Penny’s Flight takes off on quest to find a cure for NF Foundation created after 16-year-old’s death

By LAURA LANE llane@liherald.com

More than 1,100 people attended a celebration of Penny Doerge’s life last Nov. 18 at St. John’s of Lattingtown Episcopal Church. Most had not known how ill she was, because the 16-year-old, who died on a few days earlier of a brain tumor, lived in the moment, and the treatments she received for neurofibromatosis, or NF, with which she was diagnosed at just 4 months old and that ultimately led to her death, were mere inconveniences for Penny. NF, a common genetic disorder, causes the growth of tumors on nerve pathways anywhere in the body. More common than cystic