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Apubl i c at i onbyPr epar edMedi aLt d f aye@pr epar edmedi a. co. uk

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22ndFebr uar y2019

NEW J OBS I NSI DE!

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LympoedemaAwar eness

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How mappi ngyourl ymphat i cssyst em i schangi ngl ymphoedemat r eat ment Knownani nnov at or ,J aneWi gg,di r ec t oroft he Ly mphoedemaTr ai ni ngAc ademyandLy mphVi s i on,i s al way sl ook i ngf ornewway st ohel ppeopl el i v i ngwi t h l y mphoedema.Thi sc hr oni ci l l nes sr eal l ydoeshav e l i f ec hangi ngef f ec t sbutt hei nt r oduc t i onofi nnov at i v e t r eat mentandas s es s mentt ool shasal t er edt hewayt hat l y mphoedemac anbet r eat ed.Oneoft hemos ti nnov at i v e andc ondi t i onc hangi ngt ool si st heus eofaNeari nf r ar ed f l uor es c enc ei magi ng( NI RFI )appl i edt oi dent i f y l y mphat i c si nr eal t i me,f ort hef i r s tt i me.Ami nut eamount off l uor es c entf l ui di si nj ec t edi nt r ader mal l yi nt ot het i s s ue andt ak eni nt ot hel y mphat i c s( i ft heyar ef unc t i oni ng) .The dy e,whi c hbec omesat t ac hedt opr ot ei nandal bumi n mol ec ul eswi l l mov ewi t hi nt het i s s ueorl y mphat i c sov er t i me.ANI RFIc amer awi l l ex c i t et hedy eandr ef l ec tt he i mageal l owi ngt oi dent i f ywher et hel y mphat i c sar e dr ai ni ngorpr obl em ar eas .

Al t houghnew,t heRoy al Col l egeofNur s i ng( RCN) ,has r ec ogni s edJ aneandLy mphVi s i onasaf i nal i s tas i nnov at i onoft hey ear .Ly mphVi s i onc ar r i esoutc l i ni c s ar oundt heUK,meani ngt hatwec ant r ac kt hel y mphat i c dr ai nageanddes i gnnewt r eat mentandmanual l y mphat i c dr ai nagepl ans .Thr oughs c r eeni ng,NI RFLi magi ng( al s o c al l edI CG mappi ngorl y mphof l uor os c opymappi ng)al s o meanst hatwec ans eewhent hel y mphat i c sar es t ar t i ng t of ai l .Res ear c hhass hownt hatder mal r er out i ng( ear l y c hanges )wi l l dev el opi nt ol y mphoedemas oear l y r ec ogni t i oni spar amount .

Ly mphoedemai soneoft he bi gges tf ear sf ol l owi ngbr eas t s ur ger yoc c ur r i ngbet ween840% ofpeopl eandoc c ur si nar ound 25% ofgy naec ol ogi c al and mel anomac anc er s .Thr ough l y mphat i cs c r eeni ng,ear l y t r eat ments uc hass el f dr ai nage c anas s i s tt hel y mphat i c st of i nd di r ec t i onoff l owandr educ eors t opt hec hange.Sc r eeni ng i sc ar r i edoutass oonaspos s i bl ebutf or msaspar tofan annual ear l ydet ec t i onpr ogr amme.

Manyoft hepat i ent swhoat t endLy mphVi s i onal r eady hav el y mphoedemaandt heyort hei rt her api s t sar e l ook i ngt oas s i s tt hei rc ondi t i onbet t er .Thr oughNI RFLI , of t enanac c ur at edi agnos i sc anbeac hi ev edc onf i r mi ng genet i cc aus es .I naddi t i on,t heex t entoft he l y mphoedemac anbes eenal l owi ngf ort hei nt r oduc t i onof di f f er i ngt r eat mentpr ogr ammesandbes pok el y mphat i c dr ai nage.Thi si sc ompl ement edwi t hJ anesk nowl edge, whoasani nnov at or ,get st opr es entonagl obal pl at f or m andhasawar enes sofi nt er nat i onal t r eat mentt r ends .

NI RFLIhasal l owedf ort he dev el opmentofanewandadv anc eManual Ly mphat i c Dr ai nage( MLD)ormas s aget ec hni que.Fl uor os c opyhas s hownusnewpat hway s ,howt hel y mphat i c sdr ai nand r es pond,wher et heydr ai nandhowandi sr eal l y c hal l engi ngt he‘ hi s t or y ’ book sofpat hol ogyandMLD.Wi t h l i t t l er es ear c hbehi ndex i s t i ngt ec hni ques ,Fl uor os c opy gui dedMLD( FGMLD)us i ngt he‘ Fi l l andFl us h’ t ec hni que i shav i ngs uper i orout c omes ,f as t err es ul t sands av i ngbot h t heNHSandpat i ent smoney .Onepat i ent sr epor t st hat s hehass av edov er£1000s i nc emappi ngandc hangi ng herMLD. TheLy mphoedemaTr ai ni ng Ac ademy( L TA)wases t abl i s hedi n 2002andpr ov i desi nt er nat i onal t r ai ni ng.I n2014,J aneandL TA s t ar t edt eac hi ngFGMLDandt he‘ f i l l andf l us h’ t ec hni que.Pr ofBel gr ado, f r om t heBr us s el sLy mphol ogyand Res ear c hCent r ei nBel gi um, pi oneer edt heFGMLDt ec hni que andr ef i nedNI RFLi magi ng.TheL TAar et heonl ypr ov i der s oft hi st ec hni queandpr ov i det r ai ni ngi nt heUKand i nt er nat i onal l y .Asl y mphedemai sbec omi ngi nc r eas i ngl y r ec ogni s edt heneedf orgoodt her api s t si nc r eas esand wi t hc l os el i ai s on,L TAi st r ai ni nghol i s t i ct her api s t sand hi ghl ys k i l l eds por t sandmas s aget her api s t s ,t oas s i s ti n s uppor t i ngl y mphoedemat her api s t si nt hepr ov i s i onof manual l y mphat i cdr ai nage.Tr ai nedatav er yhi ghl ev el , t heywi l l pr ov i deFGMLDt opat i ent s .Al i s toft her api s t s c anbef oundatwww. l y mph. or g. uk .Tr ai ni ngonal l t hi ngs l y mphoedema,L TAar epi oneer si nt hei rf i el d,c oac hi ng ov er150newt her api s t seac hy ear .TheMLDand l y mphoedemamanagementt r ai ni ngi shel pi ngt hous ands ofpeopl e.

Don’ tbel i eveus,ourt her api st sandpat i ent sspeakf ort hemsel ves… ‘ I havebeenqual i f i edt ot r eatl ymphoedemasi nce1998,t hecour sewas f ant ast i candIam f i ndi ngIam get t i ngmuchbet t erandf ast err esul t s f r om ‘ Fi l landFl ush’ t echni que,t heyar emai nt ai ni ngbet weenandmy pat i ent sar ever yhappy . ’ ‘ Imustsayt hankyousomuchf ort heent i r ecour se!Iabsol ut el yl oved i t !Isawt wopat i ent sf orFGMLDl astweek.Wecoul dseean i mmedi at edi f f er ence.Yest er day ,atr evi ew,sher epor t ed:“ Myar mf el t ext r emel yl i ght er ,If el tIcoul df l y…Thankyousomuchf orhel pi ngme f eell i keahumanagai n. ”Onesessi onandamazi ngf eedback!The cour sehasdef i ni t el ychangedmeasacl i ni ci an! ’

AtLy mphVi s i on,t hr oughs c r eeni ng,weai mt oi dent i f y l y mphoedemaear l yt or educ eorr ev er s et hei mpac tand i mpr ov et r eat mentbyi dent i f y i ngl y mphat i cpat hway s .I n addi t i on,wepr oduc ehi ghl ys k i l l edt her api s tt ohel ppeopl e l i v i ngwi t hl y mphoedemar ec ei v ei mpr ov edc ar eand out c omes .

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