Summit 2025 Desktop Program - All sessions

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PFF SUMMIT Innovating Together

25 Years Together: Honoring the Past, Building on the Present, Innovating for the Future

Welcome!

We’re thrilled to welcome you to the world’s largest gathering dedicated to pulmonary fibrosis. Whether this is your first Summit or you’ve joined us before, we’re so grateful to have you here with us in the vibrant city of Chicago this fall. This event brings together patients, caregivers, healthcare professionals, researchers, and advocates from across the country—and beyond—to learn, connect, and inspire one another. Your presence here helps drive our shared mission forward, and we can’t wait to spend the next few days together.

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The Program You are welcome to attend any session you’d like. If you’re not sure what to attend, we’ve made color-coded reccommendations on each session.

Use the legend below to help you plan your Summit experience!

Patients

Lost a loved one

Caregivers

Lung transplant recipient

Healthcare professionals & researchers

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Thursday sessions

8:00 a.m. - 4:00 p.m.

ILD in Practice: An Immersive Day for Community Pulmonologists and Fellows

Earn CME, CE, and MOC credit at PFF Summit!

This is a closed session designed for healthcare providers only. A separate registration is required in order to attend.

Register and view the program here!

THURSDAY, NOVEMBER 13

5

8:00 a.m. - 4:00 p.m.

Nurse and Allied Health Network (NAHN)

EARN CE credit at PFF Summit! This is a closed session designed for healthcare providers only. A separate registration is required in order to attend.

Register and view the program here!

THURSDAY, NOVEMBER 13

6

1:00 p.m. - 2:30 p.m.

Welcome to the Pulmonary Fibrosis Foundation and pulmonary fibrosis 101 • Who we are: An introduction to the PFF • Pulmonary fibrosis 101: A beginner’s guide • Alphabet soup: Understanding ILD terminology and abbreviations

3:00 p.m. - 4:30 p.m.

Driving research and improving care: The PFF Registry and Care Center Network • PFF Registry: How patients, caregivers, family, and lung transplant recipients can all participate in research • Care Center Network: How healthcare providers and researchers work together to improve your care.

• PFF Scholars: How the PFF is supporting the future of PF research

THURSDAY, NOVEMBER 13

7

3:00 p.m. - 4:30 p.m.

The SILVER Series: As the PFF celebrates 25 years, learn more about your journey with PF • S - Symptoms and their management • I – Interventions and treatments • L – Life expectancy • V – Vaccines and preventative care • E – Energy and exercise • R – Reliable resources: The dos and don’ts in navigating information and resources

For information on all of the PFF’s resources, please visit the Resources Desk located on the promenade on the main conference level.

THURSDAY, NOVEMBER 13

8

5:00 p.m. - 8:00 p.m.

Welcome Reception and Poster Presentation Join us for complimentary culinary offerings and drinks in the Exhibit Hall! Mingle while you browse scientific posters created by researchers and the various exhibitor booths.

This is a terrific opportunity to see research underway and at the end of the evening, we award ribbons to ten researchers with the most dynamic research.

The presenting author for the winning poster will present a talk highlighting their project during the session, “Research in the pipeline: Paving the way for tomorrow’s breakthroughs” on Saturday.

THURSDAY, NOVEMBER 13

9

Friday sessions

8:00 a.m. - 10:00 a.m.

Plenary Session 25 Years in Clinical Trials: Celebrating achievements, key learnings, and advancing care • Welcome! Opening remarks and housekeeping • KEYNOTE: Beyond representation: Building equitable clinical trials for all populations • From setbacks to success: Learning from clinical trial failures and the road ahead • A patient-centered approach: The critical importance of endpoints

10:00 a.m. - 10:30 a.m.

Take a break! Before your next session, refuel with coffee and light refreshments during the break

FRIDAY, NOVEMBER 14

11

10:30 a.m. - 12:00 p.m.

Tools for monitoring your PF: The role of imaging, lung function tests, and more • Making sense of your high-resolution CT (HRCT) • Interpreting the numbers: Understanding pulmonary function tests (PFTs) and their results

10:30 a.m. - 12:00 p.m.

Genetics and genetic testing: A new standard of care

• The cutting edge of precision medicine in ILD: What’s hot, what’s new • Exploring the evidence: Genetic testing in ILD – friend or foe?

• Navigating the conversation: How to counsel patients during the genetic testing process

FRIDAY, NOVEMBER 14

12

10:30 a.m. - 12:00 p.m.

Research in the pipeline: What might the next 25 years hold?

• The next chapter: Emerging research in ILD • Decoding disease: The role of biomarkers in ILD and pulmonary fibrosis • Your role in discovery: What to know about clinical trial participation

10:30 a.m. - 12:00 p.m.

Differentiating PPF from IPF: Lessons learned from the last 25 years and what we hope to learn in the next quarter century • From IPF to PPF: The evolution of how we define and distinguish IPF from PPF ◊ How we began ◊ Where we are now ◊ What we need to know for the future of fibrosis care FRIDAY, NOVEMBER 14

13

10:30 a.m. - 12:00 p.m.

In it together: Conversations and resources for caregivers, advocates, and family • The evolution of caregiving: Key advancements over the last 25 years ◊ Community resources to help care for your loved one: Respite care, Meals on Wheels, and more ◊ Social acceptance of counseling and support groups ◊ Technological advancements: smartphones and apps • Perspectives from the caregivers: Three personal stories of dedication and compassion • Conversations and connections: Audience interactive discussion about caregiving facilitated by the panel

Lunch is on us and will be provided from 12:00 p.m. to 1:30 p.m.

FRIDAY, NOVEMBER 14

14

1:30 p.m. - 3:00 p.m.

Breathe easy: Using supplemental oxygen • Understanding oxygen therapy: How to get the oxygen you need • Oxygen equipment and you: Guidelines for safe usage and maintenance Respiratory therapist or ILD nurse coordinator • Breathe on the go: Portable oxygen solutions for travel by car and air

FRIDAY, NOVEMBER 14

15

1:30 p.m. - 3:00 p.m.

From paper to practice: Adapting guidelines to clinical practice • Evidence in action: Translating updated treatment guidelines to patient care ◊ The Fleischner Society guidelines on quantitative CT ◊ A multi-disciplinary approach: Guidelines for treating connective tissue disease-associated interstitial lung disease (CTD-ILD) / systemic autoimmune rheumatic diseases (SARDs) ◊ Updated incidental findings: The ATS (American Thoracic Society) guidelines on ILA (Interstitial Lung Abnormalities)

FRIDAY, NOVEMBER 14

16

1:30 p.m. - 3:00 p.m.

Transplant decision: Navigating the crossroads • To transplant or not: Understanding the choices and challenges ◊ When ineligibility or the decision not to pursue is the path ◊ What to expect if you decide to move forward with a lung transplant • Lung transplant patient panel: Insights and recommendations for before, during, and after

FRIDAY, NOVEMBER 14

17

1:30 p.m. - 3:00 p.m.

Advancing care through clinical trials: Because every patient matters • Expanding access: How to overcome enrollment barriers • Reimagining trial data: How repurposing can drive breakthroughs in medicine • Remote, rural, and ready: Designing clinical trials that reach every community

1:30 p.m. - 3:00 p.m.

Exploring types of ILD: IPF, connective tissue disease-related ILD, hypersensitivity pneumonitis, unclassifiable ILD, and more • The spectrum of ILD: Understanding the different types • Journey to the right diagnosis • Comparing ILDs: Key similarities and differences across types

FRIDAY, NOVEMBER 14

18

3:00 p.m. - 3:30 p.m.

Make the most of your afternoon break with a visit to the Exhibit Hall with a snack in hand!

3:30 p.m. - 5:00 p.m.

Navigating ILD across the lifespan: Strategies for every stage • Discussing your diagnosis with loved ones: Guidance for all generations • Living with ILD: Strategies for balancing home, work, and health • Beyond the diagnosis: Intimacy and family planning • Representation matters: Engaging diverse representation in ILD research

FRIDAY, NOVEMBER 14

19

3:30 p.m. - 5:00 p.m.

The power of many: Leveraging multiomics for next-gen personalized medicine • From patients to people: The rise of personomics in personalized healthcare • The power of proteins: Driving precision medicine with proteomic insight • Clinicalomics uncovered: Making sense of multidimensional patient data • The image speaks: Harnessing radiomics for precision diagnostics

Need a break or a battery boost?

The Relaxation Room has you covered

FRIDAY, NOVEMBER 14

20

3:30 p.m. - 5:00 p.m.

Beyond the medicine cabinet: Those living with ILD and lung transplant recipients • Nutrition matters: Tips for managing medication side effects, GERD, and weight • Fitness: The importance of pulmonary rehab and other forms of exercise • Finding support: Emotional wellness and resources

Dine and Delight Networking Night 6:00 p.m. - 8:30 p.m.

With live entertainment!

This event begins with a cocktail hour to catch up and connect with fellow attendees, followed by a buffet highlighting the rich flavors of Chicago, with something for everyone to enjoy.

Meet with old friends and make new ones!

FRIDAY, NOVEMBER 14

21

3:30 p.m. - 5:00 p.m.

Beyond the Medicine Cabinet: Non-pharmacological management of ILD and what to know to help your patients • Fueling fragile lungs: The critical role of nutrition in advanced lung disease • Pulmonary rehab in practice: Evidence-based gains in function and quality of life • Mental health matters: Strategies for management and care • Beyond biology: The impact of social determinants on ILD outcomes

FRIDAY, NOVEMBER 14

22

3:30 p.m. - 5:00 p.m.

Understanding grief: Navigating life transitions and coping with loss • Finding support: Exploring social support and counseling resources for you and your loved one • Honoring loss: Remembering your peers and your loved ones

Tip: Explore the Saturday session lineup beforehand to decide which sessions interest you most

FRIDAY, NOVEMBER 14

23

Saturday sessions

8:00 a.m. - 10:00 a.m.

Plenary Session HOPE: Emerging from the past and heading into the future • Housekeeping and introductions • KEYNOTE: Unlocking the future: Use of artificial intelligence (AI) to identify preclinical therapeutic targets • From genes to proteins: How molecular diagnostics is shaping the future of medicine • Legislative advocacy in a changing climate: Challenges, progress, and hope for the future

10:00 a.m. - 10:30 a.m.

Take a break! Before your next session, refuel with coffee and light refreshments during the break

SATURDAY, NOVEMBER 15

25

10:30 a.m. - 12:00 p.m.

Exposed! Understanding the hidden triggers and management of exposure-related ILDs • What are exposure-related ILDs? Causes and key consideration • For the vets: Resources for Veterans • Am I at risk? How to recognize if you have exposurerelated ILD and taking steps to limit further exposure

10:30 a.m. - 12:00 p.m.

The innovators’ journey: Past breakthroughs and future visions • Science in motion: Innovations in symptom management in ILD • Innovations in advanced therapeutics and what lies ahead • Transforming ILD care: Innovations in precision medicine and the road ahead

SATURDAY, NOVEMBER 15

26

10:30 a.m. - 12:00 p.m.

Managing respiratory illness when it hits • Navigating ailments: Bronchitis, COVID, pneumonia, and influenza in the setting of ILD • Exacerbations or flares: When ILD rapidly deteriorates • Dealing with illnesses and rejection: For lung transplant recipients • Treatment and expectations: What to expect during recovery

10:30 a.m. - 12:00 p.m.

Research in the pipeline: Paving the way for tomorrow’s breakthroughs • Shaping the future: PFF Scholars making an impact • Collaborative breakthroughs: The latest updates from the PROLIFIC Research Consortium • Spotlight on Excellence: Presenting the winning poster’s research

SATURDAY, NOVEMBER 15

27

10:30 a.m. - 12:00 p.m.

Is it in your DNA? Understanding genetics and familial pulmonary fibrosis • Overview of familial pulmonary fibrosis (FPF) • The role of genetic testing in those with FPF • The role of testing and screening in family members • What does your family need or want to know

Lunch is on us and will be provided from 12:00 p.m. to 1:30 p.m.

SATURDAY, NOVEMBER 15

28

1:30 p.m. - 3:00 p.m.

Comprehensive medical care: Managing common medical conditions with PF • Understanding symptoms: Identifying and managing them effectively • The evaluation process: Why it matters and how it guides treatment • Medical conditions in focus: ◊ Pulmonary hypertension (PH) ◊ Gastroesophageal reflux disease (GERD) ◊ Sleep apnea (OSA)

SATURDAY, NOVEMBER 15

29

1:30 p.m. - 3:00 p.m.

From trainee to expert: Navigating the path to becoming a leader in ILD care or research • Building a successful clinical career in ILD: Challenges, opportunities, and strategies • Navigating your research journey in ILD: Key strategies for career growth and impact • Real cases, real-time wisdom: Fellows and residents present challenging cases to the experts

Need a break or a battery boost?

The Relaxation Room has you covered

SATURDAY, NOVEMBER 15

30

1:30 p.m. - 3:00 p.m.

The Practicalities of PF and serious illness: Paperwork, estate planning, insurance, and more • What’s next? Your toolkit for how to navigate paperwork: advance directives, wills and trusts, bills, assets, death certificates, and more • Securing what matters: Estate planning for you and your loved ones • Understanding changes to Medicare

1:30 p.m. - 3:00 p.m.

Intensive care, fragile lungs: Managing ILD in the ICU

• When time matters most: Managing rapidly progressing ILD in the ICU • Crisis in the lungs: Acute exacerbations in IPF • From viral storm to fibrosis: Navigating COVID-related ARDS and ILD • Immediate post-transplant care: Essentials from surgery to ICU SATURDAY, NOVEMBER 15

31

1:30 p.m. - 3:00 p.m.

Stronger together: Benefits of a comprehensive support system • Setting up your personal care team: What can your support system do to help, even from afar • Anxiety and depression: How to identify and manage symptoms • Palliative and hospice care: Understanding the differences • Getting support: How to find the support that is right for you

3:30 p.m. - 5:00 p.m.

PF medications explained: What to expect and making sense of the benefits and risks • Your medications: what to expect • Antifibrotic treatments: Weighing the options • Managing connective tissue disease-related ILD (CTD-ILD) with medications

SATURDAY, NOVEMBER 15

32

3:30 p.m. - 5:00 p.m.

The Case Files: A Multi Disciplinary Discussion (MDD) symposium • Complex cases, collaborative minds: A study of interesting cases

3:30 p.m. - 5:00 p.m.

Join us! Participate in volunteer efforts at the PFF through legislative advocacy, Hill Day, fundraising, and support groups • Your voice matters: Legislative advocacy and PFF Hill Day • Starting a support group that works • Getting involved! Participating in the PFF Walk and other events

SATURDAY, NOVEMBER 15

33

3:30 p.m. - 5:00 p.m.

Life after transplant: Navigating the journey of renewal • Living with immunosuppression: Long-term effects and management • What comes next? Understanding the realities and next steps

SATURDAY, NOVEMBER 15

34

Ready to register for PFF Summit?

Register now!

Questions? pffsummit@pulmonaryfibrosis.org 844.TalkPFF | 844.825.5733

PFF SUMMIT Innovating Together

25 Years Together: Honoring the Past, Building on the Present, Innovating for the Future