NOVEMBER 2026
INDY
meet TEAM LAYLA!
RACING BACK TO HER DREAMS
Caring for your family,
like they are our own.
A Mother’s Promise was founded on a deeply personal promise. Our founder, DeAndra Dycus, made a commitment to her oldest son following a life-changing injury—that she would be everything he needed her to be. That promise led her through many challenges, including navigating complex in-home support systems and care options. Through those experiences, she gained firsthand knowledge, resilience, and a passion for helping others facing similar journeys. In September 2022, DeAndra turned that promise into purpose by opening the doors of A Mothers Promise Home Care Services. Today, AMPHCS is proudly certified in the state of Indiana, providing compassionate and reliable services in home care, non-emergency medical transportation, and mental health waiver support programs. We are committed to growing our impact and continuing to serve individuals who are aging or living with disabilities—with dignity, compassion, and excellence.
This is our promise.
463-201-9249 • amotherspromisehcs.com •
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November 2026
November 2026
CONTENTS 4
Meet the Uniquely You Team!
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Important Phone Numbers
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Your Story Matters!: Meet Team Layla
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Partner Spotlight: Best Buddies: Walking Together, Changing Lives
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“We Go Together”: A Lifetime of Inclusion
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Nonprofit Spotlight: The Hope House
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When Waiver Funding Is Lost, So Much More Is at Risk
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Single Mamas Seen: Grateful…Yet, Still Tired
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Authentically You
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Preferred Partners
Uniquely You Indy
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Meet the Uniquely You Team! Publication Staff
Jamie Olson PUBLISHER AND AREA DIRECTOR
Christia Woodford CONTENT MANAGER, PUBLISHING ASSISTANT AND LOCAL EVENTS
Christina McGairk EDITOR-INCHIEF
Dr. Darolyn “Lyn” Jones CONTENT COORDINATOR AND WRITER
Zachary Curtis COMMUNITY ENGAGEMENT
Paul Mycraft COMMUNITY ENGAGEMENT
Lisa Jegen UNIQUELY YOU MAGAZINE IN NORTHWEST INDIANA
Staff Writers and Contributors
Paul Hathcoat
Lindsey Watson
Tanya Sood
Dorie Zipperle
Debra Bader
Jessica Willits
Andy Fitzenrider
Francisco ‘Jay’ Javier Luna, Jr.
Coleson Henry
Kelsey Amos
Marissa Pangle
Leonard Tunstall
Photographers
Katie Mendez PHOTOGRAPHY
Angela Tarr FINE ART & PHOTOGRAPHY
OWNER/ ADVERTISING INQUIRIES
Jamie Olson jamie.olson@n2co.com 248-882-8448
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FROSTED DESIGNS PHOTOGRAPHY
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Special Needs Planning & Elder Law Attorney
Here to help you put plans in place to give you peace of mind. Elizabeth A. Homes is a special needs planning and elder law attorney. She has been licensed and practicing law since May of 2014. Her practice at the Law Office of Elizabeth A. Homes LLC is focused on Special Needs Planning, Guardianships, Elder Law, Estate Planning, and Probate Work. This includes Wills, Powers of Attorney, Advanced Directives, Trusts, Trust Administration, Medicaid Planning, Special Needs Planning, Guardianship, and Probate. She is admitted to practice law in the State of Indiana. We ask "What If?" so you don't have to ask "What Now?"
Elizabeth A. Homes, Esq., MBA ehomeslaw.com | 317-660-5004 elizabeth@ehomeslaw.com 9245 N. Meridian Street, Suite 301, Indianapolis, Indiana 46260
Uniquely You Indy
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IMPORTANT PHONE NUMBERS UNIQUELY YOU! MAGAZINE AREA DIRECTOR
Jamie Olson 248-882-8448 jamie.olson@n2co.com
317-426-7733 317-977-2375 317-676-4222
n2co.com Celebrate. Connect. Impact. © 2026 The N2 Company, Inc. DISCLAIMER: The articles and opinions expressed in this publication are those of the respective authors and do not necessarily reflect the views of The N2 Company d/b/a Uniquely You (“N2”). Advertisements appearing in this publication are paid placements and are not endorsed or recommended by N2. N2 is not responsible for the statements, opinions, or business practices of any authors, contributors, or advertisers featured herein. Portions of this publication may include content created with the assistance of artificial intelligence (AI) tools by authors or contributors and may not be independently verified by N2. We are proud to feature businesses that share our commitment to showcasing local connections. Please note that businesses profiled may have provided free products and/or services for the review. Uniquely You is for general informational and entertainment purposes only and is not intended to provide medical, therapeutic, educational, or legal advice. Always consult qualified professionals regarding the care and support of individuals with disabilities. NOTE: When community events take place, photographers may be present to take photos for the event, and they may be used in this publication.We are proud to feature businesses that share our commitment to showcasing local connections. Please note that businesses profiled may have provided free products and/ or services for the review. Uniquely You is for general informational and entertainment purposes only and is not intended to provide medical, therapeutic, educational, or legal advice. Always consult qualified professionals regarding the care and support of individuals with disabilities. NOTE: When community events take place, photographers may be present to take photos for the event, and they may be used in this publication.
800-609-8448 877-241-8144 800-545-7763 800-545-7763
800-622-4968 888-673-0002 800-403-0864 317-232-7800 317-925-7617 877-511-1144 317-466-1000 911 800-545-7763 317-232-0570
844-323-4636 317-233-4454
317-232-7770 812-855-6508 317-233-1325 844-446-7452 855-641-8382 800-332-4433 800-457-4584 317-232-7770 988 800-772-1213 800-772-1213 877-851-4106 317-871-4032 800-545-7763
Ability Allies of Indiana https://abilityallies.org/ Arc of Indiana www.arcind.org Autism Community Connection www.autismcc-in.org Autism Society of Indiana Blind and Visually Impaired Services (BVIS) Bureau of Developmental Disabilities Services (BDDS) Bureau of Rehabilitation Services (BRS) Deaf and Hard of Hearing Services (DHHS) https://www.in.gov/fssa/ddars/brs/ deaf-and-hard-of-hearing/ Disability Determination Bureau Division of Aging (IDA) Division of Family Resources (DFR) Division of Mental Health and Addiction Down Syndrome Indiana Early Childhood and Out of School Learning (OECOSL) Easterseals Crossroads www.easterseals.com/ Emergency First Steps Indiana Department of Education: Office of Special Education www.doe.in.gov/specialed Indiana Family to Family www.inf2f.org Indiana Family and Social Services Administration (FSSA) www.in.gov/fssa/index.htm Indiana Governor’s Council for People with Disabilities (GPCPD) Indiana Resource Center for Autism Indiana State Department of Health Indiana Statewide Independent Living Council (INSILC) Indiana Works INSOURCE http://insource.org/ Medicaid Disability Medicaid Waivers National Alliance on Mental Illness Social Security Administration (SSA) Social Security Disability Insurance (SSDI) Special Education Questions United Cerebral Palsy Association of Greater Indiana Vocational Rehabilitation Services (VR)
Scan to view the past issues of Special Needs Living Indy and Uniquely You! 6
November 2026
Scan to view past digital copies, find resources, share a story or learn more about being involved.
beyond just home care.
We understand the unique needs of families with medically complex children. We offer a network of support, ensuring their caregiving journey is a bit lighter.
Medicaid PA Home Health Aide Services Attendant Care Services Private Pay Services Structured Family Caregiving Services VA Services GUIDE Home & Community Assistance TBI
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comforcare.com/indiana/north-metro-indianapolis
Pathways 2 Communication AGES 6 THROUGH ADULTHOOD
Spelling to Communicate is an innovative method of communication that starts with presuming in the cognitive competence of non, minimal and unreliably speaking individuals. It is believed that all individuals can and want to learn and communicate despite their perceived limitations. S2C empowers said individuals to overcome communication barriers through the motor movement of pointing to letters on a letter board and thus promoting synchrony between cognitive and motor systems. It is through the repeated practice (pointing to letters) that new neural pathways become formed and myelinated. The end result being a viable means of communication and the ability to show the world their cognitive prowess.
Ron Doll
Certified S2C Practitioner 317.408.3990 | baherospeller@gmail.com Uniquely You Indy
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Uniquely You Indy
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Your Story Matters!
meet TEAM LAYLA!
Courage, Independence and the Road Back to What She Loves 10
November 2026
For 11-year-old Layla,
life has always been about movement. She is an athlete, cheerleader, talented tumbler and junior drag racer who has never been afraid to set a goal and work toward it. Today, epilepsy is an important part of Layla’s story, but it does not define who she is. Layla lives with her parents, Stephanie and Larry, and her 13-yearold sister, Lexi, in Greenwood, Indiana, just south of Indianapolis. The family has lived in the area for 12 years, and both parents grew up in Greenwood and attended school there. Layla attends Center Grove Middle School North. For years, however, the family did not know that something was happening inside Layla’s brain. She was officially diagnosed with focal epilepsy at age nine, but looking back, her family believes she had likely been experiencing seizures since she was about six. Because her early symptoms were not what most people picture when they think of a seizure, it took nearly three years to understand what was happening. Genetic testing eventually identified a mutation contributing to Layla’s epilepsy. Her seizures have been resistant to medication, making treatment particularly challenging. Between October 2025 and February 2026, Layla underwent four brain surgeries and became the first patient at Riley Hospital for Children in Indianapolis to receive two responsive neurostimulation, or RNS, devices at the same time. The devices are connected to electrodes that monitor her brain activity. When they detect the beginning of a seizure, they deliver stimulation intended to stop it before it fully develops. Layla downloads information from the devices every night, allowing her medical team to review the data and adjust the programming approximately every three months. For the family, it has been an ongoing process rather than a quick fix. Epilepsy has affected nearly every part of the family’s life. Travel can trigger Layla’s seizures, and activities that once seemed routine now require additional planning. One of the hardest changes has been watching
“Epilepsy is only one part of her story.”
Layla temporarily step away from the activities she loves most. Before her diagnosis, Layla raced junior dragsters and was a competitive cheerleader and accomplished tumbler. After her diagnosis, she had to stop racing because she must be seizure-free for six months before returning to her race car. She also missed a season of cheer while undergoing surgeries and treatment. Those changes were difficult for Layla, but they did not stop her from
working toward the things she loves. She returned to cheer practice for the 2026-2027 season and worked hard to regain the tumbling skills she had lost during the winter. Her determination has become one of the qualities her family admires most. At the same time, Stephanie has learned that parenting a child with complex medical needs requires a delicate balance between protection and independence. That became especially clear when Layla had Uniquely You Indy
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the opportunity to attend the Center for Courageous Kids (CCK) independent summer camp in Kentucky. Sending Layla several hours away from home was nerve-racking. Travel can trigger her seizures, and allowing her to be away from her parents meant trusting others with her medical needs. The family worked with Layla’s neurologist on precautions, while CCK’s trained medical team provided reassurance that her health needs could be managed while she participated fully in camp. The opportunity came after Stephanie discovered CCK through a Facebook post from the Epilepsy Foundation of Indiana. She and Layla watched videos about the camp together so Layla could learn what to expect. When Stephanie asked whether she wanted to attend, Layla confidently answered, “I want to go.” For Stephanie, that moment represented more than a summer camp decision. It was one of the first times Layla had been so determined about making an important decision for herself. CCK gave Layla the chance to spend time with children who understood what it was like to live with serious medical challenges while still experiencing the fun and freedom of being a kid. She enjoyed fishing and was amused when she caught a turtle. She also enjoyed archery and laughs about accidentally hitting her friend’s target instead of her own. For Layla and her family, those experiences represented freedom, friendship and the opportunity to participate in activities that might once have seemed out of reach. CCK’s diagnosis-specific camps and family retreats are offered at no cost to families, with trained medical professionals available to support children while they participate in traditional camp activities. The epilepsy and neurological disorders session allowed Layla to build confidence and experience greater independence in a safe and supportive environment. For Stephanie, it was also a reminder that children with complex medical needs need opportunities to be children—not simply patients. 12
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“I want to go.” —Layla
Learning when to protect Layla and when to give her room to grow has not always been easy. Stephanie knows how quickly a seizure can happen, and her instinct is naturally to keep her daughter close. At the same time, she knows Layla needs opportunities to make decisions, develop confidence and experience independence. Sending Layla to CCK required trust from both of them. Stephanie had to trust the medical team and counselors caring for her daughter, while Layla had to trust herself. The experience showed both of them what can happen when children are given the right support and the opportunity to take a step outside their comfort zone. The support of their community has also played an important role in Layla’s journey. Stephanie owns Trilogy Travel, which gives her flexibility when managing Layla’s appointments and medical needs. The family is also active in the competitive cheer and junior drag racing communities, where friends and fellow racers have rallied around Layla. The family created “Team Layla— Racing for a Seizure-Free Future” stickers, and many fellow racers proudly display them on their cars. The stickers have become a visible reminder that Layla and her family have an entire community standing behind them. Riley Hospital for Children and Layla’s neurology team have been essential throughout her journey. Her medical team helped the family understand her diagnosis, guided them through four brain surgeries and continues to monitor and adjust her RNS devices. The Epilepsy Foundation of Indiana has also been an important resource and ultimately helped connect the family with CCK. Stephanie encourages other parents to trust their instincts, keep asking questions and advocate for their children. Layla’s experience showed her that seizures can look very different from one person to another, and parents should continue looking for answers when something does not feel right. She also encourages families to look beyond their own communities when searching for resources. Connecting with schools, healthcare providers, parent networks and organizations such as the Epilepsy Foundation of Indiana
can help families discover programs and support that may otherwise be difficult to find. CCK is located in Kentucky but serves children from across the country, demonstrating that sometimes the resource that makes the greatest difference may be a few hours away. The family continues to look for opportunities that support Layla’s independence while safely accommodating her medical needs. They also value connecting with other families navigating epilepsy and RNS treatment because knowing that others understand the journey can make a tremendous difference. For Layla, one of the biggest goals ahead is becoming seizure-free long enough to return to junior drag racing. Until then, she continues working toward the future and returning to the activities she loves whenever possible. Epilepsy is only one part of Layla’s story. She is an athlete, cheerleader,
tumbler and junior drag racer who has endured four brain surgeries, adapted to living with two implanted medical devices and continued setting goals for herself. Her journey has challenged her family in ways they never expected, but it has also shown them how persistent, determined and resilient she can be. For Stephanie, the experience has reinforced the importance of balancing protection with independence. Children with complex medical needs may require extra support, but they also need the opportunity to make choices, build confidence and discover what they are capable of doing. Layla’s story is still being written, and her family continues to look forward to the day she can return to her race car. In the meantime, she keeps moving forward—one goal, one accomplishment and one new experience at a time.
FINDING COURAGE & INDEPENDENCE
Center for Courageous Kids
For children living with disabilities and lifelong illnesses, finding a place where they can simply be kids can make a lasting difference. The Center for Courageous Kids (CCK) in Scottsville, Kentucky, provides medically supported camp experiences designed to help children build confidence, develop independence, make friends, and enjoy traditional camp activities. https://www. courageouskids.org Uniquely You Indy
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Partner Spotlight
BEST BUDDIES: Walking Together, Changing Lives The Indianapolis Friendship Walk shatters records and unites a community for inclusion.
DJ Jesus Indy Jamie Olson & Zach Curtis
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November 2026
ON APRIL 19, 2026, Victory Field became the backdrop for one of the most memorable days in Best Buddies Indiana history. For the first time, the Indianapolis Friendship Walk made its home at this iconic new venue, and the community showed up in a big way—with 1,100 registered participants walking together under a shared vision of inclusion, friendship, and belonging. This year’s event was nothing short of spectacular, successfully reaching its ambitious goal of $175,000 to further the vital mission of Best Buddies International. As the leading walk in the country supporting inclusion for people with intellectual and developmental disabilities (IDD), the event brought together families, friends, schools, and community leaders. Proceeds directly support state programs that provide one-to-one friendships, integrated employment, leadership development, and inclusive living.
“The Friendship Walk is a powerful statement of unity and a celebration of the incredible abilities of individuals with IDD,” said Jen Nanny, State Director of Best Buddies Indiana. “Their commitment allows us to build a more inclusive Indiana where everyone is valued, empowered, and celebrated.” With 97 teams on the starting line, the 1-mile walk was a vibrant display of community spirit. Beloved mascots Rowdie, Freddy Fever, Boomer, the Merchants Frog, and Nitro thrilled the crowd, while the Indianapolis Colts Cheerleaders joined the fun—one delivering a breathtaking rendition of the National Anthem. DJ Jesus Garcia kept the energy soaring all day long. A special congratulations goes to Matt Burns, who raised an astounding $21,000—making him not only the local champion but currently the top fundraiser in the entire nation! Westfield High School also made history, raising $15,000 and setting a brandnew school record for Indiana. After the walk, everyone celebrated with hotdogs, chips, and fresh fruit.
Thank You to Our Generous Sponsors:
National: New York Life, Sephora, Touchpoint Local: Capital Group, Round Room, HSI Solar, Merchants Bank, Goodman Campbell Brain & Spine, Coca-Cola Consolidated Whitestown, Bee Free
Looking Ahead: Champion of the Year The celebration of inclusion doesn’t end with the Friendship Walk. Best Buddies Indiana will continue its mission this fall with the 2026 Champion of the
THE GENEROSITY OF A COMMUNITY Thank you Indianapolis!
Year event, taking place November 14 in Indianapolis. The annual Champion of the Year campaign brings together community leaders and supporters who use their networks, passion, and personal connections to raise funds and awareness for Best Buddies. The campaign culminates in an evening celebration recognizing the candidates and the impact they have made in support of people with intellectual and developmental disabilities (IDD). Funds raised through Best Buddies Indiana help support programs that create one-to-one friendships, integrated employment, and leadership development for people with and without IDD. The Champion of the Year event offers another opportunity for Indiana’s community to come together, celebrate inclusion, recognize the people helping advance the mission, and continue building opportunities for friendship, employment, leadership, and belonging.
1,100 REGISTERED WALKERS $175,000 RAISED FOR THE MISSION 97 TEAMS PARTICIPATED
For information contact Avery VanMiddlesworth at averyvanmiddlesworth@ bestbuddies.org Uniquely You Indy
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From Advocacy to Public Service
“We Go Together”: A Lifetime of Inclusion A look at how Will Colteryahn’s personal and professional experiences shaped his approach to disability advocacy and public service BY L I N D S E Y WAT S O N
FOR WILL Colteryahn, advocacy for people with disabilities isn’t just a talking point on a campaign platform. From youth playmates, to building a career in disability services and, now, deciding to run for State Representative in District 40, inclusion has always been woven into his story. As a resident of Avon, IN, Will says that decades of experience taught him one lesson above all others: people with disabilities and their families are the experts, and the systems designed to support them need to listen.
Inclusion From the Beginning Will grew up in a multigenerational home after his grandmother acquired significant physical disabilities living with Multiple Sclerosis. Sharing a home together gave Will an early, firsthand look at the challenges of navigating disability services. 18
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“By necessity, I learned how disability services worked, where they failed, and how families often had to fight to get basic support,” Will says. The two were especially close. Even after Will left for college, he frequently returned home to take his grandmother out into the community, helping maneuver her wheelchair, assisting with transfers, and making sure she had the accommodations she needed, like building a ramp onto their family home. Will explained, “Even with the challenges of her diagnosis, she never stopped. I knew she would need help with certain things, but I couldn’t tell you what those were.” An uncle provided another important influence. Will grew up playing alongside children with significant support needs, and saw inclusion play out through his uncle’s involvement with Big Brothers Big Sisters and taking people with
disabilities to his jobsite or spending time with participants after work. “Inclusion wasn’t a theory—it was simply how life worked,” Will says. “We played together, learned together, and existed together without the artificial barriers adults often create.” That mentality has been carried into life with Will’s own family. Although his children—Peter, 12; Annie, 11; Henry, 8; and Ben, 7—do not have disabilities, inclusion has remained a central value in how he and his wife, Katie, live and raise their children. Katie Colteryahn is an internist providing primary care in Avon. The couple met in their early 20’s and share the value of disability inclusion in their community, along with assisting people to find necessary resources. Will’s early experiences eventually shaped both an education and a career. He studied nonprofit management and disability studies in college with the goal of expanding community inclusion
and workplace access. That path led to work in supported employment, homeand community-based services and, ultimately, decades of involvement in disability advocacy and service systems.
Seeing Barriers Firsthand At 24 years old, Will experienced another perspective-changing chapter: an aggressive cancer diagnosis. Because of financial circumstances, he continued working while undergoing chemotherapy. Suddenly, everyday environments and systems looked different. “I experienced what it meant to navigate a community full of unintended barriers—barriers that become visible only when your abilities or health changes,” he said. He explained that although his cancer was treatable, that experience shaped him. Looking visibly sick was eye opening, and people treated him differently. “For me, I had a light at the end of the tunnel, but I was very aware there were people who didn’t.” Over the years, Colteryahn held leadership positions with nonprofits in multiple states, consistently working to improve services and opportunities for people with disabilities. Most recently, he served in leadership at the Indiana Family and Social Services Administration (FSSA), overseeing programs designed to support Hoosiers with disabilities. It was that experience inside the system that ultimately helped motivate his decision to run for office.
When Families Started Asking for Help Colteryahn began hearing from families facing unexpected Medicaid waiver denials. He started offering to send emails on their behalf to the appropriate people in order to help move things along. Over the next several weeks, dozens of families reached out after receiving Medicaid waiver denials they had never experienced before. Many had received waiver services for years with no significant changes in their health, needs, or circumstances. Yet after their annual reevaluations, they received denial letter and struggled to get answers. “Many of these families had tried to get help long before they reached
me,” Colteryahn says. “I wasn’t the first person they talked to. I was simply the first one who listened—and acted.” Colteryahn explained, “We were able to help several families get their denials overturned. Those families must have shared their experiences with advocacy networks, because within days we were receiving hundreds of emails. We began looking into the issue, and thanks to persistent advocacy—and families brave enough to speak publicly—we saw that the denial rate went from under 1% to 6% with some estimates showing it may exceed 10-15%. That discovery led to major media attention and prompted several lawmakers to call for a halt to the denials. He explained, “We have not yet reached our ultimate goal of stopping them entirely, but we have clearly gained momentum.” For Colteryahn, this experience demonstrated both the vulnerability of families navigating complex systems and the potential power of advocacy when those families are willing to speak up.
The Families are the Experts Colteryahn strongly believes that disability policy should be shaped by the people who live with its consequences every day. “People with disabilities and their families are the true subject matter experts,” he says. “We have seen time and time again that when policy is made in isolation by elected officials or bureaucrats without meaningful input, families pay the price.” Will further explained, “Our services are set up in like a giant house with rooms designed by different architects. The problem is, no one discussed the construction. It’s like there are no hallways and the room sizes are off. We want our campaign to be the front door, an entry point to not only welcome people in, but to give them a warm handoff.” Colteryahn plans to continue working with the experts in disability policy; and believes that there is no one with more expertise than a family living these systems every single day. His priorities include Medicaid waivers, home- and community-based services funding, creating systems that
are more responsive to the people they are intended to serve, and listening first. He also wants families to know they should not have to navigate these battles alone. He shared, “Families also need to remember that they should not have to fight these battles alone. People should be stepping up to help, but for far too long families have been ignored, dismissed, or told to “wait their turn.”
A Meaningful Early Connection Perhaps the clearest illustration of Colteryahn’s philosophy comes from his college years, when he worked as a wraparound for children with significant disabilities. One of the children he worked with was Liam. On paper, the job was straightforward: stay nearby, help de-escalate when necessary and otherwise fade into the background. After camp each day, however, Colteryahn and Liam had an hour of one-on-one time. During that hour, Liam got to decide what they would do. Liam had worked with wraparounds before, but his parents told Colteryahn that he had never really clicked with anyone. Then one day, Liam discovered something they had in common. Colteryahn went by “Will,” but his full name was William. Liam also went by Liam, but his full name was William. At camp, everyone wore name tags. Before long, Liam began asking for Colteryahn’s at the end of each day. He would press the two tags together, hold them up and proudly announce: “It says Will-Liam. We go together.” For Colteryahn, the memory is significant because it captures something larger than a friendship. It’s a clear illustration of the need for people to work together and find connection. “If we want services that actually work, they must be person-centered,” they say. “Because the best outcomes don’t come from compliance. They come from connection.” This is a philosophy that has followed Colteryahn -- beginning in childhood, through a career in disability services, and into a campaign for public office. Uniquely You Indy
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November 2026
Special needs require SpecialCare. When you're ready, we're here to help. MassMutual's SpecialCare program provides access to information, specialists and financial products and services to help families facing the financial responsibilities of raising a child with a disability or other special needs. To learn more about how a financial professional can help your family, visit MassMutual.com/SpecialCare Gordon F. Homes Jr., CASL, CFP®, ChFC®, CLU® Special Needs Planner WestPoint Financial 317-567-2005 ghomes@financialguide.com www.gordonfhomes.com Insurance Representative of Massachusetts Mutual Life Insurance Company (MassMutual), Springfield, MA 01111-0001, and its affiliated US Insurance companies. Local firms are sales offices of MassMutual, and are not subsidiaries of MassMutual or its affiliated companies. CRN202012-222355 Uniquely You Indy
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Nonprofit Spotlight
The Hope House BY K E L S E Y A M O S
WITH EMERGING programs and organizations sprouting across Indiana targeted towards those with disabilities, it can be exciting to finally have numerous available resources at a caregiver’s disposal for their loved one with special needs. But although it may seem as if Indy is suddenly having an influx of these programs in recent years, many organizations featured here in Uniquely You Indy have been around for a while – some even for decades! New Hope of Indiana – founded in 1978 – is one of these organizations. Despite being around for nearly 50 years, New Hope of Indiana continues to create innovative programs for people with disabilities and their families. Their newest offering holds a very special and unique opportunity for those with disabilities that is not common here in central Indy: a residential respite home. Located in the vibrant neighborhood of Glendale, Hope House is the only out-of-home respite and skills development service in Marion and surrounding counties. Within this program, those with special needs are offered a safe, affordable – and most importantly – accessible
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one bedroom home, where they can practice learned skills needed for independent living in a supportive environment while their caregivers take a much-deserved break. But what about the founding company, New Hope of Indiana? It is more than just any organization. With strong, unwavering core values of inclusivity, integrity, and dedication (being just a few!), since their creation they have “actively supported individuals with disabilities through compassionate, comprehensive services and unwavering advocacy for human dignity.” Guided by their core values in everything they do, New Hope of Indiana is dedicated to empowering those with disabilities to reach their individual potential and live their most fulfilling lives. What type of services does New Hope offer? New Hope is the largest not-for-profit provider of residential services for those with disabilities in Marion County, operating 52 residential homes in both Marion and Hamilton County. They also offer a variety of other services. Some of these include day programming, behavior services, vocational services, family and community services, and special
programs like the PLAY project (Play and Language for Autistic Youngsters) and Camp Catalyst (targeted towards children 9-13 years both with or without disabilities). The most important measure of success is not merely by analytical data or milestones, but by the happiness and well-being of the individuals and caregivers they support. Meeting individuals where they are through tailored, personalized plans that take each person’s unique care needs and goals in mind is in perfect line with their core values of inclusivity and service. Progress is definitely a desire for the individuals served by New Hope of Indiana along with their caregivers. And for those who desire a more specialized approach with support and flexibility being more of a priority, they can find their desired path through New Hope. Independent living may be the goal of some, but not others, and independence comes in many forms. Being able to make one’s own meals is a form of independence that builds confidence and autonomy. That is why life skills such as cooking, using transportation or simply being able to enjoy time away from family for a short period of time are just as
“We are in the people business.”
important skills that the Hope House teaches, making the possibilities of growth endless. As quoted from New Hope Indiana’s website, “We are in the people business.” The commitment and well-being of the individual always comes first, before any goal, and the service to each person is the heart of what New Hope does. As for the Hope House, it has already made a difference for those within its program. A recent high school graduate, Emerson, needed a space that would allow her to practice the skills to live independently. “Luckily, we found the Hope House,” states mother Denise Caudill Irons. “The one-on-one collaboration, practice, and consistency are helping to reinforce the skills that Emerson is learning. She’s engaged and excited to spend the day working with her staff.” But that is not all. “Hope House provides a safe place for preparing Emerson and I to confidently embrace and accept the prospect of a new chapter.” As for the new chapter? “Unexpectedly, this experience allowed me to see the possibility of Emerson living on her own,” says Denise. The Hope House offers so much more than just a place to stay, as mentioned earlier. This life-changing
program is made possible by the generous support of Lily Endowment Inc. – a foundation that supports community development and other causes. Other than supporting individuals with disabilities to live independently, Hope House also offers their family and caregivers a welldeserved break all the while knowing that their loved ones are being cared for in a nurturing, goal-oriented environment. The home also integrates cutting-edge technology through a partnership with THS, a Cincinnatibased remote support provider. Those who are interested can explore state-ofthe-art equipment specifically designed to support independent living. This ensures that individuals are equipped with the proper resources to pursue their goals. Of course, staff are always on hand to guide them through the process. Staff tailor their support to the individual, assisting with personal care, meal preparation and planning, medication administration, community outings and skills, and so much more. New Hope has a long-standing tradition of listening to the feedback provided by those who are served and their families. The Hope House is fulfilling a need expressed by so many families.
How can you get involved and help support New Hope of Indiana and the Hope House? Volunteering, partnership opportunities, and making a donation are all great ways to support the organization, along with sharing their message and numerous service opportunities to families who may benefit. Truly, Hope House is a leading force in Indiana that is redefining and pushing forward the very essence of respite care. The difference made to various individuals with disabilities and their caregivers speak for themselves. If interested in “starting the journey” with the Hope House, you can visit their website at www. newhopeofindiana.org. In a world that often overlooks the potential of those with disabilities, Hope House stands as a powerful reminder that every person deserves the opportunity to live a fulfilling, independent life.
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More Than A Waiver
When Waiver Funding Is Lost, So Much More Is at Risk How Funding Changes Can Affect Children Who Depend on Adaptive Equipment BY JAC K I E B O DWE L L , B . S ., R RT OWN E R~ S P E C IA L I Z E D H O M E C A R E S E RVI C E S , L LC
A
fter more than 19 years of treating sensory processing needs as medically necessary, Indiana’s Medicaid HCBS waivers are pulling that help away from the people who use it every day. A little boy ran screaming through a vendor fair, overwhelmed and overstimulated. He stopped at a bubble light and stared. His mother sat down. That light was not a toy. It was the first quiet moment she had all day. A father could not speak to anyone because his daughter was melting down. She stayed at a table with sensory sand for more than an hour. The family later received sensory boxes for home so she would have a way to come back to herself. A young man chewed his wrists until they were open sores. Chew tools helped a little. The day a weighted hoodie arrived, the case manager watched him put it on and stop. The sores could heal. 24
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A mother whose adult son shredded diapers and smeared feces through the house at night called him her little Houdini. She was also caring for a dying husband and working full time. A Lycra one-piece he could not remove let her sleep. That is not a figure of speech. She slept. These are not isolated cases. This is what specialized equipment work looks like across Indiana: hours on the phone with families and case managers until something actually works. Providers do not just mail a box. They sit with a parent who has already tried everything else and look for the one item that lets a child settle, a teenager stop hurting himself, or a mother close her eyes. CMS approved Indiana’s waiver amendments effective August 1, 2026. Under the new Specialized Medical Equipment and Supplies rules, many of the tools that produced those moments are being treated as if they never mattered.
The service definition still talks about devices that help a person perform daily living or “perceive, control, or communicate with the environment.” Sensory tools have always lived in that space. For years, items that were not listed by name could still be submitted through a Request for Approval. Families and providers used that path. Many of those requests are now being treated as not medically necessary. Review decisions are inconsistent. Families who disagree often do not appeal. The result is not a small tweak. It is the quiet disappearance of help for people who already have very little margin. The new rules also cap a provider at a 30 percent markup above documented acquisition cost. Additional fees are not allowed. If the item fails or is lost in that first year, the provider replaces it. On paper, 30 percent sounds like a cushion. In practice it is $30 on a $100 item. That $30 is supposed to cover liability insurance, staff time, the hours spent
assembling physician letters and bid packets, the risk of buying the item up front and never being paid if someone loses Level of Care, and the warranty replacement. When the cheapest option does not last a year, the markup disappears. FSSA has said it does not intend to reconsider the policy. That rate problem is why so many providers can no longer take these requests. It is not the story that matters most. The story that matters is the child who cannot settle, the teenager with open sores, the mother who is up all night again. I started this company because I could not get these things for my own daughter, who is also a waiver recipient. Every referral still feels personal. I am heartbroken that the state has made this work impossible to sustain. I cannot stand the thought of these services vanishing for the people who need them
now and the children who will need them later. The tighter medical-necessity standard and the 30 percent rule will not show up as a headline about budget savings. They will show up as names that never make it into a public comment. If you are a parent, a case manager, or an advocate, ask what is being denied and why. Ask whether a family is being told an item is “not medically necessary” when it is the only thing that has ever worked. Ask FSSA to explain, in writing, how the new rules still serve people whose needs did not change on August 1. The people on these waivers did not become less in need. The rules did.
Uniquely You Indy
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Single Mamas Seen
Grateful…Yet, Still Tired BY C H R I S T I N A M CG A I R K
NOVEMBER IS the month everybody wants us to talk about what we’re thankful for. And trust me, I am VERY thankful. God has brought me through way too much for me not to be. I am thankful for my daughter, my family, my friends, my church family, and simply another day of life. But can I be thankful and tired too? Because whew! Sometimes November rolls around and I’m grateful, blessed, tired, trying to figure out Thanksgiving plans, looking at Christmas coming around the corner, and wondering how the year flew by so fast. I think single mamas understand this in a special way. We can love our children with everything in us and still need a break. We can thank God for what we have and still admit that some days are overwhelming. One does not cancel out the other. November can come with a LOT. Thanksgiving plans, school events, family gatherings, grocery shopping, and somebody asking what dish you are 26
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bringing. Then before the leftovers are even gone, here comes Christmas. As single moms, we can put extra pressure on ourselves because we never want our children to feel like they are missing out. We want the memories, traditions, food, and fun. Sometimes we try so hard to make everything magical that Mama is completely worn out by the time the magic happens. I have learned that everything does not have to be perfect to be special. Thanksgiving dinner does not need to look like something out of a magazine. If you make everything from scratch, go Mama! If half of it came from the store, go Mama! And if your child looks at that whole Thanksgiving spread and decides all they want is macaroni and cheese and a roll, guess what? They ate. That is a win! The holidays can also be a lot for some of our children. Big family gatherings can mean loud conversations, unfamiliar foods, different routines, and a lot of people in one space. If your child needs headphones, a quiet room, familiar
food, or a break, let them have it. And if you know your child has had enough, Mama, GO! You do not have to stay until everybody else decides you have stayed long enough. Sometimes protecting your peace means grabbing your purse, saying goodbye, and heading home before everything goes left. We need to give ourselves that same grace. You do not have to attend every event, cook every dish, buy everything on the Christmas list, or run yourself ragged trying to make everyone happy. You definitely do not have to go broke proving your children had a good holiday. Sometimes a good holiday is simply being together, eating good food, laughing, and making memories without unnecessary stress. These days I am thankful for the little things too. A peaceful morning. My daughter being happy. People who check on me. A good laugh when I need one. Somebody else cooking so I do not have to. Amen to that one! I am also thankful for how far I have come. Single Mama, think about your year. Think about the days you did not know
If you know a single parent you wish to nominate go to https://form.jotform. com/240566014402142
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be thankful while admitting some parts are hard. You can be grateful and tired. Blessed and overwhelmed. Strong and still need help. Happy and still have hard days. So enjoy your Thanksgiving, Single Mama. Eat the food, enjoy your people, take the pictures, and give yourself some grace. You made it through another year. That is worth celebrating too.
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strengthened me, and reminded me that I am not doing this life alone. That is something I am especially grateful for. So this Thanksgiving, I am not going to tell you to make another gratitude list. You already have enough on your plate, literally and figuratively. Just take a moment and look around. Life may not look exactly the way you thought it would. Your family may look different. You may still be praying for some things to get better. You can still
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how you were going to make it through, the prayers you prayed, the tears nobody saw, and the things you had to figure out because there was nobody else there to do it for you. And yet, here you are. For me, my faith is a huge part of that. There have been times when I know it was nothing but God carrying me because Christina did not have anything left. God has placed people in my life, opened doors, protected me,
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Authentically You
Authentically You
“I would like to start teaching my child about body awareness and sexuality, but I don’t know where to start.” BY M A R I S S A PA N G L E , FO U N D E R , I N D E P E N D E N T PAT HWAYS A A S E C T C E RT I FI E D S E XUA L I T Y E D U C ATO R A N D A P P R OVE D C E P R OVI D E R
THIS IS AN IMPORTANT question, and feeling uncertain about where to begin is understandable. Sexuality education can feel like an enormous topic, especially when you are trying to determine what information your child needs and how to teach it in a way that makes sense. I am hopeful that I can provide some guidance and clarity around what I suggest as a solid starting point and why. I recommend starting sexuality education with human rights. Universal human rights do not begin at puberty or adulthood. Regardless of age, every person has rights simply because they are human. I believe explicitly teaching human rights is especially important within the disabled community because of the interdependent nature of support. Many individuals with disabilities grow up with other people involved in deeply personal aspects of their lives, such as dressing, bathing,
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communicating, or managing their healthcare. While that support may be necessary, needing assistance does not diminish a person’s right to their own body, privacy, choices, or autonomy. Human rights establish the inherent and equal value of every human being and the rights each person deserves to have recognized and honored. Education about human rights provides the building blocks for understanding: My life matters. I have choices. My body is mine. I deserve autonomy.
Human Rights Provide a Foundation for Sexuality Education The United Nations’ Universal Declaration of Human Rights provides a useful foundation that can be explained and adapted to an individual’s learning needs. Independent Pathways has provided an accompanying example of one way this information can be simplified to support understanding.
My life matters. I have choices. My body is mine. I deserve autonomy.
Once an individual understands human rights, we can build outward into body rights: What parts of my body belong to me? What does privacy mean? Who can touch my body, and under what circumstances? When can I say no? From body rights, we can expand into consent, boundaries, relationships, and sexuality rights. This progression also introduces an essential reciprocal concept. Sexuality education is not only about recognizing my rights. It is also about understanding that other people have those same rights. My body deserves respect, and so does yours. I have the right to say no, and so do you. My boundaries matter, and your boundaries matter too. This reciprocal understanding is fundamental to sexuality education because it gives consent and boundaries meaning beyond simply memorizing rules. We are teaching an individual to understand both their own autonomy and their responsibility to respect the autonomy of others. So, if you are wondering where to begin teaching your child about their body and sexuality, begin with the foundation that gives those later concepts meaning. Begin with something your child already has: Their rights. Have a question for Authentically You? Submit your questions to: askmarissa@independentpathways.com Your question may be featured in a future column.
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Adaptive Sexuality Education Life, My Way™ Curriculum Continuing Education & Professional Training Workshops & Speaking Engagements Individual & Organizational Consultation
Unapologetically autistic herself, Marissa is dedicated to helping people build meaningful pathways toward lives guided by their own goals, values, and priorities. Marissa Pangle, MA, CSE Founder, Independent Pathways AASECT Certified Sexuality Educator AASECT Approved CE Provider
317.740.7537 | independentpathways.com marissapangle@independentpathways.com Uniquely You Indy
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This section is here to give our readers easier access when searching for a trusted neighborhood partner to use. Get to know the businesses that make this magazine possible. Please support them in return and thank them if you get the chance! ABA & Comprehensive Services BehaviorWorks ABA (317) 731-7777 behaviorworksaba.com
Attorney-Wills/Trusts/Estate Planning
Connie’s Clubhouse (435) 621-4153 www.conniesclubhouse.work
Behavioral Support/Pac
LEL Home Services (317) 387-1443 lelhomeservices.com
Law Office of Elizabeth A. Homes LLC (317) 660-5004
Hopebridge Autism Therapy Centers (844) 786-0672 www.hopebridge.com
New Beginnings BIS (317) 366-3432 www.newbeginningsbis.com
ABA / Residential & Community Support
Catering & Meal Prep
Sycamore Services (317) 745-4715 sycamoreservices.com
ABA Services
Behavior Analysis Center for Autism (317) 288-5232 thebaca.com
ABA/Comprehensive Services The Hope Source (317) 578-0410
Advocacy & Disability Support AccessABILITY (317) 926-1660 www.accessabilityin.org
Indys Kitchen (317) 476-7507 mealprep.indyskitchen.com
Community Inclusion & Adult Services Hollis Adams (463) 206-1032 www.hollisadams.org
Community Support AID of Indiana (765) 273-3999 aidofindiana.com/
Best Buddies Indiana (317) 436-8440 www.bestbuddies.org/indiana Carters Play Place (317) 836-5510 cartersplayplace.com
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Noble (317) 375-2700 Phoenix Community Services LLC (765) 622-7808 www.Phoenixcommser.com
DJ/Entertainment Services
DJ Jesús Indy (317) 766-5742 www.instagram.com/dj_ jesus_indy
Dyslexia Support Program Retrain the Dyslexic Brain by Dr. Rebecca Troy (218) 393-2423 www.DrRebeccaTroy.com
Education - Microschool and Tutoring Sunrise Learning Academy www.sunriselearningacademy.org
Financial
Ice Cream
WestPoint Financial Group Gordon Homes (317) 567-2005
Howdy Homemade Ice Cream (317) 397-0008 www.howdyindy.com
Home Care & Pediatric Services
Insurance
Guardian Care www.myguardian.care
Home Care & Transportation
A Mother’s Promise (463) 201-9249 www.amotherspromisehcs.com
Home Health Services
ComForCare Home Care (317) 575-3983 www.comforcare.com/indiana/ north-metro-indianapolis
Home Modifications / Specialty Equipment
Specialized Home Care Services (888) 506-4182 www.specialized4u.com/
Housing/Transportation/PAC/Respite JD Angels Family Care (317) 654-2609
State Farm John Cole (317) 430-1958
Kid’s Sensory Gym
Rock the Spectrum (317) 764-6607 werockthespectrumcarmel.com/
Mobile Service & Detailing
Tom Wood Ford Mobile Service (317) 846-4241 www.tomwoodford.com/ service/center.htm
Mobility Equipment & Repairs Keep Rolling Mobility (317) 349-2105 keeprollingmobility.com
Organizational Employee Development Team Sylvester (317) 691-9000 teamsylvester.com
Orthodontics
Godley Family Orthodontics godleyfamilyortho.com
Relationship/Intimacy Education Independent Pathways (317) 740-7537 www.independentpathways.com
School
Dynamic Minds Academy (317) 578-0410
Spelling to Communicate Exceptional Minds LLC (317) 408-3990
The Wellness Blanket
Rapha Wellness (765) 480-1502 thewellnessblanket.com
Vehicle Transportation & Rentals Superior Van & Mobility (877) 892-6382 superiorvan.com/
Waiver Provider & Employment Putnam County Comprehensive Services (765) 653-9763 www.pccsinc.org
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ENTREES, BREAKFAST, SNACKS, & MORE MADE FRESH
Home Delivery or Private Pickup Available 32
November 2026
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At JD Angels Family Care, we believe every individual deserves the opportunity to live with dignity, confidence, and independence. Our mission is to provide compassionate, person-centered support that empowers individuals with intellectual and developmental disabilities (IDD) to reach their fullest potential. Independence is built through everyday experiences. That's why our dedicated team focuses on helping individuals develop essential daily living skills such as personal hygiene, meal preparation, housekeeping, medication management, social interaction, and community participation. These skills not only promote self-sufficiency but also enhance confidence and overall quality of life. Every person has unique strengths, goals, and challenges. Through personalized care plans, we work closely with individuals and their families to create supportive environments where growth, learning, and success can flourish. Whether someone is mastering a new skill, becoming more active in the community, or working toward greater independence at home, we celebrate every achievement along the journey. In addition to life skills training, JD Angels Family Care encourages healthy living through wellness activities, social engagement, and meaningful opportunities that support physical, emotional, and social well-being. At the heart of everything we do is a commitment to treating every individual with respect, compassion, and dignity. Together, we are building stronger futures, one step at a time.
• Personal Hygiene & Grooming • Dressing & Undressing • Toileting Assistance
• Meal Preparation • Housekeeping • Laundry Home Safety
• Medication Management • Mobility & Transfers
• Social Skills Development • Companionship
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Home Care Information: (317) 314-8144 Transportation Services: (317) 314-8464 General Inquiries: (317) 314-8140 contactus@jdangelsfamilycare.com www.jdangelsfamilycare.com Uniquely You Indy
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9151 Currency St. Irving, TX 75063 Celebrating the Disability Community in Indy counties
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Let us come to you for your routine maintenance, our technicians can perform a lot of the same services remotely that we do in the dealership. From oil and filter changes to brakes, batteries, tire rotation, and more, our professionals will do their thing. And free you up to do yours. That's ownership built around you.
317-764-7001 | tomwoodford.com/mobileservice