

See you at the JW Marriott Orlando!

4040 Central Florida Parkway Orlando, FL 32837
While attending the PFF Summit, you can treat yourself to the region’s most elegant destination, where a picturesque setting, world-class recreational features, immaculate facilities and unparalleled service come together to create an exceptional resort.


The resort features a lazy river pool, three-story luxury Ritz-Carlton Spa, 18-hole championship golf course and Grande Lakes Sports including fishing, eco-tours, mountain bike trail and more.

Further, you can experience a true culinary experience at Grande Lakes Orlando, where the luxury resort offers a wealth of food and beverage concepts, sure to please any palate. Enjoy a taste of diverse cuisines, from fine Italian and Southern cuisine to artisanal café fare and farm-to-table dining. Choose from twelve outlets at The Ritz-Carlton, JW Marriott, and the signature Whisper Creek Farm, a sustainable farm, garden, and apiary that powers both resort’s restaurants and bars. Haven’t registered yet?
Book Now!

Legend
Unless noted otherwise with a symbol, you may attend any session you’d like. The color codes below represent sessions that have been tailored to best fit your experience. The colors are located next to the time of each session.
Newly diagnosed patients and caregivers
Those who have been living with PF for awhile

Thursday,
8:00 a.m. - 1:30 p.m.
Those who have lost a loved one to PF Healthcare professionals & researchers
November 9
This is a closed session for healthcare providers only.

Nurses and Allied Health Network members meeting
Location: TBD
Speakers: TBD
Welcome and updates from the NAHN working groups
Understanding the diagnostic pathway and treatment in ILD: The patient’s journey
Pulmonary hypertension related to ILD: What you need to know
The autoimmune ILD patient journey: What are you testing for? 10 minute coffee break
Non-pharmacological treatments for ILD: Pulmonary rehabilitation, oxygen therapy, support groups
Addressing the challenges of care in ILD: Complexity of patient care, coordination of care, medication
Partnering with the lung transplant center
Networking Lunch
Legislation journey: How to get involved to make an impact
8:00 a.m. - 4:00 p.m.
This is a closed session for healthcare providers and industry representatives only.
Community pulmonologists
Location: TBD
Chairs: Patricia Sime, MD; Tracy Luckhardt, MD
Diagnosis of ILD
Treatment of ILD and IPF
Welcome, housekeeping, and introductions
Diagnosis of ILD: Updates to guidelines and arriving at the right diagnosis
Role of rheumatology: When to use rheumatology and serology consults
HRCT Interpretation: Perils and pitfalls

Bronchoscopic tools: Use of genomic classifiers and options for cryobiopsy
Panel discussion / Q&A
15 minute break: 9:45 a.m. - 10:00 a.m.
Symptom management in ILD: Cough, dyspnea, and fatigue
Use of antifibrotic agents: When to start, managing side effects, and managing expectations
Hypersensitivity pneumonitis
Treatment of Non-IPF ILD
CTD-ILD: Treatment and management
PH-ILD: Diagnosis and treatment options
Panel discussion / Q&A
Lunch: Noon - 1:15 p.m.
Lung transplant update: Outcomes and improvements; when and who to refer
When your patients progress
How the PFF can help you
Multidisciplinary Discussion (MDD)
When to refer to clinical trials and what is on the horizon for treatment of ILD
When and how to use palliative care
Panel discussion / Q&A
Afternoon break: 2:15 p.m. - 2:30 p.m.
PFF Registry: What you need to know and why it’s important
The PFF Care Center Network: how you can collaborate with a CCN site
This MDD will present interesting cases and include an interactive discussion with a live Q&A
What is PF:101 and an introduction to the PFF
Location: TBD
Session chair: TBD
Speakers: TBD
Introduction to the Pulmonary Fibrosis Foundation
Overview of pulmonary fibrosis
• What is pulmonary fibrosis?
• Causes and classification of pulmonary fibrosis
Testing and monitoring in pulmonary fibrosis
Symptom management for PF patients
Live all-group discussion and audience Q&A
1:30 p.m. - 2:30 p.m. 3:00 p.m. - 4:00 p.m.
Introduction to the PFF Registry and the Care Center Network
Location: TBD
Speakers: TBD
PFF Registry
Overview of who/what is in the Registry
• Summary of first phase
• Plans for second phase
• How you can participate
PFF Care Center Network: Why it’s important and how you can find a CCN site
Live all group discussion and audience Q&A
3:00 p.m. - 4:00 p.m.
Understanding environmental impacts: Climate change, mold risk factors, and more
Location: TBD
Session chair: TBD
Speakers: TBD
Health risks of climate change in ILD and other diseases
Wildfire health impacts & personal protective equipment
Advocating for environmental health equity and policies
Live group discussion and audience Q&A
5:00 p.m. - 8:00 p.m.
Welcome Reception and Poster Presentation
Location: TBD
Please join us for the Welcome Reception and Poster Presentation! During this time, you can enjoy hors d’oeuvres and drinks, meet and mingle with other attendees, and browse posters created by researchers. The posters provide a glimpse of what is currently underway for a variety of research projects. Each researcher will be stationed at their poster where they will provide you with a brief overview of their work. At the end of the evening, we’ll award ribbons to five researchers.

Friday, November 10
8:00 a.m. - 10:00 a.m. PLENARY SESSION
It takes a village: The critical role of federal agencies in PF research and care

Location: TBD
Session chair: TBD
Speakers: TBD
Preliminary content
Keynote Address Food & Drug Administration (FDA) perspective: Accelerating new treatments while maintaining clinical trial safety


Talk 2 National Heart, Lung & Blood Institute (NHLBI): Charting a course for the future of PF research


Talk 3 How the Department of Defense supports PF research relevant to our military and our patients
Talk 4 Medicare & Medicaid: The urgent need for supplemental oxygen reform
10:30 a.m. - 12:00 p.m.
Roundtable learning
Location: TBD
Session chair: TBD

Speakers: TBD

Journey to the right diagnosis
Roundtables: IPF, other ILDs of unknown cause, unclassifiable ILD, autoimmune ILDs, and hypersensitivity pneumonitis

10:30 a.m. - 12:00 p.m.
Living with PF in a COVID world
Location: TBD
Session chair: TBD
Speakers: TBD
Current state of COVID: Rates of infection, variants, vaccination efficacy, and more
Ongoing COVID considerations for PF patients and caregivers
Understanding pulmonary fibrosis diagnosed post-COVID (commonalities between PF and COVID)
Panel discussion and Q&A
10:30 a.m. - 12:00 p.m.
Disparities in ILD
Location: TBD
Session chair: TBD
Speakers: TBD
Sex and racial disparities in diagnosis and management of the fibrosis ILDs
Neighborhood disparities and impact of rural-urban geo-location on outcomes in pulmonary fibrosis
Special pharmacies, 340b, and how to finance new therapies in PF
Panel discussion / Q&A
1:30 p.m. - 3:00 p.m.
Survive and thrive post-lung transplant: Part I
Location: TBD
Session chair: TBD
Speakers: TBD
Medication interactions and possible complications: What to avoid
Infection control without complete isolation
Caregiving for the transplant recipient
1:30 p.m. - 3:00 p.m.
Use of genetics in ILD
Location: TBD
Session chair: TBD
Speakers: TBD
Impact of telomeropathies on the clinical course of care in pulmonary fibrosis
When is the right time for genetic testing for our patients
Pros and cons debate: The use of cryobiopsy
Panel discussion / Q&A
3:30 p.m. - 5:00 p.m.
Beyond HRCT
Location: TBD
Session chair: TBD
Speakers: TBD
Novel uses of imaging in evaluation, diagnosis, and prognosis of PF (OCT)
Novel uses of imaging in evaluation, diagnosis, and prognosis of PF (PET CT)
Artificial intelligence in HRCT analysis
Interstitial lung abnormalities (ILAs): What do we currently know?
Panel discussion / Q&A
10:30 a.m. - 12:00 p.m.
Multidisciplinary Discussion (MDD); Expert presentations of interesting cases
Location: TBD
Session chair: TBD
Speakers: TBD
Pathology
Radiology
Rheumatology
Panel Discussion / Q&A
1:30 p.m. - 3:00 p.m.
Research: Be the change you want to see in PF
Location: TBD
Session chair: TBD
Speakers: TBD
Basic, translational, and clinical research: Learn the differences and understand the timelines
The importance of participating in clinical trials
What is it like to participate in a clinical trial? Process, expectations, patient reported outcomes, and more The PFF Registry and why it matters to research
1:30 p.m. - 3:00 p.m.
Using narrative medicine to understand chronic illness
Location: TBD
Session chair: TBD
Speakers: TBD
Defining narrative medicine; using storytelling to understand the human experience of chronic illness
PFF Ambassadors: The power of your story
Panel discussion / Q&A
6:00 p.m. - 9:00 p.m.
Cocktail hour and Networking Dinner
Cocktail hour: 6:00 p.m. - 7:00 p.m.
Networking dinner: 7:00 p.m. - 9:00 p.m.
All attendees are invited to the Networking Dinner for a sit-down meal and cocktails or light beverages. We encourage you to meet and mingle with other guests seated at your table! During the evening, special guests will take the stage to provide remarks.

Saturday, November 11
Clinical trials: Accelerating finding a cure
Location: TBD
Session chair: TBD
Speakers: TBD
Preliminary content
Talk 1 Setting the stage: Why is this important, how clinical trials are conducted, language of clinical trials, and challenges of clinical trials

Keynote address Adaptive clinical trials: The future

Talk 2 Artificial intelligence (AI) tools and algorithms: How to use AI/machine learning to increase identification and recruitment of patients
Talk 3 Emerging devices used in clinical trials: Device, observational, and implementation




Live panel discussion and audience Q&A
10:30 a.m. - 12:00 p.m.
All about genetics
Location: TBD
Session chair: TBD

Speakers: TBD
Genetics and PF: Whether to get tested
Familial PF and Hermansky Pudlack syndrome

The role of telomere biology disorders in PF and how to get tested
Ongoing studies in familial PF
10:30 a.m. - 12:00 p.m.
Taking the leap: Preparing for a lung transplant
Location: TBD
Session chair: TBD
Speakers: TBD
Navigating the evaluation process
Pulling together the appropriate supports: Social, emotional, and financial
Patient panel: Perspectives from all sides: Choosing a lung transplant, choosing not to be transplanted, and those who are ineligible
10:30 a.m. - 12:00 p.m.
Breathe easy: Using supplemental oxygen
Location: TBD
Session chair: TBD
Speakers: TBD
Oxygen overview
Tips to receive the O2 you need: Compressed, liquid, or portable oxygen concentrators (POCs)
Panel discussion / Q&A
10:30 a.m. - 12:00 p.m.
Reviewing progress: Research in the pipeline
Location: TBD
Session chair: TBD
Speakers: TBD
Top 3 poster winners present their projects
PFF Scholars: Early career investigators making a difference
Panel discussion / Q&A
1:30 p.m. - 3:00 p.m.
Global view of ILD
Location: TBD
Session chair: TBD
Speakers: TBD
Climate change and environmental impact in patients with fibrosis ILD
Worldwide impact of ILD and how diagnosis and treatment differs between countries and regions
Post-COVID and ILD development and how this differs in various countries
Panel discussion / Q&A
1:30 p.m. - 3:00 p.m.
Your PF toolkit: Tips and strategies for managing symptoms
Location: TBD
Session chair: TBD
Speakers: TBD
Strategies for managing symptoms
Your medications: What to expect
Nutrition, supplements, and what to avoid
Panel discussion / Q&A
1:30 p.m. - 3:00 p.m.
Building resilience
Location: TBD
Session chair: TBD
Speakers: TBD
How you and your loved ones can prepare for change
Anxiety and depression: How you can build resilience
Meditation and mindfulness
Panel discussion / Q&A
1:30 p.m. - 3:00 p.m.
Survive and thrive post-lung transplant: Part II
Location: TBD
Session chair: TBD
Speakers: TBD
Protecting your new lungs: Exercise post-transplant
Understanding possible long-term complications: : Dermatological, other cancers, and more
Testimonial: Anne Lucas shares her story
Panel discussion / Q&A
3:30 p.m. - 5:00 p.m.
The future of clinical trials in ILD
Location: TBD
Session chair: TBD
Speakers: TBD
What we have learned from the PFF Registry 1.0
Summary of the NHLBI roadmap for PF research
REMAP-ILD: Where we are, where we’re going, and what we need from you
Pre-clinical models and drug development
Panel Discussion and Q&A
3:30 p.m. - 5:00 p.m.
Roundtable #1: Understanding and communicating hospice and palliative care options
Location: TBD
Session chair: TBD
Speakers: TBD
The importance of ethnic and racial diversity: Communication and how it varies by culture
Addressing stigma of hospice and palliative care and how to find alternative wording
Patient presentations and role play — Audience response with Q&A
Panel discussion / Q&A
3:30 p.m. - 5:00 p.m.
Roundtable #2: How to improve symptom management in PF
Location: TBD
Session chair: TBD
Speakers: TBD
Assessing symptoms: ILD specific PROs
Understanding breathlessness
Cough in all its forms
Fatigue: Finding the source
Panel discussion / Q&A
3:30 p.m. - 4:30 p.m.
Financial assistance resources
Location: TBD
Session chair: TBD
Speakers: TBD
Anticipating the impact of new legislation of drug costs
301b pharmacies and patient assistance programs: How to afford the various treatments
Panel discussion / Q&A
3:30 p.m. - 4:30 p.m.
Improving pulmonary fitness
Location: TBD
Session chair: TBD
Speakers: TBD
Pulmonary rehabilitation (PR): The essential first step
• Overview of virtual resources — doing PR all at home
• Different stages of PR
What do all these numbers mean? Understanding pulmonary function tests (PFTs)
Using exercise as a lifestyle
Panel discussion / Q&A
3:30 p.m. - 4:30 p.m.
Get involved! Legislative advocacy
Location: TBD
Session chair: TBD
Speakers: TBD
How you can make a difference
Panel discussion / Q&A
