We’re glad you’ve joined us for the world’s largest conference on PF and ILD.
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Thursday sessions x
8:00 a.m. - 4:00 p.m.
ILD in Practice: An Immersive Day for Community
Pulmonologists and Fellows
Physicians, earn CME credit at PFF Summit! This is a closed session open to pulmonologists only. A separate registration is required in order to attend.
Register and view the program here!
8:00 a.m. - 12:15 p.m.
Nurse and Allied Health Network (NAHN)
Nurses, earn CME credit at PFF Summit! This is a closed session open to nurses only. A separate registration is required in order to attend. Register and view the program here!
1:00 p.m. - 2:30 p.m.
Welcome to the Pulmonary Fibrosis Foundation and pulmonary fibrosis 101
• Who we are: An introduction to the PFF
• Pulmonary fibrosis 101: A beginner’s guide
• Alphabet soup: Understanding ILD terminology and abbreviations
3:00 p.m. - 4:30 p.m.
Driving research and improving care: The PFF Registry and Care Center Network
• PFF Registry: How patients, caregivers, family, and lung transplant recipients can all participate in research
• Care Center Network: How healthcare providers and researchers work together to improve your care.
• PFF Scholars: How the PFF is supporting the future of PF research 3:00 p.m. - 4:30 p.m.
The SILVER Series: As the PFF celebrates 25 years, learn more about your journey with PF
• S - Symptoms and their management
• I – Interventions and treatments
• L – Life expectancy
• V – Vaccines
• E – Energy and exercise
• R – Resources: The dos and don’ts in navigating information and resources
Welcome Reception & Poster Presentation
6:00 p.m. - 9:00 p.m.
browse scientific
At the end of the evening, we award ribbons to five researchers with the most dynamic research.
The top three ribbon recipients will present their winning posters during the session, “Research in the pipeline: Paving the way for tomorrow’s breakthroughs” on Saturday.
Friday sessions
8:00 a.m. - 10:00 a.m.
Plenary Session
25 Years in Clinical Trials: Celebrating achievements, key learnings, and advancing care
• Welcome! Opening remarks and housekeeping
• A quarter-century of discovery: 25 years of clinical trials
• KEYNOTE: Beyond representation: Building equitable clinical trials for all populations
• From setbacks to success: Learning from clinical trial failures and the road ahead
• A patient-centered approach: The critical importance of endpoints
10:30 a.m. - 12:00 p.m.
Tools for monitoring your PF: The role of imaging, lung function tests, and more
• Making sense of your highresolution CT (HRCT)
• Interpreting the numbers: Understanding pulmonary function tests (PFTs) and their results
10:30 a.m. - 12:00 p.m.
Genetics and genetic testing: A new standard of care
• The cutting edge of precision medicine in ILD: What’s hot, what’s new
• Exploring the evidence: Genetic testing in ILD – friend or foe?
• Navigating the conversation: How to counsel patients during the genetic testing process
10:30 a.m. - 12:00 p.m.
Research in the pipeline:
What might the next 25 years hold?
• The next chapter: Emerging research in ILD Opening remarks and housekeeping
• Decoding disease: The role of biomarkers in ILD and pulmonary fibrosis
• Your role in discovery: What to know about clinical trial participation
10:30 a.m. - 12:00 p.m.
Differentiating PPF from IPF: Lessons learned from the last 25 years and what we hope to learn in the next quarter century
• From IPF to PPF: The evolution of how we define and distinguish IPF from PPF
◊ How we began
◊ Where we are now
◊ What we need to know for the future of fibrosis care
10:30 a.m. - 12:00 p.m.
In it together: Conversations and resources for caregivers, advocates, and family
• The evolution of caregiving: Key advancements over the last 25 years
• Perspectives from the caregivers: Three personal
stories of dedication and compassion
1:30 p.m. - 3:00 p.m.
Breathe easy: Using supplemental oxygen
• Understanding oxygen therapy: How to get the oxygen you need
• Oxygen equipment and you: Guidelines for safe usage and maintenance Respiratory therapist or ILD nurse coordinator
• Breathe on the go: Portable oxygen solutions for travel by car and air
1:30 p.m. - 3:00 p.m.
From paper to practice: Adapting guidelines to clinical practice
• Evidence in action: Translating updated treatment guidelines to patient care
◊ The Fleischner Society guidelines on quantitative CT
◊ A multi-disciplinary approach: Guidelines for treating connective tissue disease-associated interstitial lung disease (CTD-ILD) / systemic autoimmune rheumatic diseases (SARDs)
◊ Updated incidental
findings: The ATS (American Thoracic Society) guidelines on ILA (Interstitial Lung Abnormalities)
1:30 p.m. - 3:00 p.m.
Transplant decision: Navigating the crossroads
• To transplant or not: Understanding the choices and challenges
◊ When ineligibility or the decision not to pursue is the path
◊ What to expect if you decide to move forward with a lung transplant
• Lung transplant patient
panel: Insights and recommendations for before, during, and after 1:30 p.m. - 3:00 p.m.
Advancing care through clinical trials: Because every patient matters
• Expanding access: How to overcome enrollment barriers
• Reimagining trial data: How repurposing can drive breakthroughs in medicine
• Remote, rural, and ready: Designing clinical trials that reach every community
1:30 p.m. - 3:00 p.m.
Exploring
types
of ILD: IPF, connective tissue disease-related ILD, hypersensitivity pneumonitis, unclassifiable ILD, and more
• The spectrum of ILD: Understanding the different types
• Journey to the right diagnosis
• Comparing ILDs: Key similarities and differences across types
3:30 p.m. - 5:00 p.m.
Navigating ILD across the lifespan: Strategies for every stage
• Discussing your diagnosis with loved ones: Guidance for all generations
• Living with ILD: Strategies for balancing home, work, and health
• Beyond the diagnosis: Intimacy and family planning
• Representation matters: Engaging diverse representation in ILD research
3:30 p.m. - 5:00 p.m.
The power of many: Leveraging multi-omics for next-gen personalized medicine
• From patients to people: The rise of personomics in personalized healthcare
• The power of proteins: Driving precision medicine with proteomic insight
• Clinicalomics uncovered: Making sense of multidimensional patient data
• The image speaks: Harnessing radiomics for precision diagnostics
3:30 p.m. - 5:00 p.m.
Beyond the medicine cabinet: Those living with ILD and lung transplant recipients
• Nutrition matters: Tips for managing medication side effects, GERD, and weight
• Fitness: The importance of pulmonary rehab and other forms of exercise
• Finding support: Emotional wellness and resources
3:30 p.m. - 5:00 p.m.
Beyond the Medicine Cabinet:
Non-pharmacological management of ILD and what to know to help your patients
• Fueling fragile lungs: The critical role of nutrition in advanced lung disease
• Pulmonary rehab in practice: Evidence-based gains in function and quality of life
• Mental health matters: Strategies for management and care
• Beyond biology: The impact of social determinants on ILD outcomes
3:30 p.m. - 5:00 p.m. Understanding grief:
Navigating life transitions and coping with loss
• Finding support: Exploring social support and counseling resources for you and your loved one
• Honoring loss: Remembering your peers and your loved ones
Networking Dinner
6:00 p.m. - 9:00 p.m. With live entertainment! The Networking Dinner features a delicious buffet and cocktails or mocktails. Meet with old friends and make new ones!
Saturday sessions
8:00 a.m. - 10:00 a.m.
Plenary Session
HOPE: Emerging from the past and heading into the future
• Housekeeping and introductions
• KEYNOTE: Unlocking the future: Use of artificial intelligence (AI) to identify preclinical therapeutic targets
• From genes to proteins: How molecular diagnostics is shaping the future of medicine
• Legislative advocacy in a changing climate: Challenges, progress, and hope for the future
10:30 a.m. - 12:00 p.m.
Exposed! Understanding the hidden triggers and management of exposurerelated ILDs
• What are exposure-related ILDs? Causes and key consideration
• For the vets: Resources for Veterans
• Am I at risk? How to recognize if you have exposure-related ILD and taking steps to limit further exposure
10:30 a.m. - 12:00 p.m.
The innovators’ journey:
Past breakthroughs and future visions
• Science in motion: Innovations in symptom management in ILD
• Innovations in advanced therapeutics and what lies ahead
• Transforming ILD care: Innovations in precision medicine and the road ahead 10:30 a.m. - 12:00 p.m.
Managing respiratory illness when it hits
• Navigating ailments: Bronchitis, COVID, pneumonia, and influenza in the setting of ILD
• Exacerbations or flares: When ILD rapidly deteriorates
• Dealing with illnesses and rejection: For lung transplant recipients
• Treatment and expectations: What to expect during recovery
10:30 a.m. - 12:00 p.m.
Research in the pipeline: Paving the way for tomorrow’s breakthroughs
• Shaping the future: PFF Scholars making an impact
• Collaborative breakthroughs: The latest updates The PROLIFIC Research Consortium
Presenting the winning poster’s research
10:30 a.m. - 12:00 p.m.
Is it in your DNA? Understanding genetics and familial pulmonary fibrosis
• Overview of familial pulmonary fibrosis (FPF)
• The role of genetic testing in those with FPF
• The role of testing and screening in family members
• What does your family need or want to know
1:30 p.m. - 3:00 p.m.
Comprehensive medical care: Managing common medical conditions with PF: Pulmonary hypertension, GERD, and sleep apnea
• Understanding symptoms: Identifying and managing them effectively
• The evaluation process: Why it matters and how it guides treatment
• Medical conditions in focus:
1:30 p.m. - 3:00 p.m.
From trainee to expert: Navigating the path to becoming a leader in ILD care or research
• Shaping the future: PFF Scholars making an impact
• Collaborative breakthroughs: The latest updates The PROLIFIC Research Consortium
• Spotlight on Excellence: Presenting the winning poster’s research
1:30 p.m. - 3:00 p.m. The Practicalities of
serious illness: Paperwork, estate planning, insurance, and more
• What’s next? Your toolkit for how to navigate paperwork: advance directives, wills and trusts, bills, assets, death certificates, etc
• Securing what matters: Estate planning for you and your loved ones
• Understanding changes to Medicare
1:30 p.m. - 3:00 p.m.
Intensive care, fragile lungs: Managing ILD in the ICU
• When time matters most: Managing rapidly progressing ILD in the ICU
• Crisis in the lungs: Acute exacerbations in non-IPF
• From viral storm to fibrosis: Navigating COVID-related ARDS and ILD
• Immediate post-transplant care: Essentials from surgery to ICU
1:30 p.m. - 3:00 p.m.
Stronger together: Benefits of a comprehensive support system
• Setting up your personal care team: What can your support system do to help,
even from afar
• Anxiety and depression: How to identify and manage symptoms
• Palliative and hospice care: Understanding the differences
• Getting support: How to find the support that is right for you
3:30 p.m. - 5:00 p.m.
PF medications explained: What to expect and making sense of the benefits and risks
• Your medications: what to expect
• Antifibrotic treatments: Weighing the pros and cons
• Managing connective tissue
disease-related ILD (CTDILD) with medications
3:30 p.m. - 5:00 p.m.
The Case Files: A Multi Disciplinary Discussion (MDD) symposium
• Complex cases, collaborative minds: A study of interesting cases
3:30 p.m. - 5:00 p.m.
Join us! Participate in volunteer efforts at the PFF through legislative advocacy, Hill Day, fundraising, and support groups
• Your voice matters: Legislative advocacy and PFF Hill Day
• Starting a support group that works
• Getting involved! Participating in the PFF Walk and other events
3:30 p.m. - 5:00 p.m.
Life after transplant: Navigating the journey of renewal
• Living with immunosuppression: Longterm effects and management
• What comes next? Understanding the realities and next steps
