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TODAY

22ndMar ch2019

NEW J OBS I NSI DE!

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Heal t hLeader shi p

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Heal t h&Soci alCar e

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Heal t hTr ai ni ng,Conf er ences&Event s

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TheAwar dWi nni ngSeat st hatCal m Peopl e wi t hAut i sm As uddens ound,ar i otofc ol our ,abeebuz z i ngby … whi l ef ormanyofust hes e ar ej us tnor mal ev er y dayenc ount er s ,f orpeopl ewi t haut i s mt heyc anbeov er whel mi ng.Thewor l di sut t er l ymor ec ompl ext oaut i s t i cpeopl e–s omet hi ngwe maynev erhav er eas ont oc ons i der–buti taf f ec t smor epeopl et hany ou mi ghtt hi nk .Andgi v ent hati t ’ sWor l dAut i s m Awar enes sWeek( 1s t-7t hApr i l ) , t her ec oul dn’ tbeabet t ert i met odos o.

Chr i s s i eLower ys ai d:“ MyCuddl eBedbus i nes swasbor noutofhel pi ngmys on gets omes l eep( al ongwi t ht her es toft hef ami l y )andi tgav emeapur pos ei nl i f e agai n.Goi ngf r om anur s es pec i al i s tt oabus i nes sownerhasbeenqui t ear ol l er c oas t erj our neywi t hs omer eal hi ghsandl owsbutIhav el ear neds omuc h.Al t houghIc r eat edt heCuddl eBedf ors l eeps ol ut i ons ,t heyar enowbei ngus edf or s l eepov er s ,r el ax i ngi nt hegar den,gami ngandc ampi ng! ” * *

Ac c or di ngt oaut i s m. or gt her ear ear ound700, 000 peopl eont heaut i s ms pec t r um i nt heUK–t hat ' s mor et han1i n100.I fy oui nc l udet hei rf ami l i es , aut i s mi sapar tofdai l yl i f ef or2.

8mi l l i onpeopl e. *

Chr i s s i e’ si nnov at i v ec ompanywasel ev at edt oawar dwi nni ngs t at uswi t ht he hel pofTheoPaphi t i s ’ sSmal l Bus i nes sSundaySBS.Tweet i ngTheoPaphi t i s ev er ySundayaboutherbus i nes s ,s hewasc hos enasoneofhi sof f i c i al wi nner s andbec amepar toft heSBSFami l y ,pi t c hi ngherpr oduc t st oPaphi t i s owned Rober tDy asandRy man.Anaddedbonusi st hat20% ofal l pr of i t sf r om Chi l d Cuddl eBedsar edonat edt oTheNat i onal Aut i s t i cSoc i et y .

Sens or yi t emsar ei deal f orhel pi ngpeopl ewi t h aut i s mc opewi t hal l t hes t i mul i ar oundt hem as t heyc anhel pr educ et heanx i et yt hey ex per i enc e.Leadi nghi ghs t r eetr et ai l er Rober tDy ashass omet hi ngt hatc oul dhel p i mmens el y :beanbagc uddl ebeds( £44.

99£89.

99)andc hi l dr en’ sf ol dabl ebeds( £49.

99£64.

99)f r om t heawar dwi nni ngbr and,The Cuddl eBedCompany .

Handmadei nt heUK,t heCuddl eBed™ beanbagsandbedswer ec r eat edbyent r epr eneurChr i s s i eLower yaf t erhers onwasdi agnos edwi t haut i s m ands t r uggl edwi t hs l eep,ands heher s el fhadbec omeunwel l wi t hc hr oni ci l l nes s es .

Thes es ens or ybeanbagsandbedsar edes i gnedt opr ov i deanex per i enc et hat f eel ss af e,andhel psdr awt hec hi l doradul ti nf r om any t hi ngdi s t r ac t i ngt hatmi ght behappeni ngar oundt hem.Thebeanbagsdot hi sbyof f er i ngf ul l bodypr es s ur e, whi c hi sk nownt ohel ps oot hepeopl ewi t haut i s m,r el ax i ngt hei rmus c l es ,r el i ev i ngt hes t r es st heyex per i enc ef r om s ens or ypr oc es s i ngandhel pi ngt hem f eel s ec ur e.Thec hi l dr en’ sbedsar edes i gnedt owr apar oundt hec hi l dt opr ov i dea s af eandc omf or t abl es pac e,hel pi ngt hem got os l eep.

Rober tDy as ’ Fur ni t ur eBuy er ,Ll oy dChees man,s ay s :“ TheCuddl eBedCompanybeanbagsandbedsc oul dbei nv al uabl et oc ar egi v er sofaut i s t i cc hi l dr enand adul t s .Notonl yar et heygr eatf orhel pi ngpeopl ewi t haut i s ms l eep,butt heypr ov i degener al ev er y dayc omf or twhent hei rs ens esar eov er l oadedbyt hewor l d ar oundt hem. ”

Formor ei nf or mat i onpl easevi si tt heRober tDyas websi t e. ht t p: / / www. r ober t dyas. co. uk

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LymphoedemaAwar eness

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How mappi ngyourl ymphat i cssyst em i schangi ngl ymphoedemat r eat ment Knownani nnov at or ,J aneWi gg,di r ec t oroft he Ly mphoedemaTr ai ni ngAc ademyandLy mphVi s i on,i s al way sl ook i ngf ornewway st ohel ppeopl el i v i ngwi t h l y mphoedema.Thi sc hr oni ci l l nes sr eal l ydoeshav e l i f ec hangi ngef f ec t sbutt hei nt r oduc t i onofi nnov at i v e t r eat mentandas s es s mentt ool shasal t er edt hewayt hat l y mphoedemac anbet r eat ed.Oneoft hemos ti nnov at i v e andc ondi t i onc hangi ngt ool si st heus eofaNeari nf r ar ed f l uor es c enc ei magi ng( NI RFI )appl i edt oi dent i f y l y mphat i c si nr eal t i me,f ort hef i r s tt i me.Ami nut eamount off l uor es c entf l ui di si nj ec t edi nt r ader mal l yi nt ot het i s s ue andt ak eni nt ot hel y mphat i c s( i ft heyar ef unc t i oni ng) .The dy e,whi c hbec omesat t ac hedt opr ot ei nandal bumi n mol ec ul eswi l l mov ewi t hi nt het i s s ueorl y mphat i c sov er t i me.ANI RFIc amer awi l l ex c i t et hedy eandr ef l ec tt he i mageal l owi ngt oi dent i f ywher et hel y mphat i c sar e dr ai ni ngorpr obl em ar eas .

Al t houghnew,t heRoy al Col l egeofNur s i ng( RCN) ,has r ec ogni s edJ aneandLy mphVi s i onasaf i nal i s tas i nnov at i onoft hey ear .Ly mphVi s i onc ar r i esoutc l i ni c s ar oundt heUK,meani ngt hatwec ant r ac kt hel y mphat i c dr ai nageanddes i gnnewt r eat mentandmanual l y mphat i c dr ai nagepl ans .Thr oughs c r eeni ng,NI RFLi magi ng( al s o c al l edI CG mappi ngorl y mphof l uor os c opymappi ng)al s o meanst hatwec ans eewhent hel y mphat i c sar es t ar t i ng t of ai l .Res ear c hhass hownt hatder mal r er out i ng( ear l y c hanges )wi l l dev el opi nt ol y mphoedemas oear l y r ec ogni t i oni spar amount .

Ly mphoedemai soneoft he bi gges tf ear sf ol l owi ngbr eas t s ur ger yoc c ur r i ngbet ween840% ofpeopl eandoc c ur si nar ound 25% ofgy naec ol ogi c al and mel anomac anc er s .Thr ough l y mphat i cs c r eeni ng,ear l y t r eat ments uc hass el f dr ai nage c anas s i s tt hel y mphat i c st of i nd di r ec t i onoff l owandr educ eors t opt hec hange.Sc r eeni ng i sc ar r i edoutass oonaspos s i bl ebutf or msaspar tofan annual ear l ydet ec t i onpr ogr amme.

Manyoft hepat i ent swhoat t endLy mphVi s i onal r eady hav el y mphoedemaandt heyort hei rt her api s t sar e l ook i ngt oas s i s tt hei rc ondi t i onbet t er .Thr oughNI RFLI , of t enanac c ur at edi agnos i sc anbeac hi ev edc onf i r mi ng genet i cc aus es .I naddi t i on,t heex t entoft he l y mphoedemac anbes eenal l owi ngf ort hei nt r oduc t i onof di f f er i ngt r eat mentpr ogr ammesandbes pok el y mphat i c dr ai nage.Thi si sc ompl ement edwi t hJ anesk nowl edge, whoasani nnov at or ,get st opr es entonagl obal pl at f or m andhasawar enes sofi nt er nat i onal t r eat mentt r ends .

NI RFLIhasal l owedf ort he dev el opmentofanewandadv anc eManual Ly mphat i c Dr ai nage( MLD)ormas s aget ec hni que.Fl uor os c opyhas s hownusnewpat hway s ,howt hel y mphat i c sdr ai nand r es pond,wher et heydr ai nandhowandi sr eal l y c hal l engi ngt he‘ hi s t or y ’ book sofpat hol ogyandMLD.Wi t h l i t t l er es ear c hbehi ndex i s t i ngt ec hni ques ,Fl uor os c opy gui dedMLD( FGMLD)us i ngt he‘ Fi l l andFl us h’ t ec hni que i shav i ngs uper i orout c omes ,f as t err es ul t sands av i ngbot h t heNHSandpat i ent smoney .Onepat i ent sr epor t st hat s hehass av edov er£1000s i nc emappi ngandc hangi ng herMLD. TheLy mphoedemaTr ai ni ng Ac ademy( L TA)wases t abl i s hedi n 2002andpr ov i desi nt er nat i onal t r ai ni ng.I n2014,J aneandL TA s t ar t edt eac hi ngFGMLDandt he‘ f i l l andf l us h’ t ec hni que.Pr ofBel gr ado, f r om t heBr us s el sLy mphol ogyand Res ear c hCent r ei nBel gi um, pi oneer edt heFGMLDt ec hni que andr ef i nedNI RFLi magi ng.TheL TAar et heonl ypr ov i der s oft hi st ec hni queandpr ov i det r ai ni ngi nt heUKand i nt er nat i onal l y .Asl y mphedemai sbec omi ngi nc r eas i ngl y r ec ogni s edt heneedf orgoodt her api s t si nc r eas esand wi t hc l os el i ai s on,L TAi st r ai ni nghol i s t i ct her api s t sand hi ghl ys k i l l eds por t sandmas s aget her api s t s ,t oas s i s ti n s uppor t i ngl y mphoedemat her api s t si nt hepr ov i s i onof manual l y mphat i cdr ai nage.Tr ai nedatav er yhi ghl ev el , t heywi l l pr ov i deFGMLDt opat i ent s .Al i s toft her api s t s c anbef oundatwww. l y mph. or g. uk .Tr ai ni ngonal l t hi ngs l y mphoedema,L TAar epi oneer si nt hei rf i el d,c oac hi ng ov er150newt her api s t seac hy ear .TheMLDand l y mphoedemamanagementt r ai ni ngi shel pi ngt hous ands ofpeopl e.

Don’ tbel i eveus,ourt her api st sandpat i ent sspeakf ort hemsel ves… ‘ I havebeenqual i f i edt ot r eatl ymphoedemasi nce1998,t hecour sewas f ant ast i candIam f i ndi ngIam get t i ngmuchbet t erandf ast err esul t s f r om ‘ Fi l landFl ush’ t echni que,t heyar emai nt ai ni ngbet weenandmy pat i ent sar ever yhappy . ’ ‘ Imustsayt hankyousomuchf ort heent i r ecour se!Iabsol ut el yl oved i t !Isawt wopat i ent sf orFGMLDl astweek.Wecoul dseean i mmedi at edi f f er ence.Yest er day ,atr evi ew,sher epor t ed:“ Myar mf el t ext r emel yl i ght er ,If el tIcoul df l y…Thankyousomuchf orhel pi ngme f eell i keahumanagai n. ”Onesessi onandamazi ngf eedback!The cour sehasdef i ni t el ychangedmeasacl i ni ci an! ’

AtLy mphVi s i on,t hr oughs c r eeni ng,weai mt oi dent i f y l y mphoedemaear l yt or educ eorr ev er s et hei mpac tand i mpr ov et r eat mentbyi dent i f y i ngl y mphat i cpat hway s .I n addi t i on,wepr oduc ehi ghl ys k i l l edt her api s tt ohel ppeopl e l i v i ngwi t hl y mphoedemar ec ei v ei mpr ov edc ar eand out c omes .

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Nat i onalChar i t yRecr ui t mentCampai gn

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Recr ui t ercal l sf oraggr essi veat t ackonNHS st af f i ngst r at egyf ol l owi ngt hi nkt ankf i ndi ngs Fol l owi ngt hepubl i cat i onofar epor tf r om l eadi ngt hi nkt anksThe Ki ng’ sFund,Nuf f i el dTr ustandHeal t hFoundat i on-whi chf i ndst hat NHSwor kf or ceshor t agesar ehavi ngadi r ecti mpactonpat i entcar e andst af fexper i ence-speci al i str ecr ui t er , Heal t hi erRecr ui t ment ,has war nedt hatt heheal t hser vi cemustaggr essi vel yat t acki t swor kf or ce i ssuesorr i skf ai l i ngt hepat i ent si tser ves.

Cur r entf i gur essuggestt hatmor et han30, 000ext r anur sesand al most3, 000GPsar ecur r ent l yneeded.However ,t hepaperwar ns t hatt hi swi l lr i set onear l y70, 000nur sesandmor et han7, 000GPs wi t hi nf i veyear si fsuf f i ci entact i oni sn’ tt aken.

Mi chaelJohnsonEl l i s,Managi ngDi r ect oratHeal t hi erRecr ui t ment , comment s: “ Wewhol ehear t edl yagr eewi t ht her epor t ’ sf i ndi ngst hatst af f i ngi sa ‘ makeor br eaki ssue’ f ort heNHSandt hatur gentact i oni sneeded now:t her ei snoquest i ont hataccesst ot al enti sasi gni f i cantbar r i er t ot hef ut ur esust ai nabi l i t yoft heheal t hser vi ce.However ,headl i nes t hatpr ocl ai mt hatt heNHShas' nochance’ oft r ai ni ngenoughst af ft o meetf ut ur edemandar emi sl eadi ngandunhel pf ul . “ Recommendat i onsout l i nedi nt hepaper ,suchast hei nt r oduct i onof cost of l i vi nggr ant sf orst udentnur ses,ar esensi bl esuggest i ons.But i nt hemeant i me,i ti scr uci alt hatTr ust sconcent r at eef f or t sonact i ons t hatwi l lhaveani mmedi at ei mpactonwor kf or cepr oduct i vi t y .

“ Wespeci f i cal l ysuppor tt her ecommendat i ont hatNHSEngl andmust maket heNHSa‘ bet t erpl acet owor kandbui l dacar eer ’ andal so echoadvi cet hatwor kf or cepl anni ngi skeyt osuccess. “ Wi t hnear l yat hi r dofqual i f i ednur si ng,mi dwi f er yandheal t hvi si t i ng st af fexpect edt or et i r ei nt henext10year s,andt hepr opor t i onofGPs whohavet akenvol unt ar year l yr et i r ementdoubl i ngsi nce201 1,boost i ngr et ent i oni sourf i r stl i neofdef enceagai nstaf ut ur eski l l scr i si s.

Over r el i anceont empor ar ywor kf or cescont i nuest ohaveanegat i ve i mpactonbot ht heexper i encesofsubst ant i at est af fandcont i nui t yof car e–andt hi si ssomet hi ngwhi chmustbeaddr essedaggr essi vel y . “ Thr oughpr oact i vel ywor ki ngt oi mpr oveempl oyeeengagement , seeki ngper manentempl oyeesr at hert hanr el yi ngonagencyst af fand depl oyi ngexi st i ngwor kf or cesi namor eef f i ci entway ,Tr ust scanwor k t omi t i gat eagai nstt hecr i si ssi t uat i ont hatt hi sr epor tf or ecast s. ”

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LocalGover nment ,Housi ng&Envi r onment

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Nat i onalEducat i onCampai gn

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