EVERY PATIENT
EVERY MOMENT
THAT'S WHAT IT MEANS TO BE DEDICATED TO BETTER
By growing in every aspect of patient experience and quality, Catholic Health is becoming the most preferred choice on Long Island. When it comes to being better in health care, there are only today’s goals and tomorrow’s frontiers. That’s why we are committed to constant growth and improvement, from the bedside to the exam room to training and safety and every human moment in between. The advancements we make have one goal: to deliver better outcomes for every person we treat, and a better health care experience for everyone on Long Island.
Learn more at chsli.org/dedicatedtobetter
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In their own words
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By Lyn Dobrin
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he Adelphi NY Statewide Breast Cancer Hotline & Support Program has been a vital resource for Long Islanders — and all New Yorkers — coping with breast cancer for decades. Since its start in 1980, the more than 100 highly trained volunteers offer comfort, guidance and referrals, all free. Social work staff provides professional services. Before the pandemic, throughout the pandemic and now that we’ve returned to post-pandemic normalcy, Adelphi’s dedicated volunteers and staff continue to be devoted to meeting the challenges and needs of patients and survivors. In addition to the hotline, locally the program offers support groups, individual and family counseling, plus educational forums and workshops. Hotline staffers are readily available to respond to everyone who has concerns about breast cancer. Many survivors are longtime hotline volunters. They contribute their personal insights in their ongoing effort to help others; sharing their message that it is possible to get through this — and even thrive — as you find your own way on this unanticipated journey. These survivors have turned their encounter with the disease into an opportunity to better themselves and those around them. Their mantra: it’s possible to move on — and even thrive — as you find your own way on this unanticipated journey. As per the hotline’s motto, “You are not alone.”
Chris Amatulli, 65, Merrick Diagnosed: 2007 Became a hotline volunteer: 2008
When a person receives a diagnosis of breast cancer, it becomes a defining moment in their life. My moment came in October 2007 when I was first diagnosed. At the time, I was devastated. I didn’t realize then that’s such bad news could lead to something so positive. Not long after finding out that I had cancer, I called the Adelphi Breast Cancer Hotline. As a matter of fact, I used this resource several times along the way. Each time, a volunteer answered my questions and listened to all my concerns about my diagnosis, my doctors’ appointments, and all the tough decisions that I had to make during this difficult time. But most of all, they were there to just listen. I was able to face my surgeries and my chemo treatments with the confidence that there was a light at the end of the tunnel. Two years after my diagnosis, I received a call from a supervisor at the Adelphi program. She asked me if I was interested in entering a professional training program to
become a hotline volunteer. I have been involved in this rewarding work for over 12 years now. Sometimes a person will call in need of help. At the end of the call, I can hear them breathe a sigh of relief. I realize that, just for a short while, I have made a difference in someone’s day. We live in a time where the internet has become a go-to resource. But being able to connect with a person who knows what you are going through cannot only be informative, but very healing as well. I am so happy to be part of a program that can direct women to teaching hospitals, low-cost mammograms and also help them to navigate the road to getting a second opinion. Very often, these conversations can help to provide the confidence a person may need to advocate for themselves. I’m happy to be there for them in the way that someone was there for me years ago — a voice on the other end of the phone, letting them know that they are not alone.
than solace. However, in December 2022, just around the time I was about to retire from my job, I was given the opportunity to work with the Adelphi New York Statewide Breast Cancer Hotline and Support Program as a volunteer. I enthusiastically agreed to do so because I thought about how much I could have benefitted from real emotional support and how that could have made a real difference in my own journey. And so, in an effort to help others and contribute to the Long Beach community (where I live), I began the training with a group of women who, though of different ages, backgrounds, and circumstances, were all breast cancer survivors. We shared our personal stories, role-played with each other, engaged in art therapy, heard important information from respected speakers, and even formed a “Warriors Book Club” as a way of empowering ourselves through contemporary literature. But even more noticeably, I have discovered that my participation in this organization has allowed me to finally come to grips with my own diagnosis. Although I am now thankfully cancer-free, I still live with its permanent after-effects. Nevertheless, by knowing I have a support program that is with me and for me, I can cope with these conditions and confidently go forward. For that, I am ever so grateful.
Sandee Janin, Long Beach Diagnosed: 2016 Became a hotline volunteer: 2022
When I was first diagnosed with Stage 3C breast cancer in January 2016, I felt lost, devastated and very afraid. Not only did I have to face a complicated course of treatment, including a double-mastectomy, multiple rounds of chemotherapy, and daily bouts of radiation, but I also had to face it alone. I felt that my status as a person had been relegated to that of a “patient,” and that my future was nothing more than an uncertain mess. Of course, my family and friends were all supportive in the best ways they knew how, although there were so many instances where well-meaning people would ask when I had last seen my doctor, or what was the date of my last mammogram, somehow implying that this was a preventable condition that could have been avoided. But on the flip side, there were also those who unnecessarily tragedized the situation, causing me to minimize and downplay my feelings in order to placate them. Because none of this was truly helpful, I decided the right approach was to put on a happy face, follow my doctors’ care and instructions, and stoically hope for the best. But this was easier said than done, considering that I knew no one who had actually undergone or was going through the process. All I had available was the internet, which unfortunately offered too many tales of hardship, mistreatment, and the sickening effects of “the red devil” (an infamous nickname for a type of chemotherapy given to breast cancer patients). None of this was at all helpful, and in fact, caused me more grief
Barbara Simonds, 79, East Meadow Diagnosed: 2016 Became a hotline volunteer: 2022
Volunteering on the Adelphi Breast Cancer Hotline has had a profound impact on my own life. It has allowed me to connect with people who are going through a difficult time in their lives — in that way it has helped me to develop empathy and compassion for their struggles and has helped make me a more understanding and caring person. I’ve had to educate myself more about breast cancer and its various aspects. This knowledge has helped me make informed decisions about my own health and the health of my loved ones. Being part of the breast cancer hotline provides me with a sense of belonging and support. Sharing experiences and providing guidance to others strengthens my own emotional resilience. Knowing that I am making a meaningful difference in the lives of others gives me a strong sense of purpose and fulfillment. Volunteering is a two-way street. While I am providing support and assistance to others, I’m gaining valuable experiences and personal growth. It has been a mutually beneficial arrangement that has had a positive impact on my own person journey.
By the numbers Stay vigilant and know the facts Breast cancer is the most common cancer diagnosed in women (excluding skin cancer) and second only to lung cancer as a cause of cancer death in women. About 1 in 8 women will be diagnosed with breast cancer in her lifetime and 1 in 833 men. • In 2023, an estimated 297,790 new cases of invasive breast cancer will be diagnosed in women in the U.S., with an estimated 55,720 new cases of ductal carcinoma in situ (DCIS) diagnosed. An estimated 43,700 women will die from breast cancer. • In 2023, 18,780 women in New York State will be diagnosed with breast cancer. Remember, breast cancer affects men too. • Breast cancer death rates have dropped by 41 percent since 1989, as a result of earlier detection through increased awareness and mammography screening, as well as advances in treatments. Despite this drop, Black women are 40 percent more likely to die of breast cancer than white women overall and are twice as likely to die if they are younger than age 50.1 • The five-year relative survival rate for breast cancer that has not spread to the lymph nodes or other location is 99 percent. • There are more than 4 million breast cancer survivors in the U.S. today, including those who have completed treatment and those still undergoing treatment. More than 150,000 of these survivors are living with metastatic breast cancer.. • The average risk of a woman in the U.S. getting breast cancer during her life is about 12 percent. • About 15 percent of women with breast cancer have a family member with this disease. • Evidence is growing that regular physical activity reduces breast cancer risk, especially in women after menopause. Exactly how physical activity might reduce breast cancer risk isn’t clear, but it may be due to its effects on body weight, inflammation, hormones, and energy balance. Courtesy American Cancer Society
October 19, 2023 — BREAST CANCER AWARENESS - HERALD COMMUNITY NEWSPAPERS
Survivors help themselves by supporting others through diagnosis, treatment and recovery
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October 19, 2023 — BREAST CANCER AWARENESS - HERALD COMMUNITY NEWSPAPERS
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Zwanger-Pesiri: 70 years of diagnostic excellence
wanger-Pesiri Radiology has been dedicated to the health of Long Islanders for the last 70 years, and is still expanding this commitment. With 21 offices throughout Nassau and Suffolk counties, ZP is continually updating their imaging technology, renovating their offices, and expanding into new communities. What started out as a small x-ray center in Massapequa, founded by Dr. Jerome Zwanger, has expanded into Long Island’s premier imaging center, trusted for generations. “ZP has always had the mindset that investing every few years in the newest imaging equipment is a great benefit to the patient. At a hospital or hospital-owned facility, patients may be scanned on technology that is decades old,” says John Fargnoli, Senior Executive Vice President of ZP. Many specialized services offered at ZP cannot be found even at local hospitals. The new metal reduction Free.Max MRI, for example, is superb for patients with metal implants, which normally obscure the images and make a proper diagnosis very difficult. The Free.Max MRI also offers the world’s first 80 cm bore for claustrophobic and anxious patients. Diagnostic confidence is important when it comes to the accurate medical assessment of a patient’s condition. That’s why ZP’s team of subspecialized radiologists read only in their field of expertise. Whether it’s orthopedics, neurology, body imaging or breast imaging, our physicians provide expert interpretations of your medical images, and are always available to speak with your physician directly.
ZP’s newly renovated office at 126 Hicksville Road in Massapequa
Perhaps one of the most important aspects in radiology is the patient experience. From scheduling your appointment to receiving your test results, ZP takes every step to make a very stressful time more manageable. At many other facilities, you have to wait 3 to 4 weeks to be seen. Whereas at ZP, same-day appointments are available for many exams. Also, their extremely user-friendly web portal makes receiving and sharing your results very simple. “Our job is to treat every patient who walks through our door like they are a hotel guest. We are continuously inspired by restaurants, stores, hotels, airlines and other hospitality businesses. The simple motto ‘kindness matters’ is a big part of
our corporate culture here at ZP,” said John Fargnoli. Family and privately owned, ZP is not affiliated with any hospitals or outside facilities. It’s up to you where your family receives their medical imaging. Why not choose the best? To make an appointment or for more information, call (516) 798-4242 or visit zprad.com.
625 Rockaway Turnpike, Lawrence NY 11559 • (516) 798-4242 • zprad.com Health memos are supplied by advertisers and are not written by the Herald editorial staff.
HEALTH MEMO
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Compassionate care that enriches lives
he only skilled nursing facility in Oceanside, Oceanside Care Center is a 100-bed rehabilitation and nursing center that has been a part of the community’s fabric for more than 50 years. Their unique approach allows them to provide patient-centered care in a way that no other facility can. OCC specializes in an array of different services, from short-term rehab to long-term care. Oceanside Care Center provides unrivaled residentcentered care. Under the guidance of the highly skilled, professional staff, the team customizes a care plan matched to specific needs and abilities. The nursing team consists of registered nurses, licensed practical nurses and certified nursing assistants who are driven to build warm and compassionate bonds with residents. The unique and intimately sized facility attracts many residents who enjoy a meaningful relationship forged between devoted staff members, residents and their families. Many staff members have worked at Oceanside Care Center for over
25 years and take great pride in the compassionate care they provide every single day. With private and semi-private rooms, OCC offers many comforts that create a homelike atmosphere, including complimentary flat screen TVs in every room and three home cooked meals a day. Residents enjoy numerous activities and
events that take place daily, and the kind and caring staff make it feel as if they never left home. The comfortable setting allows residents to focus on regaining their strength and independence while empowering them to enjoy fruitful lives with their families and friends. Come in for a tour today!
2914 Lincoln Ave., Oceanside (516) 536-2300 www.oceansidecc.com
Health memos are supplied by advertisers and are not written by the Herald editorial staff.
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Do your part and get involved
or over four decades now, October has been the month that is devoted to educating and bringing awareness to breast cancer and sharing the importance of early detection and access to high-quality care. Did you know that one in eight women are diagnosed with breast cancer in their lifetime? That amounts to one person every two minutes in the United States. Known best for the pink color theme, breast cancer awareness features many campaigns and programs aimed at: √ Fundraising for research √ Educating about risk factors √ Supporting those who have been diagnosed √ Stressing the importance of regular screenings √ Educating about metastatic breast cancer (spreads to other parts of the body)
√ Educating about men’s breast cancer According to www.breastcancer.org, in 2022 in the United States, it’s estimated that 43,780 people – 43,250 women and 530 men – are going to die from breast cancer. According to the CDC, about 9% of all new cases of breast cancer in the U.S. are found in women younger than 45; breast cancer risk increases as women get older. Black women are less likely to be diagnosed with breast cancer than white women but are 41% more likely to die from the disease. About 170,000 people in the United States are living with metastatic breast cancer. Donate to support free resources and programming for people affected by breast cancer.
(516) 788-7830 • ilovehearing.com Health memos are supplied by advertisers and are not written by the Herald editorial staff.
Treatment options
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Many women diagnosed with breast cancer feel a sense of urgency about jumping right in and starting treatment immediately. In most cases, though, there’s time to do some research to make sure your diagnosis is correct and your treatment plan makes sense — and this may include getting a second opinion. This means asking another breast cancer specialist, or a team of specialists, to review all of your medical reports and test results, give an opinion about your diagnosis, and suggest treatment options. A second opinion may confirm your original doctor’s diagnosis and treatment plan, provide more details about the type and stage of breast cancer, raise additional treatment options you hadn’t considered, or recommend a different course of action. Even if you’ve already had treatment, it’s not too late to get a second opinion. A second doctor can weigh in on your diagnosis and treatment plan to date, offering any additional thoughts or recommendations. The very idea of getting a second opinion can seem overwhelming at first, especially when you’ve just been diagnosed with breast cancer. It can take time and legwork to find a second doctor, arrange for the second opinion, and deal with any insurance issues that may arise. It also can be intimidating to tell your current doctor you want a second opinion. But many people with breast cancer decide to get second opinions, and doctors are used to hearing this request. In fact, your doctor may be
able to help you find another specialist who can provide a second opinion. In general, delaying the start of treatment for a short time usually does not pose a risk, although you and your doctor can discuss your situation and decide how much of a delay is OK. Determining The Best Treatment Plan Simply getting a breast cancer diagnosis is good enough reason to seek a second opinion. Most people think nothing of shopping around before buying a car, or making some other major purchase. In the case of a cancer diagnosis, it can be helpful, even critically important, to get another opinion before you make decisions about treatment. “Because of my unique diagnosis and complex family history, there were a number of complex decisions to be made where there was no right answer,” says Marisa Weiss, MD, chief medical officer of Breastcancer.org. “My medical oncologist encouraged me to seek a second opinion and was very open to getting input from other medical oncologists on the best solutions moving forward. While I didn’t seek an ‘official’ second opinion, I did reach out to several colleagues who had special expertise in the thorny areas of making decisions.” A study of nearly 150 breast cancer patients in Michigan found that more than half were advised to change their treatment plans after getting a second opinion from a multidisciplinary tumor board made up of surgeons, medical oncologists, radiation oncologists,
radiologists, and pathologists. (Most hospitals and cancer centers have a tumor board that reviews selected cancer cases — typically, cases that are more complex or challenging.) Even the most qualified, highly skilled doctors can make mistakes or differ in their opinions about what’s best for your situation and your type of breast cancer.
mend anti-HER2 treatments — even though the woman could potentially benefit from those medicines. Likewise, if a breast cancer is HER2negative but test results classify it as HER2positive, doctors may recommend anti-HER2 treatments — even though the woman is unlikely to get any benefits and is exposed to the medicines’ risks. Receiving a different interpretation than the original HER2 test results is just one example of a second pathology opinion changing a person’s treatment plan. Research shows that a second pathology opinion can change a person’s plan in other ways, such as type of surgery and other treatments Courtesy breastcancer.org
Consideration Of HER2 Status Research has shown that the results of testing for HER2 status are incorrect in 8 percent of cases, even when done by expert labs, and HER2 status can sometimes vary depending on the area of the tumor that’s tested. Inaccurate HER2 test results may cause women diagnosed with breast cancer to not get the best care possible. If all or part of a breast can- Above photo: If you ultimately decide that you don’t cer is HER2-positive but test results classify it as need or want a second opinion, that’s fine, too — HER2-negative, doctors aren’t likely to recom- you’ve made the decision that’s right for you.
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Getting a second opinion
October 19, 2023 — BREAST CANCER AWARENESS - HERALD COMMUNITY NEWSPAPERS
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BREAST
CANCERGuide SUPPORT/RESOURCE ADELPHI NY STATEWIDE BREAST CANCER SUPPORT & HOTLINE
LEAN ON ME BREAST CANCER NETWORK INC.
More than 100 highly trained volunteers offer emotional support, information and referrals, all free. Social work staff provides professional services. Hotline as well as extensive support groups and counseling program, with educational forums and advocacy activities. Adelphi NY Statewide Breast Cancer Support & Hotline 800-877-8077 516-877-4320 breast-cancer.adelphi.edu
Established to provide comprehensive resources to women for issues pertaining to breast health and disease. Programs and services are designed to assist patients and families to manage their diagnosis, treatment and recovery.
SUSAN G. KOMEN FOR THE CURE The Susan G. Komen Breast Cancer Foundation site provides updated cancer research and offers practical breast health tips. The site also includes information about Race for the Cure. A helpline is available. Susan G. Komen for the Cure 877 GO KOMEN (800-462-9273) ww5.komen.org
LIVING BEYOND BREAST CANCER LBBC is a national nonprofit organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life. Programs and services include the helpline, conferences, teleconferences, networking programs, newsletters, publications and recordings. Living Beyond Breast Cancer Survivors’ Helpline 888-753-5222 www.lbcc.org
BREAST CANCER HELP, INC. Since its inception, Breast Cancer Help has taken a multlipronged approach to combating breast cancer on Long Island, according to the organization. Breast Cancer Help, Inc. 745-520-3075 breastcancerhelpinc.org
CANCER CARE, INC. Provides support services (including on-line and on-site support groups), education, information, referrals and financial assistance. A Long Island office is located in Woodbury. Cancer Care, Inc. 800-813-HOPE 516-364-8130 (Long Island) www.cancercare.org
Lean on Me Breast Cancer Network Inc. 516-829-6609 www.leanonmebcn.com
MID NASSAU LEND A HELPING HAND, INC LAHH provides customized services to breast cancer patients in hopes of relieving some of the stress and worry a cancer diagnosis and ensuing treatment creates. It addresses the needs of women in the Long Island communities of Carle Place, Garden City, Hempstead, East Meadow, Mineola, Westbury and Uniondale. Mid Nassau Lend A Helping Hand, Inc. (LAHH) 888-420-1030
HEWLETT HOUSE Hewlett House, located in Hewlett, is a community learning resource center offering many support programs, outreach, education, research, Reiki, Tai Chi, chair yoga, wig program, counseling, art center, music and pet therapy. All at no charge in a home enviornment. Hewlett House 516-374-3190 hewlett-house.org
PATIENT ADVOCATE FOUNDATION Co-pay relief program provides direct financial support to insured patients, who must financially and medically qualify to access pharmaceutical co-payment assistance. The Foundation also assists patients with medical debt crisis, insurance access issues and job retention. Patient Advocate Foundation 866-512-3861 www.copays.org
NATIONAL LYMPHEDEMA NETWORK Nonprofit organization that provides patients and professionals with information about prevention and treatment of this complication of lymph node surgery. Call the hotline for referrals. National Lymphedema Network 800-541-3259 www.lymphnet.org
Knowledge is power Support/Resource Guide continued on page 8
Knowledge paves the way to empowerment
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By Reyna Machado This October, in recognition of Breast Cancer Awareness Month, the Adelphi NY Statewide Breast Cancer Hotline and Support Program is urging women to schedule their annual mammogram. Life is busy these days. The hustle and bustle of the fall is followed by the holidays and many series of commitments. However, it’s important and empowering for everyone to obtain their annual health screenings and not get so caught up in our daily routines that we neglect to stay on top our health. Research indicates that mammograms decrease breast cancer deaths by 15 to 29 percent. An annual screening mammogram is your best defense against breast cancer. Mammography detects most cancers in women who show no symptoms or who are considered low risk. False alarms can be stressful, but the fact is that early detection saves lives. One in six breast cancers occurs in women ages 40 to 49. Not sure what age to begin? Speak with your healthcare provider to make an informed decision. Together, you can decide on the best approach given your family history, medical history and individual cancer risk. Not sure about your coverage? Call your insurance provider. If you are uninsured, contact the Adelphi NY Statewide Breast Cancer Hotline and Support Program for information on a free or low-cost mammogram. The pro-
gram has a variety of services and events this month including community outreach at several health fairs, breast health workshops in local libraries, and an event with Legislator Siela Bynoe and the NUMC Mobile Mammography Van in Rockville Centre on Oct. 20. Don’t be afraid of mammograms! Remember that only about 2 to 4 screening mammograms in 1,000 lead to a diagnosis of breast cancer, according to the American Cancer Society. In the event of a breast cancer diagnosis, Adelphi NY Statewide Breast Cancer Hotline and Support program’s licensed social workers provide counseling and support groups to guide an individual and/or their families. All of the services are completely free and confidential. For education and support, including how to get a free or low-cost mammogram call (800) 877.8077 or in español (516) 877.4331. You are not alone. Reyna Machado MA, MBA, is Executive Director of the Adelphi NY Statewide Breast Cancer Hotline and Support Program
PARKER CARE. THE BEST. FOR THE BEST.
THEY GAVE YOU THE BEST
Short Term Rehabilitation | Long Term Care | Home Health Care | Hospice | Palliative Care Inpatient And Outpatient Dialysis | Medical House Calls | Managed Long Term Care | Medicare Advantage Plan 271-11 76th Avenue New Hyde Park, NY 11040 | 877-727-5373 | parkerinstitute.org
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NOW IT’S YOUR CHANCE TO GIVE THEM THE BEST
October 19, 2023 — BREAST CANCER AWARENESS - HERALD COMMUNITY NEWSPAPERS
Make your mammogram appointment today
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CANCER Guide BREAST SUPPORT/RESOURCE
continued from page 6
SHARE: SUPPORT SERVICES FOR WOMEN WITH BREAST OR OVARIAN CANCER
Offers peer-led support to women with breast or ovarian cancer, their families and friends. Services include hotlines, support groups, wellness programs, educational forums and advocacy activities. SHARE: Support Services for Women with Breast or Ovarian Cancer 866-891-2392 www.sharecancersupport.org
AMERICAN CANCER SOCIETY The American Cancer Society is a nationwide, community-based health organization dedicated to the fight against cancer. Free information on treatment, reconstruction, sexuality and relationships. Offers prevention, education, advocacy, emotional support and other services for all types of cancer and referrals for the ACSsponsored “Reach for Recovery” program. American Cancer Society 800-ACS-2345 www.cancer.org
Y-ME NATIONAL BREAST CANCER ORGANIZATION Provides support, counseling and information. Tips for talking with family and friends (including children). Partner Match program, a service for those supporting women through breast cancer, and a guide, When the Woman You Love Has Breast Cancer. Also Your Shoes, a 24/7 breast cancer peer support center. Y-ME National Breast Cancer Organization 800-221-2141 www.y-me.org
LONG BEACH BREAST CANCER COALITION This group’s mission is to promote awareness, advocate for increased funding for research into the causes of breast cancer, and for improved methods of detection and treatment; and assistance in securing access to screening, diagnosis, and treatment. Long Beach Breast Cancer Coalition 516-943-3404 longbeachbcc.com
ROCKVILLE CENTRE BREAST CANCER COALITION
NATIONAL CANCER INSTITUTE
Education and advocacy of breast cancer research, providing support services to those in Rockville Centre and neighboring towns who have been diagnosed with breast cancer.
Provides information on all aspects of cancer and on clinical trials.
Dedicated to addressing the concerns and issues unique to young women with breast cancer.
National Cancer Institute 800-4-CANCER www.cancer.gov
Young Survival Coalition 877-YSC-1011 www.youngsurvival.org
CLEANING FOR A REASON
LEAN ON ME BREAST CANCER NETWORK
The Breasties mission is to empower those affected by breast and reproductive cancers by igniting strength and positivity through connection, free retreats, wellness activities, events and an all-inclusive resourceful online community. The hope is to spread the message that whatever you are going through — you are not alone. The Breasties thebreasties.org
House cleaner service at no charge, each person with cancer receives one general house cleaning per month for two consecutive months. Note from doctor needed.
Network that provides free support services to breast cancer patients and their families, including education, wellness seminars, group support and annual retreat. Patient care packages include information kits, necessity bags, wigs, and post-surgical bras and fittings.
A WORLD OF PINK (AWOP)
Educational breast health programming focusing on breast cancer prevention, healthy lifestyle choices, early detection and risk reduction. Presentations offered at no charge for high schools, colleges, community groups and businesses. Maurer Foundation For Breast Health Education 631-524-5151 www.maurerfoundation.org
Rockville Centre Breast Cancer Coalition www.rvcbcc.org
THE BREASTIES
This nonprofit is a health facility dedicated to providing comprehensive aftercare and education for all women who have chosen or due to health reasons undergo breast surgery. A World of Pink (AWOP) 516-513-1275 • 631-364-9684 aworldofpink.com
CASTING FOR RECOVERY Unique retreat program that combines breast cancer education and peer support with the therapeutic sport of fly-fishing, at no cost to participants. Casting For Recovery 631-252-7195 www.castingforrecovery.org
MANHASSET WOMEN’S COALITION AGAINST BREAST CANCER (MWCABC) Helps residents of Manhasset and nearby communities who are coping with breast cancer. Outreach Program provides information, emotional support, wellness retreats, gifts of hope, housecleaning, financial assistance and transportation services. Manhasset Women’s Coalition Against Breast Cancer (MWCABC) 516-627-2410 www.manhassetbreastcancer.org
NUMC BREAST IMAGING CENTER
PINK AID
Screenings with no out-of-pocket expense for those in need. Also providers of Cancer Services Program, a comprehensive cancer-screening and counseling service where breast, cervical and colorectal screenings are regularly performed free of charge for women and men who qualify. NUMC Breast Imaging Center 516-572-3300 www.numc.edu/our-services/diagnosticimaging/
Through a partnership with Support Connection, Pink Aid offers a support hotline for breast cancer patients and survivors. Services offered include ongoing emotional support and navigational support to help in finding resources. The hotline is open Monday to Friday yearround. Pink Aid 1-800-532-4290 www.pinkaid.org
Cleaning For A Reason 877-337-3348 www.cleaningforareason.org
MAURER FOUNDATION FOR BREAST HEALTH EDUCATION
PINK PURSE Provides emergency aid for individuals who need support due to their breast cancer diagnosis. Funds are offered to help pay for non-medical, household expenses. Pink Purse www.pinkaid.org/pa/pink-aid-pink-purse
CURE MOMMY’S BREAST CANCER Financial assistance, moral support, and educational information to those in need of financial assistance while suffering the burdens of breast cancer as well as other forms of cancer. Assistance with insurance premiums, rent, utility bills, home cleaning services, and transportation costs to special schools for sick children. Cure Mommy’s Breast Cancer 516-967-1148 www.curemommy.org
YOUNG SURVIVAL COALITION
Lean On Me Breast Cancer Network 516-829-6609 leanonmeny@gmail.com www.leanonmeny.org
THE FIVE WISHES The Five Wishes refers to a comprehensive approach that discusses advanced directives with individuals and families. The Five Wishes offers legal documents, support resources for patients and professionals, and links to pertinent information that social workers often use with individuals dealing with a lifethreatening illness. The Five Wishes 850-681-2010 info@fivewishes.org www.fivewishes.org
ROCKING THE ROAD FOR A CURE Rocking the Road for a Cure Inc., is a community-based non-profit organization founded to provide free educational and homebound wellness programs, case management, counseling, recreational therapy and other support services for women and men going through the diagnosis and treatment of breast cancer. Rocking The Road For A Cure 516-417-1911 rockingtheroadforacure@gmail.com https://rockingtheroadforacure.org
SHARSHERET
Free mammograms, ultrasounds, molecular breast imaging and biopsies to qualified medically underserved and uninsured residents of Nassau and Suffolk County.
A national organization of cancer survivors dedicated to addressing the unique concerns of young Jewish women facing breast cancer. It also provides culturally sensitive support to young Jewish women who are newly diagnosed with breast cancer as well as to those facing the risk of developing breast cancer, and offers related resources for Jewish communities and health care organizations.
Mercy Medical Center Breast Cancer Survivorship Program 516-705-1399 mercymedicalcenter.chsli.org
Sharsheret 866-474-2774 info@sharsheret.org www.sharsheret.org
MERCY MEDICAL CENTER BREAST CANCER SURVIVORSHIP PROGRAM
What’s on the plate always matters If you’re recovering from surgery, receiving chemotherapy or radiation, or having other breast cancer treatment, your main focus is on getting rid of the cancer. Eating well will help you stay strong by giving your body the nutrients it needs. You and your doctor can’t predict exactly how your treatment will affect you. Your general health and weight before your diagnosis play a role. So do the type, amount, and length of treatment you are receiving. As you move through your treatment, listen to your body and respond to what it needs. You may continue to enjoy cooking and eating and have a normal appetite. Or you might have days when you don’t feel like eating anything, days when you want to eat everything, and times when only some things taste good. It’s best to have a flexible, healthy eating plan to help you deal with your body’s changing needs and wants. A healthy diet — one with a variety of foods that includes lots of fruits and vegetables and regular protein — gives you the reserves of nutrients you need to keep your strength up while you’re being treated for breast cancer. These reserves also help rebuild your body’s tissues and keep your immune system strong to help fight off infection. Plus, a healthy diet can help you manage treatment side effects. There is evidence that some cancer treatments actually work better in people who are eating enough calories and protein. While you’re having breast cancer treatment, it’s more important than ever that you eat a healthy diet. Aim for a variety of foods. Create a balanced plate that is one-half cooked or raw vegetables, one-fourth lean protein (chicken, fish, lean meat, or dairy) and one-fourth whole grains; Go for the fish. Eat fatty fish, such as salmon, sardines and tuna, at least twice a week. The fats in these fish are the “good” heart-healthy omega-3 fats; other sources of these fats include walnuts, canola oil, and flaxseeds; Limit alcohol consumption. Alcohol has been linked to
cancer risk. Men should have no more than two drinks a day; women should have no more than one drink. Eat foods high in vitamin D. These include salmon, sardines, fortified orange juice, milk, and fortified cereal. Research suggests that vitamin D, which also comes from sun exposure, prevents cancer and may decrease the risk of recurrence and improve survival. People in regions with limited sunshine may be deficient and thus benefit from a vitamin D3 supplement (ask your physician about a blood test to measure deficiency); Food — not supplements — are the best source of vitamins and minerals. There is no evidence that dietary supplements provide the same anti-cancer benefits as fruits and vegetables, and some high-dose supplements may actually increase cancer risk.
Above photo: You may start to dread mealtimes during cancer treatment. Yet eating a balanced diet is especially important when you have breast cancer. Proper nutrition helps your body heal.
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Don’t overlook your diet during treatment and recovery
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Parker Jewish Institute’s President & CEO Michael N. Rosenblut honored with the 2023 Humanitarian Award by Voices for Truth and Humanity
Michael N. Rosenblut Parker Jewish Institute’s President & CEO
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he Parker Jewish Institute is pleased to announce that its President and CEO Michael N. Rosenblut was recognized with the Humanitarian Award by Voices for Truth and Humanity. The honor was presented to Mr. Rosenblut at the 4th Annual Remembrance Awards dinner, at Crest Hollow Country Club in Woodbury on
Wednesday, Sept. 27. Voices for Truth and Humanity promotes U.S. public-school education about the Holocaust, slavery, and genocide. The organization aims to fight hatred against Jews as well as all bigotry. These values resonate with the Parker community. Since its inception in 1914, Parker has stood for inclusion, aiding New York’s most vulnerable population, including immigrants and older adults. That tradition remains steadfast at Parker, a culturally rich institution that welcomes people of all backgrounds, whether they are patients, residents or team members. Parker is now home to an Indian Cultural Unit, the first of its kind, serving East and West Indian older adults in the region. Through a grant from the Jewish Federation of North America, Parker recently deployed its Hope and Healing program. This innovative program is designed to address the unique challenges faced by family caregivers of older adults with dementia and a history of trauma, regardless of their age,
gender, race, ethnicity, geography, or sexual orientation. Under Mr. Rosenblut’s direction, Parker embraces diversity and meritocracy, where team members boost their skill sets through education and mentorship. Parker focuses on service, where staff takes pride in exceeding expectations of the Institute’s patients, residents and their families, treating everyone with respect. On Wednesday, Mr. Rosenblut said he was honored to accept this recognition from Voices for Truth and Humanity. “I am very humbled to receive the 2023 Humanitarian Award,” Mr. Rosenblut said. “As leaders, we all have a role to play in fighting hate in all forms. Educating our children and leading by example, is the best insurance against a repeat of the atrocities of the past. Thank you Voices for Truth and Humanity for this truly distinguished honor.” About The Parker Jewish Institute for Health Care and Rehabilitation The Parker Jewish Institute for Health Care and Rehabilitation is headquartered
in New Hyde Park, New York. The facility is a leading provider of Short Term Rehabilitation and Long Term Care. At the forefront of innovation in patientcentered health care and technology, the Institute is a leader in teaching and geriatric research. Parker Jewish Institute features its own medical team, and is nationally renowned as a skilled nursing facility, as well as a provider of community-based health care, encompassing Home Health Care, Medical House Calls, Palliative Care and Hospice. Parker Jewish Institute is also home to Queens-Long Island Renal Institute (QLIRI), led by an interdisciplinary team of experienced Nephrologists and Dialysis Registered Nurses, a Renal Social Worker, and a Registered Renal Dietitian.
Parker Jewish Institute • (718) 289-2212 • lscacco@parkerinstitute.org Health memos are supplied by advertisers and are not written by the Herald editorial staff.
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Queens Long Island Renal Institute provides dialysis patients care, safety and convenience
he award-winning Queens Long Island Renal Institute focuses on care, safety and convenience for kidney dialysis patients in the New York metropolitan area. Located in the lobby level of Parker Jewish Institute for Health Care and Rehabilitation with its own entrance, the center provides care to Parker’s residents and patients as well as to the general public. Queens Long Island Renal Institute offers the finest quality of care, state-of-the-art technology and uncompromised dignity, in a bright, ultramodern and comfortable setting. The center is a certified 5-Diamond Status Facility, and is recognized for its demonstrated commitment to quality improvement by building and promoting a culture of patient safety. To earn this status, dialysis facilities must apply for the recognition each year. They must complete the program’s Culture of Safety module each year. A facility’s entire staff - including dieticians, management, nurses, medical directors, social workers and technicians - must participate in the program in order to qualify. Licensed by the New York State Department of Health, QLIRI is led by a dedicated, interdisciplinary team of experienced nephrologists and dialysis registered nurses, a
About Parker Jewish Institute for Health Care and Rehabilitation Parker Jewish Institute for Health Care and Rehabilitation, which is headquartered in New Hyde Park, is a leading provider of Short Term Rehabilitation and Long Term Care. At the forefront of innovation in patient-centered health care and technology, the Institute is a leader in teaching and geriatric research. Parker Jewish Institute features its own medical department, and is nationally renowned as a skilled nursing facility, as well as a provider of community-based health care, encompassing Social Adult Day Care, Home Health Care, Medical House Calls, Palliative Care and Hospice. renal social worker, and a registered renal dietitian. The team is ready to meet the individual needs of dialysis patients and families, and provides individual and family health education, as well as nutritional counseling and social work services. QLIRI is outfitted with an in-center chronic hemodialysis. It features comfortable, state-of-theart, private treatment stations with personal TVs. There is also a homelike reception area with a large-screen TV as well as free wireless access. It
accommodates stretchers, and offers valet parking. “With Queens Long Island Renal Institute conveniently located in Parker’s first-floor lobby, we continue to safely and comfortably meet the needs of our patients and residents, as well as members of the New York community who also benefit from our services,” said Michael N. Rosenblut, President and Chief Executive Officer of Parker Jewish Institute for Health Care and Rehabilitation.
Queens Long Island Renal Institute • 271-11 76th Ave., New Hyde Park • (718) 289-2600 Health memos are supplied by advertisers and are not written by the Herald editorial staff.
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October 19, 2023 — BREAST CANCER AWARENESS - HERALD COMMUNITY NEWSPAPERS
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After diagnosis Coping with what’s ahead
There’s no right or wrong way to feel after a diagnosis of breast cancer. You’ll probably go through many emotions, from fear, shock and anger to disbelief, sadness and numbness. Your emotions may change day to day or even hour to hour. It’s usual to have times when you feel very low followed by times when things seem more positive. The days and weeks immediately after a diagnosis can be particularly emotional and feel overwhelming. Many people start to feel a bit calmer or less anxious once they have been told about their treatment plan. It’s normal to feel overwhelmed when you’ve been diagnosed with cancer. It can be hard to think straight or carry out normal everyday activities. Some people have physical symptoms such as loss of appetite, diarrhea or difficulty sleeping. A breast cancer diagnosis can cause a wide range of feelings. Denial, guilt, helplessness, anxiety and fear are all normal. It is a stressful time. That is why it helps to build a strong support network of family and friends. Make time to share your feelings with others. Co-survivors can be family, friends, coworkers or members from your health care team. They are there to help. A social worker or counselor can also help with a wide range of issues with breast cancer. They can also help you cope with financial concerns. Finally, talking to your doctor is one of the best things you
can do. Talk openly with each other. This will help you gain trust and confidence. It will also help you work together as a team to make key treatment decisions. Feel Like You Are Losing control? When told you have breast cancer, you may feel like you have lost control of your life. You might be overwhelmed by the decisions you have to make. These feelings are normal. Do not let them keep you from taking action though. First, learn about breast cancer at your own pace. Get information about treatment options, side effects and clinical trials. Remember, doctors can discuss options, but the final decisions should be made together. Knowing what to expect is another way to feel in control. It may also help to keep as normal a routine as possible. Be patient. Coping with breast cancer requires time, acceptance, a fighting spirit and support. Many people also find strength in their spirituality and faith. Think about how you coped with previous trauma or stress — you could try using these methods again now. Above, all, be kind to yourself — it may help to take time to rest, eat healthily, keep active and, when you can, do something you enjoy. Get Support Your team of doctors, nurses and social workers are valuable sources of support as you
cope with a cancer diagnosis. Oncology social workers are licensed professionals who counsel people affected by cancer, providing emotional support and helping people access practical assistance. Talking about your emotions might be hard, but it can comfort you and the people who care about you. When you tell someone whom you love what you’re feeling, you give that person a chance to support you. You also give your relationship with that person a chance to grow. Be specific. When reaching out to others, be specific about the kind of support you need. Saying something like,“It would be helpful if you could shop for groceries this week,” or “Can you please drive me to my next appointment?” gives people a clear way to help. This
How can we help?
approach cuts down on frustration and reassures your family and friends that they are being helpful. Take steps to look and feel your best. Many women feel uncomfortable with their appearance after having surgery or chemotherapy. If you had breast surgery or are experiencing hair loss and changes in your physical appearance, learn about options available, such as breast prostheses and wigs. Give yourself time to adjust to changes, and try different solutions until you find what makes you feel most comfortable. Above photo: Learning that you have cancer is a difficult experience. If you’ve been diagnosed with cancer, knowing what to expect and making plans on how to proceed can help make this stressful time manageable.
Eat right
Changing your relationship to food and eating involves a major shift in thinking, feeling and doing. The goal of this shift is to create a lifestyle change, not to temporarily lose weight on a diet. Choosing, making and eating food with an “abundance model” includes the pleasures of delicious choices, many tastes, ample portions, not feeling limited, not counting calories and eating when hungry. This is in contrast to the more common “deprivation mModel” where rules of “do not” and “should not” leave us feeling bad or guilty with unmet hunger and cravings. Cycles of stress and depression-related eating are common with this model. A shift from “I can’t eat without feeling bad and guilty” to “I enjoy an abundance of healthy, delicious food” often results in a better-nourished and healthier self. Reduce your risk of breast and other cancers — and reocurrence — by including the important cancer-fighting foods in your daily diet. Pomegranates Pomegranate, the sweet seeded fruit of ancient myth, is a rich source of antioxidants, and scientists are discovering other possible health benefits. Researchers have identified six chemicals in the pomegranate that suppress aromatase — a substance in the body that helps produce estrogen. About 70 percent of breast cancers need estrogen to grow, so pomegranate is a
prime candidate as a breast-cancer-blocking super food. Two substances in the fruit also have the potential to fight both colon cancer and diabetes. Cinnamon Cinnamon is a popular spice with many benefits — including cancer fighting properties. Scientists have found that a cinnamon extract interfered with a protein that helps tumors establish a blood supply, which is critical to keep them growing. Now, researchers are pursuing additional studies on the spice that may choke the life out of cancer. Mushrooms The mushroom is more than just a pizza topping or salad fixing. Researchers have found that the common white-button mushroom block aromatase, a protein linked to most breast cancers. In lab studies, mushroom extract slowed the growth of breast tumors. Mushrooms have benefits for other forms of cancer as well. Blueberries Tiny and tasty, blueberries may be more than nature’s candy. The latest findings indicate that blueberries could play a part in undoing a tough-to-treat type of breast cancer. One study indicates that blueberries may help halt the growth and spread of triple-negative breast cancer. This form of the disease is particularly
ADELPHI NEW YORK STATEWIDE BREAST CANCER HOTLINE & SUPPORT PROGRAM
Garlic Garlic may have an impact on preventing healthy cells from cancerous through a component allyl sulfide. Allyl sulfides are found throughout the onion family, so adding garlic or onions to your recipes on a regular basis may aid in breast cancer prevention. Broccoli Broccoli has garnered the most attention as a breast cancer fighting food. Research has shown it blocks tumor growth, preventing the further spread of cancer if it does occur. Look to other cruciferous veggies — cauliflower, cabbage, Brussels sprouts, and kale — for similar benefits. Apples We tend to take apples for granted. An apple a day may very well help to keep breast cancer away! Eat the peel of the apple for the added benefit of rich anti-oxidants, fiber and other compounds needed for anti-cancer nutrition. Walnuts Walnuts contain many helpful nutrients and healthy omega-3 fatty acids, which help the body fight cancer. Research also suggests that walnuts may actually slow the growth of breast tumors. Flaxseed Flaxseed has a component called lignans that may have a role in decreasing cancer growth.
Try adding ground flaxseed to a salad or in a recipe. Try this healthy recipe that incorporates a variety of superfoods. Spinach Pomegranate Salad • 1 (10 ounce) bag baby spinach leaves, rinsed and drained • 1/4 red onion, sliced very thin • 1/2 cup walnut pieces • 1/2 cup crumbled feta • 1/4 cup alfalfa sprouts (optional) • 1 pomegranate, peeled and seeds separated • 4 tablespoons balsamic vinaigrette Place spinach in a salad bowl. Top with red onion, walnuts, feta, and sprouts. Sprinkle pomegranate seeds over the top, and drizzle with vinaigrette.
October 19, 2023 — BREAST CANCER AWARENESS - HERALD COMMUNITY NEWSPAPERS
Superfoods that will take a bite out of breast cancer
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aggressive and resistant to therapy. Researchers have found that blueberry juice held back the migration of cancer cells, while blueberry extract shrank tumors, stopped cancer cells from multiplying and even triggered their destruction.
Above photo: Your body runs on food. Foods affect how you feel, how your body operates and can impact your cancer risk.
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Nothing could stop Angela Santopolo — not even breast cancer.
t the age of 32, Angela Santopolo was diagnosed with stage IIA cancer in her right breast following a routine visit with her gynecologist and her first mammogram. Her doctor gave her a list of breast cancer physicians she could follow up with who accepted her insurance, and she chose Dhvani Thakker, MD, Director of Women’s Medical Oncology at Mount Sinai South Nassau. They met a few days later and set up a treatment plan tailored to Ms. Santopolo’s ambitious goals: to continue teaching fourth grade and earn her master’s degree in education on time. The plan included genetic testing to evaluate her for any underlying genetic mutation, cryopreservation of her eggs to preserve her ability to conceive, eight rounds of chemotherapy from September 2022 through January 2023, and surgery in February. Ms. Santopolo, of Queens, opted for a double mastectomy followed by reconstructive surgery. Christine Hodyl, DO, Mount Sinai South Nassau’s Director of Breast Health Services, performed the mastectomies, which also included initial breast reconstruction with the insertion of temporary tissue expanders performed by plastic surgeon Anke Ott Young, MD. Ms. Santopolo visited Dr. Ott to have the expanders filled with saline every two weeks in preparation for more reconstructive surgery. On Aug. 24, Dr. Ott replaced the expanders with permanent breast implants. Aside from absences for chemotherapy sessions and a six-week leave of absence following the mastectomy, Ms. Santopolo continued teaching and earned her master’s degree from Fordham University in May as planned. “I am blessed to have Dr. Thakker as my oncologist,” says Ms. Santopolo. “Even though it is a small thing, she will sit there and listen. She said to me, ‘How can you have cancer, go to work and grad school?’ She calls me her superstar.”
Scalp-Cooling Therapy to Combat Hair Loss for Breast Cancer Patients Unfortunately, Ms. Santopolo’s breast cancer journey included the distressing side effect of hair loss during chemotherapy. “I was completely bald—lost my eyebrows and eyelashes,” she said. “I felt depressed. All the things that made me feel beautiful, I lost.” Mount Sinai South Nassau is now offering the DigniCap System to provide scalp-cooling therapy to eligible patients to reduce hair loss during chemotherapy and alleviate the negative influence it can have on their emotions and outlook.
Angela Santopolo continued teaching fourth grade and earned her master’s degree while battling breast cancer with the help of her care team at Mount Sinai South Nassau.
“We want to treat the whole patient and offering this service is part of our commitment to provide our patients with comprehensive and compassionate care,” said Dr. Thakker. Scalp-cooling therapy is initiated prior to the start of each chemotherapy session. The system’s silicone cooling cap is placed snugly on the patient’s head. Flexible lightweight tubing connects the cooling cap to a control unit that circulates chilled liquid through the tubing to the silicone cap, delivering controlled cooling to all areas of the scalp. This decreases blood flow through the scalp, limiting the amount of chemotherapy that reaches the hair follicles and reducing the risk of chemotherapy-induced hair loss. Studies have shown that the system can prevent hair loss in 66.3 percent of patients with breast cancer receiving chemotherapy. At Mount Sinai South Nassau, no patient will be denied scalp-cooling therapy due to cost concerns. As a result of the generosity of donors, including a portion of the money raised by the hospital’s 2023 annual golf outing, funds have been set aside to cover costs that are not covered by health insurance.
Like Dr. Hodyl, all Mount Sinai South Nassau’s breast surgeons use many different surgical techniques to treat breast cancer. Breast-conserving surgery includes advanced techniques to preserve healthy breast. If a mastectomy is needed, there are many options for breast reconstruction. Mount Sinai South Nassau’s cancer program is accredited by the Commission on Cancer and National Accreditation Program for Breast Centers. For more information or to schedule an appointment, call 1-877-South Nassau.
One Healthy Way, Oceanside, NY 11572 • (516) 632-3000 • mountsinai.org/southnassau Health memos are supplied by advertisers and are not written by the Herald editorial staff.
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When Angela, 33, was diagnosed with stage IIA breast cancer last year, she was terrified of what was ahead. She didn’t want to stop teaching fourth grade or be derailed from earning her master’s degree in education, so she teamed up with the cancer experts at Mount Sinai South Nassau in Oceanside who designed a treatment plan that included surgery, chemotherapy, and reconstruction. Through it all, Angela earned her master’s from Fordham University and kept teaching. Accredited by the Commission on Cancer and the National Accreditation Program for Breast Centers, Mount Sinai South Nassau offers a multidisciplinary approach to fight cancer, close to home. We help you overcome not only the cancer, but whatever else cancer brings with it. Learn more at southnassau.org/cancer
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Breast cancer care you can trust, right here on Long Island.