the number of people coming to our websites.

Our near-term target is 200,000 visits monthly and 80 million hits annually • To build Youthhealthtalk into a strong voice for young people as they face health challenges often very different from the older population

• Creation of lesson plans for PSHE teachers, relating to ‘health, weight and body image’ and to ‘sex and relationships’

• To launch important new research modules on end-of-life care, infertility, breast cancer in men, Jewish health, young people and eating disorders and penile cancer

• Successful applications for grants from Comic Relief (eating disorders), LankellyChase (BME engagement) and the City Bridge Trust (traumatic injury)

• To complete the formation of DIPEx International with an independent Board and its own web presence (www.dipexinternational.org)

• Appointment of four new Trustees who bring much-valued experience to our plans for significant growth and expansion of activities over coming years

• To pursue expanding use of our materials in the development of healthcare delivery, including shared decision making and experience-led commissioning • To create an interactive learning and teaching web-based capability, enabling much greater use of our video/audio material for the training of health professionals, including both classroom and e-learning programmes • To expand our fundraising programme and facilitate initiatives related to expanded marketing and awareness programmes

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Ann McPherson Our co-founder, Ann McPherson, died on May 28 2011, aged 65, of pancreatic cancer. Many tributes have been written to commemorate her life and work. The following is taken from an obituary in The Lancet written by her husband, Klim McPherson, in June.

A career as a much sought-after carer of women in Oxford is not what general practitioner (GP) Ann McPherson might have predicted. She began life as the only daughter of secular Jews in Golders Green, London, children of eastern European immigrants. A bright post-war grammar school girl, Ann was one of only a few women at the time to study medicine at St George’s Hospital Medical School, where she startled her colleagues and teachers with her determination and spirit.

She excelled and was popular – busy with social, political, and academic activities alike when I met her first. Unpretentious, pretty, and vibrant, she came back to my flat with friends, spotted the unmade bed and promptly made it – wonderfully.

We next met on an anti-apartheid rally on her 21st birthday, sadly I missed the party. But we married in May, 1968.

After she qualified, Ann worked for Tom Pilkington, which was a formative experience; he emphasised the medicine, the evidence, and the importance of patients, while questioning the rest. She chose general practice despite ticking all the boxes for an academic clinical career. Ann trained at Caversham Practice in Kentish Town, then after a spell at Harvard in Boston, USA, we moved to live and work in Oxford. Prevented from sitting for MRCGP, Ann entered herself and came second. Rosemary Rue saved her spirit through support and training opportunities, while David Weatherall recognised her talents early and supported her ventures. Predictably, consultants were soon questioning her GP diagnoses. They quickly learned: Ann’s diagnostic skills became legendary. But it was more than getting that right that mattered; it was implementing the appropriate care path in an imperfect National Health Service. As one of the many tributes I received from her patients said: “She was a master at fighting on behalf of her patients, and the system soon learned to jump when she called.”

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We all did and Ann effortlessly combined her work with her family life. Ann was a truly wonderful wife and mum to our three children Sam, Tess, and Beth. Our children knew where they stood in Ann’s unremitting affections and interests and brooked no complacency. Now they have produced six grandchildren who love their granny dearly.

Ann was profoundly committed to demystifying medicine.

She published some 30 books, many for patients and others for physicians. The Diary of a Teenage Health Freak in 27 languages, which she wrote with Aidan Macfarlane, has sold more than 1 million copies. Women’s Problems in General Practice, co-authored with Deborah Waller, provided guidance to GPs (mainly then male) on this topic. The culmination of this commitment was the website she founded for patients, www.healthtalkonline.org. After the diagnosis of pancreatic cancer, Ann became a vocal campaigner for a change in the law to allow assisted dying for terminally ill patients and she set up and chaired Healthcare Professionals for Assisted Dying. Ann loved colour, in her clothes, garden, house, and in the mountains. Her garden is, as I look out, a tribute to that – glowing in beautiful variety. A friend told me after her death “In spite of her personal and professional achievements Ann remained herself, with her modesty, humanity, and not least her humour.” To this tribute I would add generosity.

Our future Patient experiences are increasingly at the heart of healthcare planning.

Our goal is to ensure that this trend continues, commencing with the training of health professionals.

Our vision The database of personal health experiences that has been created over the past 10 years is now increasingly recognised as a vital and robust source of information to guide health care and health care policies.

The National Institute for Health and Clinical Excellence (NICE) has incorporated materials on Healthtalkonline into its guidelines for patient care. Dialogue with health authorities is underway to look at new commissioning models which are ‘experience-led’ through better understanding of how patient experiences are affected by service delivery. We believe that, in future, the training of health professionals will include personal health experiences as a core part of the teaching curriculum.

Notwithstanding our aims to engage more closely with health services, our overriding mission remains that of supporting those having to deal with major health problems.

Through our websites, we ensure that the work of the Health Experiences Research Group is freely accessible to all. And in conjunction with the Research Group, we are participating in a major project funded by the National Institute for Health Research (NIHR) to better understand how people use and benefit from health-related websites, particularly with reference to the impact of viewing others’ health experiences.

Over the next 1–2 years, we shall work with colleagues worldwide to complete the establishment of DIPEx International and expand its reach into new territories, most notably the USA, China and South Asia.

The clear benefits of Healthtalkonline and Youthhealthtalk to patients, family friends and carers has led us towards the creation of online communities. Here people can share their own experiences, gain support and guidance in discussion forums and learn how the path followed by others can support their own personal healthcare decisions.

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Website development Over the last year, we have continued to invest heavily in our websites – Healthtalkonline and Youthhealthtalk – to ensure they meet the highest standards of visual quality, ease of navigation and usability. We have added two social networking sites – MyHealthtalk and MyYouthhealthtalk – to our online resources.

We are planning further major developments over the next two years to integrate new features such as interactive e-learning and online evaluation programmes.

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Healthtalkonline

Youthhealthtalk

Performance

Healthtalkonline is now established as the definitive source of information on personal health experiences. We have completed research into some 65 conditions, covering a wide range of serious illnesses and other subjects which have a major impact on our health, such as menopause, pregnancy and bereavement.

The breadth of experiences covered for each condition resonates particularly with those using the website who feel isolated and alone. Our establishment of MyHealthtalk, where users of Healthtalkonline can join communities and post their own experiences, has confirmed the importance of sharing experiences with others when facing major health challenges.

The design of Youthhealthtalk was completely revamped last year, in conjunction with our young people’s Board. We completed new conditions relating to Health & Weight and Drugs & Alcohol and set up MyYouthhealthtalk where young people exchange stories about health issues.

The 70% increase in visitor numbers over the past year has reflected growth not only in the UK but also overseas – USA, Germany, Russia, China, Japan and Australia – from where we receive a significant number of visitors every month.

Healthtalkonline has gone through a number of design revisions to enhance the user experiences and make it much easier to find what’s relevant. For new conditions, we now include short montages of people speaking about different aspects such as diagnosis, treatment and recuperation, enabling visitors to judge whether they wish to dig deeper into particular areas of concern.

Through the appointment of a Youth Engagement Officer, we are now promoting Youthhealthtalk more effectively and making video materials available to support groups, teachers/ lecturers and other charities and websites.

We used material from Youthhealthtalk to create learning plans on the subjects of ‘Sex and relationships’ and ‘Health, Weight and Body Image’. Publication next year of new conditions, including eating disorders, will complete in-depth research into the major health issues that are of concern to young people.

We have made it much easier for Healthtalkonline and Youthhealthtalk to be found via search engines which now account for over 40% of our website traffic. We continue to link with websites relevant to each condition and have created short videos that can be hosted on other websites to signpost people to our sites.

Over the next 12 months, we shall be expanding the functionality of our websites to include an interactive Learning & Teaching area, closer integration with social networking sites (Facebook/ Twitter), including our own, and online evaluation programmes to provide immediate feedback on visitors’ use of our sites. Additionally, we are investigating, particularly for young people, the development of mobile ‘phone and tablet applications to expand our reach to those with limited access to PCs.

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Health Experiences Research Group The Health Experiences Research Group, University of Oxford, uses in-depth qualitative research to understand the full breadth of personal experiences related to a particular illness or health condition.

Research methodology

Research funding

Typically, between 40 and 50 people are interviewed for each health condition.

Each conversation is filmed or audiorecorded and can last up to three hours.

From this footage, individual video clips ranging from one to three minutes in length are selected to highlight the 25–30 key topics emerging from the research.

For each condition around 250–300 video clips are collated in total for publication on our websites. For our adult studies, interviews are held with people aged 16+ from a wide range of backgrounds.

For Youthhealthtalk, we interview young people from the age of 10.

The work of the Health Experiences Research Group – www.herg.co.uk – is funded mainly by grants received from statutory bodies, including the Department of Health, the National Screening Committee and the National Institute for Health Research (NIHR), Research for Patient Benefit, and from charities including ICNARC, Arthritis Research UK and Marie Curie. Detailed proposals on the topics to be researched are submitted through competitive research funding programmes.

Our qualitative, social science research methods provide a high quality, evidencebased approach to patient experience.

Not only do Healthtalkonline and Youthhealthtalk studies focus on the individual patient’s perspective, they also encompass the impact of an illness upon a patient’s friends, carers and family.

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In conjunction with the DIPEx charity, more than £7.5 million of funding has been raised for our health experiences research over the past 10 years, including almost £2 million in funding from the Department of Health. It is this considerable financial input that has enabled research in such depth into major health conditions including cancer, heart disease, mental health and neurological conditions, studies of health related issues such as pregnancy, caring and

bereavement and research on young people’s health, including teenage cancer, epilepsy, diabetes and sexual health.

An NIHR Programme grant held by HERG is exploring the health impact of access to patients’ experiences online which will provide key evidence for the work of DIPEx. A list of recent papers by the Health Experiences Research Group is available at www.herg.co.uk.

The Oxford Health Experiences Institute Further progress has been made to establish the world’s first Health Experiences Institute at the University of Oxford.

Further progress has been made to establish the world’s first Health Experiences Institute at the University of Oxford.

Plans for the proposed Oxford Health Experiences Institute continue to move forward. The Department of Primary Health Care, University of Oxford, and Green Templeton College are now working in conjunction with the DIPEx Charity to establish the Institute as a major force in the academic study and dissemination of personal experiences of health issues and illness.

The creation of the Institute will provide greater opportunity for collaboration between research partners within the University of Oxford. The Institute will enable the development of new interdisciplinary work programmes, including methodological experimentation with combined quantitative and qualitative approaches.

The Institute will also provide within the University of Oxford an international forum for innovative research and teaching on people’s health experiences. It will serve as a centre for international academic exchange and joint international research with other social science and humanities disciplines that share an interest in experiences of health and illness.

The Institute will exemplify the University of Oxford’s commitment to innovative research with demonstrable public benefit. The DIPEx Charity will, through its websites, play a key role in the public dissemination of such research and engagement with professional bodies.

No academic centre in the world can currently bring together such a broad range of disciplines and leading research centred on patient experience as that proposed by the Institute. The University of Oxford is uniquely placed to create the benchmark by which the quality and benefit of all other health experience research is measured.

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Fundraising As a non-profit organisation without statutory core funding, we rely upon external grants and donations.

The majority of charity funding (over 80%) derives from grant applications made in conjunction with the Health Experiences Research Group. These applications – made either through the University of Oxford or via the DIPEx charity – are focused on financing research into new health conditions, each of which costs approximately £150,000 to complete.

Over the past 10 years, some £6 million has been raised jointly to fund the research completed to date.

Our planned website developments will enable us to promote more effectively the licencing of video and audio clips for teaching and not-for-profit purposes. We have been successful with a number of teaching organisations, including e-Learning for Healthcare, but there is scope for creating more widespread use. We shall also pursue licensing opportunities created by new structures in healthcare delivery, including commissioning.

Recently, the charity has hired a part-time fundraiser to assist in obtaining grants and donations to support non-research related activities. These include new website developments (including our social networks), new charity posts (e.g.

Youth Engagement Officer), young people initiatives (films, youth ambassadors) and learning/teaching packages, both lesson plans and e-learning programmes. We also spend significant sums on promoting the publication of new conditions through launch events, press/media coverage and mail shots.

Mile of £’s Appeal

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In March 2011, Hugh Grant and Ann McPherson (our co-founder) launched the ‘Mile of £’s’ Appeal at our 10th anniversary event. Our goal is to raise £75,000 to support various of the initiatives outlined above. We are grateful to all who helped to make the anniversary event such a success, including chair Jenni Murray (broadcaster), Andrew Lansley (Secretary of State for Health), Clare Gerada (Chair of the Royal College of GPs) and Mike Richards (National Cancer Director).

We have received tremendous encouragement from our many supporters over the past year. Many of our launches are attended or chaired by people with particular knowledge of the condition in question and we have also received assistance in the form of video introductions from celebrities, including those directly affected by a major illness.

Thank you to all.

We should like to express our particular gratitude to Hugh Grant who personally funded research into experiences of pancreatic cancer which was launched alongside our anniversary event in March 2011.

If you would like to assist us or simply receive more detailed information on our activities and how you might help, please contact Graham Shaw, Chief Executive, at DIPEx on 01865 201330.

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Collaboration with other organisations Through our close collaboration with the Health Experiences Research Group, University of Oxford, DIPEx continues to work with a wide range of organisations who support the need to research and publish personal health experiences.

Over the past year, we have received support from the Department of Health, the National Institute for Health Research (Research for Patient Benefit), ICNARC (Intensive Care National Audit & Research Centre) and the Oxford Biomedical Research Centre. We are currently working on projects funded by Comic Relief (eating disorders in young people), Marie Curie Cancer Care (end of life carers) and by the City Bridge Trust (acquired disability in London). We have also received funding from the LankellyChase Trust related to black and minority ethnic awareness programmes.

We are working with other charities and support organisations to make samples of our clips available for use on their websites. We are also increasing educational contacts with schools and colleges/Universities. We have created personal experience films for police training (bereavement and drugs/alcohol).

We are deeply grateful to all organisations and individuals who have provided financial support for our work.

We have continued to work with e-Learning for Healthcare on the use of our videos in e-learning programmes and have supplied a large number of video clips to teaching organisations and individuals across the country. We are also working increasingly with support organisations and websites for young people, including FRANK (advice on drugs), B-eat and jimmyteens.tv.

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I am just writing to thank you very much for the extremely helpful and very informative information you give on your website. The doctors’ talks were extremely helpful and reassuring, as well as various ladies’ comments on how they felt. I can now go to my surgeon’s appointment not feeling helpless and stupid and just having to ‘put up with’.

Now I can ask ‘proper’ questions and get the right answers for me.

Fran Eley

DIPEx Financial Statements to March 2011

The following financial statements are drawn from our full annual financial statements, relating to the Statement of Financial Activities and Balance Sheet.

The full annual financial statements have been audited by Mercer Lewin Ltd, Chartered Accountants, and an unqualified opinion has been given.

A copy of our full annual financial statements can be downloaded from www.healthtalkonline.org or by writing to: The Secretary DIPEx PO Box 428 Witney Oxon OX28 9EU

INDEPENDENT AUDITORS STATEMENT TO THE TRUSTEES OF DIPEx We have examined the summarised financial statements for the year ended 31 March 2011 set out on pages 16 to 20.

Respective Responsibilities of the Trustees and the Auditor The Trustees are responsible for preparing the summarised financial statements in accordance with applicable United Kingdom Law and the recommendations of the Charities SORP.

Our responsibility is to report to you our opinion on the consistency of the summarised financial statements with the full annual financial statements and the Trustees’ report.

We conducted our work in accordance with Bulletin 2008/3 issued by the Auditing Practices Board.

Opinion In our opinion the summarised financial statements are consistent with the full annual financial statements and the Trustees’ Annual Report of DIPEx for the year ended 31 March 2011.

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Statement of financial activities (incorporating the income and expenditure account)

Year ended 31 March 2011

Note

Unrestricted funds £

Restricted funds £

Total funds 2011 £

Total funds 2010 £

Incoming resources Incoming resources from generating funds: Voluntary income

2

42,499

10,000

52,499

87,344

Investment income

3

54

–

54

67

Incoming resources from charitable activities

4

247,389

18,521

265,910

173,359

Total incoming resources

289,942

28,521

318,463

260,770

5/6

(335,148)

(30,316)

(365,464)

(302,399)

7

(6,227)

–

(6,227)

(9,445)

Total resources expended

(341,375)

(30,316)

(371,691)

(311,844)

8

(51,433)

1,795

(53,228)

(51,074)

Total funds brought forward

239,286

20,316

259,602

310,676

Total funds carried forward

187,853

18,521

206,374

259,602

Resources expended Charitable activities Governance costs

Net outgoing resources for the year/ Net expenditure for the year Reconciliation of funds

The Statement of Financial Activities includes all gains and losses in the year and therefore a statement of total recognised gains and losses has not been prepared.

All of the above amounts relate to continuing activities.

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Balance sheet

31 March 2011

Note

2011 £

£

2010 £

£

2,831

4,569

Fixed assets Tangible assets

10

Current assets Debtors

11

67,629

10,848

Cash at bank

322,060

442,692

389,689

453,540

(186,146)

(198,507)

Creditors Amounts falling due within one year

12

Net current assets

203,543

255,033

Total assets less current liabilities

206,374

259,602

Net assets

206,374

259,602

Funds Restricted income funds

13

18,521

20,316

Unrestricted income funds

14

187,853

239,286

Total funds

206,374

259,602

These financial statements have been prepared in accordance with the special provisions for small companies under Part 15 of the Companies Act 2006.

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Notes to the financial statements – year ended 31 March 2011 1. Accounting policies Basis of accounting

Resources expended

The financial statements have been prepared under the historical cost convention and in accordance with applicable United Kingdom accounting standards, the Statement of Recommended Practice “Accounting and Reporting by Charities” issued in March 2005 (SORP 2005) and the Companies Act 2006.

Liabilities are recognised in the period in which the obligation arises. The direct costs of researching and producing the modules and the costs of the research office are included within direct charitable expenditure. The costs of the administrative office and maintaining the whole website are shown as support costs.

All legal, professional, audit and accountancy costs are included within governance of the charity.

Cash flow statement The trustees have taken advantage of the exemption in Financial Reporting Standard No 1 (revised) from including a cash flow statement in the financial statements on the grounds that the charity is small.

Fixed assets Items of equipment in use on the DIPEx offices are capitalised.

All fixed assets are initially recorded at cost.

Grants

Depreciation

Grant income is credited to the statement of financial activities at the time it is due to be received to the extent that it is matched by relevant expenditure. Grant income intended to fund expenditure in future periods is treated as deferred income.

Depreciation is calculated so as to write off the cost of an asset, less its estimated residual value, over the useful economic life of that asset as follows:

Fund accounting The charity receives grants towards the production of certain modules. Only in those instances where the donor specifies that the grant be returned should the module not be produced are the grants included within restricted funds.

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Equipment – Three years

2. Voluntary income

7. Governance costs

Unrestricted

funds

Donations

42,499

Restricted Total funds funds 2011 £ £

10,000

52,499

Total funds 2010 £

87,344

3. Investment income Unrestricted

funds

£

Bank interest receivable

Total funds 2011 £

Total funds 2010 £

54

67

54

4. Incoming resources from charitable activities

Unrestricted funds £

Restricted funds £

Total funds 2011 £

Total funds 2010 £

Comic Relief – Gift aid 599 Other grant income 246,790

18,521 – –

18,521 599 246,790

53,688 28,530 91,141

18,521

265,910

173,359

247,389

5. Costs of charitable activities by fund type

Unrestricted funds £

Restricted funds £

Total funds 2011 £

Total funds 2010 £

Module costs Support costs

164,358 170,790

– 30,316

164,358 201,106

155,327 147,072

335,148

30,316

365,464

302,399

Unrestricted

funds

£ £

Total funds 2011 £

Total funds 2010

Audit fees Legal fees

2,476 3,751

2,476 3,751

2,013 7,432

6,227

6,227

9,445

2011 £

2010 £

Depreciation Auditors’ fees

1,738 2,476

387 2,013

2011 £

2010 £

Wages and salaries Social security costs

48,066 4,690

31,875 3,351

52,756

35,226

8. Net outgoing resources for the year this is stated after charging:

9. Staff costs and emoluments – total staff costs were as follows:

No remuneration was paid to any trustee during the current or previous year.

Particulars of employees: the average number of employees during the year, calculated on the basis of full-time equivalents, was as follows:

2011 No

2010 No

Full time permanent staff

2

1

6. Costs of charitable activities by activity type

Module costs

Activities undertaken directly £

Support costs £

Total funds 2011 £

Total funds 2010 £

164,358

201,106

365,464

302,399

No employee received remuneration of more than £60,000 during the year (2010 – Nil).

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10. Tangible fixed assets

Equipment

Cost

£

At 1 April 2010 and 31 March 2011

5,213

13. Restricted income funds

Balance at 1 Apr 2010 £

Incoming resources £

20,316

28,521

Specific module grants/donations

Depreciation At 1 April 2010 Charge for the year

644 1,738

At 31 March 2011

2,382

Net book value At 31 March 2011

2,831

14. Unrestricted income funds

At 31 March 2010

4,569

Balance at 1 Apr 2010 £

General funds

239,286

11. Debtors

2011 £

2010 £

Trade debtors Other debtors Prepayments

50,225 – 17,404

7,850 35 2,963

67,629

10,848

Outgoing Balance at resources 31 Mar 2011 £ £

(30,316)

18,521

Where donations to fund modules have conditions attached which specify that funds should be returned to the donor in the event of them not being spent on the module concerned these amounts are included in a restricted fund.

Incoming resources £

Outgoing Balance at resources 31 Mar 2011 £ £

289,942 (341,375)

187,853

15. Analysis of net assets between funds

12. Creditors: Amounts falling due within one year

2011 £

2010 £

Trade creditors PAYE and social security Deferred grant income Accruals

3,296 2,461 137,932 42,457

12,562 1,290 177,965 6,690

186,146

198,507

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Net current assets £

Total

Restricted income funds: Specific module grants/donations Unrestricted income funds

18,521 187,853

18,521 187,853

Total funds

206,374

206,374

£

16. Company limited by guarantee The company is limited by guarantee and does not have a share capital. The members undertake to contribute to the assets of the company, in the event of it being wound up, a sum not exceeding £1 each.

Please see www.healthtalkonline.org for more detailed information about our patrons, trustees, charity staff and researchers.

Contact:

Patrons:

Supporters

The DIPEx Charity PO Box 428 Witney Oxon OX28 9EU T: 01865 201330 E: info@dipex.org.uk

Hugh Grant Jon Snow Lord Turnberg Professor Sir David Weatherall

Jenny Agutter Clive Anderson Professor John Bayley Professor David Blake Lord Bragg Dame Fiona Caldicott Sir Iain Chalmers Tom Deacon Lynne Faulds-Wood Sir Ranulph Fiennes Dawn French Sir Charles George Mel Giedroyc Hugh Grant Sir Muir Gray Dr Mark Hamilton Claudia Hammond John Humphrys Virginia Ironside Tom Isaacs Ian McEwan Dr Jonathan Miller Jenni Murray Michael Palin Dr Mark Porter Terry Pratchett Philip Pullman Libby Purves Kathryn Rayward Jon Snow Barbara Thompson Polly Toynbee Geoff Watts Anthony Worrall Thompson

Graham Shaw Chief Executive The DIPEx Charity T: 01865 201330 E: graham.shaw@dipex.org.uk www.healthtalkonline.org www.youthheallthtalk.org DIPEx is a company limited by guarantee No: 4178865 Registered charity number: 1087019 Registered Office: 41 Cornmarket St, Oxford OX1 3HA

Trustees: Lord Stone of Blackheath (Chair) Julia Cartwright Timothy Copestake Pauline Droop Simon Hall Dr Andrew Herxheimer Fred Hucker Dr Judy Kane Dr Jane Kirk Mike Russell

Board for Youthhealthtalk: Gemma Badrick Clair Cobbold James Dickety Katrina Fordwor Caroline Holroyd David Lewis Sophie Longton Sheila Lumley Megan McGregor Kate Pilkington Gemma Stairs

Donors: April 2010 – March 2011 The Mishcon Family Charitable Trust Dr. A. Herxheimer The Boutell Bequest Doris Field Charitable Trust Hugh Grant The Batchworth Trust The Souldern Trust Mr. Peter Ratcliffe J S Kroll Richard Taylor Ingrid Broad Judy and Andrew Silver Mr. M. Helfgott The LankellyChase Foundation Dr. Pamela Pilkington Stephenson Harwood Adah Kay The Sir Jules Thorn Charitable Trust Joffe Charitable Trust Mrs J. Flemming Mr. Tim Garden Robert and Frances Campbell Mr & Mrs JA Pye’s Charitable Settlement Lord Alliance The Souldern Trust Mrs P M Ingram Lion Television Christine Stirton Third Eye Dr Jackie Maxmin P A Clifton Mr J Woodcock Mr & Mrs Gibbon Jill Slotover

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The DIPEx Charity 6

Healthtalkonline is an extremely important and rare resource for anyone coping with an illness or a condition who wants reliable, first-hand information based on personal experiences, of treatment choices and support. The site provides unique insight into what it is like to undergo treatments for conditions, such as heart disease, to what it’s like to be a carer of someone with dementia. It is packed full of practical advice for patients, families and healthcare professionals and offers potentially vital reassurance to everyone.

Professor Dame Sally C. Davies, Chief Medical Officer and Chief Scientific Advisor

Healthtalkonline provides crucial patient-generated information about health care and services specific for individual diseases. Access to such patient experiences is invaluable for other patients but also serves to provide important insights for doctors in training and medical students. It allows us to reflect on medicine from the patient’s viewpoint, an essential element for improving clinical practice.

Professor Sir John Bell FRS, PMedSci Regius Professor of Medicine, University of Oxford

FC2 The DIPEx Charity