CAN YOU WALK TO REVERSE RETT FOR SOMEONE YOU LOVE WITH RETT SYNDROME?

We have growing teams in two fantastic challenges this year and there’s still plenty of time to join them.

The Jurassic Juggernauts are a men’s team taking on 100k of the beautiful Dorset coastal path Starting on the morning of Saturday 13th May. The team will hope to finish in just over 30 hours.

Entries close on April 10th

It’s a challenge with different distance options so if you don’t want to do the whole you can do 10k, 25k or 50k instead and join the boys for some of the route.

Mark Walls is one of the team who is taking on his very first challenge for Reverse Rett. Here's his reason why.

"9th December 2021 will always be burned in my memory The day I was told my daughter Mollie, at 18 months old, had Rett Syndrome.

To say we have been to hell and back is an understatement; but as the days and weeks have passed we are slowly but surely rebuilding We will never accept Mollie’s diagnosis; we wholeheartedly believe she will not live with it for the rest of her life.

We are so excited and buoyed by all the clinical advancements; the cure is coming and we will be ready for it when it does. I signed up for the 100k Ultra because I couldn’t sit back and wait and not have played my part.

Mollie is so happy and so loved by everyone who meets her, she has a fierce personality, determined nature, loves her little sister Lily, even when she continually pulls her socks off, and loves her pony Betty

We can’t wait for the day when Mollie experiences life in all its colour."

A month later on the weekend of June 10th and 11th the Lake District Lakers will enjoy a trek around the Lake District. Again there are different distance options and we have supporters signed up to do all the distances available from 10 to 100k.

The Lake District is known for its glacial ribbon lakes, rugged fell mountains, historic literary associations and is home to England’s highest mountain, Scafell Pike.

Entries close on May 8th

Megan Shepherd and Dan Thorne’s daughter, Alba, was only diagnosed with Rett Syndrome recently and are part of the Lakers team.

"Our daughter Alba was diagnosed with Rett Syndrome in December 2022 after 18 months of assessments, referrals, tests and a lot of waiting. It has come as a devastating blow to our family and we're still figuring out how to move forwards.

One of the things we've noticed is how unknown Rett Syndrome is - even by a number of medical professionals we've come into contact with. Without awareness, there is no funding.

We wanted to do something to shout about Rett Syndrome and raise some money to help find a cure. We felt that if we're going to ask people for money then it's got to be something that's a real challenge, which is why we've signed up to the 100k Lake District Ultra Challenge. We're keen walkers but have never attempted anything like this!

Alba is the happiest little girl and has a smile that lights up any room. She is and will always be our Albs, but if we can help find a cure for this horrendous condition and improve her life in any way possible, any amount of blisters, sweat and tears is worth it!"