The Gift of CJ

A Journey of Love and Resilience

Cheri and Randy Riemer, who live in Haslett, MI, found their lives forever transformed by the arrival of their only son, CJ. His life began not with the simplicity of a newborn’s coos but with a diagnosis that shaped their path as parents in unexpected ways.

As CJ entered the world, Cheri felt a wave of love and joy. But shortly after his birth, a pediatrician visited their hospital room with a grave expression. “We think your son has severe neurological problems,” she stated nervously. Cheri and Randy exchanged concerned glances, wondering what this could mean.

When the doctor continued, “We think he has Down syndrome,” a mix of confusion and reassurance washed over Cheri. A sudden laugh almost escaped her. Down syndrome, she thought, is not a severe neurological issue; it’s a genetic condition caused by an extra copy of chromosome 21.

At that moment, Cheri instinctively wanted to reassure the pediatrician. She understood the challenges that lay ahead but also knew the depth of love she and Randy felt for CJ. They had heard stories about children with Down syndrome and seen the joys and struggles of families navigating similar paths. One nurse, sensing their uncertainty, offered comfort: “You’ve received a joyous gift from God,” she said. Cheri held onto that sentiment, ready to embrace the journey ahead.

As CJ grew, the family learned more about his unique needs and capabilities. Cheri and Randy understood that Down syndrome is not a barrier but a different way of experiencing life. They had heard the statements from well-meaning friends and family: “He won’t be able to do this” or “You should prepare for that.” Instead of succumbing to doubts, the couple adopted a different approach: They cultivated an environment that fostered CJ’s abilities, refusing to let limitations define him.

In 2019, CJ received a weather station for Christmas, and his fascination with clouds and meteorology grew. During the COVID-19 shutdown, CJ, now a bright and energetic teenager, started to show an unexpected passion for daily weather reporting. Cheri and Randy realized they needed to keep him engaged, especially with the challenges of online learning. So, they devised a plan. Every day, CJ created a weather report, using an outline he helped create. The reports evolved beyond mere forecasts, incorporating themes, dances, and guest appearances.

As CJ shared his findings online, his passion blossomed into a social media phenomenon. The WCJR Weather platform amassed 2,500 followers, and CJ became a local celebrity, bringing joy to many during uncertain times. Since its inception on April 13, 2020, he has not missed a single day of reporting.

In May 2023, CJ graduated from high school with a certificate of completion, marking a significant milestone in his life. He enrolled in the Skills for Adult Independent Living (SAIL) program, designed to equip young adults with essential life skills. Here, he participated in morning meetings, learned to cook, and practiced budgeting and financial management. His experiences extended to job placements in the community, where he gained hands-on experience at the YMCA, a technology center, and even an animal shelter. A paid work experience at a local bowling alley became a cherished opportunity, showcasing his ability to engage with the world around him.

Raising CJ was not without numerous challenges for Cheri and Randy, even though they took a positive approach to his diagnosis. Communication proved to be a significant hurdle for CJ. While he expressed himself with enthusiasm, the nuances of language often eluded him. They focused on teaching him the WH questions—who, what, when, where, and why—recognizing that these skills would aid in his communication development. It became a family project, one where patience and perseverance were key. Cheri and Randy reassured CJ that they wanted to understand him and encouraged him to try again when he struggled to convey his thoughts. Many people weren’t patient with him, and this was discouraging for both CJ and his parents. CJ continues to struggle with the WH questions which is not uncommon. We keep working on it.

Still, there were many moments when CJ exceeded everyone’s expectations. Cheri remembered the moments of doubt when she was told he might not walk until the age of three or four. With dedication and playful encouragement, he surprised them all by taking his first steps at just 15 months.

Cheri and Randy enrolled CJ in PEAC bike riding classes, where instructors assessed his balance and helped him find his confidence. In no time, he was riding a bike, joy radiating from his beaming face. The family learned that sometimes, a little external encouragement could work wonders.

One summer, CJ expressed a desire to surf behind the family’s boat. Cheri and Randy hesitated, worried that he lacked the strength and balance needed. But one sunny afternoon, Cheri got in the water with him, guiding him gently as he rose up on the surfboard, his laughter echoing in the air. They realized once again that assumptions

can limit possibilities. CJ’s triumph reinforced their belief that he should never be placed in a box; he is capable of so much more than others may perceive.

The Riemer’s family motto, “Don’t lower the standard for CJ; let’s find a different way to help him reach it,” echoes in their minds as they navigate the world together. They refuse to back down in the face of challenges, embodying a spirit of resilience. Repetition has become their friend, a tool to reinforce learning and communication. Each small success builds upon the last, weaving a tapestry of progress.

Cheri and Randy embrace the importance of community in their journey. They actively participate in local organizations, including the Capital Area Down Syndrome Association and the Special Olympics of Michigan. CJ joined the MSU Special Olympics teams for basketball and football, where he finds camaraderie and joy. These experiences expand his social circle, introducing him to others who understand his journey.

As the Riemers engage with their community, they notice how perspectives shift. They find themselves in conversations with other parents navigating similar challenges, exchanging insights and offering support. Cheri often tells them, “Get involved. Talk to other parents. Look for local organizations that can help.” The connections they forge become lifelines, reminding them that they are not alone.

The family’s leisure time has adapted to ensure CJ’s inclusion. They find joy in activities that can accommodate everyone. From biking to water sports, each adventure becomes a celebration of togetherness. Cheri and Randy introduced CJ to extreme tubing, surfing, and paddleboarding—activities that ignite his adventurous spirit. Even family travel is an opportunity for growth, exploring new places while fostering connections. Cheri often reflects on the transformative power of her family’s journey. “Learn to take a break and return to the challenges,” she tells herself. “Never give up.” It’s a philosophy that permeates their lives, reminding them that the hard work they invest yields incredible rewards. The moments of laughter and connection overshadow the struggles, creating a rich tapestry of memories.

As the years pass, CJ continues to evolve. His involvement in community initiatives has expanded, and he has become a valued participant in local events. The family remains active in their New Hope church community, where they find support and friendship. Cheri and Randy recognize that their focus has shifted since CJ’s arrival. They seek ways to give back and support causes that resonate with them, creating a ripple effect of positivity.

One day, while attending a community event, Cheri met a mother whose child had just received a diagnosis similar to CJ’s. The mother’s eyes were filled with uncertainty and fear, and Cheri felt a rush of empathy. She shared her journey, explaining the beauty that lies within the challenges. “Your child is a unique individual,” she assured the mother. “Embrace their gifts and don’t let others define their potential. You’ll find a community of support, and you’ll learn so much about resilience and love.”

At that moment, Cheri realized the importance of sharing her family story. By opening up, she could inspire others to embrace their journeys with hope and determination. The lessons her family learned over the years are universal, and they resonate with anyone facing adversity.

As CJ prepares for the next chapter of his life, he remains hopeful and excited. The SAIL program has equipped him with invaluable skills, and his dedication to daily weather reporting continues to inspire others. Cheri and Randy stand by his side, ready to support him as he ventures into adulthood.

The family understands that life will always present challenges, but they face them together. They cherish every milestone, every laugh, and every tear shed along the way. CJ is not defined by his diagnosis; he is defined by his spirit, his laughter, and his unwavering determination.

Cheri and Randy know that as long as they stand together, they can face any storm. And as CJ continues to shine brightly, they embrace each moment, knowing that their story is one of triumph and hope—a story that will inspire others to see the beauty in the journey, no matter the obstacles they face.